My MS Story - 17 Years Until a Diagnosis
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- เผยแพร่เมื่อ 27 มี.ค. 2016
- Along with so many others who have posted "my MS story" videos, here is my own story about having multiple sclerosis, finally getting a diagnosis and making my way through the puzzles of this disease. #mymsstory #multiplesclerosis #livingwellwithms
✯ My MS focused TH-cam channel is here: / @spencersmsstory
✯ My video one year later is here: • My MS Story - 18 Years In
✯ My video two years later is here: • My MS Story - 19 Years In
✯ My video three years later is here: • My MS Story - 20 Years In
✯ My video four years later is here: • 21 Years With MS! My M...
✯ My video five years later is here: • My MS Story, 6th Annua...
✯ My video six years later is here: • My MS Story 23 Year In...
My MS blog is here: metaspencer.blogspot.com
My video about keeping track of MS exacerbations is here: • Video
One revision: In the video, I say that I had a palsy of the 5th cranial nerve. It was actually the 6th cranial nerve.
Support and follow me:
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Feel free to share my videos … and thanks!
I was finally diagnosed after 30 years of being told it was fibromyalgia or laughed at even my husband of 35 years never supported the fibromyalgia. I’ve known now for a month and a half. I have not worked in thirteen years. Lost my self. Now I’m on the walls protocol for a month. I am 54. I feel like there’s no time left now to start over it has been crazy. I have no respect or care for doctors. Research on my own is still the only way to help myself. Thank you for making this. I denied the drugs from the neurologist. Going for the diet 👍
The Wahls diet is a great choice .. can only help! Hang in, move as much as possible, and I hope you feel better. I'm 6 years in remission now on. the diet. be well
Same.
To laina I had a story like yours no help doctor laughed I haven't returned and do the best I can I was told at age 50 that I have fibro has been a living hell cold shots affected me very sever my doctor just didn't understand I wish you lots of kindness bless you
I’ve been told I have fibromyalgia for years but I have some things that most people I know who haven’t had it, swallowing problems and I’ve had the double vision everything points to it then I’m older and have some of the symptoms of aging as well as other things that are more serious from aging but they don’t really try to find out why I feel better in the winter & living in florida is hell
Had MRIs?
Thank you for this. I was recently diagnosed but have had symptoms for a long time. It's something no one understands and I get so uncomfortable talking about it because of that. People's responses are....really annoying. Being able to come here and hear other people that know exactly what I'm feeling is so relieving. Bless you in your journey and thank you again.
Like you, I've found all the various "My MS Story" videos to be incredibly valuable. There are just so many different experiences with this disease. Take good care!
TheLaney Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
I know what you mean. People either say I know someone who has MS and they have had it for 20 years and are doing well or I know someone who has MS and they are in a wheelchair or just don't know what to say. Only we can understand one another. We need to stick together and support one another.
Your not alone!
agree 100%. getting a diagnosis is a trial.. a long trial.. many doctors, much money spent... Bless this man and all who share their stories and support. MS SUCKS (I hate it) but am trying to stay positive as I lose mobility.
I’m so glad I came across your story. I have so many similarities to this. Initially, my diagnosis was hard to accept. Now. I’m in a phase where I’m just so thankful to finally know what’s wrong with me. I now know that I’m not crazy, but there is a reason why my body has been wacky for the past five years.
I'm sorry to hear that you're struggling, but it also sounds like you're finding some clarity ... and that's a good thing!
Hard pill to swallow but as someone with RRMS at least you have a name to the inconvenient symptoms. Strange but have a friend diagnosed with MS but then was proven to be fibromyalgia. I also have a friend who is JC*, she is taking Techfidsra and once past the pesky fecal incontinent scares says the pill treatment works for her. Nutso these autoimmune diseases :( Hang onto this rollercoaster ride :) Peace&many blessings,
Annette
The physical symptoms are tough but the mental fog and depression is doing me in..
Still waiting for diagnosis...had these problems for years but has progressed rapidly
Well good luck! I hope you find some relief and answers
Mental fog and depression are the worst for me too.
I guess there are a lot of us
Hopefully that doctor from Australia can do something with that drug he is working on
Where it can reverse the damage that MS caused
Dr Steven Petratos
We have very similar stories and I hate to say this , don't take it wrong , but it's good to know I'm not alone with the way I felt something was just not right , for years. My ms specialist is in Nebraska where I live and like you as soon as I saw her, she knew right away I had ms. I'm fortunate to have her on my side.
And I'm glad to know I'm not alone! There are so many different stories and experiences out there (regarding MS). It's unreal. Hang in there!
Thank you for sharing your story! Your video is the first "My MS Story" I've ever watched and I found it helpful, inspiring, and informative.
Fyi: I've never commented on anyone's TH-cam video before. That's how much I really appreciated this. Best of luck to you and I hope everything is still going well.
Wow, man ... I'm honored! Thanks for checking out the video. When I first discovered all of these "My MS Story" videos, I found a lot that I really liked ... and continue to find them. I have been making annual updates on this channel, in case you're interested. Be well! th-cam.com/channels/CiKv0OKFoJkMBLYheSaKvw.html?view_as=subscriber
This speaks to me in so many ways. Thank you for your bravery to post this. I can't watch the whole thing yet because I am still processing the first couple minutes.
Thanks for checking it out .... it was hard to post but worth it, I think
Thank you Spencer. I’ve been following your TH-cam videos. Great job! I’ve had MS for 21 years, just a little longer than you. I’ve done the same as far as taking the DMD’s. I don’t judge or downplay others as they do work for some. I follow a diet of fruits, veggies, fish and chicken. Low sugar and sodium. Lots of exercise, yoga, chiropractic care and daily meditation.
Cool to hear that we're doing similar things! I'm also some fish and chicken now ... but meditation is something I could get better at. Be well! Thanks for reaching out
Thank you for posting your story, it really hit home for me. The "limbo" period is difficult as well as the Neurologists and Dr. that tell us we absolutely don't have it yet you know with all the symptoms that it very well could be.
Thank you so much
Thanks for the note! It’s nice to know we’re not alone in this ... hang in there!
Just want to first thank you so very much for this video. I am so glad I came across it. I am 39 years old and I am experiencing almost exactly the same as you have described in your video. Had odd symptoms for years off and on and dealing with severe migraines. Put things off as just weird or just symptoms from my migraines up until recently when things started getting much worse. I am now just in the process of all the testing with a neurologist. I have so many of the MS symptoms and I am praying it doesn't take so long as many to get diagnosed. You are very positive, informational and inspiring. Keep doing what your doing. This video has really given me hope and help in keeping my head up for the fight ahead of me. Thank you again.
