Explore our Care Collective for personalized support, live Q&As with dementia experts, and a supportive caregiver community: careblazers.com/for-families
I’m glad to see someone putting helpful information out. My mother could appear to be only mildly cognitively impaired at the doctor’s office then be severely impaired at home particularly in the afternoon and evening yet the doctor always seemed to evaluate her based on how she behaved in his office while being rather dismissive of anything I said. It was frustrating and I felt I was getting no help from him.
I've been in your shoes with my former spouse. Despite trying to keep her home with me as Caregiver, after 3 tough years, I needed another Caregiver since I worked ft. Eventually we entered into a great facility in Baden, PA, run by the Sisters of St. Joseph. She had MS with diminishing neurological abilities, after 3 years of great care, she passed away from Covid.. My own health has also diminished and I now need a Caregiver. I underwent Open Heart Surgery to replace a very severe stenosis of my Aorta Valve. Under the knife, I had several strokes leaving me with several disabilities. My cognitive & mobility worsened. I was completely exhausted & now I have Congestive Heart Failure plus worsening memory & fatigue. I had to stop working due my disabilities. My suggestion if wanted; Caregiving is the hardest & demanding job to take on. Without adequate resources its nearly impossible. Speak. With an advocate or Caregiver to get a reality check into this especially for your spouse. Altho you might want to take this on, know you cannot do it on your own. Talk with an experienced senior attorney and have your essential paperwork prepared. Talk with advocates from the Alzheimers groups Be open to learning & experiences of others. A great place to start is A Place for Mom/Dad. Good luck & stay healthy. Thanks to my friends who helped me out. A special thanks to THE CARING staff at the fBADEN acility or& ganized and developed by numerous Sisters of St. JOSEPH.
Get a female Specialist & set up later apps. You have lots to do before appointments.😊😅 try to get helpful family and friends to chip in, too. Many will not, but a few might be helpful. Get a reliable social worker involved. Pay for the guidance you will need.gfrl
Honestly, it sounds very much as though you need a new PCP for your failing loved one; someone that will accept your version of the realities of caring for your mother ! Your doctor is going to increasingly be needed to stay current with meds & protocols, allowing you to be in the driver's seat for this aging condition. Get a really good PCP or prepare to struggle with less than that. You can contact CareBlazers too for their advice !
Same with my mom. Her Dr. didn't believe me when I tried to gently tell him she was getting bad at home. I finally asked to speak with him in the hallway, telling her I had to go to the bathroom and would be right back. Once I wasn't in front of her, I told him how she truly was... finally he got it and from then on he was a lot more helpful.
I don't have any dementia sufferers in my life right now, and I suppose this was suggested to me because of my profile (senior citizen,) but I am so happy that I watched your presentation. I was a parent educator for a number of years, and DICE is very similar to the tips that I gave to my clients in regards to dealing with their children's behaviors. Training oneself to observe cues and act appropriately before behaviors escalate seems to be the "secret" to a more peaceful environment. Bravo to you for spelling out the steps so clearly!
Hello to all my new wonderful new friends, I have decided to have hospice and bring Dave home. After meeting with social workers, this was the best for me and my sons. Hospital bed coming thrusday and Dave will be discharge on Friday. 2 days to get house ready. I will need to pay for extra help, but it will be OK, not that bad. Again, thank you for this wonderful site and all the support from all. I will get you posted, love to all, Charlotte 🎉
Thank you Dr. Natali. For all your support and great ideas. My husband is 62 years old with Dementia and sometimes he gets really anxious. And I know he misses going to church. We use to go every Sunday. I’m going to be trying out the Dice method a lot. Thank you again. Sometimes it gets so lonely.
Hello, my hubby is 63 and has dementia also. I Started noticing memory issues in 2020. Now I realize it went back to 2018/2019. I didn't realize that dementia could start at this age. What sort of testing has your husband had so far?
