@@Cymruohyd hahaha open your eyes and look around you, it's all about food companies making the most profit by pumping your food with the cheapest ingredients, mainly seed oils, and highly refined and processed ingredients, your gut doesn't recognise them because the food becomes so far removed from its original organic form that it causes inflammation in the gut, then add in modern stressful lifestyles and pesticides and you have a recipe for mass chronic disease
Couldnt agree more. Being an IBD sufferer, I analyse the ingredients on the back of food packaging, it amazes me how many chemicals are added. If its not natural, it cant be good for the body.
@@Cymruohyd absolutely, there's been multiple studies that the 'western diet' which has a lot of processed foods with all sorts of needless chemicals, in developed countries has seen a large incidence of IBD whereas poorer countries, not so. Also countries also starting to adopt this processed food diet have started seeing a rise in IBD. There's more and more evidence that what's happening is there is a dysbiosis in the gut microbiome in IBD sufferers. Eating natural probiotic and prebiotic foods such as KEFIR, blueberries, potatoes, apples etc etc etc, does wonders for your gut instead of shovelling processed rubbish down your throat. You are what you eat and eating healthily can only help improve the symptoms of IBD. It's not an overnight fix either.
This is from my experience and research of published articles. If this helps anyone suffering with uc, I celebrate you. I believe uc is a symptom and the underlying cause is multi-dimensional. Almost 60 yesrs ago, the primary cause for me was my inability to deal with rejection and cruel gaslighting. The assault on self image as a teen in process of finding who she is changed behaviors. Self care, heallthy eating, mindset all deteriorated to neglect and self hatred. It is a fact that deficiencies of B1, B12, Folic acid, Iron, Mg, Zinc , Vitamin C, Vitamin A & D, omega-3s result in mucosal ulcers in corresponding degrees. Bacteria invade these breaks in the intestinal mucosa and stimulate a somewhat violent immune response. Yes some food sensitivities can set up the GI tract for problems. For me it is nightshades, dry beans including soy products, commercial baked goods, refined sugars, convenience foods loaded with preservatives. For 20 years I had zero symptoms after recovering from a long hospitalization for sepsis and toxic megacolon. I did this with a diet primarily of chicken, beef fish, a variety of vegetables and fruits, lots of greens. Almost no bread, rare treats, limited dairy. I did this on my own and kept my body very fit. I rebewed my Spiritual connection with God and set boundaries for relationships. I enjoyed creative outlets like singing and art. About 20 years later, When I could not leave a hostile and stressful, job environment my healthy diet reverted to convenience foods or not eating at all. My gut blew up after antibiotic treatment for bronchitis. It spiraled out of control rapidly and I had life-saving surgery that impacted my nutrition permanently. So I now replace a lot of the vitamins and minerals daily because my transit time is less than 2 hours. Dehydration is a daily battle and I have 2° stage 3-4 kidney issuesbecause of it. My point is this. If you are troubled with IBD or uc, self assess your diet, your lifestyle, how you deal with negative emotions. We sensitive types tend to internalize emotional pain, and that results in stored trauma. Resolves nothing. In my case, uc was my body's response to self neglect and internalizing emotional stress and negativity, and not loving me enough to take care of myself spiritually, physically, or emotionally. It really is all about balance. My heartfelt desire is that if you benefit from my experience, you find the best ways to eliminate GI issues permanently. I have a MS in Microbiology and Preventive Medicine, I am 75, and I expect to live well to 100 and beyond. Best wishes for your good health, may God bless you with love.
Low carb doesn't have to be very restricted. Doesn't have to be high in fat either. Low carb and fasting put my UC Into remission for the last 5 years and I'm still in remission.
Thank you for sharing this information. So much misinformation out there. These two professionals seem to be very well rounded with accurate information on IBD. This is the first dietician that seems to actually understand IBD and the patients experience with the disease and how hard food is to figure out. I'm so happy she talked about soluble fibers.
The nutritionist recommends a nonrestrictive diet. When I see that, I realize why for people like her Crohn’s disease is incurable. If the patient eats whatever he or she wants, they will never maintain their illness in remission
Yes, I just got diagnosed with Crohns last week. Guess what when I asked my doctor what should I eat, he literally told me eat whatever you want. He prescribed me Skyrizi infusion, once per month. One injection is about 22k . I started doing research about diet and I am following a very strict diet. I felt 99% better.
There was only a brief mention about antibiotic use. I have direct knowledge. I had surgery, then sepsis with massive amounts of antibiotics. After a year, my abdomen blew up like I was pregnant. I finally was able to get off antibiotics but I've had horrible inflammation ever since. I've been trying to do my own research ever since.
This was a great discussion. Dr. Gray and Ms. Nanson provided helpful diet info and examples. Thank you. -Andrew (GI/HEP NP). Sadly, hard to get a good dietitian locally.
What bothers me is the focus on managing symptoms rather than understanding the rootcause and addressing it. Everything is about medication. Disease will never go away if the focus is on medicating symptoms.
Yeah. But the root cause my be untreatable. For instance. Children who are exposed to lots of passive smoking growing up are 80% more likely to develop gif issues including IBD. What you have in these genetically susceptible individuals is an immune system malfunction by environmental factors whilst the immune system is developing. There is no cure for that.
We are servants to our guts. This was a very informative discussion. I'm really glad that Remicade is considered safe for long term use. I just started infusions of Remicade/Inflectra at the end of March 2023, and this medicine has worked amazingly well for me. It's like a dark cloud has left me, and I have hope for the future! As for probiotics, I recommend homemade kefir. I make my kefir with raw unpasteurized whole milk that I buy at Sprouts Market. I look forward to my kefir smoothies every day. -I wish other ulcerative colitis patients the best of luck!
I find it interesting how these people didn’t mention of whole food plant based diet to help prevent UC flares when there is a lot of research showing the benefits.
@@Texasgirlinacrazyworld I have UC... fiber is not tolerable during a flare but is extremely important and beneficial when you're not in a flare...as mentioned the research literally say this about UC and Chron's
@@mrc2165 A total meat diet? LOL! Do you have a credible source for this claim? Almost everyone needs a low/no fiber and meat diet during a flare but it's not the case when you're not in a flare. It is actually recommended to increase fiber when you're not in a flare to re-establish a healthy gut microbiome and there is plenty of evidence showing how it helps to manage IBD in remission. Meat is associated with a higher risk of UC and Chrons. This is basic stuff you will find if you just google meat and IBD.
