Seeing one of the most severe symptoms in Hospice Patients
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- เผยแพร่เมื่อ 22 ก.ย. 2024
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#endoflife #hospice #activelydying
In this day and age, no one should suffer while dying😢
Be sure to go into hospice and not in the hospital!
Thank God for people like you Julie. Most people cannot cope with what you and your fellow nurses see/go through. Angels every one of you.
Amen
This was my poor mom. It luckily only lasted less than a week, and she wasn't constantly vomiting. But the last hour of her life was rough, and even after she died, there was so much pressure built up from the tumor in her intestines, that she had almost continuous purging. I never knew it was possible for something like that to happen. It was horribly traumatizing. She was thankfully unconscious during much of the last day of her life. I am forever grateful for hospice nurses. Ours was our literal superhero that night. You are all angels!!
I’ve got Crohns, NG Tubes are horrendous, bowel obstructions are incredibly painful, and constant nausea is terrible. My heart breaks thinking of hospice patients going through this, along with everything else they’re suffering from.
This happened when my dad, on hospice, had a raging UTI. He kept trying to get up and fell over and over. We finally had to palliatively sedated him. He died two days later. It was all we could do. The hospice nurses could offer no other solution than to medicate him. Instant relief for him and us. 😢
My dear mum had that ng tube in for 8 weeks as her swallowing mechanism failed completely. All she wanted was a cup of tea and she wasn't allowed anything. I wish she'd been in a hospice and cared for palliatively, not the hospital, waiting for a diagnosis that never came before she passed. She felt like she was being tortured and she suffered horribly. I'm grateful at least that she didn't have the nausea and vomiting and she is now at peace. Thank you for caring as you do Nurse Julie, you are the best of humans! x
I will remember the hospice nurses that took care of my father for the rest of my life, they were like angels for my family ❤
Such a shame. Any gut pain with any type of reaction...diarrhea, vomiting...is just so hard to deal with. You sure don't want that end-of-life.
I don’t want that during any point of my life.
It makes the Robin Williams method sound good. Not awful, just an out. The universe is compassionate and loving.
Dying or living, nobody should have to deal with this.
I'm an AFC case manager and I've shared your channel with several Caregivers in recent months who are caring for loved ones in Hospice. Your channel has been very helpful to them. Thx for providing this important information.
We got u Julie. I think we have all had patients like that. My worst (pain) patient was a young man with pancreatic cancer. He believed he was being punished for straying away from his religious upbringing and he refused all pain meds. He believed it was his redemption. It was so hard to watch yet I became protective. I was fearful someone else would trick him and give him meds so I hated to leave him. I felt if this is what he needs to believe he would be in heaven far be it from me to mess that up. I learned so much about myself through that journey and I took that lesson with me the last 15 years of my career. We love u Julie.
It's so sad to see anyone suffer... Thank God that there is some meds that can ease some of the suffering and pain....
Speaking as someone who has had one of those tubes, it is awful. Even after it is placed it is still awful.
I have had that tube as well, bloody horrible . 😢
Was it worse than vomiting? Vomiting is so violent when you’re already in the process of dying. I’d think having that relief would be worth it. I hope you’re doing better.
I had morning sickness with all five of my kids. I couldn’t imagine nausea and vomiting at the end of life. I think I could handle pain more than that. I hope there is someone to advocate for me! You’re a good nurse/woman Julie.
7.41am Brisbane Australia. I find your videos so insightful . They helped so much when my Mum was in Palative care and now my sister is very unwell. I find the information so helpful. ❤
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I'm pretty sure the universe both thanks you and blesses you. I thank and bless all the hospice workers that were unfailingly by my mother's side when she died from complications of dementia. You're series here on YT has been vastly helpful to me. Many hugs go out to you 😘😇
So sorry that you had to go through that. Your vids have been indispensable while my wife of 40 years was dying. The periods of helplessness were so brutal. Your empathy is what makes the service you provide so valuable. Thanks for the nursing you do, as well as sharing your experiences and insights
Thank you for every life you make easier and better ❤ Thank you for all the help and care you provide to those who need it so much. Praying for you and your patients🙏🫶🫂
Thank you for your heart ♥️ Your videos and insight got me through losing TWO parents this past year, both in hospice.
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I am not obviously hospice but suffer from constant nausea sometime vomiting and had 2 small intestine blockages that were repaired by major surgery. Living with this constant nausea that no medication takes away (Canada) is a terrible way to live thanks to gastroparis. Thank you Julie for this video
Julie my lovely bride passed 1 year ago this week after a long struggle with cancer..i watched you video's prior to her passing so i could take the best care i could and try to understand what was gonna happin. You were and are a blessing dear..you helped me so much. You have a special place in my heart..love you big.
I worked, as an Activities Director in a nursing home, for two years. Impactions, NG tubes, etc were common. I hated that residents were alone, at the end of their lives. I would try to stay, with them, during this time until the inevitable. I was only able to do this 4 times.
The process took a toll, on me in a lot of ways. It’s such a helpless feeling.
You have answered the call that few will.
