My mom is 90 and has had CHF for many years. She has ridden that roller coaster of ups and downs a lot more for the past 4 years. She is now winding down and is likely a couple of weeks or less away from going to see Jesus. I’ve learned a lot from your videos. Hospice helped my dad who had dementia and now my mom with CHF. It’s been a very long road and soon her suffering will end. But 90 years! That’s a good long life! Thanks for educating people on the uncomfortable (for some) topic of death and dying.
My mother just passed away from CHF last month. I had been watching your videos even prior to her actuality going on hospice and am so grateful to you for making these videos. She was at home with family by her side and I held her hand as she took her final breath. She had the death rattle and also a growl just as you described in one of your videos. Knowing what was happening made it easier for me to handle what I was seeing and hearing and I was able to educate my family during her dying process when our nurse was not present. Thank you again for taking the time to lovingly educate us all. ❤
My mama passed away in April and she had CHF along with multiple other health issues, including dementia. Thank you for posting this. She passed in her sleep and that's what I'm truly grateful for.
@Kensington555, thanks for sharing. My mom has similar health issues. May I ask? Was your mom alert the day before she passed in her sleep? Was it kind of unexpected? Thanks.
@@cynthia11364 my mom passed on 9/30/23 She starting having edema in her abdomen really badly. The doctors said if they drained the fluid it would likely return in just a day or two due to the CHF. She was not responsive for the last 4 days. She followed pretty much the outline hospice gave. If you are interested you can follow the hospice nurse here on YT to get an idea of what to expect. I really helped me a lot. I hope this helps.
My Coach (basketball) just this month died from it. I loved him so much. Visited him in the spring, but went back for his standing-room-only funeral. RIP, Coach Rippy. You were my main man.
Julie -- I just love the way you explain things, define terms and speak to everyday human beings. This from a retired nurse. You are a gem and are doing a great public service. Thank you!
Thanks Julie. I think you did this for me. I have had open heart surgery twice, and have CHF. I was hospitalized in CCU in January of 2021 and told I was stage 4 and maybe I had a year or two. But I had a cardioMems installed and watch my fluid closely. At my last checkup he said I was stage 3, which has a 70% chance of 5 year survival! I also have stage 4 kidney disease but all things considered I think I’m looking at a few more years at least. Still, I want to plan ahead to make the end as peaceful and pleasant as possible. Your videos are so great and so helpful. Thanks for all you do!
You are a very brave hearted person. We all, young, old, healthy or sick, should have things fixed and arranged because we know nothing about the future.🤗
Please follow a cardiac and kidney diet! You need to keep your creatine and potassium levels low. My husband had a kidney transplant but then unrelated issues damaged his heart. By the time they gave him the CHF dx, he died 2 months later. They also said a failed transplant contributed but the new kidney was still at 50% GFR compared to 11% prior to the transplant. So follow your doctor's orders to a T (no cheating).
My dad passed away a couple of months ago and its hard to even say what he died from because he had type 1 diabetes since age 8. He had CHF for 5 years or so. Maybe longer. He had a couple of heart attacks but didn't feel them because of diabetic neuropathy, but he was just very sleepy and that's how we knew to take him to the hospital. We took him to the hospital in March for his third heart attack (which we didn't know he had had at the time). He thought he just needed to have his CHF symptoms managed. Once he was in the hospital for a few days he also developed terrible swelling from his legs where he was dripping fluid from burst bubbles on his legs and feet. He also had low blood pressure that they were trying to raise. Eventually they decided his kidneys got bad enough that he started peritoneal dialysis which seemed to make things worse. He was on that for 2 weeks. Then was admitted back in to the hospital for one night with critically low sodium and died the next day at home from a heart attack after begging to be taken home that whole night in the hospital. He was also very confused and in a lot of mental (but not physical) anguish. Once he got home, though, that morning he calmed down. I think he knew he was going to die and wanted to be at home. I just don't understand how everything went downhill so fast. I thought the dialysis would have helped. Maybe his heart was too weak to handle it? I never thought he would die because he was chronically ill his whole life but after every hospitalization, he bounced back and was always so positive. So it was such a shock to me. I always thought I had more time with him.
Hi, Julie. I love your content and your bright spirit. Thanks so much for providing this much needed information. Please...one person's opinion...ditch the background music. It's such a distraction from what you're saying. I'd rather just hear your voice. Thanks.
Thank you for this channel. Honestly. I only discovered it a few days ago and my mom passed away on Sunday from late stage COPD. She was 75. She was in a nursing home in Frail Care after 6 months in and out of hospital. It was pure hell. That video you did covering "The Rally" hit really hard. This is precisely what happened with her 1 week to the day of her passing. I wish I'd seen that video earlier. You are doing important work for all who are dealing with caring for frail and ill older parents.
My grandmother passed aaay at age 70 of this disease. It is heartbreaking for me and honestly life is not worth living anymore. She raised me as her own child. I wish I knew more about this disease. I feel that I neglected her because she did not feel well that week before. But i took her to the doctor and they said everything seemed fine. I just have so many questions. It was a huge shock because she always had to go to the hospital and would come back fine. I never knew this was going to happen. She passed the day after a heart attack and even the hospital thought it would be fine. She was my ligt and everything. Very strong, wise and a beautiful spirit so kind to humans animals nature everything. I just wish i could get a sign from God that she is OK like some others get.
My husband had a successful transplant Oct if 2023 and passed all tests including heart prior to the surgery. About 6 weeks later they found a herniated intestine. About 10 days later he got a UTI. Then, he started passing out if he stood. Numerous inpatient hospitalizations yet no physician ever gave us a diagnisis but just sent him home to hospice! Our nurse assumed we knew the dx. After seeing this and another hospice nurse's podcast, I finally have answers! For him, in a matter of 2 months he lost 80 pounds of fat and muscles so is skin and bones. He is no longer is eating and very little fluid. Howver, he is on the rollercoaster with his blood pressure. I now can have more useful conversations with his nurse.
My father was diagnosed with CHF at 87 years old. He seemed to be doing well but then had a stroke at 90 years old. He eventually passed at 94 years old. He was a heavy drinker but also active and walked/lifted weights daily.
Thanks for the information. A doctor diagnosed bronchitis. The hospital determined it was Congestive Heart Failure. Was fine on meds for 14 years, just hospitalized overnight for fluid retention around my heart and lungs. Modern medicine has come a long way. Walking, and legs elevated, are daily requirements. Thanks again for this.
Definitely rode that CHF roller coaster with my dad. So many visits to the ER due to water retention. He fought it as long as he could. Sadly, he passed December 2022, just a week shy of his bday.
Sitting here watching ang holding my clients hand waiting for her to die and finally be out of pain. Thank Julie for helping me through tough times throughout this year.
I like when you discuss from the point of view of your loved one as in, “Your loved one may experience this or that” instead of “YOU might experience this or that”.
