A documentary following Mandy as she goes through her testing process for Huntington's disease. (Used in HDYO's Genetic Testing section). Please consider making a donation to HDYO here: en.hdyo.org/ev...
I've watched your video ten times and cry every time the negative results are given to you. Three of my four kids weren't so lucky. My oldest, a son , gene positive, committed suicide in 2019. My oldest daughter refuses to get tested, but obviously has HD.And my youngest daughter tested positive, and has survived two suicide attempts. We need a cure and soon.
I’m dating a woman who has this terrible illness. And she says this. I cry. Tell HER. Baby. Don’t do this. I love you and will miss you. Don’t talk like this. We need you. I tell her. Who will I make love to for 2hrs straight. I finally found you )). She smiles. Says you like that. I said honey. Best thing ever and holding you at night. Even with twitching.
There is a way to eradicate this disease.Get tested before having children.If gene positive either do not have children or have IVF...they can test the cells and only implant negative gene embryo.
It is hard for me to go on these channels. I am living through three generations of Huntington's Disease. I buried my Father in law, his daughter (my wife) my eldest daughter, and are at present caring for two more of my children with this illness. I am 72, should I live another 5 years I will have buried 3 of my 4 children. Only one daughter was negative. All children took the test and have produced no offspring to carry this gene further. Our line will die when my last two, in advanced stages, die. It has affected the "chosen one" so much that she has difficulty in watching her siblings deteriorate. There are no winners. My sole pupose in life is to see this through to the end. Not a journey for the faint hearted. I was stabbed twice, had one burn my home to the ground etc etc. Most know what it entails. The answer is fogiveness. And unconditional love. He burnt the home down, I had it rebuilt and brought him home. They suffer so much. It truly is the Devil's own disease. Thankfully there is a light on the horizon and in the near future they will have the cure, if not, the pathway to manage this illness. Bless you all.
My fiance, now deceased, had a similar story, except he passed from another condition, diabetes complications at age 50. His first wife had it. One son had it while my guy was still alive. 1 son was killed in an accident, and now, 22 years after the fiance died, I found out his 2 other children have it. One daughter has 2 children. I had spoken with her years ago and she said she would definitely get tested before she decided to have kid. Obviously she did not. Such a tragedy to pass the chance on when there is testing. I have noticed through postings though that those who are reluctant or do not test are the most likely to have it. Makes one wonder just how early the judgement impairment sets in. Their brain knows, but their emotions deny. I watched the devistation and would not wish that on anyone or any family.
Blackduck46 wow I dated a girl both her father and her have Huntington’s disease. I really liked her. I spoke to her about getting Married and having kids, She told me about her condition and that she didn’t want to pass it on to a future generation. I really never understood until now 2 years later.
misafvful That’s so devastating, she loved you so much that she couldn’t let you watch her suffer and die a slow and painful death and risk passing on her condition to a new generation if you had kids. Still, if you can’t stop thinking about her and you know she’s the girl for you - go and get her, and hold onto that love even if you know she has less time on this earth than most people have. If you have found love again then I’m so happy for you, and I’m sure she would understand and be happy for you because when you truly love someone you put them first above all else. Good luck on your journey, follow your heart.
Still Ill I wish I would have understood earlier. I think what we had was beautiful I’m just glad I understand now . I could seek for her again but i won’t be sure if she will remember me. I saw her go through some episodes that at the time I didn’t understand.
Mandy may your life be full of joy...and love and a dozen children!!!....Your video brings back memories for me...As a 5 yo I was placed in care due to my mother being ill .When I was a boy of 12 , I was told my mother had died of HD a year earlier.....I didn,t know what HD was....this is such a cruel disease....families are fragmented...so much pain and fear....When I was in my early 30,s I was contacted by some lovely caring folk from HD Australia who asked me what I knew about HD....and that of my mother,s 4 children my sister and 2 brothers were stricken with HD....I had not seen them/no memory of them as we were separated and placed in care...names changed etc.....This came as a shock....I was informed that a test was available.....the HD support folk were so very caring.....After counselling I opted for the test.....the walk down the corridor to receive the results was the longest walk in my life.....I remember the lovely HD support person Iris and the very kind and humble Psychiatrist Dr Marshall bringing their chairs closer to mine....and when they said the results indicate you are not at risk of inheriting HD...I burst into tears...hugged Iris and picked up Dr Marshall in a bear hug....he is a slim man...and I am 120kg and 186cm tall and I was shaking and crying inconsolably and laughing.....Mandy I fully understand your emotions.....Emotions bottled up for years....avoiding relationships....debating in your mind whether to have children....how to plan your life....not wanting to be a burden.....I feel so very grateful...but also feel survivors guilt.....To all the folks out there touched by HD I wish you all the very best....and pray that treatment for HD shall allow all to have a quality of life....filled with love, best wishes Marcus in Australia
At 35, I was in denial about HD. Till one day I decided I could no longer live with the uncertainty. All my siblings felt the same. One by one we were tested at Guy's Hospital, London. Out of seven of us, my brother was the only one who tested positive. We knew. He'd been showing signs for a while. He lived a good life. He has two IVF children, two grandchildren and a full life till he was fifty and now at fifty nine, at stage four, lives in a wonderful care place, where he is loved and cared for. He's happy. His world is different to ours, but he's ok. ❤❤
At stage 4 patients are bedridden, can barely move and CAN'T COMMUNICATE with the strangers that tend to their needs. But if you say so, then of course.... it's all sunshine and lollipops. 😒
Thank you for giving me the strength to conquer my fears. Watching your video was so true to how I've felt for so many years. From my early teens this horrible disease has been thrust into our lives. My father so influential to me, started to change with mental and physical personalities and was eventually diagnosed, along with his sister, in 1991 at the age of 45. Me , mom and 2 other siblings saw dad change from been a super racing hero to a dad who beyond his control diminished rapidly in 12 years not being able to feed or dress himself. This horrible disease took my dad's spirit and eventually his life. Unfortunately being a 50/50 disease it's now taken over again in my 2 sisters. It just feels like it won't go away. But watching this video, after more than 30 years of not knowing , has finally given me the strength to conquer a result. And after the longest month of my life, I was given a result that my genes repeated 17 and 20 times and I would not develop Huntington's. After 30 years of pure fear has turned into elation and I THANK YOU from the bottom of my heart giving me the courage. I just want to let anyone going through this to know there is a chance of good news when everything seems so stacked up against you
@Dissenting Tirade i get you'r point and i am living my life by doing the best i can to remark my life with great achievements . but i think i might get in to deprecation if i know for sure that i will get sick with hd in my 40 or 50 :(
HD runs in my family, did you ever feel like you had symptoms of HD like the mood swings, trouble concentrating, forgetfulness, etc? I am so scared to get tested, I am going to be 37 and I pray asking God every that my mom didn't have HD, she never was tested for it and she passed away from liver failure in 2005.
