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28. Cannabinoid Hyperemesis Syndrome with Alice Moon
ฝัง
- เผยแพร่เมื่อ 19 ส.ค. 2024
- This episode’s conversation is with Alice Moon, a PR and marketing professional who has worked in the cannabis space since 2011. In 2018, Alice was diagnosed with Cannabinoid Hyperemesis Syndrome, a condition that leads to repeated and severe bouts of vomiting when she consumes cannabinoids. Since being diagnosed with CHS, Alice has ceased cannabis use completely and become an advocate for safe and mindful cannabis consumption, awareness, and research. Her passion for educating on the subject has garnered the attention of RXLeaf, Leafly, Business Insider, and Forbes. In early 2020, Yahoo released a documentary featuring Alice
During our conversation we discussed:
Alice’s experience with CHS
What little we know about what causes CHS
What treatments provide relief from CHS
Strategies cannabis users can use to reduce their risk of developing CHS
How awareness for CHS has grown since she developed the condition
Whether patients who recover from CHS can go back to using cannabis
The three stages of CHS
and more
Additional Resources:
Unraveling the Mystery of Cannabinoid Hyperemesis Syndrome - CannMed 2019 Medical Panel - • Unraveling the Mystery...
cannabinoid-hyperemesis.com
@thealicemoon (Instagram)
@cannabinoid.hyperemesis (Instagram)
alicemoon.la
This is a fantastic interview with an articulate, smart, scientifically literate young woman who has taken a leadership role in public education on this little-understood, severe illness.
Award for most adjectives in a sentence
I had chs and I did not know I had it. I smoked weed for 30 years. My chs came about 3 years ago. The first thing that happened was I was smoking a spliff, and halfway through smoking the spliff, I had very bad nausea, stomach pains and stomach cramps and I then vomited, i didn't understand why i vomited so I continued to smoke. 3 months before this happened. My marriage broke down and I was missing my children so much I could not cope, so I was already in a bad state of depression and not sleeping or eating much. I continue to smoke after this first bout of vomiting. After this first bout of vomiting, i could not eat food, and my insomnia kicked in very badly. Maybe I'm just eating two spoons of my dinner per day, and maybe 2 to 3 hours of sleep a night. I continue to smoke weed. I worked through this whole period doing manual labour, and somehow my body was still functioning, and I felt strong even with lack of sleep and hardly eating food. I was functioning on Coca-Cola, Lucozade, and spliffs. Basically I was ill for 6 months and continue to smoke without knowing the reason for my sickness. 6 months later, I hit a brick wall, and my body started to shut down. I went from 17 and a half stone down to 12 stone in 6 months. I started getting stomach cramps, stomach pain, vomiting from time to time, gastro problems, hypnic jerks when trying to sleep, Tinnitus in the ears. once I did fall to sleep then I woke up with tremors. Muscle spasms. Muscle stiffness. Muscle pain. Bone pain. Muscle spasms in my back . Found it hard to walk. Numbness down my legs. Vomiting, nausea.Waking up with numbness in my arms and hands. Anxiety, Muscle spasms in my throat, throat tightening every time I lie down to try to sleep. Constipation, Haemorrhoids. I could not urinate properly. The Muscle spasms in my throat when I try to lie down were causing my throat to close. All this time, i was going to the doctor's and getting nothing back from the doctors with regards to why I was getting all these symptoms. The doctor was offering me muscle relaxant tablets but I could not take them because they made a lot of my symptoms worse. the doctor was telling me to sleep sitting up due to my throat closing when lying down. They sent me for every check-up you could imagine and found nothing about the causes of my sickness. They did find I had developed a hiatus hernia. As more time went past, the muscle spasms in my throat got so bad that I could not smoke because my throat started to close when standing or sitting. This obviously stopped me from smoking. My anxiety and depression were so bad from missing my kids and all the symptoms from the chs and I was still not diagnosed. I felt like I was dying. My nervous system was in a very bad