Hello Nurse Julie love your videos! I have nursed many relatives and friends over the years but there seems to be a common misunderstanding about the dying process! Our culture is in complete denial regarding the fate we will all face. More education is needed instead of blame! You're doing a great job 👍 Nurse Christine RN
Hi ! This is such a timely video for my family and my almost 99 year old mother who has CHF. You are spot on with the good and bad days , the decline then the plateau . I don’t think she is end stage quite yet but I know that we will eventually be at that point. Your videos are so helpful as we help her to navigate each step of the process . She’s feisty, spunky and snarky so there is never a dull moment! Thanks for all that you do. I’ve learned so much !
I’ve just arranged home health with a difficult relative suffering from CHF due to an aneurism. Shortness of breath, severe edema( we had him hospitalized to have fluid removed) He was not compliant with his meds, but with good home health therapy & management he is improving He is 84. Is improvement possible at this stage? His liver and kidneys have been effected also. Thank u again for ur insights. They are helpful in preparation and understanding how to help this difficult individual.
Thank you for the video. My 91 grandmother has chf along with dementia and Parkinson's. She's been in hospice for 6 months and has had several periods of decline and plateau. The decline and plateau cycle is difficult to watch and go through. We thought for sure she was heading into the transition phase as she declined so quickly into being bedbound, no food and only a few sips of liquids for over a week and many other symptoms but then today she sat up in bed and ate a full meal, had a great day of visiting. And we as caretakers are constantly second guessing ourselves.... Is this decline and plateau, is this the last decline then transition, is this decline then rally then end stage. Mentally and physically it's difficult. We have to keep reminding ourselves just to take each day as it arrives. Sometimes we have good days and sometimes not. It's just so difficult not knowing how long this might continue.
My dad died of this the day before Father’s Day couple weeks ago. He lived with it for about 15 years then back on October 6 it took a turn for the worst and plateau a couple times up and down and then the last 18 days prior to 15 June 2024 it was like a steep roller coaster straight down, it’s hard to watch. this video was pretty helpful. I appreciate it. I’d love if you would do another one going from stage one all the way to stage four he was at University of Tennessee Medical Center the nurses they were great, but the palliative care team kept the family in the dark. They weren’t very nice at all very disrespectful. I couldn’t believe it but anyway if you ever have the time could you do a video going from stage one all the way to stage four end of life? It would help me because I’m having a hard time with the grieving process. My ADHD is went out the roof but thank you so much. You’re so appreciated.
My mom’s in her mid-90s, and this describes her to a “t”. I can’t tell you how tough this is on the caregivers, especially the main one - me. She;s been in hospice several months and keeps fighting through it. The declining steps describes the digression very well. I just wish caregivers had the necessary resources to endure, Julie. There are days I feel like I’m on a deserted island.
Please, do everyday something, that is for your own good feeling and well being. A hobby, meeting with friends, or being alone by yourself...... If you can afford it, talk to a psychologist, or if you are a believer to your pastor. Getting out from a burnout is not easy, but a must.
@@kathidori8504 just seeing this episode. I have been caring for my 94 year old mom with leukemia. She had difficulty through Covid. When I started having to stay home with her, it was amazing at how quickly I realized that “friends” became scarce. Everyone stopped calling, coming by..and I’ve realized so many truths that were hard for me to accept. It is a lonely existence for caretakers, and I’m beyond burnout. I had my supposed best friend say that WHEN I decide to rejoin life, to let her know. I stood with and helped her through the death of her husband. As I said..I’ve learned some things.
Hi Julie . Your videos make a lot of sense . Death of course is inevitable , but if it can happen peacefully , IE , without pain , then it's like going to sleep one last time . I have sat beside four relatives who slipped away , all of them in the early hours of the morning for some reason . Two of them claimed to have seen previously passed relatives a short while before they passed .( Which you covered in a previous video ) When I was a domiciliary carer , one elderly Lady I visited spent the whole visit asking where her Dog was . It seemed unusual , so I contacted the office , who explained that she hadn't had a dog for about six years . Two days later , she passed away .
My grandma died of this disease she was in the hospital for a week then came home and on Sunday we found her doing the death rattle it was the most difficult thing to see
With the knowledge I have learned watching your videos has helped me accept and understand where my Grandma is in her passing process. Its hard in a room with a bunch of people who keep hush hush and dont want to accept what is happening. Because of that I was able to talk with her b4 she went complete incoherent. Today shes out of it blood pressure 84/51 I told her to make sure to visit. Thanks again for this knowledge truly does help one heal a lil easier
Thank you. I'm 52 with CHF, and it is up and down. Nowhere near hospice, I think - but then I have a day of pouring dripping sweat, and I can't quite catch my breath. I'm just scared.
I'm 56 with CHF. Got it in 2005. The more exercise you can get, and the more water you can get out of your feet and legs, the better you feel. Compression socks, exercise, and watch that sodium intake and things will get a lot easier on you.
@@kathidori8504limiting sugar intake is also important. I'm 58 was diagnosed with CHF about 10 yrs ago, like you said limiting sodium, and I quit drinking sodas then and I noticed it helped.
Yep, my mother turned 91 this year and it has been exactly as you described it. It seemed every year since her first CHF diagnosis she's been hospitalized one every year or two. However in the last three months she has been hospitalized 4 times and the last time they suggested putting her on Hospice. We moved her into a nursing home with Hospice and she is getting the care she needs, and is actually doing better than when she was living in her apartment. The peace I got from this video is there were no surprises I should be looking out for. Thank you for your Hospice work and these videos.
Hi Julie!! I love your videos! I am a 26 year old dealing with my fathers slow decline. He has CHF and early onset dementia. If you could do videos on death with comorbitities that would be awesome bacause as he's doing okay right now. Nobody is forever Thank you
Thank you! I have Adrenal Insufficiency and would love to see something about that. Thanks for mentioning that about people going on and off hospice. My friend had endocarditis and was on hospice, but came out and is now in a care home. People I know actually accused her of making up a story about being on hospice! It was not the first or second time she had endocarditis. Thank you for making this video! I hope I can find out more about what happens in Adrenal Insufficiency, or what my chances are of making it out (though I do have other issues as well, it always helps to find out as much as you can. I think the biggest fear is always in not knowing). It’s all such a shock…I was just trying to finish the Master’s I went back for and start a new job. Now this. I’ve been chronically ill all my life, but nothing really prepares you, except for Nurse Julie! ❤😇
I'll be 61 in Jan 2024, I found out several years ago that I had COPD(from 2nd hand smoke) (I'm not a smoker), & within the last year found out that I also CHF . I'm at peace for whenever my time comes . I know that my mom(she died in Oct. 1966, age 26) will be there to meet/greet me . I've made peace with a couple of friends from my past, THAT felt so good ! I've been re-connecting with my son over the last few years,(I was bullied into giving him up for adoption 37yrs. ago), we are at a really good place right now . Really liked this video, good info . Would you be able to make another video about CHF that goes a little more in to detail CHF ?
You're doing very good. I wish you had presented your knowledge about 20 years earlier though. You help your viewers to UNDERSTAND what is going on. in the different situation. We thank YOU!