I worked in a day hospital for people with Huntington's or early onset dementia, after leaving school. It was the best thing I did. These people were so brave! And all walks of life - a university lecturer with Alzheimer's, a former model with Huntington's - these diseases do not discriminate. But they all lived such full life's in spite of their diagnoses. I'm so glad I had the privilege of working with these people. I was a selfish brat in high school who felt the world owed me something. I'm glad to say the experience changed me, I just wish we could change the outcome for those affected by HD.
Please, don't say brave. My mother had HD and it was horrific watching it destroy her mind and body as I cared for her. I have yet to be tested for it and didn't have children and I didn't want to go through ivf. People with it would rather not have it than be labelled "brave" which I think is patronising. This disease is one of the cruellest to exist and if I test positive I wouldn't stick around to be bedbound in diapers and choke on food. There is no bravery or dignity in it only theft of your body and mind.
I actually got so involved I raised my fists in the air and started pumping them up and down and yelling "YES! YES!" when Mandy found out the prognosis. Awesome! I have a 31yr old son and a 23yr old daughter who are both in the 50/50 group. Their mother is in late 2nd stage/early 3rd stage HD. Their grandmother, Aunt and great-grandmother all died of HD. It is a horrible, despicable, cruel disease. LET'S GET A CURE NOW!!!
I destroyed a big piece of my life because I didn't test me. But when I finally was tested i didn't have it. But I am happy for every day now. I hope you have a wonderful life. Love from Sweden.
HD runs in my family, I don't know if my mother ever had HD she passed away from liver failure in 2005. I'm 37 amd so scared to get tested, I pray asking God every day that my mother didn't have the gene. I'm so happy you don't have it, that's amazing. Did you feel like you could have symptoms of HD before you were tested? Like trouble focusing, anxiety, mood swings, etc.? I feel like a lot of symptoms can be similar to HD and it not be. It's so sad and I hope one day they find a cure. My aunt has it and she is still doing good and still can do most things on her own. My grandfather was 74 when he passed away from HD, he had it pretty bad.
@@elizabetholson6725at what age your grandfather started the symptom? I’m asking you because he lived until 74. My husband is 54 now and he still refuses to be tested. I would like to know so we can start planning our future if is positive, for example, costumes our house. But, at the end it’s his decision. He also have 2 kids and don’t want to talk about HD to his kids and he’s already grandfather.
thank you for sharing this, brings back those feelings I had when I received my results 21 years ago which still feels like yesterday. My emotions that day identical to yours and I just wish everyone else going forward gets the same negative result x
I am so happy for you that you will never have to go through the pain of having that devastating disease. And I hope that you live a long, full and happy life. All my best wishes for you and your family.
My test was positive too but my repeats are low. I have just really started seeing extreme changes in my memory and reading comprehension. Plus my anger becomes explosive. ❤️
@@huntsman145 Actually this person is most likely some type of scammer who will try to take advantage of people who make the mistake of giving them any of their time.
Very powerful video- HD runs in my family. I have epilepsy and sometimes I start feeling sorry for myself, but I do not have HD and when I see what my Aunt has to endure, I count my blessings. In the end we all have to love the things we do have, the people, the family, and each day we get to live
I have epilepsy too. Certainly not as horrific as HD. At least with HD though the vast majority of those carrying the gene will not exhibit symptoms until middle age, which I am now. My epilepsy started at 16 and it has destroyed my confidence and my attitude towards life knowing that I am at risk for seizures. It is wonderful that this young lady tested negative for HD. As s person with epilepsy (at least my form of it) I understand why some people at risk for the HD elect not to have children.
Watching this just brings me to tears. Everything you said is how I feel right now and have for the last few years. I still have not been tested but think about it every day. Thanks for sharing your story.
Thank you for being so brave, for looking the most excruciating thing every human has to face head on. My husband has not been tested and it eats at him every day as he ages. His dad, 2 uncles, and grandfather all died by 43. He’s 36. People (including his mother) seem to not think IVF is necessary, but seeing this and your agony (like his) ensures me that I will do whatever it takes to have a healthy baby. God bless and your dad for sure is watching over you, telling you he loves you over and over...
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
You are brave 🙏🏻 chronic illness is never easy... Been sick all my life now my geneticist offered the option to test. Very nervous! At least if i tested positive it would get rid of the toxic people in my life who assume i just dont want to work 😢 I already have lyme disease which is tough enough. God bless you on your journey brave soul and soak up every bit of happiness you can in life ❤️ live for you and yours.
iv been living with HD in my family since 1987 when my nan passed with it i also lost my mum my brother and my uncle to it and as i write this comment my nephew is in the middle stages of it . its a horrendous condition to live with for the HD sufferer and its not much better for the family who dont have it as effects everyone close to them . i have been tested and i dont have it myself but i ensured i was test before i started my family because if i had been diagnosed with HD and there was a 50/50 chance of me passing it on id have never started a family! god bless anyone who is suffering HD in one way or another weather your a family member or a carer to the patient you are all angels with a heart gold
Imagine knowing its a coin toss and you land on the right side. I hope she went on to have all the kids she ever wanted and has a beautiful, wonderful life.
Very emotional video, I am ecstatic for you! I too tested negative but my sister was not. She is living with HD and so is my dad. I have a sister with 4 children that has not been tested. Prayers for a miracle to stop this brutal disease. Prayers for all who are touched by HD. Again, so happy for you. It was torture to make the decision to be tested and unbearable waiting. It took 12 days for my results to come back. I also would like to share that If you have siblings and someone is positive it is really hard to be happy that you are negative. I have survivors guilt and found it almost impossible to tell her I was negative. I am so happy for my children as they have been very affected watching my dad and now sister fight this ugly disease. God bless you all.....
Hi Mandy, Thanks for your video, my dad may have Huntingtons, will find out soon, if he has I am going to get tested, I have a son with Duchenne Muscular Dystrophy which is another terrible genetic disease and I am praying that he does not also have this too. You are so so brave, and I really hope you have a wonderful life! Andy
I am so happy for you. This is a terrible disease. My daughter just past away in January after a 15 year battle with Juvenile Huntington's Disease. I pray every day for a cure for this disease and families will no longer suffer from the turmoil and heartbreak that it brings into their lives.
