What is it like to live with Glaucoma?

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  • เผยแพร่เมื่อ 11 ธ.ค. 2024

ความคิดเห็น • 99

  • @ayooya8963
    @ayooya8963 2 ปีที่แล้ว +7

    My father has had it since he was 25, he's now 52 and the situation has gotten worse in the last two years. He luckily got surgery from one of the best glaucoma doctors here. He described it to me like you guys did, he saw white dots and had a blurry vision, his left eye sadly isn't working anymore and he's completely blind in that eye. His right eye is much better but not good either. The surgery he had was the MIGS one (Mini Invasive Glaucoma Surgery, I believe?) where they put a microscopic tube in his eye and changed his crystalline and got rid of his Myopia too. The first day he described his vision as totally white as if he had a lamp right into his eye. Then, after like 10 days, he started panicking because he couldn't see in his right eye anymore either. He rushed to the hospital and luckily recovered and came back home after like 10 days (One of his vessels exploded and he had an eye hemorrhage. Luckily, all of the blood got adsorbed and the vision returned.) After like a month he started saying his vision is getting (a little) better, but sometimes still had the flashing white. It's now been over one month and a half since the surgery and his vision goes by days. Sometimes good, sometimes bad.. He has to get a visit at the clinic where the specialist works to see if he can use glasses or he has to wait. He went back to work but obviously he can't do the things he did because it's on the computer and he would only hurt his eye, but he goes there and does everything he can on paper. I wanted to let you guys know my experience (well, my father's) to see if someone has had something similar. I started getting more information lately, so I know more about this disease and can tell when something is wrong. I have known today that Glaucoma is hereditary and I'm scared I have it too. But, luckily, the last eye visit I did ,(one or two months ago, I don't exactly remember), I didn't have high eye pressure, so I know atleast for now that my vision is still safe. I am so sorry for everyone that has this disease, it's really nothing to joke about, as you may have it and you don't know it. Please y'all be cautious about your eyes and don't take it easy, a lot of people I know have had this disease and some of them are now blind because of it. Don't wait until it gets worse, get surgery done asap so you can prevent more permanent damage. Stay safe and healthy! 🥰

    • @jhoneldavegomez3316
      @jhoneldavegomez3316 2 ปีที่แล้ว +1

      What eyedrops did he takes? I have glaucoma both eyes. but luckily i think i prevent it from grtting worst thru an eye surgery this month right eye 2022. my left eye 2016.

    • @ayooya8963
      @ayooya8963 2 ปีที่แล้ว +1

      @@jhoneldavegomez3316 Hi! My father has used since he was 25 Izba drops, he would do one drop on both eyes every morning. Now, after the surgery, he has a whole list of medications including Azarga, Eumill for eye dryness, and TRUSOPT. But I would say use the surgery drops since you're about to get surgery, they actually keep the pressure stable. Hope this helps!

    • @jhoneldavegomez3316
      @jhoneldavegomez3316 2 ปีที่แล้ว

      @@ayooya8963 Thank you so much! :) I've already undergo surgery last sept 6, 2022. I'm a casino dealer on a sick leave 2-3weeks. My eyes are back to normal now having 10-15 eye pressure. but my check ups is continuous. God bless! Fighting! Take care always.

  • @jhoneldavegomez3316
    @jhoneldavegomez3316 2 ปีที่แล้ว +6

    I recently undergo a eye surgery. this month(right eye) Sept 2022. My left eye(2016). I hope all of you are okay even though we're all got some issues ij our eyes. Just continue to take eyedrops that can prevent glaucoma from getting worst. 👀 always pray! :) Every little things gonna be alright.

    • @arzoolifestyle8495
      @arzoolifestyle8495 2 ปีที่แล้ว +1

      Please watch exercises from Austin goh for glaucoma.it helped me tremendously

  • @jasmynsglaucomajasmynpolit7033
    @jasmynsglaucomajasmynpolit7033 4 ปีที่แล้ว +31

    I'm 25 and I have glaucoma and both of my eyes. I have to take eye drops and see my eye doctor every 4 months for the rest of my life. Glaucoma it's going to be a permanent marker on my eyes as long as I live until my heart stops.

    • @niravparikh3503
      @niravparikh3503 4 ปีที่แล้ว +4

      Yes bro same here...i m 26 n diagnosed at 16 when i had rd operation ..i receive glucoma after my retina detachment surgery unfortunately ...i hope god had save me from not receiving the disease...but he hasn't saved me....

