Faking Autism, Disability Checks & My "Level"
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- เผยแพร่เมื่อ 22 มี.ค. 2021
- Let's answer some of these juicy (and a bit rude) adult autism questions as an autistic girl 💁♀️ This is just part 1, part 2 will be posted tomorrow!
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I was diagnosed with BPD + ADHD + Anxiety and Panick Disorder, and Manic Depression throughout my life....... I'm now being assessed for ASD in April.
I've heard you say a few times that you wouldn't be doing any more videos on yourself. I'd be happy if you change your mind and speak more of yourself here and there, so I will remain subscribed in the hope it will happen one day. Honestly, your kids are of no interest to me, but you are such a fascinatingly interesting and expressively rich character that I'm happy I've come to the end of your vids about yourself. I just could not pull myself away from watching. It's kinda addictive. All the best wishes to you and your big family!
You answered all the questions so well. Especially the one about how easily it is to be misdiagnosed with bipolar. I wasn't diagnosed with bipolar (I had other misdiagnoses though) but that was probably the diagnosis I wondered about the most before being I got my diagnosis, even up to the day I was diagnosed. I think it was the ups and downs and impulsivity of ADHD that made me wonder. And yes also on the rude disability comments too. We get a lot of "two autistic adults wonder who pays for that" type comments when Paul is literally in his law office 12 hours a day during the week. People don't get how disability works. I'm so thankful it exists for people who need it, but I get tired of people making snarky comments that that's why I had kids.
YES MA'AM! It's people that make these comments that have NO idea how disability works.
And people think to get welfare you just go and ask for money and they give it to you!!! They do not think that you have to prove ANYTHING!!! And that ANYONE can get it...you just go in and lie and they give you their hard-earned tax money!!!
I am so proud of you for being so brave to share your diagnosis. It is so hard to stand up for yourself in today’s world and you have done that girl. You are such a positive light to me.
Actually the longest job you've had, and ever will have, is being a mother 😂❤️ and you are wonderful at it!
Thank Thank is is the the kids
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I'm so glad I heard about your channel through Emily. Thank you for sharing SO much information.
I have 2 nephews and a neice that have been recently diagnosed and watching your channel has been so great. Thank you
💜 thank you for sharing so much with all of us Steph! You rock! 😘
That whole thing you said about knowing more about yourself so you can practice better self care ... worth it for that alone right there. So important ❤️
Thank you for sharing with us. I don't think I'm on the spectrum but I definitely have sensory issues. Certain noises like kids screaming or yelling and jumping around are excruciatingly painful for me.
Again, thank you for sharing with us!
If you are sensitive to certain noises, you may want to research misophonia.
I really respect your ability to look past the rude and uneducated comments. I love watching your videos, I have a child on the autism spectrum who also has phelan-mcdermid syndrome (also a chromosomal diagnosis).
Your kids are cute! Your family is caring and thank you for being wonderful☺️
I have only being with you for a few months & I want to thank you for making your videos it has helped me understand Autism. Keep being You!!
I’m watching this and I hear “I chose Brittany’s” then I see my pic, I’m like “hey that’s me!!” 🤣🤣 thank you for choosing my question!
Hope you have a great day... ❤️
I’m learning a lot from Stephanie because I can be more understanding
I love you Stephanie and your family💗💗💗you explain so many things!!!! Ty for being so open and honest 🥰
Stephanie - You handled those questions so well!!
I didn't think that for one second that you were faking anything. You are amazing.
Thank you so much for this content. It is valuable. Keep doing what you are doing. I believe this information is helping people not only understand themselves but more importantly understand others.
Stephenie I’m legally blind and I use a white cane. I was born the way I am and I make no excuses nor apologies. It is true sone people think I’m too disabled and others think I’m not disabled enough! 🤷🏻♀️ I’m just me... love me or not, I’m just living my life the way I was created, happily getting on with living it. My son Noah 7 is partially blind and has Autism. We wish your living family a wonderful Easter. Many Blessings 💜🌟
Ps. With reference to Nelly’s eye patching... it was so adorable and not, I just smiled and loved the way you said well the good news is she can take the patch off now and she tthe bad news is she can take the patch off.
