Your story is very familiar. My husband had a brain tumor at age 37. While benign, the Schwann cell tumor was large and first damaged the auditory nerve. He was misdiagnosis in his twenties with hearing loss w/o further xrays or scans. The side his face went numb one day that lead to the dx. 12 hour surgery. After he has the paralysis, 100% hearing loss in one ear, 80% in the other, and the issues with his eye. Swallowing and eating were issues. The nerve grafting was successful and made a big difference. He had a long recovery but he is now 64 and has lead a pretty normal life. Thinking of you and your family through your journey to recovery. It can be very scary and isolating. Sharing your story will help others.
We have the same case, im 38 years old now 2x operated year 2013 (March & August) i have a brain shunt too since then And yeah, its a long recovery.. . All you said are true.. . In my case i loss my right eye sight & right ear Profound deaf That problem with depth perception took me a lot of time so i really have to take everything slow Its hard, because not everyone will understand what your going to even your own family You have to be strong enough to go on alone
Thank you. I’m happy to hear it worked for him. I just had a Sural nerve transfer to create a cross facial nerve graft, cranial nerve “5 to 7 transfer” with parotidectomy. I am not happy your husband went through it but I am grateful to hear your story knowing someone else has successfully moved through it. My grafting was this past Tuesday 8/6 a 10 hour surgery and as you mentioned more long recovery and rehab down the road. Yes it has been scary & isolating, lots of unknowns and not a lot of knowledge out there unless you search for it.
Sometimes, I realize my life is mostly trouble-free. I have mental health issues, and it is hard, but cancer is an actual problem. You are in my prayers!!❤
Thank you for sharing this. I especially appreciate your mentioning your stress. Many people seem to not want to acknowledge how stressful and anxiety-producing serious health issues can be. I wish you as full a recovery as possible.
Honestly, in my experience, women especially do not want to acknowledge the stress and anxiety around health issues for fear of misdiagnosis. Often we are told symptoms are due to stress or anxiety rather than the physician working towards a true cause. So, by the time a diagnosis is made, we still don’t want to acknowledge those things because it was what lead to being gaslighted by the medical community.
Being a nurse no doubt steadied your approach to treatment. For a benign tumor to make such an impact, it is impressive that the sense of being overwhelmed you are experiencing is so well managed in the presentation of your own story. Nerves of steel balanced by a sense of humor and a curative sense of curiosity for your own recovery! Patient advocacy within surgical intervention must be in your future!
Your voice sounds wonderful, Melissa - you could honestly read books for audio distribution - maybe medical/nurse training podcasts? So proud of all the difficult things you have overcome or learned to live with. Your daughter is blessed her strong mom is so amazing. Blessings to you both.
I just had something similar but different removed a month ago. It was a vestibular schwannoma, aka acoustic neuroma. The first sign was early last year, when I noticed changes in my left side hearing. After it got worse, I had a brain MRI in October, in which it was discovered. Another MRI in April revealed that it was growing fast, and it had to go, or it would press against my cerebellum and brain stem. The end of June they used the retrosigmoid approach and made a hole behind my left ear and took it out, and they got it all. The surgeon had warned me that the chances of saving my left side hearing were small, and sure enough, the hearing nerve was withered to almost nothing and couldn't be saved. The balance nerve had long since withered away, and I had already learned to compensate, so balance issues are minimal now, bc I already had dealt with that. My facial nerve is not functioning fully right now, but early indications coming out of anesthesia were good; it was normal then. What is now in play is swelling, and it could take half a year to recover, but the chances are good that it will. That is important to me, bc I play oboe professionally. That is the scariest part, and I have suffered some anxiety through this. I must acknowledge that so far, I have had it easier than you have. My heart truly goes out to you, and I wish you the very best as you continue to recover.
I just relistened to this (and probably will again; there's an awful lot of information to take in, and it hits me close to home!). I just want to say, thanks for telling your story! You are an extraordinarily strong person, and I'm sure it doesn't always feel that way, but from what I see, you definitely are. You are an inspiration to me, being at an earlier stage of my process than you are in yours.
