My Colorectal Cancer Symptoms: Kelly's Story | The Patient Story
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- เผยแพร่เมื่อ 30 พ.ค. 2024
- When Kelly was 8 months pregnant she started getting symptoms including constipation, appetite changes, fatigue and blood in her stool. But her symptoms were repeatedly dismissed by doctors as pregnancy and postpartum changes. After nearly a year of advocating for herself, she finally got a colonoscopy that revealed a large tumor and was diagnosed with stage 3 colorectal cancer.
Rather than move forward with the planned chemo, radiation and surgery, Kelly was able to join an early clinical trial for an experimental new drug called dostarlimab. After 9 treatments over 6 months, scans showed Kelly's tumor had completely disappeared!
Full story & transcript → www.thepatientstory.com/patie...
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Contents of this video:
00:00 Introduction
01:10 My first symptoms
02:45 Being dismissed by doctors
09:18 Getting a colonoscopy
11:34 Getting the colorectal cancer diagnosis
13:47 Discussing fertility & cancer
18:47 Joining the Dostarlimab clinical trial
26:11 Words of advice
#colorectalcancer #colorectalcancerawareness #listentoyourbody #FightColorectalCancer #clinicaltrials #coloncancer #cancerawareness #symptomsofcancer #cancerscreening #colorectalcancer #cancerprevention #cancersymptoms #cancertreatment #cancerresearch #colorectalcancersurvivor #thepatientstory #cancerstories #cancer
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We’d love to hear from you: what were some of your first symptoms? Leave us a comment below 👇
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I'm so sorry for your loss.🙏
MY MOM FOUND OUT SHE HAD COLON CANCER AND SHE DIED WITHIN A MONTH. MY SISTER WENT TO ER, WHERE THEY DIAGNOSED HER WITH COLON CANCER, AND SHE DIED WITHIN TWO WEEKS. COLON CANCER IS A KILLER!!!! YOU ARE VERY LUCKY!! I'M CURRENTLY SURVIVING LUNG CANCER THAT WAS CAUGHT REALLY EARLY SINCE IT SHOWED UP IN AN X-RAY FOR SOMETHING ELSE. I WAS LUCKY, SO FAR. GOOD LUCK SISTER, I LOVE YOU!!!!!!!!!
Im sorry about your mom and sister 😢 I've had 5 relative/inlaws who've survived colon cancer. I have 8 relatives who are cancer survivors (5 colon, 1 skin, 1 one throat, and 1 breast) survivors.
The amount of doctors that dismissed her symptoms is appalling. This poor woman. Glad she is doing better now.
yeah, and there are tons of videos of different people all with the same story...
Happened to me before. Around the same time that happened to me, my son was diagnosed with leukemia and very long story short, it turned out he did not!!! 😮 Also, my husband was told he most likely had lung cancer. N he did not!!! Yep! Thats exactly what the DR said "you most likely have lung cancer" but the specialist he sent us to and the second opinion Drs said no, he did not have lung cancer. My uncle repeatedly was told that he had the flu. My aunt brought him home from the Dr for the 3rd time n she found him on the bathroom floor passed away the next morning. He had a pulmonary embolism. My aunt received a settlement for that one!
I am a physician and my autoimmune diagnoses plural were missed for almost 20 years. Close call with death, financial destitution, depression and complete career devastation I am now being treated right and somehow have my career back. I don’t know how I’m alive. Even as a doctor, I had to push and fight doctors to get answers. One surgeon almost killed me.
Doctors cannot agree to what I am sharing here with you today, because of what they are taught and what they must adhere to legally. People globally are curing their cancer sir. Using a protocol with de wormer and added supplements like mushroom, berberine, curcumin, Annatto, cimetidine, CBD oil, ...ya it has over 160 research papers on it. Many are now alive and cancer free...and all they want to do is shut down these groups and channels..sad very sad...Just check these out and SEE for yourself what people are saying and their different protocols. So many different cancers and end stage and terminal made a complete 100% turn around,. My gastro doctor was in shock last week, when I told him about this guy Kevin from Beating Cancer Today on FB group who cured 4 stage colon cancer, set home to die. His mouth dropped open and he got sad, he said, they don't want a cure, they will lose billions of dollars and he shook his head. So...have a look doc. The protocols work right along side with chemo and immunotherapy. Google joe tippins blog. On FB 3 groups, join them all, just to see and listen, ur mind will be blown. My Cancer Story Rocks (password is Mulligan)(over 40,000 members globally. ) Beating Cancer Today, (cured his colon cancer and since over 100 have had success with HIS protocol.) Next.....Febendazole Cancer Support Group....all these are FB groups with cancer testimonies. I am on that protocol for bladder cancer. People are coming out with shrunk tumors on scans and as they continue, many 100% cancer gone.