Wow, thank you for the kind words ... I’m hoping things improve for you soon. Since posting this my health has held steady and I’m very hopeful. Check out the other videos in this playlist for annual updates ... take care!
Hi, Katie! How are you doing now? I'd been suffering from migraines for years. I've been told by otoneurologist that migraine kills brain cells in different areas due to ischemia and has almost same impact as MS does.
Oh my goodness! 17 years!!! God bless you! I've had symptoms since 2009 and just was diagnosed with CIS, but I too feel it's full blown MS. Thank God you have an amazing attitude! Take care!
Thanks for the support and stay positive!
I'm going to have to sign on I think on my main account, but for now I have so many questions about CIS and MS. Hopefully you get this. It's the latest post. The rest of them are from 5 yrs ago.
You inspire people. And that means a lot. Thank you very much for these. Take care. You know best😄
Thanks for the kind words -- it is much appreciated!
Thank you for sharing your MS story with us. Wow, 17 years of symptoms before a final diagnosis. I don't know how you managed that long not knowing a name for what was happening all that time.
Yeah, it was crazy. But knowing its MS has its own challenges ... A seriousness. The best part of knowing is that I'm able to address it with diet, exercise, rest, sun exposure, de-stressing, etc
Thanks for sharing your story! I was diagnosed in 2018 but have had "known" symptoms since 2017.
I'm on ocrevus infusions now.. but haven't had much success yet. I was on Gilenya for a year and it was horrific. Worst I've felt in my life. I also think about how it might be better off meds but im still trying for now. My older sister has had MS for 16 years and she was on a few drugs early on but hasn't been for a few years now.. and she prefers being off them.
Honestly I'm really happy for you that all the spinal lesions you have havent affected your mobility.
I deal with crazy..like crazy amounts of pain daily and a consistentlynumb left hand and arm from spinal and brain lesions.
It just fascinates me how people have different experiences...but even if we experience it differeny we get it.. nice to know others get it.. its comforting. Im also vegetarian and lead an active lifestyle... so I'm interested in seeing your journey and your wellness plan.
Great hearing from you, and thanks for checking out my story! I've heard a lot of accounts of people jumping from one medication to another, which is part of why I haven't gone that route. For me, it's 5 years without an exacerbation since changing my diet and going on Vit D, so I'm hopeful. Hang in there!
Since I just finished my HCA course, I like learning more about diseases and try to understand or to be able to listen to to those effected by it without making them feel bad or awkward. Thank you for sharing and your video inspires me. I say it is your body, you have the right to choose and someone might choose a different route, I think since you are the living it, and I say this with respect to all who are going through this, do what you think is best for you. God bless you in your journey! All the best to you!
Thanks for the sensitive comment -- I appreciate your perspective.
Hey Spencer, I came across your channel with one of your current projects, "The Prison Bus" conversion. Looking thru your channel, I came across your MS story and became really inspired with your lifestyle and your insistence on not taking the medicines. I think that was a wise choice and truly love that you are doing a self treatment with healthy living, being active and controlling your environment and stress!!! Keep doing what you are doing man, and I hope your exacerbation will decrease!!!
+Marshal Pearson ... thanks for the kind words! All has been very good with me lately, and your recognition means a lot
Wow brother I'm sorry to hear this happening to you. You look good and wouldn't have ever thought you had any issues the way you tackle you prison bus videos you are a go getter for sure.
Stay strong my friend.
Hey, thanks for the kind words and for checking it out. We all have something or other, I suppose ... and you're right: I'm doing pretty good! Life sure is sweet and I try to enjoy it. Cheers! :)
One year after posting this video, I made a follow-up: th-cam.com/video/qhQLzv67Nlc/w-d-xo.html Two years later I posted this video: th-cam.com/video/7I0ujnOqDfk/w-d-xo.html Three years later I posted this one: th-cam.com/video/28CJb48KAjw/w-d-xo.html
dude - your ms is caused by an infection in your jaw- usually after an extraction - dentist do not remove the ligament which stops the site healing then goes necrotic.
implants and root canals cause infection aswell.
infection also happens if your wisdom teeth dont form or form properly.
you need to find a hollistic dentist and get them to open up those sites and clean them out and remove soft bone.
i had primary progressive ms and once i had my infections cleared out all my lesions vanished and all my pain stopped in about 2 weeks.
my eye sight returned in about 3 months, and all the brain lesions went away.
numness went, need to urinate returned to normal, no more sexual dysfunction and no more constipation
Its in your mouth dude - dont live in pain
Interesting theory. I’m doing great and have no problems... glad you’re well too!
its not a theory..
search for graham munroe hall , or nico jawbone lesions, dental cavitations - they are fact - your standard high street dentist doesnt acknowledge that they exist as they arent trained on these or to remove the periodontal ligaments but its been in the medical literature from 1920 by gv black
Thank you for this video. Best of health to you.
Thanks!
Thanks for the great video and telling your story! I'm 66 and I had my first "episode" at 29 -- woke one one day one side went numb and could''t feel heat or cold or a pin prick and the other side was in pain. It was before MRI's so they thought first ms, then transverse myelitis. I recovered about 98% in year after steriods and kinda forgot about it, but then started getting sick from fragrances, and became chemically sensitive to things that didn't bother me before. I have t really stay away from pesticides and strong checmicals.. Then 12 years ago I had pain in my feet and got the diagnosis of ms (had the horrid spinal tap which was a nightmere especially afterwards). The nueuros (and I've been to 6) feel the ms activity began when 29. I think even with what seems like low success rates, being on an ms drug is a good thing in bag of arsensals. I can understand your position to just get used to living with it, as you say, for a year and then decide. I have the same reservations about all still even though I take Copanxone which according to all the neuros I've seen is the safest with fewest side effects. I've been on it off and on (now on when more lesions appeared a few years ago). The thing is that the ms activity in the brain (as I understand it) continues in the white and grey matter and spine whether you feel symptoms or not, and whether it can be seen or not. This is a progressive disease. It gets worse over time -- can be slow can be steady can be really fast -- just I think things can't get any worse they do. Everyone's different in how it progresses, but it does get worse over time which is the big fucking bummer. Like you, I've had periods of feeling pretty okay, then been hit bad, recovered, but the last one I didn't recover from -- a pain that migrated from my feet upward and it's been 12 years of intensifying pain in the whole lower body and has effected my digestion. So I'm kinda with Junior here in terms of encouraging you to consider Copoxaone. And medical cannabis is really helpful for pain. But certainly is just part of a bunch of things I do for it. Check out Montel Williams' arsenal. And there are these Research Updates I get from the MS Assoc of America that I read with great interest. The studies on salt are interesting. You can ask to be on their mailing list. Anyway thanks for posting this! We really help each other with these videos.. maybe I'll make one! Take care my comrade.