    • @itsmohdmustafa
      @itsmohdmustafa 4 ปีที่แล้ว +2

      @@niravparikh3503 I'm 16 now and I've just been diagnosed with glaucoma. I'm very very depressed. Can you give me some tips on how to live with it from such a young age?

    • @niravparikh3503
      @niravparikh3503 4 ปีที่แล้ว

      @@itsmohdmustafa
      Bro where u from

    • @itsmohdmustafa
      @itsmohdmustafa 4 ปีที่แล้ว +1

      @@niravparikh3503 I'm from Meerut, India brother

    • @niravparikh3503
      @niravparikh3503 4 ปีที่แล้ว

      @@itsmohdmustafa
      Bhai whatsapp 7698398642

  • @Dargyful
    @Dargyful 4 ปีที่แล้ว +18

    I have glaucoma . I was seeing rainbows from 18 and thought it was my contact lenses . Then at 29 my pressures shot up to high 30s and I was hoping it was ocular hypertension and not glaucoma . I was prescribed drops was seeing a specialist for 10 years and everything was pretty stable . I stopped seeing specialists bc I began having anxiety over it . Not all specialists are understanding . Thankfully I have a wonderful optometrist but recently was horrified I hadn’t seen a specialist for over 5 years . I’ve been taking the drops prescribed by my GP but haven’t been monitoring my progress . I don’t want to live in a specialists clinic constantly worrying . I’ve been lucky that all these years later I still have my vision even though my left eye has optic nerve damage . It’s not that obvious to me . I pray it continues like this the rest of my life . I’m in my 50s now . I am going to start seeing a specialist though mainly to change the prescription bc there are better drops now .I’ve been in Azopt , Timolol and Lumigan

    • @deyloves2eat
      @deyloves2eat 2 ปีที่แล้ว +1

      thank you so much for sharing

    • @rafangille
      @rafangille 2 ปีที่แล้ว +1

      i’m 19 and an eye doctor recently said i’m high risk for glaucoma due to my eye pressure. i’m too scared to go even get tested for it

    • @mdwv872
      @mdwv872 2 ปีที่แล้ว +3

      @@rafangille please do me a favor and get tested for it. I also have high pressure and for roughly three years I was too afraid to go and get tested. Thankfully I went and everything is okay. Don’t live with that constant anxiety my friend, go get checked!

    • @semoneg2826
      @semoneg2826 2 ปีที่แล้ว +2

      @@rafangille Put away fear...it can be treated

    • @kitnguyen1964
      @kitnguyen1964 ปีที่แล้ว +1

      Don’t be afraid ! Just follow what your opthamalogist recommends then your eyes will be ok

  • @naturalobserver
    @naturalobserver 2 ปีที่แล้ว +3

    I have advanced glaucoma and this is one of the best simulations I've come across. It's much more low tech than some of the others but it's tremendously more accurate!

  • @HOHNancy
    @HOHNancy 6 ปีที่แล้ว +10

    My great-grandmother had it for the last 50 years of her life. She mentioned once that she could only see outlines.

    • @davidlo168888
      @davidlo168888 ปีที่แล้ว

      th-cam.com/video/iswRngmN-cY/w-d-xo.html

  • @showcasecity
    @showcasecity 4 ปีที่แล้ว +7

    I'm a teenager and I have it in my left eye. I'd say the description you provided is pretty accurate.

    • @hariniramapathynaidu5284
      @hariniramapathynaidu5284 3 ปีที่แล้ว +1

      Me too man glaucoma socks especially when you're just a teen.

    • @showcasecity
      @showcasecity 3 ปีที่แล้ว

      @@hariniramapathynaidu5284 exactly!

    • @hariniramapathynaidu5284
      @hariniramapathynaidu5284 3 ปีที่แล้ว +1

      @@showcasecity if only people understood

    • @showcasecity
      @showcasecity 3 ปีที่แล้ว

      @@hariniramapathynaidu5284 right!

    • @hariniramapathynaidu5284
      @hariniramapathynaidu5284 3 ปีที่แล้ว +1

      @@showcasecity Hey I have a question. I wear glasses after my surgery but is there any way I can do away with them. I can't wear lenses or do a laser either. Is there alternative.

  • @marcusissa3299
    @marcusissa3299 3 ปีที่แล้ว +7

    I’m 14 and I have glaucoma in my left eye. I’ve had 3 operations for it, and 1 operation for a cataract caused by the glaucoma

    • @showcasecity
      @showcasecity 3 ปีที่แล้ว

      Same. I’m 16 (diagnosed with it at 14) and had two operations for it.

