Amie's Success Story: recovery from PPPD & 24/7 symptoms with OCD and generalized anxiety
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- เผยแพร่เมื่อ 25 พ.ค. 2024
- Amie was a member of my coaching group, sign up at thesteadycoach.com/services
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Meet charming Amie from Quebec. Amie had a spell of BPPV but did the maneuvers and just went on with her day, like the resourceful and driven women she is. Symptoms didn't go away, however; instead, they got worse. Soon she experienced 24/7 symptoms like vertigo, pain, nausea, headache, balance issues and more. It's hard to tell today from her bright and happy appearance, but she was depressed and downright miserable. When doctors, medicine and physiotherapy didn't work, she started looking elsewhere.
Learn about the hallmark inconsistencies in her symptoms, the benefit of exercise and how her history with OCD played a role. We also get to hear about how she worked with her thoughts and emotions in her recovery work. Today Amie is 90% recovered and easily handle the little symptoms occasionally appearing. Also, she's learned about the emotional connection to her symptoms and how to handle that.
Learn more about me on my website thesteadycoach.com
Book reference: Hope and Help for Your Nerves: www.amazon.com/Hope-Help-Your...
Please note that Yonit Arthur, The Steady Coach and any of our other guests are not acting as an audiologist nor offering audiology or medical services or advice on any public videos or on any other content. This channel provides wellness education and personal opinion only, and are not meant to be a substitute for medical or mental health instruction or intervention. Use any tools discussed at your own risk.
2:08 Introducing Amie
4:00 How symptoms started, vertigo/BPPV
7:08 Health anxiety, Dr visits and testing, physiotherapy
10:30 Getting worse: depression, pain, nausea, headache, trampoline walking
13:18 Inconsistencies in symptoms
14:30 OCD & connection to NCD, general anxiety disorder (GAD)
17:35 Amie's long list of symptoms, OCD is a blessing and a curse
22:38 Finding Yonit, beginning the journey
23:00 Up's and down's, panic and fear, helpful books
27:45 Shame and guilt, learning about protective parts
30:33 Moving out of the dips, comparing to others, acceptance
32:50 Triggers, stressful feelings
34:45 Amie's daily routine, not being an A+ student
38:10 The benefit of exercise, body confidence
42:33 Working through her thoughts, focus on present
47:20 Exercise: starting small and gaining confidence
49:25 What needed to change
58:33 What life is like now for Amie, emotional expression
1:03:38 Amie's advice for others - บันเทิง
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It’s been almost 2 years since dealing with this. With all the doctors appointments and just having my world turned upside down. I’ve been following you the last few weeks and I’ve been able to self diagnosed and been able to start my healing journey . I am very grateful for your channel! I would love to one day be able to do a success story too 🙌🏾😩
Don't do what I did and allow doctors to try modern medicine that just masks the symptoms...it doesn't work. It just delays the healing process. I'm finally at the point where I'm admitting to myself that this is pppd, that I am unlucky, that I don't have a tumor or something, that there aren't many doctors that understand how to recover from this, and that this channel is my best opportunity at a successful recovery.
@@chrisarksey yes I totally agree . I remember the first time I seen my neurologist, she wanted to put me on meds . I refused because I never took any medications and was afraid of the side effects. I’m a nurse so I know a lot of meds just mask the symptoms and not the real problem. I really wanted to get into the bottom of what’s going on and it’s been a long time coming . A few months ago I got very desperate and really thought about trying the meds but I’m so glad I didn’t. I’m starting my recovery and I can already see a different in just a few weeks.
I love seeing someone who has been through such a terrible thing, laughing and speaking about their experience with such a lightness from the other side of it. There’s no one “correct” way to recover, but it’s really encouraging to see Amie laughing and having a sense of humor about the experience. Thank you for sharing!
After watching this brave woman , I forced myself into the grocery store and put a feather in my cap for achieving a little more confidence after I checked out . Thank you 🙏
Congrats 🎉 I know how that feels
Merci depuis la France 🇫🇷 ❤
Another amazing success story. These videos are gold. Thanks for you guys being so brave to share your stories. It helps many people. My journey is just watching videos. Im a year in and my life is coming back. Amazing work. Thanks so much. Im gonna come out this with more dontrol of my life.
