My Cancer Story - How I was diagnosed (Hodgkin’s Lymphoma)
ฝัง
- เผยแพร่เมื่อ 2 พ.ค. 2018
- Resulting from many people advicing me to a video sharing my cancer journey, here I am.
In this video, you'll learn about the symptoms I had and the entire process in the hospital.
I apologize for my broken english and for rambling, I do not intend my future videos to be as long as this one - this is all new to me.
In a future video, I will be doing a Q & A about everything related to my cancer journey, that many have been questioning me about.
If you have any questions / curiosities to ask me, please do comment on this video or contact me on Instagram.
MY INSTAGRAM - @ella.guerreiro
Thank you so much for taking the time to watch it.
Ella x
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Glad to know that you're in remission😊. Please don't apologize for not posting an update. Take your time and prioritize your health. May you stay happy and healthy for many years to come. ❤️
Russell of CA-USA here. Thank you for sharing your experience. Because I have a lump on my tongue, and I am at the beginning of my search for answers regarding the consequences of this troubling potential disease, I find it comforting to learn how you coped with your tests, pain, Doctors behavior and etc. Also, regarding your command of English, please, please be assured that your dialogue is moving and well understood, in my opinion. Particularly your grammar , pronunciation, vocabulary and ability to stay focused is awesome. English is my first language and my performance would be shameful by comparison. I hope your mother is well, because she worries about you as only a mother can. I hope your treatments continue to be successful and time will relieve the stress of this life experience. May your good health be the gift of the season, Xmas that is. Beautiful name by the way.
I have been in remission for almost 7 years and lately I been having a gut feeling that something might be wrong with me. Before being diagnosed I didn’t have symptoms... I hope you are doing better .
May God continues to bless you Rafaela.
The courage you show in dealing with your problem. and also sharing it to help others, is just exemplary. I have much respect for you. I do hope your therapy is successful. I'm still on 'watch and wait' for what my specialist (incorrectly?) terms MGUS. (I suggest incorrectly becuase I've had many symptoms, though relatively mild but MGUS is by definition meant to be symptom-free). Good luck!
Best wishes to you, Ella. I've been fighting Hodgkin's for six years and I'm in remission after the BEAM chemo with stem cell transplant. I had ABVD in 2015. I know how rough it is, and many aspects of your story mirror mine. Hope you're doing okay!
Prayers in Jesus name amen
I had many of the same symptoms as you. I was diagnosed May 31st and will have my 8th round of abvd this Saturday. Hope you're doing well. Your English was great by the way!
Rachael Bonner Hi Rachael. Thank you for commenting. I wish you all the best!!! Do not hesitate to contact me if you need someone to talk about it. ❤️ Big love!!! x
Thanks for sharing all this information what you have and are going through. I was looking on here to see if anyone was going through the symptoms I am and found your video. I have fibromyalgia already but I found a knot on my neck like you had and the itching started happening then the night drenching sweats and chronic fatigue. I lost my job because of my fibromyalgia 2 months ago and I need to see my doctor but I'm waiting on my Medicaid card. Thanks again for sharing. I'm praying for you. God bless!
Hello. Thank you so much for watching my video. I am glad it could help. How are you doing?. I'm officially in remission now, thank you. Have you seen your doctor already? I hope everything goes well for you, please keep me updated. I am sorry to hear about your job. Know that you can get through this. All the best for you, much love xoxo
Thank you for sharing your journey. Having same symptoms as you. Your English is very good you did great. You are so likeable, and wish you the best. From USA.
❤️ thank you for this! Wishing you well ❤️
God bless you for sharing. I just sent a prayer.
Your English is very good! Hope you are doing well now! Blessings to you!
