GFPD | Shinning on light on Caregiver Self Care - Family Caregivers Month

Catherine McGinty and Pat Segaline, parents to GFPD Warrior and Patient Ambassador Patrick, share the reality of self-care for a Warrior caregiver.
Caregivers, remember how in the event of a pressurization issue on an airplane, the airlines ask that parents place their own mask on first and then tend to their children? Becoming incapacitated would put both of you at risk. Similarly, self-care is an important piece of caring for your Warrior!
This #CaregiverAwarenessMonth, loved ones should consider reaching out to a caregiver and offering ways to help them partake in self-care!
#GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure
#GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids
#DBPD #AMACRD #ACOX