Why Self IBS and SIBO Treatment Doesn’t Work
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- เผยแพร่เมื่อ 5 ก.ย. 2024
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Self medication is what led me to have sibo and what i have learned is that only killing overgrowth is not enough post gut support such as motility, probiotics,glutamine etc are also needed to repair gut and prevent recurrence
It's true yet it's also true that many sibo experts are not as good and knowledgable as they advertise it. Additionally i was being asked like 5000 usd and still having to buy supplements etc. For someone living in 3thrd world country it's hard for me to finance. It's really tough
Your advice that it takes a few rounds of treatments is very helpful (Thank you for sharing)
I've treated for IMO Sibo recently and am trying to implement many of the strategies you've talked about (using a prokinetic, following a low FODMAP diet for now, supplementing with magnesium, taking a quality probiotic, sort of intermittent fasting). However, I don't know my root cause. My symptoms came on suddenly about two weeks after I had a second, mild case of Covid. (heart palpitations, diarrhea, anxiety, loss of appetite, and then a few months later more gas/bloating and constipation symptoms). If this was potentially caused/influenced by Covid, how can I address the root cause?
Hi Janelle, as best as I can tell, the post COVID effects are inflammatory. They are kind of secondary to the action of the virus, which can definitely muck up the GI tract. Antiinflammatory strategies, of which there are many that could be helpful, are likely the best approach. For starters, liposomal vitamin C may help accelerate healing. I do have a video on tips for post covid GI issues on my channel, here's the link: th-cam.com/video/Xhoj2AaEnEI/w-d-xo.html
Information Overload...so true!
I have diagnosed Hydrogen and Methane SIBO with mild erosive gastritis.
My hypothesis on how it happened is that I had chronic appendicitis for years followed by an eventual emergency appendectomy. I was then on intravenous antibiotics for a week...then one month later put on a PPI for reflux...this is when everything started to go wrong. I believe this succession of events created a perfect environment for bacteria to flourish in my small intestine.
It was the SEVERE constipation that hit me first followed by a whole host of other symptoms: pain, headaches, brain fog, bloating, fatigue, mood swings etc...
I consider myself a fairly resourceful fellow and have really put in the hours with online research but have definitely felt lost and confused at times...not to mention hopeless and depressed.
I am currently 4 weeks into a self designed protocol that includes the following:
- SCD diet (but with a slight modification to allow 50g of carbs daily) based on research re: bacteria hibernation
- 1 mg of plucaroprode a day (which I may stop as I don't think it helps much)
- Occasional biofilm disrupter
- Occasional Digestive enzymes
- Occasional bile salts
- Occasional choline
- A daily rotation of Oregano oil, Allicin, berberine, grapefruit seed extract, neem
- Daily curcumin, L Glutamine, Zinc Carnosine, Quercetin
- Daily ginger extract and artichoke extract
- Occasional Movicol (laxido in the UK) and Bisacodyl
Results so far:
- Initially I noticed a significant reduction in bloating but that has sadly returned.
- slightly better bowel movements (still not daily) but can still go several days with no movement which is when I reach for the Bisacodyl which is often the only thing that will work for me (never fails)
- Most symptoms still present
Conclusion:
Despite my best efforts I have not made anywhere near enough progress. My gut motility is still poor and my stomach feels inflamed and sometimes parts go very hard. my sleep is still very poor. It is not easy to get Rifaxamin in the UK for SIBO and my gastroenterologist first wants to confirm my breath test results with another test. I did one privately which came out at 66ppm hydrogen and 15ppp methane. I feel that I may have a chance of being prescribed Rifaxamin if I get another confirmation although I believe our NHS has a strange protocol of prescribing a 10 day course every month for 3-6 months! Don't ask me why...
Sorry for the long comment and I hope you found my case of interest. I wish to enquire about a possible Zoom consultation with you to help me figure out what to try moving forward. Is this something you could help me with? I'm so desperate to get my life back!
Meckels diverticulum?
Hi there, MELT Music, thank you for sharing about your situation. It does indeed sound from your initial description that you would be a good fit for working with me...I’m very selective of who I work with so our next step is schedule a call so I can get a better sense of if/how I can help you.
Then, we can brainstorm a few ways to overcome your SIBO situation and come up with a plan to get you a SIBO relief plan that works.
Sound good? You can book that call here: p.bttr.to/3r62XTn
Once you've booked your call, let me know so I can send you something...
@@ConfluenceNutrition Great! I have booked a discovery call with you (Paul Thompson)
@@Pauliemelt Thanks Paul, I look forward to it, I'll reach out further in email.
How did you become?
Transmembrane serine protease 6, a novel target for inhibition of neuronal tumor growth. Sir I want to take GNC ENZYMES. It has protease 6 is it safe???
Why have you stopped making videos, are you fine?
