2008-2019: Curing Impossible Eczema, Food Allergy, Asthma (Dupixent, Cyclosporine, Cromolyn) | Ep243
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JEFFREY LIN VLOG: December 30, 2019
DECADE REWIND: 10 years ago, I had just stepped back from the brink of my skin leaking, rotting, and infections overwhelming every part of my body, inside and out. After 25 years of my eczema, allergies, and asthma getting worse, I finally found doctors at the University of Utah who had a clue what my problems were (but no clear idea how to treat my conditions). Their medications stabilized me and helped me improve a smidge, but these weren't long term solutions. So began these 10 years of using myself as a guinea pig, testing new treatments and off-label use of medications. Here are highlights from every year between 2008-2019, showing the ups and downs of my journey to heal, culminating in someone resembling a human being and getting a hint what a "normal" life might be like.
2008
• Allergy IgE 18,000+. C...
• Allergic to Everything...
2009
• Cyclosporine Helping S...
• Jeffrey Lin's Utah Med...
• Increased Cyclosporine...
2010
• Jeffrey Lin's Utah Med...
• Jeffrey Lin's Utah Med...
2011
• 5-Year ECZEMA HEALING ...
2012
• Stopped XOLAIR + CELLC...
2013
• Food Allergy Test with...
• Health Update - Jeffre...
2014
• RITUXIMAB Experimental...
• Many Years ALLERGIC TO...
• Killer Allergy Cramps ...
• Allergic Reaction: Los...
• Reaction: DUPIXENT Cli...
2015
• Discovering Adventures...
• Nearly Had a Stroke at...
• Starting METHOTREXATE ...
• Stopping METHOTREXATE ...
• IMURAN (Azathioprine) ...
• VIP at LA Fashion Week...
• Stopping IMURAN (Azath...
2016
• Imuran Eczema Treatmen...
• Day 1 of MITH Magazine...
• Day 5. Liv Tyler Fashi...
• Ep.3: We Ran Into Bear...
• First NUCALA (mepolizu...
2017
• NUCALA (mepolizumab) R...
• DUPIXENT (Dupilumab) E...
• Spinal Cord Damage May...
2018
• I'm Allergic to Emotio...
• WHY AM I TRAVELING WIT...
• STOPPED DUPIXENT for 3...
• EPIC ALLERGIC CONJUNCT...
2019
• Natural & Holistic Tre...
• Healing in Holland. Ex...
• MEDICINE STOLEN! Chron...
• Healing Eczema & Aller...
• Should You Live Like Y...
#dupixent #cyclosporine #cromolyn #chronicillness #raredisease #spoonie #flareup #xolair #eczema #antihistamine #prednisone #foodallergy #anaphylaxis #mcas #hives
![4 Common Foods that Make Eczema Worse [AVOID THIS]: Gut Health Expert](/img/n.gif)
Hello Jeffrey. I just want to tell you how much this video touched me. I suffer with the exact same conditions as you, and with the same severity. I just never got infected to the point where my internal organs were compromised. There were times where I couldn't open my eyes, mouth, and couldn't move for days. I would basically starve in bed and wake up and not be able to speak and see nothing. I thought about taking my own life many times. I tried to find eczema related content but everyone seemed to not have it as bad as me. I felt alone. I wish we could have been friends by the time we were suffering the most, I'm sure it would've been lovely to feel understood. Anyway, I'm glad I never gave up, because I'm now two months in dupixent and it's working :) I'm only seventeen, and seeing that you were at that level of extreme eczema when you were 25 and beyond makes me very proud of how you handled it. I felt I couldn't take one more year as I was at the time. Also seeing someone who had to deal with it, while working and living an adult life, it's really worth to cherish.
Plusss the fact that you were able to record and photograph yourself while at your worst stage, it's something I can't do. I can't see any image of me like that it triggers something in me. Hence why I was not able to watch your video till the end, I'm sorry.
These conditions are so mentally, physically and emotionally draining.
I'm proud of you, of me, and of every eczema warrior out there. We are all so brave.
