Hi Maggie ! First of all may I just say how helpful your videos have been to me. I am a sixty year old woman & had to have an ileostomy nearly two years ago. I have had all sorts of problems ranging from skin issues to hernias & now gastroparesis. It has been a steep learning curve which has severely restricted my life. However, I find your videos truly inspirational & I always think if this young woman can do it, then so can I. We are never too old to learn & I thank you from the bottom of my heart. Wishing you & Zack all the very best. From Kit in York, England. XX
Have you tried an inhaler on your skin? I had some HORRIBLE skin issues to the point of weeping skin and breaking down. A wound nurse suggested an inhaler used for asthma...I sprayed it on my skin before putting on a new bag for a few weeks and it changed my skin dramatically! Like I had never had skin issues
Your videos are truly inspirational! I don’t even have an Ostomy, but I did have my colon removed on August 1st and was able to have an IRA connection. My reason was severe colonic inertia but I researched before my surgery so I would be prepared for a bag if needed. You are so positive and talk about real life truth. Before surgery, my husband asked if I was prepared if I had to have an ostomy and I told him about your videos and said yes, Maggie has prepared me. Anyway, I just want you to know that your videos reach so many people and they have been a blessing to me. I’m 47, had colonic inertia, don’t have an ostomy, but I still check for your videos often as they are so inspiring. I just wanted you to know that you are an awesome young lady and you are reaching people who may be very different from you and your situation, so keep it up (when you can)! You are amazing and I’m so happy I found your videos. Btw: Colon removal was not nearly as bad as I had convinced myself it would be. My 9 feet of colon was removed laparoscopically and I was home within 4 days. It’s no walk in the park, but for me, it really wasn’t terrible.
Your videos have been helping me tremendously! I've got a severe stricture 33mm up in my desending colon. Tomorrow at 6:30am I'll be going to get a lot of my colon removed and a loop illeostomy. I've also got thickening going on at my illeum and a mass in the center of my transverse colon. Long story short, I'm a mess lol. Thank you for your videos, all I did was cry when I first found out but I've come to accept things now. I'll be praying for you!
First, I suffered horribly from PMDD, and took Sarafem. Do some research on it before your appointment and ask about switching meds. Second, I went to the Cleveland clinic for some tests and my Calprotectin was 168.1, and my pancreas isn't working right either. The colonoscopy couldn't be done due to solids in my sigmoid colon, but the GI wasn't concerned. Nor was he concerned about the fact that the prep stopped working abruptly around 5 am that morning. My PCP has referred me to a local GI we found on the Crohn's coalition website. Hopefully I'll get some more answers next month after seeing her.
I'm sorry you are going this. I am suffering from endometriosis scar tissue after 25 years of dealing with it. I understand your emotional breakdowns as well! Take your time and care for your wellness emotionally and physically. Hugs
I just had surgery to remove my colon and rectum this last October. Before that, I had had a ‘temporary’ loop ilieostomy for five years. A similar thing happened to me where my doctor was unable to do the colonoscopy because of the permanent scarring starting in my rectum and traveling into my colon. I was a nervous fracking wreck the month leading up to my surgery (I’m talking multiple panic attacks every day). However, it went wonderfully and I don’t regret it for even a second. I’m even starting to forget what it was like to have urgency. It’s hella freeing not having a rectum, just being real. I don’t know how close you are to NYC, but I had my surgery done at Mt. Sinai and it was a wonderful experience. If you want the name of my surgeon (who I highly recommend), feel free to dm me. :) Best to you! Thank-you for always being so encouraging to us.
I had my loop ileostomy surgery in March and I just had my ileostomy reversal surgery on July 1st. I’m still really struggling with a few things with my J pouch. When does it get better? 😩
Kristyna Hernandez So, if I’m understanding this correctly, they were able to reconnect everything and you no longer have an ostomy? On that end, I have no experience. I dreamt of being able to get rid of my bag, but having to have my rectum removed took away that option. Bag lady for life! Lol Hang in there, though. It may sound cliche, but it will get better.
