Multiple System Atrophy | Questions from Patients and Answers from Medical Experts

This question and answer session took place at the 2019 Multiple System Atrophy Coalition Annual Patient and Family Conference. Topics answered include the early symptoms of MSA, pain management in MSA, effectiveness of levodopa in MSA, gastrointestinal symptom management, preventing urinary tract infections, and more.

[@dennismarble3591]

I cannot begin to thank you for this fantastic, informative video. I am recently diagnosed and knew absolutely nothing about this disease. The comment about water raising the blood pressure and food lowering it hit home with me as did many others. I have not seen this information anywhere else. Every speaker had excellent, helpful information. I now realize I must find a specialist to assist me as I have multiple symptoms. I spent my time in Vietnam in the jungles sprayed with Agent Orange as a Army Ranger doing Long Range Reconnaissance and Special Operations missions and see others like me who also have MSA. Do you see similar patients? Thanks again for this highly beneficial information.

[@cd5926]

Thank you for providing this important information about multiple system atrophy

[@TheAngiepangie424]

Agh pain is a warning system I knew the alarm company was crooked! Brilliant give that guy a 🏅 !🙏🏽💞🔅

[@cherylannevagg9692]

Does it start with intrinsic fatty muscle infiltration in feet (so far only had MRI for feet ).
Feet hurt . Stiff ankles .
Atrophy of intrinsic muscles.

[@automotivedeals]

THANK ALL DRs , I AM WITH MSA C OUT OF COLMBIA NY BIO HAVEN PAHSE3 TURN NOT WORKING OR ANY DIFFRENT FROM PLASBO I WIL TRY FOOD AND SEE WHAT WILL HAPPEN ANY ONE TRY 1200 CQ10 ? I DID ALL THE WAY WITH600 BUT NIT MUCH HELP
ANY ONE WITH fatigue ?

[@alizamarie1205]

My patient has MSA.

[@kimaegaii]

If i may ask, what were their first early symptoms and how long to develop?

[@judymclaughlin2742]

87 j8