Also I liked she mentioned the shaking in her legs. I've struggled with that too also my hands.
someone at work said I was the "weak one" and that bothered me so much.
I'm not that, I wasn't like this before getting PPPD.
I like to think I'm a warrior too, thank you❤
You are a warrior! I too have Ben told I’m weak, either directly or indirectly.
They have NO IDEA what a warrior you are.
Merci Amie.
I'm across the border in Ontario and my symptoms started with bad vertigo after second COVID vaccine 2021.
After 2 years of suffering Ive went on prescription meds that have helped symptoms a bit for 2 years now.
I did all the physio without any help. I also got an MRI that didn't show anything. I started to get depressed for sure without the answers.
I've found this channel in the past and listened a bit in the past, I ended up going back into my busy life hoping for a miracle. I have spent 2 years not doing anything more to help myself thinking it will get better.
I went off the meds a week ago to refeel my full symptoms and thinking of how I'm going to go forward.
I'm 14min in now listening to this video and I'll continue with hopes I can find out what the next baby step is.
My 3 young kids need me to feel better.
Could I ask what medication you are using to control your symptoms?
I'm sorry you're experiencing this...I am also in Ontario. I have found Dr. Yo's channel incredibly helpful, I also did the free course which helped me so much. I'm not 100% but who is in anything ? :) I also watched Pain Free You videos regularly . I did some vestibular therapy which helped me but not as much as The Steady Coach. I took every small step as a win - being able to walk across a bridge, going into a grocery store, going in to a social event - yes, they scared me but I told myself - it's just the fear talking. I recently read a book called the Perfection Trap and it's very insightful about how hard we are on ourselves that we should have high standards but not impossible ones where we feel pressured by society and social media. I wish you all the best in your journey.
@@revaholic Nortriptyline. All together 2 weekends ago I stopped taking that, caffeine, carbonated drinks, no alcohol, no other substances...
Have had two migraines since... migraines definitely won't help the recovery process so I hope they aren't going to come back without the meds.
@@chrisarksey I get your decision and wish you all the best. I have only tried amitripyline but most medications make me feel out of it and so I’m not very keen to try SSRIs
@@revaholic I started with that one but it made me tired all day long, this one did not.
Thanks!!
Thank you Amie and Dr. Yo for sharing another great success story! Amie, your insight is such a strength! I completely relate to two things: 1) frustration is the main trigger for my symptoms, and 2) exercise is so important! I’m about 95% now. The only symptoms left are pulsating pressure in my head and the “trampoline” sensation when walking. I walk on the treadmill regularly and jump on my rebounder (mini-trampoline). The trampoline workouts have pushed me from about 85% to 95% recovered! Keep up the great work! ❤
I listen to these success stories because I find them incredibly helpful in dealing with other stress induced symptoms and chronic pain, not dizziness. We all respond and express ourselves differently and I’m very thankful to Aimee. I’d hate to think anyone was discouraged from sharing their success due to harsh comments.
Agreed 💯
I agree. I don’t have neural circuit dizziness, I do get dizzy but I know it’s a result of all my other symptoms, namely anxiety. It manifests in a multitude of ways. I can relate to this channel, as well as the long covid, cfs, chronic pain and anxiety communities as well as many other chronic illness communities. To be fair it overwhelms me as there’s no many different approaches and paths to healing and I get dogmatic about one there shift my focus it another, only adding to the stressors on my already sensitive system!
It can be felt easily that you are a very strong person. What you have experienced is terrible, but you had such great perseverance to come through it. Thanks for sharing your story; it resonated 100% with me. I wish you the best!!! Thanks again, Dr. Yo!
This made me cry. I’ve been dealing with dizziness/balance issues for 4 years. I was waste basketed PPPD, and I never really thought it was that as I had neck pain/stiffness and a load of other symptoms. I always circled back to the neck as the core source. Hearing her symptoms and story is crazy because it’s exactly what I’ve experienced, with little differences in symptoms here and there. I have OCD and high anxiety which def doesn’t make my issues any better. Like Amie tho, certain activities do not at all cause my symptoms. I’ve noticed when I’m most calm or happy I have zero symptoms, such as hiking, visiting a friend, or on a vacation. As she said, when I get frustrated or anxious even slightly (which is often lol) I noticed it triggers it.