@@tkat6442Thank you! If I could help at least one person (or give them a peer to relate to) then sharing this story is totally worth it :) I would search you tube trying to find a person who had actually gone this this but could not find anyone speaking about it. Some of these complications could be cross referenced to other tumors such as your acoustic neuroma. I am sorry you are going through it and will pray for your speedy recovery ❤
I’m so sorry you have had to go through so much! You are an inspiration to someone like me! Your spirit and honesty about your journey through this is inspiring! I’m 51 years old and around 10 month’s ago was diagnosed with rheumatoid arthritis and was shocked with the diagnosis! I’ve refused the meds that were offered to me do to the many side affects that are associated with it! I am suffering with the pain but, I am hopeful that it will get better! After seeing your store, it has informed me to stay positive as I see you have! And I believe you are going to be around for a long time yet! Thank you for sharing! All the best for your future, Stephen!!!
“Little moments are the big moments.” So very true. Thanks so much for for sharing your story with us. You are an inspiration to me. I pray your journey will get easier and that future procedures will alleviate some of these issues. You are a beautifully strong 💪🏼 woman. 🙏🏼❤️🙏🏼 I feel like so many women are brushed off by doctors who just ignored them and say they’re depressed and anxious. 😢
Thank you for sharing and detailing your treatments. I am going to pray for your health journey. You are strong and beautiful and your right we all need to remember life on earth is so short. 🙏
Melissa, you are strong, loved, and beautiful! You've gotten so far, and I know you'll continue to face these challenges, and kick this thing in the rear! Sending love and positivity from Michigan 💛
Thank you for telling your story, Melissa. You don't have an ounce of self pity, and you're a beautiful woman (love your earrings). I hope you continue to recover and enjoy every day of your life.
It's appalling that we are still being treated this way, like we're just making these things up and don't have anything better to do than get insulted by doctors and treated like a hypochondriac. Good for you continuing to push and advocate for yourself.
I'm sick and sympathize with you, suffering horribly from a parasitic infection and they are all dismissing me and the photos the symptoms everything. Everything. They are letting me die. I'm so glad you got the second scan
My mom had the same tumor and she too was diagnosed with Lyme disease. I don’t get it? My mom had surgery, fought and got through it. Honestly, I think what got her through it, was having grandkids to play with and keep her active.
Hi Melissa! Thank you for sharing your story! What a harrowing experience for you. I had a vagal nerve NET on the left. What was the final treatment you had for your vocal cord? I need to have more intervention. Thank you!! Best wishes for your continued recovery 🎉
Hi! The interventions I had for the vocal cord were (in this order) 1) PROLARYN GEL 2) fat removal from abdomen, then injected to vocal cord 3) GORE TEX implant with arytenoid abduction.
My understanding is that contrast MRI has gadolinium toxicity. Maybe makes symptoms worse or creates new problems. Diagnosing for mental problems around this furthers prescribing drugs, profiting pharma. Chemo also part of the Iatrogenic pipeline. God bless you. Prayers to you for continued healing.
These are really rare , I have a JF schwannoma with a cystic component. Have had 2 long retrosig brain surgerys and 28 rounds of VMAT brain radiation all at MGH Boston and still on the merry-go-round. Best to you as a fellow brain tumor warrior❤
If we are paying for the 2nd MRI what's the problem with these physicians? It's not out of their pocket! They just want to look at us as if we're stupid.
My heart goes out to you feel so bad about this so sad for you. Prayers go out for you. I pray Jehovah will help you you’ve been through so much you look like you’re recovering good I pray, so may Jehovah God help you through his son Jesus Christ🥰💕
Jesus is the Almighty healer, and the Doctor in charge of the doctors!! Don’t forget to seek His guidance in your journey! God bless you, beautiful ❤️.
Looking forward to God’s kingdom, where it won’t be no more sickness no more death revelations21:3,4 please read this in the Bible. It will give you hope for the future.
Thank God I no longer have Lyme Disease anymore. It was diagnosed weeks after the tick bite. Lyme is curable if caught early. Otherwise you manage it. My Lyme was completely cured. If you have headaches, it is a Lyme symptom. Get a blood test. You then get a brain scan if it’s not Lyme. My advice is don’t ignore headaches. My headaches turned out to be weather related. Take ibuprofen with Sudafed for weather headaches. I hope this helps. A side note: this lady has a droopy side of her face. Don’t know why but check yourself for a stroke if you have that. I think hers is a side effect of a medicine. Praying for her.
