The #1 Best Way to Increase Activity with cfs
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- เผยแพร่เมื่อ 25 พ.ค. 2022
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In this video, I talk about how to increase activity the RIGHT way in order to recover from cfs or chronic fatigue syndrome. I go over the progress cycles and how to execute them correctly so that you can avoid crashing. I also mention how important it is to have support while going through this process.
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.
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This makes a lot of sense to me. I have started to look at symptoms as my nervous system recalibrating. Now that I understand and accept that I cannot heal without symptoms my fear of them is subsiding. I just have to retrain my brain. This is so empowering. Thanks Miguel. This is the best advice out there.
You got it! That’s how it’s done 👊🏼
Thank you Miguel. Excellent excellent advice ...
Same here. Just like switch was flip and I lost my health, now it’s like a switch was flipped and I can feel myself healing. For the first time in three years I am calm about my symptoms. Actually since I started thinking differently a lot of tension has left my body and I have not had any major symptoms other than a few of the minor ones and my fatigue of course. It’s crazy and I’m so grateful.
How's the success with that
How are you doing now?:))
Incredible break down. You are really helping taking the fear out of this whole process. Crazy how you had to go through this dark time and come out of it so you could help others. You are doing God's work! Thank you Miguel!!
Thank you for your kind words! 🌟 It's my mission to provide support and guidance to those on their recovery journey. I appreciate your appreciation! Keep moving forward with courage and hope. 😊🙏
Absolutely brilliant
Miguel, this is healing in a nutshell. My eyes were opened while watching this! I have spent years trying to fix each symptom, and not succeded fixing any of them! Over the last month I have been brain retraining, which was so needed. Consentrating on my nervous system instead of chasing my tail trying to fix my symptoms is so much easier!! thank you!!
That's the way it's done! Glad you were putting this into practice, that is the key. We have to treat it as one main problem versus 20 separate problems. Once we can wrap our heads around that that recovery become so much easier, keep up the great work!🔥
It has been 8 months since your comment, how has your condition changed since you changed your approach?
@@TH-camTV-oq2wh I am getting better. It is slow as I have 3 children at home, so there isn't one day the same .So I can't slowly upgrade movement. etc. I also am recovering from FND and approaching it the same way. It is working!
@karen what kind of brain retraining have you been doing?
@@B3l0v3d05 Telling myself it is just the nervous system, meditating so my body knows I am safe.
The nervous system is amazing. It’s very awesome of you to be sharing your personal healing practices with others. If everyone helped each other out this world would be so much better.
I couldn't agree more and it's been my passion to help people who's been confused with what they're feeling. The body is truly amazing and mysterious! 🙌
This guy understands what he's actually talking about.
Thank you! I have a deep understanding of what I'm discussing, and it's great that my insights are helpful to you. 🙌😊
💯%!!
So true, there are recovery stories where people had intense symptoms but fully surrendered and then symptoms just vanished .
You're right! 👍
Ive been taught pacing rather than pushing
Thank you thank you. You're the only person I've found who has actually explained what's happening to me. After 16 years now, I finally have the tools to make a full recovery. It's a real challenge to stop my body producing the cortisol though, even in happy circumstances. It's a work in progress. Thank you ❤
That's wonderful news, so happy for you! This video is so insightful to me.
You are so welcome and I'm truly happy for you! 🙌❤️
How are you doing now?:))
God bless you for helping us with this nightmare of an illness 🙏
I'm so happy to help others get better! You're most welcome
How are you doing now?
Very true, I started listening to meditation music everyday for 20 minutes, sometimes longer if I have the time. I noticed higher energy levels.
It does make a difference even if it’s a small difference!
Excellent explanation and summary. Thank you very much.
Your videos make me feel so seen and heard. Thank you and bless ur soul
Wow, thank you. I'm so glad 🙂❤️
Excellent information! Thank you SO MUCH!!!
You are so welcome!
SUCH a great explanation! Thank you
Glad it was helpful!
Thank you so much for this and all your content, it helps a lot 🔥🙌
My pleasure! Happy all is this content can help!
Thank you Miguel, great stuff❤
Glad you like it!
Great video Miguel, thank you 🙏
Glad you liked it! 🙌
Very helpful instruction. Thank you!
Glad it was helpful! 🙌
Thank you so much for this. Now I am responding much better to the symptoms.