    • @helena7402
      @helena7402 3 ปีที่แล้ว +4

      @@showcasecity I haven’t been diagnosed but my eye doctor is very worried because my eyes are starting to dilate, my grandma went t blind and great grandmother, y’all I’m so scared I’ve been crying all day. How are u guys so strong at 14 and 16 while I’m breaking down at 19

    • @showcasecity
      @showcasecity 3 ปีที่แล้ว

      @@helena7402 that’s not good. So they’re saying your pressure is high but they don’t think it’s from Glaucoma! That’s scary. Also I was scared when I was first diagnosed.

    • @helena7402
      @helena7402 3 ปีที่แล้ว +1

      @@showcasecity no they told me my pressure is normal, Idk what it’s called but the hole in the back of my eye is huge and is almost blocking off my eye veins path. plus my grandma and great grandma and more people in my family went blind from glaucoma. They told me to wait till next Summer and gave me no meds 💀 been crying all week

    • @jenniespinosa3186
      @jenniespinosa3186 2 ปีที่แล้ว +1

      I think I have this on my left eye and I keep crying I don’t want to lose my eye sight 🥺 my left eye sight is like kinda gone :(

  • @andrewharville5593
    @andrewharville5593 ปีที่แล้ว +1

    This is a pretty dang good example. I think Vaseline would be more accurate than the white out however. It’s a frustrating and strange disease. If I look at someone’s neck, they are headless. If I look at their mouth, they have no eyes. I constantly have to scan with my eyes to utilize what hasn’t been damaged. Which unfortunately isn’t much left.

    • @my3dviews
      @my3dviews ปีที่แล้ว +1

      Similar to me. Except if I look at their neck, I can still see their head, but their facial features disappear. So, like a face with no eyes or nose. But, that is only in my right eye. My left eye is still very good. So, when looking with both eyes, I still have fairly good vision.
      Just had my eyes lasered today for the second time, to help keep the pressure down.

  • @edxitxs_726
    @edxitxs_726 3 ปีที่แล้ว +2

    I had glaucome since iwas born and i still do i had soooo mamy operations and i have it on my left eye i use treatment but still glaucone is worse than some ppl think those who dont have it are lucky

  • @TheRealMuneer
    @TheRealMuneer 4 ปีที่แล้ว +16

    Glaucoma crushed me and shattered me, not fair at all.

    • @andrii-vladpopa3468
      @andrii-vladpopa3468 3 ปีที่แล้ว +1

      You just think it crushed you, if I may. I don`t remember who said that there comes a time when you have to be strong because this is all that`s left. it may have come for me, too. And, if I may, drowning problems in alcohol won`t help either, they come back the next day and dishes don`t wash themselves, you can still dance and do some light sport with glaucoma. You have to cut down on different things, but chocolate and alcohol can be reduced a lot. Nobody to dance with - well, if I were you I would buy a robot, don`t think I am joking. I`ve been to losses and face different problems - spinal neuropathy - under control since July 2018, thank God, glaucoma - moderate, but still under control, irritable bowel - physical activity has helped me a lot. The only real problem I faced was that, whenever I had an argument with a retard, I thought he was gonna punch me in my glasses - you know, especially if I had to jump to hit him hard, in the back or elseway, although I am 180 cm tall. You just have to respect some big rules and just compare with people who face problems - you are one of them. I am one of them. Sorry for my last formulation: I thought a more distant and cynical approach may help me and others, but it actually wouldn`t. I wish you good luck!

    • @semoneg2826
      @semoneg2826 2 ปีที่แล้ว +1

      Fight back with prayers

  • @muminabegum7466
    @muminabegum7466 ปีที่แล้ว

    I’m 27 and had to live with Glucoma since birth.
    I have to take eye drops regularly and have to attend my eye appointments every six months to a year depending on my eye pressure.
    I can see colours and the difference between light and dark.

    • @davidlo168888
      @davidlo168888 ปีที่แล้ว

      th-cam.com/video/iswRngmN-cY/w-d-xo.html

  • @notnyah104
    @notnyah104 2 ปีที่แล้ว +3

    Both of my parents have traces of glaucoma in there families. My mom has it too. I’m starting to get tunnel vision and migraines. I’m really scared that I’m getting it. My vision is already terrible.

    • @ReverseEdits8
      @ReverseEdits8 2 ปีที่แล้ว

      I’m sorry. I hope everything works out for you.