Thank you, im 43 with chf, from rhumatic fever in childhood. U just mentioned genetics and lifestyle when an absessed tooth can give u chf. Thank u tho. Makes sense
Julie I want to thank you much for all your help through the last year! Your channel really helped my family through some very difficult times. We knew absolutely nothing when hospice was called in for my mother. Scrambling for information, what to expect, and some very difficult situations. I am so thankful for your channel, and even now a few months after her passing, I feel thankful for the reassurances you provide.
Spot On! I worked with hospice patients for several years. One thing I noticed is CHF/COPD patients do come off of hospice. I think in many cases it's due to the personal at home care and management they receive. For some it's the first time receiving this level of care. I was always happy to discharge a patient from hospice to either home health or palliative care.
I wish you made this video a year ago. My FIL died in october and my dad in December from CHF. my DIL lives with it for 10 years and he wound up on hospice (but died same day.) My dad was diagnosed in october (ironic right?) but died suddenly in december from it. I would've been way more prepared otherwise. But thank you for educating others about it. I'm sure it will help MANY
My mother has been stair-stepping for years. When she gets home health care, ER care, hospital bed, etc. she gets better because she cannot smoke, cannot drink alcohol, and is given healthy meals. She gets better, her kidneys rebound, her EF goes up slightly, and she is released. Her exacerbations are clearly caused by her lifestyle choices. It’s very sad to watch, but I’ve learned so much. Thank you, Julie!!
Nurse julie, I love your happy countenance. I also love the information you give us and your great attitude. I don't know where you live but I wish you could be my nurse when I need you. Thank you again for all you do
Hi Julie… thank you for your gentle video explaining end stage CHF. 8 months ago I had 2 heart attacks requiring open heart Quad bypass surgery and had my mitral valve repaired… 3 months later diagnosed with PAD had angioplasty done, waiting to have stents put in my arteries in my hips and legs next month. Guess some would say it was a bad year. I had a lot of fun becoming unhealthy… ugh.. your videos are always kind, gentle and informative. I’ve learned so much from you. Gotta say though I’m terrified every day. When that time comes I hope I have someone exactly like you Julie. Thank you, bless you…
Could you please, please do a video on horrible GVHD after a bone marrow transplant? It is so dangerous and has created so many other health issues with months of hospital stays which has lead to living a bedridden life of just sleeping, some eating and drinking but virtually no quality of life. Doctors don’t know how long this will continue and are not suggesting hospice, just more and more meds which create other problems! What to do??!!
Thank you so much for all of your informative videos. This one is especially helpful for me. My beautiful 98-old-grandma has this right now and is receiving end of life care at the nursing home she lives at.
I am 80 years old and have had CHF for 10 years. I am on my second ICD however,from diagnosis I have had severe SOB, the longest I can walk is 50 metres and my medical team can’t find the reason why. I also have no fluid in the legs only the upper body and stomach. I’m not scared of dying but how I will die. I love your videos and thank you for your information.
Also have CHF an a-fib,,, light swelling also stays on my upper chest,,,, shortness of breath and coughing,, diuretics are my savior,,,, just confusing how much to drink and watching salt and take
I have congestive heart failure and my heart was failing bad it went from 68% down to 42% and I found out the culprit that was making it worse was sleep apnea I stopped breathing 44 times an hour and now I thank God that once I got a hold of that it went back up to like 54%
@@concurseiracinquentona they sent me to a sleep specialist and I slept in their office and they monitored me while I was sleeping and they found I stopped breathing 44 times in an hour
I learned AFTER my sister's death that she had CHF, for many years she told everyone it was gout. She was a private person. Because she worked in a small business that didn't offer healthcare, she wasn't able to buy Lasix. Had she have told me, I would have gotten good old fluid pills like women take during their period. Please discuss things with your family, don't leave them in the dark, and if you can't get lasix prescription, you can get good old fluid pills, they'll do basically the same thing. By the way, people asked if my sister was a heavy drinker, and the answer was NO, so don't assume everyone with CHF is an alcoholic, because it's not always the case.
I would have never connected being a alcoholic with having CHF......AT ALL. I normally connect that with a older person or a heavy person but not alcoholism.
There is a diuretic called Lisinopril which is on Walmart's Good RX list, meaning it only costs $4.00 for a 30 day supply or $10.00 for a 90 day supply. You do need a prescription. She could have gone to a Doctors in Medicine location for a free doctor, Unfortunately once you go to the doctor they like to run tests which can really cost, but there are usually some free clinics you can go to if you research it.
Chef is what my grandad passed away from. Had been feeling bad for years prior but, although retired, he was always busy around the house doing repairs, two large vegetable gardens, mowing trimming, ect. One year he took his plow over to his son in law telling him if he didn't ask for it back that it was his. He passed away that year. He was in the house at the dining table, had laid his head down to take a nap as he sometimes did but, this time he never woke up. The was only in the hospital once during his entire life and had worked from the time he was a child on the family farm then at an orchard. Rarely ever got sick and when he did he still kept going. Was like that until the very day he passed away.
Thanks for this info girl. I am 72, have CHF, My pacer battery is close to dead. I have chosen to NOT change pacers. I have many heart issues, plus COPD, plus Diabetic plus gastric bleeding X5 in the last 5 years Plus,Plus Plus.. What can I expect in the next few months, Thanks so Much, Mike
Julie, Thank you so much for the invaluable information you share! One critique and respectful suggestion. Please, please remove the music from the background of your presentations. It is very distracting and takes away from the professionalism.
My mom is 89. She also has CHF and COPD and AFIB. She was not good a week or so ago and then she perked up and started acting some better. She also has a mass in her cecum( if I spelled that right). Her body has been through so much. I love your videos. They have e helped me so much!
Julie, I hope you told the family members what you saw. It would bring them much comfort. I would really have liked to know if they were Catholic. Did you see a crucifix displayed or any other art? When you enter a Catholic home you know it especially if they are devout.
My Dad died from CHF. The day he died my mom and I noticed his shirt was drenched down the sides, next to his rib cage. It was not sweat, it was as if half a bucket of water was poured on him, that's how much fluid there was. Could it have been draining from his lymph nodes through his skin? It had never happened before that day. He had been sick a long time as you mentioned. His hospice nurse was amazing. My Dad never got anything for pain though. I know he was in pain but he never complained. I wish he would have been given morphine knowing now it would helped him with his breathing. 2 days before he died he confided in me that he was hallucinating. I was very glad I had just read that that was normal, and the right thing to do was to ask him if it made him afraid. He said that it looked like he was seeing fishing lines across his vision. All i could think of was when I was little and our old TV when the vertical hold used to need adjusting.
My son-in-law was told he has C H F not yet retired but he has good days when he wants to get gardening done ect because he has been used to hard work it’s depressing for him not to be able to do the things he used to But it’s brought on by life style working hard and drinking also bad diet
Hi Julie My mom WAS diagnosed about 2 years ago with CHF. she lives with my sister. It’s been a roller coaster as if seen everyone else mention. Today is a tough day. My sister called and said she having yet another nose bleed, which happens a lot, but today her eyes were bleeding too. Like bloody tears. Have you heard of anything like this. She’s been in and out of the hospital for the past 2 months. Every time she goes my sister says they act as if they don’t know what’s going on it’s becoming frustrating for everyone.
