As a retired nurse afrer working 43 yrs, I enjoy your channel. I am amazed at what you have created. You are matter of fact without being morbid; you normalize death; provide education and hope while being organized, clear and to the point. For what it's worth, i amproud of a another doing a great job. Keep on doing.
@@ctconway8684 😡so I went to surgery to have a biopsy, 🥶which is against the rules would come to find out. I had a bubble in my left lung and a collapsed lung so guess what they did within an hour they took my oxygen my asthma machine, my toilet so I couldn’t go to the bathroom, and my wheelchair said the things that you need under hospice they never bothered to call me to see if I was all right and I felt betrayed, that I would never never have hospice again. Never did. I called up the social worker and told her what happened and nothing has happened.
I went into CHF in the mid 90's, had successful mitral valve repair in '97, wasnt expected to live past my mid 40's and here I am kicking it at 62. You never go a second before God plans. Thank you Nurse Julie for your kind and compassionate content.
My mother had it since she was in her late twenties. She was diagnosed until much older. My mom always needed naps and when my mom had an episode requiring the emergency room, she became a hell cat. My mom was the kindest and sweetest person and she was very difficult for staff and had to be sedated. Then we were told she was end of life. The hospice staff were kind and helped us through this. The death rattle and the realization she was close to dying was hard. I gave my mom the first drops of morphine to ease her discomfort. Thank goodness for the hospice rns on the phone to help guide us. Hospice is a special breed of nurses for sure.
Dear Julie, Thank you for covering this topic. I am a CHFer. When I was diagnosed, I repeatedly asked my healthcare team what the advanced stages would look like and each one of them, in their own way declined to answer. I think it made them uncomfortable than it did me. I have since given up asking, but still wondered. Thank you for having the courage to cover these topics. I see hospice nurses as angels of mercy.
My husband had congestive heart failure, and then the medication he was on for years affected his kidneys. At the end of his life, he was on dialysis his lungs were filling up with fluid and he came home from his last dialysis appointment and said I’m done. That night went into the hospital the next day they moved him to hospice And six days later he was gone. He was a big strong man and what he did to him was horrible. The hospice center he went to was wonderful. I can’t say enough about them. The worst time in my life, they helped both my husband, my stepdaughter and myself immensely.
Can you share the med that did the most damage to his kidneys? I was just talking this morning that I was considering stopping my meds as they seem to do more damage than good
@@nomadicfenceman509 Entresto. He was on it for years and it kept him alive but his kidneys were affected. I wish you the best. Its sad but most medications have their side effects.
I was treated for CHF at the age of 48 and spent 10 days in hospital. They say that I have Dialated Cardiomyopathy and AFIB. I swim 5 times a week at my favourite outdoor pool and I am turning 64 later this month. Don't give up and keep moving.
My Father died from congestive heart failure. He had a pacemaker, defibrillator. He was moved to UAB in Birmingham, AL and moved his work/office (he was a Vice President of a major university in Florida) to be on the transplant list for a new heart. It never came after waiting 14 months. And he passed away waiting. Please be a donor. Thanks for your video, it brought back alot of memories. 🙏
I'm sorry for your loss... Take comfort in the fact that your dad passed WHOLE with the body that God the creator gave him and is intended to be until he takes us home... 🙏🏻 As a nurse with experience in ICU and keeping donors "alive" for transplant, it honestly changed my views on the practice.. Its a very dark and eerie feeling knowing what their fates will be when the team comes to "harvest"... I took myself off the donor option on my drivers license... I'm sorry..❤
Me, too. Always been an organ/tissue donor or for research if donation is not possible. My father died after a failed quadruple bypass and the installation of four pig's heart valves.
@@lberg5575IT isn't right to berate a person's point of view on organ donation. Just don't. You have not seen what she has and have not gone through what she has. And it's a very personal thing. I also have taken organ donation off of my license. It doesn't make me a bad person nor do I have a hardened perspective. Quite the opposite.
@@Jomama02 In some states, even though you have "Organ Donor" on your license, your FAMILY has the last say so and has to agree, know matter what your wishes are.
@DrParapsychologist my father had open heart surgery he had 4 procedures done. The doctor called me after the surgery and told me it was a success. The next morning they told me about 14 hours after the surgery he had a grand Mal seizure which led to a massive stroke on his left side which left him paralyzed and comatosed. I just knew they weren't telling me the truth and I found out My suspicions were correct. He never had a seizure or a stroke. We found this out months later from the neurologist and all the tests she ordered. He was in a coma for about a month and my Father is my best friend and currently my roommate. He has a very large property and I had recently gotten out of a very unhealthy relationship and eventually when he did come home I acted as his caretaker which was great because I knew he was getting the best care possible around the clock from me. The promise you the world when he was finally discharged but give the bare minimum of help. It's extremely sad.
I'm 69 and the healthiest person in my veteran housing. My neighbor is now in the hospital 🏥 again so mortality is so REAL. I'M OK with that but you've removed the terror of the dying process. 🙏 You're an angel 😇 🙏
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!
Yes, dr.porassss. I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.
I wish they were readily available in my place. Microdosing was my next plan of care for my husband. He is 59 & has so many mental health issues plus probable CTE & a TBI that left him in a coma 8 days. It's too late now I had to get a TPO as he's 6'6 300+ pound homicidal maniac. He's constantly talking about killing someone. He's violent. Anyone reading this Familiar w/ BPD know if it is common for an obsession with violence.
I have afib and mildly enlarged ventricle/atria and the shortness of breath can be scary. I try to just get somewhere cool and do something that isn't physically demanding and it passes with time.
My mother died from CHF this morning. Life is different and I miss her like crazy already. However, Julie, your videos have been a wonderful resource over the last few months for me. Thank you.
Julie, what an amazing service you are performing with these videos. I've watched many and continue to appreciate your knowledge, guidance, and compassion. As a hospice volunteer, I find it is so helpful to tune in to your instruction!
My Dad died of CHF also had Diabetes. We were told he had a week at most to live so he came home from the hospital on Hospice. He was awake for 2 days then went unconscious and passed 2 days later. Mom had to give him Morphine during that time. His death was peaceful thankfully.
@@juliewesterling9045 Same situation with my dad. Once he started getting morphine, he no longer needed oxygen, he was so relaxed, he passed much like your dad.
Excellent info. You described my 88 year old father almost exactly. He lived with us for six years before he died. He was on hospice less than a month. He was so weak at the end but he really enjoyed taking a shower. We got him a special chair he could sit on in the shower. Then he would just sit there with the water pouring over him. When he was done I'd hear the water shut off. I knew he needed help getting out of the bathtub. I'd help him step out of the tub and then place his robe over his back and towel him off. He seemed to enjoy the whole showering process. I felt good being able to help him with his shower. His whole demeaner improved after taking a shower. Now I look back on those days fondly.
Same with my Mom whose had a stroke due to Afib and CHF with some type of recent forgetfulness coming on. She wants to shower every day and we had to remove her shampoo cause her hair was getting so dry. She can still dress herself albeit slowly, but she loves her showers.
I'm in an assisted living facility CHF& COPD. I have 4 copies of your book. I share them with residents and staff. You helped me put a name on air hunger. I'm telling everyone I meet about your channel channel. Bless you and the work you're doing.❤❤❤
@mrscscraig! Thank you for being so supportive 🥰🥰. You are probably helping so many people where you live. 💕. I'm glad my channel and book helped you 🥹🥹🥹. Truly means the world to me
Watched my dad and uncle pass from CHF. Everything you said was spot on and exactly how both of them declined, like it's crazy how literally everything you said is what I saw with both of them. They went for years and years where you couldn't really tell they were even sick if you didn't know already. When they declined in the last year it happened pretty fast.
Thank you so much for this information. I've been in AFib since 2013. After numerous failed cardioversions and an 11 hr long ablation procedure that also failed, I've decided no more medical procedures. I'm 68. My PCP told me my future likely involved dying from a stroke or CHF. Only this year has the edema in my lower extremeties become a problem, but the biggest thing is the shortness of breath. I'm still low functioning and can even drive for short periods of time but I've really seen a decline in ability to perform ADL's. Your video is very much appreciated!! Thank you!!
You are strong, that much is certain. I say this because I too have afib, but with me it comes and goes away. When I was first diagnosed, it would last a couple of hours then go away but with medication it now usually only lasts a few minutes when it happens. I know I am in afib when the shortness of breath starts and sometimes a pain in my left side, and sometimes can feel palpitations in my back when it happens. I would freak out if those symptoms lasted for a decade without end. Take care and be well.
