When I look back on my day, it is only then I realise how much more I am doing rather than a month ago, and celebrate that movement. It’s micro movements but it is movement. Thank you both ❤❤❤
Thanks so much! I really needed this right now. I often worry that I can't "exercise" and exercise always comes up as really necessary for good health. After listening to this I will be content with whatever movement I am doing in my day, until I feel capable of increasing it a little bit at a time. Thanks for all you do. All the best!
Your advice is excellent, but it seems to me that the roads are aimed at people who are not working due to illness. I am in a situation where I work, 5 days a week, 6 hours a day, one day in the morning and one day in the afternoon,. When I work in the morning, than at The afternoon or evening, I can do almost nothing but rest and prepare a simple meal. When I work in the afternoon, in the morning I sometimes manage to meditate or exercise, and cook a healthy lunch. I clean the apartment on weekends because I don't have the energy to clean during the week, however, if I socialize or have fun on the weekend, I don't have the energy left for cleaning, and that is carried over to the next weekend. Seeing the mess around the apartment and not being able to fix it is extremely frustrating for me. I would say that the lack of strength and energy to clean the apartment is the biggest frustration for me at the moment, because it is a job that needs to be done almost on a daily basis or every 2-3 days, and I can't do it. I am not financially able to pay someone and I don’t have a family support. I planned to do a little bit every day, but I can't do it on weekdays because I don't have the energy. Do you have any advice for me?
Oh also, the advice is very similar whether you're working or not. I can't work because of this, but I still don't have enough energy relative to what I need to do in my daily life without crashing (basic self care, housework, and socialising or hobbies so I have some joy in life, lol - work will have to come later). You have enough to work and do a either a little cleaning or socialising, but it's still not enough to do what you really want and need to do, without crashing. So we're in a more similar boat that it might seem at a glance.
It was very useful for me understand the "secret of appropriate movement. I can do several things in the house and I m so happy for it. But I live on the first floor and when I have to go outside (doctor, examinations), this movement, mainly upstairs, iis too nuch for me and ends with a crash. I dont know, how to built it up, because thus kind if movement is rather exhausting for me.
When I think about what I used to be able to do, I try to frame it as low, knowing what's possible. I've been sick a while and sometimes I find the reminder of what life used to look like to be helpful, so I don't get stuck in a rut or complacent. I try not to compare per se, cos I know I have to do something like what you guys talk about and to be realistic about where I'm at but without feeling bad about it... but yeah it's just helpful to sometimes remember what is possible.
And notice little changes, I can stand on one leg , and haven’t fallen in six months , after being bedbound for years and fallen if being normal! This is so true build up I have ms but , keep going
Thanks for the video. I am having a procedure done in aa few days and I think it means I’m essentially starting from square one again. Hard to accept but hopefully it will be small and steady gains from there.
How can you go back to the greener zones? Just resting is not helping me because i start overthinking etc. I am still crashing a lot of times. Do you have ideas? Tips?
When I look back on my day, it is only then I realise how much more I am doing rather than a month ago, and celebrate that movement. It’s micro movements but it is movement. Thank you both ❤❤❤
Thanks so much! I really needed this right now. I often worry that I can't "exercise" and exercise always comes up as really necessary for good health. After listening to this I will be content with whatever movement I am doing in my day, until I feel capable of increasing it a little bit at a time. Thanks for all you do. All the best!
Your advice is excellent, but it seems to me that the roads are aimed at people who are not working due to illness. I am in a situation where I work, 5 days a week, 6 hours a day, one day in the morning and one day in the afternoon,. When I work in the morning, than at The afternoon or evening, I can do almost nothing but rest and prepare a simple meal. When I work in the afternoon, in the morning I sometimes manage to meditate or exercise, and cook a healthy lunch. I clean the apartment on weekends because I don't have the energy to clean during the week, however, if I socialize or have fun on the weekend, I don't have the energy left for cleaning, and that is carried over to the next weekend. Seeing the mess around the apartment and not being able to fix it is extremely frustrating for me. I would say that the lack of strength and energy to clean the apartment is the biggest frustration for me at the moment, because it is a job that needs to be done almost on a daily basis or every 2-3 days, and I can't do it. I am not financially able to pay someone and I don’t have a family support. I planned to do a little bit every day, but I can't do it on weekdays because I don't have the energy. Do you have any advice for me?
I can so relate ! Thanks for discussing this! 🙏🌻
Oh also, the advice is very similar whether you're working or not. I can't work because of this, but I still don't have enough energy relative to what I need to do in my daily life without crashing (basic self care, housework, and socialising or hobbies so I have some joy in life, lol - work will have to come later). You have enough to work and do a either a little cleaning or socialising, but it's still not enough to do what you really want and need to do, without crashing. So we're in a more similar boat that it might seem at a glance.
It was very useful for me understand the "secret of appropriate movement. I can do several things in the house and I m so happy for it. But I live on the first floor and when I have to go outside (doctor, examinations), this movement, mainly upstairs, iis too nuch for me and ends with a crash. I dont know, how to built it up, because thus kind if movement is rather exhausting for me.
When I think about what I used to be able to do, I try to frame it as low, knowing what's possible. I've been sick a while and sometimes I find the reminder of what life used to look like to be helpful, so I don't get stuck in a rut or complacent. I try not to compare per se, cos I know I have to do something like what you guys talk about and to be realistic about where I'm at but without feeling bad about it... but yeah it's just helpful to sometimes remember what is possible.
And notice little changes, I can stand on one leg , and haven’t fallen in six months , after being bedbound for years and fallen if being normal! This is so true build up I have ms but , keep going
Thanks for the video. I am having a procedure done in aa few days and I think it means I’m essentially starting from square one again. Hard to accept but hopefully it will be small and steady gains from there.
Best of luck!
Thank you for letting me understand what baseline is
Thanks. I like the idea of movement rather than exercise!
You're welcome!
Thankyou Steph and Toby!!So much wonderful information ❤️
You're welcome Elaine 💙
How can you go back to the greener zones? Just resting is not helping me because i start overthinking etc. I am still crashing a lot of times. Do you have ideas? Tips?
Crash is always around 5/6 pm
How do you know where you are at on the scale?
Thanks for all the info