Multiple System Atrophy Patient Panel March 2023

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  • เผยแพร่เมื่อ 22 ต.ค. 2024

ความคิดเห็น • 13

  • @brendadickenson3547
    @brendadickenson3547 ปีที่แล้ว +4

    Very informative, thank you

  • @kathrynaldrich5441
    @kathrynaldrich5441 10 หลายเดือนก่อน +1

    Could someone please explain the MSA diagnosis process? I was diagnosed with Parkinson's in 2021 but suspect that it's really MSA. I have an appointment with my neurologist in 2 weeks to discuss my concerns. What should I be asking for in terms of imaging or tests?

  • @agent4you2
    @agent4you2 ปีที่แล้ว +2

    I was recently diagnosed with MSA - took two years to figure out.

    • @C-Dub-K
      @C-Dub-K ปีที่แล้ว

      Be well 👊

  • @markgluchman8180
    @markgluchman8180 10 หลายเดือนก่อน +1

    What is the phone and/or email for MSA GUIDE and MSA HELPLINE please?

  • @joannalalicata1281
    @joannalalicata1281 ปีที่แล้ว +2

    What study was Alan in where he believed the medicine was helping and WHAT WAS THE MEDICINE? People focus on the most important points PLEASE! How do scientists take a patient off a life saving drug! Unbelievable!

  • @Markyourwelcome
    @Markyourwelcome ปีที่แล้ว

    My mom had it also and no one knew what it was that was the in the 9os and they still haven't got a clue do your doctor know if they are any closer to understanding if

  • @dseign2696
    @dseign2696 ปีที่แล้ว +1

    My symptoms I have been issues with bladder not completely emptying, optic nerves, balance/gate, frozen shoulders and stiff neck, drops in BP and blacking out. I was just Dx with POTS and Autonomic Dysfunction. My question is, how do they figure out if this is a simple Dysontomia issue or something more serious like autonomic failure or MSA?

    • @C-Dub-K
      @C-Dub-K ปีที่แล้ว

      Add Parkinsonism or cerebellar signs with the dysautonomia you’re experiencing and boom

    • @Markyourwelcome
      @Markyourwelcome ปีที่แล้ว

      Have msa to feel depressed and I feel like a burden to my friends and family

    • @dseign2696
      @dseign2696 ปีที่แล้ว

      @@Markyourwelcome My close friend told me, by me not asking for help, that I am robbing her of her blessings. I hope this helps you. It is hard being on the receiving end. Maybe keep this in mind.

  • @baserkaratas
    @baserkaratas ปีที่แล้ว

    can you use turkish subtitles