Thank you for your kind work and the support you provide.
Thank you for all the help you've provided 💕💕
My grandma had stomach/colon(??) cancer before in her life and spoke about painful it was. She passed later in lonely isolation in hospital during covid from something else, but i think of all thr pain she must have endured and it's heartbreaking. Thank you for making these videos
I’m thinking of you. I know it’s hard. I went thru that with my husband. Keeping you and your patients in my prayers
🙏
This is what my grandma dealt with a couple months before she died combined with ascites. She had ovarian cancer, and died back in April of this year. It was rough for her.
Julie, Thank you for addressing this issue. You explain issues extremely well. The suffering is horrible.
Julie, I was a hospice chaplain 2001 to 2009 in Chicago. We only needed to medically coma only one patient during my tenure. Katy
💔 Hugs 💔 Poor people.... Glad you are there to try and help.
I have Gastroparesis and you just described the last 7 years of my life. It breaks my heart to hear that others are suffering the same way
God bless you. I am a retired trauma nurse. Used to do “car talks” to myself in the car after my shift too. ❤️🙏
Thanks, Julie. I had a nasogastric tube when I had peritonitis back in 2015. I was delirious most of the time and I kept pulling it out. It wasn't comfortable, to be sure, but it wasn't agonizing. Still, I was so glad when it was finally taken out.
What a nightmare! I HATE being nauseous! I would beg to be put to sleep! I feel so bad for these poor people!😭
God bless you Julie, you're a tough one of the stuff you go through, but thank you for being so informative, things would have been better if you could have been there for us, I'm in Georgia it's a long ways off
Marijuana MJ (emjay)is commonly used with dying patients to curb nausea. It really helps!
Thank you for providing such extensive details. Your videos are so helpful and I am using the knowledge I gain to provide exact instructions for my end of life care whenever that may occur.
So sorry 😢
There are many angels on earth whose chosen profession is to care for others in some way but hospice nurses are the cream of the crop. They help the patient to be comfortable and feel cared for and they help the families who feel so helpless at that important time in their and their family member’s life. I’m a caregiver to my parents who are both in their late 80’s and I know hospice care is in our near future. I hope and pray we get a nurse as caring and knowledgeable as nurse Julie. ❤
Big Hugs, Love & Comfort to You Julie 😘🫂
Julie stop suffering you do your best
❤❤❤❤Bless you
Thank you for your honesty and good care.
You are the best hospice nurse. Best person. U feel the pain of the person suffering. I’m sorry. ❤
My mother died from colon/ovarian cancer ..she was placed in an induced coma ..thank God ..
I've had a broken nose twice, it's no fun, and no one will touch my nose again.
What a tough job...... You are awesome.....
That would be my biggest nightmare. What a horrible end of life :(
It really sucks to see pt.s go through that. I hate to see someone suffer and it sucks going through the process of seeing what will work 😭
You are just such a wonderful hospice nurse!!!!
Thank you Julie. That was so helpful and very well explained. Night hospice nurse here.
Another gem. Thank you, Julie
Thank You 🙏
Wow Julie you see so much and I’m sure you have some awful days because you care so much ❤ Blessings to you.
I have stage 4 ovarian / peritoneal cancer. my cancer grew around my colon and when they removed the tumor I lost part of my colon and I have a colostomy I worry so much about what the end of my life will be with a colostomy
It sounds brutal.
Decades ago, a doctor told us to get weed to treat this. It worked beautifully. Get what’s called a “pinch hitter” that’s all it takes. This works for nausea from cancer when nothing else will.
Just an FYI. 💙
You sure are convincing me of MAID before I get to that stage!
My sis used that a year ago even though in hospice. Crohns disease and malnutrition. So sad
Thank you for sharing this. My Mom had to go thru the nausea and vomiting. We had to go the path of palliative care. I always wondered if we did everything right. This video gave me peace ❤
I live with gastroparesis and ulcerative colitis many other issues along with those nausea by far is the worst symptom even worse than pain in my opinion it should be considered pain I am lucky to have a surgical feeding tube I can drain from to sometimes stop the nausea or calm it down but I'm so scared to go out like that I would be begging to be asleep I think 😢 an ng tube is absolutely horrible it's so painful
Thank you
Sometimes there's nothing you can do sweetie ! X
Ugh, my mom on hospice has a tumor on her transverse colon
Super important.❤
As one of my favorite Drs pointed out, a mechanical problem will not be fixed without a mechanical solution. Things like SBOs, or large sediment clumps/clots that break off in the bladder & clog even large bore foleys, or near constant seizures due to brain tumors, etc will continue to cause intractable symptoms until we are able to mechanically remove the blockage (not always possible) or we palliatively sedate so the pt at least doesn't have to feel it. Sometimes we can remove the mechanical problem like in the case of severe constipation/impaction, or urinary retention that needs a foley catheter but sometimes we just don't have the tools in our toolkits to do it.
We should have the right to end our life if this happens no matter where you live! No one should be able to tell us what we can or cannot do!!!