I've been feeling the way you described in the beginning for about two or three years now(my dad even said I'm out of shape because I couldn't last mowing the grass on a hot day for 5 minutes). It's why I'm getting checked out. I messed up my school grades last year due to this exhaustion...the exhaustion really was bad since it was sooooo hot. Was panting just walking to class.....(but it was hot...)I also, last year, was chasing a cousin's dog in the back yard and couldn't catch my breath, which never happened before that day...I always enjoy chasing pets. Had my labs come back about three days ago saying my hemoglobin is low, my mom thinks it could be an iron deficiency and I hope it is...I also have a cough but it's just annoyingly a ticklish cough but it's lasted maybe five years straight and comes and goes(it sounds like a wet cough).
btw the english word you were looking for was fasting. A lymph node is the same thing as a lump btw English has like 5 words for the same thing lol. I am not 100% sure but I think a tube from the cartheter goes up to your neck (maybe around where the swollen node is/was/is about to be gone) you can ask about it tho(it might be why you have that other scar).
Your English is better than mine and I was born and living in Canada...
By the way your English was great
Tiffany Elliott thank you Tiffant!!! I wish you the very best!!! Keep going, smile and try to always stay positive!!! Do allow yourself to have bad days, but not for too long. Love xo
Hello
I hope this finds you well now 😊
Excellent video very informative. I understood very clearly ❤.
Thank you for sharing
I'm in remission too.....it's been two years and I feel like my old self again. Sending you a big hug and I know you'll be back to you old self too.
Nelia Eppcoo Hi Nelia. I am so glad to hear that you’ve been in remission for two years and are doing well, that’s fantastic.
Let me ask you something - did you have a hard time when you started your remission? Like, extra amount of fear, ptsd...?
Rafaela Guerreiro yes I was in constant fear of relapse and thought about it daily but as I started healing and my visits to the a Doctor became positive the fear started to subside and now I hardly think about only when check up appointments come up. I think we will always have it in the back of our minds. Has your hair started to grow back? I looked in the mirror every single day after my last chemo for any sign of hair 😆
Nelia Eppcoo Thanks for sharing. For a while I thought that it wasn’t normal for me to feel this way, but I’ve been reading about it and it’s totally normal, I just hope it goes away soon. It’s exhausting.
Yes. My hair is growing back now, still very short of course hehe. How long was your hair after a year, for example?
Rafaela Guerreiro after a year of hair growth it looked like a cool short hair cut. You’re beautiful I bet you look great in short hair. Stay well, start planning your future 😃
Nelia Eppcoo Thank you, Neila. You too xoxo
I had a lymph node biopsy 5 years ago. Negative. But I've recently got much worse, non stop night sweats and itching all over body, literally top of head to toes. Constant nerve pain and frequent infections. Painless swollen lymph nodes (and itchy) all over body. Tired, weak, fatigue. So I'll most likely need another biopsy soon. Praying in Jesus Christ's Name that its lymphoma, so I can finally get treatment and be done with this! Its maddening to not have a diagnosis after 6 years. Thx for ur video!! God bless you
Hi Dan!! Please do visit your doctor and request for blood tests and a st scan!! If you feel something is not right, do not give up until you get a proper diagnosis! Do pay that visit to the doctor! Let me know how it goes. Wish you all the best xoxo Ella
how are you Dan?
Been through it. Please get well.
The “echo” test you’re referring to is called an ultrasound. Glad you’re doing better!
Erika Macaw ah, thank you very much!!
The 'echo' is the Ultrasound for the heart. It is specific to the heart
Hope you are doing well! I'm battling leukemia right now can't wait to beat it and help others with cancer as well.
Hi!! how are you doing??
@@RafaelaArtist Hey I'm doing great so far! Had a bone marrow transplant 8 days ago. I will be in the hospital for another few weeks and follow up clinic visits frequently for 3 months.
Blockchain Hii! How are you doing at the moment? Hope everything’s okay xx
Praying for healing. Hope you are doing well.
Sidney Abernathy Thank you so much. I’ve finished chemo in June and have been in remission since then. Hopefully forever! Much love xx
That is awesome! I will continue to pray for remission to continue!!!