If you would be interested in talking I would really like to connect with you. I'm not sure 😮a 65 yr. old female and I would like to share with you. I'm not sure how to do that, I am not technically sure how to make it happen. I'm praying for you and your daughter and other family. Stay strong and Trust in the LORD . Contact me if you would like. BLESSINGS to you, and your family.🙏🙏🙏🙏
Your story is very familiar. My husband had a brain tumor at age 37. While benign, the Schwann cell tumor was large and first damaged the auditory nerve. He was misdiagnosis in his twenties with hearing loss w/o further xrays or scans. The side his face went numb one day that lead to the dx. 12 hour surgery. After he has the paralysis, 100% hearing loss in one ear, 80% in the other, and the issues with his eye. Swallowing and eating were issues. The nerve grafting was successful and made a big difference. He had a long recovery but he is now 64 and has lead a pretty normal life. Thinking of you and your family through your journey to recovery. It can be very scary and isolating. Sharing your story will help others.
We have the same case, im 38 years old now 2x operated year 2013 (March & August) i have a brain shunt too since then
And yeah, its a long recovery.. . All you said are true.. .
In my case i loss my right eye sight & right ear Profound deaf
That problem with depth perception took me a lot of time so i really have to take everything slow
Its hard, because not everyone will understand what your going to even your own family
You have to be strong enough to go on alone
Thank you. I’m happy to hear it worked for him. I just had a Sural nerve transfer to create a cross facial nerve graft, cranial nerve “5 to 7 transfer” with parotidectomy. I am not happy your husband went through it but I am grateful to hear your story knowing someone else has successfully moved through it. My grafting was this past Tuesday 8/6 a 10 hour surgery and as you mentioned more long recovery and rehab down the road. Yes it has been scary & isolating, lots of unknowns and not a lot of knowledge out there unless you search for it.
@@MDavisjfs-u5kI hope you're feeling better & getting stronger day by day,
What an intelligent well-spoken woman. Being a nurse, she was well equipped to handle her plight and she is handling it well.
Praying you recover completely!
Thank you for sharing, what a difficult journey. It really shows to go to different doctors when not believed. Praying for your full recovery. ❤️
💗Thank you for sharing,you're a very beautiful Lady💗Take care,love and prayers sent 💗bye for now💗🇨🇦💗
As a cancer patient with one brain surgery, 2 lung cancers & now 2 more brain tumors. I sent you prayers of healing.❤
Sometimes, I realize my life is mostly trouble-free. I have mental health issues, and it is hard, but cancer is an actual problem.
You are in my prayers!!❤
@@anitarose7915 sweet soul 💜🤗
Sending you prayers and wishes for a full recovery too chickadee 🐥💜
Sending you prayers of healing 🙏 ❤
You are so beautiful and I wish you a full recovery❤
Thank you for sharing this. I especially appreciate your mentioning your stress. Many people seem to not want to acknowledge how stressful and anxiety-producing serious health issues can be. I wish you as full a recovery as possible.
Honestly, in my experience, women especially do not want to acknowledge the stress and anxiety around health issues for fear of misdiagnosis. Often we are told symptoms are due to stress or anxiety rather than the physician working towards a true cause. So, by the time a diagnosis is made, we still don’t want to acknowledge those things because it was what lead to being gaslighted by the medical community.
@@MisforMakeup Thank you. What you said resonates with me and my experience.
Thank you, Melissa, for sharing your story to help others.
Being a nurse no doubt steadied your approach to treatment. For a benign tumor to make such an impact, it is impressive that the sense of being overwhelmed you are experiencing is so well managed in the presentation of your own story. Nerves of steel balanced by a sense of humor and a curative sense of curiosity for your own recovery! Patient advocacy within surgical intervention must be in your future!
Never give up. 🙏❤
Your voice sounds wonderful, Melissa - you could honestly read books for audio distribution - maybe medical/nurse training podcasts? So proud of all the difficult things you have overcome or learned to live with. Your daughter is blessed her strong mom is so amazing. Blessings to you both.
