I’m Jim Parks I had a stroke My right on my arm is useless My talking is so so But my brain is good I use to be a mechanic But stroke put that on hold Now I work on wood sign Here Your got your live ahead of you You got work at it , I know Radiation is hard but you got class, What ever you want live it because No body can tell you no You got to live your life I salute you Jim Parks
My grandfather had a non-cancerous tumor in his head located behind his nose between his eyes. He had to do the same type of radiation treatment that you are preparing for and he came out the other side 99% tumor free. He did lose hair in his nose and in a corresponding spot on the back of his head, but that grew back later. He also got this when he was in his 70's, and in the average shape of a 70 year old. Before anybody asks how he is doing now, he died a few years ago. Not from any complications related to the tumor or the treatment, but because he was 97 years old. So I hope that this treatment goes as well for you as it did for him, and that you too can live well into your 90's or more!
Simone, I’ve had a brain tumor since I was six and I’m now twenty six. Mine is a Pilocytic Astrocytoma. It wasn’t supposed to come back after surgery and it did, it also wasn’t supposed to spread and it did. Brain tumors are jerks and don’t listen to the rules about what they’re not supposed to do. I got through all of it though and so will you! I’m a Computer Scientist now and have written a few bots myself! I love your videos and your can do attitude. Keep that up! Laugh when you feel like the whole thing is funny and cry when it just sucks. In the end you will get through it all. Bye Brian, time time to get out
I had a pilocytic astrocytoma in my spine, and mine came back too. It sucked but now it’s gone! Two surgeries and chemo wasn’t fun, but it wasn’t all bad, and I’ve gained a lot of insight, experience, and friends along the way.
My 3yo son has a partially resected spinal cord Pilocytic Astrocytoma near his brain stem. He will probably have to go for another surgery sometime. If any of those insights you've gained might help me make his life better, please share.
tennenrishin one of the best things I’ve experienced because of cancer is Camp Quality. It’s a program for kids with cancer and their siblings. It provides love, support, a new family, and once he turns four, a week of camp where he can have as much fun as he is able to. I met so many people who I could share my experiences with and learn from, and I bet you could too, even if you’re not from the US. My surgeon was Dr. George Jallo of Johns Hopkins, and he is absolutely incredible. If you would like to talk more personally about this, my email is jilliankfry9@me.com. I wish you and your son the best ❤️
Queen Concquer mine came back within a year, was removed again, came back, and then chemo finished it off. It all happened within a span of three years about 6 years ago. I haven’t had it come back since. I get yearly MRIs to make sure, but all has been quiet for years.
I saw this in my feed and my heart dropped. I’m glad it isn’t as bad as I thought it would be. You survived brain surgery. BRAIN. SURGERY. You can do this girl!
Hey she should do a keto diet! It'll starve the cancer of glucose by not eating any carbs or sugar, and it'll make they cancer die! Everyone Please share so she sees this!
Stay with me Simone, I've been going through metastatic Melanoma raging in a few parts of my body for 14 years. I'm 65 and still not dead, I do have cancer. I plan to be around at 80.
I had a non-malignant brain tumor when I was 10. Mine was wrapped around my pituitary and optic nerves (Craniopharyngioma). 2 surgeries removed it, but similarly, left bits behind. 4 years later it was back. Another surgery, followed by radiation therapy, and I"ve been tumorless for 20 years. I hope everything goes just as well for you, SImone. If you want to talk about radiation therapy or tumors or making cool shit, or whatever, let me know.
0:18 “Brian the brain tumor 2 would probably go straight to dvd” Despite the fact that this is a serious topic, she was able to begin the video with a lighthearted joke. Mad respect *_Sense of humor 100_*
Evariste Galois, IKR! I enjoy humor, and that’s exactly how I felt, when my mother’s cancer recurrence happen again, and again. It’s so emotionally redundant, and exhausting. Like a cliffhanger. Will I survive, or die this time. Lol
Yep me too I hate how this happens, I'm just about to write a big damn get Well yada yadaa and shiit there it is 2yrs back? See I can't even remember now and I only just looked at it!! That's what 2.5yrs if chemo and hormone treatment does To your brain! MUSHY!!!! anyways gotta make sure I look at everything more closely b4 commenting! I suppose that's one good thing is you tube makes sure that your awake!!! 😂
As a Radiation Oncologist who takes care of people with brain tumors I wouldn't normally describe my treatment as burning things but for you Simone I say "Burn Brian Burn!"
@@karl_alan Lol, those words can't be in that order when put together. I'm convinced we just need to burn one of the years between Jesus' actual assumed birth (around 4 CE) and when we count it (0, of course), and just start over. 2020 has been chaos.
Hey Simone! I'm a cancer surviver. I'm also a software engineer, a student, a teacher, and a cook. The cancer left behind a scar across my stomach, but besides that, I'm still me and everyone in my life sees me as me, not cancer girl. You are amazing and you will get through this. You are strong and brave--that's what you will be remembered for, not your tumor.
If you guys think so, what's your prerogative in saying so? She's actually only entertaining because she fails often. Literally everyone else could make her machines work.
My heart sinks so far every time this video randomly pops up again in my recommendations, it gets me every time, the TH-cam algorithm is emotionally manipulating us
Simone, you're not brain tumor girl. You're our robot building girl. Will be praying for you that everything goes smooth. It's a crappy situation, but one worth fighting through. My mom is going through cancer treatmentn for the second time (2 different kinds). All I can say is good luck. I'll be here to help support you too
Maybe when you have a brain tumor a bit of money comes in handy, it doesn't mather how much or how little you have. Nothing wrong with that.@@cruelkid420
From a friend's experience, the problem is not really the "again". The problem is "what if there is another again, after this again ? and another one after ?"
Same to you my friend. The both of you give so many of us hope and entertainment to get us outside of our problems. I pray that somehow you find strength and courage from the many of followers you guys have amassed over social media. I know if there was anything I could do for either of you I wouldn't hesitate. God Bless
Hi, my name is Bryan. TH-cam algorithm recommended this to me (tumour Brian). But now I’m here it’s encouraging to see you, how encouraging to see you face this head on courageously. You’ve got this! You’ll get through this! Signed: non-tumour Bryan
I hope that if she does get side effects, that the worst of it would be hair loss. Like just let that be the worst thing. This girl is way too good of a person to be going through this
It's probably a Cobalt-60 Gamma Knife (so thank Nuclear Power, Canada's reactors specifically). As far as I know the concern is that the radiation damages a part of the brain unintentionally through operator or random error. This is a really high targeted dose to a specific region of the brain, so she wouldn't get radiation poisoning or anything. Radiology and Nuclear Physics is a really complex science that most people are horrendously misinformed on, which is why things like Fukushima get blown massively out of proportion. I'm a normal chemist and I only barely have a basic understanding of it, and it was nothing I learned in school, I had to go out of my way to read papers on the topic.