I'm 50 and diagnosed at 18. This disease is different for everyone. What works for one person, might not work for everyone. Understand your own disease, foods that trigger, stress and other variables. Keep a journal of your journey through this disease. Don't take bad advice from "experts" on youtube who aren't doctors and GI experts. If you're looking for a "cure"..... You can stop. One person's journey, or long term remission does not constitute a "cure". Your disease is yours, and will be very different from everyone else's. Be realistic about your healing, journey through this. Get a good GI team and listen to them. This webinar was excellent, professionals and doctors who are experts. Keep up your spirits and get supportive people in your life.
THANK YOU! I've just been through the diagnostic process and confirmed long standing Crohns and Ankylosing Spondylitis now at 55yo after almost 20 years of my Drs telling me my blood tests for RA/Lupus, etc are negative so I don't have a "physical" condition, my joint pain, crippling fatigue, peripheral neurothapy, "brain fog/confusion, cheonic (as in years!) watery diarrhoea 12 - 15 times daily (I cant even remeber whatvit feels like to have a "formed stool"!), and depression due to being "dysfunctional" is "menal-health related" (translation: all in your mind...) YES, I DO have mental health problems that are very severely exacerbated by the ongoing physical disability that I somehow caused by my dysfunctional thinking...) but if I'd have seen this video 20 years ago maybe I would have felt confident enough to seek another opinion and push for proper investigations and my life could have been very different... ANYWAY... onward and upward... I'm on the right path now and THANK YOU to all for putting this out there 🙏
Crohns has buggered my life got to the point I got so depressed I tried to snuff myself out the Crohns just got Worse and my brain function deteriorates there’s not much incentive for me to stick around now do it’ll b sionara from me hopefully successfully this time
Having been recently diagnosed with UC and being in my mid 40’s also a mother of three and 2 who are still under 12yrs old. I am currently taking a 8 week prednisone taper and I am having all the negative symptoms of the medication and I still have 2 1/2 weeks left of the taper. I feel so bad for my family for having to deal with my ass right now. I’m a Bear! 🐻 😢 I am constipated but taking prune juice and going every 2-3 days but, I talked to my Doctor about it and he said that if it gets too bad to take myralax now I have diarrhea. TMI I can say that cutting off my sugar and lactic as well as gluten intake, I’ve noticed a lot of difference in being able to pass gas which helps a little. I am already diagnosed with Bipolar disorder among other mental health disorders that I am managing with therapy and medication but, I feel like I’m on Crazy Speed with the Predispose taper which is making hungry but, weak and fatigued. I am irritable. We’re currently struggling financially ( who isn’t) but my body and mind are racing I can’t sleep and my heart is racing. I know that it’s going to make me feel weak for a month or so after I am done taking the Prednisone too. I am on a high protein low fiber low carb diet. No lactose and, only lactose free cheese and stuff. No more soda even diet gives me gas. I have cut down on my caffeine intake I drink one cup a day now and I do crave more sometimes so I’ve started drinking decaf if I want more. I have also realized that Chamomile tea has an anti inflammatory effect on my intestines as well as my blood pressure so it has been very beneficial to me in the last month since my diagnosis. So hopefully 🤞🏼 once the taper is done I can go into remission and start feeling like my old self again and stop worrying about my family wanting to run away from me because I have been an emotional basket case. Best of luck to all who read this if you are suffering today or know someone who is, just keep loving and supporting them. I hope you have an easy journey with this. ❤
I funno about biologics being safe... Tested negative for tb prior to Humira, 6 weeks on it had a followup and tested positive for TB. Like, how common is it to catch it? Was it the weakened immune system? Now its 4 months of tb antibiotics and another 3-4 months before a tb test all while waiting to have any sort of treatment for the origonal issue.
This video is so good!!! Im in a flair up right now and am bed bound (couch bound cuz i need to be near the loo). Im all about the gym and im loseing all m muscell. Im needle phobic so the whole thing is pure hell for me. How good is lifting weights with UC?! Because it helps with my bone health etc!
I've been having some issues and have an appointment with GI doc. I'm hoping its not this, however I feel much better knowing there are ways to manage this. I always think of the worst so even writing this is a struggle.
@@graciesgymnastics4947Im doing fine, thanks for asking. It was IBS thankfully. Its a bit annoying to deal with but I've gotten much better compared when this all started.
Thank you for sharing your knowledge on this subject. My daughter has Crohn’s, she was diagnosed 9 years ago, her freshman year in college. She is now in a flare up with an abscess in or on her colon, she’s on her second round with f antibiotics, week 3. Doctors say the abscess is in a tricky area for surgery. She’s in a lot of pain, any advice you can offer is greatly appreciated.
Thank you so much for such great and very educational video. As my 14 yr old son just got diagnosed with Ulcertive Colitis. I’m trying to educate myself on this disease. Once again thanks so much. Great questions and they did a great job explaining and answering every question.
Find a Functional Medicine Doctor that can help you get to the root cause and fix it. These Western Medicine Dr. Never address the root cause. It is different for everyone but you can help your son heal.
Average age used to be in the 30's and females were most likely; now it's in the teen's. Its our food and the way we live. Stress is a major factor and the way we raise our children. Canteens at schools sell junk to kids so it's hard for parents to monitor what your children eat. Remove diary first and see if that helps. I introduced probiotics, and eliminated caffeine right away. Pop contains caffeine, also eliminate processed packaged foods. Eat as close to nature as possible. Grains has been known to cause gut permeability (leaky gut) because of all the pesticides we spray in America. It's making grains intolerable to lots.
Interesting to hear that a registered dietitian would recommend FIBER and NUTS and SEEDS to a person with Crohn's Disease, and that a gastroenterologist would recommend nothing of value except DRUGS that really destroy the immune system and in general our lives. We need to hear from a doctor and a dietitian that have Crohn's Disease themselves, so they would understand what it is really like.
Glyphosate. It's called gyphosate, and it was originally conceived of as an antibiotic. They spray it on your grains just to desiccate them (dry them out), and on the crops as they grow.
