Energy saving summary: - diagnosed with Lyme, took heavy antibiotics for months but it made her much worse so she stopped - carried on with the supplements and diet and detox things from video 1 and got slightly better by year 2 - went away on a months intensive detox retreat with juice fasting and meditation etc. She felt worse at first but then felt better. She feel a fasting doea help her - so she's had 2 years of detoxing her home and body and trying to be clean etc. - did counselling and meditation and journaling and working on her mind - she was 50% better by the end of 2 years - she got a divorce (they'd been drifting for a while and the illness was the final straw) - she moved back in with her Dad and had a lot of pressure to go back to work- tried 3 days a week but couldn't manage, gave up after 2 weeks as it made her a lot worse. So she quit completely - her mum passed away within this time - she got depressed Part 3 coming up....
I enjoy your videos so much, you have such a nice natural style. It's like sitting opposite you listening to your story. Looking forward to the next one. So insprirational, Raelan. Thank you :)
Aw thanks Katy so much for all of the support you've thrown my way. You really are a truly wonderful human and I couldn't be happier to hear that you enjoyed the video 💛💜
Hey Annie! Nice to hear from you again and thanks for watching. It's great to feel a connection in whatever way we can, even online! Very nice to connect with you 💛
Just watching part 2 of your story. Both my doctors and I are convinced I caught Covid-19 in March and I am still struggling, although the virus is gone (5 tests all negative). I am kind of in the middle right now... I can work and do some limited things but if I try and do anything physical then it kicks my backside. Symptoms seem to come in cycles, pain in my chest or legs some weeks, super sore throat and headaches the next, then fatigue but not to the extremes you had or I know other have had. Still getting lots of tests, but so far all clean. Hopefully I can maintain being healthy enough to stay working and also get better. Did you sometimes just wish you could let someone else feel what you were feeling if even only for an hour? I struggle to explain it to people and symptoms keep changing week after week.
Hey Lance, this sounds absolutely awful. I'm so sorry that you're facing this right now. But oh my goodness YES!!! A thousand times over yes - more times that I could possibly count I fantasized about being able to switch bodies with the people who were close to me for an hour or a day or a week just so they could get it. Thanks for taking a moment to share a bit of your story and I hope you find what you need to put this behind you soon.
I feel it's important to state that despite my potential misdiagnosis with chronic Lyme disease, this is a LEGITIMATE and VALID condition that many people suffer from. Even though it seems that this didn't end up being the primary culprit with my health issues, for others this diagnosis is accurate and valid and should be treated accordingly. We all have our own unique mix of things going on in our bodies and it's important to thoroughly assess and determine what treatments will work for us individually!
Thx for sharing your story. I am much older but I still have all the struggles you did. Just about everything resonated with me. I have limited funds, so some of your approaches are financially out of my options. The question I have for you is about exercise and movement. Do you have any videos about movement and activity??
Hi Elaine 💛 I am so sorry to hear that you have to face all of this - I know what a hell this illness can be and I really feel for you. And I appreciate that I have been fortunate in that financially I could afford to try a lot of things that unfortunately aren't options for a lot of people. (And to be honest I was quite financially irresponsible and went into a lot of debt.) But yes I do have some videos on movement and activity. On the home page of my channel there is a tab called "playlists" and under it you will find a playlist titled "chronic fatigue syndrome & movement" with a few available 😊
Thank you Raelan. I just found your channel, and started with your recovery videos. . Headed to part 5. Very compelling story. I will check out your playlist for the movement videos. It’s very encouraging to see that you have moved passed your struggles and are back to living the life of your dreams. God Bless. 💕
@@elainebezak7158 thanks so much Elaine for taking the time to hear my story. I appreciate it and I hope something in these videos someplace is useful for you 💗
Hey David! I ended up spending 8.5 years in Southeast Asia (mainly Cambodia, Thailand, Malaysia, and Indonesia). I currently live in San Francisco, California 😊
@@RaelanAgle oh wow 8.5 years travelling that's amazing! Must have been so good to be carefree minimal stress, not justifying your illness to anyone, meeting new people etc
David Graham Of course there were still hard times and stress and I was still sick, but yes, David, overall it was like living a dream life!! I'm so grateful for every day of my time spent in SE Asia ❤️
Thank you so much Raelan for telling your story. I can relate to so much of it. I was an Intensive Care Nurse before I got ill in 2016 and not being able to clinically understand what had happened to me, and what had taken the life that I knew, was one of the worst things. Like you, I hated the diagnosis of Chronic Fatigue Syndrome and felt totally ashamed of it. I heard myself trying to justify my illness to others, trying and failing to get them to understand what was happening to me. One thing that I am eternally grateful for is that I was always believed and supported by my Dr’s. My diagnosis came in 2017 after I had been given every test imaginable......plus counselling. I ended up being medically retired from my job after trying and failing to return to work, which was a very low point for me. It’s been over 4 years now and I would say that learning to accept the diagnosis, being kinder to myself, and concentrating on my physical and mental health is helping me cope. My family and friends are incredible and I am grateful every single day for their love and support. Finding your channel is exactly what I need to feel connected and not alone. I find your videos extremely helpful, you deliver them beautifully and I appreciate all that you do for this community 💕
Hi MellyJo, I'm so sorry to hear about all that you've been facing these last few years. I definitely empathize. You seem to have come to a great place though with your mindset and approach to this, well done on that because I know it's not easy! I'm so happy to hear about all the support you have as well because you are right, this really can make a huge difference. Thanks for sharing a bit of your story here and for sending this kindness and support my way 💕 And I'm wishing you all the best with your recovery as well.
