Such an encouraging pod cast. I've just joined your free advice and finding everything you say really helpful. I'm so grateful for many stages in my recovery. One step at a time. My biggest challenge is repeat infections of what triggered my chronic fatigue journey. I am set back every time and I become quite crushed by this. Hard to stay positive and focused when this happens.
Great interview as usual, Toby! I heard this on the podcast. (So grateful you put these on the podcast, and that there is less cursing. Especially thank you for that. ❤) When listening to these (at a slower speed so I can tolerate the sound) it is so encouraging. When he was talking about sound, it reminded me that I didn't realize sounds were hard on me until I started listening to these podcasts and CFS Health. I think we help ourselves also by figuring out what is adding to our issues. For me, learning from others in a setting where negatives are not allowed was a big help towards that. Thank you Toby and Jop!
I think the fact that I've never been a drinker is a huge contributor to the fact that I've not been as bad as I could be. I also realized I was sensitive to gluten and lactose, and have been low fodmap for a few years as well, long before diagnosis. The hardest thing I have to deal with is living alone and needing to work full time, 2 dogs in an apartment, my lowest step count is 8000 without trying, average is 14k. It's often quicker to walk somewhere than to walk where I park my car. I'm realizing it means I really have to take on the mindset shift of asking for help and doing a lot less which is not at all intuitive for me, and not always available to me either. There's only so much help friends can provide so I have to completely re-engineer my life to reduce unnecessary output, prioritize and be careful so I don't get worse.
The one thing that helped me most was the video talking about the RPE, it just make so much sense, depending on how you feel you can do an activity on a lower intense level, it’s beautiful because I don’t feel the need to avoid anything anymoren
@@ezza1236 if you think it could help, I'd love to know more about it. I havent heard of RPE before. please let me know if you have a saved link for it, thanks!
Well done Toby and Jop! This interview is full of excellent advice and ideas for recovery. So much of recovery is counterintuitive because “doing the work” means resting and staying within your limits, but that’s the only way forward.
An amazing recovery! Unfortunately I am one of the ones that Jop was referring too. Whilst I have now learnt to read my body, understand when my body is demanding rest and when I am at my capacity, I have sole custody of my 8 year old, am 100 percent reliant financially on myself and my closest family are 5 hours away (can't move closer due to family law). Not working is not an option (fortunate enough to work from home the majority of the time) and I pace my domestic tasks where possible. I know that there is no magic pill and recovery comes down to me, but it is so hard when you have zero support to actually listen to your body and allow rest and to follow your baseline. I am sure that I am one of thousands in the same position
Sorry this is happening. Hope you find a way to embed nature, wakeful rest, and restorative activity - especially during transitions like after work or house chores.
You're definitely not alone. My severe CFS symptoms began with the onset of perimenopause, guess that was the last straw on the camel's back. So I'm looking into both hormonal stuff (which has helped a lot but it's still a daily struggle) and CFS-only remedies that have worked for others. I'm also the sole financial support for my family. Listening to our bodies is sooo important and also not always possible.
same here. If I had some time off work where I could rest and eat well and have less stress, I may recover. But if I don't work, I'll lose my house, my animals - everything. No family support, no friends or neighbours to lean on. Have to do all the household chores etc. Life prevents me from getting better. Income protection that I'd been paying for over 15 years - useless. They said cfs is a mental illness and mental illness claims are excluded. Given that nobody knows what exactly causes CFS, it hard to take any "cure" or "fix" seriously because its all unknown
Thanks to both of you for sharing. I'm also finding journaling or change cards helpful to remind yourself to good insight of acceptance and recovery mindset
I just had to reply to this - I've been struggling for several years - I did find Rhodiola Rosacea seemed to work well. Of course it doesn't treat the underlying cause such as heavy metals for example, but great to have something that seems to work. I also take DHEA and progesterone since blood tests revealed I'm low in both - took them both around the same time several years back and one or the other definitely seemed to help. Best of luck to you.
Such an encouraging pod cast. I've just joined your free advice and finding everything you say really helpful. I'm so grateful for many stages in my recovery. One step at a time. My biggest challenge is repeat infections of what triggered my chronic fatigue journey. I am set back every time and I become quite crushed by this. Hard to stay positive and focused when this happens.
