ITCHY Skin to Lymphoma! - Miranda | Hodgkin’s Lymphoma | The Patient Story

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  • เผยแพร่เมื่อ 22 พ.ค. 2024
  • Miranda had rashes all over her body and horribly itchy legs. The doctors had no idea what was going on because Miranda’s blood tests kept coming back normal. Eventually, a lump arose in her neck, and it caused excruciating neck pain. Miranda decided to go get the lump checked out, and after a series of tests, Miranda was diagnosed with Stage 2 Hodgkin’s Lymphoma.
    In this cancer vlog, Miranda opens up about her chemotherapy side effects, dealing with hair loss, and the grief that comes with remission.
    #cancerstories #cancerpatient #cancersurvivor #patientstories #thepatientstory #hodgkinslymphoma #lymsm #hairloss #survivorship #chemotherapysideeffects
    The Patient Story:
    The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
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    Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
    [Video Chapters]
    00:00 Introduction
    00:19 My first symptoms
    02:03 They had no idea what it was!
    02:50 The testing I got to figure out my diagnosis
    03:50 Finding out I had Hodgkin’s lymphoma
    04:25 ABVD chemotherapy
    05:10 The side effects of chemotherapy
    05:32 I had a one on one nursing mindset coach
    06:52 The hair loss was very challenging
    07:55 Dealing with survivorship guilt
    08:38 I did mental health therapy
    09:20 The difficulty of remission
    09:37 What has helped me get through my diagnosis
    10:41 My biggest advice
    Join Our Community:
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    The interview has only been edited for clarity. The interview has only been edited for clarity.
    I had ITCHY LEGS! - Miranda | Hodgkin’s Lymphoma | The Patient Story
    • ITCHY Skin to Lymphoma...

ความคิดเห็น • 84

  • @MrsMomma615
    @MrsMomma615 16 วันที่ผ่านมา +39

    When she said her therapist passed from cancer during her period in therapy, my heart just broke. Bless her & that sweet therapist who wanted to continue helping others until their last moments. What a testimony ❤

  • @mariealvarez2289
    @mariealvarez2289 4 วันที่ผ่านมา +5

    Thanks for sharing ur story it’s so touching. My Sister is a cancer survivor🙏 she had non-Hoskin lymphoma she went through chemo radiation and other trial treatments till they finally told her she needed a bone marrow transplant or she only had four months to live, which I was blessed to be her donor. They test us siblings first and I was the only one that was her match and I feel so blessed that I was able to, help her🙏it’s going in 8 yrs and she’s still cancer free thank God 🙏❤️I’m so glad u are a survivor🙏❤️

  • @TheLuminousOne
    @TheLuminousOne 17 วันที่ผ่านมา +33

    itchy arms and legs is a powerful give away for this type
    of cancer, thanks for sharing

    • @VandaPietrantonio
      @VandaPietrantonio 17 วันที่ผ่านมา +3

      ITCHNESS IS NOT A COMMON SIGN FOR THIS.

    • @susanmonty791
      @susanmonty791 16 วันที่ผ่านมา +4

      Yes it is along with night sweats

    • @nathalieforest8497
      @nathalieforest8497 16 วันที่ผ่านมา +4

      ​​@@susanmonty791 No it can be any type of cancer or more likely auto immune condition

    • @schoomzer
      @schoomzer 16 วันที่ผ่านมา

      @@nathalieforest8497 or kidney disease, allergic reactions, etc

    • @solangelalebron1348
      @solangelalebron1348 16 วันที่ผ่านมา

      Those pictures she showed definitely didn't look like eczema or rashes. These people are in denial. They think that if they don't go to the hospital it's not going to confirm the disease. But they are still slowly dying. Lying to yourself is the Antichrist spirit.

  • @jtv848
    @jtv848 3 วันที่ผ่านมา +2

    I really appreciate all who share tneir exprrience as it helps us recognize red flags that need urgent attention. I pray for your full recovery ❤

  • @abouttime5000
    @abouttime5000 16 วันที่ผ่านมา +14

    Chemicals in the environment. Everywhere.

  • @barbieknight6761
    @barbieknight6761 17 วันที่ผ่านมา +21

    What a beautiful human, inside and out.

  • @davidhills2557
    @davidhills2557 16 วันที่ผ่านมา +21

    Stage 2 Hodgkins survivor here, too! Glad you’re doing well!!!