I wasn't sure I had CFS for a long time. Recently I started watching your videos. You say that what you eat has a lot to do with it, that eating the wrong foods can set you back. So I tested that. I had my take-out club sandwich on white bread, with a side of fries yesterday. Sleeping last night was absolute hell. I don't know how many times I woke up, I slept worse than I usually do. You are right. I feel brain fog right now and nouns are coming to me particularly slowly. I'll recoup today but I think I'm bouncing back faster. The problem with this malady is what you do makes a big difference so if you keep doing something wrong over and over, you don't recognize that it's what you're doing that's causing it to flare up. Until you stop, then reindulge. Then you can see. Thank you for your work and for sharing with us. I love to read so your book is on my list. Oh yeah, I find getting e-books is easier because your computer can read them to you instead of your having to focus to read it yourself.
I'm so sorry you're struggling so much with this, but I love your attitude and approach to things. I think that looking at things as an experiment is so helpful. And you're so right - we often have no idea what habits of ours might be contributing to our symptoms. I was like that with coffee for a long time - I didn't realize that my afternoon crashes were strongly intensified by my morning caffeine consumption. Sending you my best with all of this - I hope you find all your puzzle pieces and get past this soon.
Energy saving summary:
- diagnosed with Lyme, took heavy antibiotics for months but it made her much worse so she stopped
- carried on with the supplements and diet and detox things from video 1 and got slightly better by year 2
- went away on a months intensive detox retreat with juice fasting and meditation etc. She felt worse at first but then felt better. She feel a fasting doea help her
- so she's had 2 years of detoxing her home and body and trying to be clean etc.
- did counselling and meditation and journaling and working on her mind
- she was 50% better by the end of 2 years
- she got a divorce (they'd been drifting for a while and the illness was the final straw)
- she moved back in with her Dad and had a lot of pressure to go back to work- tried 3 days a week but couldn't manage, gave up after 2 weeks as it made her a lot worse. So she quit completely
- her mum passed away within this time
- she got depressed
Part 3 coming up....
👍
Thankyou soo so much
I enjoy your videos so much, you have such a nice natural style. It's like sitting opposite you listening to your story. Looking forward to the next one. So insprirational, Raelan. Thank you :)
Aw thanks Katy so much for all of the support you've thrown my way. You really are a truly wonderful human and I couldn't be happier to hear that you enjoyed the video 💛💜
I agree! She’s doing a great job with her videos 🥰
Amy Ray Thank you so much Amy!! I really appreciate the support 💗💗💗
I never stop feeling disgusted by doctors and how incompetent they are at treating CFS! It’s incredible what you’ve done, what a journey!
I’m listening to every word Raelan.
Annie💕
Hey Annie! Nice to hear from you again and thanks for watching. It's great to feel a connection in whatever way we can, even online! Very nice to connect with you 💛
Just watching part 2 of your story. Both my doctors and I are convinced I caught Covid-19 in March and I am still struggling, although the virus is gone (5 tests all negative).
I am kind of in the middle right now... I can work and do some limited things but if I try and do anything physical then it kicks my backside. Symptoms seem to come in cycles, pain in my chest or legs some weeks, super sore throat and headaches the next, then fatigue but not to the extremes you had or I know other have had.
Still getting lots of tests, but so far all clean.
Hopefully I can maintain being healthy enough to stay working and also get better.
Did you sometimes just wish you could let someone else feel what you were feeling if even only for an hour? I struggle to explain it to people and symptoms keep changing week after week.
Hey Lance, this sounds absolutely awful. I'm so sorry that you're facing this right now. But oh my goodness YES!!! A thousand times over yes - more times that I could possibly count I fantasized about being able to switch bodies with the people who were close to me for an hour or a day or a week just so they could get it. Thanks for taking a moment to share a bit of your story and I hope you find what you need to put this behind you soon.
I feel it's important to state that despite my potential misdiagnosis with chronic Lyme disease, this is a LEGITIMATE and VALID condition that many people suffer from. Even though it seems that this didn't end up being the primary culprit with my health issues, for others this diagnosis is accurate and valid and should be treated accordingly. We all have our own unique mix of things going on in our bodies and it's important to thoroughly assess and determine what treatments will work for us individually!
I'd love to hear about other's experiences with this also!
Wow I’m a social worker too! I wonder if that (giving to others) contributed to our illnesses… just thinking out loud
I think that might be a solid theory, Amy! And nice to meet another social worker 💛
Probably being an empath and unable to manage energy to oneself
Thx for sharing your story. I am much older but I still have all the struggles you did. Just about everything resonated with me. I have limited funds, so some of your approaches are financially out of my options. The question I have for you is about exercise and movement. Do you have any videos about movement and activity??
