Gluten Sensitivity: a disease of the brain : Professor Marios Hadjivassiliou
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- เผยแพร่เมื่อ 28 ส.ค. 2024
- State of the Art Lecture: Gluten Sensitivity: a disease of the brain where the gut is an innocent bystander!
A talk given by Professor Marios Hadjivassiliou at the 3rd National Dietetic Gastroenterology Symposium in Sheffield.
Part of a session headed Coeliac Disease & Gluten-Related Disorders Chaired by: Rachel Buckle and Julie Thompson (Guts UK)
18th June 2021 - วิทยาศาสตร์และเทคโนโลยี
I've had issues with grains and gluten all my life, but didnt have the knowledge or resources to understand. I'm gluten sensitive, not celiac. It was called pseudo science by previous doctors. I've spent 8 years in and out of the mental hospital with severe psychosis, at 53 - 60 years of age. Its been the most devastating struggle to get help or diagnosis. I'm now gluten-free forever. I also have 'leaky gut'. This video is life- and health- altering. Thank you greatly.
I understand you.. I got into a mental hospital at the age of 18 straight from university. 2003. It's been 20 years since then but damn it I'm not healthy
I'm so, so sorry to hear this. I take it a GF diet made a significant difference to your symptoms?
so you have some cerebellum shrinking, just some? Increase or decrease in gross motor functioning as you have aged? We should be getting better at some thing, not worse.
I am sorry that you struggled so much. If It can helps remember no grains no pain.
How do you manage with casein/lactose ?
Radiologist have a difficult time diagnosing. I have ataxia when I eat gluten. I’ve had an MRI done and the report read “the inferior cerebellar vermis is hypoplastic, which is congenital”. This is how people are misdiagnosed because there is a huge lack of awareness of how gluten affects the brain. I’ve been sick all of my life but my neurological symptoms came in 2007 first with a headache then tingling and I had fluid in my head when I would turn it from right to left; vice versa. Then came the balance issues, difficulty speaking, brain fog, feeling like I’m on a boat. Gluten has shrunk a part of my brain. Doctors think this is rare but it’s not rare it’s just underdiagnosed. So anyone who has neurological symptoms and have had a CT or MRI and the radiologist reports back that you have an abnormality that is congenital but you have neurological symptoms- push for more answers and advocate for yourself and spread the word of this amazing doctor in this video.
Thank you for sharing! Now I know I’m not alone. Your story is my story 🥺 I’m so thankful someone figured it out for me and for you!
Thank you, I’ve been wondering why my head has been so affected
I’ve been feeling the same. Fluids in my head, migraine, dizzy… Finally someone understands!
You may be intersted in new neuroplasticity research that is showing how certain mushrooms like lion's main and psilocybin can promote brain cell growth known as neurogenesis.
Similar situation with me. My MRI showed up with spondylosis of the spine and they also said it was congenital even though one of my symptoms was inability to walk for the 1st half hour each morning (something like a fawn trying to walk for the first time.) I also had symptoms of celiac. I do not have the primary gene that makes celiac certain, but I do have the 2 secondary SNPs that can cause celiac if gluten consumption doesn't stop.
Thank goodness for anyone speaking on this subject. I have suffered from years from Gluten. I had no idea. Bravo 👏 keep us educated.
Me too!
There’s far more knowledge out there now regarding CD, which I’m so very grateful for. Thanks to these wonderful Drs who specialise in CD.
more than you know, more than you know
Prof Hadjivassiliou diagnosed me with gluten ataxia and gluten encephalopathy, however it was the diagnosis of gluten psychosis that was life-changing, and allowed me to reverse what was, until then, a diagnosis of bipolar disorder type 1. I notice at 4:11 the mention of psychosis on the bottom of the slide, but as yet there is still no confirmed numbers or full understanding why some of us go on to develop psychiatric disorders when we eat gluten. Maybe implementing a strict gluten free diet as a first line of treatment for severe mental illness might be a more ethical approach than antipsychotic medication?
I'd recommend you a book named as "wheat belly" and the lectures of William Davis.