    • @tangho
      @tangho 16 วันที่ผ่านมา +3

      I am also stage 2 survivor of HL

  • @shirleyscott8879
    @shirleyscott8879 15 วันที่ผ่านมา +7

    Oh wow. Almost everything you said was true for me too. I’m in remission from breast cancer. (2 surgeries, chemo, 30 radiation treatments, 5 years of Letrozole) I didn’t colour my hair again after it grow back except for highlights once after6 years. Now I’m 10 years out from my main treatments. The feeling I got when I realized that there would always be someone to take my place in treatment was devastating. Many people I have known who had cancer when I did and after, have now passed. What got me through it all was my daughters and Jesus. I had many prayers answered during my treatment and after. I thank God every day for both the good and the bad of every day living.

  • @preese100
    @preese100 17 วันที่ผ่านมา +29

    These stories are very encouraging for your audience. Thanks for sharing!

    • @gaylaaucoin9075
      @gaylaaucoin9075 4 วันที่ผ่านมา +1

      Always ask for blood platelet test to rule out cancer or find out. Cancer. they were running mine all the time, but I didn’t have cancer. My husband had it.he died from multiple lymphoma cancer it’s a cancer 🥲🛐🕊️🌈🦋🌈💖🕊️💙

  • @sallymccoy6286
    @sallymccoy6286 17 วันที่ผ่านมา +19

    I hope your remission remains and your health improves. You are one strong and brave lady.

  • @fernemcallister6774
    @fernemcallister6774 12 วันที่ผ่านมา +12

    I wish The patient story” would do follow-ups

    • @jtv848
      @jtv848 3 วันที่ผ่านมา

      Yes

  • @onumaytuu
    @onumaytuu 17 วันที่ผ่านมา +14

    Miranda is very intuitive . She was able to figure out a great deal of what she was going through , getting in touch with feelings and honestly and openly talking about her feelings. .👍

  • @kimberlywilson9701
    @kimberlywilson9701 17 วันที่ผ่านมา +15

    I pray for your complete recovery. You're very strong. God bless you ❤

  • @maudeboggins9834
    @maudeboggins9834 17 วันที่ผ่านมา +13

    Ma'am you certainly have been through a lot. You are so brave & empathic with lots of wisdom. I wish you well & enjoy many years in front of you. Bless you.

  • @CBD0000
    @CBD0000 16 วันที่ผ่านมา +6

    Your story really touched me. I lost both of my parents to cancer, Pancreatic and Lymphoma. I have a lot of conditions and feel I won't be surprised if I end up with cancer also. Whenever I'm going through a phase of itchy skin or an enlarged lymph node I watch it closely. So far so good. Sending you and your lovely family positive vibes for a beautiful future.

  • @emmainjapan
    @emmainjapan 17 วันที่ผ่านมา +12

    Very well told. Wishing you all the best.

  • @tangho
    @tangho 16 วันที่ผ่านมา +4

    Itchy skin was one of my symptoms for sure. They’ve actually become dark pigmented spots now. Everything she said, I thought mine was from the Lulu
    Tights I wore. And I was drinking more recreationally that year leading up to it

  • @janetc8560
    @janetc8560 17 วันที่ผ่านมา +8

    Sending love and positivity from Manchester UK ❤

  • @Beloved.daughter
    @Beloved.daughter 16 วันที่ผ่านมา +6

    Love you Miranda. You are a blessing to many ❤️ You told your story beautifully!

  • @VandaPietrantonio
    @VandaPietrantonio 17 วันที่ผ่านมา +5

    Remission is just that. I was diagnosed with NHL in DEC 2018. My NHL is in remission but not curable. I did not feel guilty I felt blessed because many were way worse than me

  • @roxananunez4238
    @roxananunez4238 16 วันที่ผ่านมา +5

    You are so strong and beautiful ❤❤😪

  • @splash6427
    @splash6427 17 วันที่ผ่านมา +5

    🙏 ❤️ 🙏
    For You
    Always & Forever

  • @karnaxiom1635
    @karnaxiom1635 4 วันที่ผ่านมา

    I’m so glad you’re doing well. I’m from Pa. as well. I’m 5 yrs cancer free in Oct. My treatment was at Fox Chase. It’s a journey that we had no choice but to take and our lives will never be the same. I thank God every morning for my life and my family…we truly do look at life through a new lens. Bless you sweet girl and I pray for your continued good health.♥️

  • @4BarbaraJ
    @4BarbaraJ 16 วันที่ผ่านมา +5

    Thank you for sharing your journey. You did a beautiful job explaining everything and walking us through the timeline. Wish you and your family the absolute best!

  • @kimberlyjeanpierre7540
    @kimberlyjeanpierre7540 16 วันที่ผ่านมา +5

    what a beautiful soul 💖

  • @Ceerads
    @Ceerads 11 วันที่ผ่านมา +2

    I’m a long-time survivor of breast cancer. I don’t really understand survivor’s guilt. My surviving has nothing to do with anyone else’s survival or dying of their cancer. It’s not as if there’s a finite amount of people who can survive, and if I survive someone else won’t. And one’s loved ones and medical team WANT us to survive, so there’s no need for guilt. We’ve done nothing wrong. There are plenty of reasons for me to feel guilty about, but my still being here isn’t one of them. I hope you’ve stopped feeling guilty. And many people don’t ever get a cancer. Should they feel guilty that they haven’t gotten cancer?

