Thank you for this very informative presentation on gluten ataxia. I have NCGS and have always wondered since reading Dr. Mario Hadjelasseu"s (spelling?) paper whether the TG 6 antibodies were a cause of my neuro problems of balance issues, migraines and peripheral neuopathy, but here in the USA I could not find a lab that can test for them. I went on gluten free diet in 2015 and then grain free diet along with the Paleo autoimmune protocol diet. A grain free diet was recommended by Dr. Peter Osborne who claims ALL grains have some form of gluten. Do you agree with this? So far, my migraine headaches are better since anticoagulant therapy for Long Covid. My "ataxia" seems to get better with proper sleep and worse when sleep is not optimum. My ataxia seems mild with weak legs and shuffle type walking. Can ataxia vary, or come and go like that and is there anything else to be wary of regarding not making it worse? I am so glad you are researching this! Thank you so much!
no gluten, no seizure! even fine doctors miss this, God bless you! I am healthier and happier and pain free, med free and graceful as a swan at 67 better than at 27! I thought pain with every meal was normal. They did not know what to do with me, after two weeks on GF diet I was like a new person! I eat well and make great GF cakes for parties!
Great presentation, thanks for the upload! I was diagnosed about 3 years ago and had a lot of brain fog / balance issues initially. It's way better now but I still don't feel 100% regarding that, running / doing some sports might have helped. It's a bit sad to think that I will always have this damage in my brain cause of this shit disease that I can't do anything about :l
It's not a disease. We eat gluten in high amounts for 12000 years. But as a species we exists 250000. It's not celiacs who are sick but it's a diet that is. The other more pessimistic view on it is that it's a classical environmental change that leads to evolution. And most people with celiac will finally disappear because they produce less offspring.
I have celiac disease , gluten free for 2 years but have had numbness and tingling in arms hands, legs and face/head. I follow strict gluten free diet. Could this be celiac related?
There is a huge link between celiac disease and B12 deficiency. The NHS (U.K.) deem 160ish to be satisfactory on a blood test, but 800 is optimal. So I would argue if you are way off 800 on a blood test and experiencing B12 deficiency symptoms, which sounds like you are… you need to supplement. Injections are more effective than tablet supplements, but won’t last so need to be continued with supplements. B12 is absorbed sublingual so get a tablet that dissolves in your mouth. With celiac disease the gut lining is altered which is why there can be other deficiencies and swallowing a tablet won’t be affective.
Yes gliadin is basically a neurotoxin. Pure poison for the brain. I didn't have any intestinal problems at all, but I struggled with severe brain fog, memory issues, depression with anhedonia and lack of motivation, drowsiness, fatigue, light sensitivity and a nagging occipital pain that was resistant to all types of painkillers including opioids. I slept 14 hours a day and could barely get out of bed. I started experimenting on myself with different medications in desperate search of relief. Antidepressants like bupropion and amisulpride have given me some help with motivation by increasing dopamine and norepinephrine and I have been able to get rid of nape pain thanks to acetazolamide which lowers cerebrospinal fluid pressure. But no one was 100% effective, it was like taking a daily dose of poison with one hand while trying different antidotes with the other one without knowing which poison it was. I was on the verge of getting some irreversible MAOI, the most powerful antidepressant medications and wanted also try high doses of IV steroids (dexamethasone) when the turning point was the appearance of persistent dyshidrotic eczema which made me suspect some type of food intolerance/allergy. I used a drastic method: fasting! Only water and electrolytes for 3 days. Eczema gone! But not only that! I felt less tired with less need for sleep and more energy! You wouldn't think so for someone who hasn't eaten for 3 days! It was clear that the poison was in the food and it didn't take long to figure out that it was gluten!
Eliminating Bread and Pasta was the best decision i made, my overall health and well-being greatly improved, no more fatigue and stomach upsets ....😊
9:23 came for the science, stayed for the ART!!