Hey Laurie! I appreciate all your thoughts and ideas ... plus, hearing your story is pretty powerful. You've been living with it through quite a few changes in the medical community. I know what you mean about the disease being progressive and degenerative, and I also know that nerve and brain damage can progress over time without one really noticing it. That certainly is a scary thing. With that said, I haven't seen any longterm drug trials that prove a longterm drug therapy helps. Maybe my reading of the literature is partial -- I'm sure it is. Anyway: best of luck to you and it's great hearing your story! Take care, Spencer
Thank you for sharing your story. A very good friend of mine hasn't been diagnosed with MS yet but she has the numbing, tingling, migraines, lethargic, she gets off balance, etc They previously spotted lesions on her brain years ago but she didn't ever go back to the doctor for further testing. (She didn't want to face her fears.) But due to her condition advancing, she is going to have a MRI tomorrow and get to a confirmed diagnosis. I am trying to learn as much about MS as I can to support her, should she be diagnosed with it. I believe that knowledge has power.
She's very lucky to have your help and support! The MRI should tell her doctors a lot, but it's just one test and doesn't always reveal everything. Also keep in mind that some people with MS need MRIs on the brain and spine to show lesions, and the MRI needs to be powerful enough to produce clear images (3 Tesla is pretty good). I'm wishing her the best of luck! If she does end up having MS, I'm guessing the doctors will push the medications pretty strongly. Note that many of us don't take meds and are doing very well ... there are many options for treatment! Take care
It is so kind of you to want to support your friend. I have a few supportive people in my life and they are priceless. You are a good friend.
@@cooksmary Thank you! She is like family to me. May God bless you and your health.
Thank you for sharing. You start with the exact thoughts running through my mind.
+Strat Cat ... nice of you to say
Thanks so much for sharing this; it is so much more helpful that most people will ever realise. I was misdiagnosed with something else years ago but knew "something was up" as I never got better. Only just recently diagnosed correctly.
Hang in! That misdiagnosis thing can really throw you for a loop ... it did for me and has been hard to let go. Be well
You are so brave and I wish you the best outcome possible!
Thanks!!
Thank you for sharing! What a crazy rollercoaster ride... I'm glad to hear that the healthy lifestyle is working for you. That really encourages me to stick to my dietary beliefs to stay well. Thank you for your positive attitude towards this riddling disease - it helps :)
+Life of Seb And _your_ upbeat attitude has done a lot for me as I encounter each new day. So thanks!
I have lupus and ms brought on by lupus. I have macular degeneration . I can't have ms treatment and I'm ok with that. My body is a mess mostly because I've been wrecked by chemo used to treat lupus. Stay clean in the mind and stay as stress free as you can. I can't have sun exposure but I have b 12 injections. I have sjogrens which means hot cold is hyper and raynaudes does this to . Lord knows it's hard but my strength is my son his new wife and my fpgrandson keep smiling because life is so crazy you just have to smile xoxox molly from,Sydney Australia xoxoxo
I love your positive attitude! Take what comes at you, I say ... and hang in there! Thanks for the note.
You might find the book and website Overcoming Multiple Sclerosis interesting.
Molly Mayor Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Molly, have you tried cutting off sugar (you can use natural substitutes) and gluten? ❤
I’m assuming you mean refined sugar?
Thanks Spencer for sharing your story. All the best from Canada
You bet! Hang in there ... I've been posting annual updates and things have gotten much, much better :)
Thank you so much for sharing! This was very helpful!
thanks for checking it out, Yvonne
It took the VA 11 years to get it right. Although I was diagnosed while deployed serving in the military. I relate with your story
That's a long time to wait. Hang in!
Thank you so much for sharing!
Hey, thank YOU for checking it out! I'll be posting a "one-year-later" video in a few months, so stay tuned.
Thank you for sharing your story. A friend was just diagnosed with MS.
Tell your friend to stay positive! There are many people doing well with the disease
Thank you dude. This was a good one. I hope you are doing well.
Thanks! Yes, thriving 6 years later
I made my ms story after i saw yours. I gonna watch a bunch of others to, to see how everyone deal with it.
Oh excellent! I’ll check it out and comment. Hang in!!!
So glad to see your video. I've had symptoms for over ten years. My doc thinks I have MS but my MRIs don't show lesions so not officially diagnosed. I've been on the Swank diet all this time. It took 18 months but my symptoms finally went away. ( numbness, tingling in arms and legs, extreme fatigue, cognitive deficits, trouble finding words or else substituting the wrong word, etc.) these all still return if I get tired or stressed out. My doc told me he doesn't think much of the dmds, so I am really happy with the lifestyle adjustments I've made. Of course, I totally respect people's choice to use the drugs. I know they work well for some. I look forward to seeing how you live with all this now that you know you have it. I wish I knew for sure one way or another but I've learned to live with the ambiguity.
Lisa Tuckett hey I'm on doctor john mcdougall's diet it's been 3 weeks now haven't noticed any symptoms improved did you really cured MS? did it really took 18 months or you get better slowly overtime? i have try lots stuff hoping this ganna work.
Hey Lisa! I'm planning to post a follow-up to this video ... as I've been doing quite well with careful attention to diet, rest, exercise, vitamin D levels, sleep, stress levels, and more. MS is a highly variable disease, but there do seem to be a lot of us doing well without pharmaceuticals
Hey Justin -- in my readings, and here I'm mainly thinking about George Jelinek's book, it seems that diet can take 1-2 years or more to truly stabilize the tendency of symptoms. So that's to say that dietary changes likely take a good long time to be actually felt and experienced.
Lisa Tuckett please consider Lyme disease. Please look it up. It mimics MS.
Lisa Tuckett Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Just ran across your video.. Well done!! Good luck on your journey!!
Thanks! Doing pretty well so far :)
Wow man. I just came across this video. You work so hard, but work is also exercise. I sure hope you continue to be able to enjoy quality of life. Life is short. Make the most out of what the Good Lord has blessed us with. Take care of yourself buddy.