@@drake6836 It's not that we'll never understand so much as that the topics that anti-science movements target (Nuclear science, Vaccines, GMO's) require an education in that area and are easy to misconstrue and then call out anyone who has an informed opinion as a "shill." They're also areas that have had notably poor communication skills with the public. Also, in the case of the nuclear energy, it was and still is actively targeted by the fossil fuel industry. Not sure if any scientific industry actually has a serious fear-mongering propaganda campaign against them, at least on that scale (to the point where people like Gregory Jackzo are appointed to the NRC to actively inhibit the Nuclear Energy industry so it will die). Haven't seen anything like that since the cover-up of leaded gasoline.
I actually smiled and my first thought was - we Europeans just simply rock \m/ I am Austrian with Eastern European roots and live in the UK - my dark humor, sarkasm and for most native English speakers my comments are simply... how should I say it, not PC. But any European I meet, they fine with it and actually, the only native English speakers who don't react in shock are Australians. I know British, Americans and Canadians - and they don't get my sarcasm or "dark" jokes. I can sit in a meeting, make a sarcastic remark, and the only people smiling are the Dutch and the French from the other teams. This is/was her way to deal with it (considering it's over a year old this video and your post).
😢 so sorry that this saga is repeating itself. Just glad to know you don’t need surgery right away and happy that Brian is not charismatic... You’re a champ and you’ll get through this.
We love you Simone. You are an inspiration for many people around the world, a kick-ass cientist girl. We know you'll be able to ovecome this! Much love!
My dad had a similar thing. To get through it I made a lot of terrible jokes. It was either laugh or cry... I think you will be all those things... because you can be brain tumour girl and girl who stands on her head... because the best characters in a movie are complex and interesting... they have more than one punch line. You go girl... your narrative is on going.
Definitely committed to the franchise.. but lets not make a third, I want Brian to die completely and never come back (unlike characters in many other franchises) at the end of this sequel. Love that you keep a sense of humour about it and remain yourself through it all. Best wishes through it!
Hey girl, for what it’s worth (and it might not be worth a lot) please please don’t ever feel like you need to only portray positivity and happiness going through this. I’d imagine having all of this going on while also juggling an image-centered TH-cam career is scary enough. I’ve seen other TH-camrs express nervousness about this, so please just know that if there are days where you’re in pain, or sad, or scared or upset, we’re all gonna be here to support you just as much ❤️ You’ve so got this!
Reading that title felt like a slap in the face. I know for a fact your gonna pull through this Simone. You are and always will be badass builder girl no matter how much Brian tries. #BurnBrian2k19
First, let me say that my mother went through the same radiation treatment you're starting when she was 70 (the same 5 days for 6 weeks regiment). I'm happy to say it was completely successful, and she recovered with no side effects from the treatment, so that 90% success rate is a really good sign. Second, let me say how inspiring you are by sharing your journey. I've been through some horrible crap, but nothing compares to a brain tumor (revisit) at 28. I hope you can understand how amazing you are, and how much you are touching people you may never meet. Finally, remember it is totally OK to laugh if that is the emotion that is surfacing. Because, (from experience) if you don't laugh then you will cry. I know that if I couldn't find the one funny bit of some of my horrible traumas I would have ended up curled up under my bed crying for days. -- So, laugh, cry, do what you need... just don't stuff away the feelings.
thank you for sharing this and I hope she sees it! that's so reassuring, caring and loving of you to tell a private story like that. I am happy your mom triumphed with it, also! I just wanted to say thanks for posting this.
Hey Simone! My mom had the exact same thing done! A benign tumor. They removed 90% of it and then she had the exact same radiation done. she worked through the whole 6 weeks with only some fatigue! Hang in there! It was such a rollercoaster but I have high hopes for you!
Yes, I found you from the 'Truckla' video as well. U r indeed a Rock Star! Wishing u the best! I can't wait to send u a pic of my purchase of a Tesla or Atlis truck. Everyday I grow more inpatient waiting for either to go into production. You have made it impossible to think of an electric pick-up and not immediately think of you. Your sense of humor and attitude are the best there is!
Ahmed Soukat Ali Oh my Gosh, Truckla was awesome!!! I actually had tears in my eyes as she distorted a perfectly good Tesla but after she was Done!!!! OH MY GOSH!!!! I was so happy, the wee Truckla Looked Amazing!!!! And the movie at the end....funny as heck!!!
I don't know why this is affecting me so much. I literally broke down crying, tears streaming down my face. Simone- As a person with a chronic illness and multiple disabilities, when you said, "I'm sick of being sick" and "I don't want to be the tumor girl, I want to be the girl who makes weird shit" it just hit me straight in the chest. I relate, so much. I can never know what it's like to be in your position, but I do know what it's like to have really hard medical conditions. It is so effing hard!!!! You can rage at it, you can scream, you can cry, but it will never go away. For me at least, it'll always be there, and I just have to deal with that. I have to get up every morning and be responsible and do things even if I don't want to, even if I'm not feeling it that day. I know it's not the same situation, but I feel like I may know a bit of how you're feeling. I hope everything works out, I hope your various procedures are safe and as painless as possible. I wish you good luck and good health.
awh no simone!! i had radiotherapy on my brain for a tumour as well, you dont feel anything during the radiation, it does make you tired and you will probably loose a bit of hair but its all temporary! you'll feel so much better afterwards. just to warn you, i found that there was a funny smell when I had mine? like when the radiation was on there was a weird like strong chlorine smell? we all love you simone, you have such a great fan base to support you as well as friends and family. Its 6 years this year since I had mine, when I was 13/14 (in hospital having radiotherapy on my 14th birthday). Chin up Simone!!
Simone, hang in there! I'm someone that also had a lazy tumor. I initially went through chemo which stopped it from growing for about a year. Once it started growing again I had a major surgery to remove it And then a BUNCH of reconstructive surgeries. I never named mine (missed opportunity) but I did come home with a bunch of trinkets from the hospital from my surgeries. I know this sucks but you are stronger than you think. Lots of love and hugs.
Your positivity and unique way of thinking about things, even in the face of adversity is truly inspiring. Wishing you the best, we all know you can do this.
Hoping for the best. I have surgery scheduled for February 13th to remove a kidney tumor that is most likely cancerous. Us staying positive is the key!!
Jay Malone hopefully you get the tumor removed. I have total kidney failure. So ig I can’t get a kidney tumor idk I’m not a health professional but personally at this point, I’d trade a functioning kidney for a kidney tumor
I’m so sorry to hear this news, but am very grateful to you for being such a genuine inspiration- not as “Brain Tumor Girl”, but as a kick ass builder who never approaches things the same way as others.
Your literally so inspiring that your ted talk is on my frickin SCHOOL CURRICULUM like everyone in my year(grade) is required to watch it! Your so inspiring and brave you can do anything
I may (or may not) speak for everyone when I say no one knows you as the tumor girl. Everyone knows you as the amazing terrible robot builder. Your videos bring so much joy and laughter (I have never laughed so hard until I saw your hair get stuck in the alarm clock or pouring beer being shot all over the place) and you have one hell of a community that supports you....F Brian get outta here. (sorry to all the Brian's out there that aren't tumors)
Hi Simone, watching your videos is a surreal experience for me, because almost to a T you are going through exactly what I went through about a year ahead of you. My short story: 7cm brain tumor, removed in May of '17 (benign pituitary macroadenoma), eye injured by removal (cranial nerve III was badly distorted by tumor and did not handle decompression well) and so I wear and eye patch (actually, dark glasses lens now, bringing piracy into the 21st century!), six months later growth of remnant tumor was apparent on MRI, lived in Chicago and underwent proton beam therapy at Northwestern Medicine Feb-March '18 to put a stop to that, routine scans since, and here I am now watching your video. If you find yourself wondering what the path about 10 months ahead of you might look like, please don't hesitate to reach out! I am also a software engineer by trade and a technology and engineering nerd in general, so we probably have more in common than just large brain tumors :) and I'm still (mostly) intact after all of this, and so I believe strongly that you will be too!