Yes they were able to reconnect everything and I don’t have my Ostomy anymore. Oh and that’s interesting to hear that you don’t have that option since I also had my rectum removed and was able to get reconnected. I know it’ll get better, after having my colon removed life has been so much easier without constant pain. But now I’m just dealing with other issues. It almost feels like a never ending cycle! But I’m trying to stay positive the best I can. Thank you for responding!
Thank you so much! I'm near Philly so not too far! I'm going to see how things go with the one my GI is referring me too, but maybe in contact if it doesnt go well :) thank you!!!
So good to have you back Maggie. I'm so sorry to hear your problems. You are so honest and open. Hopefully you can find something that will help you. Sending love from Dublin Ireland. 🇮🇪☘💚
My emergency surgery was 6/2/18... I never made an appointment after coming home. I've put it off because I had a very scary ordeal. Many issues including but not limited to sepsis, and an allergic reaction which caused a FULL body rash that felt like an unbearable sunburn. It even affected my nasal passage. Any way.. We thought it was redman syndrome from vancomycin (strong antibiotic) they had me on but taking it away didn't make it better (which should have been then case)... So I'm terrified of going through that again not to even mention the surgery. Also every single time I have output it feels like i need to go...umm from my rectum...but like you mentioned not being able to even fit a finger in there that's my issue as well but this gets pretty gross... I can feel something in there and it is VERY uncomfortable... I have emotional issues.. I became a single mom overnight and that very next morning i was in the hospital with my colostomy surgery. I'm TERRIFIED of finally seeing a surgeon. I know it sounds crazy because i should have been able to get this taken down 3-6 months after the 6-2-18 surgery...but I'm still an ostomate...honestly I feel like so much mote in control this way and I think that's why I'm ok with sticking with the ostomy. THANK you very much for sharing. Your videos really have helped me. Of course I've learned a bunch but you've helped so much especially for me to not feel so alone. Thank you so much for being your authentic self💞
Glad to see another video from you, hope you begin to feel better soon, you're having a time of it. I've got a few of the same issues you have just now so I feel you. It can be quite isolating when you have skin issues, flare ups, fistulas etc. Know you're not alone even though most of us are strangers to you 😁
I have these “attacks” too. Mine are not in connection with my period but it feels like I’m leaving my body an personality behind. I feel weak and completely hopeless and dead inside whilst feeling every little thing. It’s a contradiction, I know. I’m always so sorry for my husband because he’s used to me being strong, full of humor, and focused on the task at hand. Aka, stoma, infusions, diabetes etc.
As someone that has always had weird periods... it could weirdly enough be a response to your Crohns going a bit wacky a few months back and then going on Humira. Your entire body could be like "what are you doing to me, Maggie?" Prayers and good thoughts that whatever it is, it's easily fixed.
I was just thinking about you the other day and hoping you were ok...relatively speaking since I hadn’t seen a video lately but I totally get the busyness...this is coming from a chronie who just finished grad school! Good luck with the specialists!
Your amazing and help so many people It seems like every video you talk about something that I am going through. Take care of yourself first but thank you for helping us all
SO happy to hear from you... Please TAKE CARE OF YOU! Don't know how you managed to make as many videos as you have with such a busy schedule... We'll all still be here for you...😀
Have you ever considered Accelerated Response Therapy? I have learned so much from your videos. Will be having a total colectomy soon and trying to prepare. Thank you!
🎆🌻Omgosh, Maggieeee🎆🌻 🙌🙌Yay, a new video!!! 🙌🙌 🎉 🎉Welcome back 🎉🎉 Glad to see you're doing well & that the humira is working for you!! 🙌🙌Yay 🙌🙌 I do have a question, I know someone who will be starting humira soon and they're scared of the side effects and the use of the medication itself. My question is, what or how can I easy or lessen the fear that using the medication (humira) will be okay?? Your videos *do* help many people. To know all that you've been through from your videos and you keep pressing forward, wether you know it or not, gives hope to others. ☺ Are you still working as a nurse? That's amazing that you got a first booking for the venue!! Super cool and super exciting!! From the sounds of it theirs a lot of paperwork involved. Just think, if this goes off great, think of other bookings to come!! 👍 Have you guys thought about doing ariel shots or promoting the venue? Happy for you & Zak!!! ☺ Sorry that emotions have been going all over the place for you. Girlie, you got this!! Just one moment at a time. Don't you dare be sorry for not posting. Life happens! ☺ Just glad to see that you're doing okay. Whenever you posted again, it's cool. 🌻 keep your head up & keep smiling 🌻 💙🌼hope you & Zak & the pups have a wonderful day🌼💙
Hi Melissa!! Thank you!! For Humira - I was afraid of the same thing. I always keep in my mind that the scary side effects have a low risk of happening, and that using the medicine to calm the crohns with potential for side effects is better than not using the medicine and (more likely than not) feeling the IBD symptoms kick in. Kind of weighing risks vs benefits!