Life is short for sure. For me, having a potentially debilitating disease has given me focus and an appreciation for the everyday. I saw that you were watching some older videos and thought you might run into this one. Thanks man!
Thanks for telling your story. Its one of the best ones i heard so far. Especially the part that your brain scan was clear, so they said you don't have MS.
My 1st visit with a neuro who hasn't even looked at my MRI said it wasn't MS. But in the report it says i have a lesion, T2 flare i think. Yet the neuro says that its age related but he has no other explanation for all of my symptoms.
Thanks for the kind words, and my thought for you is pretty simple: hang in there and be patient. I've found that doctors, while they try hard, can't always see the whole picture. So time and multiple visits can help. All my best!
Thank you for your video I have MS also I was four and a half years before I was diagnosed I've been on a roller coaster similar to yours and if and have not accepted medication as of yet thanks for the video
The rollercoaster is a tough one! For me, things have settled down a bit in the past two years, which I'm grateful for. I'm hoping you find some similar stability. Be strong!
Thank you for sharing your story.
Oh you betcha
MS Views and News here on TH-cam has some awesome and informative videos that gave me a lot of info to keep me up to date with the challenges of living with MS. I officially got diagnosed in 2012 after having symptoms for 20 years. Doctors kept telling me I had Chronic Fatigue, even after not being able to use my right arm for 2 of those years. I was on Copaxone for 1and 1/2 years til I had a reaction so I went off it. Roughly another year went by til last November and boom got hit with major relapse symptoms. Now I'm in the process of starting a new med. i found a great MS center in Kansas City, Mo at St Lukes Hospital. I hope all the best for you. This disease affects all of us differently.
+nordonna Hey, thanks for the info and tips. It sure does get us differently, what a wild ride! Good to hear from you
I had symptoms 11 years before dx in 2009. I've never taken any of the MS medications. I do take vit d3, fish oil, coq10, and magnesium. I try to eat clean. 14 lesions on the brain and dozens on my spine- all but two were on my scans already at the time of dx. I was told the same thing in regards to becoming wheelchair bound and such. So far that is not where this journey has taken me. It's nice to hear your story. Be your own advocate and continue to make educated decisions!
I like the way you talk about it all, Michelle. As the years tick by and I continue to feel vital and healthy, I've found others (like you) who are doing well off the meds. Hang in there and stay strong!
Michelle Scott Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Very helpful, especially for those in limbo. Thank you for taking time to do it and you get it really well. Go with you gut. Meds kill (just to negate some of the drug pushers)
Thanks for checking it out. Take care!
Thank you for sharing! I appreciate it.
You bet! Thanks for checking it out
Hi, loved your approach to you ms. So positive and rational. I was diagnosed in '88 but like you had symptoms for years prior to my diagnosis. No disease modifying drugs back then; only Pred'lone as a treatment for relapses which I did take. Tried to go treatment free until about 6 years ago as each MRI showed new lesions. On my third protocol now as my annual MRI does continue to show additional active lesions. With that being the case, I'm now on the 6 monthly infusion which hopefully will stop any more damage.
I've continually adjusted my diet protocols too, giving each a good two year trial and can conclude that the Keto diet has really helped my crushing fatigue. None of my diets thus far has stopped new lesions forming nor has any drug so far! I find this revelation remarkable. I'm now having MRI's every six months which should hopefully show fewer lesions after being on the infusions, by that time, 12 months. It would be great if they work as even after having MS for over 40 years with multiple lesions I am still walking.
Good luck to you! 😃✌️
I'm sorry to hear about the continued disease activity ... darn MS can be a doozy and hard to predict! I'm hopeful, as are you, that your current treatment mellows things out for you. Hang in there, stay positive, etc. etc. In my experience the disease can simmer down as quickly as it heats up, so fingers crossed for you! :) As for me, I've been in a nice relapse for 3 years now ... it's been good to not have new problems all the time. Take care!
You should have a methylmalonic acid test done, which will show your B12 tissue level. A B12 blood test is no good, you need the M acid test. The B12 can be low at the tissue level and never show to be low in the blood. Many people have a MTHFR defect where they can't convert B12 to the usable form and it's never absorbed by the cells. If you have this defect, you'll need to take the methylcobalamine B12, which is already converted for use in the body. A low B12 tissue level can cause brain lesions like you have. It mimics all the symptoms of MS and is often misdiagnosed as MS. My brother suffered from a low B12 for years, but thankfully this internet came along and I had access to all this information to figure out what was causing his problems. When the B12 gets low at the tissue level, it elevates the methylmalonic acid, which eats the sheaths from the nerves over time. The high M acid also blocks enzymes in the urea cycle that convert ammonia to urea. When the ammonia becomes elevated it also causes demyelination of the nerves and brain lesions. Our family comes from Nordic ancestors who immigrated to the US in the 1800's. People with ancestry from Sweden, Ireland, Scotland, Norway, and other nordic countries have a high chance of having this MTHFR gene defect where they can't methylate B12 and their tissue becomes low. Anyway, I just thought I'd share this information with you and the others underneath your comment. It's a shame that doctors don't ever test for methylmalonic acid. Most of them probably never even heard of it. If they do test the B12 serum levels, and it shows normal, they rule out a B12 deficiency, when it could be low at the tissue level. My brother's B12 blood test showed normal while at the same time the tissue was extremely low. His methylmalonic acid was so high it was almost off the chart. Once the B12 is restored to normal, it takes about 2 years for the body to reform the myelin sheaths that were damaged. I was just curious if your doctor ever did a methylmalonic acid test?
Thanks for telling your story. I'm 35 and have had symptoms since I was 20 and still don't have any answers. I saw a neurologist at first which put me through the ringer she gave me 4 spinal taps the first one she tried to do herself and my leg started swinging involuntarily. She blamed me saying I had a low pai n threshold. The the other three were done via xray by a radiologist and went perfect but it had to be repeated 3 times bc the lab kept losing the fluid sample. I recently had a MRI of my brain without contrast that show a lesion that was nonspecific. So right now I'm just kind of seeing my primary and that's it bc I'm terrified to see a neurologist. I did get a second opinion once and was told it was all in my head. At the time of the consult I was asymptomatic which didn't help.
Wow, what a hard story. A neurologist at s big city hospital MS clinic should be better... they only knew for sure with me with spine scan. Most important thing: stay positive! Eat well! Rest! Etc... hang in
I've been impacted by MS related events for 10 years and diagnosed 2 years ago.