I'm so sorry to hear that Danielle. I'm assuming you may have had family experience of the disease, no doubt that complicates your experience further. I'm glad that my heartfelt admiration is something that gives you comfort. HD, as a single-gene disease has good prospects of a disease modifying therapy in the near future. Saying that, I don't at all mean to minimise the trauma of what you're going through right now. Stay hopeful. - T
If a person in a family has it all family members before they have children should be tested! Stop peoples suffering from that strange horrible disease, it's so unfair and heartbreaking
I have a friend whose family has been ravaged by this horrific disease! So happy that you won't have to experience it yourself. It's sad enough that you've had to see your family suffer. 🌺
My mom has HD too at a very rising final steps now, it's hard to know that she never told anyone and never wanted to get me and my brother tested, we raised up living in horror, and my mom hasn't never been a mom, I wish I had her, wish I could forgive, say it all was the disease. But it hurts to know how you were treated, well now my brother got the test, and his was positive, so that means that he tries to live his life now as he wants to, and I hope he is happy, I'm turning 19 in 14 days and I hope that after my 2 year old education I will be more okay to take the test too, and hope to get a life with my fiance without thinking of eding up like that. My sister in law told my fiance that if he wasn't ready for what could happen to me if I was tested positive, then he should walk out the door, and that is long time ago now. I hope to give my future kids a future and a life knowing they're parents love them, give them a life that I did not get. To all you out there, good luck, cause this is the only thing I think is worse than cancer. I hope you all understand my story, aand write me if you want to know more. I would never give my kids a life with HD, and even if I have it, then they need to know that no matter what happens, then I'll always love them, and Jonas as well! Louise
My dad had HD and yes his behavior was hard to live with. Finding out he had HD helped me forgive him because it was due to H D brain dysfunction. I know you will be a wonderful mom whatever happens because you understand. God bless you!
My wife might have it, fingers cross for my beautiful wife doesn't. I love my wife very very much and I 'll take care until my wife dies in my arms. My wife cried when I said that. Seven years together and many many more. A cure will be around the corner.
Oh thank you for posting this. I'm going threw the same thing right now! Everything that was said about every twist and twerk it just could be the beginning! I'm the only child my mom is 54 and in the last stage of HD. I'm 29, and want children when I was 14 I said when i turn 18 I'm going to go get tested, but never did. It hits really early in my family my two cousins are 26 and are really showing signs. I show nothing, but you never know. Thank you again for sharing this video. RIP Merrill family
I just watched your video. I am so happy for you. My ex husband died this past January from Huntingtons disease. I worry about our son every single day
Let me ask you a question so that I can relieve your worries.Do you have any predecessors that had this disease.If not,your boy is 100% safe.If you had a family member which suffered this disease,then your boy is 50% safe.I hope you didnt have anyone in your family who suffered this disease
This is the 2nd time I've watched this video the first time I cried like a baby which I'm sure will happen again but I just wanted to say that this video was so well produced that you feel what she feels, the emotion is so raw it captures the feelings one would have with the agonizing wait for the results of the blood test. I couldn't imagine the psychological trauma she went through.
I’ve almost cried after watching your video from Thailand . So happy for u and I’ certainly sure that whoever has had got through the period of this kind of this situation would feel the same. Wishing u a delightful future.
hey mandy. I am so sorry for you and the loss of your father. I really hope that you test negative. I hope that you can get through this very tough time. I believe that you will with the love and support of your family. All my best wishes for you and your family.
My sincere condolences to you and your family. Have a high school friend whose husband had Huntington’s disease. I don’t even know if they understood any of it. The genetic thing or whatever. They had five children together. The children are now having their own children. I do not see it ending well. It breaks my heart for all of them.
My mom and grandma died of Huntington's. My mom died at 26 I was only 10 at the time. I didn't get to live with my mom very long only when I was really young. My mom didn't even get to see her mom because my grandma died when my mom was two weeks old. I have 3 younger siblings that can have a chance at getting it too. I'm getting tested on October 7th, in Mason City. I really hope it's negative but I really don't think it will be. I have a few symptoms already. I have lose of balance, starting to have speech problems, and weakness in my arms and hands. I'm not going to have kids if it is positive because I don't want my kids to end up without a mom. I also don't want them to have a chance at getting the disease.
I'm so happy for you, my mother was lucky that she the oldest of 11 didn't have this gene, my uncle just died with HD 2 days ago and it just makes you think about how we are so lucky in our family but I hurt so much for people who have to go through this horrible disease, you are brave 💜
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Why do we need to share in this pain? I KNOW how much pain is in the world. I need to be in the light. God bless you ❤️🙏🏻 This is what gratitude looks like, friends!
I thought it odd also. Her best friend cried joy tears with her. But thinking about it more both her mother and husband needed to process it for themselves also. Either way, positive or negative test results, there was alot to process and internalize for the years and days leading up to the day she got her results. I know for myself once I let the emotion and tears flow it goes to the crazy place that I would not want on a public video.
I’d take the risk of finding out. I think if I had it I’d make sure to live to the fullest and cherish every moment and if I didn’t have it it would 100% put my mind to rest and would still make me appreciate moments in life. Also, if I had I had it I would want to know before deciding whether or not to have children
that fear that the disease may start anytime and questioning if that event is the beginning of it all,that is the worst thing, and then the wondering of whether you want to be tested and know... Even if I were to test negative it would not make me any less worried because my sister or older brother my carry the gene inside them. I would in a way feel selfish in being happy with a negative test result.
You right. But feeling good when something good happen to you is not bad, you just have to hide your happiness so that the less fortunate people around you doesn't feel bad . So as long as you not making them uncomfortable then it's fine. And I can tell from your words that you are very nice person .feeling guilty about your wellness just because your loved one is in pain. So I know for sure you won't let them feel bad by your action because you will be over careful about that
That was my thought too. I started crying myself, while watching her hearing the result....But I guess we are all different and show emotions differently. The video has quite poor quality on my screen, but I think I can see her mother crying quite a bit, and perhaps she got "paralyzed" in the crying.
Wow what a heart wrenching story . That kind of pressure is terrifying . To have a 50% chance of getting one of the most terrible diseases in the world .
I was diagnosed at 50 but after 16 yeAr i feel like I am dying every day I go throug Many relatives. Have died forward. I think as I get older there are fewer and fewer relatives left. Right now I am going through. The pandemic makes me feel bad but mybrelatives are dead
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
Your story touched my heart cause I can definitely relate cause I love to run and my dad had hd❤️❤️❤️. I decided not to get tested until I got symronatic cause there’s no cure. My mom was harassing me to get tested as soon as I turned 18, but I said no cause I didn’t want to be thinking about it all the time. I’m from Los Angeles and there’s a lot of things I did a lot of things with family and friends. Some of my favorite things to do were clubbing, my drinks, shopping, traveling, driving, rode trips, cooking,baking from scratch, bbq, music concerts, movie theater, restaurants,pool, bowling etc. I’m so happy that you texted negative, but if you were positive at least you had your husband to support you ❤️❤️❤️. I’m single and I don’t have any kids, but I have my family and friends who are very supportive of me ❤️❤️❤️. I I’m 39 and I tested positive, but I’m still happy and positive. I’ enjoyed my life to the fullest and I did all these things cause I’m a surgical RN.
I just found this video. I have lived this nightmare through my fiance (now deceased) whose first wife died of the disease. Oldest child had it from about age 10. He passed at age 44. I saw the devistation of the disease on that family. Horrible. Having children without testing is holding a loaded gun to your child's head. This disease can be almost eradicated in 2 generations with testing, which has been a available for 30 years or so. Emotional, but it is a selfish act not to do it, which, by the way might be some of the first signs of impairment.