way. I was researching everywhere and came across CHS. I then took this to the doctor, and they diagnosed me with CHS. I continue to work through this whole period. Looking back, I do not know how I got through. But I think the continuous moving of the body was helping me somehow. I started to eat a little better and slowly slowly I started to put my weight back on. After 1 year of me sleeping sitting up I was finally able to lie down without my throat going into spasms so I could lay down I started to sleep a little better slowly slowly. It's been 2 and a 1/2 years since stopping smoking. After 1 year, I was still in a very bad way, with many symptoms still remaining. After about a year and a half they found a 7 mm polyp which they cut out of my stomach. Through this whole period of me being sick with chs i had found having hot baths with Epsom salts was helping me a great deal. Putting warm olive oil all over my muscles was also helping. Drinking bone broth also helped a lot. After 2 years, my haemorrhoids started to calm down. I was able to go to the toilet better. Both urinating and pooing. It's been 2 and 1/2 years, and I still have tinnitus in the ears and spasms in my back and back pain, but it's nothing like the spasms and back pain I had before. I'm still suffering a little bit with insomnia. And when I wake from sleep, my arms and hands still go numb and numbness down the outside of my right leg mainly my knee and thigh. The biggest help I have found in my healing period was through cranial therapy. When I start to feel quite good, sometime I would try to drink alcohol and smoke cigarettes. Drinking alcohol and smoking cigarettes seems to bring back some symptoms. I tried to drink sometimes to test my body. But then I realised I could not drink. Same with smoking cigarettes. Some symptoms start to come back. I have come to the realisation that I can not drink alcohol or smoke cigarettes. And obviously cannot smoke cannabis for the rest of my life. Even standing next to someone who is smoking a spliff affects me. I was always a very fit and strong individual and felt invincible. But this whole experience has humbled me. Please look after yourself and your health mentally and physically. The one good thing I can see about CHS is that if you stop smoking weed and live a healthy life it can go away. As I said I still have some symptoms. But I feel like if I look after myself hopefully I pray to God that all my symptoms will eventually go away. it is possible that there is damage done that cannot be repaired from but I am very thankful and go forward with a positive mindframe. It is very good to see that there is information out there for people to find. It did not occur to me to go on TH-cam and type in chs back then. But even the videos on TH-cam here do not talk about half my symptoms. I obviously took chs to the Brim. And maybe I'm very lucky. But it is very good to see there is information out there and people are learning more and more everyday about CHS. If you feel you have CHS the beginner of CHS or you feel you have had it for a while please stop smoking now. Go and seek help. As I said the best thing that I found helped me was cranial therapy and God. God bless you all out there, peace 🙏
I have had CHS diagnosis after smoking every day for the past 25 years, mainly sativa strains (haze, amnesia, etc).
I was never motivated to quit smoking weed until I had the diagnosis.
Now I am clean for 14 days and I am convinced it is the only way forward FOR THE REST OF MY LIFE.
also, the synthetic variant of THC, being HHC gives the same syndrome. To my experience even worse.
Good luck for all the people being diagnosed with CHS.
Find pro help, go to self-help groups, and change your life for good.
It is the only way forward.
you arent alone, 17 year smoker here, wishingi could still smoke and feel fine from it like i did in my 20s
@@SkullKidForever yes I understand. To cope with that feeling I visit a specialised psycho therapist with 30+ years of experience in the field of addiction. Because the thing is, after quitting weed, you should now the triggers in your personality. Also come to new insights about yourself, be at peace with those insights and know how to change them. In the end, becoming a better version of yourself.
All of this, for me personally, is actually way harder then quitting weed itself.