Well hang in there! I hope you’re well
It’s crazy to see how much things change the longer you have MS. Your really so lucky to not have to take the meds. I couldn’t see so bad nor walk when I had my first big exacerbation! As soon as I started on the steroids. Then with the disease modifying drugs helped me regain my vision. Your perspective is awesome too! Take care!
Glad to hear you're doing better, at least with the vision. I'm not sure if I'm lucky to not be on the meds or if most or all people could follow the same route I've taken (anti-inflammatory diet, D, rest, etc.). But having had the disease over 20 years now I know what you mean about the accumulation of challenges over time. Great hearing from ya!
Thank you, stay positive, you are an inspiration
You too! Great to hear from you.
“I’m not really into brain infections”. Lol. You’re funny. God bless you and I hope you have a complete recovery.
Thanks! 4 years now without new problems so doing good 😀
Inspirational ❤️ you give hope 😢
Thanks! Yes, much to be hopeful for!
Omg... my butt went numb in my 30's a few times... I blamed it on the cold, being on my feet lots, and just being weird!! Holy Cow!! I hadn't even remembered that one. Thank you soooo much for doing this vid. I have been really sick for about 6 yrs, no diagnosis, and just started watching these vids. I think they are helping to save my life! Ok, that's as far as I got, going back to watch the rest.
Hang in there! Just know that many of us with MS are doing quite well on an anti-inflammatory diet and vitamin D3 ... be well!
Thanks! Was just diagnosed w/ MS. Video helps.
Take it slow. You’ll be okay!!
Your braveness is inspiring!
Thanks!
Usually spring/summer time, sound like allergy to me , check Dr Terry Wahl and investigate IgG food sensitivity test... Tell me please are you allergic in general ?
Another observation, Wahl was also vegetarian.. Any connection to make?
Two people out of millions -- I'd say there is a lack of data to draw any conclusions there
Yep, I've checked that out. Thanks for the comments!
hey man i love your story and braveness'
i started having my first symptoms in the summer of 2009 when i was 17 and i was bedbound for about a year. i dropped out of higschool and moved in with my grandmother. i was pretty much in bed for that entire year. a really goid friend of mine would come hangout with me and bri g me food and stuff. i had multiple bloodtests and ekgs ecgs mris full pa el blood workups and everything cameup clean. everyo e in my family ruled it as depression. around the summer of 2010 my symptkms got alot better bcs i was off of my initial begging flareup so for about a year i was good ive had my flare ups last between a year to 2yrs with feeling good or decent rather about 6m-12m anyaaya fastfoward to november of 2018 i aas finally diagnosed with MS almost a decade later. the releif of being diagnosed with slmething i k.ew i had all along made me and everyo e around me feel alot more comfortable.
It’s good to know, right! Here’s to good health for us both! Take care
Ah, good to hear an another story where all the scans come back clear and still the symptoms are considerable.
Happy to hear you are staying strong👏👍🕊
Thanks! Yes, doing well several years later after just a few changes to my diet and still no meds.
I plan the same👏🎉🕊
Thanks for sharing, man!
Absolutely. Be well
thank you for sharing your story . good luck for the future. I think retreat your mind would help as well to lower the stress level
Yes, the mind has taken the most work. Thanks for you comment
metaspencer you are a well determined person and nothing will happen to you . Take care.
I’m 15 and have been told that I could have ms and I can’t explain to you how much these videos mean to me because I’m literally freaking out.
Hang in there! If you could it doesn’t necessarily mean you do, so keep your mind open ... good luck to you!
cam. ryn.n Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Fully agree on your plan! Ty for sharing your experience!
Thanks for checking it out! Still doing well, fortunately
Thank you so much for posting
Absolutely. It's been a great process to tell my story
I have MS as well. Ty for sharing.
Hang in there!
Your video is fantastic. Thanks mate.
+Roderick McDonald ... thanks mate! Check out my recent update, too
I just really responded to your video. We are similar age I guess and you have been dealt a hard hand, but just, straight up you made this and reached out to people. I really respect and admire you. Clearly you are getting on with life and you have a lot of stories to tell besides the illness. I'll be watching the update with interest Spencer.
+Roderick McDonald ... you're so nice! Thanks for the vote of support!
Spencer, it seems to have taken you a long time to be diagnosed. but on the positive side, you have been 'vital' for some time. Do you think this is because you are a vegetarian, and your body is well suited to deal with it ? ( seems you were doing 'Swank diet' Before the illness anyways )
+Roderick McDonald ... one never knows for sure if it's because of what we do or just a coincidence. But I do tend to think my long term diet and activity have helped. With that said my more recent nine changes seem yo have helped even more. Your story?
I came over to watch your story! Thanks for sharing, and I will continue to watch. As you saw in my videos, the drugs haven't done much of anything. I like and respect your approach to thinking through medication options. I wish I did this too... I just did whatever the doctor told me, and I regret that.
+HikingWithMS Hey man, thanks for watching and leaving a note. I think we all move through this in different ways, so I wouldn't fault any choices. It's hard! Hang in there and keep hiking. :)
Thank you for sharing this information. I have been on this journey to find out what has caused my body to attack itself. I’ve been going through these issues for several years and no definitive answer has been given. I had to stop working because of the fatigue and exhaustion I have all the time. I’m still trying to get an answer but thank you for showing that I’m not losing it that there really is something wrong and I shouldn’t just accept no as an answer
Hang in there!
Have you tried carnivore diet, or ketosis, or autophagy by fasting, or intermittent fasting? If you've tried other diets, please share. Different things seem to work for different people.
Hi Spender. Good job on the video. I have had MS for 18 years, was using a wheelchair for four years and had numerous relapses until I started Tysabri in November of 2006. Since then I walk several miles a day and have not used a wheelchair, crutches or a cane since 2007 and I have not had a relapse in nearly 10 years. I am JCV positive, but got a low titre, but I have never been scared of PML.
Hey Vern! I also walk daily, which I think is a great way to keep active. My JCV titre is far too high to risk Tysabri, but I've heard many good stories about it (like yours). Hang in and thanks for commenting!
Vern Beach my mom also used tysbari. but aftr 20 doses neurologist stop it ... now she takes nothing fr ms. bed ridden and become epilepsy patient also
Oh, Humera, I am sorry to hear that. I know a few people here that have been in the same situation (doctor's would stop giving Tysabri after a few years). Some have switched drugs, others have switched doctors so they can still receive Tysabri.