Eyepatch is dope as hell. Solid Snake. Still, I’m sure you’d rather not have the pirate eye. I’m sorry you had to go through that, but I’m glad you’re still (mostly) intact.
Oh dear god, this showed up in my recommendations again a couple years later and it practically gave me a heart attack. I'm so glad it's just TH-cam being crazy. I wonder how you could teach the algorithm to mark videos as "time sensitive drama" or the like, so that they don't show up when you're not searching for them specifically.
As someone who has brain cancer and has had radiation therapy in the the temporal lobe, that 90% success is pretty accurate I would say. And I can say that if they do it well, it does remarkably little extra damage. I know that because they had to hit it from a lot of different angles in my case. The angles made it hit an eyeball, my ear, my nose, and lots of other areas. The nose was an interesting experience, apparently, adults are not supposed to smell anything because of them doing that, but kids can, and I did even though I was 37 at the time. I still have my sight, hearing and smell. I didnt pick up any new side effects from the radiation, just lost a patch of hair that grew back. The chemo after that is a completely different story. That was not a fun year. All that said, as odd as it is, I have a super rare type of brain cancer that is very similar to your tumor in that it grows so slowly that most people with it die of other causes and the doctors have pretty much told me to live my life as best as I can because they have no clue when I will get hit again. So, that is what I do now. I do not let the tumor weigh over me, I just try and move on and improve where I am..., even if the annoying bugger has forced me to change jobs.
On her t-shirt it looks like they actually removed the temporal lobe. Is that right? I know there's another hemisphere with similar functions but if they can do radiation and keep the lobe, why would they remove it?
Well go to 5:08. We do have two of each lobe but I'm surprised they'd do a temporal lobectomy around a benign tumor they were going to radiate anyway. @@Aroga-xn9ft
You still are the badass builder girl, and you are also a badass TH-camr who is inspiring others through your vulnerability and honesty. You are a rockstar Simone and I wish you a speedy recovery!
This is such a perfect way of describing this experience. I’m also 28 and was diagnosed with a rare pancreatic tumor in 2017. I had a surgery to remove a third of my pancreas and my entire spleen, and only afterwards found out it they had caught it before it progressed. I’m headed back for another surgery in a few weeks because of complications, and it’s so comforting to see someone my age going through something like this when it feels like no one can relate. You explain yourself so eloquently, and I wish you nothing but health and happiness in the future.
Simone? Isn't this an ideal time to try BCD oil? can get from Canada xx or very nice farmer nearby make you - couple of decades research all says the same thing now. It can't hurt, sometimes it's very effective xx
„It looks like a really bad thing on the outside but I know too little about life to be sure.“ Simone, that sentence really got to me! Hope everything is fine now and that you‘re happy and healthy! Lots of love ❤️
I feel for you Simone, When I was 7 I was diagnosed with a brain tumour, I had radiotherapy a year later due to regrowth. i'm now 20, at uni and living life to the full. Radiotherapy does really drain you, so take it easy. I'd be at school in the morning, go to radiotherapy after lunch and spend the rest of the day in bed exhausted. I still have the mask for radiotherapy after all this time. I consider it a bit of a trophy. I've been wanting to mount it on my wall with a pair of antlers for ages! I dearly hope it goes well, make sure to get plenty of rest, and remember, your health comes before us! Don't overdo yourself, a short twitter post is much easier than a video after all.
Wow... man, that's a lot to go through. I'm happy to hear you're well now! also the thing with the antlers is a hilarious idea, i think you should totally do it!
This is bizzare. I can admit that I was never like, an intense fan here, but I remember catching your videos on and off between watching Vsauce and William Osman and honestly it's kinda heartbreaking to see something like this. Like the girl down the street who you never talk to very often but you know she's super nice and you'd never wish anything bad on her, that's like what you are to me, and I really hope this is just another hurdle for you. I'll be keeping watch.
Hey Simone, I just discovered you like yesterday through TED. Love Truckla, mad props as we used to say in high school. My cancer returned 4 times and and I was given less than 10% likelihood of survival. I'm now 4 years from transplant coaching robotics and teaching physics. Keep doing what you love. You'll make it through. What I love is what brought me through.
That "Man, I just wanna be healthy" hit me hard. I've not been able to walk for almost 2 years. I've gotten so sick of it. I go through a cycle of getting better and then dropping right back down. Anyways, #burnbrian2019
A sciatic problem hit me in November and I was unable to walk and it scared the shit out of me. I'm not 100% and may never be but good god the shift in mindset from "eat this way to be skinny" to "eat this way and not feel like shit everyday" has changed my life.
My heart goes out to you, and the fear and awareness you have. I'm not reaching out to you as a fan. But as a firend as some one who really is sadden by this. Hun your going to be ok. Even if sometging bad happens, your going to be ok. Of you loose your hair you'll make a shity robot that either make your wig or combs your wig or does you wigs hair style. Remember you really do have this
Aw, man. My best of the best of the best wishes for things going well and for you keeping a smile on your face! I dealt with that 'the first time is novelty, the second time is exhausting' feeling when my lung collapsed. I had it treated, and then it collapsed a few more times. I found it really helped to look for and cherish all the little happy parts of the experience and have fun where you can. Hope this helps!
You are that bad builder girl. Your ability to think outside of the box is amazing. You will make it through this and come out stronger for it. I know it is tough right now. Just know your internet family is right there with you. To hold you when you need held or to be ear if you chose to share.
Simone - Last year I also had a benign brain tumor removed @ 41 years old. Before getting to that point I had a seizure while driving which wrecked my car, fractured 3 ribs & cracked my spine. I was able to walk away from the crash and call 911 on my own. I own a house, dog, pool, no kids and never married (yet). I work hard in life like most folks and never had any health issues like this in my life. It just came out of no where. I understand everything you have said and agree. At the end of the day we just want to be healthy. I came across your video randomly this morning and I subscribed to your channel today. Stay positive & you are in my prayers. Nice shirt by the way. Mark
hey, I was suggested your videos because I was diagnosed with a brain tumour last summer and I had successful surgery in December and I only just brought my nerves together to watch your journey because I've been thinking about my own and your videos are helping a lot just to process stuff again and I'm terrified of finding myself in the same situation a few months from now when I have my next check up on it, but your positivity and documenting of it is really helpful
Hi Simone, I was diagnosed with a cancerous brain tumor (a germinoma tumor) in 2003 two days before my 15th birthday. I just made 30 this past November. I first went through chemotherapy and then radiation therapy. My radiation therapy consisted of 5 1/2 weeks of radiation Monday-Friday, in which I had to wear my own mask, just like the one you showed, to keep my head still. Now, I am trying my best to live a full and healthy life. Continue the fight and know that you have a bunch of people around the world rooting for you!
