What is Multiple System Atrophy (MSA) and How Does It Impact Me and My Family?

The MSA Coalition kicked-off MSA Awareness Month 2023 with this webinar featuring Paul Beach, DO, PhD from Beth Israel Deaconess Medical Center and Amy E. Wynn, FNP from Vanderbilt University Medical Center where they addressed “What is MSA?” for both the patient, care partner and family members and provided the opportunity for attendees to ask questions and understand the clinical and psycho-social aspects of multiple system atrophy.
THIS EDUCATIONAL SESSION IS NOT INTENDED FOR THE PURPOSE OF PROVIDING MEDICAL ADVICE. All information, content, and material is for informational purposes only and are not intended to serve as a substitute for the consultation, diagnosis, and/or medical treatment of a qualified physician or healthcare provider. The information supplied through webinars or on our webpage, or by any representative or agent of the MSA Coalition, whether by telephone, email, letter, or other form of communication, is for informational purposes only and does not constitute medical, legal or other professional advice.

[@brendadickenson3547]

Thank you all.

[@moonstad6750]

Thank you... I think. Often hard to tell the good news from the bad news these days. Well presented and I'm about to binge the MSAcolalation videos. Mo

[@brendadickenson3547]

My husband had dystonia and his neurologist at Shands asked if he would donate his brain to the brain bank at Shands and when he had his heart attack and fell.and only lasted a week. But our funeral home also knew ahead of time so it was not stressful. He had it lined up ahead of time, this was in 2004.

[@c.c.3341]

Brenda I am very sorry about your dear husband. What a deeply compassionate gift he made to research ! I have Dystonia also and Dysautonomia and I feel very strongly that I that also have MSA, but living in a city where there are no experts on it is really tough.

[@lindabarnes7358]

​@@c.c.3341my ok

[@tomtait2463]

Very well done! Tom

[@mikewolfe1833]

I need help I’m not real good at computers. I was told I have Parkinsonism so I’ve been listening and learning

[@mikewolfe1833]

Please email me I need help with this

[@c.c.3341]

What is the email for the MSA Coalition for information please?

[@mikewolfe1833]

I do believe after yrs. Of looking and digging through my medical history in the last few years I’ve found to believe I have MSA.
In 2021 I was diagnosed with Parkinsonism Parkinson’s disease
REM sleep disorder central
Bladder weakness
Chronic Fatigue
Sweating
Also had mri of the
spine. Showed up
atrophy.
I was told we won’t figure
I was told the only way to know if I had it would be at i’ll Topsey

[@mikewolfe1833]

I would like to find a center

[@anthonychristian8030]

No sound

[@sunahamanagai9039]

43:25 44:33