MY CROHN'S DISEASE STORY
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- เผยแพร่เมื่อ 5 มี.ค. 2019
- Hey there! My name is Melyssa and this is the one of many videos that I hope will create a safe, fun, educational and collaborating environment where those with autoimmune disease or invisible illnesses can come and hang out. It is important to remember that though a hidden illness is tough, we are never alone! So let’s talk about all of that embarrassing stuff TOGETHER
CORRECTION CORNER:
My surgery removed 6 inches from my intestines, not whatever number I said!
It's so daunting opening up like this. I've just done a video on my Crohn's disease story and it was such an experience. The more people who share their stories the better 😊
The Grumbling Gut I’ll check it out! And I completely agree, there is no reason we shouldn’t be vocal when our experiences could help others!
@@gutsofgloryandgold7374. Watching and sharing similar TH-cam videos can promote them and your channel into our community to help others - it's a great part of community contributing to bring the best channels together for the viewers. Let's hope we have great success!
You have a wonderful attitude but it’s obvious you haven’t forgotten all the hell you’ve lived with all these years. It’s ok to be emotional because nobody asks for this. Crohn’s can be a nightmare because it basically dictates your life. We’re blessed with our good days but on or bad ones we suffer alone because we aren’t looking for a pity party not to mention it’s hard on our parents. They certainly don’t want to see their child suffer. It’s a difficult illness and you have a great support group. Hang in there, science is always changing so maybe one day in our lifetime this illness will get a lot easier to manage. I’ll be praying for you and thank you for sharing your story.😊🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🇺🇸🇺🇸🇺🇸
Laura W thank you for your amazingly kind words! I hope for you nothing but happiness and health💖
Dear Melyssa, I just found your presentation and I am so impressed with you, your courage , openness, positive attitude and description of your illness. As a nurse I understand fully what you are up against. Thank you for making this video because I finally got to know what a terrific young woman my grandson Hunter has in his life .Please keep sharing your experience, strength any hope and may God bless and keep you as you help others.
erika campbell thank you so much!! I appreciate your kind words and your understanding ❤️
I work in healthcare as well and I try to use my experiences I've had as a patient to improve the care I give to mine😊
Great job sharing your story. I really appreciate your positive attitude. I’ve had Crohn’s for over 20 years and just recently found your channel when I was looking for good recipes after surgery. Thanks for sharing your story and being real. God bless you. ❤️
I'm not sure if this is what I have or not yet, but I relate so much! I wish I could just give you a big hug!
Thanks Melyssa, God Bless.
Thanks for sharing about the blood test (21 day) I'm so underweight & struggle with the prep IE, couldn't even get it close to my mouth, it made me so ill.
Thank you ❤
I have ibs and some of the same problems that you are going through i feel for you
I'm going through some stomach stuff right now, and they want to run more tests but cannot because of Corona. All we know is I have very high inflammation levels in my colon. We are leaning towards it being Crohn's, mainly because I have lots of the other symptoms and I had an uncle with it :/
darcsfx I am so sorry your answer is delayed! Not having an actual diagnosis is the most frustrating part and I hope you have a wonderful support group around you and not in too much pain. Good luck through this process and I’ll send good vibes 💜
@@gutsofgloryandgold7374
darcsfx well I am glad there is not much pain and just remind them that everyone has their own eating habits that are best for their health! People will always have their opinions of what is or isn’t healthy, try to just focus on you working with your doctor. If you do get diagnosed with Crohn’s, highly recommend looking up some doctors on the Crohn and colitis website. You can sort by state and insurance (I think)
@@gutsofgloryandgold7374 thank you, I will check that out!
10 Keys to Conquer Crohn's & Colitis Jordan Rubin - please search it yourself
Hey... I have crohns really bad.. In a flare @ mo.. On antibiotics all the time.. My small bowel is completely diseased and now its effecting my large bowel.. Anyway unless I hear bak.. I'll explain more.. 🙂
Oh no! I am so sorry you are in a flare right now and things aren't looking good. I hope you have wonderful doctors and a strong support system helping you through this! Don't give up hope, I believe in you xoxo
@@gutsofgloryandgold7374 hey... I was diagnosed in 2016 but started going in 2014 misdiagnosed with ibs!! Had small MRI on bowel and there's not even an inch that's not diseased. So they put me on steroids.. Allergic to them 🙁 then in 2017 was put on humira.. Was on that for 4 months awful reaction.. Didn't do anything for my crohns. I'm terminal. Live on fortisips. And angel noodles. Nothing they can do.. Seen 3 diff consultants they all say same. So each day is day by day! Awfull disease. Can't have surgery no surgeon can do anything.
Sunshine and flowers Flowers my heart goes out to you I am so sorry that this is fatal. I hope that doctors can provide pain relief so you do not suffer as much. I will keep you in my thoughts and I hope the remainder of your life is comfortable and happy💜
Sorry to hear that. Crohn's can be rough. I've had 2 surgeries because of strictures and it took some time to get back to 'normal'
Thank you for this I recently opened up about my Disease plz show me some love 😭
If people think they deserve their desease, well, it's a crazy world.
I have Crohn's disease for 8 years You need to find out Ketogenic diet Intake more omega3 The more the better I did not take medicine for 3 years My english is not good i hope you can understand
歐陽洋 hi I totally understand! I love omega3!! I eat a lot of fish and take omega 3 but keto doesn’t work for me because I had a surgery to remove my ileum which helps absorb fat acids meaning I can’t digest a lot of fat. But I know it does wonders for others! That is awesome it helping you so much!
@@gutsofgloryandgold7374 If taking medicine is not good for your health, you can improve your health through diet therapy
What helps you with brain fog and fatigue?
Andrea Watkins at the end of this week I am post a video all about brain fog and way you can combat it! But for me the two big things that helped me was getting of prednisone and removing grains from my diet. When it comes to fatigue depending on how I am feeling sometimes I just let it happen in that I plan a weekend to really just stay in bed and rest as much as possible. My diet and mental health also really impact my fatigue too so I do my best to stay on top of that
Guts of Glory and Gold Thank you! I’ve been diagnosed with Crohn’s disease since 2011. It seems like whatever my DRs do to help my fatigue doesn’t help or it does for a short time. Maybe it’s time for me to try counseling again because it might be stress. I’m looking forward to the brain fog video.
I completely get that. The video I just posted about my body health update, I mentioned that I am starting to take high doses of vitamin D3 and B12 and that has helped a little. A few years ago I also got a personal trainer who understood where my body was at and I got to find out what workouts I actually liked doing and movements I can do on a bad day. I noticed that after pushing myself to be physically active helped my brain fog and the euphoria high allowed me to be super productive for a few hours after and not feel as fatigued over time!
Guts of Glory and Gold I’ll have to watch that video. I’ve noticed when my iron level is at a 15 I do so much better ,but my GI’s office told me that if it’s at a 10 it’s medically unnecessary for them to prescribe me iron infusions but my ND (natural path) agrees with me but they stopped letting her prescribe iron infusions at the hospital I go to for my Remicade infusions. I have a personal trainer and it’s seemed to help some days but lately the brain fog has gotten worse and I feel like an idiot a lot of the time.
I'm about to bring out a video on my channel about fatigue. Fatigue is the worst and so is brain fog
Hi. Did you have stool test before colonoscopy ؟
Yes! I had several stool tests over the span of a few months and all the different scans before they decided to do a colonoscopy