Can I ask which desease if you want to tell? It's like my story
omg you need to write a book
The sewer smell was it from gas? Or just a smell coming from your pores etc..?
Interesting, very informational. I'm looking at APR resection end colostomy , and removal of part of vagina, total hysterectomy. It's after chemotherapy & radiation treatments did not get the tumor, still active 😔 I'm not sure how many infections are ahead, radical surgery. Although though it shrank significantly it's active on PET scan. Quality of life, ostomy, urinary issues, and infections are troubling. I'm on zero medication & healthy despite treatments, so I am still processing not being this healthy, and a life long customer of medicine, and infections. It's a beast, and sexual dysfunction is an understatement as to women considering the surgery, and radiation, chemotherapy after effects of trying to treat this. I'm 57, just turned 58. I was hoping chemo radiation would have been remission. Your treatment was successful, and I pray 🙏 that good health, remission, and no tumor in your future. I've had 4 children, and am celibate for 7 years, and that has helped me, otherwise I'd be devastated for my husband, so that is a positive for me now.
Im going through cancer and im doing it by myself, i have people around but no parents or siblings etc. I'm trying to be strong and I have God
How are you now?
❤️
I hope you are doing ok. I have an extremely small family. So I know how it feels to have to do everything on my own without much help. I hope you are doing ok
@@ccalexander1924 thank you I’m doing good thank God I’m just happy to be alive
❤. You are in my thoughts.
Its concerning how dismissive and uneducated Doctors today can be.😳
Uncaring, Laura Reynolds. On the other hand, some look at you, think you look good, so think nothing could possibly be wrong!
ICAM I know they know how cancer is starting younger than ever. smdh
I'm 36 and currently experiencing these same symptoms, had my second child 18 months ago. I've taken two FIT tests both came back abnormal, I've lost so much weight and just don't feel well. Cancer runs in my family so I'm hoping I won't have to jump through any hoops to get my colonoscopy. Thank you for sharing your story.
Very interesting. I am in awe of these people who are not bitter towards the doctors who fail to diagnose early. I have zero medical training yet if anyone mentioned blood in their stools I would instantly know they need to be checked!
I was gaslighted for a year. I was 37 when I started having symptoms. It took 18 months and being admitted to the hospital and saying I won't go home until they find out what is wrong with me. I knew my body and knew something was wrong. They did laproscopic surgery and the second the scope was put in they found my entire abdominal cavity filled with a bright green mucinous substance. My appendix had filled with cancer, ruptured and been dumping this stuff into my abdomen for close to two years. Since I began complaining of intense stomach pain. My doctor gaslighted me. Said it was IBS. 3 surgeries, one of which was an experimental heated chemotherapy belly wash, and 2 rounds of chemo later I was cancer free. Always advocate for yourself!
Holy crap! Good for you for advocating for yourself. Sorry you had to. Best wishes!
I'm so glad that you advocated for yourself and had got heeled.
Did you have an ultrasound at any point?
@amybelcher6908 I did not have an ultrasound. They did a CT scan, couldn't see my appendix on CT, saw fluid, told me it was a ruptured cyst and I would get better on my own. Went in a couple months later, another CT scan, no appendix in scan and fluid. Again another ruptured cyst, told me I should go on birth control. I went back in a day later in terrible pain. They did another CT and there was even more fluid. They knew there was no cyst because I'd just had a scan the day before. The fluid was coming from an unknown area. That's when the doctors began arguing over what to do. I was in the hospital on and off NPO for 3 days while they argued. Finally I told the doctor that wanted to do the surgery that he was the one I wanted to care for me and just find out what is going on. That's when they found the cancer. My appendix had been ruptured and open leaking into my abdomen for at least months since my first CT, which is why it wasn't visible.
Wow that is awful
These doctors should be reported to the Medical Review Board.
The bloodwork with many cancers always comes back fine until very late stages. So it makes me so mad when they say, "Your bloodwork is fine."
Cancer depletes red blood cells. Usually, it will show up in your blood work. It won't tell them what kind of cancer, or even if you for sure have it. They may not even mention cancer to the patient and just schedule them for a Scan or colonoscopy and endoscopy to find out what is depleting the red blood cells.