@@LetsTalkIBD you're welcome and thank you for the reply. ☺ 💙exactly💙 that's what we've been told about the humira that it has low side effects. Plus, it's the newer version of it that has a smaller needle which equals less pain upon injection & it's the citrus-free version as well. Plus were lining up a humira nurse as well too. Keep reminding my loved one risks vs benefits as well. Its hard, all you want is for your loved one to get relief and to feel better, ya know, when other things haven't worked. 🌼Have a great night, and no apologizing, life happens. Remember, you got this.🌼
Whatever choice you make I know it be the best Back in 1995 I had a sub total colectomy do to having crohn,s going dangerously bad 4 years later they hoped to reattach my small intestine to my rectum but rectum went bad so had that removed now to this day my crohn,s never ever came back my Weight has gone up appetite is perfectly normal best of all no pain But the only downside is the TSA at airports getting tired of getting tested for bomb residue every time I travel and I travel a lot
I am excited for Fall. I have more skin issues in the Summer. Heat and humidity drain me and also create my skin issues. I know the humidity is still here in Fall and winter but my skin issues are not as bad.
Maggie your amazing! Thanks for your help the other night. She is now doing a lot better. Keep up the talk you help more people then you know. Feel better and make that appointment please. Maggie 5 s
So happy to see you back. I am so sorry to hear that you've had a rough summer. Could any of your new symptoms be from humara? I hope things improve for you quickly and for answers. ((Hugs))
sounds like peri menopause onset way too early for me...I had terrible emotion freaks..my husband would call me from work to make me aware it was the 17th of the month..hold on and don't lose it! But I had a hysterectomy and had adenomyosis...not sure of spelling it's like the uterus attacks itself...loved no periods..but would have made the choice to ablate it and leave the uterus in place..prolapses suck!! Hang in there!
I am a rectal cancer survivor who got an irreparable fistula (dead tissue due to radiation). I am now totally incontinent and only way to fix is to get another bag. I, like you, am not ready to have 2 bags and lose my bladder (like you, losing colon). I am also on zoloft andn have been for many years. Not easy.
I have two bags and they took my bladder years ago, it's tough at first but once you heal and get use to them you will have some much more freedom. It's like most things that plague us, time helps.
@@MrVladteples what a nice thing that you messaged me! I appreciate your point of view as I think about having the surgery all the time, yet I have no one to talk to as I know no one who is in this situation.☺
I used to feel loony on birth control pills, on the blank days. I’m not recommending the pill, because I didn’t feel that psycho when I didn’t take hormones at all. In my forties my periods became irregular in the worst way. I then got this internal uterine cauterization that was supposed to stop the dang period altogether but it didn’t. Less heavy and painful which was something at least. Finally FINALLY I entered menopause at 50+ with hope that depression/generalized anxiety disorder I’d had since adolescence would leave me. Not even, so don’t count on your hormones doing you any favors-however bc pill really does help a lot of young women with PMS and wild mood swings. You’ll probably try several formulations anyway, so why not start experimenting?
Hey Maggie. I've been thinking about how you've been. I have anal fistualizing crohns. I got my bag due to so many fistulas over the last 17 yrs. I just went Mayo in June I had an MRI and all was good with my stoma scope and they found a small hole with bottom scope. Not a fistula yet but I understand if you have questions. I also think I have PMDD. Periods are erratic, new for me, almost every 2 weeks. I cry on the spot as well. We seem to be going through the same issues. Are you exhausted? I can barely get out of bed most days. You are not alone. Welcome back!
