My first Ocrevus infusion for Multiple Sclerosis is complete!
ฝัง
- เผยแพร่เมื่อ 21 ก.ย. 2020
- Hi all! Here I am fresh out of the hospital after having received the second and final dose of the first Ocrevus infusion. I'm here to tell you about it as I go through the side effects I'm experiencing in real time. Stay tuned and please subscribe to receive more news on Multiple Sclerosis related experiences!
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" TH-cam channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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I was one of the lucky ones. Finished the second dose of the first treatment and had zero negative effects with both. But my symptoms have improved beyond belief all ready. Life is finally improving and im smiling again
Amazing!! 🙏🏻🧡
Thank you so very much I get mine in July and you set my mind at ease
You just healed and relieved my soul.. I'm having it soon and I was so worried and scared...
I just had my first full infusion today. I feel fatigued and ready for rest. Thank you for telling us about your experience.
Thank you for sharing! It does make you tired
I'm going in for my first infusion next week. This makes me feel so much better!
You keep all of us MSers hopeful Seb. Keep it up!!
Thank you 😊
Thank you so very much for all of your videos. I start my first infusion of Ocrevus tomorrow at 9 am. I was on Aubagio for 3 1/2 years and then it stopped working. I went from 11 lesions on my brain to over 30+ in just 4 months. So my Neurologist suggested that Ocrevus is what was best for me at this time. My insurance denied it at first, but my neurologist called my insurance and explained the importance of me being on Ocrevus and then they approved it. So I start my first infusion tomorrow morning.
Thanks a bunch for your videos...they truly helped me not be so worried about tomorrow. Many beautiful blessings sent your way always. Keep shining your brilliant light ✨️ for all the world to see!!! Blessings 🌠
I am sooo thankful for that blog. It's very hard to seek proper medicine or medical help for ms in my country so it's nice to know about treatment and desease more from real people
Thanks for sharing your gratitude! It truly is my goal with this TH-cam channel, so it’s always a blessing to hear those words ❤️
Gives hope
Thanks for the upload and the information. I hope you are resting well
Good job, take care 💕😊
Hey Seb, I hope things go great for you. I'm seriously considering trying to go from tysabri to ocrevus. Best wishes to you friend.
Me alegro mucho por ti! Espero algún día poder llevar este tratamiento también!
Es increíble verte tan bien y sobretodo que tengas los medios para pagar este medicamento e alegro por ti. Yo no tengo los medios para pagar por este medicamento y me entristece muchísimo.
Ánimo Carla!! Se fuerte y te deseo lo mejor!
Life of Seb gracias Sebastian mi hijo se llama como tu😘
Glad your second infusion went well after the slight reaction to the first infusion. It was the same for me and I understand pretty common. Mine was a little rash on my cheek. No reaction for the first full as well. Lined up for my second full in a couple of weeks. I've asked for less Sol Medrol hoping my sleep in the weeks following the infusion aren't as disrupted as in the past.
You must have remembered your snacks ;-) they help the experience greatly and having some electronic gadget to keep us distracted from the pace of the slow drips ;-0
Thank you. I got diagnosed yesterday. Sending love ❤
Wishing you all the best 🙏🏻🧡
This video was very helpful for me being that today they took me off of Techfidera and will now be pm Ocrevus. I am very scared
Hope it works well for you and you have a new life full of health
Thanks!
Thank you so much I have to start my first treatment tomorrow plz God and I was a bit worried...
Many blessings I will be doing mine soon.
🙏🏻🧡
Thanks for the video, im getting ready for my 1st infusion soon. Hopefully it goes uneventful ! 👌
It will for sure 🙏🏻🧡
I start my first infusion tomorrow morning! Thank you so much for these videos!
You’ll be fine!! 💪🏻🧡
Please rest well
Saludos sebastian...que sigue mejorandose...you do look tired when watching the video but its the meds and its understandable...keep up the fight...you can do it...adios tio🥰🥰🥰
Gracias Ale! Yup, just the meds 🤗
I am on the same and done with this first infusion, I like that we both do not have to think about it till next 6 months. More power to you :)
Same to you, Ocrevus twin!! It’s really hard to believe, but for six months we won’t have to think about it!