I love gaining insight into adults with autism. I work with children with autism but there is a difference when an individual has been coping with the symptoms for twice as long! As far as someone WANTING to have autism....the only time that I see that is in parents whose children have chromosomal abnormalities and the parents are in denial (probably due to fear of the unknown) and they continue to insist that their children have autism. I’ve seen this many times over the years...I think that autism is less scary to them because it’s more prevalent and there’s a bigger community. I never try to continue to convince them otherwise, I just love them and their children.
hey steph you and your beautiful family are such an amazing inspiration and your like a role model to me and I really appreciate it 💖 ❤ 💕 💗 lots of love 💘
Hi Stephanie you and your family are awesome 🙂❤️
I love the long videos! I’ve commented before but i have 2 children on the spectrum ages 2 & 3 & i also was recently diagnosed autistic. I have ppl that doubt my diagnosis as well as if I’m making it up which is really weird lol
I have ASD and ADHD and have sensory processing issues. My auditory processing issues are messing with my ability to pass a hearing test and so it is hard to work out if I can't hear properly or can't process what I hear.
After watching ur vids it has made me start looking at my life and I think I have ASD
I want to add to the conversation about medication. I have ADHD and depression and It made the world of a difference for me to treat the ADHD and not the depression. I got diagnosed as an adult and undiagnosed or untreated ADHD is a major risk factor for developing Depression. Taking stimulant medication and learning about ADHD helps with my depression just as much as the ADHD it self.
I was wondering, you said when you where doing the paperwork to be evaluate you said they asked your mom questions. My question is I wanted to get our oldest daughter evaluate for autism, but she was adopted and we dont really know anything about her bio-family would we still be able to get her evaluate? Or is that something we would have to ask the doctor?
Hi Steph , glad to see you on. Thank you for all great info. Just don’t ever let the nasties get to you.! Love to all.💕💕🙂🌟🌟🌟🐰🐰🐰🐥
Nah. I have just kind of accepted that people have their opinions BUT it does give me great points for education for others 🤗
I don't think it is for attention because there is so many other things a person could do for attention. Thanks for being strong and sharing.
Thank you!
If you ever felt comfortable a clip w stims would be amazing!! I have had these 'tics' since high school and I wonder if they are stims. They have gotten worse over years but before that had gone away.
Hello Stephanie! You are an extraordinary and beautiful microworld - not just a fam-of-eight ;) and I personally think that you try to do your best to keep up with the demands of life and make it all work.. I wonder though if it could be suitable for you to pick on some topics concerning your elder kids who are not on the spectrum, I think it still would fit into the channel theme. Particularly the Qs would be: 1. Was it easy/difficult for them to adjust to new environment and school? 2. How is it with acceptance and tolerance issues at the new location (bullying because crowded family, autism issues etc)? 3. Are the teens of opinion that the experience of handling the siblings with ASD could be helpful for them in their future life, like choice of profession, raising own kids since the possibility of ASD in them is present due to genetics? Thank you, you are all great!
love your content your a great mother
I have known people wrongly diagnosed so many times... usually it seems to me psy dr have a dx they like the most and almost everyone who walks into their office gets that dx ... that is what I have noticed in 20 years of being an adoptive parent; 17 years teaching sped; 5 years being a foster parent ... etc...
Oh my god you answered my question this is crazy
I got a referral from my pediatrician for both an autism evaluation and a neuropsych until I called up the places that test and diagnose autism and my family’s insurance covers nothing so hopefully my first job I can use my first paycheck to be evaluated because I need to know I read the criteria and everything all of the criteria applies which is crazy I thought only a few things applied until a watched a TH-cam video that explains it in non scientific words and wow just because I can talk was the only reason I wasn’t diagnosed as a young kid
I think that ppl would really understand if one day u gave a small glimpse at what it's like to have autism and maybe they would understand that way
I don’t think I should have to show me at my lowest or most vulnerable for people to have compassion.
@@OurLANDingCrew8 I agree I was just saying that it might help ppl understand like I said I think I have ASD and ik that for me that me showing ppl really helped them understand no hat all love thank u for what u r doing and it's amazing
Hi. I have a 2year old son who is currently being diagnosed with Autism. I was reading a lot about MeRT treatment. Just wanted to know your opinion about that.
I’m almost caught up!! 💗💗💗💗
My friend told me yesterday (in school) she had autism. I've been about 70% sure since September, why I'm here watching videos, but she told me yesterday. Very briefly- and I didn't want to keep it up as a conversation in case she wasn't comftarble. If you don't mind me asking, when you were younger, (obviously you didn't have a diagnosis), what would you want people to do to help?