@ Hi Sandy. My husband goes to the VA and a psychiatrist there diagnosed him about maybe 5 years ago. He started having memory problems. So since then that has all they’ve done. Take care.
Thank you for continuing to bring informative content to us when it clearly it would be easier for you to “take a break”. As you know sometimes your channel is our lifeline. Often you helped me when I needed it desperately!
Hello, the past month, husband went to er, was admitted for 12 days, home for 2 weeks, was doing ok , then back to er and then rehab for and now back in hospital. Now they talk about nursing home, I want him back home, I feel I can do it, a lot to think about. He does have diabetes also. There are too many cooks in the kitchen telling me what to do. Thank you for being here. 🥰
The questions I had to ask myself was what criteria does my loved one meet that makes them appropriate for the nursing home. And why are so many professionals and family members saying the same thing? What was I overlooking? What was I not understanding? What were my personal needs and motivations? It’s the worst decision to have to make on someone’s behalf. So much guilt and feeling like I was giving up on them. A good support system and making sure you are also taken care of is essential. Maybe I’m just being another cook in your kitchen but I also totally understand what you are going through. ☮️❤️
@@4everyoung24 I was recently diagnosed with a prognosis of 4 relatively good years before the effects will become a hindrance to me. I am on the books at a local nursing home should there be any rapid deterioration. If not, I would like to be admitted while I can still orientate and familiarise myself with all it entails. I cannot imagine how difficult it is to make this decision on behalf of a loved one. Wishing you only best.
My husband‘s 81 he was diagnosed with early stages of dementia. He’s been on psych meds for 30 years. They stopped working. He gets anxiety attack and he repeats his self many times a day doesn’t know what day it is. Doesn’t know what to do with himself so he sleeps most of the day. I just don’t know how to help him. This has been going on for almost 2 years. I’m at my ends wits I feel like I’m going crazy a lot of times I sleep too. My health is not very well. I have no help. I am his one caregiver thank you For this video
My husband does the same. He loves Gospel and country songs so I put them on. He will wear his cowboy hat. When possible we go out on patio. He has physical therapy & is walked outside. I hired a private pay for his showers 3 x a week as he wears pull ups. But I also am recovering from knee surgery. I make sure he is full before bed with a snake. I found that the natural sleep for him is Relaxiun OTC. Has herbs & magnesium in it. About $30 but eliminates meds that carried over the next day. You stated no one helps. His doctor could help you. I explained the situation and through insurance put in for the help. Church people come. The pastor gives my husband a shave. Must ask for help. Neighbors, friends. A lot of time people don’t know what you or him needs.
I take care of my 91yo MIL with dementia. She has all of the symptoms, but my husband doesn't want to medicate her. Her behaviors cause a lot of issues, though, and she is very difficult to deal with. I'm at my wit's end. Maybe this will help. I work evenings at an assisted living facility, so I am not new to dementia. I deal with it every day, but MIL is one of the most difficult I've seen.
Very helpful to have a name and concrete steps to the process. I've been "sort of" doing this all along but with more trial and error. It's good to have the steps to refer to.
😮😮My MIL has lost 2 children and her husband in the past 5 years. In addition, her home received 70,000 in tornado damage. Her son ( my husband) is dealing with her issues. She keeps seeing people who have died. She is also hearing strangers in the house.
My mom is 86 and was diagnosed with PSP via a brain MRI in 2021. She stopped speaking after a stroke and then shingles in August of 2024. Then started speaking again in just before Thanksgiving Day of November 2024. She doesn't speak in sentences. Mainly words. Halting but clear.
Thanks for the helpful information. In your opinion, is it helpful for someone (husband) to have neuropsychological testing to stage dementia? Am having difficulty planning for future needs.
Thanks so much! Your video on testing was just what I needed. Excellent clarification of dynamics at play. Also discovered Roon app. Great tool. Appreciate your help.
