I had a stroke exactly one year ago today. Channels like yours have been invaluable for my rehab. I am very happy with my progress. I don't have any problem falling asleep, but I wake up quite often. I am not concerned by this, it is just something I manage. Thank you very much for caring!
I’m so glad you’ve been able to use channels like Post Stroke to help in your home rehab! Thank you for sharing your experience. I’m so glad you’re feeling good about where you’re at ☺️❤️
I sure could have use this 7 years ago!!! the famous words - BE Patient, be grateful your alive!!! take one day at a time. I am very thankful to have found you, and your blessed way to explain these things. your making a difference
Hello ..hi.. i'm from indonesia.. it's been 3 months since i had stroke and i always watch your channels too... it really help me recovering and improving .. thank you... first month i can't sleep very well too... and now the only disrupt me to sleep is just my upper arm gets painfull ..need to get comfortable sleep positions...i always do the exercise you share on this channel and it really help... love from indonesia
Hi from the U.S.! So glad to have you here!b I’m so glad you’re finding the channel helpful. Make sure you check out my Get Better Sleep After Stroke video linked in the description. I go in detail on different positions for sleeping! Thank you again ❤️
Of course! I started Post Stroke because I was so frustrated with the healthcare system, for many reasons, but one of them was that people are just seen as dollar signs. I’m a patient, too and want to be treated like a person as well, not a commodity!
I realize that when I can get at least 6 hours straight sleep I can function sooo much better the next day. I used to feel fearful and anxious right after my stroke cause my stroke happened in my sleep. I woke up to half my body not being able to move😢😢😢. I was fighting these NAPS during the day but I'll give it a try from today. Thanks Elyse ❤❤❤❤❤❤
Just seeing your crying emojis i fall onto myself just know. This is due to the fact that sincd my stroke hapened i was at home lisrening to music with my headphones conected to my tablat device on my sofa and the tab was charging.when it has charged i toked the chord charge cable and it faled out to ground i tryed to cache it with my left hand by that hand as like my keft side aas already sith no strength so easely i falled out from the sofa. I tryed to get out the flor of my living room but i couldn't so my mother who was at home caled the 911 for me to go to hospital. I laughed a lot about the surrealist thing that hapened to me. But know i falled to myself is that i was able to do so mang things, i was formed at fine arts i used to paint and draw, i was able tk play to guitar since i was 16 and this is sad because i don't do any of those things since i had the stroke 😢. I used to play and draw or paint everydays. This was my way to expressmyself and the way to be close to God. A unic way to pray.
I have, inherited a seizure disorder from left frontal brain Hemorrhage a few years ago. The doctors gave me an AED after stroke to mitigate the issues. Suffice to say getting a good nights sleep is daunting. However I am learning more throughout the process, open to insights. I gave up my CDL as I am on disability. Good 👍 channel😊
Omg, I am alwayssss tired! Just passed 1 year in end of January. Doing PT & OT twice a week, still. Had a sleep test 2 weeks ago; waiting for results. Apnea is suspected. Anyway, this was helpful as always. I will make sure I sleep as much as needed while my brain heals.
@theemilyelizabeth So glad you were able to get a sleep test done! Sleep apnea after stroke is a lot more common than people think! I hope they find a good solution for you ❤️
As a result of listening to your excellent messaging following a stroke 15 months ago I have gained much positivity as it’s never been explained to me how I would cope with sleep problems and general rehab needs going forward. Please continue as it really does help me and millions of others. Many thanks Annie UK❤
I hate the fact that I keep needing naps during the day. It's been almost 2 years since my stroke and I sometimes feel like I'm worse now than I was when I left rehab, when it comes to sleeping and pain. This channel has helped me deal with the changes so much. Thank you.
I’m sorry you’re still dealing with sleep issues. I’m glad this channel has been helpful to you! ❤️ Have you been able to talk with your doctor about it?