Never lose hope :)
Hey Aurora! It’s so great to get this comment from you and to hear you’re doing better! Yes it’s rare to meet someone who’s gone through the same thing. I do wish I had taken more photos but as you mentioned, when you’re suffering so much, hands raw, eyes stuck shut with gunk, taking photos isn’t the first thing you think of doing. You’re just hanging on second by second. And it’d also why I don’t post many videos...it’s emotionally hard to relive it. I’ve lost so much of my life to this disease I want to use any moment I’m feeling ok to do other things. Hope you get to take advantage of feeling better and go do the things you’ve always wanted to do. Keep me posted on your progress! You can hit me up on Facebook or Insta anytime. Link in video description.
Aurora God bless you! I don't understand why ppl like us don't immediately qualify for disability. Being anaphylaxis to everything im told i cant travel, i can't go "under" for surgeries because my breathing. Eczema so severe the rapid weight loss was scary. Forgetting my surroundings and how to speak has all been difficult. Even becoming paraplegic without any answers to why. My body rejected itself. Seeing this video is so inspiring. @ 20:20 when he was in the pool, i cried, water is painful for me too even crying hurts lol I will be starting dupixent nxt wk & i am nervous aint gonna lie lol but glad your skin is improving!! If you being 17 can do take it like a champ then i need to stop being a big ol baby and take it like a champ too aha.. Aurora keep being the sweet individual you are. & you're right we are all so brave!!! 💛
I believe you can apply for disability now if you have a good doctor to help you, but when I was growing up, these symptoms weren’t recognized as a disability. So, I worked for myself and because of that, it makes it harder to qualify for disability. It’s easier to get disability if you don’t have prior work experience. Also, disability won’t give me enough money to survive, so I just had to work for myself.
Aurora!! I am so happy to know that Dupilumab is working for you. It is specially hard to go through this when you are young. I developed this problem when I was 19. I remember going to my University classes with bandages on my neck and arms because of the griefs and the leaking. I am 24 now and I am still struggling with it. After all this years it seems that finally I will be getting the Dupilumab. I am looking forward to it. It makes me so happy to see that really works and gives you your life back.
You are a warrior Aurora!!!
@@lex3711 please, believe me, you're taking it like a champ as well. Anyone who deals with stuff like this, is going to go through some crybaby times. But it doesn't take any of your strength as a warrior. It took me a long time to understand this, and I still struggle to remind myself. But no fully healthy person is able to understand what we go through. For example, I obviously struggle a lot in school, because of not being able to show up very consistently, and struggle to find energy and motivation to do my work, due to the psychological toll that it takes on me. I'm always tired. Then I feel awful and a failure because I look at my colleagues and at how much they achieve... But I have to remind myself that I'm different , coming from a point of disadvantage, where I have to work hard as heck to get to the bare minimum. I'm going to repeat my senior year because of how much I struggled this year, and of course, the pandemic didn't help. On that note, how's everyone doing, dealing with the global pandemic?
But yeah all of this to say, never belittle yourself, because what you go through is indeed very hard!! And you are a hero just by being alive right now :)
Also about the water thing, yikes I reallyy relate to that, remember screaming in pain just while taking a shower....
Let me know how is dupilumad working out for you!!
Bro, I've got huge respect for you. I'm impressed by how positive you managed to stay.
Thanks man! Means a lot 🙌🏼
This video made me cry. I am overwhelmed at how strong and brave you have been. You have not allowed anything to hold you back from seeing and experiencing the world. You continued to fight and search for cures, all the while having allowed yourself to explore our world. You have a wonderful spirit and look so strong and happy. I am inspired to keep fighting for my health. I am also inspired to travel and not allow my conditions to hold me back. Summer months are hard for me, ive been wearing long sleeve and long pants in 90 degree weather for years because of shame and fear of ppls reaction. Thank you again for helping
Thanks for commenting! This made my day. Things do hold me back. I still spend most of my days laying down, fatigued, cramps, nausea, allergic reactions. But as soon as I get a tiny bit better, I take advantage and try to do stuff...even though I end up returning home 70% of the time before I even reach my destination. I don’t travel for fun...I found I do better in Europe so during the summer when the west coast has fires, escaping to Europe is for health reasons so I don’t get worse from fires. But it’s still empowering to know I can do these things.