For years I was told “I’m fine,” “I’m making it up in my head,” or “I don’t know what’s wrong with you.” So I gave up on drs. Vestibular PT helped me a little, but just distracting myself and working out helped a lot. The more I ignore the symptoms the less they become prevalent. I’d say I’m about 80% better, which is amazing because at one point I was bed ridden and could barely walk. I still have ups and downs, so it’s definitely a journey. I wish I would have seen your videos sooner. I just recently found you, which is crazy because I researched and researched for years before they told me I probably have PPPD. It’s nice to know I’m not alone or making my symptoms up!
John, you describe so many of the people here watching my channel to a T. It is NOT something you're making up, it is REAL, ANNNND your nervous system can be the responsible party.
I am just reading Hope and Help For Your Nerves and really, truly believe that feeling and accepting and controlling second fear is the magical equation for recovery. Thank you Amie for all your helpful thoughts and tips, and Dr.Yonit, what would we do without you? I am so grateful.
"controlling second fear"? typo?
I think working skillfully with 2nd fear is essential!!
Amazing story! She’s so strong I’ve been dealing with this for over 2 years and resonated with how she handled everything. ❤
I have been skateboarding twice a week at skate park hitting quarter pipes ect i finally fell 3 or 4 times yesterday for the first time in a months and sure enough my symptoms went up today. But im going to keep skating, im 40 years old and i dont care about the symptoms coming and going this is my life i will live it as i please.
YEAH!!
Ive been watching your contents for 5 days only and its help me a lot. I have been dizzy since 2018 w/ some other symptoms but i don’t want to open it here. I thought im the only one who has this condition, glad to watched your content wisdom hehek. Maybe soon I’ll be happy to have an interview by you when i got fully recovered. Thanks you a lot. Im from Philippines and there’s no any knowledge about this condition because if they have they will refer me to it hehek. God bless
Hi dr yo and thank you for another success story . The part that sticks out to me is keep moving as hard as that is sometimes , I’ve had this for 6 years , found you last year and you gave me hope and tools to live life . I have found it so true that exercising and taking walks and , living in an attitude of gratitude really really help . The fact is this is uncomfortable to say the least but the more I do things that bring me joy , the more I want to enjoy this life . Thank you again dr. Yo
Denise, this is so lovely to read and warmed my heart. Keep going.
Giving up control and accepting has helped me move on.
What an amazing woman, and to continue working through this. Such brilliant insight too
Thankyou Dr yo..
Im slowly recovering and understanding how to cope.
❤ From India
Wonderful to hear this! You can do it!
Many thanks and all makes sense ❤
woww! I also live in Quebec! It’s true that we have few resources here! I'm in Rimouski in eastern Quebec and it's true that we can feel alone due to the lack of help! for my part, 2 years of dizziness, the tests were done and all it’s normal but now I'm left to myself. but I'm really happy to have listened to Emie's story, I feel less alone! ❤
This was an amazing success story!!! Thank you, thank you both!!
This was great and very inspiring!!! Good job 😊
Amazing interview ❤
I agree!!!
I love the reminder to be kind to myself when dips bring on fear. ❤️
i would actually want to ask this ( my question before this one)for all interviews that you are still going to do. I think a lot of us are stuck because, whatever someone experiences, it feels like YOU are the exception. That what YOU feel, is totally different. Or, JUST a little bit different and than it feels like this is different. I know you always ask people about examples of the sensations they had. But, really, the more details about WHAT someone is feeling exactly would be so good to hear. I know we are all different. But i think, in us, there is always the voice that says...i am different. Or: " they did not mention this specific issues that i feel, so, this must be something else". Ofcourse there are so many symptoms you cannot name them all. But as many as you could, would help so much. For people in doubt.🙏
I love these videos. So glad she talked about the emotions. I notice that if I have a high symptom day my emotions are ok, but if I have a low symptom day, my emotions are high.
Haven't even watched it yet but I'm excited to have a fellow OCD girly represented here! 😭👌
YES!!! Lots of you out there. I am so, so glad she agreed to do this interview.