I too had germinoma brain cancer. I was diagnosed at age 10 in 2010. I am currently 9 years in remission! I went through chemo therapy and radiation with that same mask. You’re never alone!
Hey there, hang in there. I have battled cancer my self when I was only 21 years old and it was a pain. However, I was able to beat it and I know that you will beat the tumor. It is hard to keep us maker types down. We are problem solvers and these things are just another problem that will need to be solved. So stay strong and I wish you all the best. Good luck and stay positive. :)
I know how you feel. I am also brain tumor girl who had surgery and had it grow back. I don’t want this for my self. I want to do great things and am also tired of being sick. I hope things turned out for you!
Gosh I struggle to accept I have to do homework and finish reading books for school. Then you’re faced with this... I need to get over myself. You’re amazing
"just gonna have to go through radiation therapy" man you make it sound so easy.. you got this dude! you gonna kick brians ass! also, i love you for that dementia pun.
My wife had a brain tumor and after she got operated on the doctor came out to speak to myself and our son. He said I just spoke to your wife, she's just waking up now and she's a very special lady. He said she and I we're discussing baseball. She knows her stuff. I said I think she has a crush on you Doc , and when I said that, he started to cry. He walked away and I said to my son, Mommy's done and my son said why would you say that Dad and I answered why else would he cry. She passed away 10 days later and my son followed her 15 months later from pancreatic cancer. I miss them more then words could ever express. I'm lost and heartbroken.
tackless Man, if there's something after life, u've already won the best for you and your family at heaven, promise. Don't worry about them, worry about you now.
Hey Simone! I know we don't know each other personally, but I genuinely wanted to let you know that we, your audience, will be here no matter what. If you need to take leaves of absence from TH-cam for long periods of time, please do so and do not worry about us going anywhere!! I will be your subscriber still even if you don't put out videos for an entire year. Live the life you need to live to be happy and healthy. We wish you the best of health :) I guess what I'm saying is... live long and prosper?
You got this, I believe in you! ❤️
Look Simone you got REAL jesus on your side instead of the imaginary one. you'll be fine!!
Oh yeah
Jesus is always be with you! as us, but Jesus is much more cooler
Yes! Simone, you have our lord and saviours support! You can do it!
Jesus, go back, we really need a bigger wall to keep you mexicans out.
_Please don't build a robot to remove it..._
Because it would be too good at its job right? Right?
@@salahfarhat7776 *chuckles* I'm in Danger
Thx, now I'm laughing AND crying
Hahaha
Your creativity is amazing.
This is the only video I wish was clickbait
Star fire 😭😭😭😭😭😭😭
Same
Same
Literally someone commented that on her other brain tumour thing
This just popped up in my recommended and I was like "NO, not again", then I saw it was a year old. Hope you're doing well.
Me too.
Same
Uh huh
same here, hope she's fine
Same
Sorry Brian, we tried to do this peacefully with a civilised eviction, but you just wouldnt listen🔥
Kyle Carey Okay, this comment is tops
We love you Simone. This breaks my heart but I know you will pull through.
You are not Brain Tumor Girl, you are Tumor Hunter Girl, go kick its ass.
Felz and we don’t need more sequels after that, we need to let the franchise go
Yes, but maybe let someone else build the tumor-hunting robot....
TumoRaider
i know people who have palled through and i know you will. good luck!
Be careful, the radiation can easily end in cancer...
At some point, you need to stop running, as it'd be worse to treat it...
❤️
This comment needs more likes 😕
*minions are a metaphor for communism*
Bruh..
That’s kinda brief for you guys....
@@iStudLion why? It's just a heart stop being a sycophant.
I’m Jim Parks
I had a stroke
My right on my arm is useless
My talking is so so
But my brain is good
I use to be a mechanic
But stroke put that on hold
Now I work on wood sign
Here
Your got your live ahead of you
You got work at it , I know
Radiation is hard but you got class,
What ever you want live it because
No body can tell you no
You got to live your life
I salute you
Jim Parks
I’m officially your first subscriber
@@ed9753 I'm right behind you Ed. Subscribed to Jim Parks
I love this
❤️❤️❤️
Hope you are doing okay, Bless ya
My grandfather had a non-cancerous tumor in his head located behind his nose between his eyes. He had to do the same type of radiation treatment that you are preparing for and he came out the other side 99% tumor free. He did lose hair in his nose and in a corresponding spot on the back of his head, but that grew back later. He also got this when he was in his 70's, and in the average shape of a 70 year old.
Before anybody asks how he is doing now, he died a few years ago. Not from any complications related to the tumor or the treatment, but because he was 97 years old.
So I hope that this treatment goes as well for you as it did for him, and that you too can live well into your 90's or more!
Bamfhammer His non-cancerous tumor was blessed by God.
Simone, I’ve had a brain tumor since I was six and I’m now twenty six. Mine is a Pilocytic Astrocytoma. It wasn’t supposed to come back after surgery and it did, it also wasn’t supposed to spread and it did. Brain tumors are jerks and don’t listen to the rules about what they’re not supposed to do. I got through all of it though and so will you! I’m a Computer Scientist now and have written a few bots myself! I love your videos and your can do attitude. Keep that up! Laugh when you feel like the whole thing is funny and cry when it just sucks. In the end you will get through it all. Bye Brian, time time to get out
I had a pilocytic astrocytoma in my spine, and mine came back too. It sucked but now it’s gone! Two surgeries and chemo wasn’t fun, but it wasn’t all bad, and I’ve gained a lot of insight, experience, and friends along the way.
My 3yo son has a partially resected spinal cord Pilocytic Astrocytoma near his brain stem. He will probably have to go for another surgery sometime. If any of those insights you've gained might help me make his life better, please share.
tennenrishin one of the best things I’ve experienced because of cancer is Camp Quality. It’s a program for kids with cancer and their siblings. It provides love, support, a new family, and once he turns four, a week of camp where he can have as much fun as he is able to. I met so many people who I could share my experiences with and learn from, and I bet you could too, even if you’re not from the US. My surgeon was Dr. George Jallo of Johns Hopkins, and he is absolutely incredible. If you would like to talk more personally about this, my email is jilliankfry9@me.com. I wish you and your son the best ❤️
Queen Concquer mine came back within a year, was removed again, came back, and then chemo finished it off. It all happened within a span of three years about 6 years ago. I haven’t had it come back since. I get yearly MRIs to make sure, but all has been quiet for years.
Thank you @@jillianfry1235! We're in South Africa but I'll certainly look into whether there is something similar here.
I saw this in my feed and my heart dropped. I’m glad it isn’t as bad as I thought it would be. You survived brain surgery. BRAIN. SURGERY. You can do this girl!
Hey she should do a keto diet! It'll starve the cancer of glucose by not eating any carbs or sugar, and it'll make they cancer die! Everyone Please share so she sees this!