I have had episodes of Ulcerative Colitis, diagnosed by colonoscopy about every 5 - 6 years for the last 20 years, one requiring hospitalisation and the others managed by diet, medication and lots of rest for about one month. The periods in between have been totally free of signs and symptoms, and any medication. I eat well and can afford the best of food without too much grains and sugar. I have noticed in retrospect that most of the onsets have been following tension in my life. As a retired medical doctor I am clear that this is a multifactorial disease which requires flexibility in the approach to managing and curing this inflammatory disease. The research is clear that medication is only a small part of this unfortunate process.
Lots of factors can affect you to have UC. I was diagnosed at 24 yrs old..my mum at 50 yrs old diagnosed with Crohn’s…my mum has a stoma, I haven’t hardly been in remission & I am 49 yrs old now.
I have almost the same issue. After a random small bowel perforation in 2015, was told no crohns, had a resection and reversal in 2016, and now being diagnosed with crohns 😢
I agree. And I would add that it's very helpful to drink a large glass of water (filtered water, not tap water) right when you wake up in the morning. We must be faithful servants to our guts.
I’ve been off medications for 25 yrs and symptom free. It’s about diet. Change your diet and the body heals itself. All scopes have been a perfectly normal bowl without meds.
As both Drs pointed out, it is a very individual thing and different for everyone. I'm happy this works for you, and certainly for myself maintaining the diet and lifestyle that is right for me has also had huge benefits, like massive! But that's blnot to say it's enough on its own or that it works for everyone. I think telling people they don't need their medication if they "eat right", is not only irresponsible, but also incredibly arrogant, assuming you based on your own small (in the grand scheme of things) experience, somehow know more than all the specialists, scientists, and most importantly PATIENT'S, that have done countless hours of research, study, testing, trialling and collaborating to find answers and solutions for people like you and me.
@@rashmipokharna7522 just a dairy free gluten free diet. Mostly dairy free for a long time (10 yrs) and eventually added cream to my coffee again. I ate more organic, less processed or fast foods. I cook 90% of my food and buy as much organic as my finances will allow.
I was so so happy tat I came across this podcast I had a dreadful attack of U C in te past 2 weeks and I was bed bound with pai However this time I had a horrible smell from the mucus that I had not had b4 I have been searching the net about B D Ur info in this chat was brilliant but I would like to know what the awful smell came from Thank u
Any research on the use of Metamucil? What about going vegetarian or vegan? I just listened to Dr discussing the benefits of avoiding high sulfur foods ( meats) .
Dr I’m surprised at your answer “we don’t know why the increase in chrons and coiltis”. Probiotics are a must! Instead of just cutting the wire to the oil lite why not find the cause. Monsanto! Grows and makes all filler products out of soybean, have you ever look into the soy bean? Soy bean oils are in every fast food product on the market cause it’s cheap. When You eat soybean oil all of us have an allergic reaction but people can’t tell at that moment the long term damage it causes to the digestion system. Soybean products also cause female hormones to become more prevalent in men, such as man boobs and feminine characteristics. It also damaged the hormones of women. Check the labels of bug spray products which contain soybean oil. Not to mention the 70s raised TV dinner population. You a doctor you! Should be more intuitive and understanding of mind body and spirit. By the way vitamin D needs to be taken in high doses 10,000 a day or more. Please watch other videos on TH-cam. You should be proud you got your degree to become a doctor but take the blinders off, at your age you should really understand what’s happening from your yrs of experience.
And butyrate the post biotic which helps with toxins is very important but only found in fermented vegetables and butter yoghurt and cheese. Unfortunately being allergic to casein I can only get it from fermented foods..
Thanks to all of you for sharing so much of information, living with UC or Chron's is difficult, and it's important to understand that it is a condition that will last for life long so, accept it and take action as necessary, and get it in control and be happy, hope someday our pharma industry would look for medication that will cure than just controlling
Thank you for these information cause my grandchild have this kind of disease and she’s only 15 yrs old it was controlled tru injection coz tablets don’t accept in her body I hope that her treatment works better
Very good talking with the double Physician and Dietitian. I love to see this, because it is a multi professional approach. I don’t know which diet people have been following nowadays, and of course it is total personal management, but our patients with dietetics restrictions, offering of nutritional supplementation, according to individual requirements, and also disease, symptoms and treatment demands besides soluble fiber acting as prebiotic and more probiotic , always entered in remission without progression. It’s no doubt, that food make disease worst. Just think about inflammatory impact of all food. By the way: Registered Dietitian is the same nomination as Hospital / Clinical Nutritionist in other countries. We have 4- 5 years ( whole day) of University plus specialization in Clinical Nutrition and others developed experience in Gastroenterology and like: developed a protocol to treat nutritionally the patients with Inflammatory Bowel Diseases 30 years ago. Hope all patients looking for always the specialists in this diseases to be well treated and followed.
My sister have crohn's disease she is suffering from last 3 years operation have done in 2021 her age is now 19 small intestine bowl problem anybody guide please what to give food for her she eats only pure veg
Hi! I’m not a healthcare professional, but maybe try talking to her gastroenterologist or maybe a dietician that specializes in crafting diets for people with IBD’s? They might be of help.
Very good information although I would not discount the work of Registered Holistic Nutritionists. Yes, it is true that they are not regulated but it doesn't mean that they don't have the knowledge that Dieticians have. Most of them do. The RHN program is very intensive and many RD have done the program after their RD degree and have learned as much information and have been able to fill in the gaps. Science and data is not always what works. Functional medicine plays a huge role in the ability to heal the whole body, which is many times missed by mainstream medicine.
Can anyone please help me to understand if I have UC or Crohn's disease or something else? I have been dealing recently with frequent bowel movements in the morning sometimes (3-6 times), also having heartburn every morning and left sided abdominal pain/discomfort. My tools sometimes look like mushy pies but bright brown coloured and malabsorbed. What could be my condition? My blood markers all fine, except the fecal Calprotectin which was 91ug/g last time. Thank you
@@jeffreyacujedo7697patingin po kayu sa doc.ksi saken i tot gallbladder, di pala. May Ibd po ako ngayon.. more gulay ang protein po. Laking tulong mga veggies. Cant eat solid foods pala.