Good luck! ❤️
I had chs and I did not know I had it. I was smoking weed for 30 years. My chs came about 3 years ago. The first thing that happened was I was smoking a spliff, and halfway through smoking the spliff, I vomited and didn't understand why, so I continued to smoke. 3 months before this happened. I split from my wife and children, so I was already in a bad state of depression, not sleeping, and not eating too much. I continue to smoke after this first bout of vomiting. After this first bout of vomiting, i could not eat food, and my insomnia kicked in very badly. Maybe I'm just eating two spoons of my dinner per day, and maybe 2 to 3 hours of sleep a night. But I continue to smoke. I worked through this whole period doing manual labour, and somehow my body was still functioning, and I felt strong even with lack of sleep and hardly eating food. I was functioning on Coca-Cola, Lucozade, and spliffs. Basically I was ill for 6 months and continue to smoke without knowing the reason for my sickness. 6 months later, I hit a brick wall, and my body started to shut down. I went from 17 and a half stone down to 12 stone in 6 months. I started getting hypnic jokes when trying to sleep. Tinnitus in the ears. Body shaking once I did fall to sleep when I woke up with tremors. Muscle spasms. Muscle stiffness. Muscle pain. Bone pain. Muscle spasms in my back . Found it hard to walk. Numbness down my legs. Vomiting and nausea.Waking up with numbness in my arms and hands. Muscle spasms in my throat every time I lie down to try to sleep. Constipation. Haemorrhoids, I could not urinate properly. The Muscle spasms in my throat when I try to lie down, causing my throat to close, and i could not breathe when I lie down. All this time, i was going to the doctor's and getting nothing back from the doctors. Only telling me to sleep sitting up. The muscle spasms in my throat got so bad that I could not smoke because my throat started to close when standing or sitting. This obviously stopped me from smoking. My anxiety and depression were so bad from missing my kids and all the symptoms from the chs and I was still not diagnosed. I felt like I was dying. My nervous system was in a very bad way. I done researching everywhere and came across CHS. I then took this to the doctor, and they diagnosed me with CHS. I continue to work through this whole period. Looking back, I do not know how I got through. But I think the continuous moving of the body was helping me somehow. I started to eat a little better and slowly slowly I started to put my weight back on. After 1 year when I was able to lie down without my throat going into spasms I started to sleep a little better slowly slowly. It's been 2 and a 1/2 years since stopping smoking. After 1 year, I was still in a very bad way, with many symptoms still remaining. Through this whole period, having hot baths with Epsom salts was helping me a great deal. Putting warm olive oil all over my muscles was also helping. Drinking bone broth also helped a lot. After 2 years, my haemorrhoids started to calm down. I was able to go to the toilet better. Both urinating and pooing. It's been 2 and 1/2 years, and I'm still have tinnitus in the ears and spasms in my back and back pain, but it's nothing like the spasms and back pain I had before. I'm still suffering a little bit with insomnia. And when I wake from sleep, my arms and hands still go numb and numbness down the outside of my right leg. The biggest help I have found in my healing period was through cranial therapy. When I start to feel quite good, sometime I would try to drink alcohol and smoke cigarettes. Drinking alcohol and smoking cigarettes seems to bring back some symptoms. I tried to drink sometimes to test my body. But then I realised I could not drink. Same with smoking cigarettes. Some symptoms start to come back. I have come to the realisation that I can not drink alcohol or smoke cigarettes. And obviously cannot smoke cannabis for the rest of my life. Even standing next to someone who is smoking a spliff affects me. I was always a very fit and strong individual and felt invincible. But this whole experience has humbled me. Please look after yourself and your health mentally and physically. The one good thing I can see about CHS is that if you stop smoking weed and live a healthy life it can go away. As I said I still have some symptoms. But I feel like if I look after myself hopefully I pray to God that all my symptoms will eventually go away. it is possible that there is damage done that cannot be repaired from but I am very thankful and go forward with a positive mindframe. It is very good to see that there is information out there for people to find. It did not occur to me to go on TH-cam and type in chs back then. But even the videos on TH-cam here do not talk about half my symptoms. I obviously took chs to the Brim. And maybe I'm very lucky. But it is very good to see there is information out there and people are learning more and more everyday about CHS. If you feel you have CHS the beginner of CHS or you feel you have had it for a while please stop smoking now. Go and seek help. As I said the best thing that I found helped me was cranial therapy and God. God bless you all out there, peace 🙏
I had CHS for almost 5 years before I quit smoking. In my first 3 months I lost 80 lbs. threw up for around 2-3 hours every morning for a long time, and that slowed down to one or twice a week. Constant nausea, stomach pain and extreme sensitivity to pressure. I developed it 4years into smoking around an 1/8th daily. Cessation of symptoms around 20 days after quitting. Sober for 4 months then I started smoking again, developed it again after 20 days, continued smoking for 4 months total, and cessation of symptoms after 20 days. Hot showers did not help me.