Stay with me Simone, I've been going through metastatic Melanoma raging in a few parts of my body for 14 years. I'm 65 and still not dead, I do have cancer. I plan to be around at 80.
yoou will man
❤
Wish you the best!
Stay strong! I wish you all the best!
And well past 80 years. Praying for you.
I had a non-malignant brain tumor when I was 10. Mine was wrapped around my pituitary and optic nerves (Craniopharyngioma). 2 surgeries removed it, but similarly, left bits behind. 4 years later it was back. Another surgery, followed by radiation therapy, and I"ve been tumorless for 20 years. I hope everything goes just as well for you, SImone. If you want to talk about radiation therapy or tumors or making cool shit, or whatever, let me know.
(Hence the screenname)
I assume you kept eye sight as well, otherwise props for the comment writing.
@@RupeeRhod Yes, sorry. I can still see. (just some peripheral vision issues caused by the damage from the tumor, not the treatments)
Be STRONG Simone! 💪You can do it
She only needs to start identifying as somebody without a brain tumor.
Una piccola community italiana sotto i video di Simone.
Forza Simone!
0:18 “Brian the brain tumor 2 would probably go straight to dvd”
Despite the fact that this is a serious topic, she was able to begin the video with a lighthearted joke. Mad respect
*_Sense of humor 100_*
Evariste Galois, IKR!
I enjoy humor, and that’s exactly how I felt, when my mother’s cancer recurrence happen again, and again.
It’s so emotionally redundant, and exhausting. Like a cliffhanger. Will I survive, or die this time. Lol
Worse: "Direct to in-flight."
This got recommended again and it scared the crap out of me until i saw the publish date. shiiiiit.
It just auto played for me
Same!!
Yep me too I hate how this happens, I'm just about to write a big damn get
Well yada yadaa and shiit there it is 2yrs back? See I can't even remember now and I only just looked at it!!
That's what 2.5yrs if chemo and hormone treatment does To your brain! MUSHY!!!!
anyways gotta make sure I look at everything more closely b4 commenting! I suppose that's one good thing is you tube makes sure that your awake!!! 😂
sameeee
OMG without your comment i wouldn't've noticed!
Dear Brian,
Please leave Simone alone. She wants to do surgery on some crappy robots, not on you. Please. Go away.
StarryAnimations leave*
StarryAnimations very true. Brian, just go. No one wants you here.
Who the hell is brian? Im new on this channel
@@poncedelion1154 Brian is her tumor nickname.
As a Radiation Oncologist who takes care of people with brain tumors I wouldn't normally describe my treatment as burning things but for you Simone I say "Burn Brian Burn!"
Screw Brian, you'll always be badass builder girl. And as long as you keep making jokes about him he can't win. You'll get through this!
=[
Me: having a normal day in 2020
TH-cam: Let's drop this video on the front page like it's from today
Me: *heart attack*
Same. Thing. The hell.
god, same. what the crap, The Algorithm?
Also..."normal day in 2020" ??
@@karl_alan Lol, those words can't be in that order when put together. I'm convinced we just need to burn one of the years between Jesus' actual assumed birth (around 4 CE) and when we count it (0, of course), and just start over. 2020 has been chaos.
Jake_from_Statefarm id rather finish 2020 then restart it.
If there is anything we can ever do, just ask.
Slap a random Brian
@@oOoJeeoOo hey....
Hey Simone! I'm a cancer surviver. I'm also a software engineer, a student, a teacher, and a cook. The cancer left behind a scar across my stomach, but besides that, I'm still me and everyone in my life sees me as me, not cancer girl. You are amazing and you will get through this. You are strong and brave--that's what you will be remembered for, not your tumor.
Darn! Hope the new treatment goes OK. TH-cam needs you. We all need you.
Damn it Brian you had one job! #burnbrian
God damn it Brian
We do need her she is our shitty robot builder
@@AshenWednesday Geez dude. Calm down and let people be themselves. Just let others be and keep to yourself if you just want to drag them down.
👍
TH-cam keeps throwing this back in my feed and I keep panicking, thinking it's a new video. Stop it, TH-cam!
Hope you're still all well, Simone!
You did it once, you can do it again! We wish you the best
Toshiya Tanabe there can be hope, though
i cannot even describe how much my heart sank when i read the title in my notifications...
same honestly
ME TOO 😨
Likewise
You'll always be Badass Builder Girl to us!
Agreed!!
Hear, hear! 😁🤖
I'm liking the video because you're the greatest, but Brian is very much not. All the prayers and loves to you 🙏❤️
If you guys think so, what's your prerogative in saying so? She's actually only entertaining because she fails often. Literally everyone else could make her machines work.
Always
My heart sinks so far every time this video randomly pops up again in my recommendations, it gets me every time, the TH-cam algorithm is emotionally manipulating us
If you can overcome Brian, you can overcome Brian 2.0
Let's hope it's only Brian 0.3 or something :P
My friend bill became bill 3.0. After 20 years of surgerys
Simone, you're not brain tumor girl. You're our robot building girl. Will be praying for you that everything goes smooth. It's a crappy situation, but one worth fighting through. My mom is going through cancer treatmentn for the second time (2 different kinds). All I can say is good luck. I'll be here to help support you too
Simone, You got this!!!! I'm proud to be a new Patreon supporter. You're awesome!
Damn TH-cam really decided to pretend this was a new video and recommend it to me so I had a heart attack
Yeah, why is TH-cam randomly recommending this to us?
We are here for you. Stay strong. Stay positive. You've got a hell of a lot of people standing behind you. Please don't hesitate to reach out.
Не сдавайся!
why u monetize this video?
do not monetize tragic videos
Maybe when you have a brain tumor a bit of money comes in handy, it doesn't mather how much or how little you have. Nothing wrong with that.@@cruelkid420
My dad had to go through this with the mask. The trick is to put googly eyes on it. Treatment is so much better when surrounded with giggles.
This is a brilliant suggestion!
So sorry to hear this, Simone... BUT: it certainly does not define you. You'll get that therapy. It will burn. You'll win 🔥
just like my EX girlfriends in hell! DON't FORGET THAT SIMONE! YOU WILL WIN, ONCE AGAIN! (:
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That's sucks you have a brain tumor, did it hurt the surgery?
2018: Removing Private Brian
2019: *Firmly* ask Brian and Simone's brainchild to *PLEASE STOP THAT.*
*You can get through this again Simone!*
BTS BEING BTS army?
I'm an *ARMY* too
From a friend's experience, the problem is not really the "again".
The problem is "what if there is another again, after this again ? and another one after ?"
Unexpectedly BTS
Aay army
Stay positive and optimistic! You got this, good times are ahead :)
Same as you
good luck to both of you stay positive
Love you Pete!!!! :):) Beat cancer's sorry ass to the ground for me thanks
Same to you my friend. The both of you give so many of us hope and entertainment to get us outside of our problems. I pray that somehow you find strength and courage from the many of followers you guys have amassed over social media. I know if there was anything I could do for either of you I wouldn't hesitate. God Bless
Both of you have got what it takes! I am happy being subscribed to both of you
FFS, BRIAN, DO ONE!