@@PostStrokeOrg Recently moved and in the "finding doctors I like phase". Also recently moved could be causing some of the sleep issues. It's just nice that your videos are here to help, especially when my brain is like "is this normal?" at 3am :)
After my stroke, I notice I need 8-9 hours of deep sleep to feel refreshed and ready for a new day. I use to take melatonin to help me sleep, but lately Ive had excellent results by running a fan and streaming one of those singing bowls videos on my phone.
I finally realized the reason my sleep still sucks even 20 yrs post stroke. before my stroke I use to sleep on my stomach, but now my left arm shoulder are so tight I cant get comfortable on my stomach been sleeping on my back or side, I have also noticed since stroke I no longer dream.
I’m sure that change in position really makes a big difference. You’re not the first person who has told me that they don’t dream anymore post stroke! Thank you for sharing ❤️
Pre stroke i had bad insomnia and rls. After having a small stroke, i now fall asleep involuntarily. Usually around 1-2 hours. More like a nap. 3-4 hours at night. No more rls though which is good. But the stroke was a scary experience.
Out of the blue, I had a stroke (TIA) 31 days ago. I have recently lost 56 pounds, I don't smoke or drink, and I do not have hypertension. I understand that since I had a lacunar stroke in the past, I'm probably going to succumb to a brain bleed sooner rather than later. What can I do? I sleep 7 hours every night, and my only external damage seems to be weakness and I'm just now able to walk. Thank you.
Hello, I have a question about twitching occurring in the fingers of the effected side Does it mean the hand is waking up and the brain is remembering that it moves or is it just that the small finger muscles are tired from physical therapy?
@epicorcas Thank you for your question! It really depends. If you don't have any active movement, twitching may be a sign that the brain-muscle connection is rebuilding. Like you said, it may be that your muscles have just worked hard and are twitching due to overuse or stress. I would recommend talking with your physical therapist as they know your situation and medical background!
I'm 2+ years out from the stroke I had. For quite a while I was unable to get comfortable in bed due to pain or spasms. I would have to go sleep in a chair which helped but left me stiff as a board. I asked my doctor if I could try medical marijuana and she agreed. There has only been one time since I've been taking it that I have had to get up and sleep in a chair. I take a small dose, 0.20 - 0.25 cc nightly. It helps.
Thank you for all the information. My husband is exhausted after he eats a meal and takes at least a half hour to recover. Have you covered this in any of your videos. He has had two strokes within 9 months.
@marybaldwin4023 Yes! I have several videos on neurofatigue which sounds like what he may be experiencing. Here's a link to my neurofatigue playlist: th-cam.com/video/UKPh22MuU5A/w-d-xo.html I hope you find it helpful!
Hello Elyse, Many thanks also for this interesting video. I don’t have problems with sleeping which usually happens quite easily and even more easily after going out as I feel exhausted when I’m back home. I also think the medications, especially one, given after the stroke, makes me tired and at times even sleepy, during the day. It’s unfortunately one of the adverse effects. This said, if I would become prone to insomnia, I’d definitely follow the breathing techniques you mentioned knowing they can relax and help to sleep.
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I had a stroke exactly one year ago today. Channels like yours have been invaluable for my rehab. I am very happy with my progress. I don't have any problem falling asleep, but I wake up quite often. I am not concerned by this, it is just something I manage. Thank you very much for caring!
I’m so glad you’ve been able to use channels like Post Stroke to help in your home rehab! Thank you for sharing your experience. I’m so glad you’re feeling good about where you’re at ☺️❤️
Keep waking few time after stroke cannot sleep well. Need depand sleeping pill.