I had chs, and I did not know I had it. I smoked weed for 30 years every day. My chs came about 3 years ago. The first thing that happened was I was smoking a spliff, and halfway through smoking the spliff, I had very bad nausea, stomach pains and stomach cramps and I then vomited, i didn't understand why i vomited so I continued to smoke. 3 months before this happened. My marriage broke down, and I was missing my children so much I could not cope, so I was already in a bad state of depression and not sleeping or eating much. I continue to smoke after this first bout of vomiting. After this first bout of vomiting, i could not eat food, and my insomnia kicked in very badly. Maybe I'm just eating two spoons of my dinner per day, and maybe 2 to 3 hours of sleep a night. I continue to smoke weed. I worked through this whole period doing manual labour, and somehow, my body was still functioning, and I felt strong even with lack of sleep and hardly eating food. I was functioning on Coca-Cola, Lucozade, and spliffs. Basically, I was ill for 6 months and continued to smoke without knowing the reason for my sickness. 6 months later, I hit a brick wall, and my body started to shut down. I went from 17 and a half stone down to 12 stone in 6 months. I started getting stomach cramps, stomach pain, vomiting from time to time, gastro problems, hypnic jerks when trying to sleep, and tinnitus in the ears. once I did fall to sleep, then I woke up with tremors. Muscle spasms. Muscle stiffness. Muscle pain. Bone pain. Muscle spasms in my back . Found it hard to walk. Numbness down my legs. Vomiting, nausea.Waking up with numbness in my arms and hands. Anxiety, muscle spasms in my throat, throat tightening every time I lie down to try to sleep. Constipation, Haemorrhoids. I could not urinate properly. The muscle spasms in my throat when I tried to lie down were causing my throat to close. All this time, i was going to the doctor's and getting nothing back from the doctors with regards to why I was getting all these symptoms. The doctor was offering me muscle relaxant tablets, but I could not take them because they made a lot of my symptoms worse. the doctor was telling me to sleep sitting up due to my throat closing when lying down. They sent me for every check-up you could imagine and found nothing about the causes of my sickness. They did find I had developed a hiatus hernia. As more time went past, the muscle spasms in my throat got so bad that I could not smoke because my throat started to close when standing or sitting. This obviously stopped me from smoking. My anxiety and depression were so bad from missing my kids and all the symptoms from the chs, and I was still not diagnosed. I felt like I was dying. My nervous system was in a very bad way. I was researching everywhere and came across CHS. I then took this to the doctor, and they diagnosed me with CHS. I continue to work through this whole period. Looking back, I do not know how I got through. But I think the continuous moving of the body was helping me somehow. I started to eat a little better, and slowly, slowly, I started to put my weight back on. After 1 year of me sleeping sitting up, I was finally able to lie down without my throat going into spasms so I could lay down. I started to sleep a little better slowly slowly. It's been 2 and a 1/2 years since stopping smoking. After 1 year, I was still in a very bad way, with many symptoms still remaining. After about a year and a half, they found a 7 mm polyp, which they cut out of my stomach. Through this whole period of me being sick with chs, i had found that having hot baths with Epsom salts was helping me a great deal. Putting warm olive oil all over my muscles was also helping. Drinking bone broth also helped a lot. After 2 years, my haemorrhoids started to calm down. I was able to go to the toilet better. Both urinating and pooing. It's been 2 and 1/2 years, and I still have tinnitus in the ears and spasms in my back and back pain, but it's nothing like the spasms and back pain I had before. I'm still suffering a little bit with insomnia. And when I wake from sleep, my arms and hands still go numb and numbness down the outside of my right leg, mainly my knee and thigh. The biggest help I have found in my healing period was through cranial therapy. When I start to feel quite good, sometimes I would try to drink alcohol and smoke cigarettes. Drinking alcohol and smoking cigarettes seems to bring back some symptoms. I tried to drink sometimes to test my body. But then I realised I could not drink. Same with smoking cigarettes. Some symptoms start to come back. I have come to the realisation that I can not drink alcohol or smoke cigarettes. And obviously cannot smoke cannabis for the rest of my life. Even standing next to someone who is smoking a spliff affects me. I was always a very fit and strong individual and felt invincible. But this whole experience has humbled me. Please look after yourself and your health mentally and physically. The one good thing I can see about CHS is that if you stop smoking weed and live a healthy life, it can go away. As I said, I still have some symptoms. But I feel like if I look after myself hopefully I pray to God that all my symptoms will eventually go away. it is possible that there is damage done that can not be repaired from but I am very thankful and go forward with a positive mindframe. It is very good to see that there is information out there for people to find. It did not occur to me to go on TH-cam and type in chs back then. But even the videos on TH-cam here do not talk about half my symptoms. I obviously took chs to the Brim. And maybe I'm very lucky. But it is very good to see there is information out there, and people are learning more and more every day about CHS. If you feel you have CHS the beginner of CHS or you feel you have had it for a while, please stop smoking now. Go and seek help. As I said, the best thing that I found helped me was cranial therapy and God. God bless you all out there, peace
Thank you!! I was diagnosed a few days ago and I’m now 48 hours sober and slowly starting to feel better. I hope they can find a cure soon!