Maggie, your videos have helped a lot of folks. But we also know you have your own medical issues, plus work, plus family, plus insurance, plus supplies, plus supplies, plus doctor visits plus..... So do what you can and less editing is (oh plus editing) fine with us. Peace.
you may want to look into a bio-identical hormone doctor. they will run ALL the blood work and look at ALL your hormones and look at your cycle and see if anything is out of wack and help you get things back the way they should be with hormones that are identical to the ones your body makes instead of synthetic hormones. :)
You're just amazing. Thanks for sharing all of this! Cheering you on!
Thank you!! ♡♡
Both you two have helped me!! Life isnt easy, the two of you help so many. But you both also have your lives as well. So no pressure. Thank you both!
OMG when you find out one of your TH-cam favorites watches another one of your TH-cam favorites! Love both of your pages, you all are so amazing!
@@jamiesingleton3909 start a page and we all three will be watching you! 😁
NBT 3 awe, you’re so sweet!
Hi Maggie ! First of all may I just say how helpful your videos have been to me. I am a sixty year old woman & had to have an ileostomy nearly two years ago. I have had all sorts of problems ranging from skin issues to hernias & now gastroparesis. It has been a steep learning curve which has severely restricted my life. However, I find your videos truly inspirational & I always think if this young woman can do it, then so can I. We are never too old to learn & I thank you from the bottom of my heart. Wishing you & Zack all the very best. From Kit in York, England. XX
So glad you also talk about mental health issues; anxiety and depression are so closely linked to autoimmune diseases, especially IBD.
Have you tried an inhaler on your skin? I had some HORRIBLE skin issues to the point of weeping skin and breaking down. A wound nurse suggested an inhaler used for asthma...I sprayed it on my skin before putting on a new bag for a few weeks and it changed my skin dramatically! Like I had never had skin issues
Your videos are truly inspirational! I don’t even have an Ostomy, but I did have my colon removed on August 1st and was able to have an IRA connection. My reason was severe colonic inertia but I researched before my surgery so I would be prepared for a bag if needed. You are so positive and talk about real life truth. Before surgery, my husband asked if I was prepared if I had to have an ostomy and I told him about your videos and said yes, Maggie has prepared me. Anyway, I just want you to know that your videos reach so many people and they have been a blessing to me. I’m 47, had colonic inertia, don’t have an ostomy, but I still check for your videos often as they are so inspiring. I just wanted you to know that you are an awesome young lady and you are reaching people who may be very different from you and your situation, so keep it up (when you can)! You are amazing and I’m so happy I found your videos. Btw: Colon removal was not nearly as bad as I had convinced myself it would be. My 9 feet of colon was removed laparoscopically and I was home within 4 days. It’s no walk in the park, but for me, it really wasn’t terrible.
Your videos have been helping me tremendously! I've got a severe stricture 33mm up in my desending colon. Tomorrow at 6:30am I'll be going to get a lot of my colon removed and a loop illeostomy. I've also got thickening going on at my illeum and a mass in the center of my transverse colon. Long story short, I'm a mess lol. Thank you for your videos, all I did was cry when I first found out but I've come to accept things now. I'll be praying for you!
First, I suffered horribly from PMDD, and took Sarafem. Do some research on it before your appointment and ask about switching meds. Second, I went to the Cleveland clinic for some tests and my Calprotectin was 168.1, and my pancreas isn't working right either. The colonoscopy couldn't be done due to solids in my sigmoid colon, but the GI wasn't concerned. Nor was he concerned about the fact that the prep stopped working abruptly around 5 am that morning. My PCP has referred me to a local GI we found on the Crohn's coalition website. Hopefully I'll get some more answers next month after seeing her.
I will!! Thank you! And hoping you find answers with the new doctor!
We’ve missed you! after my diagnosis I found your channel, and it truly helped me so much!!I’m perfectly happy to wait for videos!
I'm so glad! Thank you!