@@LifeofSebMS Aint that the truth :) ;)
Did it work well ??? I m having dual and blurry vision and I m really very disturb due to this Can this fusion helps in it 🙏🏻
@@vijaychaudhary9276 Well this was suggested by my neurologist. I would say do what your neurologist say as they are the better judge of you health. I have recorded my journey and diagnosis on my channel, you can check if it helps.
Hey Seb. Can you provide an update on Ocrevus? Is it working? Which of all meds have you liked the most?✨✨✨
Will do! 🧡🙏🏻
How is the Ocrevus journey going? I’m thinking of this being my treatment and would like to know how you are feeling a while into it.
It’s great and it has really made my life a lot easier. Choose what suits your lifestyle best! 🧡🙏🏻
Sweetest Seb, I see a very handsome guy 🌝 means a lot ure sharing ure videos 🎥
take care be safe 🌼
God bless...
🧡🙏🏻
My first infusion was in januari. My B cells are Still Low. Zo instead after 6 months, I think I will get my second infusion after 9 or 10 months. 😁
what is the benefit of taking Ocrevus
@@lordzmusic8461 les relapse is less damage, because les b cells means les attacks of the t cells which attacks your nerves.
Hi Sebastian, first of all, thank you for sharing your personal experience! It helps a lot!! :)
My name is Dani, I'm from Spain.
I took 1-year Aubagio but appears new lesions...now my doctors suggest start with Ocrevus. It helps me a lot your information because i bit scared for this treatment. With Aubagio it was really simple, 1 pill per day and, go!
My question is, all this fatigue you feel during the infusion and day after, then you recover your energy and your normality? I do a lot of sport, and I'm a very active person... so I'm a bit worried if for 6 months I would have a normal live.
And, about colds? Or flu? You got ill more than before? Do you need and extra Vitamin supplement, or what do you do to be healthy?
Thanks again :)
Hola Dani! Te respondo en español ya que yo también vivo en España 😉 pues mira, yo antes también tomaba una pastilla diaria y el cambio me asustaba bastante, pero la verdad que estoy mucho mejor ahora. Me ponen la infusión cada seis meses y fuera de eso no tengo que pensarlo más. El cansancio me dio después de las dos primeras infusiones, pero ahora ya hago vida normal al instante.
Verás, no tienes nada por qué preocuparte!! Podrás seguir haciendo deporte sin interrupciones 😊
Un saludo desde el ala catalana de la península 🤗🧡
@@LifeofSebMS Així potser et puc respondre en Català i tot! ;) Jo visc a Girona.
Gràcies per la resposta!! Perfecte!! M'alegra saber-ho, es una de les meves preocupacions. Tinc una vida molt activa i es el que em feia por. I en quan a refredats? Has notat que tens defenses més baixes?
Jeje poder puedes, pero yo no seré capaz de responder en catalán 😆
Resfriados no me han dado más que antes, y de hecho la COVID que me dio dos veces la pasé como un resfriado leve. En teoría si hay que cuidarse más de no exponerse a los virus, tipo yo sigo usando mascarilla en los transportes aunque no sea obligatoria, pero si te digo la verdad (toco madera) me he enfermado mucho menos que antes… ojalá sea así para ti también!!
@@LifeofSebMS jejejejje tenia que intentarlo! 😜
Gràcias Sebastian!! Me ayuda mucho tu experiencia!! Un abrazo fuerte!! Ya te contaré cuando empiece!
Si porfa! Y sigue escribiendo en catalá que tarde o temprano tendré que saber hablarlo 😆
I start next week my first found I’m so scared
I’m next
I get my 2nd dose of my 1st round tomorrow
Best of luck! It’s gonna be fine!
Hi Seb, , I have been offered this drug but I am sceptical. How are you feeling now and has it done you any good?
No need for skepticism. This is the best treatment there is.
Hi
I am also a patint of MS and took 3 dose of ocrevus and feel better than earlier
Please guide how many ocrevus infusion Take necessary?
Keep taking it for as long as your doctor recommends 🙏🏻🧡
Did u experience crap gap? If so how did u overcome it?
With patience and kindness towards myself 🙏🏻🧡
What's the benefit of taking Ocrevus
OCREVUS is a DMT for primary progressive MS (and for one of the relapsing MS categories as well).
The primary benefit of this med is to reduce the progression of MS.
Obviously I would strongly suggest talking to your neurologist to see if it’s something that’s available for you.
I get ocruvus for my aids it helps well
Glad to hear that! 🙏🏻🧡