Awesome, so glad to hear that!
Thank you and to your Dr. Im feeling better and able to do more most days after watching your videos.
You are so welcome! It always make me happy to hear just one positive impact my videos have had. Keep up the positivity Donna, you've got this!
So good, TY for sharing this stuff
My pleasure!
This is so helpful Miguel. Thank you ❤
You're so welcome! Glad it was helpful 😊❤️
Thank you, Miguel. Your videos and your book are so helpful.
Happy to hear that!
REALLY appreciated that…it emphasized to me the importance of our reactions to symptoms and how they can affect our progress! Thank you!
You’re very welcome Linda!
Thank you for your videos. What I love about them is your emphasis on self help and the empowering of self through understanding and gentle acceptance. 🙏🏼❤️
You are so welcome!
This is my favorite video out of all the videos you've put out thus far. 👍
Wow, thanks! I feel like this is one I should have done a long time ago haha
Not sure how I missed this video but just wanted to say one of your best, thanks for such a clear explanation Miguel 👍
Glad it was helpful! 🙌🏻
The best CFS video I've seen,makes so much sense. I'm currently in an adjustment period so I'm going embrace it and enjoy the process.
Glad it helped! You will get there.
Thanks for this amazing video ;) !
My pleasure, thanks for watching and hope it helps!
Thank you Miguel! You are so right. I had a Relapse. Bevor that I was by 80 %. Now I am on a good way.
Wonderful! I'm so glad to hear you still are determined to make it through. You got this!
Very well explained, thank you❣️👏👏👏🤗
You’re welcome 😊
This is so helpful!!!
I'm so glad you think so ❤️😊
Really helpful video Miguel thanks! i have been much better for 9 months after 4 years of cfs, almost living ‘normally’ again, recently easing back into gentle exercise but yesterday woke up with mild symptoms and after so long without them could feel myself starting to panic so this has really helped me remember the importance of the right mindset x thank you x
You're very welcome! 😊❤️
Very interesting, thank you!
Glad you enjoyed it!
really helpful video as always. i’ve started to see symptoms as an opportunity to redirect my nervous system away from illness and this change wouldn’t have happened without your content
Amazing! That is exactly if you want to see the symptoms as, opportunities.
Great video❤ 🙏🏽
Thank you 🙌 I'm glad you enjoyed it ❤️
This makes a lot of sense...I'm following this page asap
Glad it resonated with you. Awesome 🙌
This channel has made such a big difference to what I've been going through this last year and I do feel that I'm on the right path now thank you
I'm really glad to hear that this channel has been a positive influence on your journey. Keep moving forward, and you've got this! 💪😊👍
How are you doing now?:))
Awesome. Thanks Miguel. As I understand you we still honour and 'allow' the symptoms as calmly as possible to let them burn out. OK! Nice
Exactly! Respond differently to the flare ups.
After consuming some of your info here on TH-cam, i have just taken up juggling once again. I'm still a bit rusty at the juggling for now, however i noted that just by attempting to do it again, straight away it has helped
That's really good to know 😊
Even if I wholeheartedly disagree with this (thankfully) out dated theory that symptoms of me/cfs are psycho- somatic (which has caused a tremendous amount of suffering) your video has still been helpful in other aspects and I’ll certainly will apply them. Thank you!
I appreciate your perspective! I'm glad you found some helpful aspects in the video despite the disagreement. Here's to embracing what works for you! 😊
What is the reason for CFS symptoms?
What is the reason for CFS symptoms?
What is the reason for CFS symptoms?
@cfsrecovery yes. The cause of my fatigue was/is purely somatic and a somatic approach helped me 10 years ago and will help me this time again.
I'm not tired because I worry about my symptoms.
10 years ago I was so angry at all the doctors who told me I couldn't sleep because I was depressed. Noooo..... I was depressed because I couldn't sleep. Ppffff...... Thanks to a good physical therapist I got better with HRV training. I will use this technique this time again.
Yes! This is it, im on my way to recovery.
Yes you are! Don't listen to people that say it doesn't work IT DOES
👊👊👊
How are you doing now?:))
How are you doing now?
Amazing Thank you so much this makes so much sense and helps a lot!
You're so welcome! Glad it was helpful ❤️
I love the 528hz frequency when I'm feeling a bit out of sorts!
