My sister had Trigeminal Myalgia. I remember how much pain she was in, and how light affected her. She had us get blackout material to cover all her windows, and she would sit in the dark with a dark cloth over her head. She couldn't even open the fridge door because of the light. She never mentioned any opportunity for surgery, but she was terrified of that sort of thing and would never have agreed. She did manage, after time, and a lot of drugs, to get it into abatement, but it took a long, long time. Good luck, best wishes, and I will make a point of clicking on all your vids and giving the thumbs up!
Hello, I'm so sorry to hear your sister also had this horrid condition as well. It is the most indescribable pain. To be honest, I'm petrified of the surgery and was supposed to have it tomorrow but I've put it off until next year now. I'm pleased she finally found some relief. Thank you so much for showing your support by watching my videos it really means the world to me. Take care Stace x
So sorry for your situation! I hope the surgery helps you! I have other painful issues but similar symptoms so good luck and i will support your channel!
You are one incredibly brave and resilient woman. To share your ongoing journey takes a tremendous amount of courage. Please know many people you will never meet are here as your cheering section, and appreciate you 💕. You just go girl!
My dear Stacey, there is NO need to apologise for your emotions, l for one have been very grateful for you and your channel, l love the way you research recipes and then make them your own....l have saved so many. My very best to you as you face this next step, l know you will come out the other side , hopefully in a better condition. Much love to you and to Karl, l am so glad you have this support. XOXO
@@FarmersWifeHomestead Hi , Stacey , please , please try a good experienced Homeopath and SCIO Biofeedback . it sounds awful , also please look into SCIO Biofeedback , it cured my son's very severe Dyslexia 19 years ago and it cured my Lymes disease , i really hope you look into this , and i wish you all the very best , from linda in Wales xxxxx 🥰
What a big fighter you are Stacy How you have dealt with your health problem is amazing please do not apologise for crying in fact is good that you can cry for yourself as that releases endorphins natural pain relief that's just right for you I found that helped me with my back nerve pain which came in bouts that lasted so long but in the end I cried out of sympathy for myself and it actually helped greatly probably sounds crazy but it happend a few times now so cry all you want Hope it works for you brave lady Well done for your great videos Carol
Hello sweetie, 2019 I had a medical misadventure after having a thromblized meds for suspected stroke. Golly I have all the symptoms that you have been going through. It has been mentioned that o may have trigeminal nerve damage been on morphine, gaberpetin for 9 months ghastly drugs . I am currently trying medical cbd and thc however that pain just doesn't disappear completely. Good days and absolutely shocking days. We seem to just get on with it daily and I know that o tell myself today is a bad day but tomorrow will be better. You have been a great inspiration for me, sharing is caring. I need something to keep me from sinking and finding you and your videos is helping me immensely. Your a blessing.
I just found your channel today and have been binge watching your videos and can’t wait to try these recipes if yours. I’m sorry that you have to deal with this horrible condition and I will pray for you that it gets much better or better yet that it just goes away. You are a strong soul, keep looking forward and do what makes you happy❤️
I too suffer from Trigeminal Neuralgia and have had to mention it in passing on my channel, dental work is also something I just cannot get done, the cost of being put under general for it and the required recovery time is not something I can deal with. The idea of the brain surgery is also something that is way off my radar! Maybe when the kids are older, but its 10 years till the yougest of 6 is 18, so we'll see! Lol :)
Just watching your podcast. I have this as a result of an MS related plaque. Anticonvulsant meds are the only beneficial pain meds. Pregablim currently assisting after a disastrous attempt with another drug. Very hard to describe the intensity of pain, for me it was a complete curve ball, totally unexpected. I have no idea if the current drug related relief will be long standing. Every day currently is a blessing. My vege garden was a disaster last year but so enjoying seeing it getting sorted out, this autumn. Cant believe that i have been bying zucchini this summer...shows the state that my garden was in. Sorry, but it was really refreshing to hear somebody elses story with this condition.
Hello, and I am so sorry to hear you have this as well. It is the most indescribable pain in the world. I wish you as much relief as you can have. Thanks for your message.
My prayers are with you and your surgery. A big hug and I'm sure everyone on here cares so much about you. I enjoy watching you and even at 72 have learned some great tips and yummy recipes. Ya know we may not know each other personally, but just watching you and hearing your journey I feel like I do know you. You take care and know we on here are thinking about you and want you to have the very best outcome from your surgery.
You are a brave warrior, Stacey. I admire your courage and determination to keep going. I myself have several forms of autoimmune arthritis, also Fibromyalgia and Chronic Fatigue and the anxiety and depression that comes with it all… all those lost dreams. I understand the effort required to work past the pain just to turn up in life. ❤
Hey Staci I am incredibly sorry to hear about your medical struggles and the suffering that wretched condition has brought into your life. I see that this video is from last year and I have watched some of your more recent videos; your resilience, good humour and perseverance is so admirable, it truly speaks to what a special person you are. I'm not sure what value my prayers are but you will be in them and I wish you all the best as you move forward dealing with this ❤️
Hi Stacy your are in my prayers hope the surgery went well wishing you a speedy recovery love your videos love and hugs from Magdalene SA❤️❤️🫶I have breast cancer 🙋♀️
I’m so, so sorry to hear that you’ve been through so much. Thank you for sharing and thank you for all you’ve taught us through TH-cam. We appreciate you x
Thank you so much for such a lovely message! Some days are hard because of the pain and I can get really tired easily but its my life and I have to just be strong and continue the best I can. Thank you again for your support of my channel it means the world to me.
Just watching some of your older content and saw this. My Nana raised me and she had Trigeminal Myalgia suddenly pop up around 2016-2017 when I had my first child. It was absolutely horrible for her to be in so much pain and to listen to her screaming, yelling, and sobbing. Absolutely broke my heart. She was like this for months and became a shell of herself on meds, she used to cry in her room and beg for the end, eventually, she got surgery and it finally went away and she hasn't relapsed since. You, and her, are absolutely amazing women. I don't live close to my Nana anymore, though we talk most days. Watching your videos reminds me of her and the warmth, comfortable conversation, and love that being around her gives me and my children. Thank you for being so kind, so vulnerable, and for making content that is so uplifting. Our household really loves you x
Stacey, you are amazing. Your tenacity and your perseverance through hardship is an incredible inspiration. Thanks so much for sharing and big prayers that surgery is successful. 🙏❤️
Thank you so much for your lovely message. I'm trying to manifest a quick speedy recovery, so that I can bounce back quickly. Thank you so much for watching.
Thank you for posting this and making people aware. So interesting what you said about stress affecting this. I am sure all of our hearts go out to you, mine definitely. God Bless You, you courageous woman. xx
Thanks for sharing. I'm so sorry you are having to deal with such a condition. Bless you! Block the haters. They are disgusting. I only recently found your channel and I love it!