Seriously?
My niece was 33 lost her life a few weeks ago of colorectal cancer… it was beyond heartbreaking. She had her own practice in psychiatric practice for treating young children with autism by combining natural and western medicine… she ignored the symptoms and was too late…. She was a very beautiful and very smart young woman,
I’m so sorry to hear of your family member passing. It’s a frightening disease and we all navigate through it the best we can.
I'm so sorry for the loss of your niece. She is a loss for our world, as well.
What do you mean she ignored the symptoms? What did she have? Sorry to hear that. So freaking young 😢
So sorry to hear that 💔
😢❤❤❤❤
I was gaslit for over six months by a doctor who said I was depressed, had hemorrhoids, and my five days of vomiting was “just the flu”. I made them refer me to a gastroenterologist. I called them directly and they got me in the next morning. I was admitted to the hospital and the next day had a colonoscopy to confirm stage 3 rectal cancer. Controversial, but I don’t think this happens to men as much as women.
You mean the cancer or the gaslighting happens more in women? For a serious illness, I would rather go see a woman Dr.. I feel men doctors don’t take me serious for some reason. Do they think all women are hypochondriacs? I sort of feel a woman is more in tune with her body. Since giving birth many years ago, I feel like I can connect my brain to internal parts of my body and “feel”.
As a former cancer clinical trial researcher who worked on trials exactly like yours, it's encouraging beyond all measures to hear your success story! Researchers fight so hard and feel utter discouragement when a patient is lost.
Please, please, please stay on top of your follow ups for decades to come! I can't stress this enough to you. So many patients are lost years later because they became too relaxed with being "cancer free." You can do this! You are stronger than you know ❤
Laura, thanks for your work in clinical research! -Stephanie
Just found your channel.I was 63 when I was diagnosed . I had symptoms for about a year. I told 3 of my doctors but they said it was the medication I was on. And to be fair, it could have been. I had severe constipation and that was my only symptom. I asked my GP for a colonoscopy but she was reluctant and said it was my medication and hemorrhoids. I finally told her I will keep calling and keep coming in until I get tested. She agree to the mail in test. It was positive. So they still said probably nothing but did schedule me for a colonoscopy. As soon as the doctor came in after I woke up I could tell by her face. Yup, they found a very large growth. It was the most common kind of colon cancer. So I was scheduled for a colectomy. Stage 2A and they removed a big section of my small intestine. Checked 32 lymph nodes. All were clear. The tumor had almost completely blocked my colon. But they got everything. No bag, no chemo, no radiation. I just had my year later colonoscopy and everything is clear. If you feel something is wrong, KEEP PUSHING! Advocate for yourself.
How bad was your bleeding, was it just on your poop or would you bleed without pooping?
Whats a colectomy?
I live in a third world country called Paraguay. I went to the proctologist and said: I just poop blood.
After a quick check he said: colonoscopy. No cancer was found, only polyps.
Got dx with colorectal cancer at 29 years old while having a 8 month old boy. Crazy how similar our story is. Glad you are doing well and so upsetting to see new young moms getting this cancer!😢
Too many people all ages getting too much cancer these days.....hmmmm!
My mother died of colon cancer in 1993. She lived for five years after her diagnosis, largely because she was in the clinical trials for the chemo port. A few years after she died, I stared working for Genentech, who developed Avastin - the first biological approved colon cancer. Now there are the next generation of treatments, like the one you are on what a blessing!
Thank you for sharing your journey. I'm sure your Mom is very happy for the career path you have chosen. Her bravery to go through the trial for the chemo port was an extremely important trial. I'm so sorry for your loss. You should feel proud to be a part of this company and life saving research they do. Why are we as the public, not hearing more about this drug? Was the drug you mentioned what this girl in the video was given?
@@lindalester9151 Thank you. AvastinI was approved in 2004 for colorectal cancer. Although not a cure, it was one of the first Biotech drugs to extend lives and improve the quality of life. I believe what this person rd River is s new class of Immunotherapy drugs that are achieving these kinds of remarkable results. As the Paul Simon song says “age of miracle and wonder”. Ironically, I suffer from Macular Degeneration, and receive a small dose of Avastin in my right eye every 6 weeks to keep my vision stsble.
@@lindalester9151 No, not the same. Googled it. Avastin is bevacizumab. This young lady received dostarlimab.