You are welcome. I will pray it stays in remission. When is your next check-up?
Sidney Abernathy thank you so much for your kind and positive thoughts. It’s next Tuesday
@@RafaelaArtist is that when you receive the results? You are more than welcome and I will keep praying for you.
Good luck and best wishes to all the other people who have shared their own stories in reply
I hope you are doing better. Please update us on your journey. My prayers are with you.
Hello. Thank you so much for watching and asking how I'm doing. I'm officially in remission now, had my last chemo session in June. I am doing very well, tyring to get back on my feet. I am currently having the normal routine appointments at the hospital to check if everything's okay. My immune system is still not too strong, it's going to take a little bit of time for my body to recover from chemo, but I am already feeling a bit stronger. I need to be cautious during the first year after chemo - I am not allowed to be in the sun, go to the beach or pools, I can't have alcohol and need to be very careful with my skin, to avoid any infections. I was advised to start exercising, so I've just got a membership at a gym where I intend to start doing yoga, boxing and pilates, to start with. My doctor told me that it's good for me to start having a more active lifestyle, not only for now, but for the rest of my life - it is only be beneficial for any of us anyway, right? So, now I am currently back at work, hoping that I will remain in remission for a very long time and free from cancer in the future. I will take a good care of myself. I am not very good at doing videos, so I apologise for not posting anything else after this video, but I normally do update more on my instagram account. Thanks again for caring, wish you a lovely day. Ella xoxo
@@RafaelaArtist I am glad you won. I wonder if the Acai berry can wipe out Hodgkin Lymphoma like it does with Leukemia?
Thnku for the information
Thank you for your story-I know it’s many years after your original post, and I’m hoping you are recovered. I am a US senior citizen, our medical system is always held up as better than anywhere else , particularly those social / nationalized systems as in Europe… I can tell you, if you are in the workforce and fully covered by your employers insurance, you MAY be ok- still not guaranteed… but if you are retired and on Medicare, it is WORSE than any European socialized medical system. Don’t believe the hype that American medical system is the best I. The world- it may be if you are one of the 1% - other than that, you are toast
That implant in your arm is called Next clan on and I had the same thing it made me super sick and my period Lasted for 6 months never stopping. In the long run it made me anemic.
I hope you are well
Your English is much better than my Portuguese 😉
I love your accent get well soon sweetheart
Jojo Cmh thank you so much xoxo
By the way, progression of my monoclonal gammopathy has halted since I started taking 8 grammes of curcumin with piperine and vegetable oil per day. I know it's not medically approved as yet, but it's non-toxic and seems to be helping me. I know there's a lot of research being done with it at present, though the big pharmaceutical companies will only be interested if they can synthesize it or process it and patent that so they can make money.
Subscriber #198 💜 from Kentucky
Blurryface & my HeavyDirtySoul thank you :)
I'm worrying that I have myeloma. One of my test said laboratory diagnosis Mm.
Hi there hope your well now in 2020. Being sick sucks. Hope your better from your illnes my old teacher died feel years ago from thos kind of illnes ☹ i cried alot that night the night my mom told me the heartbreaking news ☹ and i still really miss her on this day. Her life was taken by her illnes 😢 I'm sure she did her chemo but didn't work sadly she died at the age of 60 ☹
Hope you are doing well. I hope you can update soon.
Hi . Thank you so much. I will try to update very soon x
In the name of Jesus, be healed. Any cancer and pain go and don't come back in Jesus name
Beautiful prayers thank you
Meolah Resseh please pray for me as well
Thank you so much for sharing your story. You are so strong and so beautiful. I pray your in great health now in Jesus name idk I'm trying not to be afraid but its hard. Thank you for this seriously.
Amen!! God bless
Yo soy survivor de lymphoma Hodgkin's 2014 ami nunca seme callo el pelo mientras cojia las quimo nunca bomite nada de efectos secundarios medieron 12 round y gracias a Dios termine todo en Oct 7 2014 si nesesita anguna ayulla o pregunta me dejas saber vendici9nes para ti
Que sintomas tenian antes de que te diagnosticaran?