I just wanted to thank you for sharing, I can understand some of your symptoms as I have idiopathic intracranial hypertension, pretty much to much spinal fluid going up to the brain and causing way to much pressure, I had a vp shunt(tubing that goes into my brain, through a machine and down behind my ear and ends in my lower abdomen) put in, in January 2020 in Wellington because if I didn’t get it I would be completely blind now, I have absolutely no peripheral vision and I still get the crushing vice like headaches 24/7 but I can see what’s in front of me and I can see my husband and my children and to me that’s a win, I know you will do well with the surgery, you are a very strong wahine I’m so proud of you for sharing, and for carrying on even through the pain, much aroha to you and your whanau 💜💜
I am so grateful to ambulance drivers. Your 7 years service is genuinely appreciate. What you have seen and experienced is beyond what I could handle. Thank you
I have been binge watching your content for weeks now and have just come across this. You are so inspiring. I have an arthritis condition, and understand how the drugs can make life difficult. I have always been impressed by your content, and now I'm blown away. Well done for every video you get out and share with us. You're changing lives ❤
thanks so much for the support of watching the older videos and for leaving this message. I hope your arthritis is not too bad for you while this weather is so cold.
You have probably researched this horrible disease to infinity. I understand that this and many other neurological disorders come right on a animal products only diet. What a shame you can’t still be an ambulance officer as that job is a real calling and so valuable to our communities. All the best.
Oh lovely lady, I had no idea. I've watched a few of your videos but this one just popped up today. I will keep you in my prayers dear friend. Much healing love and peace to you! From the other end of the planet, Ontario Canada.
Oh Stacey, my heart goes out to you. You have been through so much and yet keep going with your lovely smile. I can’t pretend to know how you feel, I only have a lung condition, but I can relate because my beautiful daughter has Functional Neurological Disorder- a blanket medical tag for “no idea what it is or how to deal with it”. She can either walk or talk. Her condition, and her fibromyalgia, are made worse by changes in the weather, air pressure and stress, but she never complains and dedicates her life to helping others. Much love. xx
I have TN and I had the MVD surgery and it worked and lasted 6 years and is back with a vengeance. I’m now going to have Cyber knife surgery. I have read nothing but good things. Hope you well and check into these procedures.
I've just discovered your channel and really like what you're doing. I am really sorry to learn about your medical problems and I wish you all the best.
Thank you for sharing your story. I love your channel and what you are sharing. Your recipes remind me of some golden oldies and give my mind a boost, back to my roots. My sister had similar challenges and your reveal has helped me understand her situation better as she was secretive about these things. Go well, feel energised by the gift you are to those of us who appreciate you. ❤ 🙏 🙌 🙏 ❤
Hello lovely. I have it too. I have it continously where there is just pain and flare ups where its unbearable. I'm currently on tegretol (think it's called carmbazamine or something like that). I also have fibromyalgia. Both conditions flared right up since my wonderful mam died last April. I'm on meds for the fibro and feel like a walking zombie. I'm very tearful. I love your videos, I'm slowly going through them. I know what it takes to battle the tn and you're an inspiration xxx
I am so sorry to hear you have this as well. It sounds like you have Type 1 &2 as well as me. I'm so sorry for the loss of your mum and if you ever need to chat please reach out. You are never alone! Here is my email farmerswifehomestead@gmail.com
Hi Stacey, what a time you are having, so sorry to hear of your health problems. Look forward to you getting back to your channel. Wish you well and that yr surgery goes well and takes all that pain away. Take care and time and look after yourself.❤
My precious woman. I’m Canadian but live in the the Netherlands and have been suffering with this horrible condition for 5 months so I can’t imagine how you’re doing this for years. I’m writing this on June 2nd 2024: I tried carbamazepine but had a horrible experience; almost a kind of psychosis. Ended up in ER last Monday for the excruciating pain and got prescribed oxacarbazepine instead. Let’s see. I’m on oxazepam and other drugs too : bizarre for someone who never had prescription drugs before. 😵💫 TN is a crazy condition. I have ATypical as well. And like you: came out out now where. I want to find a healthy balance between meds and getting to the root. My husband told me we’ll look anywhere for solutions. Luckily like you I have a wonderful husband and without that I think I’d be a goner. Please keep me posted on how you’re doing. 🙏 I truly want to know. ❤
Thank you so much for your message. I'm sorry it is taking me a bit to reply to these. I am so sorry to also hear you have this. I am here if you ever need to talk. You are so new on your journey and I know it can be a very hard time. Sending you healing hugs and pain-free days.
Hi , I commented on one of your you tubes about our sons TN op . Dr Tan who actually was the one that found the TN problem and it is called the suicide disease . Read Dr Tans story it is wonderful . He works at the Gold Coast . Our son has a what is like a pool noodle around the nerve . We actually have photos of his op and the noodle . Plus we have a video of the nerve pulsing . They gave us an option to see the op and we said yes but didn’t watch for a while . He had to have a second op as brain fluid was dripping through his nose because the glue had come away from the repair . After his op they had to take him off all meds for 24 hrs as he had been on so many prior and the op ones weren’t working . It was hard to watch . I will add you to my prayers
Oh Stacey, I just found this vlog. I’m so sorry you have to go through this terrible pain, it sounds horrendous. You’re a very courageous and strong woman ❤ I wish you all the very best love. I enjoy your channel 😊 xo
Thank you so much for taking the time to reply to my comment when your having so much pain every day must be like a roller coaster wishing you some free pain days ❤
Oh my Stace hearing your story made me 😢 just hearing what you have to go through daily hope all goes well love the channel & just learning new things thank you so much
Oh !!I just found you and I love the way you cook because I cook like you do.Listening to your story just poked me in the heart and watching you grieve and then put it away and pull up your boots was remarkable. I will pray for you and really that's the best thing I can do.I also ask for blessings on you and our beloved husband.Mercy and strength.You are not made of iron because who is.Big hugs from Alaska.
Hi from a farm in 🇨🇦. I just found your channel and have subscribed. I will be trying your crumpet recipe right away. Really looking forward to trying more. I hope you were able to have the surgery and that it is helping.
I do feel for you I have it to for about seven years it’s horrible I can understand your pain but on both sides must be terrible it changes your life so much you are so strong a strong woman god bless you xxx
I'm so sorry to hear you have this as well. It's my ninth year this year. Wishing you a pain-free day. Reach out to me anytime you need someone to talk to XX
Hi there! I'm new-be but want to thank you for your time and efforts. I have watched most of your videos and looking forward to seeing more. God bless look and do you first!❤
Hi Stacey. I'm so sorry to hear what you are going through. I'm suffering badly right now with pain from my neck all down my right arm to my thumb. I'm having an x-ray today to see what's causing it. I'm on tramadol. You're honesty and openness is amazing ❤😢. Please stay safe and well dear lady. I've just found your channel and would not like for it to go. There is still so much more to learn from you. For example how to hydrate and use hydrated fruits.❤💐❤.