Thank you for making these 💛 I’m 21 and think I might be autistic (apparently still feeling like every single conversation is a puzzle but not in a fun way isn’t a typical thing? wild) and they’ve been really useful. Still not sure I’m gonna look into an assessment (I have a TON of physical health issues and I’ve seen my autistic nephew get his dismissed and don’t wanna be in the same boat) but having more info is great.
I was wondering if you had any thoughts on Annie Elainey?
I can’t tune out multiple audio noises, feel noises as well as hear them. Light sensitivity as well. What ear plugs do you get.?
When I got pregnant for the 2nd time DEALING with noise has been so so hard. I don't know what it is but listening to multiple things or people at a time is horrifying for me 🥺🥺🥺🥺
@@maritoh.6710 me too. I live very close a stoplight on a highway and doubles as a main road for this small town... semi’s and accelerators... motorcycles, the beeping of the crosswalk, and that’s windows closed up. I can feel and hear bass and I don’t like vibrations. The apt above me has hard wood floors and everything they drop, drag, move, walking with shoes.... it’s always too much even if just one of those things repeats. My concentration breaks cuz my ability to process info is zapped.
I’ve tried ear plugs and they don’t work then headphones create more pressure on my ears against my glasses and hurts in a few minutes.
Wish sound proofing wasn’t an out of reach expense
I’ve been dealing with so much anxiety with my upcoming assessment and this video was really helpful! I’ve been experiencing really bad imposter syndrome and feel like I’m making up everything. I know it’s not true but it’s driving me crazy
I went through the same thing so I get it! You've got this :)
@@OurLANDingCrew8 thank you :)
yah I went through a neuropsychological evaluation and was diagnosed with autism, NVLD and Mild and/ or borderline intellectual disability.
I have NLD too, diagnosed at 25 almost 7 years ago.
@@catloverKD yah, same except 4 years ago.
I love your response to the hate. My son has just been diagnosed with a lot of different mental health diagnosis. He has DMDD, comduct disorder, ADHD combined type and autism level 3. And everyone says because my son can speak he isn't autism level 3 never mind the fact that he is 8 and speaks like a 2 year old.
What is DMDD? Never heard of that one.
The comment at 19:18 I pray that you don’t have to go down that road with you or any of your kids. With me they have been nothing but rude to my mom arguing with her that she isn’t my mother? Head scratcher it’s so awful they will come up with every little excuse for the argument.
Very interesting video!
Stephanie when I ask for the level I it’s because I am level two but I am really verbal and not being rude
So I'm 22 and think I'm on the ASD and I was wondering how would I go about finding a neuropsych evaluation like step by step plz it would help me
First of all contact your insurance company to see your options. Start with a psychologist specializing in autism.
@@nancyk4679 I don't have insurance
@@whitneyscivally5151 I read online you go through a private doctor, that depends on the state or country you're in. It's expensive but if you have the money, it would probably be a bit faster.
You are really an amazing woman Stephanie. Your videos are so encouraging. I have Level One ASD myself. I am 44 years old. Some of the struggles you have gone through I can completely relate one hundred percent.
I’m curious, when you say masking, how does your real personality come out, or how do people really know who you are. Does that make sense?
Only my VERY closest friends do. I am slowly learning to unmask and be my true self.
The "it seems like everyone is diagnosed with _________" argument always gets me a little heated. The reason we see an increase in diagnoses is more likely due to advances in science and training -- the traits are more easily identifiable because we have learned to identify them as this disorder that now has a name. We also train people to be able to identify the symptoms or traits more easily and advancements in genetic testing have made it all the more easier (though not as easy to obtain). It's not that all of a sudden everyone has ASD. It's that now we have a name for it and a way to diagnose it. Think of how many people went without a diagnosis before now. It's always been around. It's not new. It's just recognized now.
I don’t know what OT might cover (especially for an adult), but when watching your cleaning videos, I wonder if some sort of organization skills, time management, or “healthy habits” type training might help you keep your sanity.
Obviously having 3+ kids comes into play (thinking back to Jacksonville) and you are capable of cleaning, but keeping up on things makes a major cleanup less daunting. Even cooking comes to mind, but again 8 people with a variety of food issues, combined with not everyone is inclined to cooking (Sarah from Our Tribe of Many doesn’t enjoy cooking, but recognizes people need to eat and tries to lean towards healthier options = having to cook). So just like you didn’t grasp the concept of making the bed as a guest, you may need to be shown doing this or that helps keep the bedroom cleaner, or cooking a double portion & eating leftovers or freezing a portion might help make food time easier.