So, basically, the idea boils down to figuring out what's wrong and trying sensible ways of addressing it. Kinda like the classical approach of people with common sense... You know, in the old days, when it was taught and expected. But those memories are fading fast, and old wives tales need to be relearned because those older folks just can't be trusted. We can make a better mouse trap. We just need a monetization plan. We'll give it an official name and make it seem really complicated with multiple steps to have people identify and document. They'll be so busy following the recipe that they won't notice that they could have already addressed it much quicker and be moving on to other things and not need to further run up care costs with more staff and more procedures to justify. More employees to supervise, and a bigger paycheck? I'm all in!
Tap the video, on the right top 4 icons will appear for a moment. Tap the cc icon, it will turn on the closed captions for you. Also if you tap the star like icon next to it. You can change the speed of the video, either slower or faster. I hope you find it helpful.
When the communication problem is on our end, it is hardly fair to complain about how the speaker is talking, imho. Luckily for those of us with difficulty hearing, we have options. Thank you to LodyLynn for pointing some of them out!
I am not trying to be critical....Why not talk to a member of clergy who may volunteer to come in a couple times of day? That person may be able to help and work a plan with the staff and the resident. P.S. Could you give Nico a scratch behind the ears and/or a tummy rub everytime I comment?
Do you have any experience with dementia patients doing things like stealing/shoplifting? My husband just took a book he wanted to read from a store and brought it home. I was totally shocked and told hmi I was concerned that he was going to get caught and get into trouble. (He carries a debit card with enough money on it so he could have bought this book) He said, "I was just borrowing this book I plan to take it back after I read it" like the store was the lending library. He looked at e like he was a five years old child- not through the eyes of a 79-year old man. Is this like the "Lying" post you posted about 4 months ago? Is this behavior a delusion? His gerontologist says he has stage 4 cognitive decline and multiple neurological issues. He has a history of doing actions that seems to be like he has no conscious or knowledge of right and wrong.
Yes, my loved one with Dementia is going into other peoples rooms in her care center and she did that in the hospital as well. tried helping yourself to bedding and such and going through somebody’s bag. She is the kindest Woman that I know and has very good values, so I didn’t believe it when somebody told me and then I saw it for myself. I still prefer her company to Just about anybody else in the world, I just have to be more careful not to upset her And these Videos are giving me a lot more confidence in caretaking.
I've been following this channel for awhile. This one has lost me with all the green , the speech that is quite long and quick. Hard for me to understand what you are saying, talking about. I'm not into the new format.
@ I can’t find a way to do that on my phone or my Kindle. She needs to slow down. Anyone who does public speaking of any kind should know better than to talk so fast. She might have great information, but if people can’t understand her or keep up with her, it’s all worthless.
![แข่งเพิ่มน้ำหนักใน 24 ชั่วโมง!! [Ver 2025]](http://i.ytimg.com/vi/20xn0g6k-ec/mqdefault.jpg)
Explore our Care Collective for personalized support, live Q&As with dementia experts, and a supportive caregiver community:
careblazers.com/for-families
I’m glad to see someone putting helpful information out. My mother could appear to be only mildly cognitively impaired at the doctor’s office then be severely impaired at home particularly in the afternoon and evening yet the doctor always seemed to evaluate her based on how she behaved in his office while being rather dismissive of anything I said. It was frustrating and I felt I was getting no help from him.
I've been in your shoes with my former spouse. Despite trying to keep her home with me as Caregiver, after 3 tough
years, I needed another Caregiver since I worked ft.
Eventually we entered into a great facility in Baden, PA, run by the Sisters of St. Joseph.
She had MS with diminishing neurological abilities, after 3 years of great care, she passed away from Covid..
My own health has also diminished and I now need a Caregiver. I underwent Open Heart Surgery to replace a very severe stenosis of my Aorta Valve.