The way my jaw hit the floor after you went to the EMERGENCY ROOM and they brushed you off again!! How embarrassing for those doctors, clinics and hospital. They should be ashamed.
I'm glad you shared your story, sweetie. I'm in my 60s, and I'm getting a colonoscopy. I have had them before, but I feel something is wrong this time. I'm a huge advocate of taking your health into your own hands and persisting these tests. Your doctors failed you. You could have caught it early. I'm glad you're doing well.
I pray and hope that your colonoscopy went well and that there is nothing wrong. 🙏🏻 Would love to hear an update on you.
These stories are absolutely heartbreaking for us in Canada to see. We pay not a cent for our universal coverage and get whatever tests we want, when we want. I had a benign polyp removed 30 years ago and I get a colonoscopy every five years just to check. No symptoms required. It staggers the mind that the richest country in the world has a for profit health care system that gaslights young patients because they don’t want to do costly tests. Tragic!
I don’t know where you live in Canada but they is not our experience. My sister passed away from this because her dr refused to give her a colonoscopy even though she had symptoms for 10 years! By the time she got one it had spread to her ovary. She fought for three years. Now even with a family history and having had a polyp my dr said a colonoscopy is recommended only every 10 years! Even when you show symptoms it takes 3 months to even get a specialist appt or longer. We live in Vancouver.
@@slowrunner40 I am so sorry for your loss, that’s terrible she was refused a colonoscopy on time. I lived in Toronto for the thirty years this applied. I even had one in the first few months of the pandemic. I guess not all provinces are the same. I’ve returned to my home province of Nova Scotia and we are painfully underserved by family physicians and the colonoscopy waitlist is around 9 months now. I hope you are able to get the tests you need and not wait 10 years!
USA is the richest 3rd world country
American taxpayers money goes everywhere in the world except its own citizens. Our healthcare system is overwhelmed by non citizens that don’t pay, it’s out of control what’s going on.
Oh please, you must be a Republican. Your contributions outside are a minuscule number of your GDP. Your healthcare is not overwhelmed by non-citizens, it’s overwhelmed by lobbyists of Big Pharma and Insurance companies that don’t want to see their grotesque profits affected by universal healthcare. @@aniello4633
Ugh. I’m so sorry. I hate that we have to fight doctors for our health. I was diagnosed with colorectal cancer with all those same symptoms during Covid. The worst was the constipation and I couldn’t sit down for more than about 30 minutes without being in pain. They kept saying it was probably hemorrhoids! I was too young and healthy to have cancer they said. When I finally said they had to do something about my pain, they agreed to give me an MRI and because of the inflammation in my buttocks, they couldn’t see anything. Sent me to the ER and I got admitted for an emergency colonoscopy. They couldn’t even get far into my colon because I had a large tumor blocking it. Thank god I pushed and pushed. I have been in remission for almost 3 years. Radiation was the worst for me. The burns were horrible. But it did shrink my tumor a lot. Still had to have a 17 hour surgery but I’m alive.
How olde are you🙏
Same thing happen to my 37 yr old daughter Northern NY. Baby was born and 10 days later the news was delivered. Colon cancer spread to liver. She passed 2019 leaving 2 beautiful children and husband
I am so sorry about your daughter. I lost my mom when she was 64. They all kept telling her she was bleeding due to menopause and she needed a hysterectomy. Her side hurt all the time and she would bleed heavily every two weeks. Her tumor was found off a cat scan by a regular doctor in the lining of her colon. It was the size of an orange. She was a very healthy person. She was loyal about getting those done and her previous colonoscopy was 4 months before. The doctor missed it. It was already too far gone in her liver and lymph nodes but she did the chemo. She passed away 3 months later. Now as I reflect on these stories my mom didn’t want to bother the doctors and stand firm now I blame myself for not letting me go with her because I loved her so very much and she never ever complained.
I feel so bad for her because they didn't take her seriously. So sad that just because you're young, they assume nothing is wrong...I hope everything works out for her.
Doctors really need to get past their pre-conceived notions. I was ignored because I am overweight. So their advice to me was lose weight. Even when I told them I am losing weight and I’m not trying to. Too many people suffer needlessly because they don’t listen. We know our bodies.
Can u please tell what’s ur symptoms were?
I loose weight if I reduce diet. If I do exercise of walk weight goes down very fast.
I lost 8 kg in two months.
If i don’t monitor my diet, my weight goes down 250 gm daily. If I take eonough food my weight donot loose.