I'm sorry you are going this. I am suffering from endometriosis scar tissue after 25 years of dealing with it. I understand your emotional breakdowns as well! Take your time and care for your wellness emotionally and physically. Hugs
I just had surgery to remove my colon and rectum this last October. Before that, I had had a ‘temporary’ loop ilieostomy for five years. A similar thing happened to me where my doctor was unable to do the colonoscopy because of the permanent scarring starting in my rectum and traveling into my colon. I was a nervous fracking wreck the month leading up to my surgery (I’m talking multiple panic attacks every day). However, it went wonderfully and I don’t regret it for even a second. I’m even starting to forget what it was like to have urgency. It’s hella freeing not having a rectum, just being real. I don’t know how close you are to NYC, but I had my surgery done at Mt. Sinai and it was a wonderful experience. If you want the name of my surgeon (who I highly recommend), feel free to dm me. :)
Best to you! Thank-you for always being so encouraging to us.
I had my loop ileostomy surgery in March and I just had my ileostomy reversal surgery on July 1st. I’m still really struggling with a few things with my J pouch. When does it get better? 😩
Kristyna Hernandez So, if I’m understanding this correctly, they were able to reconnect everything and you no longer have an ostomy? On that end, I have no experience. I dreamt of being able to get rid of my bag, but having to have my rectum removed took away that option. Bag lady for life! Lol Hang in there, though. It may sound cliche, but it will get better.
Yes they were able to reconnect everything and I don’t have my Ostomy anymore. Oh and that’s interesting to hear that you don’t have that option since I also had my rectum removed and was able to get reconnected. I know it’ll get better, after having my colon removed life has been so much easier without constant pain. But now I’m just dealing with other issues. It almost feels like a never ending cycle! But I’m trying to stay positive the best I can. Thank you for responding!
Thank you so much! I'm near Philly so not too far! I'm going to see how things go with the one my GI is referring me too, but maybe in contact if it doesnt go well :) thank you!!!
So good to have you back Maggie. I'm so sorry to hear your problems.
You are so honest and open. Hopefully you can find something that will help you. Sending love from Dublin Ireland. 🇮🇪☘💚
Thank you!!
Stress can cause crazy things to happen with your body. Love your videos.
♡ it totally can- that's probably a part of what is going on!
My emergency surgery was 6/2/18... I never made an appointment after coming home. I've put it off because I had a very scary ordeal. Many issues including but not limited to sepsis, and an allergic reaction which caused a FULL body rash that felt like an unbearable sunburn. It even affected my nasal passage. Any way.. We thought it was redman syndrome from vancomycin (strong antibiotic) they had me on but taking it away didn't make it better (which should have been then case)... So I'm terrified of going through that again not to even mention the surgery. Also every single time I have output it feels like i need to go...umm from my rectum...but like you mentioned not being able to even fit a finger in there that's my issue as well but this gets pretty gross... I can feel something in there and it is VERY uncomfortable... I have emotional issues.. I became a single mom overnight and that very next morning i was in the hospital with my colostomy surgery. I'm TERRIFIED of finally seeing a surgeon. I know it sounds crazy because i should have been able to get this taken down 3-6 months after the 6-2-18 surgery...but I'm still an ostomate...honestly I feel like so much mote in control this way and I think that's why I'm ok with sticking with the ostomy.
THANK you very much for sharing. Your videos really have helped me. Of course I've learned a bunch but you've helped so much especially for me to not feel so alone. Thank you so much for being your authentic self💞
It can be super scary going back after having such a rough time! You got this Brooke - whatever way you decide!!
Glad to see another video from you, hope you begin to feel better soon, you're having a time of it. I've got a few of the same issues you have just now so I feel you. It can be quite isolating when you have skin issues, flare ups, fistulas etc. Know you're not alone even though most of us are strangers to you 😁
Thanks for sharing. You really make a difference.
♡
Your new hairstyle is just beautiful. Your videos are indeed helpful. 💟
I have these “attacks” too. Mine are not in connection with my period but it feels like I’m leaving my body an personality behind. I feel weak and completely hopeless and dead inside whilst feeling every little thing. It’s a contradiction, I know. I’m always so sorry for my husband because he’s used to me being strong, full of humor, and focused on the task at hand. Aka, stoma, infusions, diabetes etc.
I am glad I'm not alone! Thank you for sharing!
Great to see you back 💜 thanks for sharing !