+Humera Arshad ... That's rough. Tysabri can kill, enabling opportunistic brain infection.... this is why the doc stopped it
Tysabri also allows people with MS to live the best quality of life they can. Also, people get killed walking across the street, too.
it's interesting to hear peoples symthoms. Thanks for sharing
Lots of variation between people for sure
Lori Favela Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Thank you for your story. MS soldiers are here
Thanks for checking it out!
It's good to hear you are doing well and you don't let ms get the best of you!
Hello Teresa
How are you doing today?
I’ve had many symptoms. Couldn’t walk couldn’t talk couldn’t see. My last pregnancy I was in terrible pain they said I had Sciatica my doctor delivered my daughter early. I had Spinal Tap they tried 3 times the pain was unbearable that was a yr ago. Neurologist appointment Monday. Nothing in brain MRI. Im so inspired by you and I want to thank you for sharing ❤️🙂
Hang in there and good luck at the doc. I’ve read of many having complications with pregnancy so you’re not alone
Angel Jones Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Angel Jones ever find out what it was?
Angel Jones omg
Can you expand on what you mean by cant walk
I'm 12 and dad has been talking about being numb so I have been looking through stuff ,I'm going to advise him to get checked
Good idea! And keep in mind that it can be a lot of things
And don't worry too much! Numbness is not that uncommon ... he's gonna be good! Hang in there
Creamiclover 78 good for you for researching this for your dad. I hope his symptoms just disappear as if he never had them. Take care.
Agreed. Super generous to do this work and research!
Hi sweetie 😊
I was doing some research on MS. Look up the link between MS and gluten. It's been also adviced to cut off processed sugars. Those patients actually managed to recover. Good luck 🍀
You are on the right track. Do not let anyone tell you to take that medication. No one has anything good to say about them
I appreciate that! Thanks
I'm 54 and having a lot of these symptoms which have been coming on a long time
I'm sorry to hear that you're struggling! There is a lot to take in and sort through, which can take some time. In the meantime, most people would say that making sure your vitamin D levels are in the healthy range is pretty important.
This was so helpful. I suspect my 7 yr old son has MS, we're in the beginnings of finding out what's wrong. I never considered NOT doing medication while pondering all the possible outcomes. I really appreciate your story and sharing what you've experienced so far.
Oh my, good luck to you as you seek answers. If it does end up being MS for him keep in mind that vit D3 and anti inflammatory foods will help. Hang in there!
What are his symptoms?
Thank you for sharing. Good video. Well done.
Thanks for checking it out.
Great video!!! Thank you for sharing !
Thanks!!
Thanks for sharing. It's not easy I know. I'm learning to appreciate each day that I'm mobile.
I'm 39, had my first intro to MS in 2006 with O,N in my left eye. Sent me completely blind & then back to a somewhat reduced state over about 4 months. Parts of my face also went numb as if I'd just had a "local" & a tooth filling.
It left me alone for a while, then in 2008 my right eye did the exact same thing.
On a side note, I've also had a condition called "swimmers ears' which due to infection made me deaf for 3 weeks. Talk about spending a day in someone elses shoes!
The first 2 episodes & the subsequent MRI's showed no signs of plaque but a lumbar puncture did shine positive for immunoglobulins. So it became a waiting game.
Now here we are, 2016, just had my 3'rd MRI in 11 years after tolerating months of fatigue , aches, headaches & with my right eye clouding over, I now have the diagnosis of plaque in the 4'th quadrant.
It's funny, at the same time that diagnosis scared me, it gave me the chance to relax as now I have a reason for all the symptoms.
For the past 5'ish months now my physical self has diminished a bit, but to due my immune disorder I also have Ceolicas disease which has seen me shed about 25kg (55 pounds), I've radically changed my diet to avoid all wheat, barley & all it's derivatives.
Some multi vitamins are on the cards too, but my diagnosis is so fresh that I'm yet to go back to my specialist to follow up the scans.
Basically, I feel like an old man in a fit body...that make sense?
Some days are better than others, but I live everyday with some type of physical or cognitive fatigue. If I want to plan a big day, like spear fishing with my son, I'll take it easy & eat well for a couple days leading up.
Some of my symptoms are weird as hell too, half a numb penis & anus,
numb ass cheeks,
numbness deep in the leg muscles, this also causes "restless legs" & very uncomfortable.
singular nerves in my heel ligaments twitch,
random muscles will visibly twitch,
I get restless if I either sit or stand for too long, & this includes my concentration, mood & cognitive reactions. Basically, if I'm somewhere or with someone for too long, I get cranky! Mornings suck too.
I smoke pot to get to sleep quickly & efficiently. Helps me sleep through the night. I sometimes get flashes of light with my eyes shut, as though someone has shone a torch at me...real enough is it that I open eyes to see what's there!
No: 1's & 2's are still normal, with exception to bowling people over to get to a loo quickly on occasion.
My mobility has slowed a bit, but I deliberately do things like look down when I walk, just to be sure I won't trip, as with most MS folks I am very sensitive to pain & cold, Love my heat though for some reason?
I mess up my written words too & I often smell things that aren't there.
I firmly believe that I have lived with this immune disease way prior to 2006. I may have been born with it. I was born with eczema & food allergies, so the connection is easy to make.
I'm going to stay clear of meds if I can. I think the right diet is the go for me.
What you describe is all unique, and yet it connects up with so many of the experiences of others (with this disease). All I can say is hang in there and think positive! Even with the challenges, you seem to be doing pretty well!
Tasman Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Omg 1/2 of my vagina goes numb. When I told my dr he looked at me like I totally made it up. I also have celiac disease. Each day is challenging. I also have gluten ataxia.
Being gluten free with MS is the way to go! Darned numbness can hit anywhere ... totally annoying. Hang in! Stay positive!
Very curious about your food allergies... did you develop them over time?
Thank you for sharing metaspencer (my husbands name is Spencer!)
Someone I know had many MRI's just like you and each time, they found nothing. Eventually she decided to pay and see a top specialist in MS. He took her many scans and magnified them and on doing so he was able to see hundreds of tiny lesions that couldn't be seen with the naked eye.
MS can take a long time to diagnose and some people never get diagnosed but instead get offered a diagnosis of FM. I say, if the symptoms fit, keep pushing for answers.
I'm glad you did.
Wow, that story about the scan is pretty crazy. I've had multiple neurologists read my brain scans and see different things, so there is also the interpretive filter. I agree with you about FM and some of the other syndromes. Thanks for the note and for checking out my story!