Sorry posted this under wrong comment 😅
Can't wait for this one
💯💯
Me too!
You helped me thank you sir ❤
Glad to hear that. You are most welcome ❤️
This video is great. Very much appreciated. I believe I've had this for about 14 months. I seem to crash at random moments and automatically need sleep, and then for two to three days after I am exhausted. I tried to go back to the gym twice over the past 6 months, and I was utterly exhausted for a number of days after, gradually improving over the following weeks. It certainly impacted on my energy levels, as I seem to function at around 60% every day. Anyway, thank you again!
Glad you liked it. Cheering for you!
How are you doing now?:))
You could try swimming, if it's the movement you miss. I'm able to swim breast stroke once a week for a couple hours, after my daughters swim lesson, and its been great for me. The only exercise that isn't too much for me yet. I can sometimes do walking on the streets too.
I needed this today. Dealing with long covid. The nervous system is so sensitive. These are great tools for me to practice to manage symptoms and respond instead of reacting, which makes it worse. I have always been a reactor. I want to learn to respond properly. This may be a long process with long covid, so being patient and kind to myself and not reacting with help keep me calm. It's not easy. I get frustrated but worth not exacerbating the symptoms. Thank you! ❤️🩹
You've got the right mindset! Being patient and kind to yourself is key in the process of managing your symptoms and healing. It might take time, but you're making progress, and that's something to be proud of. Keep up the good work! ❤️🩹😊
Thank you ❤️🩹
Amazing!!!!
Thanks!! 🙌
Thank you soooo much…❤️🙏❤️🙏❤️🙏❤️
You are so welcome 🙌🙌🙌
Great video very clear explanation but I believe that in most cases of chronic fatigue, healing may take more than a couple of weeks so nobody should expect full recovery in 2-3 weeks or even months in many cases depending on those responses. Wishing all of you power and strength 👍
Thanks 🙂
Thanks man! This was really interesting. In a way I was doing this already. I am trying to walk once every other day (around 100m) and that works fine! Though Sometimes I need a 2 day adjustment period but not a crash anymore luckily.
But very interesting insight to know that you actually need the symptoms to happen to get better.
Awesome! You are definitely right track, keep it up😀
How you now?
@@frogsandrobbers hi! I was on the right track for a moment considered myself like 60% of my normal self but unfortunately got too excited so I am building my capacity again. Key is to learn the signals that you need to slow down soon rather then later :)
Just found you. I have fnd, but fatigue is a bit part of it, so this is very helpful thank you :)
I'm glad you found this helpful! Feel free to explore more content, and if you have any questions or need further information, don't hesitate to ask. 😊👍
So nice! been following you for a few months now and no one ever explained it to me as clearly and transparently as you did! Makes so much sense and I'm starting to put it into practice and starting to see results! Thank you!!
I’m glad it made sense! Put these principles interpractice you’ll start seeing progress
I totally agree with the crash thing you said
💯
I am Okay! 😊❤
Thanks Miguel for the important information! Since my major crash for a few month, I was scared to increase my activity. Since Im watching your videos, Im getting more knowlege and with more knowlege comes more confidence. Im not scared if Im getting symptoms like now I have headachs since a few days because I did a little to much. Before like you said I would have panick attacks and beeing fearful as f.......
How are you doing now?
@@tanyawieczorek6603 still not good, but getting better. Not so bad like it was one year ago.
@@germanside7890 what specifically has helped you?
@@tanyawieczorek6603 i guess staying calm, slowly increasing activity, mindfullness, a positiv mindset, beliving to get better, time, watching recovery stories on Raelen Agle TH-cam channel. Beeing in nature, not pushing to much through. Laughing, having fun even with little things. I that my Information will help a little bit. For how long are you in now? If you have any question, you can ask😊
Thank you❤
You're welcome 😊
Miguel, During the time of doing more to get symptoms on purpose. Do you do that in one day? and see how I feel the next day? or is the pushig a little more onlyu for a specific time (like hours ) and see how I feel? Also It seems really hard to measure how much to do unless its like a timed/ measured exercise activity. How do you measure doing things shopping or errends? thanks so much.!
You are amazing, after one year , no Dr knows what’s wrong with me .
Thank you.
Glad this helped make sense of things!