I cannot take vitamin A as I take colestyramine powder once a day. As this is condraindication and ended up in hospital when taking vitamin A before. Im also have iron-defiency, the iron infusion I'll never have again as the side effects are awful. Im lactose intolerant so dont eat dairy
Really good interview. Summarises much of what I've have learned coping with this condition for the last 6 years (UC). Thank you for sharing, for the information and for the effort. Really clear information ✨🌻
I’m in a chrons attack right now! I have done exhaustive research and found that countries like Canada, the UK and Australia… do the best research and have better treatment than the US. Unfortunately I’m in the US😢 I also have peripheral neuropathy! I am miserable!
People Keep Saying It's The Food When Our Food Is Actually Better Than It Was 10 Years Ago It's Most Likely The Fact That More People Are Doing Their Own Research To Figure It Out Themselves Then Taking That Information To Their Doctors.. 🤔🤨
Why don't you talk about the cost of treatment. It's expensive for insurance companies and drives insurance premiums up and if you are Medicare the drug companies don't help with out of pocket cost. So yes we look for more affordable options to control the disease
Regarding the example that medications must not be discontinued for high blood pressure and diabetes, even if disease is controlled: If ones blood pressure is now under control with diet and other lifestyle changes, the addition of medication may cause blood pressure to drop too low and needs to be discontinued. Same with diabetes. A person can potentially control their type 2 diabetes with diet and exercise and can, in that case,, enable one to discontinue medication.
TRY fasting everyday and dont worry about anything. Stay calm and your inflamation goes away. Fasting is very benificial trust me your symptons goes away. Fasting heal your gut health and overall health. It can generates new stem cells. Try 18hours water only fast and the rest of 6hours window you can eat. 1f 18 is more then do 14h but try not eat too much in the 10hours . No fastfood no seed oils no sugar no wheat ) white rice is ok and meat, fish, cooked vegetables & fruites ( apples & banana & permogranate ) cabbage juice . Chicken soup & meat soup . Gradually take your fast to 18hours then 20 then 24 and then 36hours. Dont do any stresfull job if you doing it try job where you feel happy. Watch funny videos which make you happy. Try exercise every day. Fasting will help you 100% gurentee. Have faith trust in God Almighty who created us God will heal every diseas. I pray to God whoever is suffering will get speedy recovery Amin.
I found it very informative for myself I've just been through the diagnostic process and confirmed long standing Crohns and Ankylosing Spondylitis now at 55yo after almost 20 years of my Drs telling me my blood tests for RA/Lupus, etc are negative so I don't have a "physical" condition, my joint pain, crippling fatigue, peripheral neurothapy, "brain fog/confusion, cheonic (as in years!) watery diarrhoea 12 - 15 times daily (I cant even remeber whatvit feels like to have a "formed stool"!), and depression due to being "dysfunctional" is "menal-health related" (translation: all in your mind...) YES, I DO have mental health problems that are very severely exacerbated by the ongoing physical disability that I somehow caused by my dysfunctional thinking...) but if I'd have seen this video 20 years ago maybe I would have felt confident enough to seek another opinion and push for proper investigations and my life could have been very different... ANYWAY... onward and upward... I'm on the right path now and THANK YOU to all for putting this out there 🙏
IBD is rising because of all the PROCESSED foods and needless chemicals in food.
And is your comment evidence based ?
@@Cymruohyd hahaha open your eyes and look around you, it's all about food companies making the most profit by pumping your food with the cheapest ingredients, mainly seed oils, and highly refined and processed ingredients, your gut doesn't recognise them because the food becomes so far removed from its original organic form that it causes inflammation in the gut, then add in modern stressful lifestyles and pesticides and you have a recipe for mass chronic disease
@@Cymruohyd yes it is the guy is correct
Couldnt agree more. Being an IBD sufferer, I analyse the ingredients on the back of food packaging, it amazes me how many chemicals are added. If its not natural, it cant be good for the body.
@@Cymruohyd absolutely, there's been multiple studies that the 'western diet' which has a lot of processed foods with all sorts of needless chemicals, in developed countries has seen a large incidence of IBD whereas poorer countries, not so. Also countries also starting to adopt this processed food diet have started seeing a rise in IBD.
There's more and more evidence that what's happening is there is a dysbiosis in the gut microbiome in IBD sufferers. Eating natural probiotic and prebiotic foods such as KEFIR, blueberries, potatoes, apples etc etc etc, does wonders for your gut instead of shovelling processed rubbish down your throat.
You are what you eat and eating healthily can only help improve the symptoms of IBD. It's not an overnight fix either.
This is from my experience and research of published articles. If this helps anyone suffering with uc, I celebrate you. I believe uc is a symptom and the underlying cause is multi-dimensional. Almost 60 yesrs ago, the primary cause for me was my inability to deal with rejection and cruel gaslighting. The assault on self image as a teen in process of finding who she is changed behaviors. Self care, heallthy eating, mindset all deteriorated to neglect and self hatred. It is a fact that deficiencies of B1, B12, Folic acid, Iron, Mg, Zinc , Vitamin C, Vitamin A & D, omega-3s result in mucosal ulcers in corresponding degrees. Bacteria invade these breaks in the intestinal mucosa and stimulate a somewhat violent immune response. Yes some food sensitivities can set up the GI tract for problems. For me it is nightshades, dry beans including soy products, commercial baked goods, refined sugars, convenience foods loaded with preservatives. For 20 years I had zero symptoms after recovering from a long hospitalization for sepsis and toxic megacolon. I did this with a diet primarily of chicken, beef fish, a variety of vegetables and fruits, lots of greens. Almost no bread, rare treats, limited dairy. I did this on my own and kept my body very fit. I rebewed my Spiritual connection with God and set boundaries for relationships. I enjoyed creative outlets like singing and art. About 20 years later, When I could not leave a hostile and stressful, job environment my healthy diet reverted to convenience foods or not eating at all. My gut blew up after antibiotic treatment for bronchitis. It spiraled out of control rapidly and I had life-saving surgery that impacted my nutrition permanently. So I now replace a lot of the vitamins and minerals daily because my transit time is less than 2 hours. Dehydration is a daily battle and I have 2° stage 3-4 kidney issuesbecause of it.