❤️❤️❤️🙏🙏🙏
Big huge darling !!! Hope you doing ok 👍🏼 please give us some news !!!! And Whenever it is possible, do QA !!?? That would be very interesting !!!! 😘😘❤️
OVERDRESSED GIRL Thank you so much ❤️ maybe I will. Would you have any questions for the Q&A? :)
My niece is in stage 4 a 17 years old 🥺😢 . It is very sad because he wants to live like a normal and going to school. And now he looks like he’s ending of he’s life. Life is really unfair 💔😢😢 . This coming Saturday he’s 18th birthday.
Madiline Bolodo Hi Madiline. I am so sorry for my late reply! Do let your nephew know that if he has any questions, anything he’d like to talk about, he can contact me. Also let him know that he will be stronger that the Lymphoma!!! He just gotta fight through it with a positive heart and mind. As hard as it is, positivity is key and everything will turn out well. Sending you my love ❤️
How are you now? 2019
Hope you're doing well now. X
Thank you so much, I am doing much better, officially in remission. Have a good day xo
How are you now?
Deus com você sempre🙏 don’t worry honey my accent is terrible too 🤦♀️😬😘
Muito obrigada!!!
Does anyone know how she is doing 😊
Hi! i am doing well today :) in remission , I am a professional Wedding photographer and I now have got a nearly 1 year old baby :) Thank you for asking xxx
I'm sorry hope you feel better. How you feeling in 2019? I lost my EA teacher to liver cancer in 2017 ☹ I lost my best friend 😢☹💔 I always need a hug when I'm depressed like this
PET scan, CT scan or MRI
I hope you are well no date update please post an update god bless you
Hi! i am doing well today :) in remission , I am a professional Wedding photographer and I now have got a nearly 1 year old baby :) Thank you for asking xxx
@@RafaelaArtist glad to hear to you are healthy
@@RafaelaArtistcongratulations 👍🏻👍🏻
How are you doing now sweetheart? Thanks for sharing your story.
Hello. Thank you so much for watching and asking how I'm doing. I'm officially in remission now, had my last chemo session in June. I am doing very well, tyring to get back on my feet. I am currently having the normal routine appointments at the hospital to check if everything's okay. My immune system is still not too strong, it's going to take a little bit of time for my body to recover from chemo, but I am already feeling a bit stronger. I need to be cautious during the first year after chemo - I am not allowed to be in the sun, go to the beach or pools, I can't have alcohol and need to be very careful with my skin, to avoid any infections. I was advised to start exercising, so I've just got a membership at a gym where I intend to start doing yoga, boxing and pilates, to start with. My doctor told me that it's good for me to start having a more active lifestyle, not only for now, but for the rest of my life - it is only be beneficial for any of us anyway, right? So, now I am currently back at work, hoping that I will remain in remission for a very long time and free from cancer in the future. I will take a good care of myself. I am not very good at doing videos, so I apologise for not posting anything else after this video, but I normally do update more on my instagram account. Thanks again for caring, wish you a lovely day. Ella xoxo
Good to hear you're doing well. :)
Rafaela my English not good . I am sorry. Allah give you relif . I pray ok . Please reply
You so butiful . Allah all cure. Ok reply
@@urduschoolpurna Thanks for your concern.(Im non-religious). I am well at present.. stilll very earlly stage 'watch and wait' myself, so all is good..
You are beautiful
s safari Thank you :)
You're beautiful
ella can you update your instagram when i look for your account it says not found
Jen R hello Jen! Yes of course, it’s ella.guerreiro thank you for reminding me x
How are you now
Google 🤦♀️
Seu nome parece brasileiro.
Juliana Holanda sou portuguesa:)
You are beautiful
Thank you so much xo