I get the part about it all hitting you later, after treatment. It was the same with my son who had leukemia at 19. He was so strong and positive during treatment, but suffered PTSD anxiety after. Honestly, I went thru the same thing as his caregiver. It's hard. When youre in the midst of the battle, you're just focused on surviving. It's not till after that you have time to reflect.
Cancer is hard on the patient and the caregiver. You’re a good mom. Hope you’re doing well now. For me the passing of time has helped. I’m glad your son survived. Wishing you both the best life, this life has to give.
Rule #1 if you have any rectal bleeding: INSIST on a colonoscopy done by a gastroenterologist.
I was diagnosed at age 16 with hemorrhoids. 16. I had severe rectal bleeding and was ridiculously anemic (oh, it’s her period 😑).
Fast forward to age 30: I’m in the hospital because I’m rectally bleeding all the time and haven’t been able to eat or hardly drink water for 6 weeks and nearly collapsed.
Over half of my large intestine had to be surgically removed because of severe ulcerations. I got diagnosed with ulcerative colitis.
A month after surgery, I started bleeding began. I was referred to a different gastro who put me on a type of chemo/immunosuppressive drug and the bleeding eventually stopped. He did a gene test and found out I actually have Crohn’s disease, which affects the entire digestive tract, and gastroparesis (delayed emptying of the stomach). That doctor literally saved my life.
I’m 53 now and haven’t relapsed. The gastroenterologist eventually retired and his son took over. He’s an amazing doctor, just like his father. I’m thankful every day for both of them.
As a RN, I am shocked to hear that you were dismissed by many doctors especially with your later symptoms of losing weight, blood in the stool and abdominal cramps, they are the typical symptoms of colorectal / colon cancer. In Australia, we get a 50th birthday gift from the government , a free stool kit send to us not long after our 50th birthday and we receive them every 2 year (if negative) to check for blood in the stool and a few people that I've known found out their early cancer from this life saving kits. Glad you are doing well and wishing you all the best.
That statement you made about “not being able to see a doctor” because you don’t have health insurance is absolutely shocking!!! This is suppose to be an “advanced” country!! WTH?
She could have seen anyone. In America it is illegal to be turned away.
This is not an advanced country in regards to health care. If you think this country cares about your health, you are sadly mistaken.
@misswinnie4.8 I have a relative that is 63 years old, in very poor health, and on Medicaid. The only way you can see a specialist is with a referral. Getting his PCP to refer him has been next to impossible. When you are poor, no one cares about your health care has been his experience. It's so very sad.
That's just not true. I have no money, and have been in the error and hospital twice recently. Youu do have to advocate for ur own Healthcare tho, whether u have insurance or not.
If it's a long term illness u go on indigent care, which is medicaid, it's free
A person needs to advocate for themselves...push it....❤
Couldn't agree more!
I am a great believer in clinical trials for drugs, vaccines, and devices. I appreciate your participation.
My best, Monica
*The amount of times I've heard doctors dismiss a patient's serious symptoms and then a nurse swoops by to give the most sage, life-altering advice is appalling*
I’ve been dismissed for 7 years. I finally met a GI who told me I’m probably constipated. I’m so glad I stood up for myself and I told him “I don’t care what you think, schedule the scopes”. I have them on Sep 26 and I really
Hope they find what I’ve been feeling.
Praying your colonoscopy/endoscopy went well and you got the answers you're looking for and that it isn't cancer! How are you doing? Did they find anything? Good for you for advocating for yourself!❤
Good luck and its great you are advocating for yourself.
How did your scopes come out ?
What did you find out after your colonoscopy? Hope you’re fine!!!
@alyssasawyer9429 What did you find out?
What an inspiring message. It appears more common than not to be dismissed by healthcare providers. To get an honest answer is only by tons of research, people like you whom are transparent, willing to share your journey and learning the right questions to ask. Truly we navigate our own health. Thank you for sharing and congratulations on the birth of your new little girl. ✨💖✨
So sad how some PCP’s or Doctors in general just brush off their patients. It just goes to show that individuals must ADVOCATE for themselves and be PERSISTENT. It might save your life. 🤦🏾
I pray for a total cure 🙏 ❤️ from this horrific disease.
My best wishes to you and your family.
Hi Kelly, I was a new mom too at 32 and they assume my systems were due to being a new mom. I had colon cancer. I knew something was wrong like you did. I believe my daughter saved my life. God blessed me with her and the pregnancy is what saved me.