How are you doing now?:))
Thanks! Your 👍 great. I just miss a big part of my puzzle here. I have never been very afraid of my symptoms, but I'm in fight flight or freeze all the time because orlf other triggers and fears. I have an over active mind because of other fear issues than symptoms. I did 2 other programs before, but because they always focused on symptoms, I never recovered. That's something i wanted to add. Why people are in fight or flight or freeze all the time can be very diverse and not necessarily symptom related. 👍🙏
A lot of the symptoms you don't need to do anything, you just need to leave them be and they go away on their own!
Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself.
th-cam.com/video/Z5Bd6uM_oWE/w-d-xo.html
Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: th-cam.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
Yes, quite a number of us in the program are in fight or flight due to childhood trauma or PTSD. I find that the tools help with all our triggers whatever they are.
Thank a lot
You make my day.
B/c i get informasjon that i did not get from my doctor
Glad you find the information in here helpful in kickstarting your recovery journey - knowledge is power!
I cannot thank you enough your an Angel in Jean's I wish I had more courage day to day I'm struggling in the middle phase I'm stuck 🥰
Your kind words warm my "heart." 😇 Courage can be found in small steps each day. You can also check our programs and see if it's going to be a good fit: www.cfsrecovery.co/apply. Looking forward to connecting with you. You've got this! 🌟💪😊
How are you doing now?:))
Hi Miguel,
Really appreciate all your content and the effort you put in to helping other people.
I’ve been a little stuck in my CFS recovery and I just had a question.
I have recently began to become active again and I’m not to sure whether I’m pushing myself too far. I wouldn’t say I’m crashing but I get symptoms after I go for my run and feel extremely worn out but I don’t crash. I respond to the symptoms well and they die down but don’t go away? Should I keep repeating this cycle or am I doing myself more harm than good?
Hi Lachlan, glad to hear you're able to actually go for runs! That means you're well along on your recovery journey. This video will help you understand the symptoms better. I would say continue doing what you're doing just make sure you're giving your body enough time to recover and you're actually feeling better month over month. th-cam.com/video/OVQjNqEAKl8/w-d-xo.html
Yes, this is a great method for the autonomic nervous system. But chronic fatigue syndrome also includes immune system malfunctions, confirmed by immunity tests. It's doubtful that this method will help everyone, but thanks for trying - getting the nervous system in order hasn't hurt anyone yet.
You make a valid pointt! CFS is a complex condition that involves various systems in the body, including the autonomic nervous system and the immune system. While addressing the autonomic nervous system can be helpful for many people with CFS, it may not be a complete solution for everyone, especially when immune system malfunctions are involved.
It's essential to approach CFS with a holistic and individualized approach, taking into account the unique symptoms and needs of each person. Techniques like regulating the autonomic nervous system can still be valuable as part of a comprehensive treatment plan. Ultimately, finding what works best for each individual is crucial, and I'm here to offer support and information to anyone seeking to improve their well-being. This is the kind of individualized coaching we do with our CFS Recovery Jumpstart!
Miguel, your work helps so much people and you know you change lifes. Question: when the symptons arrive after an action should we always listen to the body and rest (healing zone) like supercompensation in the gym as you mention? Even when it takes days? And then choose to do something again (probably your symptons will be less the following times right)? Main question: when symptons arrive always still listen to the body?? Love from Holland
Thank you. You're exactly right, those are adjustment periods. Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself.
th-cam.com/video/Z5Bd6uM_oWE/w-d-xo.html
Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: th-cam.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
@cfsrecovery thank you so much it was very helpful. Did you have to work on limiting mental blocks ? Like visualising being better and well etc? Or did you just rest and stay calm when you've pushed nervous system and then slowly progress more physically
Amazing. Thank you. Brilliant. So how do you know when you're pushing too hard too fast or if it's an acceptable adjustment period to calmly ride out?
Good question! Please check this link. I hope it helps!
th-cam.com/video/rbUqx30eVFw/w-d-xo.htmlsi=hvtFrZrFlWiOhPzY
Hi Miguel,
Another great video - thanks.
An off-topic question... did you experience low libido, and did that reset as you recovered?
Thanks,
Alex
Hi Alex, great question. Libido was definitely a lot lower and that did reset as I recovered
So I need to feel the PEM to get better, just don't overdo it? Won't I get better without it? What symptoms should I experience after activation? Last time, for example, I had a slight crash, but I didn't panic and afterwards I was much better than before, after just a few hours. However, all I could do during this time was lie down. Is this enough for a lot of people, or is this just the best? Of course, if I had pushed myself harder, it would have been a super crash.
