What to do if you have a Crohn's disease or ulcerative colitis flare | GI Society
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- เผยแพร่เมื่อ 5 ส.ค. 2024
- If you experience a new onset of IBD symptoms such as diarrhea, rectal bleeding, abdominal pain, fistulae, or fever, especially if they are worse than before, it could mean that you are having a flare.
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The Gastrointestinal Society, a registered Canadian charity, provides trusted, evidence-based information on all areas of the gastrointestinal tract, and is committed to improving the lives of people with GI and liver conditions, supporting research, advocating for appropriate patient access to healthcare, and promoting gastrointestinal and liver health. The information contained in this video is in no way intended to replace the knowledge or diagnosis of your healthcare provider. We advise seeking a physician or other medical professional whenever a health problem arises requiring an expert’s care.
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Just for further education, flares can also include but not limited to: joint pain, fatigue, sweating, chills and low grade fever. That's my experience, at least.
Yep, of the above and spasmodic cramping that will literally bring tears to your eyes 😢
It feel like there’s no way out of this I have days where I don’t want to get out the bed. The pain is so bad just stay strong.
I know what you mean having a flare up last few days how do you work did you have to get disability been dilling with this for probably a year after gallbladder surgery do you puke green and have green diarrhea its not always green
You might want to try fodmap diet.i hope this will be helpful ❤️
fast... thats the only way to fix this
Thank you so much for this! This made me understand how things could be for me without making me feel scared.
This was calming and helpful. Thank you. It's been years since I was diagnosed and a flare still throws me off my game. Thanks for the clear steps. I'll save this as reference.
I had two this month. Put me out 3 to 4 days a week. I’m curious if anybody else has diarrhea or vomiting or they have pain in their heart? I think from the vomiting, the strain on my heart, the hospital thought that I had a small heart attack last time.
How do you know where it comes from that is the scary thing? Do you think it is completely diet?
@@moxig5717checking on you. How do you feel?
Searching for answers after I was stood up by my gastro for our scheduled virtual appointment today... which we scheduled over a month ago. 😮💨
I was diagnosed today with colitis. 4 days of straight burning and uncomfortable feelings and poor sleep left me in the ER and the doctors found the problem with a CT scan. I just want this too end
Being a chrohn's sufferer myself, this is really helpful to be able to show others.
I can get an Ulcerative flareup if I use antibiotics, even topical ones, such as Neosporin. They destroy bacteria in my gut, and I get an overgrowth of bad bacteria, which causes a flareup. Unfortunately, my GIs will only prescribe meds that suppress my immune system and recommend colon surgery when the meds don't work. My GIs know nothing about balancing gut microbiome. They know nothing about diet, probiotics, FMT, ... I've had to learn all this on my own. If I had known earlier, then I never would have taken their meds. All I got from them was side effects, including interstitial nephritis and osteopenia.
What did you do to manage it? I'm away from home in a different country and having a flare up now.
What did used to heal ?
That sudden revelation when you realize you're the smartest person in the room.... And you're at your doctor's office
@@KulmiyeMr I saw a functional doctor who gave me supplements, one of which killed the overgrowth of bad bacteria in my colon. One of the ingredients in the supplement is an herb that's used in Chinese medicine. In my case, my UC flare-ups are often caused by an overgrowth of bad bacteria in the gut. It makes sense that this supplement would put my flare into remission. However, I still recommend doing your own research before taking any medicines/supplements or undergoing any treatments. My current functional doctor can get a little overzealous.
Am I the only one who doesn’t get flare ups? It’s just constant symptoms. I’ve had it for 5 years and it’s been constant pain every day.
Just try to found out what’s going on or change the diet up a little bit but hang in there!!!
Does it stop paining now
Still the same case??
Hmm, another re-active version Id expect from conventional medicine, there are more pro-active programs to avoid having the flare. The medications do-not remove the cause of the inflamation only the symptom.
.... That's not true. Inflammation is caused by the immune system.
No one is diet won't help. But diet can't fix the malfunction of the immune system.
I am just getting over flare up. I’m 50 and just diagnosed in2022, this was 3rd and the worst. The pain was unimaginable, several times I was sure I was gonna pass out, hoping to. Ended up in ER and have missed 3 days of work. I can’t imagine dealing with knowing one of these could be right around corner. I’m currently petrified to move.😮
Went years without having a flare; was diagnosed at the age of 6 and went in remission around the age 10. Now I’m 22 and my UC has been back up and running for the past 2 months😪😪
Is it constant for 2 months straight? I’m sorry you are going through this it’s no joke
@@JanFreebersyser-ne7gzoh its constant for sure. Day in and day out, my fiance seems miserable and I don’t have any other resources to help. Scheduled to see the GI but i feel like thatll only lead to wanting surgery.
Watching as I have a bad flare up. I've had Crohn's since 2013 and still fighting it and to get health insurance to cover my medical.