Did you have bleeding? Or did you find out before the rectal bleeding start
did you have bleeding on a regular basis? Constipation?
Yes I did have bleeding but they kept telling a lot of pregnant women have bleeding due to hemorrhoids. So when my daughter was 4 months, I went to my family doctor and he did a rectal exam. He sent me in for testing and that was when they diagnosed me with colon cancer.
I had same symptoms ( know the smell) but not much blood. I was angry when my family physician insisted i see GI & get colonoscopy. I do not have cancer but feel like a fool for my resistance. So your story helps ppl like me as well. I wish you an end to tiredness & symptoms and a a healthy life. Thanks for sharing.
I’m surprised they didn’t pass it off as colitis. I’m so glad they found it and you fought so hard through it. I’ve had internal hemorrhoids 🤦🏻♀️ my mom is an Ostomy nurse and absolutely loves what she does. A friend of mine was just diagnosed with stage 4 colon cancer and it’s starting to spread.
I've got an ostomy myself. I wouldn't have made it if it wasn't for my wound care nurse!!!
I am happy to hear Kelly the drug worked and your tumour went down. And congratulations on your new baby .
So you never had surgery? My son at 46 years old went through this 2 years ago…chemo, radiation, and colostomy bag. In 2022. Please let me know….he is a constant worry to me.
GOD Bless you! 🙏💖🙏
I had all the symptoms, exactly how you described them! Went to a specialist, turned out I had something completely unrelated…..we never know what has invaded our body, I’m glad you were aggressively pushing for answers.
What did you have?
Thank you for sharing your story, Kelly. I am a breast cancer survivor. You have encouraged me to keep pushing for new screenings in areas of my body where I'm not feeling right. Yes I always worry that my cancer may return! Im trying not to over worry of course. I think you would make a great therapist or counselor for others who are going through cancer, whether they are newly diagnosed or, like me, 18 years out! The worry never goes away. It is important to keep pushing for answers when things don't feel right. Thank you again! You are so reassuring!!
❤😂
A classic case of medical gaslighting. Absolutely disgusting
Thank you for sharing your story ❤️
Two weeks-for results I can’t believe how long you waited for all of this. You picked a great hospital. I hope you are doing better!!!
Thank You for sharing your amazing story & congrads on your new baby ❤
These stories are so important for people to hear
Great interview. She is so relatable and kind. I’m very happy her story ends well.
I've been suffering after my miscarriage in Feb 2023 w/ severe abdominal pain and going in and out of hospitals and doctor appointments. These doctors now a day really do just brush their patients off until it's something extremely severe. 😢
What a fantastic story!! Thank you for sharing your journey. Sending love, light and prayers to you and your family 💕
So sorry for the things that you went through and that you were dismissed before! :( I’m so happy that the new drug worked for you and that you don’t have cancer anymore! 🙏🏼❤️
I have a young friend about your age, Kelly, that had similar symptoms. Dismissing concerns seems to be the common denominator with young ppl getting these cancers. My young friend had her bowel, anus, vagina and all reproductive organs removed, and has a permanent ostomy. They were able to save her bladder. She had eggs frozen. I’m so thankful that this new treatment came at the perfect time. 🌻🌻🌻
Vagina removed??
What are the symptoms
Her vagina??? What do you mean? The birth canal?
How sad for your friend, altho it's great she still survived.
It’s not just young people mist docs could give a rats behind
You’re amazing Kelly! Thanks for sharing. 🥰🙏🏻
Wishing you the best and congratulations!
Thank you for sharing xx
Thank You for sharing your story 🤗💗
Blood in your stool is always alarming and has nothing to do with being 9 months pregnant... that does not compute. Thanks for sharing.😳
I sort of agree, yet internal hemorrhoids, which heavily pregnant women can be prone to, will likely cause bleeding.
It seems like this is common for new mothers. I had a brain tumor that was found 2 months after I had one of my sons in 2007. My primary doctor thought I had postpartum depression and referred me to a psychologist even though my symptoms were passing out, not eating, confusion, forgetfulness etc. My family finally took me to the ER where I was given an MRI. I’m thankful that you finally found a doctor who was willing to listen and not just brush you off again. It seems like once a doctor hears you’re a new mom, any other symptoms can’t be from anything else. I had blood in my stool and my doctor at the time had me do a stool sample and colonoscopy right away. It turned out to be nothing. Thank you for sharing your story.
Congratulations on your new baby!!!
You’re sharing this will help save lives! You are so brave!!!!
