Really enjoyed this conversation! Anne`s sense of humour and intelligence came across so clearly - what she said about being pyschologically ready for mobility aids was really interesting. I imagine that so much of the stigma and embarrassment of being in a wheelchair has to do with the fear of being pitied. But I think that the more visible they are, the less of an issue that is. Ideally, we would get to a point where public spaces are designed with the assumption that wheelchair users will be able to do anything that able-bodied people can do. Once that is the case, there is far less reason to pity a person anyway. Everybody in life faces their challenges and the only difference with someone in a wheelchair is that theirs is so visible. But the better designed public spaces are, the less reason there is to see being in a wheelchair as this big impairment. More of an enabler to do all the necessary and enjoyable things in life. Thanks so much for the great discussion!
I have had MS since I was about 10 I am now 72. It has been a constant friend even though it has taken so much from me. It has given me so much too bad attack was at 21 with a four month old baby. I had a lot to get better for, I have taken none of their drugs as their drugs for MS have made me horribly ill. I am now in a wheelchair after falling and breaking my hip having a wheelchair is not giving up. It has helped me have a better life. It has its challenges but so does life. I’ve learned over the years to embrace whatever happens as it is just life no one said you were gonna walk the rest of your life. No one said it was going to be easy, believe me it hasn’t been, but it could be worse. You have to remember it can always be worse and thank God it hasn’t been. It’s all doable. I have found that MS takes and gives back but not all the way.
I think this is a great video conversion. Yes absolutely about Dr.'s and how they handle giving news Myself being diagnosed with both brain tumour (cancer) on my cerebellum and MS same-day, I got the it's not that bad from dr.'s. Come on, it's cancer and MS, 2 major illnesses.
Ha - loved you using the word cripple. Had my seven year old niece and her Dad over for the day a little while ago. I always use the word cripple about myself, in a self-deprecating way. Imagine my horror when my niece turns to me and goes "what's a cripple". I never tripped over myself trying to explain that it was a word I could use, cos I am one, but that she could not use!
Apologies. It is tough sometimes as I have v slow internet so it is really had to time things. I only find this out after the interview has ended and I get the video for editing. It is all SO slow for me ;( It may be better to listen to the podcast as so heads talking is pretty boring anyway. It is on all the major podcast projects videos like Apple and Spotify
@@NYNC88 It is better. I can't promise I don't ever, am human and an amateur. It is on all the major platforms and on Acast - shows.acast.com/themsguide-podcast/losing-your-mobility-from-ms
I was extremely lucky in terms of speed of diagnosis, I fell n my feet (pardon the inference) in that my GP had a friend from University who was now a consultant Neurologist. Diagnosis came in less than a year but it progressed through Demyelination through progressive to primary to secondary. I was using a stick in less than a year and in a chair just after two. Yes. I've had people try and push me without asking, I threatened them with assault charges; they soon left me alone.
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Really enjoyed this conversation! Anne`s sense of humour and intelligence came across so clearly - what she said about being pyschologically ready for mobility aids was really interesting. I imagine that so much of the stigma and embarrassment of being in a wheelchair has to do with the fear of being pitied. But I think that the more visible they are, the less of an issue that is. Ideally, we would get to a point where public spaces are designed with the assumption that wheelchair users will be able to do anything that able-bodied people can do. Once that is the case, there is far less reason to pity a person anyway. Everybody in life faces their challenges and the only difference with someone in a wheelchair is that theirs is so visible. But the better designed public spaces are, the less reason there is to see being in a wheelchair as this big impairment. More of an enabler to do all the necessary and enjoyable things in life. Thanks so much for the great discussion!
It's hard to believe that she's 44. I thought she was in her late 20s.
I have had MS since I was about 10 I am now 72. It has been a constant friend even though it has taken so much from me. It has given me so much too bad attack was at 21 with a four month old baby. I had a lot to get better for, I have taken none of their drugs as their drugs for MS have made me horribly ill. I am now in a wheelchair after falling and breaking my hip having a wheelchair is not giving up. It has helped me have a better life. It has its challenges but so does life. I’ve learned over the years to embrace whatever happens as it is just life no one said you were gonna walk the rest of your life. No one said it was going to be easy, believe me it hasn’t been, but it could be worse. You have to remember it can always be worse and thank God it hasn’t been. It’s all doable. I have found that MS takes and gives back but not all the way.
That could be my story! From initial symptoms, to diagnosis, to the rate of progression. I hate that I can relate so well.
I think this is a great video conversion.
Yes absolutely about Dr.'s and how they handle giving news
Myself being diagnosed with both brain tumour (cancer) on my cerebellum and MS same-day, I got the it's not that bad from dr.'s.
Come on, it's cancer and MS, 2 major illnesses.
Such a beautiful lady, I also like the approach when she says still very active, that’s the way to go! Keep strong , you’re great person! 😍😍
That was great. Thank you.
Thank you. Glad you enjoyed it.
Ha - loved you using the word cripple. Had my seven year old niece and her Dad over for the day a little while ago. I always use the word cripple about myself, in a self-deprecating way. Imagine my horror when my niece turns to me and goes "what's a cripple". I never tripped over myself trying to explain that it was a word I could use, cos I am one, but that she could not use!
This was hard to watch. She couldn’t even finish her sentence without being interrupted. It was still a good topic. And I mean no hate.
Apologies. It is tough sometimes as I have v slow internet so it is really had to time things. I only find this out after the interview has ended and I get the video for editing. It is all SO slow for me ;(
It may be better to listen to the podcast as so heads talking is pretty boring anyway. It is on all the major podcast projects videos like Apple and Spotify
@@theMSguide I am going to edit my comment. It was still a good interview. I still watched it. 😎
I was just going to say the same thing. I want to hear her, and he keeps interrupting.
@@theMSguide Is the podcast edited so that you're not constantly interrupting?
@@NYNC88 It is better. I can't promise I don't ever, am human and an amateur. It is on all the major platforms and on Acast - shows.acast.com/themsguide-podcast/losing-your-mobility-from-ms
Thanks!
Thank you. I appreciate your support.
I have tumefactive MS with seizures can anyone here relate
I was extremely lucky in terms of speed of diagnosis, I fell n my feet (pardon the inference) in that my GP had a friend from University who was now a consultant Neurologist. Diagnosis came in less than a year but it progressed through Demyelination through progressive to primary to secondary. I was using a stick in less than a year and in a chair just after two.
Yes. I've had people try and push me without asking, I threatened them with assault charges; they soon left me alone.