My Non-Hodgkin Lymphoma Diagnosis: "My first Symptom was a Cough" | Stephanie's Story

แชร์
ฝัง
  • เผยแพร่เมื่อ 15 เม.ย. 2023
  • After her father’s Hodgkin lymphoma diagnosis, Stephanie V. still never thought her persistent cough was anything more than allergies or asthma. But after her cough got worse, she was rushed to urgent care.
    As doctors cleared fluid from her lungs, they found a mass in her chest. She was then diagnosed with stage 4 primary mediastinal large B-cell lymphoma, only two years after her dad’s diagnosis.
    In this conversation, she voices how she processed her diagnosis, how she advocated for her health and how her father’s diagnosis impacted her cancer journey.
    The interview has only been edited for clarity.
    Full story & transcript → www.thepatientstory.com/patie...
    Join Our Community:
    Website : www.thepatientstory.com/
    Facebook: @ThePatientStory
    Instagram: @ThePatientStory
    Twitter: @patient_story
    #cancersurvivor #cancerstories #cancer #thepatientstory #PMBCL #lymsm #nonhodgkinlymphoma #lymphoma #lymphomasurvivor #lymphomaawareness #cancervlog
  • บันเทิง

ความคิดเห็น • 33

  • @FitnesslovesFashion
    @FitnesslovesFashion ปีที่แล้ว +15

    Very happy you’re doing great❤❤❤. Thanks for this informative video. I recently had a chest X-ray due to a persistent cough that kept getting diagnosed as an allergy. Fortunately, my chest X-ray was negative of any masses. My Mom was diagnosed with Stage 3 Non-Hodgkin’s Lymphoma in January. She’s doing better and just completed chemotherapy treatment number three.

    • @user-nq7lr8fy8p
      @user-nq7lr8fy8p 8 หลายเดือนก่อน

      What did your cough end up being?

    • @FitnesslovesFashion
      @FitnesslovesFashion 8 หลายเดือนก่อน

      Yet to be determined but I’m no longer coughing at all since I’ve been taking care of my Mom who lives in another state. My Doctor ordered allergy tests and an order to check for asthma. My chest X-ray was negative for any masses.

    • @user-nq7lr8fy8p
      @user-nq7lr8fy8p 8 หลายเดือนก่อน +1

      @@FitnesslovesFashion hm, okay. Well I’m glad that your test results came back okay. Let me know if you find anything else out, I know someone with a cough for years but doctors can’t seem to figure it out.

  • @sj460162
    @sj460162 11 หลายเดือนก่อน +4

    Thankyou for sharing. My father has just been diagnosed with Lymphoma and im really worried about him.

    • @shantavanee
      @shantavanee 6 หลายเดือนก่อน +1

      Praying for him🙏🏽

  • @nickywilks7928
    @nickywilks7928 ปีที่แล้ว +3

    Very well explained.

  • @shantavanee
    @shantavanee 6 หลายเดือนก่อน +1

    Glad you are doing great!🙏🏽

  • @honeysquishy2219
    @honeysquishy2219 6 หลายเดือนก่อน +1

    Brave and strong, hope that you are well 🙏

  • @kevanhubbard9673
    @kevanhubbard9673 6 หลายเดือนก่อน +4

    Hodgkin's Lymphoma is relatively simple but Non Hodgkin's is a minefield of various types mainly B Cell with a small minority being T Cell and a tiny amount NK Cell.I developed one of those T Cell ones called Mycosis Fungoides which is probably the most common of them but still one 5 people in a million.I will have to have a Stem Cell transplant because of it this coming year (2024).

    • @lillyrocks2011
      @lillyrocks2011 3 หลายเดือนก่อน

      How was your diagnosis?
      I hope you feel better.❤
      I hope to know why I have chest pain and my heart pumping strangely like needing more effort and air.

  • @yinnei1
    @yinnei1 ปีที่แล้ว +12

    Sometimes cancer cannot be spotted by a simple xray, it need further tests like mri, ct scan, biopsy, etc.

