I have 2 close family members who are daughter's of a Huntington's mother. Both girls have gone on to have children. One being married to a doctor. I still cannot believe it.
@@ellogames96 so sorry. I have a friend whose siblings all had HD. She was riddled with guilt because she didn’t get it and some of her siblings guilted her by saying she need to take care of them because she was not HD positive. One of her sisters was a sweetheart in spite of the disease and it was heart wrenching to watch her suffer. She died several years ago but watching someone struggle like she did has never left me. I hope you have lots of loving support.
It is a very personal decision on what to do with your life if you have Huntingtons.It is not for us to judge their very difficult decisions.I just hope and pray that this terrible disease in families will one day be eradicated.
what? my husbend is the most amaizing man and husbend and father…. and what is it to you that i have the love of my life and he has now HD! it is our cross! every morning i wake Up i thank God he is here and i was the lucky one to have such a man! ❤
I dont think its fair even having ivf children knowing your going to die in such a debilitating way i wouldent want my children to see me like that its not fair
Please read my answer for this video and tak to doctors about it. I hope I'm right and if so, there's hope with existing drugs and relatively new CRISPR-CAS techniques.
I think maybe will be not good for them during that time, but if you leave an husband, at least he will have the children with him to support him, and help him when he get older.... he/her will not die with the person with HD. I agree with the possibility to have children free of this disease, and leave something from me to the next generation.♡
It's also really terrible to keep passing this disease thru generations. Families could wipe this disease out of their entire family line in just a couple generations if people who are positive stop having children.
@@QueenofMarine I think this disease can come to persons who don't have this disease in the family as well.... is just to do the in vitro fertilisation. Don't need to private to have children. Just need to do in another way. We need to be positive, they will find a vaccine. We are closer than before. 😊😊😊
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It makes you appreciate your own situation and be grateful. Very humbling.
May god be with all those with Huntington Disease.
I am so proud of all of you and wish you the best of luck .
I have 2 close family members who are daughter's of a Huntington's mother. Both girls have gone on to have children. One being married to a doctor. I still cannot believe it.
I am horrified to get tested. I needed this ♥️
Hannah - please reach out to us if we can help! We can connect you with others, professionals or provide guidance through our team. www.HDYO.org
Did you get tested in end? Or are you still undicided too.
hope dad don't got it but my grandfather has it. rather 25% then 50
Getting my results Thursday 😞
Got a cag of 45 😣
@@ellogames96 so sorry. I have a friend whose siblings all had HD. She was riddled with guilt because she didn’t get it and some of her siblings guilted her by saying she need to take care of them because she was not HD positive. One of her sisters was a sweetheart in spite of the disease and it was heart wrenching to watch her suffer. She died several years ago but watching someone struggle like she did has never left me. I hope you have lots of loving support.
@@ellogames96how are you doing. Praying for all affected by Huntington's.
Holy Smokes every single one of them girls are gorgeous!! 😉 Which ones are single?
It is a very personal decision on what to do with your life if you have Huntingtons.It is not for us to judge their very difficult decisions.I just hope and pray that this terrible disease in families will one day be eradicated.
It won't ever be if people don't find out if they are gene pos before having children.
Stop passing this awful disease on!
They can't stop breeding.
@@essenceofnothingness why not?
what? my husbend is the most amaizing man and husbend and father…. and what is it to you that i have the love of my life and he has now HD! it is our cross! every morning i wake Up i thank God he is here and i was the lucky one to have such a man! ❤
I dont think its fair even having ivf children knowing your going to die in such a debilitating way i wouldent want my children to see me like that its not fair
Please read my answer for this video and tak to doctors about it. I hope I'm right and if so, there's hope with existing drugs and relatively new CRISPR-CAS techniques.
I agree!
I think maybe will be not good for them during that time, but if you leave an husband, at least he will have the children with him to support him, and help him when he get older.... he/her will not die with the person with HD. I agree with the possibility to have children free of this disease, and leave something from me to the next generation.♡
It's also really terrible to keep passing this disease thru generations. Families could wipe this disease out of their entire family line in just a couple generations if people who are positive stop having children.
@@QueenofMarine I think this disease can come to persons who don't have this disease in the family as well.... is just to do the in vitro fertilisation. Don't need to private to have children. Just need to do in another way.
We need to be positive, they will find a vaccine. We are closer than before. 😊😊😊