Hi Elaine 💛 I am so sorry to hear that you have to face all of this - I know what a hell this illness can be and I really feel for you. And I appreciate that I have been fortunate in that financially I could afford to try a lot of things that unfortunately aren't options for a lot of people. (And to be honest I was quite financially irresponsible and went into a lot of debt.) But yes I do have some videos on movement and activity. On the home page of my channel there is a tab called "playlists" and under it you will find a playlist titled "chronic fatigue syndrome & movement" with a few available 😊
Thank you Raelan. I just found your channel, and started with your recovery videos. . Headed to part 5. Very compelling story. I will check out your playlist for the movement videos. It’s very encouraging to see that you have moved passed your struggles and are back to living the life of your dreams. God Bless. 💕
@@elainebezak7158 thanks so much Elaine for taking the time to hear my story. I appreciate it and I hope something in these videos someplace is useful for you 💗
Where did you move to?
Hey David! I ended up spending 8.5 years in Southeast Asia (mainly Cambodia, Thailand, Malaysia, and Indonesia). I currently live in San Francisco, California 😊
@@RaelanAgle oh wow 8.5 years travelling that's amazing! Must have been so good to be carefree minimal stress, not justifying your illness to anyone, meeting new people etc
David Graham Of course there were still hard times and stress and I was still sick, but yes, David, overall it was like living a dream life!! I'm so grateful for every day of my time spent in SE Asia ❤️
👍
Thank you so much Raelan for telling your story. I can relate to so much of it. I was an Intensive Care Nurse before I got ill in 2016 and not being able to clinically understand what had happened to me, and what had taken the life that I knew, was one of the worst things. Like you, I hated the diagnosis of Chronic Fatigue Syndrome and felt totally ashamed of it. I heard myself trying to justify my illness to others, trying and failing to get them to understand what was happening to me. One thing that I am eternally grateful for is that I was always believed and supported by my Dr’s. My diagnosis came in 2017 after I had been given every test imaginable......plus counselling. I ended up being medically retired from my job after trying and failing to return to work, which was a very low point for me. It’s been over 4 years now and I would say that learning to accept the diagnosis, being kinder to myself, and concentrating on my physical and mental health is helping me cope. My family and friends are incredible and I am grateful every single day for their love and support. Finding your channel is exactly what I need to feel connected and not alone. I find your videos extremely helpful, you deliver them beautifully and I appreciate all that you do for this community 💕
Hi MellyJo, I'm so sorry to hear about all that you've been facing these last few years. I definitely empathize. You seem to have come to a great place though with your mindset and approach to this, well done on that because I know it's not easy! I'm so happy to hear about all the support you have as well because you are right, this really can make a huge difference. Thanks for sharing a bit of your story here and for sending this kindness and support my way 💕 And I'm wishing you all the best with your recovery as well.
Hope you are doing well. You’re a beautiful soul, very intentional.
That is incredibly kind of you to take the time to say this - thank you so much! I hope you are managing well with your CFS journey as well.
Part 3! Thank you for sharing your story and giving hope.
Thank YOU chickerball for the support!!
Thank you Raelan 🙏🏻look forward to part 3. 💜
Nice to hear from you Janie and thanks for the support! Part 3 will be up very soon! ☺️
I wasn't sure I had CFS for a long time. Recently I started watching your videos. You say that what you eat has a lot to do with it, that eating the wrong foods can set you back. So I tested that. I had my take-out club sandwich on white bread, with a side of fries yesterday. Sleeping last night was absolute hell. I don't know how many times I woke up, I slept worse than I usually do. You are right. I feel brain fog right now and nouns are coming to me particularly slowly. I'll recoup today but I think I'm bouncing back faster. The problem with this malady is what you do makes a big difference so if you keep doing something wrong over and over, you don't recognize that it's what you're doing that's causing it to flare up. Until you stop, then reindulge. Then you can see. Thank you for your work and for sharing with us. I love to read so your book is on my list. Oh yeah, I find getting e-books is easier because your computer can read them to you instead of your having to focus to read it yourself.
I'm so sorry you're struggling so much with this, but I love your attitude and approach to things. I think that looking at things as an experiment is so helpful. And you're so right - we often have no idea what habits of ours might be contributing to our symptoms. I was like that with coffee for a long time - I didn't realize that my afternoon crashes were strongly intensified by my morning caffeine consumption. Sending you my best with all of this - I hope you find all your puzzle pieces and get past this soon.
Cant wait for part 3!
Thanks Lina!! 💜 Coming next week!
You are so brave Raelan ❤
Omg...I feel for you. This is why there are health coaches... 10K to go fast somewhere!
Madness, right?! Yet still one of my more unique experiences in life and I did take some valuable things away from it so thankfully no regrets 😊
I’ve just started reading your book - it’s amazing!!
Oh I'm so happy to hear you're enjoying it! Thanks for getting it, I appreciate the support 💫
You are so lucky you healed!!!
Sending love to you for your healing journey ❤️