    • @lillyrocks2011
      @lillyrocks2011 3 หลายเดือนก่อน

      And a good radiologist, without a good interpretation the patient would be dismissed.

    • @stephenpittman4291
      @stephenpittman4291 หลายเดือนก่อน

      And the American medical system will bankrupt you for demanding all these tests- only the super to ultra rich can really afford all the existing, and certainly any ‘cutting edge’ treatment. It’s like everything else in this life, it’s all a crap shoot from which country you are born in to what parents you have to what genetics you inherit to what chance you have getting this terrible disease. I hope that in future generations, there are cures that are both 100% effective and available to everyone.

  • @kimberlykimmie1728
    @kimberlykimmie1728 ปีที่แล้ว +5

    Congratulations to you both you’re amazing your spirit is just beautiful Your Dad had a stem cell transplant for Hodgkin’s lymphoma?

  • @barbcosgrove64
    @barbcosgrove64 ปีที่แล้ว +2

    You explain this very well. Get better soon 😷😷💪💪💪....

  • @tanyadawnwalker3675
    @tanyadawnwalker3675 ปีที่แล้ว +2

    🙏🏼❤️

  • @splash6427
    @splash6427 5 หลายเดือนก่อน +1

    🙏 ❤ 🙏

  • @marianapopescu753
    @marianapopescu753 3 หลายเดือนก่อน +1

    I don't understand people who present themself to a doctor only after months of not feeling well.. from ignorance??

    • @lolitaalmostgrown
      @lolitaalmostgrown หลายเดือนก่อน

      I haven’t felt well for years, even been to the ER numerous times. I have a dozen specialists, and I’m always the one thinking of possibilities, not them. There’s the random doctor who gets a diagnosis spot on in the first visit, but in the end, I had five different diagnoses, taking years upon years of not feeling well and normal blood work all the while. Doctors tell you you’re aging, you’re under stress, you’re getting your period. Hell, I have Sjögren’s Disease, not once in 3 years have any of them attempted to screen for lymphoma. So, you know, that’s why people don’t go, they tried already and were dismissed, or they think it will resolve itself.

  • @user-nh6fg2en4l
    @user-nh6fg2en4l ปีที่แล้ว +2

    How old is She ?

  • @thisismyname007
    @thisismyname007 ปีที่แล้ว +5

    I skimmed the transcript and she never tells us which of the many, many “diseases” her NHL is. Is it marginal zone lymphoma? Is it Burkitt’s lymphoma. Maybe it’s diffuse large B-cell lymphoma. Maybe it’s angioplasties yadadada!

    • @ThePatientStory
      @ThePatientStory  ปีที่แล้ว +4

      Thank you so much for watching! Stephanie was diagnosed with Primary Mediastinal Large B-cell Lymphoma. Here is her full story: www.thepatientstory.com/patient-stories/non-hodgkin-lymphoma/pmbcl/stephanie-v/

  • @maximumcorruption
    @maximumcorruption ปีที่แล้ว +17

    Cancer rates have skyrocketed since the "safe and effective" was mandated. People coming down with all kinds of neurological diseases, like MS, strokes, lymphoma, heart attacks. The death rate has climbed exponentially in the last 1 1/2 yrs since the rollout. Crimes against humanity.

    • @SM-zm5hz
      @SM-zm5hz ปีที่แล้ว +9

      100% accurate . Trust “ the science “ 🤮 so glad I didnt !!!!

    • @Batony
      @Batony 8 หลายเดือนก่อน +1

      Okay guy

    • @nancydb1390
      @nancydb1390 5 หลายเดือนก่อน

      Yes, three of my five sisters diagnosed with cancer.

    • @STLhumanity314
      @STLhumanity314 4 หลายเดือนก่อน

      @@nancydb1390 what ages are they?

    • @nancydb1390
      @nancydb1390 4 หลายเดือนก่อน +1

      60,63,74. The two younger ones work in the medical field and highly vaxed.