I just had something similar but different removed a month ago. It was a vestibular schwannoma, aka acoustic neuroma. The first sign was early last year, when I noticed changes in my left side hearing. After it got worse, I had a brain MRI in October, in which it was discovered. Another MRI in April revealed that it was growing fast, and it had to go, or it would press against my cerebellum and brain stem. The end of June they used the retrosigmoid approach and made a hole behind my left ear and took it out, and they got it all. The surgeon had warned me that the chances of saving my left side hearing were small, and sure enough, the hearing nerve was withered to almost nothing and couldn't be saved. The balance nerve had long since withered away, and I had already learned to compensate, so balance issues are minimal now, bc I already had dealt with that. My facial nerve is not functioning fully right now, but early indications coming out of anesthesia were good; it was normal then. What is now in play is swelling, and it could take half a year to recover, but the chances are good that it will. That is important to me, bc I play oboe professionally. That is the scariest part, and I have suffered some anxiety through this.
I must acknowledge that so far, I have had it easier than you have. My heart truly goes out to you, and I wish you the very best as you continue to recover.
I just relistened to this (and probably will again; there's an awful lot of information to take in, and it hits me close to home!). I just want to say, thanks for telling your story! You are an extraordinarily strong person, and I'm sure it doesn't always feel that way, but from what I see, you definitely are. You are an inspiration to me, being at an earlier stage of my process than you are in yours.
@@tkat6442Thank you! If I could help at least one person (or give them a peer to relate to) then sharing this story is totally worth it :) I would search you tube trying to find a person who had actually gone this this but could not find anyone speaking about it. Some of these complications could be cross referenced to other tumors such as your acoustic neuroma. I am sorry you are going through it and will pray for your speedy recovery ❤
Youve went through so much, thank you for sharing your story.
I’m so sorry you have had to go through so much! You are an inspiration to someone like me! Your spirit and honesty about your journey through this is inspiring! I’m 51 years old and around 10 month’s ago was diagnosed with rheumatoid arthritis and was shocked with the diagnosis! I’ve refused the meds that were offered to me do to the many side affects that are associated with it! I am suffering with the pain but, I am hopeful that it will get better! After seeing your store, it has informed me to stay positive as I see you have! And I believe you are going to be around for a long time yet! Thank you for sharing! All the best for your future, Stephen!!!
Such a brave, beautiful person in every way ❤so inspiring
Such an amazing story. ❤🕊️🙏🏻
“Little moments are the big moments.” So very true. Thanks so much for for sharing your story with us. You are an inspiration to me. I pray your journey will get easier and that future procedures will alleviate some of these issues. You are a beautifully strong 💪🏼 woman. 🙏🏼❤️🙏🏼 I feel like so many women are brushed off by doctors who just ignored them and say they’re depressed and anxious. 😢
Thank you for sharing and detailing your treatments. I am going to pray for your health journey. You are strong and beautiful and your right we all need to remember life on earth is so short. 🙏
You are beautiful, brave and so articulate. Thx for sharing.
Best of health to you, your beautiful!
Melissa, you are strong, loved, and beautiful! You've gotten so far, and I know you'll continue to face these challenges, and kick this thing in the rear! Sending love and positivity from Michigan 💛
God Bless you Prayers for your health improvement🙏🏻❤️
Wish you a speedy recovery and God blessings,healing and long life. ❤
Thank GOD for the miracle of your healing. You look and sound wonderful❤
*the doctors
Your progress is amazing post surgery well done it is hard work. Wishing you all the best.
Thank you for sharing your journey.🙏🙏🙏❤️❤️❤️⛱️⛱️⛱️
You look Beautiful! Hoping for a speedy recovery!
Thank you for telling your story, Melissa. You don't have an ounce of self pity, and you're a beautiful woman (love your earrings). I hope you continue to recover and enjoy every day of your life.
It's appalling that we are still being treated this way, like we're just making these things up and don't have anything better to do than get insulted by doctors and treated like a hypochondriac. Good for you continuing to push and advocate for yourself.
🙏 ❤ 🙏
For You
Always & Forever
I'm sick and sympathize with you, suffering horribly from a parasitic infection and they are all dismissing me and the photos the symptoms everything. Everything. They are letting me die. I'm so glad you got the second scan
You need to find a lawyer a medical lawyer something has to work someone needs to help you wtf 😢good luck
Thank you for sharing! I am curious what led them to classify the growth as benign?