@@SpencersMSStory No, thank you. I've subscribed and liked your channel :0
I was diagnosed last year with ms and am 50 years old. I'm on the Wahls diet and am doing really well on it so far. I'm not too mobile but I'm praying for some results. Good story and I love your confidence ❤️
Hang in there! I'm 52 myself and haven't had an exacerbation in 7 or 8 years after following the diet and getting my vitamin D up there. Hang in, stretch and move as much as possible, and stay positive. You've got this!!!!
@metaspencer Thank you so much for the encouraging words. I have a very bad back injury as well im trying to recoup from. I have always been such an active guy my whole life so this certainly an eye opener. Again, thanks for your kind and encouraging words 🙏
@@famasmaster2000 Oh dang, that back injury sounds rough and with MS it can be hard to tell what symptoms are from MS and what's caused by something else. Anyway: hang in and rest up!
I’m 65 and started noticing symptoms in my 30’s. I told several doctors trying to get tested. One doctor even said l didn’t know what my own body was doing. I finally got a doctor to test me but he said I was to old to all of a sudden having symptoms. He was stunned when I explained about starting to have symptoms and no one tested me. He said I was right all those years. I’m lucky, I didn’t have any lession on my brain. Mentally I’m just relieved to finally have a doctor who finally tested me.
Wow, our stories are remarkably similar. Good to hear from you and hang in there! I'm almost 50 now and have had it over 20 years ... I'm fortunate to be doing pretty well despite all the screw ups by the docs I've seen.
Thank you so much for sharing your story. I'm currently going through the process with being diagnosed. I've had 2 flair ups in 2 years almost exactly a year apart. Both lasting around a month. From what I've noticed they're similar but progressed. I've had the worst luck with medical attention. I was wondering; if anyone can answer this. Would it be better to get tested during a flair-up rather than not?
Getting scanned during a flair might be more visible if you take the glandoliniun contrast agent, but MS lesions will likely show up either way. If you suspect MS most people would agree to get your vitamin D levels up. I’d also suggest an anti inflammatory diet which can’t hurt. Keep positive and hang in there!!
They need to do the spinal tap during a flair, the MRI show better during a flair also.
OMG - you are describing my doctor/neurologist experience s to a T. My neurologist said not MS because my brain lesions aren’t lined up... meanwhile I’m just living with symptoms.
I've never heard about lesions needing to be "lined up" with anything ... that sounds very odd. Sadly, many docs seem to work outside their specialty areas. Seeing a dedicated MS specialist at an MS clinic, as I have a few times now, may give you some more answers. Anyway: hang in there!
SheLikesSteel same for me
Wow, crazy
Find another doctor.
I have “scattered tiny lesions throughout my frontal lobe” which in the radiologist report stated could be a sequela migraines. I’ve had headaches, mainly due to vision problems. My initial issues were blurred vision especially in the afternoon when I’m fatigued. Thought I needed glasses. Went to the optometrist and he said there were some abnormalities in my pupils and wanted me to see a neuro ophthalmologist. Had a brain MRI that was normal. Now 4 years later I’m having tingling/numbness randomly and the most irritating being constant muscle twitching is my legs mainly, second in line being my face and then occasionally in my abdomen and arms. Also right thumb tremors. Waiting to see a neurologist.
Thank you so much Sir ❤️ Love from Texas
Hang in! It's a rough disease but many of use are doing very well on just diet and vitamin d
Thank you for sharing your story
Thank you!!
thank you.... I refuse medication... glad to know I'm not crazy 👍
And I'm glad to know there are others out there going their own way. Thanks for the comment!
Latrice Lovelace Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Latrice Lovelace GOD Bless YOU!!!
In all honesty i think the side-effects are worse than the symptoms i already experience, i wont start medication till i fall or lose sight.
@@laurah3282 Thanks for the info, ill check it out.
Hi, just saw your video. I also have had ms symptoms for 17 years. I was diagnosed in Dec of 2015. I had many symptoms throughout the year s and doctors chalked it up to many off things from anxiety disorder to nerve pain in my face from a dental visit. whatever.lol. the first symptoms came around when I was out in the heat and I couldn't talk well, walk well and couldn't use my left arm. through the years these symptoms would come and go. i had problems with vision, tremor in my right hand and more. spinal tap have always showed nothing, but my MRI shows lesions more on my cerebellum
Wow, we have such similar stories!
Wow thank you for sharing! You are the clinical picture school is painting for an MS patient (current PA student). Glad you are doing well!
Well, imagine clinical patients would be heavily drugged ... that’s not my choice
Thank you for this video . I was just diagnosed sunday afternoon. In a bad flare up now and this definitely helped me. Thank you so much
Hang in there! It’s a lot to take in and understand. Tons of options to consider. Be well
@@metaspencer thank you !! I hope your doing well too
I have a lot of similar symptoms as you do in my legs. Such as getting really cold to the touch, numb, and tinglely.. I also have some aching pains throughout my legs. I'm only 17 and just recently went to a neurologist who didn't run any tests just jumped to the conclusion of being stressed out.. I've had these symptoms for months now, and have been doing a lot of research on ms. The first doctor I went to thought it was a possibility and I just want to know if you or anyone could give me some advice on what I should do next.
The same symptoms (numbness, for example) can come from different causes, and the same cause (MS, for example) can result in very different symptoms. So a symptom-based diagnosis can be hard to come to. MS is always diagnosed with two or three of the following: symptoms of MS over time, positive MRI scans (brain and/or spine), and positive signs in the spinal fluid. Maybe just seek a second opinion from another doc
I would suggest getting another doctor's opinion. I went through 5 neurologists until i found the right one!
Good advice.... I’ve also seen 5 and still don’t have a good one I fully respect
@@metaspencer i contacted the MS foundation and they gave me a list of MS neurologists based on where i live. Hang in there until you find the right dr for you!
"you know, people's butts go numb!"
haha. that was my logic, at the time. :)
Don’t they though? Like if you’ve been sitting a long time?
mine lol
Idk if I have Ms yet haven't been diagnosed but I haven't been working I'm a stay at home mom and that's my logic.. like maybe I'm numb because I'm not as active as I use to be and I'm mostly sitting on the computer or whatnot..I'm scared though
Hang in. There are a lot of potential causes of numbness. Keep your options open
Yesterday, I began getting diognoised for rr ms. Watching the testimonial of all you has been life changing on so many levels: courage, clariying, motivation, eye-opening. Thanks. I vasilated be tween thinking I had an amazing immune system to questioning my mental health lol. I always "got better" and pretty much forgot about it between episodes.