They do have a cure...QUIT WEED!
how much were you smoking in a day ?
All day stoner. Every hour or so
I love this great info! I’ve experienced alot of issues the last few weeks starting with extreme heart burn, then as it progressed nasty nausea & freezing cold sweats throughout thebday just decided to quit cold turkey & begging ill get by. I started smoking from TBI & extreme anxiety DPDR & depression & a short fuse
Thanks so much for this. I get CHS after heavy sessions. Its extremely debilitating. Hot showers help. Stopping consumption makes the symptoms go away. Personally i think its due to overconsumption that overloads what i call the munchie receptors. Why? Because CHS has the opposite symptoms of the munchies. Abdominal pain. Inability to eat or drink. Dehydration. Dry heaving bile. Extreme energy loss. Im 42 and have smoked since i was 16. I developed CHS about 10 years ago. I find Yogi Original Tea helps too. I get withdrawal symptoms when i give up. Sweats, anxiety. no nightmares but very vivid dreams. For me i can smoke but i know the trigger of morning sickness that means i have to take a break.
Does taking breaks when you start feeling symptoms and then going back after a small break still keep the terrible nausea away?
@@Retropunk667 yes but the longer the break the better
I had chs and I did not know I had it. I was smoking weed for 30 years. My chs came about 3 years ago. The first thing that happened was I was smoking a spliff, and halfway through smoking the spliff, I vomited and didn't understand why, so I continued to smoke. 3 months before this happened. I split from my wife and children, so I was already in a bad state of depression, not sleeping, and not eating too much. I continue to smoke after this first bout of vomiting. After this first bout of vomiting, i could not eat food, and my insomnia kicked in very badly. Maybe I'm just eating two spoons of my dinner per day, and maybe 2 to 3 hours of sleep a night. But I continue to smoke. I worked through this whole period doing manual labour, and somehow my body was still functioning, and I felt strong even with lack of sleep and hardly eating food. I was functioning on Coca-Cola, Lucozade, and spliffs. 6 months later, I hit a brick wall, and my body started to shut down. I went from 17 and a half stone down to 12 stone in 6 months. I started getting hypnic jokes when trying to sleep. Tinnitus in the ears. Body shaking once I did fall to sleep when I woke up with tremors. Muscle spasms. Muscle stiffness. Muscle pain. Bone pain. Muscle spasms in my back . Found it hard to walk. Numbness down my legs. Vomiting and nausea.Waking up with numbness in my arms and hands. Muscle spasms in my throat every time I lie down to try to sleep. Constipation. Haemorrhoids, I could not urinate properly. The Muscle spasms in my throat when I try to lie down, causing my throat to close, and i could not breathe when I lie down. All this time, i was going to the doctor's and getting nothing back from the doctors. Only telling me to sleep sitting up. The muscle spasms in my throat got so bad that I could not smoke because my throat started to close when standing or sitting. This obviously stopped me from smoking. My anxiety and depression were so bad from missing my kids and all the symptoms from the chs and I was still not diagnosed. I felt like I was dying. I doing researching everywhere and came across CHS. I then took this to the doctor, and they diagnosed me with CHS. I continue to work through this whole period. Looking back, I do not know how I got through. But I think the continuous moving of the body was helping me somehow. I started to eat a little better and slowly slowly I started to put my weight back on. After 1 year when I was able to lie down without my throat going into spasms I started to sleep a little better slowly slowly. It's been 2 and a 1/2 years since stopping smoking. After 1 year, I was still in a very bad way, with many symptoms still remaining. Having hot baths with Epsom salts was helping me a great deal. Putting warm olive oil all over my muscles was also helping. Drinking bone broth also helped a lot. After 2 years, my haemorrhoids started to calm down. I was able to go to the toilet better. Both urinating and pooing. It's been 2 and 1/2 years, and I'm still having tinnitus in the ears and spasms in my back and back pain, but it's nothing like the spasms and