I was diagnosed in 2013 too and have been dealing with the insurance struggle and getting a good care team in place. Hoping things look up for you. Hang in there. ❤
I'm also... feeling frustrated...again and again I'm same situation
@@highxtechlowxlife6618 thank you. I have to have surgery so I'm still fighting to get health insurance.
@@englishliterature6056 thank you.
We’re in the same boat and as someone experiencing this also I can agree it’s very frustrating
I was diagnosed when I was fifteen after a year of pain and suffering. People are too scared to treat or diagnose children in the US and I almost died because of it. We need to fix our healthcare system or things are only going to get worse.
How’s your case now? Is it better please answer
@@user-hi7vo9ct5xIn all honesty, not great. Im not incapacitated anymore but I still have a lot of pain and other symptoms even on medication. Im trying to look into alternative things to try it now, like seeing a dietician.
Same i got diagnosed with it when I was fifteen in February a week before my birthday where I've been having pain for 2 years :(
@@Xo01w I’m sorry that you are having such a tough time
Thankyou 🙏
My brother was diagnosed with chrons Nov 23, his age was 36 then, treatment was going on he was having flare in lower abdomen, but he got multiple ulcers in throat, after 3 days of hospitalisation his BP got dropped dr could not find any pulse after some time . We lost him, can someone please help me to understand does it happens this way
Currently at the end of a nasty flare up. Its wiped me out xx
My Crohns is really getting me down at the moment. Ive felt ill for a few weeks with zero energy. I have two young kids so it sometimes makes me irritable and I don't have the energy to play with them. I also find it hard that you're never sure if you feel ill whether its linked to a flare or not. Ive had headaches for weeks and no idea if its Crohns or something else as Crohns and the medications can obviously lead to so many different symptoms
Have had this flare for 5 days and i feel so dead. Still going to work and everything. Honestly dont know what to do since ive been fine for 2 years.
Too vague to be of any use. Basically, do what you'd do for any condition.
Nicely presented though
I've had Ulcerative colitis for 18 year's and the carnivore diet has put my Ulcerative colitis into remission for over 3 years and I'm off all medications
Yes I have heard about this. I have UC for 27yrs, I drink kefir milk which I make myself with the grains also cod liver oil and aloe Vera are which help but I am unwell a lot now and the disease has spread to the right side. I don't know if I could stick to the meat diet but I will give it a try.
Not all diets work the same for each person. It is best to speak with a dietitian before making any big changes to your diet.
Be careful of this, not everyone responds well to diets and ditching the meds is literally one of the worst choices you can make as most people don't have the will power to sticking with ultra restrictive diets.
This may help to cope: any two ply tp and any body lotion (not body wash), wipe and repeat until paper is clear. Cleans and soothes rectal tissue. Expensive wipes are history!
I have ibd and to much pain mucus in stool what i can do please help me
cut back anything involving acidic, lactose, red meats, sugars and caffeine, NSAIDs, and double on hydration. Get some sleep, take a deep bath
Hi I had the disease for over 15 years it was in control for at least 12 years until my doctor's messed up and failed to do the correct test when I had really bad gurgling in my stomach. I would get your Doctor to get you a dietitian and check for deficiency in things like iron, B12, calcium, and potassium etc. Make sure as well all your meds are timed for the same time each day or month week mine monthly now. Drink lots of water and sounds odd but I find Bananas are usually good to eat and helps a little bit. The only other thing I can advise is try and relax when you can and I know this is the difficult part of exercise when you can. I know none of this is a cure but it may help. Best of luck to you.
After examinations, I found out that I have Crohn's disease,so, what is the first step that I must follow, or is there a specific diet?
NO CARNIVORE DIET. That will kill you. Whole food plant based diet is the only way
Did you find anything out? I thought that was a great question, I think I have the same thing, had it twice this month already it is so incredibly painful that I can hardly stand it. When they ask my pain level, I say nine, with 10 being, I would have to be on fire. Feels like a cheese grater on your intestines. I am not even on medication, I guess I need to think about that first but I’m gonna look for some dietary information and if I find some thing I will bring it here to share it with you
@@moxig5717 ive found that diet plays a role, diet and stress. For me, specific foods dont hurt as long as i include 4-5 organic meals in my diet per week
@@moxig5717 No alcohol.
And for diet
Low fiber diet
Low FODMAP diet
Low residue diet
and
Carnivore diet.
I cycled through them and determined that the carnivore diet was the best by far, for me.
Carnivore diet
Thank you for this information. Ever since I was diagnosed with IBD, I have been eating Herbalife and it really good with managing gas and constipation..... I've been feeling way better. When I don't have money to buy the Herbalife than I will feel this gas on my abdomen
Hi I have a Question, Is Herbalife a powder, pills, Etc...? I would love to buy this for my daughter that has pain in her belly often cause of her colitis
This shit sucks! I had to drive like a maniac in traffic and almost crapped in my company car! I wanted to DIE!😮😢 NO SHIT!
