PharmaTech Webinar 1: Michael DePalma on data and privacy

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  • เผยแพร่เมื่อ 4 ส.ค. 2024
  • Michael DePalma, co-Founder of Hu-manity.co, The Human API, and Pocket Rehab talks on data and privacy in the pharma industry.
    00:11 Defining data ethics and privacy
    00:16 Data protection
    00:31 Data privacy
    00:41 Data ethics
    01:47 Data ethics as a framework
    02:06 Privacy by Design approach
    02:47 Seven steps of Privacy by Design
    05:49 How pandemics affect privacy solutions
    06:58 USA’s example
    07:32 Avenga’s case
    08:56 Worldwide trendings
    09:50 Ethics differences: data, algorithms, practices
    10:03 Data questions
    10:33 Algorithms
    11:11 Practices
    11:30 Data ownership: who owns the data
    11:40 Legal aspect of data ownership
    11:45 Practical aspect of data ownership
    12:32 Data on paper example
    13:08 Data as a new oil concept
    14:38 Data regulation in Europe and USA
    15:20 Test to determine who owns the data
    15:42 Example: test in action
    16:28 Should doctors and researchers have access to our data?
    16:33 Use case
    18:15 Transparent data ecosystem
    18:44 Should people be paid for their data?
    19:16 Data rights people have
    20:20 Individuals’ place in the value chain
    20:27 How to define the worth of data
    20:58 What data’s value depends on
    21:07 Example
    22:06 Healthcare data’s value
    23:04 Pharma industry’s data: ethical framework
    23:54 Industry’s trust issue in USA
    24:29 Leaders on trust
    24:58 COVID-19 interpretation
    25:38 Pharma and technologies
    26:40 Centralized systems showcased
    27:52 What makes data and technologies a weapon
    28:37 Transparent solutions
    28:52 Creating transparent relationships
    Explore Avenga: www.avenga.com/
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