@@JeffreyLin have you ever gotten your adrenals checked? Just saying maybe you have and I'm not trying to say stuff like those people who say why dont you try x and y as if things were that easy and as if we didn't try everything under the sun.
That moment where you are laying on the couch rubbing but trying not to itch your face... that wish for relief, that frustration of constant unignorable itching, the pain that follows after scratching... dude I feel your pain. I have about 10% the problems that you do, but I understand. Keep on keeping on brother... who knows what they may come up with.
Been on Dupixent for a few months, feeling ok, but not perfect. I'll sure as hell take it over the pain and itchiness I used to have.
Hey man, thanks for the support and glad you’re feeling a bit better. I’ve been on Dupixent for almost 3 years and still continue to get improvements. It’s usually seen as a fast-acting medication but it also has long term benefits of fixing your immune. If you can, stick with it. Here are the other meds I’m using that might help: th-cam.com/video/txNbJdROVuk/w-d-xo.html
I’m starting on dupixent soon, just waiting on insurance to clear me. I can’t wait for some relief. The itching for eczema is unbearable at this point for me. I have so much inflammation from scratching on my face and arms. If dupixent can just alleviate the itching, I’ll be so happy.
Brooke Davis good luck! It’s worked well for lots of people. Let me know if you have questions after you start. There could be some redness and peeling at first, but for me that was just the skin healing. Here’s my experience starting Dupixent: th-cam.com/video/I63OBE7u10k/w-d-xo.html
25 years of horrible eczema I'm so sorry you went through all that 😢 life is so unfair you seem like such a sweet guy very sad.
I am so very very thankful for this medication! I didn’t get atopic dermatitis/eczema till I was about 27 and I suffered so much to the point of having to leave work, depression, anxiety and wanting to commit suicide. It was a dark dark dark time of my life. And now since using dupixent since the beginning of October 2020 I feel like a completely new person. My insurance is still denying the medication though.... saying it’s not medically necessary. And we all who are going through this can tell you how medically necessary it is! Our quality of life is necessary. Just like so many others with medical problems that need the use of prescription medication.
Jeffrey Lin you have such a big courage make a video of the progress you had with your skin, i also have some skin problems and i really feel your pain. i truely hope you will get control of your skin and can enjoy life more !! more power to you Jeffrey !!!
On dupixent since October (2020) and it has been life changing it was a fight until literally this month(January 2021). Insurance said it wasn’t necessary. I was forced by my work(in a caring way) to get on disability for three months and I was suicidal for months before that because I couldn’t sleep, I was always in pain etc etc etc and yeah... dupixent changed my life. I had people tell me after I came back to work that they didn’t realize how bad it was and seeing the difference on my skin and personality that they would have killed them self if in my same position. Literally multiple people. I still am not clear and somedays are worse than others but never the way it was before.
Hey Ash! This comment made my day! I know how you feel...I don't think I've ever had a full night's sleep or knew what sleeping was until my dupixent did it's job. hard to have a personality when you're fighting to stay alive everyday. Even though you're not clear, take every improvement as a chance to celebrate. I've continued to see improvements even over 3-years after starting Dupixent so be patient. Keep me posted on how you do in a few months.
Great to see you feeling better and looking good. Hope I get better like yourseld
Appreciate your power.you encourage a Lot of people in the hole world, including me. Stay Strong,keep your health.
Thank you for sharing your journey Jeffrey, I am so proud of how far you've come! I suffer from eczema and sometimes I feel so isolated and alone when I have a flare up. You're an inspiration to keep going and not let anything get in the way of living life! Thank you for being a source of hope. And might I add, you look GREAT!
Hey Molly! Thanks for reaching out! Always great to connect with others who can understand my life. It's been a tough road but bit by bit I'm improving. Has taken a lot of trial and error though as I showed in this video. A lot of medication backfires and starting over. Just gotta give yourself a chance. Maybe now with covid, more people can understand our isolation and loneliness. Hope your ezcema improves. Stay strong!