Wow, Nancy, that's pretty intense. Just yesterday! Well, make sure to breathe and relax and rest and all of that. In my experience, all the new info of diagnosis and whatnot took a lot of time to assimilate and get comfortable with. Hang in there!
metaspencer thanks spencer; I've been dealing with symptions for 20 some years. This goaround, I had multiple issues that could not be ignored. I too believe medications may prevent a future full of regrets. Your Immune system weaken with age. Take care of yourself.
Nancy
Nancy Southerland Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
Thank you for this video. I'm going through a bunch of tests right now because I've had dysphagia now for almost 8 months. One of the things I'm getting tested for is ms. Watching these kinds of videos really convinced I do have it. My symptoms line up so perfectly with others with ms. It's still up in the air if it's the case. But these videos really help me not be as scared as I was when they told me they would be testing for it. And even if I don't have it I find hearing people's stories interesting and helps me understand those who have it. Google makes me sound really scary. But even people at their worst with ms are really positive people. I want to be positive as well no matter what it is causing my dysphagia. At the end of the day. These videos just help me be more positive about my medical situation no matter where it goes. Thanks for sharing. It helps a lot.
You sound strong and positive to me! For me, getting a diagnosis hit me like a ton of bricks. But now, these many years later, I'm doing great and it's just one more part of my life. So hang in there! And be well!
You can't lump MS into 1 group. There are 4 types of MS and some are MUCH worse than others.
Primary progressive seems to suck. RR is “better” in some ways. Good point
@@metaspencer yes, that is correct. You can see the end of Annette Funicello's life with progressive MS on TH-cam.
@@thomasjensen6243 Yeah too bad knowledge about the power of anti-inflammatory diets isn't more widespread
i was diagonosed with ms in 2013. I have refused the ms drugs preferring to treat naturally.... been symptom free since feb 2013
+Tonya Sosa ... awesome! That's inspiring
Tonya Sosa Hey! I just started a channel here on TH-cam & I am also a person living with MS! I would love it if you would come over and check my channel & subscribe! ❤️
I'm doing infusions now they stopped me from Aubagio I'm jacob thanks for the video man 🙄🤔😱👻.
Good luck to you, man. Stay strong!!!
I've watched so many
My M.S. Story videos and they all scared the crap out of me. Yours did not. I'm taking the same approach as far as meds go. In my gut I feel like the drugs will make everything worse and when I'm prescribed them I fill them and then just don't take them. Stress MAKES EVERYTHING WORSE. And so do heat. If you can take a room temperature shower (may be a touch warmer than room temperature). I am not a doctor and I am new to this (1 year into diagnosis) but so far I don't feel I need any of the medication. Of course that could change but knock on wood I hope not. Thank you for the video. Sincerely,
Axel Rosey
Thanks for the support and for checking out the video. I'm now 4 years without an exacerbation and no interest in the meds ... I think my anti-inflammatory diet, vitamin D, and low stress help a lot. You've got this! Hang in and stay strong
Dude your story sounds exactly what I’ve dealt with for years. I am in the process of diagnosis- seeing a neuro on Monday and praying for some answers or at least further testing. I was hospitalized about a month ago for 5 days, and for some reason they absolutely would not do a scan on my full spine. I literally begged. I couldn’t walk until the 4th day, and have been using a cane and walker ever since. I’m not giving up.. they ruled out other possibilities such as Lyme, lupus, rheumatoid.. but I will not give up this time. Praying for you that you have a positive outcome with your decision to go the non medication route 🙏🏼 thank you SO much for sharing a bit of your story with the world!!
Hey Kim! Good hearing from you and hang in there! It's been about 7 years now since I was diagnosed and I've been DOING GREAT on an anti-inflammatory diet and vitamin D. Get that vitamin D checked and good luck at your doctor visit! I hope you can get that inflammation down soon
@@metaspencer thank you for your kind words! That’s wonderful to hear, and thank you again! I may need to pick your brain in regards to the anti-inflammatory diet. And again, thank you for sharing your story with everyone. It really helps me to feel like I’m not alone when I hear such similar stories 🙏🏼
@@metaspencer also yeah, my vitamin D is low, so my pcp told me start taking vitamin d, b12, and calcium. Here’s to hoping we all live a long, happy, and HEALTHY life 🙌🏼🙏🏼
@@kimsanton3 I'm always happy to chat and have more MS videos here: th-cam.com/channels/CiKv0OKFoJkMBLYheSaKvw.html
Thank you for sharing your story with the world. I know you will help many people who are affected also. Very impressed that you went vegan, and have chosen a very healthy way of life. I’m sure this has made a positive difference. I’ve read and heard about CBD oil being very effective for many like Parkinson’s and/or seizures, etc., so I would give it a try since it is natural. Blessings 💙
Thanks for the support and nice words! All best!
I was congratulated to not need a spinal tap... Apparently, the MRI was totally conclusive.
I reckon the neurologist will 'splain more...
Good job getting some answers. It's all a lot to take in, so take it slow and hang in there!
I had the same experience with the spinal taps as Spencer. I finally told them that is enough. No more. Lucky you. My MRI turned out to be conclusive too.
Really appreciated listening to your experience. I am also running some tests and MRI for my symptoms. Thanks very much for sharing r, really helped me a lot and also it helped me to share them with my GP.
Good luck with those tests! It must be a wild time for you, so hang in there
Very positive video. Thank you!
you might be interested in this one, too: th-cam.com/video/x3QvY95A25A/w-d-xo.html ... thanks for checking it all out
+metaspencer Thanks Spencer, I'll check it out now.
my mom had ms and she died form it ..and i've beent hinking for a long time that io might have it too...or maybe i am just crazy...i wont go to the doctors cause medical care in my country is shit....i have double vision when i walk too much but i dont know what is too much..i get tired easily and its not the normal fatigue its like a fatigue of my nervous system...maybe i am lacking b12 cause i am try to be vegan but i eat animal products fromt iem to time..maybe its because of caffiene...i feel like my brain is a bucket of water and it gets splashed very easily when i start doing something or even thinking...so i get very tired to the point i cant do anyhting at all
Wow, that sounds challenging... many have good luck with an anti inflammatory diet.....
sergsfault Thank you for saying that. Bucket of water. I've been embarrassed to say this. Huge cognitive problems. Difficulty walking and vertigo. No diagnosis. Many of the same tests done. No lesions. Just living but no answers.