God Bless you. I pray this surgery works for you 🙏🏼🙏🏼 I have Trigeminal Neuralgia but only on one side. Stress brings mine on and sometimes I can’t even see out my left eye. I hate the pills I have to take and will only take them when I have too. Sometimes I take to many because it hurts so bad and want to just cut my head off 😢 God bless and thank you for sharing your story. So sorry you had to give a job you loved.
Hello, and thanks so much for leaving a message. I am so sorry to hear you have it as well. I have put the surgery off twice now because of my knee and I am unsure if I will go ahead with it. I understand your pain and I hope you get relief and can manage things. I am thinking of you and feel free to email if you ever need to talk :)
Hi Stacey. I’ve had TN for at least 30 years and it’s probably connected to my MS. I’m one of the lucky ones that only get the attacks every few weeks and then only for a few seconds for a couple of days. Worst ones are a couple of minutes when I feel it’s worse than being tazered in the face, but usually it’s over and I’m back to normal the instant it stops. I can’t imagine how hard your condition has been for you as mine affects me for such small amounts of time. I’m glad you have the inner strength to deal with it. Appreciate your cooking videos and you come across as very genuine, and that’s pretty rare these days.
I am sorry to hear you have this as well. It can be very draining and difficult to deal with at times. The bad weather currently is making me flare up a bit atm. I wish you all the best and I hope you have many pain-free days. Stacey
I just came in to say good bye. I've been totally adjusting my diet / program to serious oxalate dumping and it's taking extra time to do all this, I've had to trim down activities. I wish you the best on your healing journey. I've loved your stuff. you lovely lady!!!
Hi you just popped up on my feeds and i want to reach out , sending you positive vibes and i pray for you that the future looks HEALTHY AND YOU CAN BEAT THIS HORRIFIC PAIN, iv just myself been diagnosed with TN, and i have type 2, and on the medication for facial nerve pain to that are not the best at functioning. I too have a youtube cooking channel and also lost my job . I really sending you a big hug, every thing you said i feel your emotions. THANKYOU FOR SHARING . ❤
Hello, on the one hand, it is so lovely to hear from you because you left such a lovely encouraging message but on the other hand I'm so sorry to hear you also are a sufferer of TN. I want to reach out to you to offer any help I can for you. One of the reasons why I made a video about my journey was to find others with this. It is such a hard thing to go through and it doesn't matter how supportive people are around you, they will never understand the level of pain you are now enduring. Its one of the hardest things, as on the outside you look perfectly normal. Anyway sorry for the long rant. Please feel free to private email me at any time! I will also check your channel out. Take care my friend and I wish you a pain-free day!
What a strong lady you are, willing just to get on with what life has thrown at you and make the best of everything, so appreciate your content and wish you to be well.
Oh my darling😭💔💔❤️❤i know every single painful emotion you've felt with this awful disorder..your channel just popped up on my page tonight..i see it as a sign..because I'm on my journey 2 years now and its so so tough and such a struggle at times..but on the good days..how amazing is life👏✨️🥰 sending you love from Dublin ❤☘️
My Mum has had TN for 30 years. She has had so many surgeries and procedures- none have given her relief. She suffers terrible stabbing pains every day. Hers can be triggered from reading, talking on 12:29 the phone, stress. She has also suffered a stroke which has taken away her memory. She is in her 80’s and cant remember how old we are or when our birthdays are. She will tell you the same stories over and over, and cannot keep up with conversations. It is very sad. I wouldn’t wish TN on anyone.
My friend suffers from this condition, she is currently taking seizure med to help her. It was very debilitating till she found the right medication. She really fears the pain coming back! So sorry you are going through this! 😊praying for a quick healing!
Hi Stacey, I am so sorry to hear of your situation, and praying that the surgery is helpful for you!!! I love your channel, and can't wait to steam can pinnapple like you do. God Bless your courage and rcovery. Praying for you and your family. Janet
Thank you so much Janet for your lovely encouraging message! It certainly means a lot to me. Thanks for watching and let me know how your pineapple goes.
Just found this, and Co-incidentally have just seen a really helpful video on the trigeminal nerve. Stop Chasing the Pain is the YT channel and he has a specific therapy you can learn at home. I do cranial osteopathy and this is the best I have come across if you can;t get good cranial work. Sending hugs.
Im so sorry you have pain ..you are very good at explaining..yoy gi into the nitty gritty. Well done..I have daiky knee pain..understand you sis..take care..kind regards Karolyn Melbourne..Kia Ora. X
Whangarei Hospital, the WORST hospital in the World diagnosed the patient with stress. Baby doctor was adamant that despite all the evidence it was definitely stress. Thanks be to God for the 'older' GP who took one minute to diagnose this hideous disorder. It has come and gone, treated with Tegratol which has worked. Still wanting to slap the baby doctor who knew it all. As a nurse I KNEW the baby was wrong, but as is typical at Whangarei Hospital, if you query anything you are deemed a high security risk. SO GRATEFUL AND GLAD YOU ARE FEELING BETTER. LOVE YOUR CHANNEL AND YOUR STRENGTH. THANK YOU FOR ALL YOUR HARD WORK.
Oh my bless your heart, you are so beautiful person. I also have a incurable disease called anticoagulant blood disorder . It causes my blood to produce blood clots so I take blood thinners ,it is rare too.. But I am Christian and I trust Jesus and I believe in prayer and Jesus Christ healing powers, I will pray for you too, I hope your have a blessed day
I'm so very sorry you're having to go through this. I'm praying you get better soon 🙏. I had a sister that had the very symptoms that you're describing and the doctors couldn't figure out what was wrong with her. She lost her eyesight and was in excruciating pain. But I was wondering what happened to you and I missed your videos
Thank you so much for your kind words and prayers. My gosh, your poor sister, is she okay now? Did they get to the bottom of her health? I really appreciate you taking time out to watch and reach out. 🙏
A doctor om u tube dr sutter works with a lot of people with this and I've seen a chiropractor talking about how he believes its a neck issue. I hope something helps you
Please tell me how you are doing now Stacy I am waiting for a rhyzotomy after pain came back after MVD a year ago I literally am a zombie with meds at the moment did you have a successful MVD ? I know exactly what you go through Margot
Wow ,gurl you're amazeballs (should say boobs), thank you soooo much for what you do! You are so darn inspiring and give me confidence to work on my own media presence. Largely because you work in a real kitchen, you're not hi tech, you don't wear makeup... you're so real 😊 thank you!!!❤
Yep, I have it. I don't know why it started. I did have a wisdom removed 2 months before it started, don't know if that had anything to do with it. When it began it reached the cheek and the jawline. I honestly thought that I had bone cancer or something and that my time was up. The doctor immediately knew what it was and gave me tegretol, sorry spelling, which has done the trick. The drug is for epileptics and is horrible. It affects my eyesight and I can't do anything.