I developed psychosis and severe depression, fibromyalgia and CFS on a vegan( gluten heavy) diet. It took me some time to realize I need to cut out grains and milk products 1000%. It can get nasty.
after how many weeks of gluten free diet did u start to feel any difference?
@@hemantpahuja4114 It took about 2 weeks following a very strict gf diet. Complete removal of gluten is hard due to the risk of cross contamination so I needed to buy in new cookware and only ate whole foods (nothing processed) which I cooked at home.
Wow, I am sitting here suffering now and to see there is a way out, is very nice.
It’s important to know that some people also cross-react with gluten from soy, corn, dairy and yeast. Eliminating those triggers may help resolve lingering symptoms.
I had a severe gluten allergy and felt my body deteriorating. Having a leaky gut caused me to have a severe autoimmune response where my body was attacking itself. My brain and gut were all affected. Cut out gluten and now just waiting for my health to improve. Healing the gut is key to preventing a severe reaction to gluten.
How’s it going?
Do not use Gluten Free * prepared commercial food, snacks etc… Some of their ingredients could end being as irritative as the gluten itself for our already sensitive gut. Eat fresh prepared food, as organic, non gm, antibiotic and hormone free as possible. Not related but important: drink distilled or ( preferably AND ) deep aquifers water. Metals can not float in the vapors of distlled water. Some deep aquifers are still clean too. 🚰 and bottled waters in some countries are carrying a metal that we do not want inside of us. Famous now because it is related to the “ modern preventive” You now… 💪.
The protein casein found in dairy can also cause a reaction because it’s similar in structure to gluten. See Dr. Osborne’s lectures on TH-cam.
eat chevre goat cheese daily
I’m have just had my first appointment with Professor Hadjavasilliou . I feel very lucky to live in Sheffield and to be treated by him . He is such a nice man , I think I have had the condition some time , it’s like a light has been turned on . Thank you 🙏 and thanks to you colleague Mr Siva Nair for referral and taking me seriously in the first place . My gp always put it down to ibs , depression and migraine
Five months gluten free and my life has changed dramatically . Feel twenty years younger . Only had two migraines which were nowhere near as intense . I am eternally grateful ❤
I've only realised this myself at 35. I had previously been diagnosed bipolar and adhd. I was using stimulants to turn my brain on but being gluten free for a few days.and I already feel like normal. Super relaxed and clear headed with no anxiety.
@@Tom-ye5dn yes I had really bad anxiety and for life of me didn’t know why , I thought I was loosing plot . Thought I was old and menopausal . I am 😂 but it wasn’t that , it was gluten . It gets better everyday , keep going !
@@Tom-ye5dn I quit several times because of anxiety. I perfectly remember this feeling of losing touch with reality after bread or bread rolls, thoughts get confused and you just fall asleep on the go. It's scary guys. I will not wish the enemy
@@bethanhamer.8669what kind of are you eating im mean diet your food habits and stuff can you please tell that will help me a lot
Wow! I can't believe I stumbled across this channel. I instantly subscribed. I've had balance problems getting worse for over 12 years now. My legs and coordination has gone terrible. I'm so disabled now. Nobody has ever even thought or suggested it may be a gluten problem? Thank you so much for the new inspiration!
Have you gone gluten free
Thank you for posting. My ability to keep my balance (on my feet) was deteriorating at 54 YO. My overall balance was noticeably declining at 34YO with ice skating, horseback riding. My brilliant psychiatrist suggested a gluten free diet. I no longer need to use a railing, I wouldn’t even consider hanging on to railing today. Now 61YO. However unfortunately my balance in Yoga class is awful. There must be permanent damage.
I have kept a meticulous journal for 6 years with symptom resolution, or no change.
I hold a BS degree in biology, and BS in Pharmacy. I would love to share my information with you, along with resolution of chronic fatigue syndrome, brain fog. inability to speak fluently, memory improvement (although dementia seems to be advancing). Many many other of my symptoms may be related as well.
Currently my son and one daughter experience significant symptoms of this disease.