I have watched many of your videos and appreciate your approach to the end. So many people act like we should live for ever and death is another disease. We all will die, how is up to the universe (God if you prefer). I have no fears of dying, only hoping that is quick and sudden. But if not, then I hope that I get someone like you to help me to the end. Bless you for what you do, both with people and with this channel.
Thank you for helping me deal with my mom's hospice, you made it so much easier. I knew what I was seeing and what was happening. Thankfully she was only on hospice for a week before she died, but it was peaceful and I think she was comfortable.
I was with my late father when he passed and you’ve described so much about what I saw (he was 55 and lung cancer). This video I cannot thank you enough for the knowledge shared and insight into my mums current condition, you’ve literally described my mum perfectly with her severe COPD, swellings, breathing, walking, sleeping more, hospital stays etc - I will share this with my sister and will continue to view your amazing videos and God bless you for the work you do…..I’m an ex prison officer/warden and have a strong desire to find a career in a hospice to help people. PS: I was hit in the face by a speeding vehicle aged 17, I suffered catastrophic head injuries and miraculously walked out of hospital just 10 days later to the bemusement of consultants, and while laying on the road with blood internal and external, I experienced an out of body near death experience. I wonder if you’ve any views on this? It’s something I can intricately describe but couldn’t type it all here. 🙏🏻⚖️💙
May God Bless You and Yours, Julie, for you and your channel are a Godsend. I recommend your YT channel to many folks, hoping that they’ll find your YT channel as informative and entertaining as I have. Thank you, ma’am!
The love of my life - my dog, died of CHF a couple months ago. It was rather peaceful, actually. Although I had him Pts'd when he probably only had a day or two left and I regret that. I'm still bewildered that even though I contacted several vets and holistic experts, I wasn't getting the info I needed to navigate this well and to be able to make the right decisions for him. Thats why I've been learning all I can about dying ever since. He developed lung oedema towards the end with the exhaustive constant coughing that dogs with this disease get, and luckily I was able to resolve this with homeopathy. Also cuddles calmed his laboured breathing down, it taught me a lot about how important loving presence is. But I just don't understand why I wasn't offered morphine. Instead, two vets were willing to put him on IV fluids for dehydration, which I wasn't so sure about and later I learned that it's complete nonsense for a dying person, much less for a dying person with oedema! I'm just so sad that even the experts know so little about care for the dying. Thank god for people like you who are doing this education.
Thank you for your channel. 4 years ago , my mother was 99, and after 2 years of being bed bound , she finally passed away peacefully. I was the main caregiver. Although my mom had a wonderful team of doctors and nurses. I learned a lot from your channel. I just love your matter of fact approach, which made everything so much easier. Thank you again.
Thank you for explaining better than any doctor has bothered. Caring for my 95yo mother with a pacemaker from Afib. Yes, breathing, fatigue and edema describes her bad days. Thanks for reiterating the lack of eating and drinking is not something to nag them about..thanks again.
Thank you so much Julie for sharing your knowledge and compassion for your fellow beings. I got very sick after working all day December 5, 2022 from a defective heart valve and went into afib and stopped breathing and my heart stopped twice. Went into chf and managed it until I was able to have heart surgery 6 months later. I continue to have a lot of the symptoms that you just described. Some days are good and some days are bad. Was told how much better I was going to feel and I would be able to go back to work in a couple of weeks and so on. Think they call that gaslighting. But you are spot on with what you’re describing. It’s very discouraging and scary waiting on the “next” event. Thank you for all you’re doing to help us understand what’s going on with our disease and what to expect. The world needs more Julie’s! ❤
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
My father died in May 2021 from CHF. All these things you described took place. Oh how I wish I would’ve found you before that. Thank you for helping so many people understand and be prepared 🙏
Thank you Julie. This subject is what I need. My husband has CHF and he can still shower and dress himself but he is getting worse. He weighs almost 400 lbs so I worry and wonder what will happen when he can’t do these thing but doesn’t need to be in hospital. His Doctors never address my worries. I’d appreciate input from commenters also. You are a blessing Julie. ❤❤❤
Thank you. I had a wonderful experience with hospice when my husband crossed over 20 years ago. He chose hospice care at home for end stage COPD at 54, and stayed under their care until his death 3.5 years later when he crossed in my arms. I am 76 and have CHF; had triple bypass open heart surgery 2 years ago, and diagnosed with stage 3b chronic kidney disease yesterday. I am also diabetic and recently had surgical procedures on both legs for Peripheral Artery Disease. Also am a 5x cancer survivor, and have other painful chronic conditions and I have had to use a rollator for a couple of years now. Even with all this, I am not negative, and I carry on active conversations with my Grandmother, husband and Daddy who are all on the other side. Although I have been near death several times, and have mentally prepared myself to transition (as much as I can), I will be here until God calls me. I guess He is just not done with me yet. 🥰
My dad had it but was only able to have 1/2 heart surgery in November but then died in May the following year. He didn't tell me he was sick. I found out about a little more than two weeks before he passed away. I got to see him exactly 2 weeks before he passed. He lived 2 hours away from me, that's why I didn't see him much
Julie, my mother passed from CHF. She did sleep more, but she actually ate the day she died. Your videos are great. I wish I would have found your channel sooner.
I lost my husband 6 years ago to cancer and watched him die. He was 30, i was 28 at the time. It was so bizarre to watch and was my first death experience. Your videos are helping me cope with this experience and helping me feel a little more at ease with knowing my time will come one day too. Thank you❤
I was terrified to go on morphine for a different disease, but once I finally gave in, I realized I was able to live a more productive life again. As long as it's well managed and you are honest with your doctor, you have nothing to fear. Yes, I was ashamed to admit to anyone that I was taking morphine regularly, until I told my psychologist about it. I told him I was afraid to admit I was an addict. He said that I wasn't addicted, but dependent on it. There's a difference that I have finally come to terms with. Just as others need insulin every day to help them with diabetes, I need morphine (small, time released dose) to get out of bed. And if you have a terminal disease, appreciate the fact that the remainder of your days will be spent more comfortably.
Thank you. I am current (long distance) caregiver to a CHFer w cancer. Just got back from two weeks w her. I also have CHF. I have seen the end stage w another close family member. This is so very helpful. One thing I have learned is that the “expiration dates “ given by medical professionals can largely be ignored. In my experience people tend to beat the odds for months or even years.
Wow. Fourth CHF You Tube I have looked at this week, and this was the most concise and informative. Thank you so much. I have CHF and trying to understand my future. Like some of your comments below, my team of heart-liver-kidney doctors and NPs are not good at describing the long term process of dieing of this disease. You did a really great job in 8 minutes. You also offered caution that much of your information begins at hospice, however, you did offer much that also applies before hospice. One also needs to read the comments below to embrace that exercise and diet are the best medicine for extending one's life under CHF. Thank you, again.
I'm glad this has been invented, but so sad that it's needed. My children are all childfree by choice. I've never been so happy to know that I'll never have children or grandchildren who might be hurt or killed in a school shooting. If I still had school-age children, I would be keeping them home. Even to the point of moving to a smaller home.
My husband passed in May from end stage copd and CHF. We thought he was getting better but after multiple trips to the hospital. I believe the high levels of steroids from the hospital created an illusion. He started getting more tired and was eating less, he loss 30 lbs over time. Yes he had shortness of breath and had been on oxygen for years. In my opinion, looking back on our experience, he may have benefitted from more meds than he was getting. He was wanting to get in and out of bed every hour or two, it was exhausting for us all. I think now he was experiencing agitation. We loved our hospice team!
I wish I had seen your video a few years ago when my dad died from heart failure. Knowing what to expect would have helped us so much. Thanks for the information.
Thank you Julie. My dad is nearing end stage CHF & it is hard to watch his decline. The information you provide gives me courage & comfort to deal with the inevitable. Thanks again 🙏🙏🙏
Ten years ago my dad was diagnosed with chf and had a pacemaker put in and years later a Watchman. Last few years I’ve been his co-caregiver. He had many hospital visits and was very difficult to control his edema. A year ago in entered the last stage of chf. In May he started palliative care. He made it clear he would never go back to hospital and had a dnr. One day in June he had a good day and was happy. I gave my parents some ice cream and dad told me it tasted extra good tonight then some family members came home from being out all day and 2 minutes later my dad was all of a sudden not responding and tongue sticking out, he passed away from cardiac arrest. He was 92. We are grateful he passed with his family around and at home just how he wanted to be.