So far on: oregano oil, apple cider vinegar and culturelle and feeling a difference but not a resolution so next I'm going to try Micheal Rucsio's meal replacement & triple antibiotic powder in a strict fast for 14-30 days (wondering whether omeprazole is a bad idea to keep taking long term & also what advice you might have. Symptoms are : gas, pain exploding after eating and overall body ache/back pain & fatigue. Regular docs have done scans and all looks fine to them (I thought maybe h. Pylori but the antibiotics made everything WAAY worse so it has to be sibo
Dear Amanda, I'm from Croatia, and I have stomach problems for few years..before few days finally a doctor in private clinic told me to do test for sibo and I was positive on methan sibo..today is my fifth day on antibiotics ( rifixamin and neomicin) and low fodmap( I usually eat healty food) but my simpthoms are even worse including chronical bloathing and streching,nausea, stomach pain, gas..have to mention that I also take utrogestan because i am in perimenopouse and zoloft for anxiety and panic attaks..Do you think that is normal that the simtomps are worse and do you maybe have any advice? Thanks for all videos they are great and very helpful 🥰
Hi Nera, many people experience an increase in symptoms from the antibiotics, and also sometimes from a diet change. Did you complete these two things at the same time?
Zoloft is poison. Try bioidentical hormones and testosterone pellets for perimenopause.
Hi Amanda. I’m one who got caught up in TMI trying to get a diagnosis from a GI (MD) a year ago after I went to the ER for SEVERE stomach pain. I thought I might be having a gallbladder attack. She ruled out SIBO, ulcer, colitis, and many other conditions, called it IBS, gave me a Low FODMAP foods guide, & referred me to a dietician. But by then, I was exhausted from running in circles & I didn’t have confidence the dietician would be helpful. I began cutting out all heavy or spicy foods, and eating very small amounts of bland foods. Fast forward to a year later and I’m not having stomach pain on a regular basis but am starting to have heart symptoms. I just had a groin heart cath that didn’t require a stent, but resulted in a pseudo aneurysm at the cath site 2 days later which required hospitalization. My question is: Are stomach problems and heart problems commonly related?
Well, the SYMPTOMS often overlap, and sometimes heartburn can mimic a heart attack, and pain can refer around the body in weird ways. In general, though, my sense is that heart and digetive issues are more indirectly related.
@@ConfluenceNutrition Thank you. I got my full heart diagnosis yesterday of Micro Vascular heart disease. It can be treated with Flow therapy vs meds and I am grateful for that.
@@user-ei8rb7sj6c Yay! I'm glad you got a clear answer :)
I got sibo and the constipation is killing me..can i use rifaxamin to relieve my symptoms.. I'm very distressed nowadays..could u please suggest me the right treatment for constipation😢
Why can we get worse with antibiotics?
Antibiotics selectively kill certain bacteria and other gut bugs, and this can leave others newly dominant. THis is why it's crucial to have a solid follow up plan after your antibiotic treatment.
Hey can ibs d lead to weight loss
Hi Amanda do you work privately with clients? Can you order the testing needed?
Hi there, yes, I work with clients in an online program. I can order the GI MAP test, and I can support you in self-ordering SIBO testing. How are you hoping to improve your digestion in the next year?
I've been following your method -- you said you healed your SIBO. Am I correct to say you healed SIBO with medication -- Rifaximin, metronidazole, nystatin -- but not the functional medicine way? You're saying the best method apparently is the allopathic way?
I'm currently taking those medications, except Nystatin, which I'll ask about from my doctor.
Hi, yes, I used the antibiotics. I used herbs many years earlier, but it didn't fully get rid of my SIBO. Then when I tried herbs again, I couldn't tolerate them. So I grudgingly made the decision to use the antibiotics, and they really worked well for me. Not for everyone necessarily, but we have to be open to what our body says it's willing to work with !
Thank you. My doctor just told me that neomycin is more appropriate for SIBO than metronidazole. So starting tomorrow, I'm switching to neomycin.
I'm glad you no longer have SIBO.
I have a concern with antibiotics. I read the warning, such as loss of hearing [neomycin] and cancer risk [metronidazole]. I also realize that SIBO is a backup system to help the body [believe it or not] get back on track. That's probably why resistant bacteria desperately fight off antibiotics. If my theory is correct, that must mean you did something else beneficial to your body to get rid of SIBO, other than antibiotics? What was it? And, are you sure your Microbiome is restored?
@@Diogenes-II great, let me know how you do!
@@Diogenes-II I certainly had concerns about antibiotics as well, and resisted them for about 10 years. In those 10 years, I did work diligently to uncover which specific foods were my enemy, and also what the root causes of my case might be. Mine was endometriosis. SO what else did I do? I modified my diet to minimize symptoms, and I had a surgery to correct the endometriosis that led to SIBO. THEN I treated, and it worked very well. Is my microbiome perfect now? Probably not. It's an ongoing process of caring for it and tending the garden. But my guts generally feel well these days, and I'm grateful!
Meckels diverticulum??
Do people end their lives because of SIBO/IBS?
I don't really know, though I have often heard people with IBS say that they are very unhappy with their current life living with IBS symptoms...if your question is coming from a place of you feeling like you want to end your life, please reach out to someone for help.