God bless your recovery im in a resthome having had both of my legs amputated and a spine infection so be happy and walk free my friend
Bless You ❤
Oh wow 😢
Great interview as usual, Toby! I heard this on the podcast. (So grateful you put these on the podcast, and that there is less cursing. Especially thank you for that. ❤) When listening to these (at a slower speed so I can tolerate the sound) it is so encouraging. When he was talking about sound, it reminded me that I didn't realize sounds were hard on me until I started listening to these podcasts and CFS Health. I think we help ourselves also by figuring out what is adding to our issues. For me, learning from others in a setting where negatives are not allowed was a big help towards that. Thank you Toby and Jop!
I think the fact that I've never been a drinker is a huge contributor to the fact that I've not been as bad as I could be. I also realized I was sensitive to gluten and lactose, and have been low fodmap for a few years as well, long before diagnosis. The hardest thing I have to deal with is living alone and needing to work full time, 2 dogs in an apartment, my lowest step count is 8000 without trying, average is 14k. It's often quicker to walk somewhere than to walk where I park my car. I'm realizing it means I really have to take on the mindset shift of asking for help and doing a lot less which is not at all intuitive for me, and not always available to me either. There's only so much help friends can provide so I have to completely re-engineer my life to reduce unnecessary output, prioritize and be careful so I don't get worse.
The one thing that helped me most was the video talking about the RPE, it just make so much sense, depending on how you feel you can do an activity on a lower intense level, it’s beautiful because I don’t feel the need to avoid anything anymoren
Hi there! :) Would you mind sharing the link for that video please? I couldnt find it. thank you!
@ Toby knows the video, it’s the one with that girl
@@ezza1236 if you think it could help, I'd love to know more about it. I havent heard of RPE before. please let me know if you have a saved link for it, thanks!
What's the RPE?
Well done Toby and Jop! This interview is full of excellent advice and ideas for recovery. So much of recovery is counterintuitive because “doing the work” means resting and staying within your limits, but that’s the only way forward.
Well said! Glad you found it helpful!
Wow! Powerful message! I learned so much! Many nuggets of truth that i need to get busy applying!
Glad it was helpful!
Wonderful interview. Very enlightening & inspiring. Very happy for your success. You have the mindset of a winner. 🙏
An amazing recovery! Unfortunately I am one of the ones that Jop was referring too. Whilst I have now learnt to read my body, understand when my body is demanding rest and when I am at my capacity, I have sole custody of my 8 year old, am 100 percent reliant financially on myself and my closest family are 5 hours away (can't move closer due to family law). Not working is not an option (fortunate enough to work from home the majority of the time) and I pace my domestic tasks where possible. I know that there is no magic pill and recovery comes down to me, but it is so hard when you have zero support to actually listen to your body and allow rest and to follow your baseline. I am sure that I am one of thousands in the same position
Sorry this is happening. Hope you find a way to embed nature, wakeful rest, and restorative activity - especially during transitions like after work or house chores.
You're definitely not alone. My severe CFS symptoms began with the onset of perimenopause, guess that was the last straw on the camel's back. So I'm looking into both hormonal stuff (which has helped a lot but it's still a daily struggle) and CFS-only remedies that have worked for others. I'm also the sole financial support for my family. Listening to our bodies is sooo important and also not always possible.
same here. If I had some time off work where I could rest and eat well and have less stress, I may recover. But if I don't work, I'll lose my house, my animals - everything. No family support, no friends or neighbours to lean on. Have to do all the household chores etc. Life prevents me from getting better. Income protection that I'd been paying for over 15 years - useless. They said cfs is a mental illness and mental illness claims are excluded. Given that nobody knows what exactly causes CFS, it hard to take any "cure" or "fix" seriously because its all unknown
I’m in a very similar position
@@Ell000 I'm sorry you have no-one to help you 😔
Really good interview with useful tips
Glad you think so! Jop was great!
Thanks to both of you for sharing. I'm also finding journaling or change cards helpful to remind yourself to good insight of acceptance and recovery mindset
Thankyou Jop and Toby….So inspirational ❤
This is so amazing and encouraging thank you so much for sharing.
Glad it was helpful!
Thank You so much for very important advice 🙏🏽😊❤️
Glad it was helpful!
Thank u for sharing
How much does the program cost?
What supplements do you recommend?
I just had to reply to this - I've been struggling for several years - I did find Rhodiola Rosacea seemed to work well. Of course it doesn't treat the underlying cause such as heavy metals for example, but great to have something that seems to work. I also take DHEA and progesterone since blood tests revealed I'm low in both - took them both around the same time several years back and one or the other definitely seemed to help. Best of luck to you.