I am the solo caregiver. I also work from home fulltime and I have a young child in school and he has Autism. I never get any time for myself and this is putting a strain on my marriage. My wife and I and my son can't go anywhere, because we have nobody that will help. I have 3 siblings and they are all living their lives with no kids and they're doing what they want and living their best life. I also have severe anxiety and panic disorder and it's hard on me. I'm trying to figure out how to get my dad on medicaid, but it's hard to carve out time to navigate that. My dad says he is a prisoner, but I can't get him to understand that some people have to work fulltime, and cook supper, wash clothes etc. I'm getting to the point that it's time to consider if I can even do this long term because of the strain on my marriage.
This was the MOST USEFUL AND HELPFUL video I've ever seen for my situation and I just want to thank you! I have always called myself my mom's "primary caregiver" but I am actually her SOLO caregiver. It is so hard. I figured out that I do the job of 9 or 10 different people if she were in a facility.. I promised her I would never make her go to one. I've worked in them and I know what they can be like. I will watch your other videos to learn more. Thank you for what you do!❤
I mentioned this in another video but it is worth repeating - You put a lot of research and work into your videos. Thank you for sharing your experiences and what you have learned. I listened to this one yesterday but I did not have time to leave a comment. Just wanted to say I'm sorry about your dad. Even though several years have passed, sad memories can come back in an instant, just like you said. On a positive note, it was around the 5 year mark after the losing my dad that most of the sadness began changing into happy memories.
Thank you for your kind encouragement -- and sympathy. Of course, I am sorry for your loss as well. "Time heals all wounds" is one of those sayings that tends to elicit eye rolls and shoulder shrugs when it's first heard. But then, later, you (if you're like me) think: "Maybe there's something to it."
I am the solo caregiver; although my grandson (26) lives with us. Middle Stage was by far the most difficult for us. He was stronger and more capable of physical expressions. Now, in Late Stage, it is still difficult in a different way.
My husband has early onset dementia. He is right on the cusp between mild and moderate cognitive decline. I found this very helpful for figuring out about planning for what-if scenarios.
Thank You so much for being real. Reality I currrently am the only caretaker, spouse. FT Dementia, sons work, all work. We do have a friend that rents an area in house. He is helpful but also health issues. I must seek out emergency backup. I need ? health care consultant. I have had to do all home, household care, financials, care. Spouse can do ADL’s with prompts. Must be eyes on, but mostly Ok if watching TV. Middle Stage?I am very challenged. Daily looking ? move. No long term care insurance. I have felt all the same feelings you mention.. Do have Social Worker, girl friend. Need more in house. Grateful for your site and information. Mary Anne, grieving, cry alot, what is fun?
Very helpful on thinking in advance to what the possible regarding nursing care I’m thinking that if I sell the home and live with doughter in the annex I w have some help otherwise I have no one who could help I’m thinking all the time what the future will be If this if that.
I'm sorry it's causing you apprehension. Of course, a wise man once pointed out that worrying never added a day to anyone's life. (Easy to say; hard to do!) If you're still (semi-)independent, you might consider assisted-living arrangements. Some of those help residents segue into a nursing home -- if and when that becomes necessary.
I’m taking care of my best friend of 27 years. His family sucks today. I called hospice because he is coming down quickly. I had to sign a DNR hardest thing I’ve ever had to do. He’s like a father to me.
I am the solo caregiver. I also work from home fulltime and I have a young child in school and he has Autism. I never get any time for myself and this is putting a strain on my marriage. My wife and I and my son can't go anywhere, because we have nobody that will help. I have 3 siblings and they are all living their lives with no kids and they're doing what they want and living their best life. I also have severe anxiety and panic disorder and it's hard on me. I'm trying to figure out how to get my dad on medicaid, but it's hard to carve out time to navigate that. My dad says he is a prisoner, but I can't get him to understand that some people have to work fulltime, and cook supper, wash clothes etc. I'm getting to the point that it's time to consider if I can even do this long term because of the strain on my marriage.
This was the MOST USEFUL AND HELPFUL video I've ever seen for my situation and I just want to thank you! I have always called myself my mom's "primary caregiver" but I am actually her SOLO caregiver. It is so hard. I figured out that I do the job of 9 or 10 different people if she were in a facility.. I promised her I would never make her go to one. I've worked in them and I know what they can be like. I will watch your other videos to learn more. Thank you for what you do!❤
I mentioned this in another video but it is worth repeating - You put a lot of research and work into your videos. Thank you for sharing your experiences and what you have learned.
I listened to this one yesterday but I did not have time to leave a comment. Just wanted to say I'm sorry about your dad. Even though several years have passed, sad memories can come back in an instant, just like you said. On a positive note, it was around the 5 year mark after the losing my dad that most of the sadness began changing into happy memories.
Thank you for your kind encouragement -- and sympathy. Of course, I am sorry for your loss as well. "Time heals all wounds" is one of those sayings that tends to elicit eye rolls and shoulder shrugs when it's first heard. But then, later, you (if you're like me) think: "Maybe there's something to it."
I am the solo caregiver; although my grandson (26) lives with us. Middle Stage was by far the most difficult for us. He was stronger and more capable of physical expressions. Now, in Late Stage, it is still difficult in a different way.
My husband has early onset dementia. He is right on the cusp between mild and moderate cognitive decline. I found this very helpful for figuring out about planning for what-if scenarios.
Truth im doing it alone for my loved one with severe Alzheimer’s
Thank You so much for being real. Reality I currrently am the only caretaker, spouse. FT Dementia, sons work, all work. We do have a friend that rents an area in house. He is helpful but also health issues. I must seek out emergency backup. I need ? health care consultant. I have had to do all home, household care, financials, care. Spouse can do ADL’s with prompts. Must be eyes on, but mostly Ok if watching TV. Middle Stage?I am very challenged. Daily looking ? move. No long term care insurance. I have felt all the same feelings you mention.. Do have Social Worker, girl friend. Need more in house. Grateful for your site and information. Mary Anne, grieving, cry alot, what is fun?
Very helpful on thinking in advance to what the possible regarding nursing care I’m thinking that if I sell the home and live with doughter in the annex I w have some help otherwise I have no one who could help I’m thinking all the time what the future will be If this if that.
I'm sorry it's causing you apprehension. Of course, a wise man once pointed out that worrying never added a day to anyone's life. (Easy to say; hard to do!) If you're still (semi-)independent, you might consider assisted-living arrangements. Some of those help residents segue into a nursing home -- if and when that becomes necessary.
I’m taking care of my best friend of 27 years. His family sucks today. I called hospice because he is coming down quickly. I had to sign a DNR hardest thing I’ve ever had to do. He’s like a father to me.