DIY Diagnostic: A Life-Changing Test for PKU Patients | Nathan Kuehne | TEDxVictoria

แชร์
ฝัง
  • เผยแพร่เมื่อ 10 ธ.ค. 2015
  • While searching for a new way of diagnosing cancer with urine testing, high school student Nathan Kuehne inadvertently stumbled upon a new way of testing for Phenulketonuria - one with life-changing implications for PKU patients around the world.
    A Grade 12 student at Glenlyon Norfolk School, Nathan Kuehne created a much-needed self-diagnostic test for Phenulketonuria (PKU), a rare genetic disorder. He also recently won a gold medal at the Canada Wide Science Fair. When Nathan graduates, he plans to pursue a career in engineering or medicine with a focus on research.
    This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at ted.com/tedx

ความคิดเห็น • 32

  • @ProjectPKU
    @ProjectPKU 8 ปีที่แล้ว +35

    I so ridiculously proud of you Nathan. Thank you again so very much . I still look foward to meeting you when I'm home next in Victoria. Hearing you read my email at the beginning of your speach gave me chills ! I'll be watching you and expect greatness for your future !

  • @kpalerm3
    @kpalerm3 8 ปีที่แล้ว +11

    What you are doing is absolutely amazing and it gives me so much hope for my sons future with PKU and a life with stable levels. Thank you, thank you, thank you!

  • @kate580423
    @kate580423 6 ปีที่แล้ว +10

    I'm PKU patient 24years olds 😆 raise hand if your pku patient as well 💪🙋

    • @marissabergeron6127
      @marissabergeron6127 4 ปีที่แล้ว +2

      I am a 20 year old with PKU

    • @AB-pw4wu
      @AB-pw4wu 3 ปีที่แล้ว

      🙋‍♀️

    • @tomaszflakus1705
      @tomaszflakus1705 3 ปีที่แล้ว

      40YO ;)

    • @kyano4948
      @kyano4948 3 ปีที่แล้ว +1

      14 years old with PKU

    • @danakarim99
      @danakarim99 2 ปีที่แล้ว

      i am 22 with pku, people say its rare but I am seeing many people that have it XD

  • @ajfrompa1726
    @ajfrompa1726 2 ปีที่แล้ว +2

    My daughter was diagnosed today with PKU today at 6 days old. Devastated as you can imagine only wanting the absolute best for your child. Seeing this video today was a real morale booster. Keep it up.

    • @9darkwizard1
      @9darkwizard1 2 ปีที่แล้ว +1

      Our daughter was diagnosed last month at 7 days old as well. You're not alone. Thank you Nathan for working hard to help those with PKU!

  • @semnijespar587
    @semnijespar587 7 ปีที่แล้ว

    I'm so happy I know this guy! Hope you make more amazing scientific breakthroughs Nathan!

  • @Cfranki001
    @Cfranki001 5 ปีที่แล้ว +3

    I have classical pku and always thought about something like this. It would make monitoring levels so much easier and faster

  • @ciaracadwell5097
    @ciaracadwell5097 8 ปีที่แล้ว +2

    wow what an amazing contribution to the pku community, I hope this student gets all the funding and support he needs to achieve all his goles pku and others

  • @feef6098
    @feef6098 7 ปีที่แล้ว +1

    Nathan this is just so fantastic and I so hope to see the end result of your device world wide in every chemist/pharmacy and doctors surgery!! Great public speaking to WELL DONE!! And THANK YOU!!

  • @Trendsetic
    @Trendsetic 2 ปีที่แล้ว

    Way to go, Kid! Amazing. I just happened upon this topic. I respect anyone who use their smarts and creativity to make a better world. Respect.

  • @karenw5288
    @karenw5288 5 ปีที่แล้ว +1

    I am so excited and I truly hope Nathan is successful with the urine test for PKU. Having PKU and see all the new products such as low pro foods, better tasting formula's and medication that can help myself as well as my fellow PKU'ers adhere their diet. Conquering PKU one step at a time. Kudos to Nathan what a accomplishment for this young man.

  • @bryanlise79
    @bryanlise79 6 ปีที่แล้ว +6

    Oh my you are one brilliant guy!! My daughter has pku and this would be a life saver. How can we help you in making this happen?

  • @meghan3you
    @meghan3you 8 ปีที่แล้ว +1

    Thank you Nathan!

    • @glitterstarfish1269
      @glitterstarfish1269 8 ปีที่แล้ว +1

      Nathan hi I'm brenda 34 from NH I'm PKU. I came across your video searching PKU. First let me say, You are my hero!!! Like Amanda, some day I dream of having a healthy baby of my own. It has been quite a struggle with such a strict diet to keep my levels low. When I heard everything you had to say I thought it was a dream. I hope with all my heart you succeed with your amazing idea. It truly would change my world. I've been waiting a long time for someone like you to step up and challenge this very invention for an at home device to find out our levels quicker. I hope to see more of your wonderful research and development soon. - Your BIG FAN Brenda!!!!!

  • @Sovet2012
    @Sovet2012 6 ปีที่แล้ว

    Вот это да! Какой молодец! У нас путь 2 недели занимает...тоже ждать приходится. Будем очень ждать новостей!

  • @hillaryschlaht5896
    @hillaryschlaht5896 5 ปีที่แล้ว +1

    Hi Nathan,
    This is absolutely fantastic! This would be such a game changer in my everyday life... By far the most exciting development in PKU research (in my opinion). Are you still working on this?? I'd love to know if this is any closer to market... where can I find more info??
    Thank you so so so much for your hard work!!

  • @kyleegarcia5569
    @kyleegarcia5569 4 ปีที่แล้ว +1

    This was 5 years ago...I was hoping for a break through by now!

  • @aditisingh6172
    @aditisingh6172 4 ปีที่แล้ว +1

    Why this video has such less views?? Oh please promote and share it more so that people can get aware man

  • @mrdeadsea7777
    @mrdeadsea7777 6 ปีที่แล้ว +4

    I quick google search shows that this "DIY Test" isn't available, or at least available to the public. It is now 2017, how is this helping ?

  • @pragmaticmusing6923
    @pragmaticmusing6923 3 ปีที่แล้ว +1

    dealing with headaches and malaise due to a mild form of pku, I try to crowd out the phenylanine with BCAA amino acids, and I seem to be able to deal with the headaches, insomnia and general malaise using lemon grass tea.

  • @user-bf2oh9lz7d
    @user-bf2oh9lz7d 11 หลายเดือนก่อน

    넌 반드시 성공할거야

  • @Sovet2012
    @Sovet2012 6 ปีที่แล้ว +1

    И большое ему спасибо с Дальнего Востока России!

  • @lassusprophetam8209
    @lassusprophetam8209 5 ปีที่แล้ว +2

    Is your test available

  • @user-tw2lj2ii4w
    @user-tw2lj2ii4w 2 ปีที่แล้ว

    제 딸아이는 PKU 입니다.
    이 장치가 하루빨리 공급될수있도록 각 단체에 협조 요청 부탁드립니다.

  • @lifewxixi
    @lifewxixi 8 ปีที่แล้ว +1

    Can I get your autograph?

  • @toddtompkinstompkins743
    @toddtompkinstompkins743 ปีที่แล้ว

    Me and my Twin brother Brad and mother we have p.k.u. it true r iq is very low.

  • @mikemiller7231
    @mikemiller7231 ปีที่แล้ว

    BS