My father had HD and was a very violent , nasty person. Our childhood was full of fear. I just want to know if any body else’s parent with this horrible disease was violent as well or would my father have been like that without HD. Please please answer if you can help. It would make sense of my childhood if I knew he couldn’t help the things he said and did. Thank you .
HI Miriam - anger and violence can definitely be elevated while dealing with Huntington's Disease, but everyone's situation is unique. The toughest part is trying to separate who your dad is/was versus who he is/was based on how Huntington's Disease is affecting his mind/body. It is not easy and one of the most difficult parts for young people in families impacted by HD. Please check out our website and email us if we can be of any assistance in elaborating on your question. info@hdyo.org
HDYO thanks a mill for answering. I’ll check out your web site. Everyone says mood swings but my dad was all smiles one minute and punch you in the face the next. I can live with that memory if it wasn’t his fault, strange as it may seem. Thanks again🙂
My father was erratic, unreasonable, nervous, angry, lacked good sense, hoarded, and was very difficult. This was most apparent when I was a teenager. He lost his job but they suggested he see a neurologist and we found out he had HD. That showed me the reason for his difficult behavior....it put things in perspective, and I was able to forgive. I hope you can forgive and live a good life now.
when i choose to get tested and see if i got it from my mom, the day i was going to get the results i woke up just with this deep gutting feeling like i already know how its going to end, that i would test positive and i had this feeling all day till i was in the room with my counselor i had to get accepted for the test, and the doctor told me it was positive and as soon as i heard that it went away and i just went into a mode where everything was a blur except my thoughts on being positive with this disease and what it would be like after seeing my mother struggle with it.
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I have hd my dad died from it and im hope full fir a cure. If not my generation the next. Iv nade peace with my death wish iv been thru hell and back . iv had a rough life u could say and single mom since i was 14 i have 4 kiddos i didnt know anything til my dad died. Iv been apart of some trials and still invilved
Wish I was lucky you everyone though I didn't have it but I new had a feeling I did I got test a few mouth back now I didn't cry when I got told or that weird but I cry later that night I got a little boy I just feel bad he got to go though everything I when though with my mum :'(
I truly don’t understand it, if you know and have watched people in your family members die or are living with this awful disease but still chose to have children. Why ? Please explain to me, if I knew then I would never ever have children cause that would mean passing on a horrible disease and that would be my fault, I would adopt. I could not sign a death certificate to my own child but that’s what it would be. It’s so damn selfish to do that and not only that but a good chance this child would watch you die. Nope I couldn’t do that.
I also just found out about a woman whose mother and brother died of the disease. I had talked to in earnest about 23 years ago about being tested. Lost track of her. I just discovered she married and had 2 children. Now she has it. Horrible that she passed it on, even when she said she would get tested before she had children. She joined the military at 17. Her letters home started making less sense. She could not pass a test for advancement. Dad (now deceased from diabetes) was pretty sure she had it. He watched his wife, one son and in-laws go through it. What I am seeing in these vids, and by personal experience, is that the ones who end up with it are the ones who will not test. Intuition perhaps, or is denial in very early stages part of the disease. Judgement is one of the first things to go. So sad for the test.
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
This hits home with me cause I got tested too around the same year. The only difference is I have it. My hope is for a cure one day. I have a 3yr old daughter. I wouldn't change a thing. We never know the light at the end of the tunnel if we tap out early in the race. Yes I was told that based on my results it was unlikely my daughter would have the child form. I was also told they wouldn't do testing if I was not going to abort. I was even told by family members that's what I should do. But I didn't. I prepare for the worst but hope for the best. I also have 2 sisters one in denial untested and with 2 boys. The other tested 2 girls one with child form of Huntingtons disease the other a new infant.
I've watched your video ten times and cry every time the negative results are given to you. Three of my four kids weren't so lucky. My oldest, a son , gene positive, committed suicide in 2019. My oldest daughter refuses to get tested, but obviously has HD.And my youngest daughter tested positive, and has survived two suicide attempts. We need a cure and soon.
So sorry for your pain. God be near and give you comfort!
I’m dating a woman who has this terrible illness. And she says this. I cry. Tell HER. Baby. Don’t do this. I love you and will miss you. Don’t talk like this. We need you. I tell her. Who will I make love to for 2hrs straight. I finally found you )). She smiles. Says you like that. I said honey. Best thing ever and holding you at night. Even with twitching.
Did you know about HD running in your family/partner‘s family when you had kids?
There is a way to eradicate this disease.Get tested before having children.If gene positive either do not have children or have
IVF...they can test the cells and only implant
negative gene embryo.
@@ninakoch1799 No we didn't
It is hard for me to go on these channels. I am living through three generations of Huntington's Disease. I buried my Father in law, his daughter (my wife) my eldest daughter, and are at present caring for two more of my children with this illness. I am 72, should I live another 5 years I will have buried 3 of my 4 children. Only one daughter was negative. All children took the test and have produced no offspring to carry this gene further. Our line will die when my last two, in advanced stages, die. It has affected the "chosen one" so much that she has difficulty in watching her siblings deteriorate. There are no winners. My sole pupose in life is to see this through to the end. Not a journey for the faint hearted. I was stabbed twice, had one burn my home to the ground etc etc. Most know what it entails. The answer is fogiveness. And unconditional love. He burnt the home down, I had it rebuilt and brought him home. They suffer so much. It truly is the Devil's own disease. Thankfully there is a light on the horizon and in the near future they will have the cure, if not, the pathway to manage this illness. Bless you all.
May the Lord wrap His loving arms around you and give you the peace that passes all understanding.
My fiance, now deceased, had a similar story, except he passed from another condition, diabetes complications at age 50. His first wife had it. One son had it while my guy was still alive. 1 son was killed in an accident, and now, 22 years after the fiance died, I found out his 2 other children have it. One daughter has 2 children. I had spoken with her years ago and she said she would definitely get tested before she decided to have kid. Obviously she did not. Such a tragedy to pass the chance on when there is testing. I have noticed through postings though that those who are reluctant or do not test are the most likely to have it. Makes one wonder just how early the judgement impairment sets in. Their brain knows, but their emotions deny. I watched the devistation and would not wish that on anyone or any family.
Blackduck46 wow I dated a girl both her father and her have Huntington’s disease. I really liked her. I spoke to her about getting Married and having kids, She told me about her condition and that she didn’t want to pass it on to a future generation. I really never understood until now 2 years later.
misafvful That’s so devastating, she loved you so much that she couldn’t let you watch her suffer and die a slow and painful death and risk passing on her condition to a new generation if you had kids.
Still, if you can’t stop thinking about her and you know she’s the girl for you - go and get her, and hold onto that love even if you know she has less time on this earth than most people have. If you have found love again then I’m so happy for you, and I’m sure she would understand and be happy for you because when you truly love someone you put them first above all else. Good luck on your journey, follow your heart.
Still Ill I wish I would have understood earlier. I think what we had was beautiful I’m just glad I understand now . I could seek for her again but i won’t be sure if she will remember me. I saw her go through some episodes that at the time I didn’t understand.