    • @semoneg2826
      @semoneg2826 2 ปีที่แล้ว

      Pray

    • @davidlo168888
      @davidlo168888 ปีที่แล้ว

      th-cam.com/video/iswRngmN-cY/w-d-xo.html

  • @thrshwll1526
    @thrshwll1526 2 ปีที่แล้ว +1

    I'm a glaucoma suspect. Nothing is wrong other than my optic cup is thin. My Dr told me people have a donut shaped nerve in the back of our eyes. My nerve's hole is abnormally big. They don't know if I was born this way or if it just gradually got damaged. That's why I'm a suspect. My pressure is normal as are all other parts of my eyes. I see the specialist every 3 months. Go back in January. Is there anything I can do to help repair my optic nerve(eat healthy, exercise)? Anything I can do unknowingly to make it worse? Don't want to do that.

  • @yindyamarra
    @yindyamarra 2 ปีที่แล้ว

    Both my parent had it, I’ve been diagnosed with 50% loss and 25% loss in my eyes , I’ve been try to get someone to tell me what was wrong with my eyes,

  • @mesmerthegreat1191
    @mesmerthegreat1191 6 ปีที่แล้ว +4

    i have it when i was born and its a 1 out of 10000

  • @onepunchjoe1374
    @onepunchjoe1374 3 ปีที่แล้ว

    Idk if I have it I feel pressure in my eyes but don’t see these symptoms in scars!!!

  • @palo167mutale9
    @palo167mutale9 4 ปีที่แล้ว +7

    I have glaucoma worst thing ever

  • @allaboutglaucomajasmynpoli7681
    @allaboutglaucomajasmynpoli7681 6 ปีที่แล้ว +10

    I’m 23 an I have glaucoma

    • @Abdelrhman_Rayis
      @Abdelrhman_Rayis 6 ปีที่แล้ว +2

      All About Glaucoma Jasmyn Polite you are not alone

    • @olivia.anelise
      @olivia.anelise 6 ปีที่แล้ว +10

      I’ve had glaucoma since I was about 10 years old which caused me to be almost completely blind in my left eye. Often times I feel alone like no one my age understands me but reading this, is a reminder I’m not. 💜

    • @mesmerthegreat1191
      @mesmerthegreat1191 6 ปีที่แล้ว

      All About Glaucoma Jasmyn Polite i have it when i was born

    • @EL-rj4jl
      @EL-rj4jl 5 ปีที่แล้ว +2

      Be strong my friends. My brother was diagnosed a few years ago and I try to do everything I can to support him. The future looks bright for glaucoma studies and hopefully something new is found that can help even more.

    • @SaitamaTerra2
      @SaitamaTerra2 5 ปีที่แล้ว +2

      VIA LIV I feel really sorry for your vision issues, I thought for a moment I was having glaucoma and I was already crying in fear. But, thanks god 🙏🏻 it wasn’t glaucoma it’s more like ocular migraine which is a different eye problem. Hope you’re doing better, and hopefully in the future there’s a cure for glaucoma. Stay strong 💪 greetings from El Monte, CA 👋🏼

  • @stevebillones5987
    @stevebillones5987 3 ปีที่แล้ว

    I’m shook because I’m only l have sometimes l think 🤔 I’m not true daughter of mother because I’m the only one 3/11 I’m by right operation next week 3/18. Left l feel l die now

  • @LL-ip5mm
    @LL-ip5mm 7 ปีที่แล้ว +2

    my grandma has this

  • @randonett3038
    @randonett3038 6 ปีที่แล้ว +11

    I'm 13 and I have glaucoma

    • @Alexa-rt9fd
      @Alexa-rt9fd 4 ปีที่แล้ว +1

      Omg are you blind

    • @futurevoid4261
      @futurevoid4261 4 ปีที่แล้ว +2

      I had it from like 3 n also I have uvetis I'm 16 now n I'm blind in my left eye I can only see light

    • @itsmohdmustafa
      @itsmohdmustafa 4 ปีที่แล้ว +5

      @@Alexa-rt9fd could've been a little more polite but ok

    • @showcasecity
      @showcasecity 4 ปีที่แล้ว

      Randonett ! I'm 15 and have it :/

    • @semoneg2826
      @semoneg2826 2 ปีที่แล้ว +1

      @@Alexa-rt9fd Stop it...the child is not blind

  • @robertpullia9638
    @robertpullia9638 2 ปีที่แล้ว +1

    It is controllable if it were caught in early stage and as long as you put eye drops everyday. I didn’t get the point of this damn video.

    • @rayanrayan6648
      @rayanrayan6648 ปีที่แล้ว

      Not true I caught very on time on stage 0 by coincidence
      I used medication regularly
      But still it get worse

  • @Darkxy012
    @Darkxy012 4 ปีที่แล้ว +2

    I have glaucoma

  • @karenharris3183
    @karenharris3183 3 ปีที่แล้ว

    i do not see that way.