♡♡ good to be back
As someone that has always had weird periods... it could weirdly enough be a response to your Crohns going a bit wacky a few months back and then going on Humira. Your entire body could be like "what are you doing to me, Maggie?" Prayers and good thoughts that whatever it is, it's easily fixed.
Totally! It could be that!
I was just thinking about you the other day and hoping you were ok...relatively speaking since I hadn’t seen a video lately but I totally get the busyness...this is coming from a chronie who just finished grad school! Good luck with the specialists!
Congrats on finishing school - that's awesome!!
Your amazing and help so many people It seems like every video you talk about something that I am going through. Take care of yourself first but thank you for helping us all
SO happy to hear from you... Please TAKE CARE OF YOU! Don't know how you managed to make as many videos as you have with such a busy schedule...
We'll all still be here for you...😀
Maggie, try camomile wipes or camomile itself. I use it . It soothes your skin and it heals it fast.
So good to hear from you!!! You look beautiful.
♡♡ thank you!
You have been missed. Everything of the best. God bless.
♡
I have a meltdown i feel i can't cope with anything at all i just cry and relief the stress of it all the build up
Have you ever considered Accelerated Response Therapy?
I have learned so much from your videos. Will be having a total colectomy soon and trying to prepare. Thank you!
Yes, you’re so inspiring!
♡♡♡
🎆🌻Omgosh, Maggieeee🎆🌻
🙌🙌Yay, a new video!!! 🙌🙌
🎉 🎉Welcome back 🎉🎉
Glad to see you're doing well & that the humira is working for you!! 🙌🙌Yay 🙌🙌 I do have a question, I know someone who will be starting humira soon and they're scared of the side effects and the use of the medication itself. My question is, what
or how can I easy or lessen the fear that using the medication (humira) will be okay??
Your videos *do* help many people. To know all that you've been through from your videos and you keep pressing forward, wether you know it or not, gives hope to others. ☺ Are you still working as a nurse?
That's amazing that you got a first booking for the venue!! Super cool and super exciting!! From the sounds of it theirs a lot of paperwork involved. Just think, if this goes off great, think of other bookings to come!! 👍 Have you guys thought about doing ariel shots or promoting the venue? Happy for you & Zak!!! ☺
Sorry that emotions have been going all over the place for you. Girlie, you got this!! Just one moment at a time. Don't you dare be sorry for not posting. Life happens! ☺ Just glad to see that you're doing okay. Whenever you posted again, it's cool.
🌻 keep your head up & keep smiling 🌻
💙🌼hope you & Zak & the pups have a wonderful day🌼💙
Hi Melissa!! Thank you!! For Humira - I was afraid of the same thing. I always keep in my mind that the scary side effects have a low risk of happening, and that using the medicine to calm the crohns with potential for side effects is better than not using the medicine and (more likely than not) feeling the IBD symptoms kick in. Kind of weighing risks vs benefits!
@@LetsTalkIBD you're welcome and thank you for the reply. ☺
💙exactly💙 that's what we've been told about the humira that it has low side effects. Plus, it's the newer version of it that has a smaller needle which equals less pain upon injection & it's the citrus-free version as well. Plus were lining up a humira nurse as well too. Keep reminding my loved one risks vs benefits as well. Its hard, all you want is for your loved one to get relief and to feel better, ya know, when other things haven't worked.
🌼Have a great night, and no apologizing, life happens. Remember, you got this.🌼
Glad you’re back. Missed your videos.
Whatever choice you make I know it be the best
Back in 1995 I had a sub total colectomy do to having crohn,s going dangerously bad 4 years later they hoped to reattach my small intestine to my rectum but rectum went bad so had that removed now to this day my crohn,s never ever came back my Weight has gone up appetite is perfectly normal best of all no pain
But the only downside is the TSA at airports getting tired of getting tested for bomb residue every time I travel and I travel a lot
You helped me out before my stoma surgery and after and when I had a clot on if I needed to go to the hospital or not.
♡♡
I am excited for Fall. I have more skin issues in the Summer. Heat and humidity drain me and also create my skin issues. I know the humidity is still here in Fall and winter but my skin issues are not as bad.
Me too! It seems that way for a lot of ostomy patients
I have PTSD and that is exactly what happens to me when I have an episode.