I was tested at 28, I tested negative...Most of my family are gone because of HD, I am relieved for you, and thanks for sharing :)
Reply me plz
Sorry for your family lost☹💗🌻
@@mumr4268 thank you :) regards Michael :)
This video and your comment had learnt me that my problems are nothing. L'ets take thé best of the life we have one ! (I'm sorry for your family)
@@benjilds6860 thank you 😊
Mandy may your life be full of joy...and love and a dozen children!!!....Your video brings back memories for me...As a 5 yo I was placed in care due to my mother being ill .When I was a boy of 12 , I was told my mother had died of HD a year earlier.....I didn,t know what HD was....this is such a cruel disease....families are fragmented...so much pain and fear....When I was in my early 30,s I was contacted by some lovely caring folk from HD Australia who asked me what I knew about HD....and that of my mother,s 4 children my sister and 2 brothers were stricken with HD....I had not seen them/no memory of them as we were separated and placed in care...names changed etc.....This came as a shock....I was informed that a test was available.....the HD support folk were so very caring.....After counselling I opted for the test.....the walk down the corridor to receive the results was the longest walk in my life.....I remember the lovely HD support person Iris and the very kind and humble Psychiatrist Dr Marshall bringing their chairs closer to mine....and when they said the results indicate you are not at risk of inheriting HD...I burst into tears...hugged Iris and picked up Dr Marshall in a bear hug....he is a slim man...and I am 120kg and 186cm tall and I was shaking and crying inconsolably and laughing.....Mandy I fully understand your emotions.....Emotions bottled up for years....avoiding relationships....debating in your mind whether to have children....how to plan your life....not wanting to be a burden.....I feel so very grateful...but also feel survivors guilt.....To all the folks out there touched by HD I wish you all the very best....and pray that treatment for HD shall allow all to have a quality of life....filled with love, best wishes Marcus in Australia
thank you for sharing your story. I'm sorry for your losses and grateful for your personal outcome.
At 35, I was in denial about HD. Till one day I decided I could no longer live with the uncertainty. All my siblings felt the same. One by one we were tested at Guy's Hospital, London. Out of seven of us, my brother was the only one who tested positive. We knew. He'd been showing signs for a while. He lived a good life. He has two IVF children, two grandchildren and a full life till he was fifty and now at fifty nine, at stage four, lives in a wonderful care place, where he is loved and cared for. He's happy. His world is different to ours, but he's ok. ❤❤
kala kalim he has kids without using his seed- his kids cannot get it. They biologically aren’t even his.
@@taylorscott7402 STOP
At stage 4 patients are bedridden, can barely move and CAN'T COMMUNICATE with the strangers that tend to their needs. But if you say so, then of course.... it's all sunshine and lollipops.
😒
Thank you for giving me the strength to conquer my fears.
Watching your video was so true to how I've felt for so many years. From my early teens this horrible disease has been thrust into our lives. My father so influential to me, started to change with mental and physical personalities and was eventually diagnosed, along with his sister, in 1991 at the age of 45. Me , mom and 2 other siblings saw dad change from been a super racing hero to a dad who beyond his control diminished rapidly in 12 years not being able to feed or dress himself. This horrible disease took my dad's spirit and eventually his life.
Unfortunately being a 50/50 disease it's now taken over again in my 2 sisters. It just feels like it won't go away.
But watching this video, after more than 30 years of not knowing , has finally given me the strength to conquer a result. And after the longest month of my life, I was given a result that my genes repeated 17 and 20 times and I would not develop Huntington's. After 30 years of pure fear has turned into elation and I THANK YOU from the bottom of my heart giving me the courage.
I just want to let anyone going through this to know there is a chance of good news when everything seems so stacked up against you
it's hard tho ... i am afraid and i can not test . i don't think that i can handle it
@@alateerlifestyle1368 reply if you read this comment
@Dissenting Tirade i get you'r point and i am living my life by doing the best i can to remark my life with great achievements . but i think i might get in to deprecation if i know for sure that i will get sick with hd in my 40 or 50 :(
@@ankitasharma8990 i replayed thankyou
HD runs in my family, did you ever feel like you had symptoms of HD like the mood swings, trouble concentrating, forgetfulness, etc? I am so scared to get tested, I am going to be 37 and I pray asking God every that my mom didn't have HD, she never was tested for it and she passed away from liver failure in 2005.
Someone needed to hug that woman after she found out she her test results!
I worked in a day hospital for people with Huntington's or early onset dementia, after leaving school. It was the best thing I did. These people were so brave! And all walks of life - a university lecturer with Alzheimer's, a former model with Huntington's - these diseases do not discriminate. But they all lived such full life's in spite of their diagnoses. I'm so glad I had the privilege of working with these people. I was a selfish brat in high school who felt the world owed me something. I'm glad to say the experience changed me, I just wish we could change the outcome for those affected by HD.
How thoughtful and kind you seem. I wish you the very best. The world should be filled with people like you.
Please, don't say brave. My mother had HD and it was horrific watching it destroy her mind and body as I cared for her. I have yet to be tested for it and didn't have children and I didn't want to go through ivf. People with it would rather not have it than be labelled "brave" which I think is patronising. This disease is one of the cruellest to exist and if I test positive I wouldn't stick around to be bedbound in diapers and choke on food. There is no bravery or dignity in it only theft of your body and mind.
OMG I burst out crying with her. The most raw and real video I have ever seen on TH-cam.
I actually got so involved I raised my fists in the air and started pumping them up and down and yelling "YES! YES!" when Mandy found out the prognosis. Awesome!
I have a 31yr old son and a 23yr old daughter who are both in the 50/50 group. Their mother is in late 2nd stage/early 3rd stage HD. Their grandmother, Aunt and great-grandmother all died of HD. It is a horrible, despicable, cruel disease. LET'S GET A CURE NOW!!!
I destroyed a big piece of my life because I didn't test me. But when I finally was tested i didn't have it. But I am happy for every day now. I hope you have a wonderful life. Love from Sweden.
HD runs in my family, I don't know if my mother ever had HD she passed away from liver failure in 2005. I'm 37 amd so scared to get tested, I pray asking God every day that my mother didn't have the gene. I'm so happy you don't have it, that's amazing. Did you feel like you could have symptoms of HD before you were tested? Like trouble focusing, anxiety, mood swings, etc.? I feel like a lot of symptoms can be similar to HD and it not be. It's so sad and I hope one day they find a cure. My aunt has it and she is still doing good and still can do most things on her own. My grandfather was 74 when he passed away from HD, he had it pretty bad.
@@elizabetholson6725at what age your grandfather started the symptom? I’m asking you because he lived until 74. My husband is 54 now and he still refuses to be tested. I would like to know so we can start planning our future if is positive, for example, costumes our house. But, at the end it’s his decision. He also have 2 kids and don’t want to talk about HD to his kids and he’s already grandfather.
thank you for sharing this, brings back those feelings I had when I received my results 21 years ago which still feels like yesterday. My emotions that day identical to yours and I just wish everyone else going forward gets the same negative result x
I am so happy for you that you will never have to go through the pain of having that devastating disease. And I hope that you live a long, full and happy life. All my best wishes for you and your family.