Can you also do a slow walk, just notice a little bit of fatigue and have good improvements? I had trembling and cold/hot attacks after a too intense walk.
Yes I’d walk but just enough to where your shaking isn’t too too intense afterwards. The key is to have a mild flare up that you can stay calm during. Not intense ones.
Hey Miguel Thankyou for inspiring so many of us … can you let me know how did you get rid of headaches it’s the major symptom I have and I noticed when there is no headache I have no pain in body at all . Can you put your thoughts on this
You're so welcome! Please check this link. I hope it helps! th-cam.com/video/d-2rjexYuyI/w-d-xo.htmlsi=jjqOuHYsfDceGizs
Hi Miguel. This is such an encouraging video. Thank you. What video could you point me to that would give me a step by step formula for what's next? If I stop fearing the symptoms what is next? Decrease the stimulus? Do self talk while in the symptoms? Seems to me that this video would be the mindset part of the equation. What are the steps afterwards?
Thank you so much! Please check this video out: th-cam.com/video/0a5jCFGVPck/w-d-xo.htmlsi=G_ZYDP7gd3orgl6h
Everytime, I feel more symptoms, So a harder adjustment period I will cry . Crying relaxes me. Is that wrong.?
So let it out that it feels hard and so.
Crying helps with the process when I was do healing work. It releases trauma from body
I'm never in this "wired" state it's more like no full relaxation and I only have mild "crashes". I wouldn't even say crash just a few symptoms, but I'm definitely not able to work 8h a day. I also have gluten intolerance and I'm in an acute withdrawal from it.
I’m glad you’re not in that wired state, it’s brutal. In the near future you’ll be able to have gluten again (I had to avoid all bread / pasta for years). Glad I can enjoy pizza and burgers now lol, your time will come!
Great video on symptoms, APs, fear but not much on increasing activity. Was there a Part 2 to this video?
Have a look at these videos to get a better understanding on how you can increase activity:
th-cam.com/video/I6HE8WtI2Z4/w-d-xo.html&pp=iAQB
what does "handling the symptoms properly" consist of ?
Please watch this and hopefully, it helps: th-cam.com/video/k_mljnKn8O4/w-d-xo.htmlsi=3kwF-931hpbc1aqs
@@cfsrecovery You have so much content, it's so hard to sift through 😅, thanks!
I'm in the nerve stage, it is horrible. Mad anxiety.
For how long now?
It's mind boggling!! Can you please tell me one thing. Was your digestive system impacted in any way?
Absolutely it was! I actually filmed a video about this - th-cam.com/video/EZdNJ4sZvJY/w-d-xo.html
Mine was too 😢
Hi Miguel,
Q, If you have tested positive and in treatment for something (in my case mould) is it too early to start your program? Thanks
Hi Alexia, great question. I would do that treatment first before applying for this program! Once you do the treatment protocol, if you still have symptoms then I would suggest applying :) . We do help people were dealing with mould and MCS.
Hi. New to you. Thanks for the video. Just wondering, Miguel, are your approach basically like NLP/ lightning process/ CBT?
The process is very similar! I think the biggest difference is the education factor, we really try to get people to understand exactly without a shadow of a doubt what is happening to their body, why they feel the symptoms, why the flareups come, and exactly how to get out of this mess.
Hi Miguel 🙌🦄 thank you so much for this super helpful video !!!
I have a question about the adjustment periods-the idea of this is pretty new to me and seeing symptoms as almost a good thing to get to the next level is a revelation 🙏🤣 i had been in the catrosphizing camp for a long time.
Anyway, recently coming accross this info, i think I've been in a adjustment one for a couple weeks,I'm hoping its that and not a crash, its kinda hard to know tbh but ive really been working hard on my mindset this whole time so hopefully its different this time 🙃
I think maybe I'm coming out of it now.. I've been housebound for over a year and have been working hard on mindset and started to increase screen time, doing tiny drives in my car and walking a 2-4 house lengths down my street some days, that kinda thing, verry gradually iver a few months.