You are so brave and an inspiration for all of us. I've just started methotrexate for a rare skin condition myself and your videos give me lots of information on what's out there and hope that something will work for me some day. Thank you, Jeffrey
Hey man! Great to hear from you. Sorry to hear you’re also fighting a tough condition. Methotrexate works for a lot of people. It didn’t work for me but could work for you. With all of these meds, you just have to test it on yourself and see. The trick is to test it minimally so u can see if it’s working or not but not so much that it would set you back a lot if you have bad side effects. And yes, there’s lots of amazing new treatments for skin conditions coming out in the next 5 years, so just hold on for a bit longer!
@@JeffreyLin bu beni çok mutlu etti daha iyi olman dileğiyle 😊
LOVE YOU, Jeffrey. Happy New Year. Take care, and please, keep coming with your videos.
Happy New Year to you too! Definitely have some great treatments and helpful tips for new videos soon
Jeffrey you are a warrior!!! I really feel you cause I have been suffering from dermatitis 5 years now. Finally it seems that I will be getting the Dupilumab, I am so looking forward to it.
Wow you're an inspiration . glad you got better. I'm actually starting dupixent soon too so hope it goes well
Good luck! let me know if you have any questions or problems after you start.
Thank you for sharing your video . My son has been suffering from severe skin asthma started during pandemic a lot of oral and topical steroids were prescribed by his physician . There were days his okay but when stopped taking steroid his skin will flare again and again. There were times his not okay with body weakness and even hospitalized because of infection. When I watched your video my son's condition was not worst as you. Its been three weeks when his doctor prescribed him an immuno suppressant the Methotrexate hope this drug will improve his condition to minimize the allergic rhinitis and eczema attack. Upon watching your video and reading all the comments here . I'm so proud of every eczema warrior. You are all heroes.
Youre inspiring me. I wanted to cancel my future travel plans because my eczema has come back again I used to be only allergic to my cats pretty much eczema covered 75% of my body when I was living at my mom's and this time I dont know what's causing it.
I think it was mold and humidity that's caused it this time which I cleaned and now I bought a dehumidifier so my apartment is great now. But I still have eczema and it has made me so depressed I thought I was done with the generalized eczema :(.
But watching you is giving me strength and now I won't cancel my traveling plans and will enjoy my time even if eczema hurts and people look at me weird.
Jeffrey, I want to thank you for all the videos that you make. As an allergy sufferer and having to live with severe eczema, your videos give me valuable insight and information, and most of all, hope. You are my hero. Thank you.
Thanks for reaching out and letting me know! It’s definitely hard to be isolated (though it means we’re more used to quarantine in Covid times!). Glad to connect with people with similar experiences. Hope you keep fighting and improving!
I was you last year i pray for you i know its been some years since you posted this but my skin looked like yours and my heart goes out to you!
Thank you so much for sharing your history. I am about to start Dupixent for asthma and nasal polyps and you inspired me to continue fighting to find solutions. God blessed you always.
Hey Connie! Good luck! Let me know if you have questions. Also, there’s dozens and dozens of similar treatments coming on the market in the next 3-5 years so there’ll be even better treatments if this one doesn’t work great for you
How is it going for you nasal polyps? I'm on my 3rd dose and still no relief from post nasal drip
Is there ever a time when someone will get off of this medicine or does one take it for the rest of one’s life?
Have you tried eating a hyaluronic acid supplement daily? It REALLY helps the skin with retaining moisture and even makes fine lines and wrinkles fade away. Very popular in Japan, most studies are done there. Japanese potatoes are filled with hyaluronic acid and apparently it's one of the reasons why Asian people have better skin genetics.
I used hyaluronic acid and then I also have an oatmeal moisturizer that I have to apply like 10 times to create a layer.
My eczema was so bad at one time I couldn't even really move my fingers or work on my jewellery business. I've managed to help it calm down without steroids tho :).
ORMUS minerals are a big lifesaver to. I'd really recommend anyone with skin issues to try it.
Steroids made my skin so thin. Thank you for this comment
South Korea is currently in the process of using stem cell therapy for a topic dermatitis I think they just finished their third clinical trials and it showed positive results. I’m looking forward to the treatment.