I want to thank you for these videos. My aunt died a few days ago and I was able to be with her, along with other relatives. Your videos prepared me for the process . It was less stressful as a result. ❤
Thank you for your videos. My father passed away today. Watching your videos before he passed away has helped me deal with knowing that he really well his final days. God bless you & Thank you.
My mom passed away today 9/13/24 from kidney and heart failure. After two weeks in the hospital and countless tests, we were told she wasn’t a candidate for heart surgery, but she couldn’t go on dialysis because of the her weak condition and her bad heart. (She actually had expressed to me verbally years ago she would never want dialysis so I don’t feel guilty about not seeking a second opinion about dialysis). We decided on hospice and luckily I found and watched you’re videos and they greatly helped me prepare for my precious mom’s passing including managing her symptoms as well as what to expect as her passing grew closer.
GOD bless you! This video came at such a time that I would have to say it was, "Heaven sent." After 26 years in healthcare, IMO, Hospice nurses are a special breed of Angels. I cannot thank you enough...THANK YOU
Thank you so much! I'm currently caring for my father on hospice. He has CHF plus kidney disease and although doctors said two months ago he may not make the transfer home he has fought to stay with us. I am hoping he passes peacefully in his sleep. One day he seems perfectly fine and the next day seems like his final day, even the hospice nurses are surprised at his fight
I have CHF, Afib… edema in my lower legs, controlled high bp…, used to weigh 485 now down to 340….been building fences in the Florida sun for 47 yrs… I’m 65 and still working. The key is keep moving your body.
Thank you for your video. When my mom was diagnosed with CHF I tried to get her palliative care doctor to explain it and she just wouldn’t. I don’t know if she thought that by not telling me the raw facts that it was going to make it easier, but it made it actually much harder. I go back and look at your videos and get comfort that what had happened with my mom in her passing was a natural process due to CHF. It helped a lot for my own guilt Because I didn’t understand what was going on. I hope more physicians do not shy away from explaining this. Because that approach is not helpful.
You never cease to fill my heart with hope. I am not looking forward to leaving this earthly plane and can see that I have congestive heart failure symptoms, so I am super glad to see your video on CHF. Thank you Nurse Julie. I think you should get some sort of humanitarian award for not only being a hospice nurse but being a beacon of information on death and dying. Thank you,
My husband died of CHF. He had a pacemaker. Unfortunately, he declined quickly the past year of his life. I didn't have any help and I'm also the care giver of our severely autistic daughter.
I’ve learned so much from you explaining end of life . Thank you for all your explanations . You are very easy to understand . Thank you. I came up on your videos shortly after my mom’s passing in Dec. 2021. She was in Hospice for 7 days. All your explanations are exactly what she went through and i can only hope & pray that when it’s my time , i go as peaceful as she did. Thank you nurse Julie . You are a gem!
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Excellent! Excellent! Excellent!! Thank you Nurse Julie, for helping us cope throughout some of the most difficult challenges we face in this life. Your calm, matter-of-fact manner gives me the greatest comfort and strength to face these challenges with grace & courage. It is all because of you!! God bless you and all of your good works!!🌷🌸🌺💐🙏
My grandma just got diagnosed with Diastolic Congestive Heart failure and already has constant A-Fib. She’s 86 and she said she’s ready to go, she has a DNR and my aunt put her in the hospital because she had a hernia and ended up having a full abdominal surgery to fix it, not a laparoscopy. She’s so mad and frustrated because it’s not what she wanted, she’s been screaming and crying wanting to go home. 😢 I feels so bad for her but can’t do anything because I’m not her POA.
Thank you for explaining everything. I just wish I had found you before my mom was on hospice. She only on it for three days so I couldn’t get to know her nurses. I had lots of questions but as I watch you I’m getting the answers I was looking for. Thank you for the knowledge I will definitely need in the future.
I just want to thank you for your videos. I just watched this one and it has educated me considerably. My wife has early onset Alzheimer's and I now have a better understanding and information that will be important to our GP. Thanks again.
I have scleroderma antibodies AND lupus antibodies creating an "overlapping" rare experience. And Lord knows it is hard to remain unangered when all ailments are undeserving. "You & your videos brought me personally a joy & peace that cannot be described. Love you like family & thanks"
My father is going to see a cardiologist next week but with the symptoms you just mentioned, I believe my father has CHF. He has had periodical swelling in his legs and feet and he is always short of breath. He got to a point a month ago where he couldn’t drive or even walk without help. Today he is back to normal. He doesn’t think he needs to see a cardiologist but I said to him, do it for me please. For Peace of mind! He says he doesn’t want to spend the money on the cardiologist appointment. He’s also allergic to morphine.
I wish I had seen this when my my mother was diagnosed with CHF. I never saw anyone die slowly before and didn't understand what was happening. Now I know she experienced some normal things and some not normal, treatable things while going through the process of dying. I was very busy denying her death. If I had known I might have been more of a comfort to her.
Luckily I survived head and neck cancer two years ago.. so why watch your videos? To help me understand that the body knows what it needs to do and when that times comes.. I will be fine.. I am not as afraid as I was. Thank you for helping me understand. 💕
My husband died of chf/copd 2 weeks ago. We are living in Belize where home hospice is not yet available. He hated the thought of going to the hospice house, so I took care of him at home. Your videos were in valuable to me to know what to expect. At the end he wanted to sit up. Do I pulled him up and propped him up with pillows. He looked at me and said If this is how I've gotta go, it sucks. A few seconds later he looked up just above my head, eyes wide, and smiled. Then he closed his eyes and just stopped breathing. Thanks for preparing me for all that!
Awww, this must have been so hard. I'm sorry for this. I sincerely hope a family member or beloved friend was waiting to bring him over to the other side and that was the reason for his smile....
Hi thank you for the wonderful videos you make very informative I do appreciate your time that you make to make these videos to educate us I am 26 recently diagnosed with CHF I had a heart catheter done I have the left side ejection fraction of 45 and was told my heart isn't squeezing properly however I am currently taking medication and hoping that helps I no longer have symptoms of shortness of breath or lightheadedness I also take water pill I love the videos that you make and I do appreciate you for making them thank you for educating us. ❤
My father was diagnosed with congestive heart failure at 87 years old. He got a pacemaker put in and then at 90 years old, had a stroke. He eventually died 4 years later at 94 years old. He was an alcoholic but had a great exercise regime and ate well, from what I saw. Not sure how he developed this disease entirely. He was never put on hospice but rather lived out his last 4 years in a nursing home which he hated. The only way out was death.
I was 42 when I went to Iraq in 04. I started to have heart issues. I think from the malaria pills and anthrax vaccines. Anyway, I’m 61 now and have had 2 scads and possibly others. Being a guy I’m told it’s very unusual. Now I’m on meds for heart failure and diabetes. I’m not diabetic or overweight. Sometimes my heart rate goes down into the 30s. A few weeks ago, during my second cataract surgery, the anesthesiologist said my heart rate went down to 26. My wife was a witness. I wonder if you have heard anything like this before. Some days I feel like I could run a marathon. Other days I get out of breath just walking across the living room. Anyway, thanks for the video!
The key to not ending up in hospice from CHF is treating high blood pressure early. Once it's gone on too long the heart grows because it's a muscle which squeezes the ventricles to the point they can't pump right. I had alarmingly high bp at 38, went on beta blockers and thank God I did. I'm 45 now. I would have been on the road to this otherwise.
Julie, could you please do a video on non small cell lung cancer that metastasized to the brain? I was diagnosed 1 year ago June 2023 and given 3 months. Had several rounds of Cyber knife radiation on the three spots in my brain, chemotherapy, another spot popped up in May this year and another cyber knife treatment. Just had another pop up August and yet another cyber knife treatment and this one has left me with a non stop headache and involuntary head movements at times and more unsteady on my feet. I have also been doing immuno therapy since completing the chemo. And I had quite a few radiation treatments on my left lung. I feel like my time is coming and need to prepare myself for what I can expect, and maybe a guestimation of time if possible. Thank you so much for your educational videos, they have really helped.
Michelle, please ask your treating physicians if you qualify for palliative or Hospice care. You should not have to suffer like that. My thoughts and prayers are with you.
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Morphine with shortness of breath can actually be very helpful. I'm not terminal and that's frequently something we tried before putting me to sleep on a vent and sometimes, it works. A little morphine and bipap with a lot of steroids thrown at it has at least a 50/50 chance for me. And, I don't suffer.