Julie thank you for all this information. Can you do one for COPD I have been diagnosed recently and had Asthma since I was 2yrs old. I woulld appreciate any info at end of life . Thank you Diane
Hi, my mom had CHF, and this video explains a bit about why patients like her go off hospice. She went to the hospital in bad shape. They changed her meds, and after about 8 weeks of very intensive at home care with hospice, she got better. Technically, Medicare only pays for hospice if the patient is only expected to live 6 months or less. Since mom got better, she “graduated” out of hospice. Sadly. She had another bad spell 8 months later, went to the hospital, and at discharge was put on hospice care again. She passed away 10 days later. So yes, I was educated in this video too, because I didn’t know it was common for CHF patients to improve like that.
Thank you for this video. My best friend has chf and he is Young. He is sick. Its horrible. He is also quiet about his illness. He has the chf that runs in his family and there is no cure... his mom died at 55 and found out she had it at 53. One day I arrived at my friends and His legs were absolutely Huge. I am a healthcare aid so I knew immediately it was heart failure..... I took him to the ER he was admitted immediately and sure enough he has the same disease. Its not fair. Can you do a video on end stage with Ms next please? I consider Ms the invisible disease. Alot of people have no idea what MS is. It really surprises me. Thanks Julie
I have HFpEF Stage 3, left sided, diastolic failure due to HCM. Good & bad days. The Palpitations and SOB drive me nuts at times, my cardiac reserve is low I'm mostly tired and weak and tread lightly. Im experience the feeling of fullness, lack of appetite at times. Stage 3A CKD, stabile at this time. Not sure of if it is Cardiac related or paresis from Calcium Blockers. They hear me but are not listening. Thanks for all the info you provide!❤ I do have a question. Do people with left sided HF experience swollen ankles/legs? They have told me no, I disagree because I do have the swelling. Im not obese, don't overdo salt intake, watch my fluids, non diabetic, cholesterol well controlled by diet/meds.
Yes, people with left side heart failure do experience swelling in the lower legs and ankles. This is edema. I’m a caregiver for an 80 year old with CHF and my father also died from CHF.
My poor neigbhor needed a heart valve was always short of f breath ,coughing on a oxyen.shecdied right in front of us ...immediately I was stunned I had no idea what to do for her ....blue lips.blye hands really quite upsetting my sister is a nurse. ..shed been trying to reach her Dr Switched I durance
I have CHF. At the independent living stage. I have noticed seasonal temperature changes and barometric pressure really factor in when it comes to I how I feel and water retention. So it is possible people further along than I may be affected as well. The worst of bad swelling or trouble breathing seems to be when temps or barometric changes are significant.
Hi Julie! Thanks for this video. Will someone with CHF eventually stop eating and start sleeping more than 18 hours/day as they move towards end of life? Does dying from CHF look like dying of frailty? Or is there usually some kind of sentinal event where things decline rapidly?
I wish I had seen this 6 months ago and had pressed for a more knowledgeable doctor for my wife. She was 83 but I'm sure we could have had another 10 years together.
My 94 year old paternal grandmother died from CHF. She had it for many years. On her deathbed in the hospital, (not on hospice) she said she felt like she was drowning.
Oops I think I ask me question in a reply .. sorry I have just arranged good home health care for a difficult relative with CHF due to an aneurysm. He is 84 Severe edema ( we had him hospitalized to remove fluid), shortness of breath, liver & kidney issues . Surgery has been postponed. He was not compliant with meds & health failing. With the home health providing rehab services and direction, what are the chances of health improvements? Ur video was extremely helpful in this difficult process of trying to help him.
I would really love to talk to you and ask some questions can you tell me how we can do this? My husband was on hospice for 1 1/2 months before he passed
I wish that i had seen this a year ago. My wife had chf and pad. It was the rollercoaster of ups and downs that drove me crazy. I so wanted her to get better and recover. But after triple bypass and stents in her legs and neck, she survived only 11 agonizing months. None of the surgeries, rehabs or drugs did anything but extend her horrific living condition. It surely wasn’t worth the million dollars it cost medicare either.
My mom is 90 and has had CHF for many years. She has ridden that roller coaster of ups and downs a lot more for the past 4 years. She is now winding down and is likely a couple of weeks or less away from going to see Jesus. I’ve learned a lot from your videos. Hospice helped my dad who had dementia and now my mom with CHF. It’s been a very long road and soon her suffering will end. But 90 years! That’s a good long life! Thanks for educating people on the uncomfortable (for some) topic of death and dying.
What medication is your mom on
Try Praying aloud, King James Holy Bible Ecclesiastes 3:14 Psalms 103:1 - 16 Psalms 107:20 Isaiah 53:5 Ephesians 3:20 Ephesians 5:26 - 27 pray for daily protection Psalms 20 and Psalms 91
I'm taking Three Tablespoons of Avocado Seed Oil Virgin, raw, cold pressed, and Three Tablespoons of Extra Virgin Organic Olive Oil Twice daily
My mother just passed away from CHF last month. I had been watching your videos even prior to her actuality going on hospice and am so grateful to you for making these videos. She was at home with family by her side and I held her hand as she took her final breath. She had the death rattle and also a growl just as you described in one of your videos. Knowing what was happening made it easier for me to handle what I was seeing and hearing and I was able to educate my family during her dying process when our nurse was not present. Thank you again for taking the time to lovingly educate us all. ❤
My mama passed away in April and she had CHF along with multiple other health issues, including dementia. Thank you for posting this. She passed in her sleep and that's what I'm truly grateful for.
My mother currently has both of those and kidney issues. I pray she too can drift off into the arms of Jesus while at rest
@Kensington555, thanks for sharing. My mom has similar health issues. May I ask? Was your mom alert the day before she passed in her sleep? Was it kind of unexpected? Thanks.
@@cynthia11364 my mom passed on 9/30/23
She starting having edema in her abdomen really badly. The doctors said if they drained the fluid it would likely return in just a day or two due to the CHF.
She was not responsive for the last 4 days. She followed pretty much the outline hospice gave. If you are interested you can follow the hospice nurse here on YT to get an idea of what to expect. I really helped me a lot. I hope this helps.
My Coach (basketball) just this month died from it. I loved him so much. Visited him in the spring, but went back for his standing-room-only funeral. RIP, Coach Rippy. You were my main man.
Julie -- I just love the way you explain things, define terms and speak to everyday human beings. This from a retired nurse. You are a gem and are doing a great public service. Thank you!
Well said.
Thanks Julie. I think you did this for me. I have had open heart surgery twice, and have CHF. I was hospitalized in CCU in January of 2021 and told I was stage 4 and maybe I had a year or two. But I had a cardioMems installed and watch my fluid closely. At my last checkup he said I was stage 3, which has a 70% chance of 5 year survival! I also have stage 4 kidney disease but all things considered I think I’m looking at a few more years at least. Still, I want to plan ahead to make the end as peaceful and pleasant as possible. Your videos are so great and so helpful. Thanks for all you do!