I tried cyclosporine recently but I got really sick so I had to stop. Might give it another go later on. Great video though man.
Sorry man. If you watched the video, you’ll see I tried several immunosuppressants and Cyclosporine was the one that worked best for me, but other people have done better with the other immunosuppresants I mentioned (Cellcept, Methotrexate, Imuran). Cyclosporine does make me fatigued, depressed, and weaker immune, so I try to use a very low dose for my weight. If you try it again, consider using a low dose and supplement it with these other medications I use: th-cam.com/video/txNbJdROVuk/w-d-xo.html
your a true warrior ill pray for u by watching this I've learned a lot it comes down to the immune system were u low in zinc. vitamin d?
Hey Omraz, thanks for the suggestion. My immune condition is much more complex and deep than a zinc and vitamin D issue, but those do matter. For me, those would be steps #95 of 100. But yes, I do take vitamin D and my zinc levels are fine.
😥😥 This made me cry, I know exactly what your going through but my being in the UK I have no hope of cure
Beautiful music at the end of vid. 🥺 what's the name of it?
Hey Jeffrey, just wanted to know if you've experienced TSW before? Just thinking about trying it out. And just want to let you know that your videos are very helpful man. I hope you are well and that dupixent is giving you relief brother. Much aroha from New Zealand.
Hey Tom, a big part of how messed up I was from 2005-2009 was due to steroids but I wouldn’t say it’s steroid withdrawal because I never used much steroids at all, only occasionally. But occasionally was enough to damage my skin so it couldn’t heal and was super thin. That’s what u see at the beginning of this video. Stopping steroids will definitely help your skin to grow back, but if you have severe eczema, you’ll probably need some other medication to help. Because if your skin is too damaged, it might not be able to handle the “withdrawal” flareup stage before it gets better. Either way, u definitely should get off steroids.
Hey how are you. You have so many videos I don't know where to begin watching. I have this week just been advised ill be starting Imuran and am little nervous especially with COViD situation and my immune system being compromised. Its being used for my eczema which is completely out of control and has been for long time. I suffer from PTSD so the uncertainty doesn't help things. Any advice would be great including life style changes etc.
Hey Joey, sorry to hear about needing imuran. I’ve tried that before and have some videos about my experience. For any of these immunosuppresant medications, I suggest taking the lowest dose possible (even if you have some eczema flareup, I prefer to take less medication instead of too much). This should prevent your immune system from being too compromised. As for covid, as long as you wear a mask, wash your hands before touching your face, you should be fine.
As for PTSD, the way I deal with it is have small projects or goals I can work toward. I’ve started businesses, learned videography, learned investing, and now learning how to fly a plane with iPad simulators. Just little things where u can make progress and feel good and to take your attention away from the health issues.
what an inspiration bro
Thanks man!
Did you overcome your food allergies or at least some of them? I've been going through something similar and I've developed many onset food allergies so I am curious if that can change
My food allergies are much better when I’m in Europe, but I haven’t overcome any food, environmental, or chemical allergies. So, you might’ve developed allergies because your immune changed, or you might’ve developed allergies because the environment or food supply has changed. Other than trying allergy shots, there aren’t many medications that can “reset” your immune so you don’t have allergies. However, I’m a bit different because I was born with my allergies, I didn’t develop them like you.
The way you live despite of your eczema and how you tackle it head on is inspiring. You really remind me of that guy from the martian the way your'e fighting it with an engineer perspective.
i watched the trailer for the movie right now. I could not have been more spot on.
He said congratulating him self.
I have eczema, food allergies, and chronic hives. I just read an article that tacrolimus (same drug class) has less harsh side effects than cyclosporine.
Also, what is cromolyn? Is it an oral medication? What does it treat? I'm trying to get my symptoms under control and I've tried all the standard treatments.
Do you suffer from any autoimmune conditions, by the way? Any other conditions besides the eczema, food allergies, and asthma? Interesting that I found your videos. I'm going through similar problems and it's really hard to not be able to live a normal life.
