Wow i don’t even know what to say. I know this story was very difficult for you to share. I can’t imagine at all what you’ve been through. So so glad you’ve survived all of these horrific events and are here to tell the story. Continued healing to you always.
The day after Christmas my husband who is a brilliant electrician and works nearly 7 days a week woke up for work and told me he felt a terrible pain in his mid back . Moments later he said call 911 I can’t feel my left leg!! The weather was bad so he was EMS to a hospital in Nashville 2 hours away. He had the dissection surgery came out and they were unable to get a pulse in his left leg. They put him under again for the Fasciotomy . I was called when this surgery was over but when I got up there he wasn’t in his room because he had code stroked. At this time I had to sign for him to be placed on ECMO which is life support that fully functions as your lungs as well as kidney ey dialysis . I agreed to a tracheotomy because he was pulling and chocking on the tube. It has been nearly 3 weeks and I know he has ICU delirium, I try to be bedside continually but this week I am sick and can’t be there . He has graduates out of ICU and is getting rehab and speech therapy to see about downsizing his trachea. He is off the ventilator and the ECMO. His wound care is extensive with one of the Fasciotomy wounds still not fully closed, plus all the ports and invasive tubes they had him on in ICU. He gets kidney dialysis every other day for the foreseeable future. More then anything I want him to have the trachea out and I regret signing the paper to have that done. My husband is 38 and he is my world . We don’t have any children together but he raised my 17 year old daughter who is in the marine corps. We have been married 15 years . At the time I wasn’t working due to depression and he drove a company van, we were planning on getting a vehicle with tax returns. His family is full of cardio and vascular issues he has a late brother and mother that passed years ago from cardio issues. He had a very high blood pressure I was planning a dr appt after the 1 st of the year when our insurance kicked in. Your story REALLY REALLY is different but there are so many similarities it blew my mind to see you taking normally sitting there alive and it made me realize the strength and abilities of the humans body. He took care of me all these years now I have to make decisions and hear his voice in my head of what he would want . Thank you beyond words for telling your story , you are amazing and strong and a true inspiration . I NEEDED to find this video because some days are just so dark…. I needed to see if he fought he can pull through this!! He is being send to a long term care rehab that is also 2 hours away I am trying to get him closer to home so I can work and at least cover the bills till he gets disability. Bless you and may you live each day with gratitude and strength. I am so very scared my husband won’t fight or won’t accept himself altered. He can’t stay in the bed even if he is sick, so this is incredibly hard although most of the time he has no energy he can’t have a conversation on a dry erase board.
Thank you for sharing your husbands story - when he is home and settled in, have him sign up for the support group. One of the things we hear about is the isolation that comes from this, even in the home. Being able to speak with other survivors will show him a path to healing, its a long path. We also have caregivers support group - you will find others who can help you with things they have all recognized as well as being able to share their experiences with you. www.aortichope.org/programs
I have a question we are at a place that is between ICU and rehab where his wounds can heal and they are easing him off pain medicine … he can sit up in the bed, but he struggled with that and he had to relearn how to use his abdomen muscles , the healing of the Fasciotomy is taking a long time and he is also contending with the stroke issues. Every day cognitively he is a little better but his body is in agony and he is continually exhausted . I am looking for a rehab that is closer then 2 hour away because I’ve been beside through all of this, I stay with him because I was once a CNA and sadly home is where my husband is.um quite scared my hair is coming out in clumps and I had to go home to sleep in a real bed for a while. He mostly sleeps anyway, but he prefers me there because no one wants to sit in there mess and this place is very short staffed. What’s awful is when he doesn’t answer his phone I’m immediately terrified he dissected again or something has happened. I truly believe we both have experienced severe PTSD from all of this. I’d like to sent you a pic of how far he has come !!
@@Astrochic223 I would steer you toward our Private Caregiver Forum on Facebook. Its a blessing knowing he's on the mend, everyone there will know what your road looks like and will be very welcoming. facebook.com/groups/406675436479270/?mibextid=c7yyfP
Thank you so much for sharing your survival story.....mentally and physically. Members of my family have gone thru both sides of heaven....Thank you...I feel your strength and heartfelt emotions. You are a hero.......I mean this with all my heart and soul.......
Well I appreciate you steering me to them they are amazing I do want to tell you your story has brought hope to my husband . He was doing great until he tested positive for C. Auris and I can’t find a rehab that willl take him and that stays in your system like Herpes is the only think I could compare it to it’s very bad comparison but nontheless we are terrified and it feels a lot like discrimination in a sense, because we have no idea where he acquired this and it’s most certainly not his fault he shouldn’t be stuck sitting at an LTAC idol when he is cleared for PT at a rehab!! Sore I’ll go back to my FB group now I’m just curious how this superbug will affect others in the community .
What an absolutely amazing survival story. My inspiration. I am a type b aortic dissection survivor with TEVAR. Have a celiac artery aneurysm that I live with. Thank you for sharing your incredible story!
Hope you are well...your story was well-told and captivating ... You look great considering this nightmare.!!!.I am 66 with an aneurysm trying to avoid surgery if possible. I will never feel sorry for myself having heard what you gutted your way through ...you are a lucky man!
I was just diagnosed with a TAA of 4.5cm. I'm 69 living on the remote Island of Guam. No open heart surgery over here. I would have to be flown off-island. So, surgery is out of the question. I just hope it just knocks me out cold, ASAP, when it craps out.
![[Full] 4 ต่อ 4 Celebrity EP.920 | 3 พ.ย. 67 | one31](http://i.ytimg.com/vi/KwiW2M_kAg4/mqdefault.jpg)
Wow i don’t even know what to say. I know this story was very difficult for you to share. I can’t imagine at all what you’ve been through. So so glad you’ve survived all of these horrific events and are here to tell the story. Continued healing to you always.