back pain I had before. I'm still suffering a little bit with insomnia. And when I wake from sleep, my arms and hands still go numb. Numbness down outside of my right leg. The biggest help I have found was through cranial therapy. When I start to feel quite good, sometime I would try to drink alcohol and smoke cigarettes. Drinking alcohol and smoking cigarettes seems to bring back some symptoms. I tried to drink sometimes to test my body. But then I realised I could not drink. Same with smoking cigarettes. Some symptoms start to come back. I have come to the realisation that I can not drink alcohol or smoke cigarettes. And obviously cannot smoke cannabis for the rest of my life. Even standing next to someone who is smoking a spliff affects me. I was always a very fit and strong individual and felt invincible. But this whole experience has humbled me. Please look after yourself and your health mentally and physically. The one good thing I can see about CHS is there if you stop smoking weed and live a healthy life it can go away. As I said I still have some symptoms. But I feel like if I look after myself hopefully I pray to God that will my symptoms will eventually go away. Is it possible that there is damage done that cannot be repaired but I am very thankful and go forward with a positive mindframe. Is very good to see that there is information out there for people to find. It did not occur to me to go on TH-cam and type in chs back then. But even the videos on TH-cam here do not talk about half of my symptoms. I obviously took CHS maybe to the Brim. And maybe I'm very lucky. That is very good to see there is information out there and people are learning more and more everyday about CHS. If you feel you have CHS the beginner or CHS why you feel you have had it for a while please stop smoking now. Go and seek help. As I said the best thing that I found helped me was cranial therapy and God. God bless you all out there, peace 🙏
Day 5 no za ( chronicle chief carts and bud for about 1.5 years ) first days were really bad I think I had early stage of CHS but I recognized it early on and stopped entirely the first couple days were so bad. Like a pain I would never wish on anyone. slowly im getting better and my symptoms are starting to get better but still in the mornings I get sick before I take medicine for the nausea which helps me lots.
Are there certain canabanoids that have been identified that could be causing this and could strains be developed that dont have the offending substances?
Does this happen to everyone
I love her enthusiasm about finding a cure for CHS. While it might take a niche scientist to find the cure, unfortunately abstinence is the best cure currently. I’m excited to quit and live a healthier life without Cannabis, for now.
I've smoked for 30 years and chs is just now getting me..the hard time I'm having is smoking a Lil initially stops the vomiting but then an hour latter its much worse ..I know I need to bite the bullet but ..
I saw a video about research on smoke vs edible users and it showed smokers are many more times effected by CHS that edible users.
Not necessarily. Heavy THC users are generally smokers. But my belief is that heavy edible consumption puts more strain on the GI tract because it runs through the gut. I only eat edibles, daily for 6 years, and have it bad.
Great podcast! I have had CHS and stopped cannabis use for well over a year. I have recently been trying to slowly reintroduce cannabis products and have not had the symptoms return🤞but I am taking it low and slow and I really hope I can return to cannabis. Also just FYI Haldol is not a benzodiazepine, it is an antipsychotic that causes sedation. Just wanted to clear that up
We’re you able to reintroduce?
@Lilbxxbyy not as much as I'd like to. I can take a few 5mg - 10mg edibles or take a small hit or two, but it's really easy to go over the edge and get really sick. I also have MS, though, and it's not a usual symptom, but it causes my autonomic nervous system to go into overdrive, and sometimes cannabis can bring that on as well. I'm still trying, but it's really scary when the result is possibly uncontrollable, painful vomiting, or feeling like I'm having a heart attack.
Read about you. Hit me up. Big advocate for Marijuana, diagnosed with CHS. No longer use, don't miss it a month in clean. But shit really interested me and would love to chat.