Under the knife, I had several strokes leaving me with several disabilities. My cognitive & mobility worsened. I was completely exhausted & now I have Congestive Heart Failure plus worsening memory & fatigue. I had to stop working due my disabilities. My suggestion if wanted;
Caregiving is the hardest & demanding job to take on.
Without adequate resources its nearly impossible. Speak. With an advocate or Caregiver to get a reality check into this especially for your spouse. Altho you might want to take this on, know you cannot do it on your own.
Talk with an experienced senior attorney and have your essential paperwork prepared. Talk with advocates from the Alzheimers groups
Be open to learning & experiences of others.
A great place to start is A Place for Mom/Dad. Good luck & stay healthy. Thanks to my friends who helped me out.
A special thanks to THE CARING staff at the fBADEN acility or& ganized and developed by numerous Sisters of St. JOSEPH.
Get a female Specialist & set up later apps. You have lots to do before appointments.😊😅 try to get helpful family and friends to chip in, too.
Many will not, but a few might be helpful. Get a reliable social worker involved. Pay for the guidance you will need.gfrl
Honestly, it sounds very much as though you need a new PCP for your failing loved one; someone that will accept your version of the realities of caring for your mother ! Your doctor is going to increasingly be needed to stay current with meds & protocols, allowing you to be in the driver's seat for this aging condition. Get a really good PCP or prepare to struggle with less than that. You can contact CareBlazers too for their advice !
Same with my mom. Her Dr. didn't believe me when I tried to gently tell him she was getting bad at home. I finally asked to speak with him in the hallway, telling her I had to go to the bathroom and would be right back. Once I wasn't in front of her, I told him how she truly was... finally he got it and from then on he was a lot more helpful.
I don't have any dementia sufferers in my life right now, and I suppose this was suggested to me because of my profile (senior citizen,) but I am so happy that I watched your presentation. I was a parent educator for a number of years, and DICE is very similar to the tips that I gave to my clients in regards to dealing with their children's behaviors. Training oneself to observe cues and act appropriately before behaviors escalate seems to be the "secret" to a more peaceful environment. Bravo to you for spelling out the steps so clearly!
Hello to all my new wonderful new friends, I have decided to have hospice and bring Dave home. After meeting with social workers, this was the best for me and my sons. Hospital bed coming thrusday and Dave will be discharge on Friday. 2 days to get house ready. I will need to pay for extra help, but it will be OK, not that bad. Again, thank you for this wonderful site and all the support from all. I will get you posted, love to all, Charlotte 🎉
Sending love from the Southeastern US.
Thank you Dr. Natali. For all your support and great ideas. My husband is 62 years old with Dementia and sometimes he gets really anxious. And I know he misses going to church. We use to go every Sunday. I’m going to be trying out the Dice method a lot. Thank you again. Sometimes it gets so lonely.
Hello, my hubby is 63 and has dementia also. I Started noticing memory issues in 2020. Now I realize it went back to 2018/2019. I didn't realize that dementia could start at this age. What sort of testing has your husband had so far?
@ Hi Sandy. My husband goes to the VA and a psychiatrist there diagnosed him about maybe 5 years ago. He started having memory problems. So since then that has all they’ve done. Take care.
Churches broadcast on tv and sometimes also on their websites. Also EWTN app (Catholic). Just a thought...
Thank you for continuing to bring informative content to us when it clearly it would be easier for you to “take a break”. As you know sometimes your channel is our lifeline. Often you helped me when I needed it desperately!
My Mom passed 3 years ago. Your advice helped me so much during the time I was taking care of her... ❤❤❤❤ Thank you
Sending you love 💖
Same here. Yet, I continue to watch videos as your advice is applicable in many areas of life.
Hello, the past month, husband went to er, was admitted for 12 days, home for 2 weeks, was doing ok , then back to er and then rehab for and now back in hospital. Now they talk about nursing home, I want him back home, I feel I can do it, a lot to think about. He does have diabetes also. There are too many cooks in the kitchen telling me what to do. Thank you for being here. 🥰
The questions I had to ask myself was what criteria does my loved one meet that makes them appropriate for the nursing home. And why are so many professionals and family members saying the same thing? What was I overlooking? What was I not understanding? What were my personal needs and motivations?