My test was positive too but my repeats are low. I have just really started seeing extreme changes in my memory and reading comprehension. Plus my anger becomes explosive. ❤️
Amber how are you now?
Plz reply
I hope you’re well, Amber.
@@ankitasharma8990 You don't care. You're just curious. It's in poor taste.
@@huntsman145 Actually this person is most likely some type of scammer who will try to take advantage of people who make the mistake of giving them any of their time.
wow, that's extremely touching...the moment she finds out is just undescribable
Very powerful video- HD runs in my family. I have epilepsy and sometimes I start feeling sorry for myself, but I do not have HD and when I see what my Aunt has to endure, I count my blessings. In the end we all have to love the things we do have, the people, the family, and each day we get to live
Well said +KO Bossy ! Thank you for watching and sharing!
I have epilepsy too. Certainly not as horrific as HD. At least with HD though the vast majority of those carrying the gene will not exhibit symptoms until middle age, which I am now.
My epilepsy started at 16 and it has destroyed my confidence and my attitude towards life knowing that I am at risk for seizures.
It is wonderful that this young lady tested negative for HD. As s person with epilepsy (at least my form of it) I understand why some people at risk for the HD elect not to have children.
Epilepsy here, too. But 3 of my 4 cousins are HD positive and we lost One in her 20’s. Love. That’s the only answer that matters.
What a relief for Mandy, i do hope shes doing well in life, shed a tear when the test results came.
Watching this just brings me to tears. Everything you said is how I feel right now and have for the last few years. I still have not been tested but think about it every day. Thanks for sharing your story.
Thank you for being so brave, for looking the most excruciating thing every human has to face head on. My husband has not been tested and it eats at him every day as he ages. His dad, 2 uncles, and grandfather all died by 43. He’s 36. People (including his mother) seem to not think IVF is necessary, but seeing this and your agony (like his) ensures me that I will do whatever it takes to have a healthy baby. God bless and your dad for sure is watching over you, telling you he loves you over and over...
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I got tested because I have dealt with the mental torment for years and always knew it. I am gene positive and will fight every battle of the day.
You are brave 🙏🏻 chronic illness is never easy... Been sick all my life now my geneticist offered the option to test. Very nervous! At least if i tested positive it would get rid of the toxic people in my life who assume i just dont want to work 😢 I already have lyme disease which is tough enough. God bless you on your journey brave soul and soak up every bit of happiness you can in life ❤️ live for you and yours.
iv been living with HD in my family since 1987 when my nan passed with it i also lost my mum my brother and my uncle to it and as i write this comment my nephew is in the middle stages of it . its a horrendous condition to live with for the HD sufferer and its not much better for the family who dont have it as effects everyone close to them . i have been tested and i dont have it myself but i ensured i was test before i started my family because if i had been diagnosed with HD and there was a 50/50 chance of me passing it on id have never started a family! god bless anyone who is suffering HD in one way or another weather your a family member or a carer to the patient you are all angels with a heart gold
Imagine knowing its a coin toss and you land on the right side. I hope she went on to have all the kids she ever wanted and has a beautiful, wonderful life.
Very emotional video, I am ecstatic for you! I too tested negative but my sister was not. She is living with HD and so is my dad. I have a sister with 4 children that has not been tested. Prayers for a miracle to stop this brutal disease. Prayers for all who are touched by HD. Again, so happy for you. It was torture to make the decision to be tested and unbearable waiting. It took 12 days for my results to come back. I also would like to share that If you have siblings and someone is positive it is really hard to be happy that you are negative. I have survivors guilt and found it almost impossible to tell her I was negative. I am so happy for my children as they have been very affected watching my dad and now sister fight this ugly disease. God bless you all.....
Hi Mandy,
Thanks for your video, my dad may have Huntingtons, will find out soon, if he has I am going to get tested, I have a son with Duchenne Muscular Dystrophy which is another terrible genetic disease and I am praying that he does not also have this too. You are so so brave, and I really hope you have a wonderful life!
Andy
I am so happy for you. This is a terrible disease. My daughter just past away in January after a 15 year battle with Juvenile Huntington's Disease. I pray every day for a cure for this disease and families will no longer suffer from the turmoil and heartbreak that it brings into their lives.
The relief she felt must be unbelieveable!
WOW! I decided a year ago to get tested, Im going to ucsf next week. Very emotional and relatable! Also very inspiring! Thank you!
Jodi Lewis hope your test went well Jodi
Got your result?
I'm unbelieveably happy for you
I got my blood drawn 2 days ago. Waiting 3-4 weeks to know the results. Wish everyone best of luck. Take care. -San Francisco, California
zhi cheng zhen how were the results hun?
What was your result
SOBBING, so relieved for you ❤️
Without the slightest embellishment, everyone who lives with the spectre of this disease is a hero.
Toby Fothergill I just found out that I have HD and this comment that you have made actually means a lot. Thankyou
I'm so sorry to hear that Danielle. I'm assuming you may have had family experience of the disease, no doubt that complicates your experience further. I'm glad that my heartfelt admiration is something that gives you comfort. HD, as a single-gene disease has good prospects of a disease modifying therapy in the near future. Saying that, I don't at all mean to minimise the trauma of what you're going through right now. Stay hopeful. - T
You put it pretty pricisley
Not a doubt . I wouldn't have said it better .you said word straight from my heart
If they only knew#shadowangelz#shadowtribe....shadow
If a person in a family has it all family members before they have children should be tested! Stop peoples suffering from that strange horrible disease, it's so unfair and heartbreaking
I have a friend whose family has been ravaged by this horrific disease! So happy that you won't have to experience it yourself. It's sad enough that you've had to see your family suffer. 🌺
My mom has HD too at a very rising final steps now, it's hard to know that she never told anyone and never wanted to get me and my brother tested, we raised up living in horror, and my mom hasn't never been a mom, I wish I had her, wish I could forgive, say it all was the disease. But it hurts to know how you were treated, well now my brother got the test, and his was positive, so that means that he tries to live his life now as he wants to, and I hope he is happy, I'm turning 19 in 14 days and I hope that after my 2 year old education I will be more okay to take the test too, and hope to get a life with my fiance without thinking of eding up like that. My sister in law told my fiance that if he wasn't ready for what could happen to me if I was tested positive, then he should walk out the door, and that is long time ago now. I hope to give my future kids a future and a life knowing they're parents love them, give them a life that I did not get. To all you out there, good luck, cause this is the only thing I think is worse than cancer. I hope you all understand my story, aand write me if you want to know more. I would never give my kids a life with HD, and even if I have it, then they need to know that no matter what happens, then I'll always love them, and Jonas as well!
Louise
How are you, Louise?
Good luck! ❤️
My dad had HD and yes his behavior was hard to live with. Finding out he had HD helped me forgive him because it was due to H D brain dysfunction. I know you will be a wonderful mom whatever happens because you understand. God bless you!