Thank you for this very informative presentation on gluten ataxia. I have NCGS and have always wondered since reading Dr. Mario Hadjelasseu"s (spelling?) paper whether the TG 6 antibodies were a cause of my neuro problems of balance issues, migraines and peripheral neuopathy, but here in the USA I could not find a lab that can test for them. I went on gluten free diet in 2015 and then grain free diet along with the Paleo autoimmune protocol diet. A grain free diet was recommended by Dr. Peter Osborne who claims ALL grains have some form of gluten. Do you agree with this? So far, my migraine headaches are better since anticoagulant therapy for Long Covid. My "ataxia" seems to get better with proper sleep and worse when sleep is not optimum. My ataxia seems mild with weak legs and shuffle type walking. Can ataxia vary, or come and go like that and is there anything else to be wary of regarding not making it worse? I am so glad you are researching this! Thank you so much!
no gluten, no seizure! even fine doctors miss this, God bless you! I am healthier and happier and pain free, med free and graceful as a swan at 67 better than at 27! I thought pain with every meal was normal. They did not know what to do with me, after two weeks on GF diet I was like a new person! I eat well and make great GF cakes for parties!
Great presentation, thanks for the upload! I was diagnosed about 3 years ago and had a lot of brain fog / balance issues initially. It's way better now but I still don't feel 100% regarding that, running / doing some sports might have helped. It's a bit sad to think that I will always have this damage in my brain cause of this shit disease that I can't do anything about :l
Since I've been hosting hookworms I've been able to go back on gluten. It's incredibly liberating.
@@MoustacheAlexander prove it with repeated biopsies or stfu
just do shrooms. regenerates your brain BIG TIME
It's not a disease. We eat gluten in high amounts for 12000 years. But as a species we exists 250000. It's not celiacs who are sick but it's a diet that is. The other more pessimistic view on it is that it's a classical environmental change that leads to evolution. And most people with celiac will finally disappear because they produce less offspring.
@@MoustacheAlexander You mean you have a hookworm infection.
I have celiac disease , gluten free for 2 years but have had numbness and tingling in arms hands, legs and face/head. I follow strict gluten free diet. Could this be celiac related?
There is a huge link between celiac disease and B12 deficiency. The NHS (U.K.) deem 160ish to be satisfactory on a blood test, but 800 is optimal. So I would argue if you are way off 800 on a blood test and experiencing B12 deficiency symptoms, which sounds like you are… you need to supplement. Injections are more effective than tablet supplements, but won’t last so need to be continued with supplements. B12 is absorbed sublingual so get a tablet that dissolves in your mouth. With celiac disease the gut lining is altered which is why there can be other deficiencies and swallowing a tablet won’t be affective.
@Nadene Lidington thank you. Here in Canada normal range is from 220 to 650. The problem I have is if I take a b12 it gives me crazy insomnia.
@Nadene Lidington by thr way my b12 was 240 last week
Other foods can also mimic as gluten.
Go grains free and food mimicking gluten free. No grain, no pain book. Dr Peter Osborne
how much is this affecting everyone?
Its NOT just gluten!! Its gliaden, which is left in the wheat. Read Dr William Davis book called. Wheat BELLY and Wheat Belly total health 😢😢😢
Yes gliadin is basically a neurotoxin. Pure poison for the brain. I didn't have any intestinal problems at all, but I struggled with severe brain fog, memory issues, depression with anhedonia and lack of motivation, drowsiness, fatigue, light sensitivity and a nagging occipital pain that was resistant to all types of painkillers including opioids. I slept 14 hours a day and could barely get out of bed. I started experimenting on myself with different medications in desperate search of relief. Antidepressants like bupropion and amisulpride have given me some help with motivation by increasing dopamine and norepinephrine and I have been able to get rid of nape pain thanks to acetazolamide which lowers cerebrospinal fluid pressure. But no one was 100% effective, it was like taking a daily dose of poison with one hand while trying different antidotes with the other one without knowing which poison it was. I was on the verge of getting some irreversible MAOI, the most powerful antidepressant medications and wanted also try high doses of IV steroids (dexamethasone) when the turning point was the appearance of persistent dyshidrotic eczema which made me suspect some type of food intolerance/allergy. I used a drastic method: fasting! Only water and electrolytes for 3 days. Eczema gone! But not only that! I felt less tired with less need for sleep and more energy! You wouldn't think so for someone who hasn't eaten for 3 days! It was clear that the poison was in the food and it didn't take long to figure out that it was gluten!
I have CD and have Ataxia and Neuropathy.
Hi how are you feeling? Is it any better? ❤
26:24
😢
With all my research, all of these are celiac disease!! Not just sensitivity.
All celiac are gluten sensitive, but not all gluten sensitive develop CD. Different genetics. Look up dr Peter Osborne.
but are there effects for everyone on some level?@@gabigabriela2802
@@gabigabriela2802 Yeah, I'll stick to peer reviewed papers, and not somebody selling a bunch of stuff.