But I think I've been in a adjustment period for past 2 weeks but seem to be leveling out more now and comingback to baseline, with every second day or so still having more of a flare. My question is on the days where I feel like Im at base line and could/would enjoy walking a couple house lengths or going for a little drive, SHOULD I? Or do I need to stay completely housebound wait/expect to level out more first ?
(I know it was so good for my mental and emotional health to do those tiny things so it's like if I feel like it's within my capacity it might actually help my mindset, but then I don't want to push to soon 🤣🤷♀️)
Sorry for such a Ling message, any suggestions extremely appreciated 🙏 🙂 thank you ❤️
Hi Megan, to answer your question, I would have to ask you a question in return. And it's the exact concept I break down in the video.
Can you handle the symptoms if you were to do those activities? Only you can answer that. If you can't handle the anxiety that comes with the symptoms when you expand activity, don't expand that much.
There were so many times on my recovery journey after I met my doctor when my symptoms were flareup like crazy, physically my body was going haywire, but mentally I was strong and I knew that I wasn't going to die. It all comes down to how much you can handle mentally when it comes to the anxiety. The moment you start to panic or freak out about symptoms, that's when you spiral
@@cfsrecovery thank you so much for your reply !!
@@meganobrien1019 You’re very welcome!
@@cfsrecovery hi Miguel - same kind of question, except: if I go do anything it’s usually after the event I get more symptoms, when back and resting.. seem to be stuck in a loop? Should I be going out and not worrying if I get symptoms while out? To expand time out/retrain nervous system. I’ve still to find my baseline (always have symptoms - some of which like blurred vision and pain, are not going away even when others are lower, so I just try to accept them - although the world looks weird/scary). So my question really is ‘are symptoms while out and about ok, as long as I don’t freak out’? I seem to be stuck between bed rest and sporadic trips out in my car to do v brief things.., then a rebound flare up. I don’t know if these are all adjustments or if I’m push/crashing and I should keep doing things as long as not actually crashed but have symptoms? I’ve applied for the programme, I’d appreciate some help getting out of the minimal loop I seem to be in pls. I apply your principals, just stuck 🤷🏼♂️
Also - are adjustments things that expand too? Or are they always close to a crash in exhaustion/flare ups? So as time goes on do adjustments become more functional but reduced vs the activity that triggered them? Thanks
Thanks a lot Miguel. It's helpful. So what do you say to yourself when you have symptoms : that's great, I'm happy you are here? And then you just rest? Thanks a lot
Yes, we want to stay positive in these situations "this is great, this is exciting, the body is rebuilding itself, we are safe, it is okay".
@@cfsrecovery didn’t you push yourself too far then? Don’t you want to stop before you get symptoms?
What about if you actually have been diagnosed with adrenal fatigue? I’m in stage 3 so flat cortisol throughout the day - I know it’s an iffy diagnosis but still don’t have enough cortisol - before it was way too much.
How long have you been experiencing this?
Hi Miguel,
Does that mean that the only difference between adjustment and crash is in our mind? Meaning it all depends on the way we think about it and how we handle it?
Hi Cynthia, here's a detailed answer to your question - th-cam.com/video/Dhjm6_lknNM/w-d-xo.html
So do you maintain activity levels when you have symptoms or do you back off? How does this approach differ to graded exercise therapy?
Have a look at these videos:
th-cam.com/video/I6HE8WtI2Z4/w-d-xo.html&pp=iAQB
You mentioned a video about sleep, could you link to it please? I cannot find..
Here it is: th-cam.com/video/IP1r3urYgoc/w-d-xo.htmlsi=dZeGshSls9I9Rs3Q
I understand a lot of this, however I have also leaned to believe in not suppressing emotions. I get frustrated and very sad, especially when I’ve pushed achieved, which I always recognise, and then pay, it does frighten me because I always face stimuli but it wipes me in many ways more, mostly from next day. I need to feel that otherwise it eats me and needs to come out.
Please check these links. I hope they help!
th-cam.com/video/9B8UkfP_ZgY/w-d-xo.htmlsi=1qVfQoAqa1KYiJEx
th-cam.com/video/q8JS3jOSUbM/w-d-xo.htmlsi=nz1fYU2MnuHiwXSA
I wondered or the reason why I watched the vid was how to actually increase activity. I am familiar with the explained concept. My take is probably to not run a marathon the next day but to go like maybe everyday or week one step further (than u think is possible) get some symptoms and react properly with reassurance?!