My point is this. If you are troubled with IBD or uc, self assess your diet, your lifestyle, how you deal with negative emotions. We sensitive types tend to internalize emotional pain, and that results in stored trauma. Resolves nothing. In my case, uc was my body's response to self neglect and internalizing emotional stress and negativity, and not loving me enough to take care of myself spiritually, physically, or emotionally. It really is all about balance.
My heartfelt desire is that if you benefit from my experience, you find the best ways to eliminate GI issues permanently.
I have a MS in Microbiology and Preventive Medicine, I am 75, and I expect to live well to 100 and beyond. Best wishes for your good health, may God bless you with love.
❤️🙏
Thanks for this comment! Informative and Inspiring ❤
Low carb doesn't have to be very restricted. Doesn't have to be high in fat either. Low carb and fasting put my UC Into remission for the last 5 years and I'm still in remission.
If you do low carb without eating high fat, you will frack yourself up… your body either runs on glucose or fat (ketones).
Are you ok now?
Do u take medication during remission
Clearly related with what we eat, despite not being proved yet. If it is a bowel dis ease, probably what we eat and drink have a big impact on it
Ya think?? 😂
Thank you for sharing this information. So much misinformation out there. These two professionals seem to be very well rounded with accurate information on IBD. This is the first dietician
that seems to actually understand IBD and the patients experience with the disease and how hard food is to figure out. I'm so happy she talked about soluble fibers.
I fart all the time & it is very offencive very embarrassing...what is that? I have no control
The nutritionist recommends a nonrestrictive diet. When I see that, I realize why for people like her Crohn’s disease is incurable. If the patient eats whatever he or she wants, they will never maintain their illness in remission
yes and the standard comment of GI is food doesn't matter.
Yes, I just got diagnosed with Crohns last week. Guess what when I asked my doctor what should I eat, he literally told me eat whatever you want. He prescribed me Skyrizi infusion, once per month. One injection is about 22k . I started doing research about diet and I am following a very strict diet. I felt 99% better.
Thanks for telling me it’s a waste of time I knew it would be coming from doctors
Thank you both very much for the fantastic information. Im a new sufferer & this information is so informative.
There was only a brief mention about antibiotic use. I have direct knowledge. I had surgery, then sepsis with massive amounts of antibiotics. After a year, my abdomen blew up like I was pregnant. I finally was able to get off antibiotics but I've had horrible inflammation ever since. I've been trying to do my own research ever since.
Do you have ulcerative colitis? Or inflammation?
This was a great discussion. Dr. Gray and Ms. Nanson provided helpful diet info and examples. Thank you. -Andrew (GI/HEP NP). Sadly, hard to get a good dietitian locally.
Thanks for useful conversations you have made with the professionals on IBD, and keep up with the good work
This was the most helpful video ever!!!! Thank you!!!
What bothers me is the focus on managing symptoms rather than understanding the rootcause and addressing it. Everything is about medication. Disease will never go away if the focus is on medicating symptoms.
Exactly!
Yeah. But the root cause my be untreatable. For instance. Children who are exposed to lots of passive smoking growing up are 80% more likely to develop gif issues including IBD. What you have in these genetically susceptible individuals is an immune system malfunction by environmental factors whilst the immune system is developing. There is no cure for that.
We are servants to our guts. This was a very informative discussion. I'm really glad that Remicade is considered safe for long term use. I just started infusions of Remicade/Inflectra at the end of March 2023, and this medicine has worked amazingly well for me. It's like a dark cloud has left me, and I have hope for the future! As for probiotics, I recommend homemade kefir. I make my kefir with raw unpasteurized whole milk that I buy at Sprouts Market. I look forward to my kefir smoothies every day. -I wish other ulcerative colitis patients the best of luck!
I was diagnos i have ulceratve colitis i taken medecine but my prob lem is about what to eat
Please explain how do you make kefir at home.
I find it interesting how these people didn’t mention of whole food plant based diet to help prevent UC flares when there is a lot of research showing the benefits.
People with these conditions do not tolerate a lot of plants or fiber well. She even said this…🙄
@@Texasgirlinacrazyworld I have UC... fiber is not tolerable during a flare but is extremely important and beneficial when you're not in a flare...as mentioned the research literally say this about UC and Chron's
Many people with IBD respond better to a total meat diet than a plant based diet.
@@mrc2165 A total meat diet? LOL! Do you have a credible source for this claim? Almost everyone needs a low/no fiber and meat diet during a flare but it's not the case when you're not in a flare. It is actually recommended to increase fiber when you're not in a flare to re-establish a healthy gut microbiome and there is plenty of evidence showing how it helps to manage IBD in remission. Meat is associated with a higher risk of UC and Chrons. This is basic stuff you will find if you just google meat and IBD.
Search "IBD and carnivore diet". Many are living in total remission for years and longer on a total meat based diet.
Glyphosates and undiagnosed gluten and food sensitivities and nutritional deficiencies
As a UC recepient I very much appreciate this information.
I'm 50 and diagnosed at 18. This disease is different for everyone. What works for one person, might not work for everyone. Understand your own disease, foods that trigger, stress and other variables. Keep a journal of your journey through this disease. Don't take bad advice from "experts" on youtube who aren't doctors and GI experts. If you're looking for a "cure"..... You can stop. One person's journey, or long term remission does not constitute a "cure". Your disease is yours, and will be very different from everyone else's. Be realistic about your healing, journey through this.
Get a good GI team and listen to them. This webinar was excellent, professionals and doctors who are experts.
Keep up your spirits and get supportive people in your life.