Hey KB! Thanks for reaching out. Tacrolimus is more commonly known as Protopic. It’s a non-steroid ointment for eczema that suppresses the skin’s immune reactions so there’s less inflammation. Cyclosporine is usually a oral pill that suppressed the whole body’s immune (though theres also cyclosprine eyedrops). If tacrolimus works for you, that’s definitely better than cyclosprine because cyclosprine causes damage throughout the body and is toxic to liver and kidneys and weakens your overall immune so you’re more at risk from viruses and germs. Tacrolimus isn’t strong enough to be effective for me so I have to use cyclosprine.
Cromolyn is a mast-cell stabilizer, so your mast-cells won’t release so much histamines when you have a reaction.
I don’t suffer from autoimmune conditions. My condition is an overactive immune that reacts to everything in the world, not to myself
@@JeffreyLin Hi, thanks for replying! I know tacrolimus is a topical but it's also an oral medication form (check mayo clinic), which is what I was referring to. I've never taken it myself, but I've heard it can work as well as cyclosporine with fewer side effects. Brand names -
Astagraf XL
Envarsus XR
Hecoria
Prograf
I have so many auto immune disorders, I literally cannot put a singlr thing in my body, I'm shrinking inwards everytime I eat now 😢
Hi, I also has bad eczema... U re my inspiration.. u coping well?
Hi, thanks for connecting! Yes I cope well. I have a lot of videos on that topic: th-cam.com/play/PLR_66YylWiGjtlbE-ck1ke8DgpxAPZGF0.html
@@JeffreyLin not sure whether there is side effects of this...will u be tapering off this? Too exp to be on this forever
Hi how do you counter act the tiredness associated with famotidine? I'm taking 20mg at night. It makes me very lethargic. Have you got any tips? Thank you
Unfortunately Famotidine is the only H2 antihistamine. You can try just going with other H1 antihistamines like Zyrtec and Allegra or some combination of that. Or ask your doctor about Cromolyn, a mast-cell stabilizer. Mast cells are what releases the histamines.
Inspiring
Thanks man
You're a warrior my brother!
Thanks for the support man!
19:50 Can you explain more about steroids and why people should avoid them? My derm prescribed triamcinolone acetonide ointment for a bad patch of eczema and I was hesitant. I had previously used triamcinolone acetonide cream for vulvar vestibulitis syndrome and used it sparingly as it causes thinning of tissue; topical estradiol keeps the condition in remission for the most part (but insurance won't pay for it for some stupid reason). So when my derm prescribed the triamcinolone for eczema I was unsure but since I like her and trust her I went a long with it (also it was really bad & I needed to do something). It helped a lot initially, but now a few weeks later it is barely under control and now I don't know what to do. Also, are there specialist dermatologists for eczema? Who would prescribe something like Dupixent, an immunologist or a derm?
PS - It's really great to see the progress you've made and that trip to the Mediterranean looked wonderful.
As you said, steroids not only thins the skin, making it harder and harder to heal. The skin’s immune is also weakened so the skin becomes more unstable. Steroids are ok for temporary fixes or emergencies, but the skin becomes weaker the longer you use it. I still use triamcinolone occasionally when I have a flareup from allergic reactions, but those are becoming rarer. There are alternatives like Protopic that isn’t a steroid. Here’s all the other medications I’m using (so I don’t have to use much steroids): th-cam.com/video/txNbJdROVuk/w-d-xo.html
Also, watch my tutorial on eczema baths if you haven’t seen it: th-cam.com/video/bh0CDjswAG0/w-d-xo.html
@@JeffreyLin I thought my dermatologist would prescribe Protopic since she had suggested it for rosacea in the past. I'll ask her about it next appt. I came across something about topical rapamycin for eczema. I'm interested in oral rapamycin since it is a pro-longevity drug, though for some reason it does not seem to be used for atopic conditions.
@@rhyothemisprinceps1617 try Eucrisa
Best of luck
Thanks! I need all the luck I can get
I really need to talk to you!