I suffer from ptsd too. Hugs and best wishes x
Maggie your amazing! Thanks for your help the other night. She is now doing a lot better. Keep up the talk you help more people then you know. Feel better and make that appointment please.
Maggie 5 s
I'm so glad!!
Love and prayers Maggie!
♡♡
So happy to see you back. I am so sorry to hear that you've had a rough summer. Could any of your new symptoms be from humara?
I hope things improve for you quickly and for answers. ((Hugs))
My GI doesnt seem to think the humira would cause that but who knows!
sounds like peri menopause onset way too early for me...I had terrible emotion freaks..my husband would call me from work to make me aware it was the 17th of the month..hold on and don't lose it! But I had a hysterectomy and had adenomyosis...not sure of spelling it's like the uterus attacks itself...loved no periods..but would have made the choice to ablate it and leave the uterus in place..prolapses suck!! Hang in there!
I love hearing from you, but I understand you have a life outside of these posts. I pray all goes well for you.
Thank you so much!
Thanks for update we all are going thru stuff! 🙏 I hope things get better just be strong and smart.😀
I am a rectal cancer survivor who got an irreparable fistula (dead tissue due to radiation). I am now totally incontinent and only way to fix is to get another bag. I, like you, am not ready to have 2 bags and lose my bladder (like you, losing colon). I am also on zoloft andn have been for many years. Not easy.
It's hard): I am wishing you the best!!
@@LetsTalkIBD Thanks for your kind reply! I am wishing you the best, too. You have so much to look forward to. Very happy for you!⭐
I have two bags and they took my bladder years ago, it's tough at first but once you heal and get use to them you will have some much more freedom. It's like most things that plague us, time helps.
@@MrVladteples what a nice thing that you messaged me! I appreciate your point of view as I think about having the surgery all the time, yet I have no one to talk to as I know no one who is in this situation.☺
I used to feel loony on birth control pills, on the blank days. I’m not recommending the pill, because I didn’t feel that psycho when I didn’t take hormones at all. In my forties my periods became irregular in the worst way. I then got this internal uterine cauterization that was supposed to stop the dang period altogether but it didn’t. Less heavy and painful which was something at least. Finally FINALLY I entered menopause at 50+ with hope that depression/generalized anxiety disorder I’d had since adolescence would leave me. Not even, so don’t count on your hormones doing you any favors-however bc pill really does help a lot of young women with PMS and wild mood swings. You’ll probably try several formulations anyway, so why not start experimenting?
You look fabulous in this video js
Haha aw thank you!
Hey Maggie. I've been thinking about how you've been. I have anal fistualizing crohns. I got my bag due to so many fistulas over the last 17 yrs. I just went Mayo in June I had an MRI and all was good with my stoma scope and they found a small hole with bottom scope. Not a fistula yet but I understand if you have questions. I also think I have PMDD. Periods are erratic, new for me, almost every 2 weeks. I cry on the spot as well. We seem to be going through the same issues. Are you exhausted? I can barely get out of bed most days. You are not alone. Welcome back!
You helped me so much too!
Have you tried removing sugar, gluten, and dairy from your diet? Cbd and black seed oil are also amazing for ibd. All the best!
I've tried a couple of those things but will do more research into that - thanks!
You go girl!
Thank you!!
Love your earrings
I was at the uoaa conference Wednesday. I was hoping I'd see you. Haha. 😀 Hang in there. Thanks for everything you do.
Maggie, your videos have helped a lot of folks. But we also know you have your own medical issues, plus work, plus family, plus insurance, plus supplies, plus supplies, plus doctor visits plus.....
So do what you can and less editing is (oh plus editing) fine with us. Peace.
Thank you for understanding!
@@LetsTalkIBD 👍❤
What means IBD? Sorry for the question.
you may want to look into a bio-identical hormone doctor. they will run ALL the blood work and look at ALL your hormones and look at your cycle and see if anything is out of wack and help you get things back the way they should be with hormones that are identical to the ones your body makes instead of synthetic hormones. :)
I've done a little bit of research on them! I'd figure I'd see how the appt with the endocrinologist goes and go from there! Thanks for the advice!
Stay strong 😉 I believe in you. Your fan from Bosnia
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