So glad you go into symptoms cause I swear I forget some and when they happen I totally freak out again … for instance feeling legs tired.
This girl’s body just screams “unresolved trauma” while she speaks 💔
Amie showed an INCREDIBLE amount of courage agreeing to share her story publicly and it was my honor to speak to her. She has other challenges, which she shared openly (OCD and GAD for starters), and her recovery does not end with symptom cessation.
Thank you Dr Yonet for removing negative triggering comments... We appreciate how much you take care of us. Like a mother hen over her chick's...
Hi Janice! This was only the 3rd time ever that I've had to remove a comment in the history of this channel. It's ok to disagree with me, and I value the opportunity to clarify or discuss my decisions. BUT I do NOT think it's ok for someone to use this comment section as a place to insult one of the brave people who are willing to put themselves out there for the purpose of helping other people who are suffering. That's just wrong. They can do that somewhere else if they need to.
Having PPPD for 7 years now it has really affected my nervous system. I have a feeling of internal tremor and pulsate all over especially when im adrenalised and often get palpitations. Have muscle twitches too and stiffness. These other symptoms bother me more than the actual dizziness
Hi doctor Yo. Thanks for all you have doing😊. Been diagnosed with labyrinthitis 4 weeks ago. I am a bit better now and partly Thanks to your videos. I have seen many of your success stories have had MRI scans. However none of the ENT specialists I saw (3 of them) advised me to have any diagnostic imaging. Do you think it is necessary or a good idea to have this done?
Thanks again 😊
Hi there, so glad to hear you're improving! That's great news. When people have labyrinthitis, they don't usually need imaging. Labyrinthitis explains symptoms so further testing is not necessary.
Thank you 😊
Congratulations on your recovery Amy. So tell us. Which was tougher, your recovery journey or surviving Yo's interview? :)
hey dr yonit...i have a question .can pilates be considered as a sort of strength training??which could enable us to heal better??
I almost clicked off this video because I was jealous her journey to healing was so much shorter than mine. But I’m glad I didn’t. I learned a lot. Thank you so much.
Thanks so much!
Hi dr Yo, I finished steady course, and I'm trying to do everything you say, but since I started to move and not to be afraid anymore, my symptoms have changed like i still have dizzines but now I have it even when I lie down with my eyes close and also I have tilting, please it give me hope is this common?
ps: i did a lot of medical check which came out good
7 months in
It was normal for me! I know a lot of people experience the same.
This will help reassure you too! th-cam.com/video/cEhBCoxDk7g/w-d-xo.html
I’ve had chronic dizziness for almost 3 years. It has gotten sooo much better but this morning I woke up and the world was spinning. Would you advise the Epley? Or should I just leave it alone? Thanks Dr Yo!
Hi I had a concussion end of 2022 on top.of some family trauma for the.2.years prir to that. Still have dizzyness . Had vestibular therapy which made some difference but didn't get rid of it entirely. Then had vestibular workup which showed I have bilateral hypofunction. My.practotioner says more vestibular therapy won't help and to focus on working with psychotherapist to deal with inner stuff. Another practitioner says I need more specific vestibular therapy to deal with bilateral hypofunction. Would you have any guidance for this??
@TheSteadyCoach
Hi, Dr. Yo. I’m still at a stage where some days it’s easy to treat all of my wide range of symptoms as stemming from VM and PPPD, other days I’m the doubt is very heavy. Often times my loudest symptom is a very clenched and cramped body, where I feel that I’m going to have a seizure at any moment, or my body is just going to give in and collapse. A friend of mine, who is a physical therapist for post stroke and concussion victims mentioned to me that all of my symptoms sound like Functional Neurology Disorder. I read a bit about it, and it really reactivated the fear of having more than PPPD and VM. Do you know much about FND, and if so, do you recommend to continue to treat it the same as the other diagnosis that you specialize in?
I have similar symptoms 😩
Me ha encantado la parte del ejercicio físico,hace unas semanas he tenido una recaida,tengo mas miedo a la reacción de mi cerebro a los síntomas,que a los síntomas en sí,por eso decidí retar al miedo y a los síntomas y por primera vez en mi vida y a mis 54 años he comenzado hacer deporte, natación.