Obviously a variety of factors come into play on keeping a tidy home like illness or injury, phone calls to doctors & therapists, kids and whatever random curveball life tosses your way, and nobody can force you to enjoy cooking, but just some ideas to think about if you wanted to look into trying to make life easier for you.
Does having a messy house give you video content? Yes, but it’s also not functional to constantly have a messy home (not saying you live in filth). Can you survive on frozen dinners? Yes, but they’re not healthy due to carbs, sugar and salt. But if some sort of “life coach” helped you form new habits, you might not have to stress as much after a bad weekend, or you might get a freezer full of healthier dump & bake options.
Even just talk to Lonnie to see if you could come up with a list of things you think could have a better solution than what’s going on currently. Make a list of things that need a better solution once the eldest 2 leave home, list of what needs a better solution if Lonnie has to return to work for some reason. What if the respite option never can happen for whatever reason, what works or doesn’t work and what is highest priority to make life run smoother now and for the future.
You grew up masking, but never understanding certain things. Surely that qualifies you for something...
Therapy helps me the best because she specializes in autism but OT is for sensory or fine motor skills. That's the thing about "high functioning" you don't struggle ennough for help but enough that it impacts your life.
@@OurLANDingCrew8 well even typical people can pay for professional organizers or seminars on how to be more efficient or whatever.
Most people find out "my parents never taught me that" or figure out the real purpose to some object years after becoming an independent adult. Think of how many people struggle to figure out how much to tip for hair dressers, manicures, food industry. I've seen some downright strange tips from people working in the food service industry at major sporting events...a duffel bag for example...nice duffel bag, but $100 cash works better for the recipient!
And learning that X habit doesn't work well for you, but trying Y habit does work well can make some sort of lifestyle coach worth it.
I want to know what a normal person is there is no normal we are all different
because of your autism traits video i have decided to get my self tested. i noticed that i have or do the same things as you. in the past i have had a few people say that i was autistic. my aunt when i was two. and a therapist. but i was never tested. i am going to do this test just for a piece of mind. as i am only 41.
Where is the video from a few months ago talking about losing your best friend? Did you take it down? Was her name Melissa? Are you still not talking with her?
That video has been privated for a little bit now. Her name was Ashley. And we are not talking. Melissa is someone I’ve never had issues with 🥰
Everyone is human. Getting a diagnosis wrong or right can happen if it is only one person diagnosing. I think if I was in you place I would do the same, since it makes sence, if your children have autuism, its really likely that it was genetic
💕
So, the haters are professionals who can spot malingering (or NOT), and know more about your own diagnoses than you do, including how often they're misdiagnosed?! "You don't look autistic" and "Everyone has autism" Well, you don't look ignorant, and everyone has an attitude!
Hi I'm autism too
why would getting an evaluation in florida be difficult?
Personally I don't think it's the state of Florida that is the problem. It's just who you contact. I live in NW Florida and adults are being diagnosed with Autism on a daily basis here and for free. We have free mental health clinics and hospitals here and they do all that testing Stephanie was talking about all the time, free of charge to most people.
I'm sorry that you have to hear bad things!!!
Okay people, just don’t watch the videos if you don’t like her. Nobody is forcing you to watch her. I hate when people do that. It’s like people think you’re Susan Schofield or something. Now that’s something to worry about. She thinks her child Jani has schizophrenia and Bodi too. They’re both on medicine that clearly is making them sick. I don’t think you’re like that. You’re genuine, and I like that. These people think they know it all and they think you have munchausen by proxy. Well, the truth is, you do have autism and nobody else can change that. You can’t speak it into existence. You’re not God. That’s silly. Only God created the world, not you. Nobody has control over their circumstances. Only God controls the world. You cannot make yourself or your kids have autism. You are unique, and that’s what matters. Well, thanks for sharing! Have a great day!
I was recently diagnosed with ASD as well, I’m 20 and throughout my entire life I have had issues that now add up. My mom cried when they finally diagnosed me.
Hey Steph.....good vlog.....keep advocating for the Autism World. Be sure to check out Our Landing Crew Merch. I love my T-shirt....wear it with Love.
I love your videos keep making videos please take you 📲💻📷📹🎥😀👍🌈🥳🤩👋
Clearly you don't fake it so screw the nasty haters
How dear you say that to Stephanie ugly and rude
I would love to chat with you. I think you and your husband are amazing. Your babies are all so darn cute,just want to hug them all.lol. I don't know how to just chat with you. If you do please let me know. I love to talk lol
I love the dislikes. Just don’t watch. You know you won’t like it before you even start the video.