I went to one cardiac doctor and then another because no one believed what was going on with me I kept having severe dizziness severe shortness of breath was unable to do much of anything my feet finally turned blue fuchsia you name it they turned the kind of colors that you go oh my God am I losing my feet and yet nobody would listen to me and only did the most cursory of tests I had to advocate for myself every step of the way actually moving to a second doctor when I wasn't getting anywhere with the first! As it turns out the second doctor wasn't much better than the first and after one more test than the other doctor did he was done I wasn't but he was! I had to act like a little girl infatuated and just acting like I believed everything the doctor said but just battling my eyelashes and say but couldn't we just do one more test I know that we'll find something I know something is wrong with me! I know my body! Each time I finish with a test that showed nothing I kept saying there's something wrong I know it there is absolutely something wrong with me and eventually I would need them so much that they I finally got the doctor to give me the next test that's in line! That's how it went! I had to fight hardest for the last test I had done that was the last test that they say a cardiac doctor can do and when it was done I was in the room dressing and the technician ran towards the room that he thought I was in and he was very agitated asking the nurses where I was did I leave he's been sent to them after they asked why what's wrong does she have a stent in her heart they said no that's why she's here she's complaining that there is something wrong with her that they haven't found yet! Mind you this is the after he let me off the table and then realized he forgot to do a certain angle and that was the one that from this at least this moment saved my life! When he realized I was not in the room and they told him which room I was in I heard him, I heard the whole event happened and what he said and what they told him when he walked in the room I was not ahead of him he walked in face first thinking I was going to be face first in front of him! He turned around and saw me to his left and he said do you have a stent in your heart and I said no he said are you sure I said absolutely I'm sure I said I've been telling them something and No One Believes Me! He said have you ever had a surgery no have you ever had a stent are you positive yes I'm positive I never had a stent! Then he said to me your doctor's going to call you either tonight or tomorrow morning! I said why? He said he'll tell you then I said I have a blockage I know you don't have to pretend like you don't know and you don't have to admit it to me I know I heard you in the other room! I heard him say I have a 100 in one of my arteries if I don't have a stand there! Lickety split I had surgery scheduled and they found a 100 percent blockage, not where they thought it was, for the life of me I can't remember it's name despute talking about it more times than I can shake a atick at! Then also two other 40% bockages in the LAD artery which is where they thought the 100% blockage was. After surgery I was told I have 2 stents in my heart 2 mm long each apparently that puts me in a really bad category supposedly because of the artery it's in one that only 2 to 3% of the population has and it's not fair to autopsy! They didn't do anything with the two 40% blockages in the LAD, which drove me nuts. Tbey said because each one was only 40% it is not done until it gets to a least 70%. I was upset and said well while you were in there why couldn't you just said 40% and 40% is 80%? To myself I said, you heart surgeons act like you are Gods! When I need you to use your godly powers and fix me you act like I didn't wind up with exactly what I said was wrong with me. I felt this way because I had a week of recovery after surgery where I felt the same way as I did before surgery and the second week it was like a miracle I felt like my old self again and by the third week I was back with all of the same symptoms as when I came in. I which I wish I had never told the doctor that my second week was good because by the third week all my earlier symptoms came back to where I started from! I was exhausted from the same drama of not being believing and refused to take my word for what's going on with me! It was like you know what we didn't believe this poor woman before and she turned out to be right and she would have been dead if we didn't find that artery sooner or later, it brought me nothing it wouldn't mean no, let's give her the benefit of the doubt and go look and see there if maybe the stents have narrowed or closed, it's insane! I mean I wadn't asking for cudo's, but without acknowledgeing I was right just realize I was credibe. I had what I thougt I had. So kets take her seriously this time and go look and see if the stents are. But no, I got talked to very nastily! Third doctor hears what went on and knows I actually had a big blockage which was stented only to have symotoms return and a surgeon who won't go in and check the condition of my stents as protocol procedures say can and should be done if the quality of life the patient is experiencing is not improving and not good. Zip, Nada. So what do I do now? How do I find out what my symptoms are if they won't go in and check how do I know what to do all I know is my life stinks and I feel like I'm dying and these guys won't go in! I asked them why would you come to me and asked me if I was in hospice immediately after the surgery when I was still groggy if you didn't think that I was not in a good place with my life! All he could say was I don't mean that you need hospice I mean you need palliative care which covers the beginning and the end stages which goes into hospice so that says something to me when I'm experiencing the same symptoms and feel like I'm dying and nobody will do anything about it! The reason I'm writing you this is because maybe since you have experience with CHF you can tell me why I'm so super dizzy and why I'm gasping for air cuz you called it are Hunger I don't know what it is but all I know is that I'm super dizzy palpitations come and go they're not there all the time but they're still there and I still need to have are I'll be doing something and I need to sit down immediately or I can't get up without terrific effort and huffing and puffing! Will somebody please tell me what this is what do I do because I am at my Wit's End my own people don't have any empathy for me anymore they think I'm just being a hypochondriac! And I'm the one in the family who never took medicines and always put the doctor off because I knew that it was something temporary and now when I actually want to take the medicine and do take the medicine and do go to the doctor and try and get things taken care of all of a sudden this isn't happening and everybody thinks I'm a hypochondriac this is not a way to live a life! And just so you know seeing this movie about end of life and what people go through it did help me but more what it did was show me there was somebody out there that had seen this I've seen the symptoms and may know what to do or how I can go about finding out what is actually wrong because I'm not a surgeon and I can't take the knife and go in there and operate on myself much less make the surgeon do something he's not wanting to do my primary says I'm a series case and he just doesn't want to deal with the serious cases he's got plenty of other people that are in and out and they're fine. It sounds like it's a male like you said it was initially when you first went to see this the second guy so you need to get out and get another doctor well I did get a third doctor and I'm getting the same runaround! He promised me he was going to look if he couldn't find it by doing any scans which now he doesn't want to do and he just wants me to just go on with my life and has no explanation for why I'm the way I am! I really have lost all respect for doctors with what I I'm going through now and what I've seen is other people go through
As a retired nurse afrer working 43 yrs, I enjoy your channel. I am amazed at what you have created. You are matter of fact without being morbid; you normalize death; provide education and hope while being organized, clear and to the point. For what it's worth, i amproud of a another doing a great job. Keep on doing.
Adema, yes, but the fatigue just bad life choices. I've gotten to a point my #s R that of a freshman in HS.My GP is concerned. I'm worried 😮
You expressed this so well, I agree 100%~ What a beautiful gift Nurse Julie gives us all, the way she presents all this information.
@@elbee1290 TYVM for reply
@@ctconway8684 😡so I went to surgery to have a biopsy, 🥶which is against the rules would come to find out. I had a bubble in my left lung and a collapsed lung so guess what they did within an hour they took my oxygen my asthma machine, my toilet so I couldn’t go to the bathroom, and my wheelchair said the things that you need under hospice they never bothered to call me to see if I was all right and I felt betrayed, that I would never never have hospice again. Never did. I called up the social worker and told her what happened and nothing has happened.
I had to pay $2000 every two months it is not a free service!
I went into CHF in the mid 90's, had successful mitral valve repair in '97, wasnt expected to live past my mid 40's and here I am kicking it at 62. You never go a second before God plans.
Thank you Nurse Julie for your kind and compassionate content.
My mother had it since she was in her late twenties. She was diagnosed until much older. My mom always needed naps and when my mom had an episode requiring the emergency room, she became a hell cat. My mom was the kindest and sweetest person and she was very difficult for staff and had to be sedated. Then we were told she was end of life. The hospice staff were kind and helped us through this. The death rattle and the realization she was close to dying was hard. I gave my mom the first drops of morphine to ease her discomfort. Thank goodness for the hospice rns on the phone to help guide us. Hospice is a special breed of nurses for sure.
Dear Julie, Thank you for covering this topic. I am a CHFer. When I was diagnosed, I repeatedly asked my healthcare team what the advanced stages would look like and each one of them, in their own way declined to answer. I think it made them uncomfortable than it did me. I have since given up asking, but still wondered. Thank you for having the courage to cover these topics. I see hospice nurses as angels of mercy.
My husband had congestive heart failure, and then the medication he was on for years affected his kidneys. At the end of his life, he was on dialysis his lungs were filling up with fluid and he came home from his last dialysis appointment and said I’m done. That night went into the hospital the next day they moved him to hospice And six days later he was gone. He was a big strong man and what he did to him was horrible. The hospice center he went to was wonderful. I can’t say enough about them. The worst time in my life, they helped both my husband, my stepdaughter and myself immensely.