I also have trigeminal neuralgia and am on anti seizure medication. I also have several nerve issues that cause pain in other parts of my body. I do wonder if they are all related? I also have pelvic congestion syndrome which is also related to veins and nerves. Having vericose veins also makes me wonder if they are all related to compression on nerves that causes acute pain. 😢
I am sorry to hear you have this as well. I also have really bad veins in my right leg, you could be right in your thinking. I wish you all the best in your health journey, big hugs to you. Stacey
You are strong and courageous, but I wish you didn't need to be. I have the intermittent kind of TN. When I'm having a flare, movement is a trigger. I don't have to tell you how much I don’t want to move! But, life. Things need doing. People think it can't be as bad as you say or you wouldn't be talking, smiling, going about your business. You'd be on your knees. What they don't get about chronic pain is the chronic part. Your have a choice: you can be curled in a fetal position in terrible pain or you can get on with living life in terrible pain. Either way, you're in pain. But one of those options lets you have some life. For people who have never experienced TN, have you ever had a really bad toothache needing a root canal? Worse than that. More like having the root canal without being numbed first. Or maybe you've had sciatica, which is also a neuralgia. But the trigeminal nerve is more sensitive. Think sciatica times 3. Or 4. Most people would be on their knees crying out for it to stop if they had so much pain. But when it's unremitting, 24/7, at some point you have to live your life around it. So yes, you're courageous. But you don't have much of a choice. Given the chance, you'd choose to live without the pain. I'm very sorry you had to give up your dream job which you worked so hard to achieve. That's a loss which must be grieved, almost as much as the death of a friend, because it was a piece of your identity. I'm glad you've thought of another career where you are helping people, because that's your nature. I can see that in you. I won't wish you strength and courage, because you have plenty of those. I wish you periods of respite when you don’t need to be strong or courageous; times when you can safely lay down the burden of being strong and courageous.
Hi Stacy Could you please tell me if your operation terminated the Trigeminal problem ? I am in a middle of some decision to take the right one . Thank you in advance if you answer to me
@biancast-g7274 I haven't had the operation yet. I had to delay the operation twice now because of my knee operation first. Feel free to message me on email if you like.
@@FarmersWifeHomestead Thank you so much for your respond. I am waiting for a consultation in a middle of august but in a mine time , I went to a ostéopathe that relived a lots of the attaques . I can keep you posted if you wish .
I have suffered with Trigeminal Neurolgia since 2019. In March 2022 i had a Balloon Rhizotomy..it relieve the pain for about 10 months. This Wednesday, May 8 i am having the MVD surgery. Wish me luck. May 5 2024 7 a m
Hello, No I put it off. I'm so scared to have it. I know I will have to one day but since I made this video I have been able to take fewer meds and I'm in a lot less pain.
The pain of this condition is so bad! I’m suffering miserably. Do you have you mr surgery? How are you managing it? Painkillers and amitriptyline don’t seem to do anything for me!
My husband had the brain surgery for TN, with no problem. It's great to have him pain free. Big pharma drugs never helped. We made tincture of ghost plant& edible cannabis & honey bee stings were huge helps. Best of luck to you from Pennsylvania USA.
@@sharonstahl3285 did he have TN 1 or 2? I seem to have atypical. Which is pretty much daily pain of some kind. Did he have the MVD or the gamma knife? Thank you for your comments here, it helps those of us in the similar circumstances. X
@@FarmersWifeHomestead so glad to hear this? What meds are helping you? I started carbamazepine but after a week had to stop as it was making me so sick but also made me a bit psychotic. Apparently a side effect! Crazy
This is not to offend but shared in love. Please look to Jesus and the cross and try take communion as much as possible, not just at church but in your home because the spiritual application of communion His broken body and shed blood really helps. Ive heard many testimonies of people being healed. Joseph Prince speaks on this really well. I hope you feel better as each day passes. Stay strong x
My sister had Trigeminal Myalgia. I remember how much pain she was in, and how light affected her. She had us get blackout material to cover all her windows, and she would sit in the dark with a dark cloth over her head. She couldn't even open the fridge door because of the light. She never mentioned any opportunity for surgery, but she was terrified of that sort of thing and would never have agreed. She did manage, after time, and a lot of drugs, to get it into abatement, but it took a long, long time. Good luck, best wishes, and I will make a point of clicking on all your vids and giving the thumbs up!
Hello, I'm so sorry to hear your sister also had this horrid condition as well. It is the most indescribable pain. To be honest, I'm petrified of the surgery and was supposed to have it tomorrow but I've put it off until next year now. I'm pleased she finally found some relief. Thank you so much for showing your support by watching my videos it really means the world to me. Take care Stace x
So sorry for your situation! I hope the surgery helps you! I have other painful issues but similar symptoms so good luck and i will support your channel!
You are one incredibly brave and resilient woman. To share your ongoing journey takes a tremendous amount of courage. Please know many people you will never meet are here as your cheering section, and appreciate you 💕. You just go girl!
Thank you so much!
My dear Stacey, there is NO need to apologise for your emotions, l for one have been very grateful for you and your channel, l love the way you research recipes and then make them your own....l have saved so many.
My very best to you as you face this next step, l know you will come out the other side , hopefully in a better condition. Much love to you and to Karl, l am so glad you have this support. XOXO
Thanks so much for your message :)
@@FarmersWifeHomestead Hi , Stacey , please , please try a good experienced Homeopath and SCIO Biofeedback . it sounds awful , also please look into SCIO Biofeedback , it cured my son's very severe Dyslexia 19 years ago and it cured my Lymes disease , i really hope you look into this , and i wish you all the very best , from linda in Wales xxxxx 🥰
Oh, Stacey…the excruciating pain and on top of that having to give up a job u love. Am with u in my heart
thanks so much :)
i remember as a young nurse being told trigeminal neuralgia was one of the most painful conditions you are a fighter
What a big fighter you are Stacy How you have dealt with your health problem is amazing please do not apologise for crying in fact is good that you can cry for yourself as that releases endorphins natural pain relief that's just right for you I found that helped me with my back nerve pain which came in bouts that lasted so long but in the end I cried out of sympathy for myself and it actually helped greatly probably sounds crazy but it happend a few times now so cry all you want Hope it works for you brave lady Well done for your great videos Carol
Thank you, I hope your back pain is better
Hello sweetie,
2019 I had a medical misadventure after having a thromblized meds for suspected stroke.
Golly I have all the symptoms that you have been going through.
It has been mentioned that o may have trigeminal nerve damage been on morphine, gaberpetin for 9 months ghastly drugs .