It’s the worst decision to have to make on someone’s behalf. So much guilt and feeling like I was giving up on them. A good support system and making sure you are also taken care of is essential.
Maybe I’m just being another cook in your kitchen but I also totally understand what you are going through.
☮️❤️
Follow your gut feeling.
@KenIvywood you just brought tears to my eyes, thank you
@@4everyoung24 I was recently diagnosed with a prognosis of 4 relatively good years before the effects will become a hindrance to me. I am on the books at a local nursing home should there be any rapid deterioration. If not, I would like to be admitted while I can still orientate and familiarise myself with all it entails. I cannot imagine how difficult it is to make this decision on behalf of a loved one. Wishing you only best.
Do what feels right in your heart and soul. I hope to keep my husband at home always. Hang in there. From one wife/caregiver to another.❤
My husband‘s 81 he was diagnosed with early stages of dementia. He’s been on psych meds for 30 years. They stopped working. He gets anxiety attack and he repeats his self many times a day doesn’t know what day it is. Doesn’t know what to do with himself so he sleeps most of the day. I just don’t know how to help him. This has been going on for almost 2 years. I’m at my ends wits I feel like I’m going crazy a lot of times I sleep too. My health is not very well. I have no help. I am his one caregiver thank you For this video
My husband does the same. He loves Gospel and country songs so I put them on. He will wear his cowboy hat. When possible we go out on patio. He has physical therapy & is walked outside. I hired a private pay for his showers 3 x a week as he wears pull ups. But I also am recovering from knee surgery. I make sure he is full before bed with a snake. I found that the natural sleep for him is Relaxiun OTC. Has herbs & magnesium in it. About $30 but eliminates meds that carried over the next day. You stated no one helps. His doctor could help you. I explained the situation and through insurance put in for the help. Church people come. The pastor gives my husband a shave. Must ask for help. Neighbors, friends. A lot of time people don’t know what you or him needs.
Thank you for addressing this. Blessings Love and Peace
I take care of my 91yo MIL with dementia. She has all of the symptoms, but my husband doesn't want to medicate her. Her behaviors cause a lot of issues, though, and she is very difficult to deal with. I'm at my wit's end. Maybe this will help.
I work evenings at an assisted living facility, so I am not new to dementia. I deal with it every day, but MIL is one of the most difficult I've seen.
We really feel for you❤
Very helpful to have a name and concrete steps to the process. I've been "sort of" doing this all along but with more trial and error. It's good to have the steps to refer to.
😮😮My MIL has lost 2 children and her husband in the past 5 years. In addition, her home received 70,000 in tornado damage. Her son ( my husband) is dealing with her issues. She keeps seeing people who have died. She is also hearing strangers in the house.
I think it's amazing that Gemma actually verbalize "church" , let's listen first. For non verbal that's challenging.
Im going to put it into practice...thx
My mom is 86 and was diagnosed with PSP via a brain MRI in 2021. She stopped speaking after a stroke and then shingles in August of 2024. Then started speaking again in just before Thanksgiving Day of November 2024. She doesn't speak in sentences. Mainly words. Halting but clear.
Find and get lots of support ! These are conditions that will be taxing to manage.
Wonderful podcast. Thank you💖🌹💖
Thank You Kisses for Niko
You are absolutely beautiful thanks for your hard work ❤
Thanks for the helpful information. In your opinion, is it helpful for someone (husband) to have neuropsychological testing to stage dementia? Am having difficulty planning for future needs.
Hi there! Thanks for reaching out. Here is a video you may find helpful: th-cam.com/video/qHcgd9UMXCY/w-d-xo.html 💖
Thanks so much! Your video on testing was just what I needed. Excellent clarification of dynamics at play. Also discovered Roon app. Great tool. Appreciate your help.