Can you share the med that did the most damage to his kidneys?
I was just talking this morning that I was considering stopping my meds as they seem to do more damage than good
@@nomadicfenceman509 Entresto. He was on it for years and it kept him alive but his kidneys were affected. I wish you the best. Its sad but most medications have their side effects.
I was treated for CHF at the age of 48 and spent 10 days in hospital. They say that I have Dialated Cardiomyopathy and AFIB. I swim 5 times a week at my favourite outdoor pool and I am turning 64 later this month. Don't give up and keep moving.
have you been in remission all this time?
Best wishes for you ❤
@@LemonLimes99 Yes, I but I feel a slow decline and increasing fatigue.
Good for you, as each body is differnet and glad that you are doing well. always have hope.
My Father died from congestive heart failure. He had a pacemaker, defibrillator. He was moved to UAB in Birmingham, AL and moved his work/office (he was a Vice President of a major university in Florida) to be on the transplant list for a new heart. It never came after waiting 14 months. And he passed away waiting. Please be a donor. Thanks for your video, it brought back alot of memories. 🙏
I'm sorry for your loss... Take comfort in the fact that your dad passed WHOLE with the body that God the creator gave him and is intended to be until he takes us home... 🙏🏻
As a nurse with experience in ICU and keeping donors "alive" for transplant, it honestly changed my views on the practice.. Its a very dark and eerie feeling knowing what their fates will be when the team comes to "harvest"... I took myself off the donor option on my drivers license... I'm sorry..❤
Me, too. Always been an organ/tissue donor or for research if donation is not possible. My father died after a failed quadruple bypass and the installation of four pig's heart valves.
@@lberg5575IT isn't right to berate a person's point of view on organ donation. Just don't. You have not seen what she has and have not gone through what she has. And it's a very personal thing. I also have taken organ donation off of my license. It doesn't make me a bad person nor do I have a hardened perspective. Quite the opposite.
@@Jomama02 In some states, even though you have "Organ Donor" on your license, your FAMILY has the last say so and has to agree, know matter what your wishes are.
@DrParapsychologist my father had open heart surgery he had 4 procedures done. The doctor called me after the surgery and told me it was a success. The next morning they told me about 14 hours after the surgery he had a grand Mal seizure which led to a massive stroke on his left side which left him paralyzed and comatosed. I just knew they weren't telling me the truth and I found out My suspicions were correct. He never had a seizure or a stroke. We found this out months later from the neurologist and all the tests she ordered. He was in a coma for about a month and my Father is my best friend and currently my roommate. He has a very large property and I had recently gotten out of a very unhealthy relationship and eventually when he did come home I acted as his caretaker which was great because I knew he was getting the best care possible around the clock from me. The promise you the world when he was finally discharged but give the bare minimum of help. It's extremely sad.
I'm 69 and the healthiest person in my veteran housing. My neighbor is now in the hospital 🏥 again so mortality is so REAL.
I'M OK with that but you've removed the terror of the dying process. 🙏 You're an angel 😇 🙏
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.
Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!
Yes, dr.porassss. I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.
I wish they were readily available in my place.
Microdosing was my next plan of care for my husband. He is 59 & has so many mental health issues plus probable CTE & a TBI that left him in a coma 8 days. It's too late now I had to get a TPO as he's 6'6 300+ pound homicidal maniac.
He's constantly talking about killing someone.
He's violent. Anyone reading this
Familiar w/ BPD know if it is common for an obsession with violence.
Is he on instagram?
Yes he is dr.porassss.
“Our bodies are built to die, they know how to do it” wow this gave me so much relief ✨
COPD, CHF, AFIB, and that deep breath occasionally is worth all the gold in the world! Rare, but so worth it.
I have afib and mildly enlarged ventricle/atria and the shortness of breath can be scary. I try to just get somewhere cool and do something that isn't physically demanding and it passes with time.
My mother died from CHF this morning. Life is different and I miss her like crazy already. However, Julie, your videos have been a wonderful resource over the last few months for me. Thank you.
So sorry for your loss.
I wish you whatever brings you peace and comfort at this sad time. ❤
@@auntiem9758I am so sorry for your loss. Currently going through my Mom having a heart attack with CHF. Prayers of comfort for you.
So sorry for your loss. My deepest condolences 😢❤
I’m so sorry. My sincere condolences 🙏
Julie, what an amazing service you are performing with these videos. I've watched many and continue to appreciate your knowledge, guidance, and compassion. As a hospice volunteer, I find it is so helpful to tune in to your instruction!
My Dad died of CHF also had Diabetes. We were told he had a week at most to live so he came home from the hospital on Hospice. He was awake for 2 days then went unconscious and passed 2 days later. Mom had to give him Morphine during that time. His death was peaceful thankfully.
Yeah, that's preferable to dragging it out.
@@juliewesterling9045 Same situation with my dad. Once he started getting morphine, he no longer needed oxygen, he was so relaxed, he passed much like your dad.
Excellent info. You described my 88 year old father almost exactly. He lived with us for six years before he died. He was on hospice less than a month. He was so weak at the end but he really enjoyed taking a shower. We got him a special chair he could sit on in the shower. Then he would just sit there with the water pouring over him. When he was done I'd hear the water shut off. I knew he needed help getting out of the bathtub. I'd help him step out of the tub and then place his robe over his back and towel him off. He seemed to enjoy the whole showering process. I felt good being able to help him with his shower. His whole demeaner improved after taking a shower. Now I look back on those days fondly.
Beautiful. Thank you. My Dad, too....89, weak with CHF, but loves his showers.....God bless you and your father
Same with my Mom whose had a stroke due to Afib and CHF with some type of recent forgetfulness coming on. She wants to shower every day and we had to remove her shampoo cause her hair was getting so dry. She can still dress herself albeit slowly, but she loves her showers.
@GregSr is priceless, perfect story thanks for sharing
I'm in an assisted living facility CHF& COPD. I have 4 copies of your book. I share them with residents and staff. You helped me put a name on air hunger. I'm telling everyone I meet about your channel channel. Bless you and the work you're doing.❤❤❤
@mrscscraig! Thank you for being so supportive 🥰🥰. You are probably helping so many people where you live. 💕. I'm glad my channel and book helped you 🥹🥹🥹. Truly means the world to me
Watched my dad and uncle pass from CHF. Everything you said was spot on and exactly how both of them declined, like it's crazy how literally everything you said is what I saw with both of them. They went for years and years where you couldn't really tell they were even sick if you didn't know already. When they declined in the last year it happened pretty fast.
Thank you for this info, my husband has CHF and now I know what to expect when the time comes.
Thank you so much for this information. I've been in AFib since 2013. After numerous failed cardioversions and an 11 hr long ablation procedure that also failed, I've decided no more medical procedures. I'm 68. My PCP told me my future likely involved dying from a stroke or CHF. Only this year has the edema in my lower extremeties become a problem, but the biggest thing is the shortness of breath. I'm still low functioning and can even drive for short periods of time but I've really seen a decline in ability to perform ADL's. Your video is very much appreciated!! Thank you!!
You are strong, that much is certain. I say this because I too have afib, but with me it comes and goes away. When I was first diagnosed, it would last a couple of hours then go away but with medication it now usually only lasts a few minutes when it happens. I know I am in afib when the shortness of breath starts and sometimes a pain in my left side, and sometimes can feel palpitations in my back when it happens. I would freak out if those symptoms lasted for a decade without end. Take care and be well.
I have watched many of your videos and appreciate your approach to the end. So many people act like we should live for ever and death is another disease. We all will die, how is up to the universe (God if you prefer). I have no fears of dying, only hoping that is quick and sudden. But if not, then I hope that I get someone like you to help me to the end. Bless you for what you do, both with people and with this channel.
Thank you for helping me deal with my mom's hospice, you made it so much easier. I knew what I was seeing and what was happening. Thankfully she was only on hospice for a week before she died, but it was peaceful and I think she was comfortable.
My youngest son had CHF from ages 9 to 14. He had a heart transplant 11 years ago that eliminated the CHF. So far he’s doing really well.
@@LittleBlueFish87 I hope he continues strong!!
🙏🙏🙏✝️
Thanks for your solid input into something almost no-one wants to think about... until they have to.
I was with my late father when he passed and you’ve described so much about what I saw (he was 55 and lung cancer).