The loud music in this video overpowered it and took away from it. But I cried happy tears on the results!
Sitting here crying 😭 The 3 weeks I had to wait for the test results were cruel. Thankfully I won’t get it either!!! 💙
My wife might have it, fingers cross for my beautiful wife doesn't. I love my wife very very much and I 'll take care until my wife dies in my arms. My wife cried when I said that. Seven years together and many many more. A cure will be around the corner.
Nai506 Nai prayers for you & your wife
Update? I. Hope she is OK x
Oh thank you for posting this. I'm going threw the same thing right now! Everything that was said about every twist and twerk it just could be the beginning! I'm the only child my mom is 54 and in the last stage of HD. I'm 29, and want children when I was 14 I said when i turn 18 I'm going to go get tested, but never did. It hits really early in my family my two cousins are 26 and are really showing signs. I show nothing, but you never know. Thank you again for sharing this video. RIP Merrill family
thank you for posting this. I feel the same way. I'm currently 25 and I'm not showing any signs but its hard not knowing if I will get it
I am so very happy for you!!! I had goose pimples when she said you wouldn’t get that horrid disease!!
was balling to this video wow your so lucky! i hope i myself turn out negative later in life
I just watched your video. I am so happy for you. My ex husband died this past January from Huntingtons disease. I worry about our son every single day
Let me ask you a question so that I can relieve your worries.Do you have any predecessors that had this disease.If not,your boy is 100% safe.If you had a family member which suffered this disease,then your boy is 50% safe.I hope you didnt have anyone in your family who suffered this disease
Mandy dad was looking after her to make sure she didn't developed huntington disease. Im glad that her results turn out negative
her rationale for running is so on point.......one can shut the world out for a while.....hope you are still with us
This is the 2nd time I've watched this video the first time I cried like a baby which I'm sure will happen again but I just wanted to say that this video was so well produced that you feel what she feels, the emotion is so raw it captures the feelings one would have with the agonizing wait for the results of the blood test. I couldn't imagine the psychological trauma she went through.
I’ve almost cried after watching your video from Thailand . So happy for u and I’ certainly sure that whoever has had got through the period of this kind of this situation would feel the same. Wishing u a delightful future.
hey mandy. I am so sorry for you and the loss of your father. I really hope that you test negative. I hope that you can get through this very tough time. I believe that you will with the love and support of your family. All my best wishes for you and your family.
Lovely Mandy, I am so happy for you, I started bawling. Would love to see an update on your life.
I am sure she is divrced
I am praising God for your Great News.🙏🏼
♥️✝️🙏
My sincere condolences to you and your family. Have a high school friend whose husband had Huntington’s disease. I don’t even know if they understood any of it. The genetic thing or whatever. They had five children together. The children are now having their own children. I do not see it ending well. It breaks my heart for all of them.
My mom and grandma died of Huntington's. My mom died at 26 I was only 10 at the time. I didn't get to live with my mom very long only when I was really young. My mom didn't even get to see her mom because my grandma died when my mom was two weeks old. I have 3 younger siblings that can have a chance at getting it too. I'm getting tested on October 7th, in Mason City. I really hope it's negative but I really don't think it will be. I have a few symptoms already. I have lose of balance, starting to have speech problems, and weakness in my arms and hands. I'm not going to have kids if it is positive because I don't want my kids to end up without a mom. I also don't want them to have a chance at getting the disease.
Desiree Buettner hey Desiree how did the testing go you're in my prayers and you're in my thoughts
Desiree Buettner how did your testing go? I'm getting tested sometime soon
Thank you so much God for Mandy's health!
Praise the Lord!
I pray for a cure for those who are affected.
I wish i was that lucky :(
my test was positive..
Yu are still a strong person sweetheart.
Stacey Walker you still have alot of life ahead of you :) enjoy it to the fullest ♡
Stacey Walker I am struggling with the test delema....
Heleena Batts best wishes! Stay strong 💚
❤️
I am not that emotional person but I got little teary after the negative announce of the result .I can partially feel her relief of being normal .
I'm so happy for you, my mother was lucky that she the oldest of 11 didn't have this gene, my uncle just died with HD 2 days ago and it just makes you think about how we are so lucky in our family but I hurt so much for people who have to go through this horrible disease, you are brave 💜
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Why do we need to share in this pain? I KNOW how much pain is in the world. I need to be in the light. God bless you ❤️🙏🏻 This is what gratitude looks like, friends!
Neither mother or husband jumped up and cuddled her .......how strange........she must have felt elated but alone
I was thinking the same thing Roland. Not even an expression of joy from Mom or Husband. No hug - no happiness. I don't get it.
I thought it odd also. Her best friend cried joy tears with her. But thinking about it more both her mother and husband needed to process it for themselves also. Either way, positive or negative test results, there was alot to process and internalize for the years and days leading up to the day she got her results. I know for myself once I let the emotion and tears flow it goes to the crazy place that I would not want on a public video.
So happy for you!!!
All those years of worrying all came out whenever she heard the negative result 💜
I’d take the risk of finding out. I think if I had it I’d make sure to live to the fullest and cherish every moment and if I didn’t have it it would 100% put my mind to rest and would still make me appreciate moments in life. Also, if I had I had it I would want to know before deciding whether or not to have children
Did you get tested?
Tears of complete Joy🌼
Do you make better decisions with more information or less?
Thank you God, for sparing this young woman.
Excellent! Thank you and congrats!
that fear that the disease may start anytime and questioning if that event is the beginning of it all,that is the worst thing, and then the wondering of whether you want to be tested and know...
Even if I were to test negative it would not make me any less worried because my sister or older brother my carry the gene inside them. I would in a way feel selfish in being happy with a negative test result.
You right. But feeling good when something good happen to you is not bad, you just have to hide your happiness so that the less fortunate people around you doesn't feel bad . So as long as you not making them uncomfortable then it's fine. And I can tell from your words that you are very nice person .feeling guilty about your wellness just because your loved one is in pain. So I know for sure you won't let them feel bad by your action because you will be over careful about that
Thank you for sharing your story with us. God bless you
Why is the reaction of everybody as if it was positive.?
Thank you God 🙏🏼
Don't understand why her mother didn't jump up to hug her when she got her negative results??
I noticed the exact same thing Heather - no emotion or happiness from either of them - no hug, nothing.
Because they are calm people
I thought the same thing. Her husband didn't even look happy. He actually looked disappointed.
It was very odd, only her best friend showed any emotion. As a Mum of five myself I would have jumped up to hug her.
That was my thought too. I started crying myself, while watching her hearing the result....But I guess we are all different and show emotions differently. The video has quite poor quality on my screen, but I think I can see her mother crying quite a bit, and perhaps she got "paralyzed" in the crying.
Pure joy. I cried like a baby.
Wow what a heart wrenching story . That kind of pressure is terrifying . To have a 50% chance of getting one of the most terrible diseases in the world .