Thanks for sharing your story! ❤ God bless you
Smart that you took pictures!
Amazing lady. ❤ Thank you for sharing your journey
Great to hear your story and how well your doing well now stay on top of your future checkups just in case many blessings
What a beautiful lady! Thank you for sharing such a traumatic experience!
What a roller coaster journey you have been through! Congrats on baby #2 through all of the things you have been through. I wish all four of you the very best that life can offer! Listening to your body is the BEST advice that you gave. Thank you!
Thanks for sharing. You're beautiful. Prayers your way.
Congratulations on your precious pregnancy and good health❤
Thank you so much for sharing your story. It has truly encouraged me to listen to my body!!
My mom was told she had a cyst for three years! New doc immediately sent her to get colonoscopy. Stage 4 metastatic cancer. Last month she had surgery and a 90 minute chemo wash. She has no evidence of disease! As close as it comes to cured. She’s 80 years old and has many more years ahead of her!
I can’t say enough good things about Oregon health sciences university and Dr Sood! And it was all covered by Medicare
This is amazing! If you and your mom are up for sharing your story, please email us at alexis@thepatientstory.com and stephanie@thepatientstory.com.
Thank you very much for your inspiring story which is sure to help many people fight their own battles.
Its sad to see how much the patient has to convince the doctors to get things checked. If there is one thing I am super proud about my country, is the access to medical facilities and very less waiting time.
And I am glad you are fine and happy now !!
BLESSINGS TO YOU AND YOUR BEAUTIFUL FAMILY! 🙏❤️
Wow you are such a brave amazing woman! You’re an inspiration. Thank you for sharing
What is this treatment...thats amazing!! Praying for you❤
So sorry you went through this .
Thank you for sharing
Congratulations 🥳
As bad as the situation is, you are beyond blessed to get to take the trial drug. I’ve heard other stories of people getting fortunate enough to selected fir these trials and fir the most part they usually seem to work out with these trial drugs.
I admire your strength 🙏
I know a very similar story as far as someone being dismissed by the ER doctor when they went in with a whole array of symptoms. The ER doctor was dismissive and condescending, seemed to think he was all knowing. I try to give the ER Dr leeway, even despite how my relative was treated. ER Drs aren't necessarily trained up enough to recognize cancer in a CT scan. Sadly. But it doesn't help when they bring too much hubris to the situation and can't say something simple like "we aren't equipped to diagnose this kind of issue in an ER"... My relative had a long road to travel before they finally got access to a specialist who could properly diagnose the situation.
That baby at 26:12 is seriously cute 🥰 🚼 this was an amazing story to watch, thank you for sharing it ❤ I wish you well on your journey.
Oh, bless you girl🥰 no side effects is such a blessing….
I'm so sorry you went through this, at a time in your life when you should be enjoying motherhood and your sweet baby 🩷
Great ending, but too much was skipped over. Did your tumor vanish? Did you need surgery to remove it? Did you need radiation? Maybe a lot was edited out. Anyway, I’m glad everything went well. And I was treated at MSK for breast cancer, twenty-four years ago. All fine so far.
You were so encouraging! So glad it all worked out ! No colonoscopy bags…. You just never know what God will do. And that pic of the baby looking at you is priceless.❤
I’m an ER Dr, and blood in your stool unless caused by hemorrhoids is definitely abnormal. Was it bright red or black in color.? A sigmoidoscopy and colonoscopy should’ve been done to either rule in or out the diagnosis of internal hemorrhoids. I’m so sorry that they brushed you off. They were guessing at the diagnosis, and I feel that is malpractice for sure. I practice medicine completely differently. I always rule out the most serious diagnosis first,then move along to the less serious ones. For eg if a 50 yr old comes in with severe back pain, I have to rule out an aortic aneurysm first. Acute anxiety could be from tachycardia, thyroid storm, an adrenal tumor or other cardiovascular abnormality , all of which need to be ruled out (based on an algorithm) before settling on a dx of panic attack. That’s the way all doctors should approach a patient’s symptoms. A thorough history is invaluable. Always get more second and third opinions if you are having unusual symptoms. Internal hemorrhoids do MOT cause the symptoms you were having (except the bleeding). So happy there was no metastasis. Lab work will not help in your situation. Anemia postpartum is common, so that wouldn’t have raised an alarm. But the weight loss, constipation, and abdominal pain should have been enough to do the GI work-up. What’s the name of the drug? And was it squamous cell or adenocarcinoma?