I can relate to you fully and its very frustrating! You are very strong , better than me. Please te me how long methotrexate took to work, i have been on it for 2.5 weeks and no improvement
Hi Kanis, I only tried Methotrexate briefly and stopped it a long time ago because I had bad side effects. I've been on Dupixent the last 3 years and have been doing great. I'm also still on a bit of Cyclosporine (immunosuppressant similar to Methotrexate). Here's all the medications I'm on: th-cam.com/video/txNbJdROVuk/w-d-xo.html
@@JeffreyLin what kind of side effects did you get? im on it right now and not noticing anything. 3rd dose today... Also how many Mg did u take? (if u remember)
@@JeffreyLin Can i also ask
can you be on cyclosporim for
more than ayear??
It’s not recommended, but I’ve been on cyclosporine since 2009. However, I am very careful and only use a half dose.
Praise Jesus and praise modern medicine. Discovered your channel through your HEPA filter video. I have pet allergies and I've noticed the only thing that works is extra strength Reactin. But I'm considering an air purifier to see if that improves!
Hey Joel! Amen! Thanks for reaching out! If you're reacting to pet dander in the air, the purifier will help. If you're reacting to touching the pets, then that's a different issue. Good luck! let me know how it goes.
Hi! Where can I find Reactin? (:
New subscriber wish I found you years ago
I believe I have what you have-severe allergies, severely allergic to every food tested, all Outdoor allergens, severe asthma and excema. The. Only thing that has kept me alive and breathing so far is prednisone which of course is slowly killing me. I just started Dupixent and suddenly developed joint pain. Not sure I can handle it. :(
Yes, prednisone destroyed my skin and other parts of my body, but i need it in breathing emergencies. I don't know your case, but I suspect the joint pain could be from reducing or getting off of prednisone or Dupixent fixing the damage caused by prednisone. Just as people who use steroids on the skin would get topical steroid withdraw (TSW) after stopping steroids, my joints would flare for several years after I stopped prednisone and steroids. So you have to figure out if the joint pain is because of Prednisone or Dupixent. I would try to stick with Dupixent, but again, Dupixent is mainly for eczema and somewhat effective for Asthma. Xolair is better for asthma and allergies.
@malinda have you looked into Mast Cell Activation Syndrome? That may be something that’s worth looking into for you. I have mcas and was able to lower my inflammation by fully cutting out gluten and dairy alongside all of my worst triggers. I have to stay away from fragrances, makeup, skin care stuff, etc It’s definitely a journey that takes time but personally it’s really helped me. I hope you’re able to find something that works for you too!
Joanna Hanaka wow I just looked it up and the description sounds exactly like me. What type of Dr can help diagnose this??
@@aprilstarr7219 Honestly, it's tough finding doctors to diagnose it, but a good start can be an allergist/immunologist. You may be able to find someone through here: tmsforacure.org/physician-database/ There are also MCAS specialists which often times may not accept insurance. It's definitely tough but even without an official diagnosis you could have your symptoms become better managed. :)
u must find a place on ths planet tht is good for u... my goodness ny heart goes out to u
I was gonna talk about my sickness on my channel next coming video but I have a strange disease or something that breaking all my veins and bleeding inside my body ...so much pain and endless bruises... it might be allergic too? inside my mouth is start melting now😓 I went over 20 doctors in different countries but no one could found anything yet... I really wanna be free from this pain😢
Hey, so sorry to hear how much you’re suffering. I’ve had open wounds on every part of my body including inside my mouth and internally inside my body. However, my wounds come from eczema and allergic reactions where my skin has rashes, blisters, breaks, and bleeds and leaks. I don’t have bruises. Yours could be some other type of autoimmune issue that attacks your veins and blood vessels. Sorry I don’t know any more about this.
@@JeffreyLin thank you so much for replying! it's a strange sickness and inside my born hurts so bad I hope we can find the cure and we will be healthy together ❤️wishing from FL😘love
Stay persistent and keep searching! I’m sure there’s someone out there who knows something. FL is nice...much better air than here in CA. If you make a video, let me know!