Raspberry Pi holy crap, an official TH-cam channel for a pretty big company, making a comment like this, it’s pretty awesome.
#burnBrian
The Foundation?! Here?! Can we get a "Shitty PI" Exclusively for Simone? A Raspberry PI 3B+
OMG
A Raspberry Pi 3 Brian - (Minus) no Brians included
Hi, my name is Bryan. TH-cam algorithm recommended this to me (tumour Brian). But now I’m here it’s encouraging to see you, how encouraging to see you face this head on courageously. You’ve got this! You’ll get through this! Signed: non-tumour Bryan
I hope that if she does get side effects, that the worst of it would be hair loss. Like just let that be the worst thing. This girl is way too good of a person to be going through this
It's probably a Cobalt-60 Gamma Knife (so thank Nuclear Power, Canada's reactors specifically). As far as I know the concern is that the radiation damages a part of the brain unintentionally through operator or random error. This is a really high targeted dose to a specific region of the brain, so she wouldn't get radiation poisoning or anything.
Radiology and Nuclear Physics is a really complex science that most people are horrendously misinformed on, which is why things like Fukushima get blown massively out of proportion. I'm a normal chemist and I only barely have a basic understanding of it, and it was nothing I learned in school, I had to go out of my way to read papers on the topic.
Legends Always Die wow Exo fan here too! Anyways yeah I hope the side effects aren’t too bad for her !
@@nuancedhistory yup there are many things that we as humans will never understand.
@@drake6836 It's not that we'll never understand so much as that the topics that anti-science movements target (Nuclear science, Vaccines, GMO's) require an education in that area and are easy to misconstrue and then call out anyone who has an informed opinion as a "shill."
They're also areas that have had notably poor communication skills with the public. Also, in the case of the nuclear energy, it was and still is actively targeted by the fossil fuel industry. Not sure if any scientific industry actually has a serious fear-mongering propaganda campaign against them, at least on that scale (to the point where people like Gregory Jackzo are appointed to the NRC to actively inhibit the Nuclear Energy industry so it will die). Haven't seen anything like that since the cover-up of leaded gasoline.
Legends
Sorry to hear Brian is back. I will shock the SH&*$^ out of it if I get my hands on it! Stay strong and good luck.
Play it a rocking song on your incredible home made guitar.
Don't forget the FULL BRIDGE Rectifier!!!
Can you build a gamma knife?
@@SummerCampIsland Watch the video again :D
@ElectroBOOM let's zap Brian with your singing Tesla coil #WeGotThis
Hang in there Simone. You got this, and we're here for you.
When she made the joke about dementia, I just slowly put my hand over my mouth and tried not to laugh...
I actually smiled and my first thought was - we Europeans just simply rock \m/
I am Austrian with Eastern European roots and live in the UK - my dark humor, sarkasm and for most native English speakers my comments are simply... how should I say it, not PC.
But any European I meet, they fine with it and actually, the only native English speakers who don't react in shock are Australians.
I know British, Americans and Canadians - and they don't get my sarcasm or "dark" jokes.
I can sit in a meeting, make a sarcastic remark, and the only people smiling are the Dutch and the French from the other teams.
This is/was her way to deal with it (considering it's over a year old this video and your post).
@@ldorman believe me, us brits have plenty of dark humour
Not I. I laughed aloud, really loud, and my Dad just died of Dementia a few months ago.
@@ldorman wow so speziell und überlegen; glückwunsch!
I'm happy it's none cancerous!
None cancerous with left tumor
Non-cancerous*
Henry! dident know you where on this side on youtube!
I smell a SELLOUT!
It's "non-cancerous" or "noncancerous" you inbred.
😢 so sorry that this saga is repeating itself. Just glad to know you don’t need surgery right away and happy that Brian is not charismatic...
You’re a champ and you’ll get through this.
1
We love you Simone. You are an inspiration for many people around the world, a kick-ass cientist girl.
We know you'll be able to ovecome this! Much love!
Hopefully there's a cure for tumors, and cancer. We're getting closer.
Do you know anything of chemotherapy
My dad had a similar thing. To get through it I made a lot of terrible jokes. It was either laugh or cry...
I think you will be all those things... because you can be brain tumour girl and girl who stands on her head... because the best characters in a movie are complex and interesting... they have more than one punch line. You go girl... your narrative is on going.
I need subscribers like you 🤗 upbeat and positive cheering me on, I’m applying this comment to my own brain cancer haha thank you!
Definitely committed to the franchise.. but lets not make a third, I want Brian to die completely and never come back (unlike characters in many other franchises) at the end of this sequel. Love that you keep a sense of humour about it and remain yourself through it all. Best wishes through it!
Paul Pichugin Brian is like the Terminator of brain tumors
Hey girl, for what it’s worth (and it might not be worth a lot) please please don’t ever feel like you need to only portray positivity and happiness going through this. I’d imagine having all of this going on while also juggling an image-centered TH-cam career is scary enough. I’ve seen other TH-camrs express nervousness about this, so please just know that if there are days where you’re in pain, or sad, or scared or upset, we’re all gonna be here to support you just as much ❤️ You’ve so got this!
+
Love from India....!
And, I don't think any of us would blame her for getting sporadic or cutting back the uploads.
+
Reading that title felt like a slap in the face. I know for a fact your gonna pull through this Simone. You are and always will be badass builder girl no matter how much Brian tries. #BurnBrian2k19
I got so much anxiety seeing the title then realized it was 3 years ago. Health, wealth, and happiness Simone!
First, let me say that my mother went through the same radiation treatment you're starting when she was 70 (the same 5 days for 6 weeks regiment). I'm happy to say it was completely successful, and she recovered with no side effects from the treatment, so that 90% success rate is a really good sign.
Second, let me say how inspiring you are by sharing your journey. I've been through some horrible crap, but nothing compares to a brain tumor (revisit) at 28. I hope you can understand how amazing you are, and how much you are touching people you may never meet.
Finally, remember it is totally OK to laugh if that is the emotion that is surfacing. Because, (from experience) if you don't laugh then you will cry. I know that if I couldn't find the one funny bit of some of my horrible traumas I would have ended up curled up under my bed crying for days. -- So, laugh, cry, do what you need... just don't stuff away the feelings.
thank you for sharing this and I hope she sees it! that's so reassuring, caring and loving of you to tell a private story like that. I am happy your mom triumphed with it, also! I just wanted to say thanks for posting this.
Hey Simone! My mom had the exact same thing done! A benign tumor. They removed 90% of it and then she had the exact same radiation done. she worked through the whole 6 weeks with only some fatigue! Hang in there! It was such a rollercoaster but I have high hopes for you!
I came across this channel because of Truckla. You are a rockstar truly. Just hang in there. Rooting for you, Simone.
Same Same!
Same here and already love this channel
Yes, I found you from the 'Truckla' video as well.
U r indeed a Rock Star! Wishing u the best! I can't wait to send u a pic of my purchase of a Tesla or Atlis truck. Everyday I grow more inpatient waiting for either to go into production. You have made it impossible to think of an electric pick-up and not immediately think of you. Your sense of humor and attitude are the best there is!