Yessss!!! What amazing news! So glad you’re doing better! Glad you are here to educate yourself so you can LIVE better!!
You are a very brave hearted person.
We all, young, old, healthy or sick, should have things fixed and arranged because we know nothing about the future.🤗
Please follow a cardiac and kidney diet! You need to keep your creatine and potassium levels low. My husband had a kidney transplant but then unrelated issues damaged his heart. By the time they gave him the CHF dx, he died 2 months later. They also said a failed transplant contributed but the new kidney was still at 50% GFR compared to 11% prior to the transplant. So follow your doctor's orders to a T (no cheating).
My dad passed away a couple of months ago and its hard to even say what he died from because he had type 1 diabetes since age 8. He had CHF for 5 years or so. Maybe longer. He had a couple of heart attacks but didn't feel them because of diabetic neuropathy, but he was just very sleepy and that's how we knew to take him to the hospital. We took him to the hospital in March for his third heart attack (which we didn't know he had had at the time). He thought he just needed to have his CHF symptoms managed. Once he was in the hospital for a few days he also developed terrible swelling from his legs where he was dripping fluid from burst bubbles on his legs and feet. He also had low blood pressure that they were trying to raise. Eventually they decided his kidneys got bad enough that he started peritoneal dialysis which seemed to make things worse. He was on that for 2 weeks. Then was admitted back in to the hospital for one night with critically low sodium and died the next day at home from a heart attack after begging to be taken home that whole night in the hospital. He was also very confused and in a lot of mental (but not physical) anguish. Once he got home, though, that morning he calmed down. I think he knew he was going to die and wanted to be at home. I just don't understand how everything went downhill so fast. I thought the dialysis would have helped. Maybe his heart was too weak to handle it? I never thought he would die because he was chronically ill his whole life but after every hospitalization, he bounced back and was always so positive. So it was such a shock to me. I always thought I had more time with him.
Hi, Julie. I love your content and your bright spirit. Thanks so much for providing this much needed information. Please...one person's opinion...ditch the background music. It's such a distraction from what you're saying. I'd rather just hear your voice. Thanks.
Thank you for this channel. Honestly. I only discovered it a few days ago and my mom passed away on Sunday from late stage COPD. She was 75. She was in a nursing home in Frail Care after 6 months in and out of hospital. It was pure hell. That video you did covering "The Rally" hit really hard. This is precisely what happened with her 1 week to the day of her passing.
I wish I'd seen that video earlier.
You are doing important work for all who are dealing with caring for frail and ill older parents.
My grandmother passed aaay at age 70 of this disease. It is heartbreaking for me and honestly life is not worth living anymore. She raised me as her own child.
I wish I knew more about this disease. I feel that I neglected her because she did not feel well that week before. But i took her to the doctor and they said everything seemed fine. I just have so many questions. It was a huge shock because she always had to go to the hospital and would come back fine. I never knew this was going to happen. She passed the day after a heart attack and even the hospital thought it would be fine. She was my ligt and everything. Very strong, wise and a beautiful spirit so kind to humans animals nature everything. I just wish i could get a sign from God that she is OK like some others get.
I feel like you.
@@mdvog8005 :( ❤️
Explaining that we can go on& off hospice-that’s important for my family to know.
My husband had a successful transplant Oct if 2023 and passed all tests including heart prior to the surgery. About 6 weeks later they found a herniated intestine. About 10 days later he got a UTI. Then, he started passing out if he stood. Numerous inpatient hospitalizations yet no physician ever gave us a diagnisis but just sent him home to hospice! Our nurse assumed we knew the dx. After seeing this and another hospice nurse's podcast, I finally have answers! For him, in a matter of 2 months he lost 80 pounds of fat and muscles so is skin and bones. He is no longer is eating and very little fluid. Howver, he is on the rollercoaster with his blood pressure. I now can have more useful conversations with his nurse.
My father was diagnosed with CHF at 87 years old. He seemed to be doing well but then had a stroke at 90 years old. He eventually passed at 94 years old. He was a heavy drinker but also active and walked/lifted weights daily.
omg!!!! 94 he was taken in the prime of his life!!!!
Well it's a good age, and drink didn't do it. It's age. Don't believe everything you hear from a TV set.
Thanks for the information. A doctor diagnosed bronchitis. The hospital determined it was Congestive Heart Failure. Was fine on meds for 14 years, just hospitalized overnight for fluid retention around my heart and lungs. Modern medicine has come a long way. Walking, and legs elevated, are daily requirements. Thanks again for this.
Thank you so much for Sharing your wisdom
Definitely rode that CHF roller coaster with my dad. So many visits to the ER due to water retention. He fought it as long as he could. Sadly, he passed December 2022, just a week shy of his bday.
Sitting here watching ang holding my clients hand waiting for her to die and finally be out of pain. Thank Julie for helping me through tough times throughout this year.
I like when you discuss from the point of view of your loved one as in, “Your loved one may experience this or that” instead of “YOU might experience this or that”.
You are amazing!
I agree; the music is distracting thanks for all!
Hello Nurse Julie love your videos! I have nursed many relatives and friends over the years but there seems to be a common misunderstanding about the dying process! Our culture is in complete denial regarding the fate we will all face. More education is needed instead of blame! You're doing a great job 👍 Nurse Christine RN
Hi ! This is such a timely video for my family and my almost 99 year old mother who has CHF. You are spot on with the good and bad days , the decline then the plateau . I don’t think she is end stage quite yet but I know that we will eventually be at that point. Your videos are so helpful as we help her to navigate each step of the process . She’s feisty, spunky and snarky so there is never a dull moment!
Thanks for all that you do. I’ve learned so much !
🩷🩷🩷🩷🩷
I’ve just arranged home health with a difficult relative suffering from CHF due to an aneurism.
Shortness of breath, severe edema( we had him hospitalized to have fluid removed)
He was not compliant with his meds, but with good home health therapy & management he is improving
He is 84. Is improvement possible at this stage? His liver and kidneys have been effected also.
Thank u again for ur insights. They are helpful in preparation and understanding how to help this difficult individual.
Thank you for the video. My 91 grandmother has chf along with dementia and Parkinson's. She's been in hospice for 6 months and has had several periods of decline and plateau. The decline and plateau cycle is difficult to watch and go through. We thought for sure she was heading into the transition phase as she declined so quickly into being bedbound, no food and only a few sips of liquids for over a week and many other symptoms but then today she sat up in bed and ate a full meal, had a great day of visiting. And we as caretakers are constantly second guessing ourselves.... Is this decline and plateau, is this the last decline then transition, is this decline then rally then end stage. Mentally and physically it's difficult. We have to keep reminding ourselves just to take each day as it arrives. Sometimes we have good days and sometimes not. It's just so difficult not knowing how long this might continue.