If I can be of any help in this research or my data, please reply.
hey lori, i’m interested in how you deal with brain fog. mines been so bad recently on top of blurry vision and i just don’t know what to do
Hi Macie, for years I would describe the feeling as “being in a daze”. I had this as a young girl and it worsened to 1-2 days a week in college, until it ruled my world 5-7 days a week in my 50’s. I used what was available, sugar and caffeine to get my brain to work. At work, the afternoons were worse, I would consume 4-8 cookies and tea, candy bars and coffee. Sweet snacks throughout the day. A nurse introduced me to the phrase brain fog, and I knew that was what I had.
I should add that after 10 weeks without gluten, I’ve had no brain fog days. Six years later at 61 years old, I’ve had no brain fog. I did eat an egg McMuffin a few years ago, the foggy feeling came back the next day with balance issues. I now consider gluten to be a poison to my brain.
I have same...see my video
One year, no fat, no dairy, no meat, celery juice, lemon water, no gluten, no preservatives, Fiji water, fruits and vegetables, honey, maple syrup. Detox smoothies. No chemicals around you. And you will get better on top of better. Medical medium, by Anthony Williams. ❤️
Thank you for this video. There is not enough information available. I was diagnosed at 54. I am so blessed that many of my symptoms have improved. My balance has greatly improved, as I no longer have to use handrails. However now at 61 years GF I still can not easily stand in yoga poses etc. I have to use a wall for balance.
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A very informative lecture which really describes my symptoms to a T. I have been on a wheat and gluten free diet since 2016,where I used to have a breakout of hives and anaphylaxis along with gut disturbances of bloating and diarrhea sometimes with blood and mucus in the stool too.(Been happening for several years) I was diagnosed with severe Stroke like migraine(Hemiplegic related) in 2021 due to having balance and slurred speech after being admitted many times to hospital,on 3 MRI's I've had done dating back to 2012 and this year there are findings of white matter Ischemic changes. I have had to have had CPR done twice this year due to all this occurring and am under the care of a Hematologist and several other Specialists which seems to be a race against time to get a proper diagnosis. Seems I have multiple disorders but most are Neurological related.
Best thing I done in years was to eliminate Wheat / Gluten from my diet
Very interesting presentation. I am a gluten free person.
Gluten messes up health in so many ways
Dairy should be avoided too. Casein can mimic gluten. The casein protein is also very structurally similar to gluten, so the same molecular mimicry that triggers an attack when you eat gluten can also occur when you eat casein from dairy, initiating an autoimmune response. In fact, roughly 50% of those with gluten intolerance are casein intolerant as well.
Great information 👍❤️
thanks, all
I have just learnt about the book gluten attack and gluten ataxia I saw it on a gf cookery app on Facebook a person described ataxia never heard of it before but describes me to a T I’m 72 and been poorly all my life convinced I am coeliac as my father aunt grandmother etc in family always poorly bad stomach I am looking into this with interest
Sandy I followed a strict GF diet and my symptoms improved. I worked it out my self then I approached my Dr and he agreed that celiac was my problem.
Thank you! In America profit and food industry profiteering suppresses the science!
yes, gliadin is binding glycans in everyone to some degree, based on other biology and environment factors...everyone.
Great talk about celiac disease neurological Complications.❤
Im going down hill fast trying hard to be grain free my brain fog and my balance are so bad im so thankfull for you sharing this info
If you can't get tested, try going completely gluten free. But remember, you have to be on gluten for at least six weeks (I think, check with a doctor) for the tests to work. It can get better, but it takes a long time. I don't think it ever goes away completely. But if you have what he is talking about, staying on gluten will make you worse.
It's not the brain directly but a thiamine issue.
That’s a very good point.
Is it the wheat only or the poison as well they spray for herbicides thanks
All grains. Read No Grain No Pain for complete explanation 👍
Both
It's the gluten, which is a protein in wheat, rye and barley. Other grains are fine
Hello. You could try to eat organic wheat berries or organic sourdough bread to test how you feel consuming wheat without herbicides and yeasts. Greetings
wheat and dairy too
I have gluten sensitivity so bad but I think I'm addicted to gluten. I can stop for a few weeks then I go back. I guess it's kinda like quitting smoking a bit..I don't smoke. I feel like it's affecting more like neurological and physically.