I sure could have use this 7 years ago!!! the famous words - BE Patient, be grateful your alive!!! take one day at a time. I am very thankful to have found you, and your blessed way to explain these things. your making a difference
Hello ..hi.. i'm from indonesia.. it's been 3 months since i had stroke and i always watch your channels too... it really help me recovering and improving .. thank you... first month i can't sleep very well too... and now the only disrupt me to sleep is just my upper arm gets painfull ..need to get comfortable sleep positions...i always do the exercise you share on this channel and it really help... love from indonesia
Hi from the U.S.! So glad to have you here!b I’m so glad you’re finding the channel helpful. Make sure you check out my Get Better Sleep After Stroke video linked in the description. I go in detail on different positions for sleeping! Thank you again ❤️
Thank you for talking to us like we are real people, not just patients
Of course! I started Post Stroke because I was so frustrated with the healthcare system, for many reasons, but one of them was that people are just seen as dollar signs. I’m a patient, too and want to be treated like a person as well, not a commodity!
I realize that when I can get at least 6 hours straight sleep I can function sooo much better the next day. I used to feel fearful and anxious right after my stroke cause my stroke happened in my sleep. I woke up to half my body not being able to move😢😢😢. I was fighting these NAPS during the day but I'll give it a try from today. Thanks Elyse ❤❤❤❤❤❤
Just seeing your crying emojis i fall onto myself just know. This is due to the fact that sincd my stroke hapened i was at home lisrening to music with my headphones conected to my tablat device on my sofa and the tab was charging.when it has charged i toked the chord charge cable and it faled out to ground i tryed to cache it with my left hand by that hand as like my keft side aas already sith no strength so easely i falled out from the sofa. I tryed to get out the flor of my living room but i couldn't so my mother who was at home caled the 911 for me to go to hospital. I laughed a lot about the surrealist thing that hapened to me. But know i falled to myself is that i was able to do so mang things, i was formed at fine arts i used to paint and draw, i was able tk play to guitar since i was 16 and this is sad because i don't do any of those things since i had the stroke 😢. I used to play and draw or paint everydays. This was my way to expressmyself and the way to be close to God. A unic way to pray.
@@ShayllaDEFigueiredo-cp1vv I hope it gets better for u soon.
@@hemasookram4655 thanks you. Hope God listens to my prayers.
Helpful as always!
@shanna9040 ❤️
I have, inherited a seizure disorder from left frontal brain Hemorrhage a few years ago. The doctors gave me an AED after stroke to mitigate the issues. Suffice to say getting a good nights sleep is daunting. However I am learning more throughout the process, open to insights. I gave up my CDL as I am on disability. Good 👍 channel😊
Omg, I am alwayssss tired! Just passed 1 year in end of January. Doing PT & OT twice a week, still. Had a sleep test 2 weeks ago; waiting for results. Apnea is suspected. Anyway, this was helpful as always. I will make sure I sleep as much as needed while my brain heals.
@theemilyelizabeth So glad you were able to get a sleep test done! Sleep apnea after stroke is a lot more common than people think! I hope they find a good solution for you ❤️
As a result of listening to your excellent messaging following a stroke 15 months ago I have gained much positivity as it’s never been explained to me how I would cope with sleep problems and general rehab needs going forward. Please continue as it really does help me and millions of others.
Many thanks
Annie UK❤
❤️❤️
I hate the fact that I keep needing naps during the day. It's been almost 2 years since my stroke and I sometimes feel like I'm worse now than I was when I left rehab, when it comes to sleeping and pain. This channel has helped me deal with the changes so much. Thank you.
I’m sorry you’re still dealing with sleep issues. I’m glad this channel has been helpful to you! ❤️ Have you been able to talk with your doctor about it?
@@PostStrokeOrg Recently moved and in the "finding doctors I like phase". Also recently moved could be causing some of the sleep issues. It's just nice that your videos are here to help, especially when my brain is like "is this normal?" at 3am :)
After my stroke, I notice I need 8-9 hours of deep sleep to feel refreshed and ready for a new day. I use to take melatonin to help me sleep, but lately Ive had excellent results by running a fan and streaming one of those singing bowls videos on my phone.