My dad died of this the day before Father’s Day couple weeks ago. He lived with it for about 15 years then back on October 6 it took a turn for the worst and plateau a couple times up and down and then the last 18 days prior to 15 June 2024 it was like a steep roller coaster straight down, it’s hard to watch.
this video was pretty helpful. I appreciate it. I’d love if you would do another one going from stage one all the way to stage four he was at University of Tennessee Medical Center the nurses they were great, but the palliative care team kept the family in the dark. They weren’t very nice at all very disrespectful. I couldn’t believe it but anyway if you ever have the time could you do a video going from stage one all the way to stage four end of life? It would help me because I’m having a hard time with the grieving process. My ADHD is went out the roof but thank you so much. You’re so appreciated.
@@chrisf7300 my father just passed away from this last week and it's tough for me as well to accept it. If you want to talk about it, reply me
My mom’s in her mid-90s, and this describes her to a “t”. I can’t tell you how tough this is on the caregivers, especially the main one - me. She;s been in hospice several months and keeps fighting through it. The declining steps describes the digression very well. I just wish caregivers had the necessary resources to endure, Julie. There are days I feel like I’m on a deserted island.
Please, do everyday something, that is for your own good feeling and well being. A hobby, meeting with friends, or being alone by yourself...... If you can afford it, talk to a psychologist, or if you are a believer to your pastor. Getting out from a burnout is not easy, but a must.
@@kathidori8504 just seeing this episode. I have been caring for my 94 year old mom with leukemia. She had difficulty through Covid. When I started having to stay home with her, it was amazing at how quickly I realized that “friends” became scarce. Everyone stopped calling, coming by..and I’ve realized so many truths that were hard for me to accept. It is a lonely existence for caretakers, and I’m beyond burnout. I had my supposed best friend say that WHEN I decide to rejoin life, to let her know. I stood with and helped her through the death of her husband. As I said..I’ve learned some things.
God bless the care givers. They have the hardest job of all. Take care, Be well, be safe. ❤️
@@lyndakaye5198Yes I have done it twice. I am totally alone and it really has messed with me very much health wise.
My best friend’s mom has head CHF for 50 years. She’s now 94 & living at home with help.
Hi Julie . Your videos make a lot of sense . Death of course is inevitable , but if it can happen peacefully , IE , without pain , then it's like going to sleep one last time . I have sat beside four relatives who slipped away , all of them in the early hours of the morning for some reason . Two of them claimed to have seen previously passed relatives a short while before they passed .( Which you covered in a previous video ) When I was a domiciliary carer , one elderly Lady I visited spent the whole visit asking where her Dog was . It seemed unusual , so I contacted the office , who explained that she hadn't had a dog for about six years . Two days later , she passed away .
4:51 I
My grandma died of this disease she was in the hospital for a week then came home and on Sunday we found her doing the death rattle it was the most difficult thing to see
🩵🩵🩵🩵
What is the death rattle?
With the knowledge I have learned watching your videos has helped me accept and understand where my Grandma is in her passing process. Its hard in a room with a bunch of people who keep hush hush and dont want to accept what is happening. Because of that I was able to talk with her b4 she went complete incoherent. Today shes out of it blood pressure 84/51 I told her to make sure to visit. Thanks again for this knowledge truly does help one heal a lil easier
I just started as a hospice nurse and your videos are helping me so much!
Thank you. I'm 52 with CHF, and it is up and down. Nowhere near hospice, I think - but then I have a day of pouring dripping sweat, and I can't quite catch my breath. I'm just scared.
I'm 56 with CHF. Got it in 2005. The more exercise you can get, and the more water you can get out of your feet and legs, the better you feel. Compression socks, exercise, and watch that sodium intake and things will get a lot easier on you.
@@F5Tornado44Are there herbal teas or remedies, that can give relief like nettle for example?
@@kathidori8504 I have no idea. I'm sure there may be something that helps a little, but I just haven't researched any herbal remedies.
@@F5Tornado44 Maxbe it worth consult a health shop. There are many plsnt based remedies .
I Wish you the best .
@@kathidori8504limiting sugar intake is also important. I'm 58 was diagnosed with CHF about 10 yrs ago, like you said limiting sodium, and I quit drinking sodas then and I noticed it helped.
Yep, my mother turned 91 this year and it has been exactly as you described it. It seemed every year since her first CHF diagnosis she's been hospitalized one every year or two. However in the last three months she has been hospitalized 4 times and the last time they suggested putting her on Hospice. We moved her into a nursing home with Hospice and she is getting the care she needs, and is actually doing better than when she was living in her apartment. The peace I got from this video is there were no surprises I should be looking out for. Thank you for your Hospice work and these videos.
My dad died 2 years ago with CHF and had hospice care. Thank you for helping me to better understand.
Hi Julie!!
I love your videos! I am a 26 year old dealing with my fathers slow decline. He has CHF and early onset dementia. If you could do videos on death with comorbitities that would be awesome bacause as he's doing okay right now. Nobody is forever
Thank you
Nurses are superheroes!! Thank you for what you do!!!!
this explaines why my mother' health problems sddenly gets better
Thank you! I have Adrenal Insufficiency and would love to see something about that. Thanks for mentioning that about people going on and off hospice. My friend had endocarditis and was on hospice, but came out and is now in a care home. People I know actually accused her of making up a story about being on hospice! It was not the first or second time she had endocarditis. Thank you for making this video! I hope I can find out more about what happens in Adrenal Insufficiency, or what my chances are of making it out (though I do have other issues as well, it always helps to find out as much as you can. I think the biggest fear is always in not knowing). It’s all such a shock…I was just trying to finish the Master’s I went back for and start a new job. Now this. I’ve been chronically ill all my life, but nothing really prepares you, except for Nurse Julie! ❤😇
Wish you a lot of strength in your difficult situation.
Gods peace into your heart.
I'll be 61 in Jan 2024, I found out several years ago that I had COPD(from 2nd hand smoke) (I'm not a smoker), & within the last year found out that I also CHF . I'm at peace for whenever my time comes . I know that my mom(she died in Oct. 1966, age 26) will be there to meet/greet me . I've made peace with a couple of friends from my past, THAT felt so good ! I've been re-connecting with my son over the last few years,(I was bullied into giving him up for adoption 37yrs. ago), we are at a really good place right now . Really liked this video, good info . Would you be able to make another video about CHF that goes a little more in to detail CHF ?
Thank you, Julie for your continuous education. ❤
THANKS JULIE! MY DAD HAS CHF
AND AS ALWAYS THIS HAS BEEN VERY HELPFUL! GOD ƁLESS YOU!
You're doing very good. I wish you had presented your knowledge about 20 years earlier though. You help your viewers to UNDERSTAND what is going on. in the different situation. We thank YOU!
Thank you, im 43 with chf, from rhumatic fever in childhood. U just mentioned genetics and lifestyle when an absessed tooth can give u chf. Thank u tho. Makes sense
Julie I want to thank you much for all your help through the last year! Your channel really helped my family through some very difficult times. We knew absolutely nothing when hospice was called in for my mother. Scrambling for information, what to expect, and some very difficult situations. I am so thankful for your channel, and even now a few months after her passing, I feel thankful for the reassurances you provide.