Me too
Ahmed Soukat Ali
Oh my Gosh, Truckla was awesome!!!
I actually had tears in my eyes as she distorted a perfectly good Tesla but after she was Done!!!!
OH MY GOSH!!!!
I was so happy, the wee Truckla Looked Amazing!!!!
And the movie at the end....funny as heck!!!
I don't know why this is affecting me so much. I literally broke down crying, tears streaming down my face.
Simone-
As a person with a chronic illness and multiple disabilities, when you said, "I'm sick of being sick" and "I don't want to be the tumor girl, I want to be the girl who makes weird shit" it just hit me straight in the chest. I relate, so much. I can never know what it's like to be in your position, but I do know what it's like to have really hard medical conditions. It is so effing hard!!!! You can rage at it, you can scream, you can cry, but it will never go away. For me at least, it'll always be there, and I just have to deal with that. I have to get up every morning and be responsible and do things even if I don't want to, even if I'm not feeling it that day. I know it's not the same situation, but I feel like I may know a bit of how you're feeling. I hope everything works out, I hope your various procedures are safe and as painless as possible. I wish you good luck and good health.
awh no simone!! i had radiotherapy on my brain for a tumour as well, you dont feel anything during the radiation, it does make you tired and you will probably loose a bit of hair but its all temporary! you'll feel so much better afterwards. just to warn you, i found that there was a funny smell when I had mine? like when the radiation was on there was a weird like strong chlorine smell? we all love you simone, you have such a great fan base to support you as well as friends and family. Its 6 years this year since I had mine, when I was 13/14 (in hospital having radiotherapy on my 14th birthday). Chin up Simone!!
Brian, dude... let her go, ain’t gonna happen, buddy... move on....
Simone, hang in there! I'm someone that also had a lazy tumor. I initially went through chemo which stopped it from growing for about a year. Once it started growing again I had a major surgery to remove it And then a BUNCH of reconstructive surgeries. I never named mine (missed opportunity) but I did come home with a bunch of trinkets from the hospital from my surgeries. I know this sucks but you are stronger than you think. Lots of love and hugs.
Brain Tumor is not your thing，that thought never cross my mind even as I watching this video.
Your positivity and unique way of thinking about things, even in the face of adversity is truly inspiring. Wishing you the best, we all know you can do this.
Hoping for the best. I have surgery scheduled for February 13th to remove a kidney tumor that is most likely cancerous. Us staying positive is the key!!
Jay Malone stay strong peep
You won this battle already, with positivity. Keep it up
I hope its not cancer
Jay Malone I send you luv
Jay Malone hopefully you get the tumor removed. I have total kidney failure. So ig I can’t get a kidney tumor idk I’m not a health professional but personally at this point, I’d trade a functioning kidney for a kidney tumor
I’m so sorry to hear this news, but am very grateful to you for being such a genuine inspiration- not as “Brain Tumor Girl”, but as a kick ass builder who never approaches things the same way as others.
The Enthusiasm Project same thing!!! I remember her for the crazy and original videos she made
Your literally so inspiring that your ted talk is on my frickin SCHOOL CURRICULUM like everyone in my year(grade) is required to watch it! Your so inspiring and brave you can do anything
I may (or may not) speak for everyone when I say no one knows you as the tumor girl. Everyone knows you as the amazing terrible robot builder. Your videos bring so much joy and laughter (I have never laughed so hard until I saw your hair get stuck in the alarm clock or pouring beer being shot all over the place) and you have one hell of a community that supports you....F Brian get outta here. (sorry to all the Brian's out there that aren't tumors)
++++
NO I DONT FORGIVE YOU
Brian Tagsbdbr oof
Well your speaking for me
Hi Simone, watching your videos is a surreal experience for me, because almost to a T you are going through exactly what I went through about a year ahead of you. My short story: 7cm brain tumor, removed in May of '17 (benign pituitary macroadenoma), eye injured by removal (cranial nerve III was badly distorted by tumor and did not handle decompression well) and so I wear and eye patch (actually, dark glasses lens now, bringing piracy into the 21st century!), six months later growth of remnant tumor was apparent on MRI, lived in Chicago and underwent proton beam therapy at Northwestern Medicine Feb-March '18 to put a stop to that, routine scans since, and here I am now watching your video. If you find yourself wondering what the path about 10 months ahead of you might look like, please don't hesitate to reach out! I am also a software engineer by trade and a technology and engineering nerd in general, so we probably have more in common than just large brain tumors :) and I'm still (mostly) intact after all of this, and so I believe strongly that you will be too!
Wear glasses with just one glass tinted black and boom - you're Harry, the Kingsman!
Husband material here
+
Eyepatch is dope as hell. Solid Snake. Still, I’m sure you’d rather not have the pirate eye. I’m sorry you had to go through that, but I’m glad you’re still (mostly) intact.
Damn, you got this. I wish you all the best and a quick full recovery
Sounds like Brian needs a restraining order......
:(
Oh dear god, this showed up in my recommendations again a couple years later and it practically gave me a heart attack. I'm so glad it's just TH-cam being crazy. I wonder how you could teach the algorithm to mark videos as "time sensitive drama" or the like, so that they don't show up when you're not searching for them specifically.
As someone who has brain cancer and has had radiation therapy in the the temporal lobe, that 90% success is pretty accurate I would say. And I can say that if they do it well, it does remarkably little extra damage. I know that because they had to hit it from a lot of different angles in my case. The angles made it hit an eyeball, my ear, my nose, and lots of other areas. The nose was an interesting experience, apparently, adults are not supposed to smell anything because of them doing that, but kids can, and I did even though I was 37 at the time. I still have my sight, hearing and smell.
I didnt pick up any new side effects from the radiation, just lost a patch of hair that grew back. The chemo after that is a completely different story. That was not a fun year.
All that said, as odd as it is, I have a super rare type of brain cancer that is very similar to your tumor in that it grows so slowly that most people with it die of other causes and the doctors have pretty much told me to live my life as best as I can because they have no clue when I will get hit again. So, that is what I do now. I do not let the tumor weigh over me, I just try and move on and improve where I am..., even if the annoying bugger has forced me to change jobs.
On her t-shirt it looks like they actually removed the temporal lobe. Is that right? I know there's another hemisphere with similar functions but if they can do radiation and keep the lobe, why would they remove it?
Well go to 5:08. We do have two of each lobe but I'm surprised they'd do a temporal lobectomy around a benign tumor they were going to radiate anyway. @@Aroga-xn9ft
You're one of the most positive things about TH-cam, if not the Internet in general. Hoping for the best!
Has brain tumor. Wears a shirt of her brain anyways. You. Are. Badass, Simone. You lift people up even when you're sick, that's just amazing.
Comedy is the best method of mentally overcoming an obstacle prior to physically overcoming it.
You still are the badass builder girl, and you are also a badass TH-camr who is inspiring others through your vulnerability and honesty. You are a rockstar Simone and I wish you a speedy recovery!