This video I cannot thank you enough for the knowledge shared and insight into my mums current condition, you’ve literally described my mum perfectly with her severe COPD, swellings, breathing, walking, sleeping more, hospital stays etc - I will share this with my sister and will continue to view your amazing videos and God bless you for the work you do…..I’m an ex prison officer/warden and have a strong desire to find a career in a hospice to help people.
PS: I was hit in the face by a speeding vehicle aged 17, I suffered catastrophic head injuries and miraculously walked out of hospital just 10 days later to the bemusement of consultants, and while laying on the road with blood internal and external, I experienced an out of body near death experience. I wonder if you’ve any views on this? It’s something I can intricately describe but couldn’t type it all here.
🙏🏻⚖️💙
I think you are wonderful! Thank you for what you do and sharing this info. It takes someone special to be a hospice nurse and YOU are!
Hello 👋Beautiful Lady 🌹..How are you and the weather condition like ?
May God Bless You and Yours, Julie, for you and your channel are a Godsend. I recommend your YT channel to many folks, hoping that they’ll find your YT channel as informative and entertaining as I have.
Thank you, ma’am!
She is like an Angel giving us such good information and guidance.
The love of my life - my dog, died of CHF a couple months ago. It was rather peaceful, actually. Although I had him Pts'd when he probably only had a day or two left and I regret that. I'm still bewildered that even though I contacted several vets and holistic experts, I wasn't getting the info I needed to navigate this well and to be able to make the right decisions for him. Thats why I've been learning all I can about dying ever since.
He developed lung oedema towards the end with the exhaustive constant coughing that dogs with this disease get, and luckily I was able to resolve this with homeopathy. Also cuddles calmed his laboured breathing down, it taught me a lot about how important loving presence is. But I just don't understand why I wasn't offered morphine. Instead, two vets were willing to put him on IV fluids for dehydration, which I wasn't so sure about and later I learned that it's complete nonsense for a dying person, much less for a dying person with oedema! I'm just so sad that even the experts know so little about care for the dying. Thank god for people like you who are doing this education.
Thank you for your channel. 4 years ago , my mother was 99, and after 2 years of being bed bound , she finally passed away peacefully. I was the main caregiver. Although my mom had a wonderful team of doctors and nurses. I learned a lot from your channel. I just love your matter of fact approach, which made everything so much easier. Thank you again.
Thank you for explaining better than any doctor has bothered. Caring for my 95yo mother with a pacemaker from Afib. Yes, breathing, fatigue and edema describes her bad days. Thanks for reiterating the lack of eating and drinking is not something to nag them about..thanks again.
My dad was on hospice for two years off and on with CHF. Finally was just worn out.
So many thanks, Nurse Julie❣️
These videos are fascinating for someone who is starting to lose her loved ones.❤
Thank you so much Julie for sharing your knowledge and compassion for your fellow beings. I got very sick after working all day December 5, 2022 from a defective heart valve and went into afib and stopped breathing and my heart stopped twice. Went into chf and managed it until I was able to have heart surgery 6 months later. I continue to have a lot of the symptoms that you just described. Some days are good and some days are bad. Was told how much better I was going to feel and I would be able to go back to work in a couple of weeks and so on. Think they call that gaslighting. But you are spot on with what you’re describing. It’s very discouraging and scary waiting on the “next” event. Thank you for all you’re doing to help us understand what’s going on with our disease and what to expect. The world needs more Julie’s! ❤
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
My Grandma just passed June 22nd 2024 from CHF man I miss her. with these videos gave me the understanding I needed during the right time
My condolences 🙏
My father died in May 2021 from CHF. All these things you described took place. Oh how I wish I would’ve found you before that. Thank you for helping so many people understand and be prepared 🙏
Thank you Julie. This subject is what I need. My husband has CHF and he can still shower and dress himself but he is getting worse. He weighs almost 400 lbs so I worry and wonder what will happen when he can’t do these thing but doesn’t need to be in hospital. His Doctors never address my worries. I’d appreciate input from commenters also. You are a blessing Julie. ❤❤❤
I could have written this about my dad. You're not alone. ❤
Is your husband's weight fluid build up?
@@reneesoli5345 no. He takes water pill daily. He’s just very heavy
@@majo3423 my husband has CHF as well and I asked because I have read that CHF patients can gain water weight rapidly.
Thank you. I had a wonderful experience with hospice when my husband crossed over 20 years ago. He chose hospice care at home for end stage COPD at 54, and stayed under their care until his death 3.5 years later when he crossed in my arms.
I am 76 and have CHF; had triple bypass open heart surgery 2 years ago, and diagnosed with stage 3b chronic kidney disease yesterday. I am also diabetic and recently had surgical procedures on both legs for Peripheral Artery Disease. Also am a 5x cancer survivor, and have other painful chronic conditions and I have had to use a rollator for a couple of years now.
Even with all this, I am not negative, and I carry on active conversations with my Grandmother, husband and Daddy who are all on the other side.
Although I have been near death several times, and have mentally prepared myself to transition (as much as I can), I will be here until God calls me. I guess He is just not done with me yet. 🥰
My dad had it but was only able to have 1/2 heart surgery in November but then died in May the following year. He didn't tell me he was sick. I found out about a little more than two weeks before he passed away. I got to see him exactly 2 weeks before he passed. He lived 2 hours away from me, that's why I didn't see him much
Julie, my mother passed from CHF. She did sleep more, but she actually ate the day she died. Your videos are great. I wish I would have found your channel sooner.
I lost my husband 6 years ago to cancer and watched him die. He was 30, i was 28 at the time. It was so bizarre to watch and was my first death experience. Your videos are helping me cope with this experience and helping me feel a little more at ease with knowing my time will come one day too. Thank you❤
I was terrified to go on morphine for a different disease, but once I finally gave in, I realized I was able to live a more productive life again. As long as it's well managed and you are honest with your doctor, you have nothing to fear. Yes, I was ashamed to admit to anyone that I was taking morphine regularly, until I told my psychologist about it. I told him I was afraid to admit I was an addict. He said that I wasn't addicted, but dependent on it. There's a difference that I have finally come to terms with. Just as others need insulin every day to help them with diabetes, I need morphine (small, time released dose) to get out of bed. And if you have a terminal disease, appreciate the fact that the remainder of your days will be spent more comfortably.
Thank you. I am current (long distance) caregiver to a CHFer w cancer. Just got back from two weeks w her. I also have CHF. I have seen the end stage w another close family member. This is so very helpful. One thing I have learned is that the “expiration dates “ given by medical professionals can largely be ignored. In my experience people tend to beat the odds for months or even years.
Wow. Fourth CHF You Tube I have looked at this week, and this was the most concise and informative. Thank you so much. I have CHF and trying to understand my future. Like some of your comments below, my team of heart-liver-kidney doctors and NPs are not good at describing the long term process of dieing of this disease. You did a really great job in 8 minutes. You also offered caution that much of your information begins at hospice, however, you did offer much that also applies before hospice. One also needs to read the comments below to embrace that exercise and diet are the best medicine for extending one's life under CHF. Thank you, again.
I'm glad this has been invented, but so sad that it's needed.
My children are all childfree by choice.
I've never been so happy to know that I'll never have children or grandchildren who might be hurt or killed in a school shooting.
If I still had school-age children, I would be keeping them home.
Even to the point of moving to a smaller home.
You are fantastic! Thanks for your educating manner and compassion. God bless you
God Bless you! I am a new CNA caring for a prostate cancer 96 yr old. Your videos have helped me so much!❤
My husband passed in May from end stage copd and CHF. We thought he was getting better but after multiple trips to the hospital. I believe the high levels of steroids from the hospital created an illusion. He started getting more tired and was eating less, he loss 30 lbs over time. Yes he had shortness of breath and had been on oxygen for years. In my opinion, looking back on our experience, he may have benefitted from more meds than he was getting. He was wanting to get in and out of bed every hour or two, it was exhausting for us all. I think now he was experiencing agitation. We loved our hospice team!
Oh really so sorry about your loss. How are you and the weather condition like ?
I wish I had seen your video a few years ago when my dad died from heart failure. Knowing what to expect would have helped us so much. Thanks for the information.