  • @GPHealthandWellbeing
    @GPHealthandWellbeing 2 วันที่ผ่านมา

    Thanks for sharing your heartwarming story. It's really encouraging❤❤

  • @cancersupportcommunitygrea6090
    @cancersupportcommunitygrea6090 8 วันที่ผ่านมา

    ❤ We are so proud of you, Miranda!

  • @elizabethorsillo7187
    @elizabethorsillo7187 14 วันที่ผ่านมา +1

    Thanks for sharing your story. I’m a 30-year HL survivor here!

  • @MH-hw4uh
    @MH-hw4uh 15 วันที่ผ่านมา +1

    All the best to you🎉

  • @BOOShawny
    @BOOShawny 2 วันที่ผ่านมา

    I’m been coming across a lot of these videos. My heart goes out to everyone. But i will say, this is an amazing thing to post your symptoms and stories on youtube. You guys could save somebody who has similar symptoms and isn’t getting the proper help from DR’s to find a diagnosis.
    I have had 2 swollen lymph nodes removed from my neck about 8 years, have dealt with itchy skin on and off for many years, and developed a horrible alcohol intolerance within the last few years. Now i’m wondering if i should get check out for this

  • @ritagoforth2317
    @ritagoforth2317 12 วันที่ผ่านมา

    Such a beautiful person!! Thankyou for sharing.❤❤😊😊😊

  • @arthurleavy6391
    @arthurleavy6391 16 วันที่ผ่านมา +1

    You are a wonderful human being. All the best to you. I will pray for your continued healing........Tammy

  • @Bonnie20Michael
    @Bonnie20Michael 4 วันที่ผ่านมา +2

    By any chance did you get any of the jabs? So many people have come down with cancer.

  • @heide-raquelfuss5580
    @heide-raquelfuss5580 4 วันที่ผ่านมา +2

    I had itchyness>
    Legs, arms, trunk.
    Swollen feet, anckless with red, brown, purple skin, like bumping on something.
    The pain was horrific in my feet, anckles, hands, lower legs.
    Red dots in my lower legs, feet.
    Sweating horrible at night, soaking wet all sheets, cushion.
    Smelled like a decomposing dead body!
    Swollen gums+ receiding gums.
    Could not stand of the pain.
    Just the pain...horrific.
    Itchiness horrible.
    Acute leucemia/hodgkin- nonh.
    Swollen glands, organs.
    Did not want therapy.
    I thought...i was finished anyway and the therapy i did not want for many reasons.
    Went home and cured myself.
    Developed infections after infections, cold sores after coldsores constantly, lost my voice, a red purple big spot in my mouth.
    Strange red/purple warts started to grow on my lower legs
    Skin necrosis.
    This was in 2007.
    Still alive.
    It was a long way of recovering.
    Had a little son.
    I will never ever forget how horrible my yourney was and how much pain, anxiety you can feel.
    I hope you stay strong lady.

  • @mac-ju5ot
    @mac-ju5ot 16 วันที่ผ่านมา +8

    I had a MRI two years ago nothing was found by the er intern. I had covid and pneumonia this year made certain I switched me Drs because I fainted twice . They found a AVM condition .by the best Neuro Dr He was very kind said my condition could be fatal .I get to go into mass general for more test in july.im.trying to remain calm

    • @JCcreates927
      @JCcreates927 9 วันที่ผ่านมา

      My hubby had an AVM in his brain (they can be anywhere in your body). He had surgery 28 yrs ago and he's doing fine. Just know yourself and if you have symptoms get help for them. My hubby also waited a few months for surgery he found out right before Thanksgiving and had his surgery in January.

  • @susiebilk9905
    @susiebilk9905 17 วันที่ผ่านมา +1

    ❤❤❤

  • @YaYaPaBla
    @YaYaPaBla วันที่ผ่านมา

    You are beautiful through tall the changes. I thought your dark curly hair really looked good.

  • @stacycamacho59
    @stacycamacho59 5 วันที่ผ่านมา

    My friend's daughter only was 12 when she was diagnosed with Hodgkin's.. her son.. a tumor (benign) on his spine all in the same year.. her two brothers both passed from cancer.. leukemia on one.. he was already stage 5 when someone actually checked, her other brother died of bone cancer.. the past 6 years... Her daughter has been in remission for a year and a half now.