I am currently trying medical cbd and thc however that pain just doesn't disappear completely.
Good days and absolutely shocking days.
We seem to just get on with it daily and I know that o tell myself today is a bad day but tomorrow will be better.
You have been a great inspiration for me, sharing is caring.
I need something to keep me from sinking and finding you and your videos is helping me immensely.
Your a blessing.
So sorry to hear what u go through Stacey😢....what a beautiful, strong and courageous lady u are ❤
thank you
I just found your channel today and have been binge watching your videos and can’t wait to try these recipes if yours. I’m sorry that you have to deal with this horrible condition and I will pray for you that it gets much better or better yet that it just goes away. You are a strong soul, keep looking forward and do what makes you happy❤️
Thank you, so days certainly are better than others. Thank you for your well wishes X
Bless your sweet heart!!! Thank you for sharing and God bless your husband and family. I appreciate you so much!
I too suffer from Trigeminal Neuralgia and have had to mention it in passing on my channel, dental work is also something I just cannot get done, the cost of being put under general for it and the required recovery time is not something I can deal with. The idea of the brain surgery is also something that is way off my radar! Maybe when the kids are older, but its 10 years till the yougest of 6 is 18, so we'll see! Lol :)
Just watching your podcast. I have this as a result of an MS related plaque. Anticonvulsant meds are the only beneficial pain meds. Pregablim currently assisting after a disastrous attempt with another drug.
Very hard to describe the intensity of pain, for me it was a complete curve ball, totally unexpected.
I have no idea if the current drug related relief will be long standing.
Every day currently is a blessing.
My vege garden was a disaster last year but so enjoying seeing it getting sorted out, this autumn. Cant believe that i have been bying zucchini this summer...shows the state that my garden was in.
Sorry, but it was really refreshing to hear somebody elses story with this condition.
Hello, and I am so sorry to hear you have this as well. It is the most indescribable pain in the world. I wish you as much relief as you can have. Thanks for your message.
Also from NZ
My prayers are with you and your surgery. A big hug and I'm sure everyone on here cares so much about you. I enjoy watching you and even at 72 have learned some great tips and yummy recipes. Ya know we may not know each other personally, but just watching you and hearing your journey I feel like I do know you. You take care and know we on here are thinking about you and want you to have the very best outcome from your surgery.
Thank you :-)
You're a very beautiful, brave and courageous person.
You are a brave warrior, Stacey. I admire your courage and determination to keep going. I myself have several forms of autoimmune arthritis, also Fibromyalgia and Chronic Fatigue and the anxiety and depression that comes with it all… all those lost dreams. I understand
the effort required to work past the pain just to turn up in life. ❤
Hey Staci I am incredibly sorry to hear about your medical struggles and the suffering that wretched condition has brought into your life. I see that this video is from last year and I have watched some of your more recent videos; your resilience, good humour and perseverance is so admirable, it truly speaks to what a special person you are. I'm not sure what value my prayers are but you will be in them and I wish you all the best as you move forward dealing with this ❤️
Thank you so much for your prayers, some days are easier than others. I appreciate your message :)
Oh I just discovered your channel. My sister in law had the procedure , she was in terrible pain all the time and it worked!. you're in my prayers
I'm sorry to hear she also has this but I'm very happy to hear it worked for her! Thank you for your prayers and welcome to my channel.
Hi Stacy your are in my prayers hope the surgery went well wishing you a speedy recovery love your videos love and hugs from Magdalene SA❤️❤️🫶I have breast cancer 🙋♀️
I’m so, so sorry to hear that you’ve been through so much. Thank you for sharing and thank you for all you’ve taught us through TH-cam. We appreciate you x
Thank you so much for such a lovely message! Some days are hard because of the pain and I can get really tired easily but its my life and I have to just be strong and continue the best I can. Thank you again for your support of my channel it means the world to me.
Hi Stacey
Thanks for sharing. You are a very brave lady
Just watching some of your older content and saw this. My Nana raised me and she had Trigeminal Myalgia suddenly pop up around 2016-2017 when I had my first child. It was absolutely horrible for her to be in so much pain and to listen to her screaming, yelling, and sobbing. Absolutely broke my heart. She was like this for months and became a shell of herself on meds, she used to cry in her room and beg for the end, eventually, she got surgery and it finally went away and she hasn't relapsed since. You, and her, are absolutely amazing women.
I don't live close to my Nana anymore, though we talk most days. Watching your videos reminds me of her and the warmth, comfortable conversation, and love that being around her gives me and my children. Thank you for being so kind, so vulnerable, and for making content that is so uplifting. Our household really loves you x
What surgery did your nana have?
@KezzieWarcraft Your nana is a strong lady. I hope she is still feeling well. Thank you for your message of support and encouragement. :)
Stacey, you are amazing. Your tenacity and your perseverance through hardship is an incredible inspiration. Thanks so much for sharing and big prayers that surgery is successful. 🙏❤️
Thank you so much for your lovely message. I'm trying to manifest a quick speedy recovery, so that I can bounce back quickly. Thank you so much for watching.
Thank you for posting this and making people aware. So interesting what you said about stress affecting this. I am sure all of our hearts go out to you, mine definitely. God Bless You, you courageous woman. xx
Hello Stacy I love your content and channel. Yes! block the haters.
Keep the great work.
Thank you so much!
Thanks for sharing. I'm so sorry you are having to deal with such a condition. Bless you! Block the haters. They are disgusting. I only recently found your channel and I love it!
I just wanted to thank you for sharing, I can understand some of your symptoms as I have idiopathic intracranial hypertension, pretty much to much spinal fluid going up to the brain and causing way to much pressure, I had a vp shunt(tubing that goes into my brain, through a machine and down behind my ear and ends in my lower abdomen) put in, in January 2020 in Wellington because if I didn’t get it I would be completely blind now, I have absolutely no peripheral vision and I still get the crushing vice like headaches 24/7 but I can see what’s in front of me and I can see my husband and my children and to me that’s a win, I know you will do well with the surgery, you are a very strong wahine I’m so proud of you for sharing, and for carrying on even through the pain, much aroha to you and your whanau 💜💜
I am so grateful to ambulance drivers. Your 7 years service is genuinely appreciate. What you have seen and experienced is beyond what I could handle. Thank you
Thank you. I loved my job and it was a privilege to serve people. I miss it dearly.
I have been binge watching your content for weeks now and have just come across this. You are so inspiring. I have an arthritis condition, and understand how the drugs can make life difficult.
I have always been impressed by your content, and now I'm blown away. Well done for every video you get out and share with us. You're changing lives ❤
thanks so much for the support of watching the older videos and for leaving this message. I hope your arthritis is not too bad for you while this weather is so cold.
You have probably researched this horrible disease to infinity. I understand that this and many other neurological disorders come right on a animal products only diet. What a shame you can’t still be an ambulance officer as that job is a real calling and so valuable to our communities. All the best.