Thank you Julie. My dad is nearing end stage CHF & it is hard to watch his decline. The information you provide gives me courage & comfort to deal with the inevitable. Thanks again 🙏🙏🙏
Ten years ago my dad was diagnosed with chf and had a pacemaker put in and years later a Watchman. Last few years I’ve been his co-caregiver. He had many hospital visits and was very difficult to control his edema. A year ago in entered the last stage of chf. In May he started palliative care. He made it clear he would never go back to hospital and had a dnr. One day in June he had a good day and was happy. I gave my parents some ice cream and dad told me it tasted extra good tonight then some family members came home from being out all day and 2 minutes later my dad was all of a sudden not responding and tongue sticking out, he passed away from cardiac arrest. He was 92. We are grateful he passed with his family around and at home just how he wanted to be.
I want to thank you for these videos. My aunt died a few days ago and I was able to be with her, along with other relatives. Your videos prepared me for the process . It was less stressful as a result. ❤
Thank you for your videos. My father passed away today. Watching your videos before he passed away has helped me deal with knowing that he really well his final days. God bless you & Thank you.
My mom passed away today 9/13/24 from kidney and heart failure. After two weeks in the hospital and countless tests, we were told she wasn’t a candidate for heart surgery, but she couldn’t go on dialysis because of the her weak condition and her bad heart. (She actually had expressed to me verbally years ago she would never want dialysis so I don’t feel guilty about not seeking a second opinion about dialysis). We decided on hospice and luckily I found and watched you’re videos and they greatly helped me prepare for my precious mom’s passing including managing her symptoms as well as what to expect as her passing grew closer.
GOD bless you! This video came at such a time that I would have to say it was, "Heaven sent." After 26 years in healthcare, IMO, Hospice nurses are a special breed of Angels. I cannot thank you enough...THANK YOU
Thank you so much! I'm currently caring for my father on hospice. He has CHF plus kidney disease and although doctors said two months ago he may not make the transfer home he has fought to stay with us. I am hoping he passes peacefully in his sleep. One day he seems perfectly fine and the next day seems like his final day, even the hospice nurses are surprised at his fight
I have CHF, Afib… edema in my lower legs, controlled high bp…, used to weigh 485 now down to 340….been building fences in the Florida sun for 47 yrs… I’m 65 and still working. The key is keep moving your body.
Thank you for your video. When my mom was diagnosed with CHF I tried to get her palliative care doctor to explain it and she just wouldn’t.
I don’t know if she thought that by not telling me the raw facts that it was going to make it easier, but it made it actually much harder. I go back and look at your videos and get comfort that what had happened with my mom in her passing was a natural process due to CHF. It helped a lot for my own guilt Because I didn’t understand what was going on. I hope more physicians do not shy away from explaining this. Because that approach is not helpful.
You explained this so well even I understand it! Happy Hump Day Julie!
Thank you!!
You never cease to fill my heart with hope. I am not looking forward to leaving this earthly plane and can see that I have congestive heart failure symptoms, so I am super glad to see your video on CHF. Thank you Nurse Julie. I think you should get some sort of humanitarian award for not only being a hospice nurse but being a beacon of information on death and dying. Thank you,
I've been with you from the start nurse Julie. You have great presentation about such an important time in one's life.
My mom had died from CHF and now I got it. Thanks for the info.
My husband died of CHF. He had a pacemaker. Unfortunately, he declined quickly the past year of his life. I didn't have any help and I'm also the care giver of our severely autistic daughter.
I’m so sorry.
May God bless you.
I’m so sorry. 🙏
So challenging. I hope you find the strength to carry on, your daughter is blessed to have you taking care of her.
I’ve learned so much from you explaining end of life .
Thank you for all your explanations . You are very easy to understand . Thank you.
I came up on your videos shortly after my mom’s passing in Dec. 2021. She was in Hospice for 7 days. All your explanations are exactly what she went through and i can only hope & pray that when it’s my time , i go as peaceful as she did. Thank you nurse Julie . You are a gem!
Th at 72 I've been told I have congestive heart failure ... electric system is winky...the more I know the better prepared I will be
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Thanks so much. I am on hospice and love the care I receive. Your videos have helped me become even more comfortable.
Thank you so much, Julie. Your videos are very enlightening and informative, and are appreciated very much.
Excellent! Excellent! Excellent!! Thank you Nurse Julie, for helping us cope throughout some of the most difficult challenges we face in this life. Your calm, matter-of-fact manner gives me the greatest comfort and strength to face these challenges with grace & courage. It is all because of you!! God bless you and all of your good works!!🌷🌸🌺💐🙏
My grandma just got diagnosed with Diastolic Congestive Heart failure and already has constant A-Fib. She’s 86 and she said she’s ready to go, she has a DNR and my aunt put her in the hospital because she had a hernia and ended up having a full abdominal surgery to fix it, not a laparoscopy. She’s so mad and frustrated because it’s not what she wanted, she’s been screaming and crying wanting to go home. 😢 I feels so bad for her but can’t do anything because I’m not her POA.
Thank you for explaining everything. I just wish I had found you before my mom was on hospice. She only on it for three days so I couldn’t get to know her nurses. I had lots of questions but as I watch you I’m getting the answers I was looking for. Thank you for the knowledge I will definitely need in the future.
I just want to thank you for your videos. I just watched this one and it has educated me considerably. My wife has early onset Alzheimer's and I now have a better understanding and information that will be important to our GP. Thanks again.
Such an awesome info and that's what's my mom nurse explained to us today 🎉thank you nurse Julie
From Brasil, thanks for your work here. ✌️
Hospice is great. They educate the family and there so compassionate
Thanks!
Thankyou for the Truth
I have scleroderma antibodies AND lupus antibodies creating an "overlapping" rare experience. And Lord knows it is hard to remain unangered when all ailments are undeserving. "You & your videos brought me personally a joy & peace that cannot be described. Love you like family & thanks"
Thank you. I hav CHF and find great comfort in your videos.
My father is going to see a cardiologist next week but with the symptoms you just mentioned, I believe my father has CHF. He has had periodical swelling in his legs and feet and he is always short of breath. He got to a point a month ago where he couldn’t drive or even walk without help. Today he is back to normal. He doesn’t think he needs to see a cardiologist but I said to him, do it for me please. For Peace of mind! He says he doesn’t want to spend the money on the cardiologist appointment. He’s also allergic to morphine.
Nurse Julie, thank you. You are God send.
You explained the dying thingy so well.
Appreciate you.
Blessings from LA.
Thanks, Julie. You are the best. Education is key. I have a limited medical background and your videos help educate and show the human compassion.
Great video Julie!,just purchased your book,can’t wait to read it!
I wish I had seen this when my my mother was diagnosed with CHF. I never saw anyone die slowly before and didn't understand what was happening. Now I know she experienced some normal things and some not normal, treatable things while going through the process of dying. I was very busy denying her death. If I had known I might have been more of a comfort to her.
Thank you.
Luckily I survived head and neck cancer two years ago.. so why watch your videos? To help me understand that the body knows what it needs to do and when that times comes.. I will be fine.. I am not as afraid as I was. Thank you for helping me understand. 💕
My husband died of chf/copd 2 weeks ago. We are living in Belize where home hospice is not yet available. He hated the thought of going to the hospice house, so I took care of him at home. Your videos were in valuable to me to know what to expect. At the end he wanted to sit up. Do I pulled him up and propped him up with pillows. He looked at me and said If this is how I've gotta go, it sucks. A few seconds later he looked up just above my head, eyes wide, and smiled. Then he closed his eyes and just stopped breathing. Thanks for preparing me for all that!
Awww, this must have been so hard. I'm sorry for this. I sincerely hope a family member or beloved friend was waiting to bring him over to the other side and that was the reason for his smile....
Thank you again and again for speaking about hospice cases ❤ can you talk about mitochondrial diseases if you have seen that , thank you Julie again 💌
Great info. Gracias dear Julie
Great video! GOOD LUCK WITH YOUR MOVE…….and congratulations…..very excited for you….Sally
You have so much info I thank you for your insite
Hi thank you for the wonderful videos you make very informative I do appreciate your time that you make to make these videos to educate us
I am 26 recently diagnosed with CHF I had a heart catheter done
I have the left side ejection fraction of 45 and was told my heart isn't squeezing properly however I am currently taking medication and hoping that helps I no longer have symptoms of shortness of breath or lightheadedness
I also take water pill
I love the videos that you make and I do appreciate you for making them thank you for educating us. ❤
My father was diagnosed with congestive heart failure at 87 years old. He got a pacemaker put in and then at 90 years old, had a stroke. He eventually died 4 years later at 94 years old. He was an alcoholic but had a great exercise regime and ate well, from what I saw. Not sure how he developed this disease entirely. He was never put on hospice but rather lived out his last 4 years in a nursing home which he hated. The only way out was death.