If it's affecting your head - why do you continue eating Gluten ? Gluten makes you fat (from inflammation ), you'll get migraines, have memory issues and blurry vision 😮
these are candida friend and other mushrooms. They need flour and sugar. Candida and gluten go hand in hand. I have the same strong addiction. And after refusal, migraines and psychosis always occur
Same 😩 what are your symptoms?
Very interesting. I had eye issues.( double vision)
This is good. I have been saying the same thing foe a long time.
Would ulcerative colitis have connection to the brain/gut axis. As gluten really affects my UC symptoms?
This is a good question. I would definitely go gluten free. It’s a must do! And keep a journal 🙂
maybe the source
Gluten gives me migraines and puts me to sleep. No surprised at all that it affects your brain! That's what it does to me.
So true Christopher Platts Blue
I’m Chris from Ataxia Uk Proffeser Maros Hadjivassiliou
Chris from Ataxia UK Sheffield Manny thanks ❤?….
So you suggest that a antigliadin-antibody testing should be done to every new case of ataxia that pops up? Or for that matter that a MR spectroscopy should be a part of the initial diagnostic workup?
Are there Drs in the US that deal with this?
That’s good, there’s very few in Australia 🇦🇺
Peter Osborne a chiropractor in Houston. He has a YT channel and a wonderful book.
How can i follow up my improvement if i have seronegative celiac disease ?
I have fasciculations all over my body.... I eat a lot of bread... I don't know if I stop eating gluten, my symptoms will disappear.
From what he's saying, it sounds like once the damage is done, that's it. No hope.
What about neuroplasticity?
If I were you, I would look into fasting for AUTOPHAGY. Yes there's hope I believe. See Dr. Osborne's TH-cam channel for info about gluten and neurological damage and fasting experts such as Dr. Berg and Dr. Mindy Pelz regarding what fasting can do for the human body and brain. God bless you and heal you and give you peace Julie.
@@JudithAnn-to9lv
God Bless you as well. 🙏
At 28 minutes he says, "we've got data to show that these antibodies cross react with brain tissue" Does anyone know where I can find that data? Thank you for this talk, it was extremely informative and helpful for someone just starting out on this ataxia journey.
I would like to know more about this too. Thank you!❤️
Hello, how can we get an appointement with the doctor please . Do u provide online service?
Everyone should stay clear of gluten. Things have changed, we can’t tolerate it.
Canola oil lately as well
@@Apollyon_KingOfAbyss Any and all oil is very inflammatory
Gluten to me means all grains and dairy, that the experts are saying can mimic gluten in the gut.
I’ve learned the way, after being in denial for the last few months.
Dairy can be a problem with me and celiac disease. Also cross contamination is a huge problem with eating out. So no diary, no eating out 🤷♀️ I hope I drop some weight 😉
Do you believe the Cyrex Labs test for ttg6 is legitamate, and do you agree with their cut-off?
God bless you
Why don't your suggest a complete GRAIN FREE diet?
Why would they do that? Grains without gluten are not a problem.
@@boycott2720 yes they are, a lot of them are
If this is true how come me and my son have never been asked about how we are we are both coeliac.
What about ms?
Absolutely stop gluten. Keep inflammation to a minimum, diet, exercise no diet soda! or gluten
may be source
GLUTEN ----> GLUE
Only TEN times worse !
Carnivore diet might be a solution, check it please! Our brains are starving, they need fat, and beef protein. Vegetables and grains are not friends
Yes, the carnivore diet should be tried for 30 days by anyone in poor health. Then add 1 food back at a time in order to see what you’re sensitive to. I found that I was sensitive to all grains, dairy, eggs and pork. I eat very low carb (the ketogenic diet) and have not felt this good for 40 years!
wow, the grains are that polluted
@@curiousbystander9193 It might be the glyphosate (Roundup weed killer) that is sprayed on it.
thanks, you read my mind..... it works great@@drirene57
Yes definitely carnivore diet
There is only ONE SOLUTION QUIT ALL GRAINS. ALL GRAINS HAVE GLUTEN.
9:30 ataxia
CAN'T HEAR A DAMN THING. LOUSY AUDIO
Perfect English with a terrible accent.