Spot On! I worked with hospice patients for several years. One thing I noticed is CHF/COPD patients do come off of hospice. I think in many cases it's due to the personal at home care and management they receive. For some it's the first time receiving this level of care. I was always happy to discharge a patient from hospice to either home health or palliative care.
I wish you made this video a year ago. My FIL died in october and my dad in December from CHF. my DIL lives with it for 10 years and he wound up on hospice (but died same day.) My dad was diagnosed in october (ironic right?) but died suddenly in december from it. I would've been way more prepared otherwise. But thank you for educating others about it. I'm sure it will help MANY
Iwish I had seen this video before my mom died of CHF in 2019. Thank you so much for your service to us with these videos. Respect.
My mother has been stair-stepping for years. When she gets home health care, ER care, hospital bed, etc. she gets better because she cannot smoke, cannot drink alcohol, and is given healthy meals. She gets better, her kidneys rebound, her EF goes up slightly, and she is released. Her exacerbations are clearly caused by her lifestyle choices. It’s very sad to watch, but I’ve learned so much. Thank you, Julie!!
Nurse julie, I love your happy countenance. I also love the information you give us and your great attitude. I don't know where you live but I wish you could be my nurse when I need you. Thank you again for all you do
I have CHF. I've never really that it is called Chronic Terminal Disease. Thank you for educating me.
Hi Julie… thank you for your gentle video explaining end stage CHF. 8 months ago I had 2 heart attacks requiring open heart Quad bypass surgery and had my mitral valve repaired… 3 months later diagnosed with PAD had angioplasty done, waiting to have stents put in my arteries in my hips and legs next month. Guess some would say it was a bad year. I had a lot of fun becoming unhealthy… ugh.. your videos are always kind, gentle and informative. I’ve learned so much from you. Gotta say though I’m terrified every day. When that time comes I hope I have someone exactly like you Julie. Thank you, bless you…
Love ya Julie! So enjoy ALL videos. I'm a nurse as well & it would of been awesome to have you on my team.
As always, Hospice Nurse Julie, your informational videos are a huge blessing. 😇 Thank you. 💖
Could you please, please do a video on horrible GVHD after a bone marrow transplant? It is so dangerous and has created so many other health issues with months of hospital stays which has lead to living a bedridden life of just sleeping, some eating and drinking but virtually no quality of life. Doctors don’t know how long this will continue and are not suggesting hospice, just more and more meds which create other problems! What to do??!!
Thank you so much for all of your informative videos. This one is especially helpful for me. My beautiful 98-old-grandma has this right now and is receiving end of life care at the nursing home she lives at.
Thank you so much. I really appreciate you telling us about this one. ❤
I am 80 years old and have had CHF for 10 years. I am on my second ICD however,from diagnosis I have had severe SOB, the longest I can walk is 50 metres and my medical team can’t find the reason why. I also have no fluid in the legs only the upper body and stomach. I’m not scared of dying but how I will die. I love your videos and thank you for your information.
My God you've had it for 10 years? I've had it for 3 and I've just had enough.
Also have CHF an a-fib,,, light swelling also stays on my upper chest,,,, shortness of breath and coughing,, diuretics are my savior,,,, just confusing how much to drink and watching salt and take
I have congestive heart failure and my heart was failing bad it went from 68% down to 42% and I found out the culprit that was making it worse was sleep apnea I stopped breathing 44 times an hour and now I thank God that once I got a hold of that it went back up to like 54%
How did you find out about apneia?
@@concurseiracinquentona they sent me to a sleep specialist and I slept in their office and they monitored me while I was sleeping and they found I stopped breathing 44 times in an hour
I learned AFTER my sister's death that she had CHF, for many years she told everyone it was gout. She was a private person.
Because she worked in a small business that didn't offer healthcare, she wasn't able to buy Lasix.
Had she have told me, I would have gotten good old fluid pills like women take during their period.
Please discuss things with your family, don't leave them in the dark, and if you can't get lasix prescription, you can get good old fluid pills, they'll do basically the same thing.
By the way, people asked if my sister was a heavy drinker, and the answer was NO, so don't assume everyone with CHF is an alcoholic, because it's not always the case.
I would have never connected being a alcoholic with having CHF......AT ALL. I normally connect that with a older person or a heavy person but not alcoholism.
@@Jomama02 I agree with you. I wouldn’t connect CHF with alcoholics.
@@Jomama02 I get asked all the time how much did she drink?
Some alcoholics may have CHF, but not everyone with CHF is a drinker.
There is a diuretic called Lisinopril which is on Walmart's Good RX list, meaning it only costs $4.00 for a 30 day supply or $10.00 for a 90 day supply. You do need a prescription. She could have gone to a Doctors in Medicine location for a free doctor, Unfortunately once you go to the doctor they like to run tests which can really cost, but there are usually some free clinics you can go to if you research it.
Lisinopril is a blood pressure medication, so if your blood pressure is low or normal, I don't think you should take it.
My grandmother died of CHF on June 2. She was 101.
101 is a pretty good run. My mom has a friend who is in her late nineties and is stil a VERY COMPETENT driver.
My father in law died in my home from CHF under Hospice May. He was 94. He was diagnosed when he was 88.
Chef is what my grandad passed away from. Had been feeling bad for years prior but, although retired, he was always busy around the house doing repairs, two large vegetable gardens, mowing trimming, ect. One year he took his plow over to his son in law telling him if he didn't ask for it back that it was his. He passed away that year. He was in the house at the dining table, had laid his head down to take a nap as he sometimes did but, this time he never woke up. The was only in the hospital once during his entire life and had worked from the time he was a child on the family farm then at an orchard. Rarely ever got sick and when he did he still kept going. Was like that until the very day he passed away.
Hi. I agree with the comment about the background music being distracting. Superb video/topic otherwise.
Thank you Julie.
I have it and you are so on target... Thank you for your information and assistance ❤
Please do colon cancer with metz (specifically to the lung). Thanks!
Thanks for this info girl. I am 72, have CHF, My pacer battery is close to dead. I have chosen to NOT change pacers. I have many heart issues, plus COPD, plus Diabetic plus gastric bleeding X5 in the last 5 years Plus,Plus Plus.. What can I expect in the next few months, Thanks so Much, Mike
Dear Mike, only brave hearted people can make difficult decisions .
May you have Gods peace in your heart.
@@kathidori8504 Thanks for your kind words.
Julie, Thank you so much for the invaluable information you share! One critique and respectful suggestion. Please, please remove the music from the background of your presentations. It is very distracting and takes away from the professionalism.
Thanks Julie!
My mom is 89. She also has CHF and COPD and AFIB. She was not good a week or so ago and then she perked up and started acting some better. She also has a mass in her cecum( if I spelled that right). Her body has been through so much. I love your videos. They have e helped me so much!
Julie, I hope you told the family members what you saw. It would bring them much comfort. I would really have liked to know if they were Catholic. Did you see a crucifix displayed or any other art? When you enter a Catholic home you know it especially if they are devout.