Alcohol is a toxin and can cause CHF.
Thanks Julie it helps in knowing what to do in actively dieing.
Thank you Julie
Thank you young lady I got to help my wife one of my brothers and my father wonderful experiences 😇❤️😇❤️😇❤️😇
I was 42 when I went to Iraq in 04. I started to have heart issues. I think from the malaria pills and anthrax vaccines. Anyway, I’m 61 now and have had 2 scads and possibly others. Being a guy I’m told it’s very unusual. Now I’m on meds for heart failure and diabetes. I’m not diabetic or overweight. Sometimes my heart rate goes down into the 30s. A few weeks ago, during my second cataract surgery, the anesthesiologist said my heart rate went down to 26. My wife was a witness. I wonder if you have heard anything like this before. Some days I feel like I could run a marathon. Other days I get out of breath just walking across the living room. Anyway, thanks for the video!
The key to not ending up in hospice from CHF is treating high blood pressure early. Once it's gone on too long the heart grows because it's a muscle which squeezes the ventricles to the point they can't pump right. I had alarmingly high bp at 38, went on beta blockers and thank God I did. I'm 45 now. I would have been on the road to this otherwise.
Julie, could you please do a video on non small cell lung cancer that metastasized to the brain? I was diagnosed 1 year ago June 2023 and given 3 months. Had several rounds of Cyber knife radiation on the three spots in my brain, chemotherapy, another spot popped up in May this year and another cyber knife treatment. Just had another pop up August and yet another cyber knife treatment and this one has left me with a non stop headache and involuntary head movements at times and more unsteady on my feet. I have also been doing immuno therapy since completing the chemo. And I had quite a few radiation treatments on my left lung. I feel like my time is coming and need to prepare myself for what I can expect, and maybe a guestimation of time if possible. Thank you so much for your educational videos, they have really helped.
Michelle, please ask your treating physicians if you qualify for palliative or Hospice care. You should not have to suffer like that. My thoughts and prayers are with you.
Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed
Morphine with shortness of breath can actually be very helpful. I'm not terminal and that's frequently something we tried before putting me to sleep on a vent and sometimes, it works. A little morphine and bipap with a lot of steroids thrown at it has at least a 50/50 chance for me. And, I don't suffer.
Thank you for your service to us. Could you please cover dying from septic shock. TIA ✨
I went to one cardiac doctor and then another because no one believed what was going on with me I kept having severe dizziness severe shortness of breath was unable to do much of anything my feet finally turned blue fuchsia you name it they turned the kind of colors that you go oh my God am I losing my feet and yet nobody would listen to me and only did the most cursory of tests I had to advocate for myself every step of the way actually moving to a second doctor when I wasn't getting anywhere with the first! As it turns out the second doctor wasn't much better than the first and after one more test than the other doctor did he was done I wasn't but he was! I had to act like a little girl infatuated and just acting like I believed everything the doctor said but just battling my eyelashes and say but couldn't we just do one more test I know that we'll find something I know something is wrong with me! I know my body! Each time I finish with a test that showed nothing I kept saying there's something wrong I know it there is absolutely something wrong with me and eventually I would need them so much that they I finally got the doctor to give me the next test that's in line! That's how it went! I had to fight hardest for the last test I had done that was the last test that they say a cardiac doctor can do and when it was done I was in the room dressing and the technician ran towards the room that he thought I was in and he was very agitated asking the nurses where I was did I leave he's been sent to them after they asked why what's wrong does she have a stent in her heart they said no that's why she's here she's complaining that there is something wrong with her that they haven't found yet! Mind you this is the after he let me off the table and then realized he forgot to do a certain angle and that was the one that from this at least this moment saved my life! When he realized I was not in the room and they told him which room I was in I heard him, I heard the whole event happened and what he said and what they told him when he walked in the room I was not ahead of him he walked in face first thinking I was going to be face first in front of him! He turned around and saw me to his left and he said do you have a stent in your heart and I said no he said are you sure I said absolutely I'm sure I said I've been telling them something and No One Believes Me! He said have you ever had a surgery no have you ever had a stent are you positive yes I'm positive I never had a stent! Then he said to me your doctor's going to call you either tonight or tomorrow morning! I said why? He said he'll tell you then I said I have a blockage I know you don't have to pretend like you don't know and you don't have to admit it to me I know I heard you in the other room! I heard him say I have a 100 in one of my arteries if I don't have a stand there! Lickety split I had surgery scheduled and they found a 100 percent blockage, not where they thought it was, for the life of me I can't remember it's name despute talking about it more times than I can shake a atick at! Then also two other 40% bockages in the LAD artery which is where they thought the 100% blockage was. After surgery I was told I have 2 stents in my heart 2 mm long each apparently that puts me in a really bad category supposedly because of the artery it's in one that only 2 to 3% of the population has and it's not fair to autopsy! They didn't do anything with the two 40% blockages in the LAD, which drove me nuts. Tbey said because each one was only 40% it is not done until it gets to a least 70%. I was upset and said well while you were in there why couldn't you just said 40% and 40% is 80%? To myself I said, you heart surgeons act like you are Gods! When I need you to use your godly powers and fix me you act like I didn't wind up with exactly what I said was wrong with me. I felt this way because I had a week of recovery after surgery where I felt the same way as I did before surgery and the second week it was like a miracle I felt like my old self again and by the third week I was back with all of the same symptoms as when I came in. I which I wish I had never told the doctor that my second week was good because by the third week all my earlier symptoms came back to where I started from! I was exhausted from the same drama of not being believing and refused to take my word for what's going on with me! It was like you know what we didn't believe this poor woman before and she turned out to be right and she would have been dead if we didn't find that artery sooner or later, it brought me nothing it wouldn't mean no, let's give her the benefit of the doubt and go look and see there if maybe the stents have narrowed or closed, it's insane! I mean I wadn't asking for cudo's, but without acknowledgeing I was right just realize I was credibe. I had what I thougt I had. So kets take her seriously this time and go look and see if the stents are. But no, I got talked to very nastily! Third doctor hears what went on and knows I actually had a big blockage which was stented only to have symotoms return and a surgeon who won't go in and check the condition of my stents as protocol procedures say can and should be done if the quality of life the patient is experiencing is not improving and not good. Zip, Nada. So what do I do now? How do I find out what my symptoms are if they won't go in and check how do I know what to do all I know is my life stinks and I feel like I'm dying and these guys won't go in! I asked them why would you come to me and asked me if I was in hospice immediately after the surgery when I was still groggy if you didn't think that I was not in a good place with my life! All he could say was I don't mean that you need hospice I mean you need palliative care which covers the beginning and the end stages which goes into hospice so that says something to me when I'm experiencing the same symptoms and feel like I'm dying and nobody will do anything about it! The reason I'm writing you this is because maybe since you have experience with CHF you can tell me why I'm so super dizzy and why I'm gasping for air cuz you called it are Hunger I don't know what it is but all I know is that I'm super dizzy palpitations come and go they're not there all the time but they're still there and I still need to have are I'll be doing something and I need to sit down immediately or I can't get up without terrific effort and huffing and puffing! Will somebody please tell me what this is what do I do because I am at my Wit's End my own people don't have any empathy for me anymore they think I'm just being a hypochondriac! And I'm the one in the family who never took medicines and always put the doctor off because I knew that it was something temporary and now when I actually want to take the medicine and do take the medicine and do go to the doctor and try and get things taken care of all of a sudden this isn't happening and everybody thinks I'm a hypochondriac this is not a way to live a life! And just so you know seeing this movie about end of life and what people go through it did help me but more what it did was show me there was somebody out there that had seen this I've seen the symptoms and may know what to do or how I can go about finding out what is actually wrong because I'm not a surgeon and I can't take the knife and go in there and operate on myself much less make the surgeon do something he's not wanting to do my primary says I'm a series case and he just doesn't want to deal with the serious cases he's got plenty of other people that are in and out and they're fine. It sounds like it's a male like you said it was initially when you first went to see this the second guy so you need to get out and get another doctor well I did get a third doctor and I'm getting the same runaround! He promised me he was going to look if he couldn't find it by doing any scans which now he doesn't want to do and he just wants me to just go on with my life and has no explanation for why I'm the way I am! I really have lost all respect for doctors with what I I'm going through now and what I've seen is other people go through
Hello, thank you for your help.