THANK YOU! I've just been through the diagnostic process and confirmed long standing Crohns and Ankylosing Spondylitis now at 55yo after almost 20 years of my Drs telling me my blood tests for RA/Lupus, etc are negative so I don't have a "physical" condition, my joint pain, crippling fatigue, peripheral neurothapy, "brain fog/confusion, cheonic (as in years!) watery diarrhoea 12 - 15 times daily (I cant even remeber whatvit feels like to have a "formed stool"!), and depression due to being "dysfunctional" is "menal-health related" (translation: all in your mind...) YES, I DO have mental health problems that are very severely exacerbated by the ongoing physical disability that I somehow caused by my dysfunctional thinking...) but if I'd have seen this video 20 years ago maybe I would have felt confident enough to seek another opinion and push for proper investigations and my life could have been very different... ANYWAY... onward and upward... I'm on the right path now and THANK YOU to all for putting this out there 🙏
Crohns has buggered my life got to the point I got so depressed I tried to snuff myself out the Crohns just got
Worse and my brain function deteriorates there’s not much incentive for me to stick around now do it’ll b sionara from me hopefully successfully this time
I think medics should do brain Functional MRIs when one is in a flare Crohns has manifestations in the brain mind
Having been recently diagnosed with UC and being in my mid 40’s also a mother of three and 2 who are still under 12yrs old. I am currently taking a 8 week prednisone taper and I am having all the negative symptoms of the medication and I still have 2 1/2 weeks left of the taper. I feel so bad for my family for having to deal with my ass right now. I’m a Bear! 🐻 😢
I am constipated but taking prune juice and going every 2-3 days but, I talked to my Doctor about it and he said that if it gets too bad to take myralax now I have diarrhea. TMI
I can say that cutting off my sugar and lactic as well as gluten intake, I’ve noticed a lot of difference in being able to pass gas which helps a little. I am already diagnosed with Bipolar disorder among other mental health disorders that I am managing with therapy and medication but, I feel like I’m on Crazy Speed with the Predispose taper which is making hungry but, weak and fatigued. I am irritable. We’re currently struggling financially ( who isn’t) but my body and mind are racing I can’t sleep and my heart is racing. I know that it’s going to make me feel weak for a month or so after I am done taking the Prednisone too. I am on a high protein low fiber low carb diet. No lactose and, only lactose free cheese and stuff. No more soda even diet gives me gas. I have cut down on my caffeine intake I drink one cup a day now and I do crave more sometimes so I’ve started drinking decaf if I want more. I have also realized that Chamomile tea has an anti inflammatory effect on my intestines as well as my blood pressure so it has been very beneficial to me in the last month since my diagnosis. So hopefully 🤞🏼 once the taper is done I can go into remission and start feeling like my old self again and stop worrying about my family wanting to run away from me because I have been an emotional basket case.
Best of luck to all who read this if you are suffering today or know someone who is, just keep loving and supporting them. I hope you have an easy journey with this. ❤
I funno about biologics being safe...
Tested negative for tb prior to Humira, 6 weeks on it had a followup and tested positive for TB. Like, how common is it to catch it? Was it the weakened immune system? Now its 4 months of tb antibiotics and another 3-4 months before a tb test all while waiting to have any sort of treatment for the origonal issue.
Nice conversation. I hope that something in here will be helpful to me and my imprecisely and incompletely diagnosed condition
Casein allergy to dairy is also an issue I have so it’s not always lactose
This video is so good!!! Im in a flair up right now and am bed bound (couch bound cuz i need to be near the loo). Im all about the gym and im loseing all m muscell. Im needle phobic so the whole thing is pure hell for me. How good is lifting weights with UC?! Because it helps with my bone health etc!
I've been having some issues and have an appointment with GI doc. I'm hoping its not this, however I feel much better knowing there are ways to manage this. I always think of the worst so even writing this is a struggle.
How r u?
@@graciesgymnastics4947Im doing fine, thanks for asking. It was IBS thankfully. Its a bit annoying to deal with but I've gotten much better compared when this all started.
Thank you, I learned a lot and have a better understanding of what to look for in my future. Appreciate all.
I began drinking, and have remained doing so, oat and soya milk four years ago. I now permanently avoid 'regular' milk.
And did this cure you?
Thank you for sharing your knowledge on this subject. My daughter has Crohn’s, she was diagnosed 9 years ago, her freshman year in college. She is now in a flare up with an abscess in or on her colon, she’s on her second round with f antibiotics, week 3. Doctors say the abscess is in a tricky area for surgery. She’s in a lot of pain, any advice you can offer is greatly appreciated.
Are is she now? ❤
Thank you so much for such great and very educational video. As my 14 yr old son just got diagnosed with Ulcertive Colitis. I’m trying to educate myself on this disease. Once again thanks so much. Great questions and they did a great job explaining and answering every question.
Find a Functional Medicine Doctor that can help you get to the root cause and fix it. These Western Medicine Dr. Never address the root cause. It is different for everyone but you can help your son heal.
My brother also got it at 14 and he is now 28
@@alicechuss8204 How did he heal himself
You can’t heal it. You can try to manage the flares. Don’t believe people who claim they cure it, they aren’t.
Average age used to be in the 30's and females were most likely; now it's in the teen's. Its our food and the way we live. Stress is a major factor and the way we raise our children. Canteens at schools sell junk to kids so it's hard for parents to monitor what your children eat. Remove diary first and see if that helps. I introduced probiotics, and eliminated caffeine right away. Pop contains caffeine, also eliminate processed packaged foods. Eat as close to nature as possible. Grains has been known to cause gut permeability (leaky gut) because of all the pesticides we spray in America. It's making grains intolerable to lots.
Interesting to hear that a registered dietitian would recommend FIBER and NUTS and SEEDS to a person with Crohn's Disease, and that a gastroenterologist would recommend nothing of value except DRUGS that really destroy the immune system and in general our lives. We need to hear from a doctor and a dietitian that have Crohn's Disease themselves, so they would understand what it is really like.
Glyphosate. It's called gyphosate, and it was originally conceived of as an antibiotic. They spray it on your grains just to desiccate them (dry them out), and on the crops as they grow.
Ì have crohn's disease
Thank you for infor ,
Mcd
there is one thing i did not hear about was the use of fermented foods. do they help repair the gut
I have had episodes of Ulcerative Colitis, diagnosed by colonoscopy about every 5 - 6 years for the last 20 years, one requiring hospitalisation and the others managed by diet, medication and lots of rest for about one month. The periods in between have been totally free of signs and symptoms, and any medication. I eat well and can afford the best of food without too much grains and sugar. I have noticed in retrospect that most of the onsets have been following tension in my life. As a retired medical doctor I am clear that this is a multifactorial disease which requires flexibility in the approach to managing and curing this inflammatory disease. The research is clear that medication is only a small part of this unfortunate process.