@@JeffreyLin thank you so much for replying ❤️you are so kind 🥰 I actually made a video about me and my sickness recently 😘 I don't know I'll continue TH-cam or not but if I do you can find my video 😘
quercitin, garlic, and digestive enzymes have helped get trough the nights
A am a type 1 diabetic and suffering from mild to severe asthma, corticosteroid inhaler isnt doing anything anymore. In fact it just makes me feel angsty and messes with my blood sugar control. Thinking about talking to my pulmonologist about the biologics but it sounds like they want me to think of that as a last resort. How has your asthma been as of late. Any info would be greatly appreciated.
Hey Chris, my asthma has been good and continue to get better. I was able to weather this year's California wildfires without much trouble. Definitely improved compared to last year, but the improvements are slow. For me, it wasn't an "instantly I'm better now" experience. I tried Xolair a few years ago and seemed to help, but I had very severe side effects of nausea and loss of motor functions so I stopped it. Dupixent has been much better without any problems. But I do agree if you can improve with standard treatments, that's better since Biologics are still relatively new.
@@JeffreyLin Hi Jeffrey,
thank you so much for getting back to me. Ya im still suffering from this asthma issue from my googling and judging by my bloodwork potentially its some sort of eosinophilic asthma. Symptoms are dry non productive cough, chest tightness, and a feeling of not being able to expand my lungs 100% sometimes a feeling of not being able to catch my breath.
Can you share with me in particular what your asthma symptoms were like? i couldn't find any of your videos where you just discuss your asthma in depth. All the best i hope you continue to improve in all aspects of health and life.. Much love.
Around 70%-80% of the immune system is in the gut.
The gut microbiome regulates so much of the immune system.
While allopathic medicine is sometimes great,
at times, its approach is to suppress symptoms, instead of finding root causes, then treating root causes-
medicinal cream for psoriasis (less effective/not effective)
vs discovering wheat protein reaction, eliminating, then true resolution.
Heavy duty medicines to suppress immune system,
major side-effects,
vs correcting gut microbiome.
The latter- dramatically less expensive, especially over time,
few if any side effects, true healing and resolution, that can be long-term- it won’t stop working like many medicines.
If you haven’t already,
try **Functional Medicine**.
www.ncbi.nlm.nih.gov/pmc/articles/PMC3337124/#__ffn_sectitle
@@chrissantoro4968 are your adrenals ok?
Have u heard of medical medium?
Would you say you were poisoned by glucocorticoid (GC) medications? I also had asthma and eczema for nearly 20 years. I used GC inhalers and ointments. I've been in withdrawal since August 2017. Best decision of my life. I'm on a few online forums about steroid withdrawal. My recovery has been fast compared to others, especially since some other people have used steroids much shorter in duration compared to me. The main thing I do is water fasting for 1-5 days. GCs suppress and confuses your immune system and water fasting makes it more efficient again. Your immune system is basically nuking everything it sees as foreign. Water fasting forces your body to be more efficient with immune resources. Look into it. I wished I knew about water fasting during my first few months of withdrawal.
Hi Jim, I was born with my condition, so it is not because of GC medications. I’m also severely allergic to everything on the planet, and that isn’t related to GC. Even though I use some GC ointments and steroids, I use a minimal amount, and I didn’t use any medications from age 9-22. But yes, I know a lot of people who have improved from doing GC withdrawal because their initial cause is from GC damage. My cause isn’t GC damage so my condition is different.
@@JeffreyLin So you are still using GCs? Your body is hyper-reactive to everything because you are suppressing your immune system. Your immune system is *NOT* meant to be suppressed. It is like a pendulum, you push it down, it will come back with equal or more force up against you. Your immune system is designed to over-react, that's why we're all still alive. If evolution designed our immune systems to be under-reactive when triggered, we'd be dead. You are fighting your body. Just quit all the medications/poisons you're using and let your body heal naturally. Stop messing with nature. Nature is smarter than human ego.
@@JeffreyLin You are born perfect. We all are. The only problem is not doing the right thing. You are not special. We are all born equal.
@@jimzheng4912 are you ok in the head???
@@jimzheng4912 no we are born different some are born with rare disease some have good health some mentally retarded.
His body was never ok without the medication so wth is your point?
So people should stop fighting their cancer because its gonna heal on it's own?
You sound crazy.
❤
Y u don’t try dr.sebi
I have the best doctors in the US for this my diseases