Borderline everything except birth defects can be cured by a carnivore diet, so wouldn't be surprised.
Oh lovely lady, I had no idea. I've watched a few of your videos but this one just popped up today.
I will keep you in my prayers dear friend. Much healing love and peace to you! From the other end of the planet, Ontario Canada.
Thank you so much for reaching out and for your well wishes.
You are a courageous person to be able to tell your story.. I wish you all the best. Hugs to you. Love your channel.
Thank you so much!
Oh Stacey, my heart goes out to you. You have been through so much and yet keep going with your lovely smile. I can’t pretend to know how you feel, I only have a lung condition, but I can relate because my beautiful daughter has Functional Neurological Disorder- a blanket medical tag for “no idea what it is or how to deal with it”. She can either walk or talk. Her condition, and her fibromyalgia, are made worse by changes in the weather, air pressure and stress, but she never complains and dedicates her life to helping others. Much love. xx
My prayers are with you. I'm from South Africa and have learned so much from you. I will continue to watch...
Thank you :)
I have TN and I had the MVD surgery and it worked and lasted 6 years and is back with a vengeance. I’m now going to have Cyber knife surgery. I have read nothing but good things. Hope you well and check into these procedures.
How are you doing now? It’s amazing how it can come back after so many years.
@@canoegirl6335 it is slowly getting better. Not as much drugs.
I wish you well in your new procedure. I hope you you some new relief from it. Thank you for leaving me a message. Take care :)
I've just discovered your channel and really like what you're doing. I am really sorry to learn about your medical problems and I wish you all the best.
Thank you 😊
Thank you for sharing your story. I love your channel and what you are sharing. Your recipes remind me of some golden oldies and give my mind a boost, back to my roots. My sister had similar challenges and your reveal has helped me understand her situation better as she was secretive about these things. Go well, feel energised by the gift you are to those of us who appreciate you. ❤ 🙏 🙌 🙏 ❤
@drthomason7043 Thanks so much for your message. I hope your sister is better now and thank you for watching and supporting the channel.
Hello lovely. I have it too. I have it continously where there is just pain and flare ups where its unbearable. I'm currently on tegretol (think it's called carmbazamine or something like that). I also have fibromyalgia. Both conditions flared right up since my wonderful mam died last April. I'm on meds for the fibro and feel like a walking zombie. I'm very tearful.
I love your videos, I'm slowly going through them. I know what it takes to battle the tn and you're an inspiration xxx
I am so sorry to hear you have this as well. It sounds like you have Type 1 &2 as well as me. I'm so sorry for the loss of your mum and if you ever need to chat please reach out. You are never alone! Here is my email farmerswifehomestead@gmail.com
Hi Stacey, what a time you are having, so sorry to hear of your health problems. Look forward to you getting back to your channel. Wish you well and that yr surgery goes well and takes all that pain away. Take care and time and look after yourself.❤
Thank you so much for your kind words and for watching my video. Thank you for your support it means a lot to me.
My precious woman.
I’m Canadian but live in the the Netherlands and have been suffering with this horrible condition for 5 months so I can’t imagine how you’re doing this for years.
I’m writing this on June 2nd 2024:
I tried carbamazepine but had a horrible experience; almost a kind of psychosis.
Ended up in ER last Monday for the excruciating pain and got prescribed oxacarbazepine instead. Let’s see.
I’m on oxazepam and other drugs too : bizarre for someone who never had prescription drugs before. 😵💫
TN is a crazy condition.
I have ATypical as well. And like you: came out out now where.
I want to find a healthy balance between meds and getting to the root.
My husband told me we’ll look anywhere for solutions.
Luckily like you I have a wonderful husband and without that I think I’d be a goner.
Please keep me posted on how you’re doing. 🙏
I truly want to know. ❤
Thank you so much for your message. I'm sorry it is taking me a bit to reply to these. I am so sorry to also hear you have this. I am here if you ever need to talk. You are so new on your journey and I know it can be a very hard time. Sending you healing hugs and pain-free days.
Hi , I commented on one of your you tubes about our sons TN op . Dr Tan who actually was the one that found the TN problem and it is called the suicide disease . Read Dr Tans story it is wonderful . He works at the Gold Coast . Our son has a what is like a pool noodle around the nerve . We actually have photos of his op and the noodle . Plus we have a video of the nerve pulsing . They gave us an option to see the op and we said yes but didn’t watch for a while . He had to have a second op as brain fluid was dripping through his nose because the glue had come away from the repair . After his op they had to take him off all meds for 24 hrs as he had been on so many prior and the op ones weren’t working . It was hard to watch . I will add you to my prayers
You are one strong woman. ❤❤
Oh Stacey, I just found this vlog. I’m so sorry you have to go through this terrible pain, it sounds horrendous.
You’re a very courageous and strong woman ❤ I wish you all the very best love.
I enjoy your channel 😊 xo
Thank you so much :)
Thank you so much for taking the time to reply to my comment when your having so much pain every day must be like a roller coaster wishing you some free pain days ❤
Any time! I'm here for you! X
Oh my Stace hearing your story made me 😢 just hearing what you have to go through daily hope all goes well love the channel & just learning new things thank you so much
Thank you so much!
You are a strong woman.
Oh !!I just found you and I love the way you cook because I cook like you do.Listening to your story just poked me in the heart and watching you grieve and then put it away and pull up your boots was remarkable. I will pray for you and really that's the best thing I can do.I also ask for blessings on you and our beloved husband.Mercy and strength.You are not made of iron because who is.Big hugs from Alaska.
Thank you so very much for your blessings, I can feel it X ps Alaska is on the top of my bucket list.
Hi from a farm in 🇨🇦. I just found your channel and have subscribed. I will be trying your crumpet recipe right away. Really looking forward to trying more. I hope you were able to have the surgery and that it is helping.
I do feel for you I have it to for about seven years it’s horrible I can understand your pain but on both sides must be terrible it changes your life so much you are so strong a strong woman god bless you xxx
I'm so sorry to hear you have this as well. It's my ninth year this year. Wishing you a pain-free day. Reach out to me anytime you need someone to talk to XX
Hi there! I'm new-be but want to thank you for your time and efforts. I have watched most of your videos and looking forward to seeing more. God bless look and do you first!❤
Thanks so much for your support :)
Good luck you will be fine
God bless you, take care and stay strong 🙏
Hi Stacey. I'm so sorry to hear what you are going through. I'm suffering badly right now with pain from my neck all down my right arm to my thumb. I'm having an x-ray today to see what's causing it. I'm on tramadol. You're honesty and openness is amazing ❤😢. Please stay safe and well dear lady. I've just found your channel and would not like for it to go. There is still so much more to learn from you. For example how to hydrate and use hydrated fruits.❤💐❤.