¡Felicidades! ¡Eso requiere mucho coraje! Sigue adelante.
Do you have any recovery stores for people who are in their early 20's.
Austin, Megan and Carla were all in their early 20s when this started. Ben's story is also worth a listen- I think his started when he was in his early 20s too. th-cam.com/play/PLFf7T0374CmC4e-krn3BzPvtd3ZwXcabj.html
Dear Dr Yonit. Learned so much from your Channel. On some levels i made so much progress. But, the visual stuff is still not as it should be😏 Mostly struggle with delayed vision. See it at normal speed but, feel it in my brain a microsecond later? It makes me feel so "off" and off balance 24 hours a day still.
I really really wish you would ask a little more about visual details in your succes story interviews. Everybody says i have visual trouble...but i would love to really hear people telling about WHAT exactly do they feel/ see/ experience. I am sure it would give me more reassurance that, what i still feel is not that weird😅 i start to have a bit more doubt if this what i feel with my eyes is still "normal" ....🙏
Dr. Yo, would you say using a weighted vest for walking is a good idea for working on stabilizing muscles and balance in recovery?
I love loaded carries, but I particularly like loaded carries that make you less stable. I'd consider suitcase carries (one weight in one arm), or farmers carries (one weight in each arm), or offset farmers carries (different weights in each arm).
@@TheSteadyCoach Awesome! Thank you for your response! I'm going to incorporate the farmer carries.
I have seen most of your recovery stories and maybe all had mentioned this same thing from 28:50 - 29:20 about the part wants to help/protect me. Every time I listen to that I become teary eyed and feeling like crying. I don't know why this happens. Could you share some light and help me understand why and is there something I need to do? Thanks for doing these videos
During the lockdowns, I was feeling so angry, isolated, etc. I hated what was happening. I also turned 50 in 2020, and lost my cat and mom in July of 2019. I woke up one morning and the roomed spinner uncontrollably. I saw my doctor and an ENT specialist who diagnosed me with bbpv, vestibular neuritis, in both ears, and cervicogenic dizziness. I’ve been seeing a physiotherapist but still feel symptomatic. This depresses me as I don’t see me getting better?
I get dizzy every morning between approximately 8 AM and 11 AM. It just started happening again about a week ago and it’s daily like clockwork. I dealt with this for for a long time and then it seemed to resolve itself for about six months and now it just came back
I’ve had my heart checked. I’ve had my circulation checked. I’ve looked extensively for any physiological issue and they can’t find anything. But it’s extremely uncomfortable and it’s scary.
Do you have any ideas or thoughts about what this may be?
I've seen this, and I'd urge you to look at your routine and see if there is some learned association between what you're doing at those times and something that can be interpreted by your brain as stressful or dangerous. I saw this once in a client who was having breakfast with his wife at that time. He had some longstanding resentment that he was dealing with and had been suppressing. I have also seen people just have symptoms at that time and start to fear them and expect them, which keeps them going.
hello I am French unfortunately I do not speak English or understand it but we are lucky to have translators I have great hope I have had these symptoms of pppd for 5 years now I am only 35 years old and I am experiencing real nightmares I would like to participate in the course or have advice translated with you or someone in French I sincerely need you with all my heart how can I do? Thanks a lot
Le cours peut être traduit facilement en français car une grande partie est au format texte. Installez simplement le plugin Google Translate sur votre navigateur. Il n’y a malheureusement pas beaucoup de ressources en français. Je travaille pour changer cela.
@moun707 je suis française, j’ai egalement des symptômes depuis 1 an maintenant! Les vidéos de Dr Yo m’ont vraiment aidé à aller mieux. Je te conseilles aussi son cours gratuit, je l’avait traduit grâce à une extension de traduction sur mon navigateur.
Je suis sur la voie de la guérison,
Je dirais que suis à 80% et je vis ma vie (presque) normalement maintenant! Je suis sûre qu’avec le bon support, tu vas aller mieux toi aussi :)
Je suis française aussi et j’utilise la traduction automatique ❤ si tu souhaites échanger n’hésites pas !