I swear me to i just want an end to this😢
I m taking medications regularly yet I am getting unwell. Urgency to go to toilet, cramps in thigh, feeling feverish. I don't know what to do. I am having ileitis.
Did you try quitting gluten (and probably sugar & alcohol)?
@@c.h.7581 I don't take alcohol or tobacco. I avoid milk being lactose intolerant. Gluten intake is also low.
🚫Caffeine. Stay Hydrated. Everyone goes through UC and CD differently. Test and see if certain foods are causing the problem. Some foods may cause constipation, some diarrhea. I am sorry you are going through this.
@@anchmcle Thanks for your suggestion.
Go to hospital, they can monitor you and administer medication to control flare
I’ve had this since I was 18. There’s Chanel’s where people claim they have cured themselves with diet and microbiome management but idk. I’m 32 now and terrified I’ve got cancer. But I hate going to the doctor. Uhg.
Hey , since you got a bit of experience how’s your 14 years with crohn? Did you somewhere at some point achieved remission? And how , please help because i got diagnosed a year ago and it keeps getting worse
Hey, please every one help me , i was diagnosed with crohn a year and a half ago about 5 month i started taking humira i took 160mg first then stopped for some reasons I can’t changes , after that i started taking back but lowering the doses, at the first time when i took 160mg i felt like its a magic everything is perfect, but after i stoped even when i take humira it keept getting worse every couple of weeks what can i do?
Have you changed your diet at all? I was diagnosed at 23 and was battled with it until I was 26. They had me on multiple meds that worked for a short period of time and then completely stopped working. Rectal mesalamine and cutting out gluten, spicy food and caffeine helped me tremendously.
@@draedeltoro6542 look there is alot of my friends telling me the diet is the main secret buy i can’t cut off all these it’s too hard bro how could you
@@draedeltoro6542 spicy food ain’t an issue but caffeine and gluten I genuinely can’t, i tried a lot but i simply can’t stop it for a day
Hey everyone I recommend eating unsweetened can pumpkin it really helps with Crohn's disease
What else do you recommend
I been trying different medication for 3 years, I even had surgery to remove a part of my intestines and I still ended up
In the hospital afterwards nothing helps I am mess up, I fallow I strict diet 😭😩😭😩
Hi I had the same issue I had the disease for over 15 years it was in control for at least 12 years until my doctor's messed up and failed to do the correct test when I had really bad gurgling in my stomach. I would get your Doctor to get you a dietitian and check for deficiency in things like iron, B12, calcium, and potassium etc. Make sure as well all your meds are timed for the same time each day or month week mine monthly now. Drink lots of water and sounds odd but I find Bananas are usually good to eat and helps a little bit. The only other thing I can advise is try and relax when you can and I know this is the difficult part of exercise when you can. I know none of this is a cure but it may help. Best of luck to you.
Get disability
I'm 18 and was Diagnosed with Active colitis a month ago
How are you with it? I’ve been diagnosed for two years and live with flareups maybe 8-9x a year. It’s awful
Please check out our Living With IBD series to learn more. badgut.org/livingwithibd/
How are you now I think I have ibd or IBS I don't know😢😢😢😢 I have a baby and a breastfeed mom😢😢😢😢
I'm sick of being so gassy
Try drinking hot water with your meals and throughout the day. It's actually soothing and it helps with gas.
Mesalamine?? Anyone know if good?
Been using it for a week ain’t noticed anything just yet
Be consistent
apparently there are better treatments such as infusions with medicine such as Stelara but i did take Mesalamine and it does help quite a bit
Ok for uc,not for chrones
@@cigdamagelungs it still helps though I was prescribed to that by my gastroenterologist and while it's not a whole cure all it did help alot
Medication would be great if you have a good GI doctor. Mine sucks. Never given me any meds but BENTYL. and we all know that works for a year and neevr works again.
What im doing
So you are basically saying take your meds and go to see your doctor.
stop eating for 24h, drink green eta and water
Natural method to crohn dicease
This was so unhelpful
Sorry to hear it did not help you.
yep the good old doctor stand by when they haven't got a clue """ stress""""
How did fighter pilots or trench warfare soldiers get on?
Every diet is totally different with completely opposite and apposing recommendations.
Just stop eating, look at fasting info if you are not skinny , you are over weight , you must stop stuffing your fat gob.
During a recent flare I had to travel by car on a couple of eight hour trips , I stopped eating after eight o'clock the night before and got by the next day on a total of 2 small thick shakes and 2 small maccas chips, all day felt more alert while driving and was not tired.
they didn't. people just died in their 30s and 40s like it was normal
Is ok to smoke if you have colitis ???
Nope! ..or drink! ..All of that 'fun' stuff will make ya worse, sorryyyy! 😞
Smoking is not okay for anything
What affects ? If you have colite
Sooooo.... ask the doctor..... k.
Scrap all this crap advise. There is alternative ways that work quicker and are permanant that wont gove serious side effects