@elainplowman9621
I agree 100% I live in Induana and I support "Death with Dignity ". I have had my stomach removed from a botched bariatric surgery. Gallbladder removed, it made me feel like I was having a heart attack. I have 5 different types of arthritis, fybro, RSD, neuropathy and I had a pain pump installed that had Fentanyl in it for years, I was named out on the doseage. I switched to Hydtomorphone. It seems to be doing better. I'm 66 yrs old. And for more years then I care to count , every night I pray. PLEASE GOD JUST DONT LET ME WAKE UP INBTHE MORNING! It's not just because of my health, it because I have lost all my family over this. My husband of 35yrs divorced Mr because he didn't want to take care if me. Which my youngest daughter fuled and told everyone I was addicted to drugs. I lost all 3 if my kids and 7 grandkids that I basically raised. So you see, I have nothing or jo one to live for. I wish I had the guts just to pop a handful of pills and chase it with Tequila or a good stong MARGARITAS! But I know that would be wrong. If Induana ever passes the " D.W.D." law. I'll be first in line , demanding my rights be given to me. This is a horrible world we live in. I can't imagine bringing a precious baby into it and have to deal with all the evil there is.
I have vaginal cancer also in lymph glands, during radiation n chemo , i was so sick vomiting,diarrhea non stop during treatment,i had to go to the e.r. twice it just wouldnt stop, i started vomiting diarrhea out of my mouth and nose, wretching, now i get pancreatitis ~ been admitted 2x n once it starts it wont stop ,i think its goin to stop, not til i go to the e.r. ,its so horrible i pray to die, now ive got blood clots,aneurysms,vaginal necrosis all my bones hurt, the vomiting n wretching are so bad when it happens, one super smart nurse thought she was funny by imitating me behind the curtain in the e.r. my young son saw her making fun of his mother, still gets him upset .
That nurse wasn't smart, except smart ass maybe. Or just a garden variety ass. .
Had one for 9 days. Developed a sore throat from abrasion.
Oh my...I had a small bowl obstruction last year and it was horrid! I has been throwing up for 3 days before I went to hospital. Another 3 days of throwing up every 30 minutes until they placed a NG tube and that sucker hurt so bad that it was reflex that I fought them. Got a bloody nose out of it in the process and it was very uncomfortable but it relieved the throwing up. I wasn't hungry at all but I was severely thirsty. They would let me have a glass of water to quench my thirst but it was immediately sucked out of the tube and had to be emptied. Another 4 days like that, then surgery to remove the blockage. It was a horrid horrid experience and I wouldn't wish that on anyone! It totally exhausts your body.
I'm now 36 but have had gi issues that started at 17 from a bad gallbladder. I then become very sick at 20. Every thing has gone downhill since then. I got my gallbladder removed at 23. Unfortunately, that didn't fix much besides the constant severe nausea and vomiting up LOTS of bile. I seriously thought i was going to die. After surgery, i developed BAM that causes me to gain weight, and I'm still not able to absorb vitamins properly, still have GERD, and still have Bile Reflux gastritis. I would like surgery to help me because I've suffered a lot over the years. I have symptoms daily but i know there's possible consequences to surgeries too. No doctor's have ever offered any other surgeries. I'm terrified of getting stomach cancer. I've suffered enough i don't want to die suffering even more. I think I'd gladly take the sedation if i was in that situation. I despise nausea and vomiting. I also had severe morning sickness for 5 months when i was pregnant. No thank you not when I'm leaving this earth.
Robin Williams had it right, there's absolutely no reason to share your death drama with loved ones.
Angel on earth !!
Why cant u leave them in a coma so they dont know they are in pain? Especially since they are dying😢
ITS tough
Very sad😢
Thank you Julie. Does the meds have to be in liquid form or can they be inserted when you only have the pill form?
Why can't surgery remove the obstruction(s)? Also, if someone is constantly vomiting, couldn't they asperate the vomit which could be acidic and bad for their lungs?
I have cyclic vomiting syndrome . Its a terrible condition. I have irretractable nausea and vomiting for 7 days every month. Its terrible. I cant imagine my whole life veing this. Its horrible.
I'm so sorry 💕💕💕💕
I can put my dog down if it is suffering, but god forbid, it's murder if I ask to be put down if I am suffering and will not live.
If a person, or their family, agrees to sedation as treatment for nausea, I am not convinced that they understand if it is temporary or permanent. How do you explain to them?
Hi Julie, can IV meds be given in this condition?
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please tell me what pallitive sedation is
Google it and look it up yourself!
🙏🙏🙏🙏❤️❤️
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God has a mother?
Did you have a mother?
That's all you could think to comment from watching this informative, educational video!?? Go troll somewhere else, toad. 😟😠😠
Nope.
@@cabot100God is not created. He is the Creator.
Jesus was God born of Mary so Mary is called mother of God. It’s a Catholic tradition.
Thank you Julie. 🫂
Are you seeing a therapist just for you to let out what you are feeling? It has to be taxing on your mental health.
I am 💕💕
@@hospicenursejulie I'm happy you are taking care of you😻😻.