😩I had insomnia and my whole life. So sleep irregularity is not different for me. Nap! You're not lazy!
I finally realized the reason my sleep still sucks even 20 yrs post stroke. before my stroke I use to sleep on my stomach, but now my left arm shoulder are so tight I cant get comfortable on my stomach been sleeping on my back or side, I have also noticed since stroke I no longer dream.
I’m sure that change in position really makes a big difference. You’re not the first person who has told me that they don’t dream anymore post stroke! Thank you for sharing ❤️
my wife and i go for a walk to help sleep - started off with platform walker- moved to cane
Pre stroke i had bad insomnia and rls. After having a small stroke, i now fall asleep involuntarily. Usually around 1-2 hours. More like a nap. 3-4 hours at night. No more rls though which is good. But the stroke was a scary experience.
💖 ...and 🙏🙏🏽🙏🏼 for your worries.
❤️❤️
Thank you Elyse 😊
❤️
Out of the blue, I had a stroke (TIA) 31 days ago. I have recently lost 56 pounds, I don't smoke or drink, and I do not have hypertension. I understand that since I had a lacunar stroke in the past, I'm probably going to succumb to a brain bleed sooner rather than later. What can I do? I sleep 7 hours every night, and my only external damage seems to be weakness and I'm just now able to walk. Thank you.
Hello, I have a question about twitching occurring in the fingers of the effected side
Does it mean the hand is waking up and the brain is remembering that it moves or is it just that the small finger muscles are tired from physical therapy?
@epicorcas Thank you for your question! It really depends. If you don't have any active movement, twitching may be a sign that the brain-muscle connection is rebuilding. Like you said, it may be that your muscles have just worked hard and are twitching due to overuse or stress. I would recommend talking with your physical therapist as they know your situation and medical background!
Listen to sleep music weightless music. Since home afrer stroke.since working shift work body still like it in that mode.
Thank you
❤️❤️
Great video Elyse! You said 90 minute naps or 19 minute naps?
Thank you
90 minutes! Thank you for the kind words ☺️❤️
I'm 2+ years out from the stroke I had. For quite a while I was unable to get comfortable in bed due to pain or spasms. I would have to go sleep in a chair which helped but left me stiff as a board. I asked my doctor if I could try medical marijuana and she agreed. There has only been one time since I've been taking it that I have had to get up and sleep in a chair. I take a small dose, 0.20 - 0.25 cc nightly. It helps.
I’m glad that you found something that is working for you and that you tried it with your doctor’s supervision! ❤️
I fall asleep just sitting and watching something. I have chronic fatigue and I sleep at night, but always feel I could sleep more.
@joliesock2654 It can be really frustrating ❤️
Thank you for all the information. My husband is exhausted after he eats a meal and takes at least a half hour to recover. Have you covered this in any of your videos. He has had two strokes within 9 months.
@marybaldwin4023 Yes! I have several videos on neurofatigue which sounds like what he may be experiencing. Here's a link to my neurofatigue playlist: th-cam.com/video/UKPh22MuU5A/w-d-xo.html I hope you find it helpful!
Hello Elyse,
Many thanks also for this interesting video.
I don’t have problems with sleeping which usually happens quite easily and even more easily after going out as I feel exhausted when I’m back home.
I also think the medications, especially one, given after the stroke, makes me tired and at times even sleepy, during the day.
It’s unfortunately one of the adverse effects.
This said, if I would become prone to insomnia, I’d definitely follow the breathing techniques you mentioned knowing they can relax and help to sleep.
@marziaserena4247 Thanks for sharing, Marzia! I'm glad that you don't have issues with sleeping. It's so important for the healing process ❤️
Thank you for caring 🌸💟
Is it good to use sleeping pills
I take at night Quetiapina 25mg to sleep better since i was at the rehabilitation enfermary.
❤❤❤❤❤
@sajanninan4520 ❤️❤️❤️
I think it's more pain
👏😴👏