❤️so happy for you.
so happy for you sweetie
I was diagnosed at 50 but after 16 yeAr i feel like I am dying every day I go throug
Many relatives. Have died forward. I think as I get older there are fewer and fewer relatives left. Right now I am going through. The pandemic makes me feel bad but mybrelatives are dead
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
What a terrible devastating disease this is.I pray to God a cure will be found.
May God heal all of Yuh
Your story touched my heart cause I can definitely relate cause I love to run and my dad had hd❤️❤️❤️. I decided not to get tested until I got symronatic cause there’s no cure. My mom was harassing me to get tested as soon as I turned 18, but I said no cause I didn’t want to be thinking about it all the time. I’m from Los Angeles and there’s a lot of things I did a lot of things with family and friends. Some of my favorite things to do were clubbing, my drinks, shopping, traveling, driving, rode trips, cooking,baking from scratch, bbq, music concerts, movie theater, restaurants,pool, bowling etc. I’m so happy that you texted negative, but if you were positive at least you had your husband to support you ❤️❤️❤️. I’m single and I don’t have any kids, but I have my family and friends who are very supportive of me ❤️❤️❤️. I I’m 39 and I tested positive, but I’m still happy and positive. I’ enjoyed my life to the fullest and I did all these things cause I’m a surgical RN.
OMG. That’s amazing news.❤
I just found this video. I have lived this nightmare through my fiance (now deceased) whose first wife died of the disease. Oldest child had it from about age 10. He passed at age 44. I saw the devistation of the disease on that family. Horrible. Having children without testing is holding a loaded gun to your child's head. This disease can be almost eradicated in 2 generations with testing, which has been a available for 30 years or so. Emotional, but it is a selfish act not to do it, which, by the way might be some of the first signs of impairment.
My father had HD and was a very violent , nasty person. Our childhood was full of fear. I just want to know if any body else’s parent with this horrible disease was violent as well or would my father have been like that without HD. Please please answer if you can help. It would make sense of my childhood if I knew he couldn’t help the things he said and did. Thank you .
HI Miriam - anger and violence can definitely be elevated while dealing with Huntington's Disease, but everyone's situation is unique. The toughest part is trying to separate who your dad is/was versus who he is/was based on how Huntington's Disease is affecting his mind/body. It is not easy and one of the most difficult parts for young people in families impacted by HD. Please check out our website and email us if we can be of any assistance in elaborating on your question. info@hdyo.org
HDYO thanks a mill for answering. I’ll check out your web site. Everyone says mood swings but my dad was all smiles one minute and punch you in the face the next. I can live with that memory if it wasn’t his fault, strange as it may seem. Thanks again🙂
My father was violent too. I don't think it was really him though. He left shortly before I turned 6.
My father was erratic, unreasonable, nervous, angry, lacked good sense, hoarded, and was very difficult. This was most apparent when I was a teenager. He lost his job but they suggested he see a neurologist and we found out he had HD. That showed me the reason for his difficult behavior....it put things in perspective, and I was able to forgive. I hope you can forgive and live a good life now.
May god be with Mandy.
Wow what a relief that must have been
Thank god im so happy for you ❤️❤️❤️🌸🙏🏽
Her husband just sits there while she is hysterical. Weird.
I thought the same thing. He actually looked disappointed.
Her dad must be looking down at her, so so happy to see this
when i choose to get tested and see if i got it from my mom, the day i was going to get the results i woke up just with this deep gutting feeling like i already know how its going to end, that i would test positive and i had this feeling all day till i was in the room with my counselor i had to get accepted for the test, and the doctor told me it was positive and as soon as i heard that it went away and i just went into a mode where everything was a blur except my thoughts on being positive with this disease and what it would be like after seeing my mother struggle with it.
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I have hd my dad died from it and im hope full fir a cure. If not my generation the next. Iv nade peace with my death wish iv been thru hell and back . iv had a rough life u could say and single mom since i was 14 i have 4 kiddos i didnt know anything til my dad died. Iv been apart of some trials and still invilved
The song where the lady start singing about the stars in the sky is beautiful. Please someone tell me the name of the song. Thanks
It’s called Metal Heart by Cat Power
Wish I was lucky you everyone though I didn't have it but I new had a feeling I did I got test a few mouth back now I didn't cry when I got told or that weird but I cry later that night I got a little boy I just feel bad he got to go though everything I when though with my mum :'(
Life is precious.
I truly don’t understand it, if you know and have watched people in your family members die or are living with this awful disease but still chose to have children. Why ? Please explain to me, if I knew then I would never ever have children cause that would mean passing on a horrible disease and that would be my fault, I would adopt. I could not sign a death certificate to my own child but that’s what it would be. It’s so damn selfish to do that and not only that but a good chance this child would watch you die. Nope I couldn’t do that.
does anyone know how much it costs to be tested for this disease? Is it covered by insurance?
it breaks my heart to see this woman desire to be a mother.
Seriously...why would anyone who has the possibility of passing this disease on breed?
I also just found out about a woman whose mother and brother died of the disease. I had talked to in earnest about 23 years ago about being tested. Lost track of her. I just discovered she married and had 2 children. Now she has it. Horrible that she passed it on, even when she said she would get tested before she had children. She joined the military at 17. Her letters home started making less sense. She could not pass a test for advancement. Dad (now deceased from diabetes) was pretty sure she had it. He watched his wife, one son and in-laws go through it. What I am seeing in these vids, and by personal experience, is that the ones who end up with it are the ones who will not test. Intuition perhaps, or is denial in very early stages part of the disease. Judgement is one of the first things to go. So sad for the test.
Also being very self centered. I want to have a baby, sort of no matter what.
Earlier this year I was diagnosed with HUNTINGTON DISEASE and I have tried everything I could to heal myself, but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including HUNTINGTON DISEASE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for HUNTINGTON DISEASE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 5 months of use, I am now HUNTINGTON DISEASE free, all thanks to Dr. Joshua Ighalo. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2348028753934 They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I can not understand why her husband is just sitting there no emotion at all
Thank God I test negative for the genetic tests.
Just don't have kids if you know you (will) have HD. They will either also have it and/or will have a parent you has. This should be a no brainer.
Rip ❤🙏🌹
This hits home with me cause I got tested too around the same year. The only difference is I have it. My hope is for a cure one day. I have a 3yr old daughter. I wouldn't change a thing. We never know the light at the end of the tunnel if we tap out early in the race. Yes I was told that based on my results it was unlikely my daughter would have the child form. I was also told they wouldn't do testing if I was not going to abort. I was even told by family members that's what I should do. But I didn't. I prepare for the worst but hope for the best. I also have 2 sisters one in denial untested and with 2 boys. The other tested 2 girls one with child form of Huntingtons disease the other a new infant.
I think I reacted happier for her when they said her result than her husband did.
Please please God let this be me...
God bless you .
I hope it was you, this outcome. I pray.
Praying it was you also :)
Still haven't gotten tested...
✌️❤️