@@Pkeats817 Did your symptoms resolve? Or did somebody jiggle out the problem? Pelvic exam? Ultrasound? Hormone replacement therapy? Lab work including thyroid?
@@Pkeats817 if you have no faith n your doctor, you should switch And for sexual dysfunction, ask about a testosterone cream preparation to apply around the vulva, but that can make the skin thin and dry which happens anyway after menopause. Whenever you are feeling like you’re not being heard or that caregivers are being dismissive, go somewhere else. Those people should not be in the health care profession.
Totally agree with your post. It baffles me that she got diagnosed with hemorrhoids without actually having anyone do a physical exam. Rectal bleeding calls for a visit to a GI specialist. Before Colonoscopy, they can do a rectoscopy for instance, which is what I had with similar symptoms. It took maybe 10 min, not more. It went about 20 cm and it did diagnose hemorrhoids and anal fissures which was actually why I was bleeding. This would’ve been a regular GI check. I’m truly shocked no one thought of sending this girl to a REAL doctor. I had to have a Colonoscopy in my early twenties due to Constipation , that required a bit more prep but It is something they do everyday. I am actually thinking of repeating it 10 years later because I’ve been having tummy cramps and a soft very often for the past year which is not the norm for me. My doctor says it’s probably IBS because I do have days when it’s normal, but I’d rather have it checked.
@@Kitten9011 Yes, but remember, IBS is also a guess, and that diagnosis falls into the basket of “the least serious answer”. I always practice medicine by ruling out the most serious cause for symptoms first. That doesn’t mean indiscriminate testing, though. It’s just that I consider aortic aneurysm rupture before I call severe back pain a lumbar strain, or heart palpitations are coming from a serious arrhythmia rather than a panic disorder etc.
@@kkdoc7864 thanks for your answer, it’s why I’ve asked to have a Colonoscopy first and then I’ll accept the IBS diagnosis if that comes clear. I’ve had a Rectoscopy done quite fast so can’t complain about that. I’m based in Poland and usually it is not difficult to get a referral for a specialist or a procedure like Colonoscopy. The waiting time could be long though. Privately it wouldn’t cost more than 200-300$ so it’s still doable.
Thank you for.sharing..by doing this you are.saving lives
THANK YOU FOR SHARING YOUR JOURNEY WITH CANCER. YOU ARE A BEAUTIFUL LADY AND HAVE AN OPPORTUNITY TO HELP OTHERS BY DOING THIS VIDEO. I WILL HAVE TO LOOK AT YOUR SITE AND SEE YOUR NEWEST BABY....YOUR SON IS A DREAM CHILD...BEAUTIFUL LIKE HIS PARENTS. I SEND PRAYERS AND BLESSINGS FOR A WONDERFUL FULL LIFE.
Fantastic results 💞🎉❤️🇦🇺🦘
Thanks for sharing your story ❤can you tell us what drug you used? It’s amazing 🎉
There is so many of my family members before me that died of colon cancer or lived with a colostomy bag. My generation is having regular colonoscopys and having polyps removed before it can become cancer. My kids are now having a problem because if the colon cancer isn't in your immediate family they can't be tested until 45. The system isn't working for my kids or my nieces or nephews.
Please get tested for HNPCC aka Lynch Syndrome
I had abdominal pain, blood, fatigue. I was misdiagnosed for almost a year. I was 33 stage 3C
U knew...tried to tell over and over..how stressful and frustrating. Good luck to u.
It is just heartbreaking how long it takes to get a colonoscopy, in so many countries. I am happy to love in Switzerland, I got mine after 4 weeks of being in the first contact doctor. In additional, they did gastroscopy just in case. And I only had stomach ache for weeks! I hope things will change soon for all.
Is everything fine now? What did the test say?
That is because Europe believes in preventive medicine whereas the USA wants people to be sick because that gives them more money! Harsh but mostly true!
When you mentioned a sewer smell that hit me like a ton of bricks. I have smelled that several times! I wasn't sure where it was coming from and then I realized it came from me. Pretty scary. Doctors have been discounting me for years. Not even sure who to go to next. I'm beginning to think most doctors do that, not only from my own experience but he number of other patients reporting the same thing happening to them. It's no wonder so many people are sick and so many die because of late diagnoses. The medical system needs to train people alot better!
I loved the story 🫶🙏
Wish you and your family the very best⚘️🇩🇰⚘️
wow thank u for ur story ❤ Thank G-d for everything...