Lots of factors can affect you to have UC. I was diagnosed at 24 yrs old..my mum at 50 yrs old diagnosed with Crohn’s…my mum has a stoma, I haven’t hardly been in remission & I am 49 yrs old now.
This was so so helpful for me just needing to be heard thank you
UC came on 6 months after having an emergency appendectomy. Is there a correlation?
I have almost the same issue. After a random small bowel perforation in 2015, was told no crohns, had a resection and reversal in 2016, and now being diagnosed with crohns 😢
were you on antibiotics?
Yes there is my doc.said to me. I think cecum is near to appendix. Thats my situation right now.
Always and I mean always drink plenty of water !!!!
I agree. And I would add that it's very helpful to drink a large glass of water (filtered water, not tap water) right when you wake up in the morning. We must be faithful servants to our guts.
Thank you for sharing this information.
Wonderful interview! Thanks for sharing it with us!!
I’ve been off medications for 25 yrs and symptom free. It’s about diet. Change your diet and the body heals itself. All scopes have been a perfectly normal bowl without meds.
What is your diet then? Not everyone thrives on the same thing…
As both Drs pointed out, it is a very individual thing and different for everyone. I'm happy this works for you, and certainly for myself maintaining the diet and lifestyle that is right for me has also had huge benefits, like massive! But that's blnot to say it's enough on its own or that it works for everyone. I think telling people they don't need their medication if they "eat right", is not only irresponsible, but also incredibly arrogant, assuming you based on your own small (in the grand scheme of things) experience, somehow know more than all the specialists, scientists, and most importantly PATIENT'S, that have done countless hours of research, study, testing, trialling and collaborating to find answers and solutions for people like you and me.
Maybe for you but not for everyone
What diet did you follow?
@@rashmipokharna7522 just a dairy free gluten free diet. Mostly dairy free for a long time (10 yrs) and eventually added cream to my coffee again. I ate more organic, less processed or fast foods. I cook 90% of my food and buy as much organic as my finances will allow.
I was so so happy tat I came across this podcast
I had a dreadful attack of U C in te past 2 weeks and I was bed bound with pai
However this time I had a horrible smell from the mucus that I had not had b4
I have been searching the net about B D
Ur info in this chat was brilliant but I would like to know what the awful smell came from
Thank u
Hemani Black seed oil will help you...and honey
Have you find out why is the smell? I had it couple times also.
@@SuperMrAndersen u had chrohns or uc ?
Any research on the use of Metamucil? What about going vegetarian or vegan? I just listened to Dr discussing the benefits of avoiding high sulfur foods ( meats) .
Dr I’m surprised at your answer “we don’t know why the increase in chrons and coiltis”. Probiotics are a must! Instead of just cutting the wire to the oil lite why not find the cause. Monsanto! Grows and makes all filler products out of soybean, have you ever look into the soy bean? Soy bean oils are in every fast food product on the market cause it’s cheap. When You eat soybean oil all of us have an allergic reaction but people can’t tell at that moment the long term damage it causes to the digestion system. Soybean products also cause female hormones to become more prevalent in men, such as man boobs and feminine characteristics. It also damaged the hormones of women. Check the labels of bug spray products which contain soybean oil. Not to mention the 70s raised TV dinner population. You a doctor you! Should be more intuitive and understanding of mind body and spirit. By the way vitamin D needs to be taken in high doses 10,000 a day or more. Please watch other videos on TH-cam. You should be proud you got your degree to become a doctor but take the blinders off, at your age you should really understand what’s happening from your yrs of experience.
Probiotics really arent that great. And most people who have a wrecked gut can’t tolerate them. Prebiotic fibers more important.
And butyrate the post biotic which helps with toxins is very important but only found in fermented vegetables and butter yoghurt and cheese. Unfortunately being allergic to casein I can only get it from fermented foods..
@@Texasgirlinacrazyworldprobiotics still help but if we don’t feed them with prebiotics they die
Thanks to all of you for sharing so much of information, living with UC or Chron's is difficult, and it's important to understand that it is a condition that will last for life long so, accept it and take action as necessary, and get it in control and be happy, hope someday our pharma industry would look for medication that will cure than just controlling
There are ways to heal. Find a good Functional Medicine Doctor and get to the root cause. Don’t just cover up the symptoms with drugs.
it is not the pharma's goal to "cure" - they only exist to treat the symptoms, even if they fail.
@@kerrytabak7585 It's a chronic disease, there's no clear cause and there's no cure, it's just managing the symptoms.
Thank you for these information cause my grandchild have this kind of disease and she’s only 15 yrs old it was controlled tru injection coz tablets don’t accept in her body I hope that her treatment works better
She ended up having surgery in October 2023. They removed a foot of her colon. She has an ileomy which she is scheduled for reversal next month.
Sometimes it’s the food, and sometimes it’s stress. Knowing that doesn’t help.
Thank you doc's. I was just diagnosed 😢
A great, informative video! Thanks!
Very good talking with the double Physician and Dietitian. I love to see this, because it is a multi professional approach.
I don’t know which diet people have been following nowadays, and of course it is total personal management, but our patients with dietetics restrictions, offering of nutritional supplementation, according to individual requirements, and also disease, symptoms and treatment demands besides soluble fiber acting as prebiotic and more probiotic , always entered in remission without progression.
It’s no doubt, that food make disease worst.
Just think about inflammatory impact of all food.
By the way: Registered Dietitian is the same nomination as Hospital / Clinical Nutritionist in other countries.
We have 4- 5 years ( whole day) of University plus specialization in Clinical Nutrition and others developed experience in Gastroenterology and like: developed a protocol to treat nutritionally the patients with Inflammatory Bowel Diseases 30 years ago.
Hope all patients looking for always the specialists in this diseases to be well treated and followed.
My sister have crohn's disease she is suffering from last 3 years operation have done in 2021 her age is now 19 small intestine bowl problem anybody guide please what to give food for her she eats only pure veg
Hi! I’m not a healthcare professional, but maybe try talking to her gastroenterologist or maybe a dietician that specializes in crafting diets for people with IBD’s? They might be of help.
Aren’t lectins in skins and seeds of some vegetables, seeds, and nuts a major cause of gut irritation and inflammation in many people?