Thank you so much for your kind well wishes. I hope your pain gets sorted for you and good luck with your x-ray today. Thank you for your support.
I take Tramadol too plus 3 slow release Panadol and 3 regular Panadol. It doesn't always cover my pain but it sure helps.
God Bless you. I pray this surgery works for you 🙏🏼🙏🏼 I have Trigeminal Neuralgia but only on one side. Stress brings mine on and sometimes I can’t even see out my left eye. I hate the pills I have to take and will only take them when I have too. Sometimes I take to many because it hurts so bad and want to just cut my head off 😢
God bless and thank you for sharing your story. So sorry you had to give a job you loved.
Hello, and thanks so much for leaving a message. I am so sorry to hear you have it as well. I have put the surgery off twice now because of my knee and I am unsure if I will go ahead with it. I understand your pain and I hope you get relief and can manage things. I am thinking of you and feel free to email if you ever need to talk :)
Blessings to you Stacey & all your followers who have this disease🙏❤️🌹
thank you :)
❤You are a very brave lady.❤
Great job
Hi Stacey. I’ve had TN for at least 30 years and it’s probably connected to my MS. I’m one of the lucky ones that only get the attacks every few weeks and then only for a few seconds for a couple of days. Worst ones are a couple of minutes when I feel it’s worse than being tazered in the face, but usually it’s over and I’m back to normal the instant it stops.
I can’t imagine how hard your condition has been for you as mine affects me for such small amounts of time. I’m glad you have the inner strength to deal with it. Appreciate your cooking videos and you come across as very genuine, and that’s pretty rare these days.
I am sorry to hear you have this as well. It can be very draining and difficult to deal with at times. The bad weather currently is making me flare up a bit atm. I wish you all the best and I hope you have many pain-free days. Stacey
So sorry for your pain. I also have neuropathic pain. Been going on for a while. I don't understand Gd why he allows this suffering
I have being struggling with TN for over 10 years it is hard very hard sending love and prayers
Thank you and I am so sorry to hear you also have this. I wish you all the best and many healing hugs :0
I just came in to say good bye. I've been totally adjusting my diet / program to serious oxalate dumping and it's taking extra time to do all this, I've had to trim down activities. I wish you the best on your healing journey. I've loved your stuff. you lovely lady!!!
Oh, I am so sorry to see you leave but I understand you must look after yourself. Thank you for joining me and take care :)
Sending love and prayers from South Africa 🇿🇦 ❤ 🙏. Ive recently been diagnosed with Lupus.
Thank you and I wish you all the best. I hope you are ok.
stacey u are a beautiful human being take care of u self
Hi you just popped up on my feeds and i want to reach out , sending you positive vibes and i pray for you that the future looks HEALTHY AND YOU CAN BEAT THIS HORRIFIC PAIN, iv just myself been diagnosed with TN, and i have type 2, and on the medication for facial nerve pain to that are not the best at functioning. I too have a youtube cooking channel and also lost my job . I really sending you a big hug, every thing you said i feel your emotions. THANKYOU FOR SHARING . ❤
Hello, on the one hand, it is so lovely to hear from you because you left such a lovely encouraging message but on the other hand I'm so sorry to hear you also are a sufferer of TN. I want to reach out to you to offer any help I can for you. One of the reasons why I made a video about my journey was to find others with this. It is such a hard thing to go through and it doesn't matter how supportive people are around you, they will never understand the level of pain you are now enduring. Its one of the hardest things, as on the outside you look perfectly normal. Anyway sorry for the long rant. Please feel free to private email me at any time! I will also check your channel out. Take care my friend and I wish you a pain-free day!
What a strong lady you are, willing just to get on with what life has thrown at you and make the best of everything, so appreciate your content and wish you to be well.
thank you very much :)
Oh my darling😭💔💔❤️❤i know every single painful emotion you've felt with this awful disorder..your channel just popped up on my page tonight..i see it as a sign..because I'm on my journey 2 years now and its so so tough and such a struggle at times..but on the good days..how amazing is life👏✨️🥰 sending you love from Dublin ❤☘️
I am so sorry to also see you have this horrid TN. I hope you enjoy the channel and that you are feeling ok. Sending you healing thoughts :)
My Mum has had TN for 30 years. She has had so many surgeries and procedures- none have given her relief. She suffers terrible stabbing pains every day. Hers can be triggered from reading, talking on 12:29 the phone, stress. She has also suffered a stroke which has taken away her memory. She is in her 80’s and cant remember how old we are or when our birthdays are. She will tell you the same stories over and over, and cannot keep up with conversations. It is very sad. I wouldn’t wish TN on anyone.
Good on you Stacey for achieving your goals.
Thank you so much 😊
My friend suffers from this condition, she is currently taking seizure med to help her. It was very debilitating till she found the right medication. She really fears the pain coming back! So sorry you are going through this! 😊praying for a quick healing!
What medication helped your friend the most?
Thank you for your message :) I hope your friend is doing okay.
I am on Gabapentin amongst others, if that helps. @canoegirl6335
Hi Stacey, I am so sorry to hear of your situation, and praying that the surgery is helpful for you!!! I love your channel, and can't wait to steam can pinnapple like you do. God Bless your courage and rcovery. Praying for you and your family. Janet
Thank you so much Janet for your lovely encouraging message! It certainly means a lot to me. Thanks for watching and let me know how your pineapple goes.
God Bless you! I hope the surgery is a success. It’s so hard losing your dream job!
Thank you :)
I just watched this! Its heartbreaking for you! I only hope that you can find relief after your operation!
Thank you :)
Just found this, and Co-incidentally have just seen a really helpful video on the trigeminal nerve. Stop Chasing the Pain is the YT channel and he has a specific therapy you can learn at home. I do cranial osteopathy and this is the best I have come across if you can;t get good cranial work. Sending hugs.
Thank you, I have gone and found the channel, and I will almost try anything.
Gosh Stacey poor you, that sounds terrible, was very interesting to hear about it though.
Thank you for your message :)
Praying for you.... hugs❤
Thank you
Hi hoping in the 6 month since you put out this video you are on the improve, really enjoy your videos and little snippets of your life
Thank you, the medication is helping.