Spot on..my mom has chf and copd. Please expand on cares....and drop the spacey background noise.
My Dad died from CHF. The day he died my mom and I noticed his shirt was drenched down the sides, next to his rib cage. It was not sweat, it was as if half a bucket of water was poured on him, that's how much fluid there was. Could it have been draining from his lymph nodes through his skin? It had never happened before that day. He had been sick a long time as you mentioned. His hospice nurse was amazing. My Dad never got anything for pain though. I know he was in pain but he never complained. I wish he would have been given morphine knowing now it would helped him with his breathing. 2 days before he died he confided in me that he was hallucinating. I was very glad I had just read that that was normal, and the right thing to do was to ask him if it made him afraid. He said that it looked like he was seeing fishing lines across his vision. All i could think of was when I was little and our old TV when the vertical hold used to need adjusting.
My son-in-law was told he has C H F not yet retired but he has good days when he wants to get gardening done ect because he has been used to hard work it’s depressing for him not to be able to do the things he used to But it’s brought on by life style working hard and drinking also bad diet
Hi Julie My mom WAS diagnosed about 2 years ago with CHF. she lives with my sister. It’s been a roller coaster as if seen everyone else mention. Today is a tough day. My sister called and said she having yet another nose bleed, which happens a lot, but today her eyes were bleeding too. Like bloody tears. Have you heard of anything like this. She’s been in and out of the hospital for the past 2 months. Every time she goes my sister says they act as if they don’t know what’s going on it’s becoming frustrating for everyone.
Aunt had a lot of agitation at night. Her family opted not to use hospice. Plus she sneaked cigarettes and they stopped them. Go hospice with this.
I know that is my issue . with no insurance we have to self treat ..... there has been 1 really close call , but I'm still here .
Dr. Eric Berg, DC is worth looking into.
Thank you
Julie thank you for all this information. Can you do one for COPD I have been diagnosed recently and had Asthma since I was 2yrs old. I woulld appreciate any info at end of life . Thank you Diane
You mentioned going on and off of hospice. Can you explain coming off of hospice a little more? I don't get how hospice vs palliative care fits.
Hi, my mom had CHF, and this video explains a bit about why patients like her go off hospice. She went to the hospital in bad shape. They changed her meds, and after about 8 weeks of very intensive at home care with hospice, she got better. Technically, Medicare only pays for hospice if the patient is only expected to live 6 months or less. Since mom got better, she “graduated” out of hospice. Sadly. She had another bad spell 8 months later, went to the hospital, and at discharge was put on hospice care again. She passed away 10 days later. So yes, I was educated in this video too, because I didn’t know it was common for CHF patients to improve like that.
Thank you for this video. My best friend has chf and he is Young. He is sick. Its horrible. He is also quiet about his illness. He has the chf that runs in his family and there is no cure... his mom died at 55 and found out she had it at 53. One day I arrived at my friends and His legs were absolutely Huge. I am a healthcare aid so I knew immediately it was heart failure..... I took him to the ER he was admitted immediately and sure enough he has the same disease. Its not fair. Can you do a video on end stage with Ms next please? I consider Ms the invisible disease. Alot of people have no idea what MS is. It really surprises me. Thanks Julie
Thank you for this video.
I have HFpEF Stage 3, left sided, diastolic failure due to HCM. Good & bad days. The Palpitations and SOB drive me nuts at times, my cardiac reserve is low I'm mostly tired and weak and tread lightly. Im experience the feeling of fullness, lack of appetite at times. Stage 3A CKD, stabile at this time. Not sure of if it is Cardiac related or paresis from Calcium Blockers. They hear me but are not listening. Thanks for all the info you provide!❤ I do have a question. Do people with left sided HF experience swollen ankles/legs? They have told me no, I disagree because I do have the swelling. Im not obese, don't overdo salt intake, watch my fluids, non diabetic, cholesterol well controlled by diet/meds.
Yes, people with left side heart failure do experience swelling in the lower legs and ankles. This is edema. I’m a caregiver for an 80 year old with CHF and my father also died from CHF.
My poor neigbhor needed a heart valve was always short of f breath ,coughing on a oxyen.shecdied right in front of us ...immediately
I was stunned I had no idea what to do for her ....blue lips.blye hands really quite upsetting my sister is a nurse.
..shed been trying to reach her Dr
Switched I durance
Can you go over end stage COPD?
she did a video about that about a week or so ago. hope that helps
That was last week’s video- you can find on my page- if you subscribe (it’s free) you’ll see when new videos come out 🥰🩷
Excellent Presentation thankyou
I have CHF. At the independent living stage. I have noticed seasonal temperature changes and barometric pressure really factor in when it comes to I how I feel and water retention. So it is possible people further along than I may be affected as well. The worst of bad swelling or trouble breathing seems to be when temps or barometric changes are significant.
Thank you. 😊
Hi Julie! Thanks for this video. Will someone with CHF eventually stop eating and start sleeping more than 18 hours/day as they move towards end of life? Does dying from CHF look like dying of frailty? Or is there usually some kind of sentinal event where things decline rapidly?
Excellent content Julie. Thank you.
What do you give if a patient is allergic to MS?
Great info. Suggestion is to not have the background music.
I’m starting to learn and interested in this subject thanx
Video is good, info is good, distracting music is... well, a distraction. Closed captioning and no volume worked for me.
My husband was diagnosed with CHF and in 1 hour he was dead. He was 61.
Thanks for sharing 👍
I am 76 female and have Addison’s. Can you tell me what end stage is like? Painful?
I don’t see Addisons disease much 💗
Thank you. I have CHF and I'm at the beginning Stage D.
I wish I had seen this 6 months ago and had pressed for a more knowledgeable doctor for my wife. She was 83 but I'm sure we could have had another 10 years together.
My 94 year old paternal grandmother died from CHF. She had it for many years. On her deathbed in the hospital, (not on hospice) she said she felt like she was drowning.
Oops I think I ask me question in a reply .. sorry
I have just arranged good home health care for a difficult relative with CHF due to an aneurysm. He is 84
Severe edema ( we had him hospitalized to remove fluid), shortness of breath, liver & kidney issues .
Surgery has been postponed.
He was not compliant with meds & health failing.
With the home health providing rehab services and direction, what are the chances of health improvements?
Ur video was extremely helpful in this difficult process of trying to help him.
I would really love to talk to you and ask some questions can you tell me how we can do this? My husband was on hospice for 1 1/2 months before he passed
I don’t do 1:1 talking sessions. Being a member on my TH-cam page is probably the best way- I see your questions during LIVES first.
My mother had CHF. She had a heart attack, and her lungs kept filling with fluid. It would panic. It was awful.
I wish that i had seen this a year ago. My wife had chf and pad. It was the rollercoaster of ups and downs that drove me crazy. I so wanted her to get better and recover. But after triple bypass and stents in her legs and neck, she survived only 11 agonizing months. None of the surgeries, rehabs or drugs did anything but extend her horrific living condition. It surely wasn’t worth the million dollars it cost medicare either.