My son who is only 28 yrs old has just went thru a type b and ultimately a type a direction. Your story is inspirational!
The day after Christmas my husband who is a brilliant electrician and works nearly 7 days a week woke up for work and told me he felt a terrible pain in his mid back . Moments later he said call 911 I can’t feel my left leg!! The weather was bad so he was EMS to a hospital in Nashville 2 hours away. He had the dissection surgery came out and they were unable to get a pulse in his left leg. They put him under again for the Fasciotomy . I was called when this surgery was over but when I got up there he wasn’t in his room because he had code stroked. At this time I had to sign for him to be placed on ECMO which is life support that fully functions as your lungs as well as kidney ey dialysis . I agreed to a tracheotomy because he was pulling and chocking on the tube. It has been nearly 3 weeks and I know he has ICU delirium, I try to be bedside continually but this week I am sick and can’t be there . He has graduates out of ICU and is getting rehab and speech therapy to see about downsizing his trachea. He is off the ventilator and the ECMO. His wound care is extensive with one of the Fasciotomy wounds still not fully closed, plus all the ports and invasive tubes they had him on in ICU. He gets kidney dialysis every other day for the foreseeable future. More then anything I want him to have the trachea out and I regret signing the paper to have that done. My husband is 38 and he is my world . We don’t have any children together but he raised my 17 year old daughter who is in the marine corps. We have been married 15 years . At the time I wasn’t working due to depression and he drove a company van, we were planning on getting a vehicle with tax returns. His family is full of cardio and vascular issues he has a late brother and mother that passed years ago from cardio issues. He had a very high blood pressure I was planning a dr appt after the 1 st of the year when our insurance kicked in. Your story REALLY REALLY is different but there are so many similarities it blew my mind to see you taking normally sitting there alive and it made me realize the strength and abilities of the humans body. He took care of me all these years now I have to make decisions and hear his voice in my head of what he would want . Thank you beyond words for telling your story , you are amazing and strong and a true inspiration . I NEEDED to find this video because some days are just so dark…. I needed to see if he fought he can pull through this!! He is being send to a long term care rehab that is also 2 hours away I am trying to get him closer to home so I can work and at least cover the bills till he gets disability. Bless you and may you live each day with gratitude and strength. I am so very scared my husband won’t fight or won’t accept himself altered. He can’t stay in the bed even if he is sick, so this is incredibly hard although most of the time he has no energy he can’t have a conversation on a dry erase board.
Thank you for sharing your husbands story - when he is home and settled in, have him sign up for the support group. One of the things we hear about is the isolation that comes from this, even in the home. Being able to speak with other survivors will show him a path to healing, its a long path.
We also have caregivers support group - you will find others who can help you with things they have all recognized as well as being able to share their experiences with you.
www.aortichope.org/programs
I have a question we are at a place that is between ICU and rehab where his wounds can heal and they are easing him off pain medicine … he can sit up in the bed, but he struggled with that and he had to relearn how to use his abdomen muscles , the healing of the Fasciotomy is taking a long time and he is also contending with the stroke issues. Every day cognitively he is a little better but his body is in agony and he is continually exhausted . I am looking for a rehab that is closer then 2 hour away because I’ve been beside through all of this, I stay with him because I was once a CNA and sadly home is where my husband is.um quite scared my hair is coming out in clumps and I had to go home to sleep in a real bed for a while. He mostly sleeps anyway, but he prefers me there because no one wants to sit in there mess and this place is very short staffed. What’s awful is when he doesn’t answer his phone I’m immediately terrified he dissected again or something has happened. I truly believe we both have experienced severe PTSD from all of this. I’d like to sent you a pic of how far he has come !!
@@Astrochic223 I would steer you toward our Private Caregiver Forum on Facebook. Its a blessing knowing he's on the mend, everyone there will know what your road looks like and will be very welcoming.
facebook.com/groups/406675436479270/?mibextid=c7yyfP
Thanks for sharing Gregg.
Wise words re. new normal vs Gregg 2.0. Thanks Gregg. That has helped
Thank you so much for sharing your survival story.....mentally and physically. Members of my family have gone thru both sides of heaven....Thank you...I feel your strength and heartfelt emotions. You are a hero.......I mean this with all my heart and soul.......
Well I appreciate you steering me to them they are amazing I do want to tell you your story has brought hope to my husband . He was doing great until he tested positive for C. Auris and I can’t find a rehab that willl take him and that stays in your system like Herpes is the only think I could compare it to it’s very bad comparison but nontheless we are terrified and it feels a lot like discrimination in a sense, because we have no idea where he acquired this and it’s most certainly not his fault he shouldn’t be stuck sitting at an LTAC idol when he is cleared for PT at a rehab!! Sore I’ll go back to my FB group now I’m just curious how this superbug will affect others in the community .
What an absolutely amazing survival story. My inspiration. I am a type b aortic dissection survivor with TEVAR. Have a celiac artery aneurysm that I live with. Thank you for sharing your incredible story!
You are very welcome KimmieK!
Hope you are well...your story was well-told and captivating ... You look great considering this nightmare.!!!.I am 66 with an aneurysm trying to avoid surgery if possible. I will never feel sorry for myself having heard what you gutted your way through ...you are a lucky man!
I was just diagnosed with a TAA of 4.5cm. I'm 69 living on the remote Island of Guam. No open heart surgery over here. I would have to be flown off-island. So, surgery is out of the question. I just hope it just knocks me out cold, ASAP, when it craps out.
Miss you bud.
He died??
@@pleaseandthankyou3037 Yes, he was an aortic friend, hence "I miss you bud"
I celebrate YOU!!!