  • @Dmcsw-xg9cq
    @Dmcsw-xg9cq 17 วันที่ผ่านมา

  • @lindaT82
    @lindaT82 16 วันที่ผ่านมา

    💖

  • @davidhenry1156
    @davidhenry1156 16 วันที่ผ่านมา +12

    For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not
    perish, but have everlasting life.
    For God sent not his Son into the world to condemn the world; but that the world through him might be
    saved.John 3:16-17
    And the times of this ignorance God winked at; but now commandeth all men every where to repent:Acts 17:30
    I tell you, Nay: but, except ye repent, ye shall all likewise perish.Luke 13:3
    Jesus died for you on Calvary’s cross and rose again to offer you a pardon for all your sins. His love reaches you
    just as you are. If you turn to Him in faith, you will know the forgiveness of your sins and have the assurance of
    eternal life.
    Jesus said, “him that cometh to me I will in no wise cast out.” John 6:37
    I am praying without ceasing for you Miranda!♥🙏🙏
    Much love from Northern Ireland!

  • @ukingly
    @ukingly 16 วันที่ผ่านมา +1

    Just out of interest did you become B12 deficient with the omeprazol and acid stuff?

  • @rachelevans6711
    @rachelevans6711 16 วันที่ผ่านมา +2

    Miranda thank you so much for sharing your story. Like you, I knew something was really wrong. I recorded my story with The Patient Story, so if you get the chance check it out. (Rachel Evans from the UK). I also had the same rash, also made worse with alcohol like you. I was diagnosed with Stage 4 Hodgkin's Lymphoma in September 2022. How long was your hair when you got hair extensions? You have inspired me to look into it 🤔

  • @virginia111506
    @virginia111506 5 วันที่ผ่านมา +1

    I have had intense itching for a couple of years now! I mention it to any doctor I see … no one seems concerned, my primary said I would be losing weight , my itching is on shins, head and mid back, only slight faint rash that comes and goes

    • @jessicaprince291
      @jessicaprince291 5 วันที่ผ่านมา +1

      Same here!! I mention it every where, and they are like hummmm?

  • @alexwyler4570
    @alexwyler4570 16 วันที่ผ่านมา +4

    ur cancer team did not recommend a cold cap to preserve your hair?

    • @bugsy2902
      @bugsy2902 4 วันที่ผ่านมา

      I've heard of it. I wonder how much that costs?

    • @leegruver4718
      @leegruver4718 4 วันที่ผ่านมา +1

      I don't think they recommend cold caps anymore because the thought is the chemo won't get to that area, and thus a reoccurance could happen.

  • @sarhamills584
    @sarhamills584 16 วันที่ผ่านมา +4

    Thats what i had on my legs no one listen i told them i think this is a sign i have cancer sure enough about 8 months later diagnosed with stage 4 adenocarcinoma no small cell lung caner, dr tried to say eczema or scabies at the beginning they didnt do no testing until i ended up sick with pain in my chest n they found huge mass that was nov 2021 but now im dying there is no treatments for me now im on hospice

    • @Melody-285
      @Melody-285 16 วันที่ผ่านมา +7

      @sarhamills - oh, gosh, I’m so sorry to hear your story - I will pray for a peaceful end for you & that you will be at peace & free from your pain & earthly struggles - God bless you 🙏

    • @mariaiosif741
      @mariaiosif741 16 วันที่ผ่านมา +6

      ❤ big hugs…words are useless

    • @sarhamills584
      @sarhamills584 16 วันที่ผ่านมา +7

      @@Melody-285 im alittle scared about dying afraid of pain n i really hope i die in my sleep so i dont know that i died

    • @Melody-285
      @Melody-285 16 วันที่ผ่านมา

      @@sarhamills584 I have lost my mother & my boyfriend recently & on their last day, they were only conscious for a little while in the morning of the night they passed - after that, they slept - we gave them morphine from Hospice & they both passed peacefully without regaining consciousness - please talk to your Hospice nurses & make sure your family or caregiver knows what to do if you are at home, like my loved ones were - there was no trauma, they just slowly quit breathing - I held hem both, talked to them & told them it was ok to go - I will pray for peace for you, sweetheart, at the end 🙏

    • @golightly5121
      @golightly5121 12 วันที่ผ่านมา

      @@sarhamills584: Jesus ❤you.
      John 3:16 For God so loved the world that He gave His only begotten Son that whosoever believeth in Him should not perish but have everlasting life.

  • @Whitecizel1
    @Whitecizel1 16 วันที่ผ่านมา +2

    Why dont you say its the spray tanning stuff.

  • @swatit2705
    @swatit2705 10 วันที่ผ่านมา

    1

  • @susanlampkin9593
    @susanlampkin9593 16 วันที่ผ่านมา