Im so sorry you have pain ..you are very good at explaining..yoy gi into the nitty gritty. Well done..I have daiky knee pain..understand you sis..take care..kind regards Karolyn Melbourne..Kia Ora. X
thank you for your message, I hope your knee is feeling better for you :)
Whangarei Hospital, the WORST hospital in the World diagnosed the patient with stress. Baby doctor was adamant that despite all the evidence it was definitely stress. Thanks be to God for the 'older' GP who took one minute to diagnose this hideous disorder. It has come and gone, treated with Tegratol which has worked. Still wanting to slap the baby doctor who knew it all. As a nurse I KNEW the baby was wrong, but as is typical at Whangarei Hospital, if you query anything you are deemed a high security risk. SO GRATEFUL AND GLAD YOU ARE FEELING BETTER. LOVE YOUR CHANNEL AND YOUR STRENGTH. THANK YOU FOR ALL YOUR HARD WORK.
thank you and I am so pleased you have finally had some relief. Thanks for messaging me and I hope winter isn't treating you too badly :)
Oh my bless your heart, you are so beautiful person. I also have a incurable disease called anticoagulant blood disorder . It causes my blood to produce blood clots so I take blood thinners ,it is rare too.. But I am Christian and I trust Jesus and I believe in prayer and Jesus Christ healing powers, I will pray for you too, I hope your have a blessed day
I found out last September 2023
I'm so very sorry you're having to go through this. I'm praying you get better soon 🙏. I had a sister that had the very symptoms that you're describing and the doctors couldn't figure out what was wrong with her. She lost her eyesight and was in excruciating pain. But I was wondering what happened to you and I missed your videos
Thank you so much for your kind words and prayers. My gosh, your poor sister, is she okay now? Did they get to the bottom of her health? I really appreciate you taking time out to watch and reach out. 🙏
@@FarmersWifeHomestead Unfortunately no they never did and she passed away about 4 months after losing her eyesight.
@@lilym2432 I'm so so sorry for your loss. That is heartbreaking for you.
@@FarmersWifeHomestead Thank you so much
A doctor om u tube dr sutter works with a lot of people with this and I've seen a chiropractor talking about how he believes its a neck issue. I hope something helps you
Please tell me how you are doing now Stacy I am waiting for a rhyzotomy after pain came back after MVD a year ago I literally am a zombie with meds at the moment did you have a successful MVD ? I know exactly what you go through
Margot
You poor soul, pain is so draining ❤
Some days are better than others. Thank you for your support.
Wow ,gurl you're amazeballs (should say boobs), thank you soooo much for what you do! You are so darn inspiring and give me confidence to work on my own media presence. Largely because you work in a real kitchen, you're not hi tech, you don't wear makeup... you're so real 😊 thank you!!!❤
Yep, I have it. I don't know why it started. I did have a wisdom removed 2 months before it started, don't know if that had anything to do with it. When it began it reached the cheek and the jawline. I honestly thought that I had bone cancer or something and that my time was up. The doctor immediately knew what it was and gave me tegretol, sorry spelling, which has done the trick. The drug is for epileptics and is horrible. It affects my eyesight and I can't do anything.
@david404664 I am so sorry to hear you also have this. I am here if you ever need to talk :)
💜💜💜kia kaha 💜💜💜
I also have trigeminal neuralgia and am on anti seizure medication. I also have several nerve issues that cause pain in other parts of my body. I do wonder if they are all related? I also have pelvic congestion syndrome which is also related to veins and nerves. Having vericose veins also makes me wonder if they are all related to compression on nerves that causes acute pain. 😢
I am sorry to hear you have this as well. I also have really bad veins in my right leg, you could be right in your thinking. I wish you all the best in your health journey, big hugs to you. Stacey
You are strong and courageous, but I wish you didn't need to be. I have the intermittent kind of TN. When I'm having a flare, movement is a trigger. I don't have to tell you how much I don’t want to move! But, life. Things need doing.
People think it can't be as bad as you say or you wouldn't be talking, smiling, going about your business. You'd be on your knees. What they don't get about chronic pain is the chronic part. Your have a choice: you can be curled in a fetal position in terrible pain or you can get on with living life in terrible pain. Either way, you're in pain. But one of those options lets you have some life.
For people who have never experienced TN, have you ever had a really bad toothache needing a root canal? Worse than that. More like having the root canal without being numbed first.
Or maybe you've had sciatica, which is also a neuralgia. But the trigeminal nerve is more sensitive. Think sciatica times 3. Or 4.
Most people would be on their knees crying out for it to stop if they had so much pain. But when it's unremitting, 24/7, at some point you have to live your life around it.
So yes, you're courageous. But you don't have much of a choice. Given the chance, you'd choose to live without the pain.
I'm very sorry you had to give up your dream job which you worked so hard to achieve. That's a loss which must be grieved, almost as much as the death of a friend, because it was a piece of your identity. I'm glad you've thought of another career where you are helping people, because that's your nature. I can see that in you.
I won't wish you strength and courage, because you have plenty of those. I wish you periods of respite when you don’t need to be strong or courageous; times when you can safely lay down the burden of being strong and courageous.
Hi Stacy Could you please tell me if your operation terminated the Trigeminal problem ?
I am in a middle of some decision to take the right one .
Thank you in advance if you answer to me
@biancast-g7274 I haven't had the operation yet. I had to delay the operation twice now because of my knee operation first. Feel free to message me on email if you like.
@@FarmersWifeHomestead
Thank you so much for your respond. I am waiting for a consultation in a middle of august but in a mine time , I went to a ostéopathe that relived a lots of the attaques . I can keep you posted if you wish .
I have suffered with Trigeminal Neurolgia since 2019. In March 2022 i had a Balloon Rhizotomy..it relieve the pain for about 10 months. This Wednesday, May 8 i am having the MVD surgery. Wish me luck. May 5 2024 7 a m
All the best for your surgery, I will be thinking of you. I have had to delay mine twice now so I can get my knee fixed instead.
Love watching your cookingvshows and i will be thinking of you heaps. You will be fine and hope you get well soon
Have you had your surgery? I hope you are pain free.
Hello, No I put it off. I'm so scared to have it. I know I will have to one day but since I made this video I have been able to take fewer meds and I'm in a lot less pain.
The pain of this condition is so bad! I’m suffering miserably. Do you have you mr surgery?
How are you managing it?
Painkillers and amitriptyline don’t seem to do anything for me!
My husband had the brain surgery for TN, with no problem. It's great to have him pain free. Big pharma drugs never helped. We made tincture of ghost plant& edible cannabis & honey bee stings were huge helps.
Best of luck to you from Pennsylvania USA.
@@sharonstahl3285 did he have TN 1 or 2? I seem to have atypical. Which is pretty much daily pain of some kind.
Did he have the MVD or the gamma knife?
Thank you for your comments here, it helps those of us in the similar circumstances. X
@@FarmersWifeHomestead so glad to hear this? What meds are helping you? I started carbamazepine but after a week had to stop as it was making me so sick but also made me a bit psychotic. Apparently a side effect! Crazy
This is not to offend but shared in love. Please look to Jesus and the cross and try take communion as much as possible, not just at church but in your home because the spiritual application of communion His broken body and shed blood really helps. Ive heard many testimonies of people being healed. Joseph Prince speaks on this really well. I hope you feel better as each day passes. Stay strong x
thank you so much for your message :)
Just so you know... that last comment was sent by a girl. Google makes it seem like my partner Al.