My mom had the same tumor and she too was diagnosed with Lyme disease. I don’t get it? My mom had surgery, fought and got through it. Honestly, I think what got her through it, was having grandkids to play with and keep her active.
Hi Melissa! Thank you for sharing your story! What a harrowing experience for you. I had a vagal nerve NET on the left. What was the final treatment you had for your vocal cord? I need to have more intervention. Thank you!! Best wishes for your continued recovery 🎉
Hi! The interventions I had for the vocal cord were (in this order) 1) PROLARYN GEL 2) fat removal from abdomen, then injected to vocal cord 3) GORE TEX implant with arytenoid abduction.
@@MDavisjfs-u5k Thank you so very much!!
Praying to God to restore your health completely. God can do anything and He listens to us. ❤🙏🏼
But won’t spare us the pain and distress of cancer?! Thanks god, so generous👍🏻😒
Keep fighting you have this ❤
My understanding is that contrast MRI has gadolinium toxicity. Maybe makes symptoms worse or creates new problems. Diagnosing for mental problems around this furthers prescribing drugs, profiting pharma. Chemo also part of the Iatrogenic pipeline. God bless you. Prayers to you for continued healing.
So how did they diagnose ? Ct scan ??
These are really rare , I have a JF schwannoma with a cystic component. Have had 2 long retrosig brain surgerys and 28 rounds of VMAT brain radiation all at MGH Boston and still on the merry-go-round. Best to you as a fellow brain tumor warrior❤
If we are paying for the 2nd MRI what's the problem with these physicians? It's not out of their pocket! They just want to look at us as if we're stupid.
My heart goes out to you feel so bad about this so sad for you. Prayers go out for you. I pray Jehovah will help you you’ve been through so much you look like you’re recovering good I pray, so may Jehovah God help you through his son Jesus Christ🥰💕
Doctors can be frustrating. Thank you for sharing ❤
Jesus is the Almighty healer, and the Doctor in charge of the doctors!! Don’t forget to seek His guidance in your journey! God bless you, beautiful ❤️.
Looking forward to God’s kingdom, where it won’t be no more sickness no more death revelations21:3,4 please read this in the Bible. It will give you hope for the future.
Amen ❤
🙏🙏🙏🙏
Thank God I no longer have Lyme Disease anymore. It was diagnosed weeks after the tick bite. Lyme is curable if caught early. Otherwise you manage it. My Lyme was completely cured. If you have headaches, it is a Lyme symptom. Get a blood test. You then get a brain scan if it’s not Lyme. My advice is don’t ignore headaches. My headaches turned out to be weather related. Take ibuprofen with Sudafed for weather headaches. I hope this helps. A side note: this lady has a droopy side of her face. Don’t know why but check yourself for a stroke if you have that. I think hers is a side effect of a medicine. Praying for her.
didn't watch the video so why u typing?
@@DaveHcontrarian~exactly!!
I don’t think they watched the video at all.
😂
No one asked. How disrespectful to talk about yourself on a video u clearly didn’t watch
Research Japanese hot water therapy for many illnesses. Prayers
If you would be interested in talking I would really like to connect with you. I'm not sure 😮a 65 yr. old female and I would like to share with you. I'm not sure how to do that, I am not technically sure how to make it happen. I'm praying for you and your daughter and other family. Stay strong and Trust in the LORD . Contact me if you would like. BLESSINGS to you, and your family.🙏🙏🙏🙏
I’m not too good on here either. I’m not sure If you could try sending me a personal message under my user name here?
Sorry, i mean tumours are shrunk.
Did u get the jab??
Yes, it most likely saved her life..
This has been in her body since way before "the jab" and covid smh
@@alexanderl9985whatever nothing but lies
SmhH
@@sadiquap123must of gotten the jab! 😂
@@rubyarteaga i didnt actually but i do have enough sense to listen to the words spoken in the video where she says she was ill before 2020
Wednesday, 31 July 24, 11:32 AM. Greetings from New Jersey. Thanks for sharing what you went through. I learned so much. Stay strong. I wish well.