Well said 😊
Miguel if you are on an SSRI, how do you ignore symptoms not knowing if they are actually a side effect from the med ?
I treated it exactly the same since they were very similar to the typical cfs symptoms. When you flare up, pull back and still respond well to the symptoms. 👍
Hi ... Miguel ....first accept heartful thank s from my end....i am trying to change my mindset and i am trying to handle that massive flare ups whatever getting after activity, and also i am seriously trying to calm down myself, but still i couldn't able to stop that flare up symptoms 24/ 7 , don't know how to handle the symptoms and how to continue activity ....can u suggest me 😢....love from india
Hello from Canada! 🌍 Sending love and support your way. Taking it one step at a time, staying positive, and seeking guidance from professionals can make a difference. 💖 Keep striving for balance, and know that you're not alone on this journey. 🤗💪
Hey can you tell me what is actually happening... Sometimes my ear rings very much and i get emotional very easily and i also have many symptoms of hypersensitive nervous system what type of videos in your channels should i watch? And this video also helped me alottt
You are so welcome! A lot of the symptoms you don't need to do anything, you just need to leave them be and they go away on their own!
Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself.
th-cam.com/video/Z5Bd6uM_oWE/w-d-xo.html
Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: th-cam.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
So what do u do when u get more symptoms from the stimulus...do u go and rest ...do u lie down and wait til symptoms improve ?
You have to listen to your body. It's going to be different from one person to another. What are the things you struggle with most at the moment?
I was blind and now I see ❤
Awesome ❤️😊
Hey Miguel, great video! I understand the importance of not talking symptoms but when you refer to ‘buzzing’ as a symptom are you referring to internal vibrations. I have like a buzzing, electricity type feeling almost like bugs are crawling in my feet but I get it all over too along with general muscle spasms. If that’s what you’re referring to is that a common symptom, I assume you’ve heard of people with it hence why you mentioned it in this video.
Yes. It's a common symptom!
@@miamia2365 it’s crazy, I never hear anyone talk about it as a symptom when people describe what sensations they have it and always seems a weird one to most people. It’s also very difficult for people to imagine what it’s like without experiencing it themselves.
Yea I have had other symptoms that thought I was the only having. I can assure you that the brain can create any crazy symptom from bradycardia, air hunger, shortness of breath, pain, buzzing, internal shaking, chemical sensitivy to throat closing up .......
I have had my fair share of all these awesome symptoms 😅. When you realize that all this is coming from your nervous system it becomes easier to handle them. There will be time when the doubts will creep in but you will have to be stronger than that and remind yourself it's just my nervous system and as very very very uncomfortable they can be you need to remain calm and let the storm pass.
@@miamia2365 yes I agree completely. It was just that symptom that I thought was very rare as hadnt reallt heard any you tuber speak about it and I know it’s coming from my brain, and maybe adrenaline. the only person I’ve heard mention this symptom is a you tuber called Jaden Christopher and even though he doesn’t call his condition CFS it’s all the same thing in my opinion (your body trying to protect you). Thank you
Yes exactly! That’s exactly what I am referring to - it feels like you’re plugged into an electrical socket 24/7
But what if I don't panic or have any fear 🤔
During controlling my symptoms I have problem like burning in the stomach is it normal
That’s quite common, just make sure to get all other health issues ruled out!
The buzzing symptom ? Can you explain ?
Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself.
th-cam.com/video/Z5Bd6uM_oWE/w-d-xo.html
Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: th-cam.com/play/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa.html
Does anyone know of a book written specifically for relatives/friends of people with CFS? Something that explains how people have different levels of energy on different days, crashes and that this is real.... things like that.
Please check this video: th-cam.com/video/NkmKxxAn9ss/w-d-xo.htmlsi=YNO7XRbeg-HJahGf
Is this assuming that one of your major symptom is not severe inability to control your brain or think straight? If you can control the anxiety and panic, is that a must to move forward? If you cannot control the agitation and terror which just happens on it’s own… can you not move forward?
If you truly cannot control your brain or think straight then you need special medication to fix that. But at the same time, you do need to take ownership and admit that you do have some level of control over the agitation and terror. If you just straight up say that you can’t control it then you give yourself a 0% fighting chance
@@cfsrecovery Thank you. I know what you mean. You can always control your voluntary reaction. That’s what you’re implying I think? I definitely do this to my best ability.