This discussion is so pertinent. I’m an RDN . Is there CEU credit for this?
Increasing in North America. We know why! It's high fructose corn syrup and Monsanto and antibiotics.
Thank you for this review
what probiotics did they talk? any specific recomendation?
This guy says we don't know the cause, I've had uc for 18yrs and the cause is the food we eat.
Not True In All Cases Some People Eat Very Healthy And Still Suffer From The Disease..
Which guy
True and lifestyle.. acid reflux can also be the reason, peptic ulcer etc.
What an uneducated comment...
Yep, don't know the cause (because that isn't important, what is important is selling drugs.) and no cure.
The medical profession is in such a box when it comes to diseases! Go to a naturopath or functional doctor.
Very good information although I would not discount the work of Registered Holistic Nutritionists. Yes, it is true that they are not regulated but it doesn't mean that they don't have the knowledge that Dieticians have. Most of them do. The RHN program is very intensive and many RD have done the program after their RD degree and have learned as much information and have been able to fill in the gaps. Science and data is not always what works. Functional medicine plays a huge role in the ability to heal the whole body, which is many times missed by mainstream medicine.
Excellent video. Thank you all very much. I learned a lot 😍
Can anyone please help me to understand if I have UC or Crohn's disease or something else? I have been dealing recently with frequent bowel movements in the morning sometimes (3-6 times), also having heartburn every morning and left sided abdominal pain/discomfort. My tools sometimes look like mushy pies but bright brown coloured and malabsorbed.
What could be my condition?
My blood markers all fine, except the fecal Calprotectin which was 91ug/g last time.
Thank you
I suggest you go and see and doctor and get tests which will check what you have.
Same here ,left side pain,, I don't know wht is it,, I'm from phillipines, almost 1year my left pain,,
@@jeffreyacujedo7697patingin po kayu sa doc.ksi saken i tot gallbladder, di pala. May Ibd po ako ngayon.. more gulay ang protein po. Laking tulong mga veggies. Cant eat solid foods pala.
@@jeffreyacujedo7697 did u have any diagnosis ?
I cannot take vitamin A as I take colestyramine powder once a day. As this is condraindication and ended up in hospital when taking vitamin A before. Im also have iron-defiency, the iron infusion I'll never have again as the side effects are awful. Im lactose intolerant so dont eat dairy
Really good information. (But I don't agree on the last comment: I don't think any IBD patient ignores the importance of nutrition.)
Really good interview. Summarises much of what I've have learned coping with this condition for the last 6 years (UC). Thank you for sharing, for the information and for the effort. Really clear information ✨🌻
About bones, she didn't mention about the importance of vitamin K2 🤦🙆♂️..
I’m in a chrons attack right now! I have done exhaustive research and found that countries like Canada, the UK and Australia… do the best research and have better treatment than the US. Unfortunately I’m in the US😢 I also have peripheral neuropathy! I am miserable!
No carb and milk. Try Vit B1 and Zink.
Just bugs me that no one wants to get to root causes !!!!
EVERYBODY wants to find the root cause!!!
Can UC suffers follow intermitent fasting?
Yes. It helps.
Can uc patient take resistance starch?
People Keep Saying It's The Food When Our Food Is Actually Better Than It Was 10 Years Ago It's Most Likely The Fact That More People Are Doing Their Own Research To Figure It Out Themselves Then Taking That Information To Their Doctors.. 🤔🤨
Excellent information. Thank you so much 💓
For me (have uc) the carnivore diet is doing wonders. Worth a try if you are suffering!
Why don't you talk about the cost of treatment. It's expensive for insurance companies and drives insurance premiums up and if you are Medicare the drug companies don't help with out of pocket cost. So yes we look for more affordable options to control the disease
This specific video is not about drug costs. badgut.org/bc-equitable-medication-care/
Thank you 🙏
Great webinar! Thank you very much for this
THANK YOU SO VERY MUCH FOR THIS 🙏
Regarding the example that medications must not be discontinued for high blood pressure and diabetes, even if disease is controlled: If ones blood pressure is now under control with diet and other lifestyle changes, the addition of medication may cause blood pressure to drop too low and needs to be discontinued. Same with diabetes. A person can potentially control their type 2 diabetes with diet and exercise and can, in that case,, enable one to discontinue medication.
Thank you so much for sharing this video 🤝
TRY fasting everyday and dont worry about anything. Stay calm and your inflamation goes away. Fasting is very benificial trust me your symptons goes away. Fasting heal your gut health and overall health. It can generates new stem cells. Try 18hours water only fast and the rest of 6hours window you can eat. 1f 18 is more then do 14h but try not eat too much in the 10hours . No fastfood no seed oils no sugar no wheat ) white rice is ok and meat, fish, cooked vegetables & fruites ( apples & banana & permogranate ) cabbage juice . Chicken soup & meat soup . Gradually take your fast to 18hours then 20 then 24 and then 36hours. Dont do any stresfull job if you doing it try job where you feel happy. Watch funny videos which make you happy. Try exercise every day. Fasting will help you 100% gurentee. Have faith trust in God Almighty who created us God will heal every diseas. I pray to God whoever is suffering will get speedy recovery Amin.
Eat real food people if you can get it, cut sugar and all processed foods
❤
Nothing with skins
Not very informative
Sorry this video did not help you, there are more videos in the Living With IBD series you might find one of those helpful.
I found it very informative for myself I've just been through the diagnostic process and confirmed long standing Crohns and Ankylosing Spondylitis now at 55yo after almost 20 years of my Drs telling me my blood tests for RA/Lupus, etc are negative so I don't have a "physical" condition, my joint pain, crippling fatigue, peripheral neurothapy, "brain fog/confusion, cheonic (as in years!) watery diarrhoea 12 - 15 times daily (I cant even remeber whatvit feels like to have a "formed stool"!), and depression due to being "dysfunctional" is "menal-health related" (translation: all in your mind...) YES, I DO have mental health problems that are very severely exacerbated by the ongoing physical disability that I somehow caused by my dysfunctional thinking...) but if I'd have seen this video 20 years ago maybe I would have felt confident enough to seek another opinion and push for proper investigations and my life could have been very different... ANYWAY... onward and upward... I'm on the right path now and THANK YOU to all for putting this out there 🙏