So, basically, the idea boils down to figuring out what's wrong and trying sensible ways of addressing it. Kinda like the classical approach of people with common sense... You know, in the old days, when it was taught and expected. But those memories are fading fast, and old wives tales need to be relearned because those older folks just can't be trusted. We can make a better mouse trap. We just need a monetization plan. We'll give it an official name and make it seem really complicated with multiple steps to have people identify and document. They'll be so busy following the recipe that they won't notice that they could have already addressed it much quicker and be moving on to other things and not need to further run up care costs with more staff and more procedures to justify. More employees to supervise, and a bigger paycheck? I'm all in!
What is the procedure to sign up for the three sessions on caregivers
Hi Niko!
🐾
Use sub titles please!!! For the hard of hearing this is invaluable. Babbling rapidly is useless.
Tap the video, on the right top 4 icons will appear for a moment. Tap the cc icon, it will turn on the closed captions for you. Also if you tap the star like icon next to it. You can change the speed of the video, either slower or faster. I hope you find it helpful.
You can adjust the speed in settings. Natali wants to pack a lot into her time and is doing an awesome job.
I’ve always appreciated how well she enunciates her words.
When the communication problem is on our end, it is hardly fair to complain about how the speaker is talking, imho. Luckily for those of us with difficulty hearing, we have options. Thank you to LodyLynn for pointing some of them out!
I am not trying to be critical....Why not talk to a member of clergy who may volunteer to come in a couple times of day? That person may be able to help and work a plan with the staff and the resident.
P.S. Could you give Nico a scratch behind the ears and/or a tummy rub everytime I comment?
🐾🐾🐾 💖
Do you have any experience with dementia patients doing things like stealing/shoplifting? My husband just took a book he wanted to read from a store and brought it home. I was totally shocked and told hmi I was concerned that he was going to get caught and get into trouble. (He carries a debit card with enough money on it so he could have bought this book) He said, "I was just borrowing this book I plan to take it back after I read it" like the store was the lending library. He looked at e like he was a five years old child- not through the eyes of a 79-year old man. Is this like the "Lying" post you posted about 4 months ago? Is this behavior a delusion? His gerontologist says he has stage 4 cognitive decline and multiple neurological issues. He has a history of doing actions that seems to be like he has no conscious or knowledge of right and wrong.
Yes. I've seen it when I worked in healthcare. Common. Just keep an eye on it.
Yes, my loved one with Dementia is going into other peoples rooms in her care center and she did that in the hospital as well. tried helping yourself to bedding and such and going through somebody’s bag. She is the kindest Woman that I know and has very good values, so I didn’t believe it when somebody told me and then I saw it for myself. I still prefer her company to Just about anybody else in the world, I just have to be more careful not to upset her And these Videos are giving me a lot more confidence in caretaking.
The scientific method in a nutshell 💕💕💕
Can't hear you. Byeee
Please please speak slower.
Use close caption. I can understand her.
You can slow the video, use the gear icon and pick a slower speed.
@@jeanwells585I just did that. I sometimes get posts where they gabble! Just dial down the cog.
Other creators use that same silly microphone. Don’t worry 😊
I've been following this channel for awhile. This one has lost me with all the green , the speech that is quite long and quick. Hard for me to understand what you are saying, talking about. I'm not into the new format.
Not a new format. Temporary situation due to construction going on in her home.
Turn on Closed Captions.
If it is too fast you can adjust the speed. And you don't need to watch.
You talk too fast to absorb what you are saying.
They say that you can adjust the speed of playback on YT. Also you can turn on subtitles at your own machine.
@ I can’t find a way to do that on my phone or my Kindle. She needs to slow down. Anyone who does public speaking of any kind should know better than to talk so fast. She might have great information, but if people can’t understand her or keep up with her, it’s all worthless.