This is such a perfect way of describing this experience. I’m also 28 and was diagnosed with a rare pancreatic tumor in 2017. I had a surgery to remove a third of my pancreas and my entire spleen, and only afterwards found out it they had caught it before it progressed. I’m headed back for another surgery in a few weeks because of complications, and it’s so comforting to see someone my age going through something like this when it feels like no one can relate. You explain yourself so eloquently, and I wish you nothing but health and happiness in the future.
aww shucks... good luck
Best of luck to you...
Erika Corpire your nasty
Hope you get well.
I am sorry to hear about the new Life of Brian. Burn Brian burn.
Yep! Brian is being a very, very naughty boy.
@@FixerUK Sorry can't help it... 😯
Simone? Isn't this an ideal time to try BCD oil? can get from Canada xx
or very nice farmer nearby make you - couple of decades research all says the same thing now.
It can't hurt, sometimes it's very effective xx
Burn Brian while he sings "Always look on the bright side of life"
facebook probably better hun, same name (with rainbows ;o)
„It looks like a really bad thing on the outside but I know too little about life to be sure.“
Simone, that sentence really got to me! Hope everything is fine now and that you‘re happy and healthy! Lots of love ❤️
I feel for you Simone, When I was 7 I was diagnosed with a brain tumour, I had radiotherapy a year later due to regrowth. i'm now 20, at uni and living life to the full.
Radiotherapy does really drain you, so take it easy. I'd be at school in the morning, go to radiotherapy after lunch and spend the rest of the day in bed exhausted.
I still have the mask for radiotherapy after all this time. I consider it a bit of a trophy.
I've been wanting to mount it on my wall with a pair of antlers for ages!
I dearly hope it goes well, make sure to get plenty of rest, and remember, your health comes before us! Don't overdo yourself, a short twitter post is much easier than a video after all.
Tom Davies loved reading this. I’m glad you are better now, and you better mount that mask on your wall! 😁
Wow... man, that's a lot to go through. I'm happy to hear you're well now!
also the thing with the antlers is a hilarious idea, i think you should totally do it!
I would cover it in glitter THEN antlers. That’s just me though.
This is bizzare. I can admit that I was never like, an intense fan here, but I remember catching your videos on and off between watching Vsauce and William Osman and honestly it's kinda heartbreaking to see something like this. Like the girl down the street who you never talk to very often but you know she's super nice and you'd never wish anything bad on her, that's like what you are to me, and I really hope this is just another hurdle for you. I'll be keeping watch.
Well said, it's exactly how I feel about it.
All the love. You have the best attitude which is inspiring.
Hey Simone, I just discovered you like yesterday through TED. Love Truckla, mad props as we used to say in high school. My cancer returned 4 times and and I was given less than 10% likelihood of survival. I'm now 4 years from transplant coaching robotics and teaching physics. Keep doing what you love. You'll make it through. What I love is what brought me through.
Mad respect cause ya didnt sigh at the start
👊
„We don‘t need no water let the Tumor-Brian burn! Burn Tumor-Brian, burn!“ 🔥🔥🔥
Stay strong Simone! It‘s getting well - I hope! ❤️❤️
That "Man, I just wanna be healthy" hit me hard. I've not been able to walk for almost 2 years. I've gotten so sick of it. I go through a cycle of getting better and then dropping right back down. Anyways, #burnbrian2019
Stay strong my dude. I'm on the same wagon, it gets better!
I wish for a lot of strength and will power for you!!!
A sciatic problem hit me in November and I was unable to walk and it scared the shit out of me. I'm not 100% and may never be but good god the shift in mindset from "eat this way to be skinny" to "eat this way and not feel like shit everyday" has changed my life.
Cancerous= Charles Manson, Non Cancerous= Your Unemployed Uncle. Thank you for that.
definitely committed to the franchise. You got this!!
She’s a fighter.
Wow. I'm subscribed to you. Thanks for the videos.
My heart goes out to you, and the fear and awareness you have.
I'm not reaching out to you as a fan. But as a firend as some one who really is sadden by this. Hun your going to be ok. Even if sometging bad happens, your going to be ok. Of you loose your hair you'll make a shity robot that either make your wig or combs your wig or does you wigs hair style. Remember you really do have this
@@lisajohnson2690 You replied to the wrong person. CharliMarieTV is someone else.
Scummy way to advertise your channel.
Aw, man. My best of the best of the best wishes for things going well and for you keeping a smile on your face! I dealt with that 'the first time is novelty, the second time is exhausting' feeling when my lung collapsed. I had it treated, and then it collapsed a few more times. I found it really helped to look for and cherish all the little happy parts of the experience and have fun where you can. Hope this helps!
You are that bad builder girl. Your ability to think outside of the box is amazing. You will make it through this and come out stronger for it. I know it is tough right now. Just know your internet family is right there with you. To hold you when you need held or to be ear if you chose to share.
Simone - Last year I also had a benign brain tumor removed @ 41 years old. Before getting to that point I had a seizure while driving which wrecked my car, fractured 3 ribs & cracked my spine. I was able to walk away from the crash and call 911 on my own. I own a house, dog, pool, no kids and never married (yet). I work hard in life like most folks and never had any health issues like this in my life. It just came out of no where. I understand everything you have said and agree. At the end of the day we just want to be healthy. I came across your video randomly this morning and I subscribed to your channel today. Stay positive & you are in my prayers. Nice shirt by the way.
Mark
I'm glad that crash didn't go as terribly as it could have been, stay strong
Go Mavs
hey, I was suggested your videos because I was diagnosed with a brain tumour last summer and I had successful surgery in December and I only just brought my nerves together to watch your journey because I've been thinking about my own and your videos are helping a lot just to process stuff again and I'm terrified of finding myself in the same situation a few months from now when I have my next check up on it, but your positivity and documenting of it is really helpful
Hi Simone, I was diagnosed with a cancerous brain tumor (a germinoma tumor) in 2003 two days before my 15th birthday. I just made 30 this past November. I first went through chemotherapy and then radiation therapy. My radiation therapy consisted of 5 1/2 weeks of radiation Monday-Friday, in which I had to wear my own mask, just like the one you showed, to keep my head still.
Now, I am trying my best to live a full and healthy life. Continue the fight and know that you have a bunch of people around the world rooting for you!
Micah Stephenson Day morning a day that was my first experience with it and then
I too had germinoma brain cancer. I was diagnosed at age 10 in 2010. I am currently 9 years in remission! I went through chemo therapy and radiation with that same mask. You’re never alone!
Live life to the fullest!
Hey there, hang in there. I have battled cancer my self when I was only 21 years old and it was a pain. However, I was able to beat it and I know that you will beat the tumor. It is hard to keep us maker types down. We are problem solvers and these things are just another problem that will need to be solved. So stay strong and I wish you all the best. Good luck and stay positive. :)
We love you Simone! You got this!
I know how you feel. I am also brain tumor girl who had surgery and had it grow back. I don’t want this for my self. I want to do great things and am also tired of being sick. I hope things turned out for you!
Gosh I struggle to accept I have to do homework and finish reading books for school. Then you’re faced with this... I need to get over myself. You’re amazing
It's okay. Everyone has their own struggles and just because it's not physical doesn't mean it's small. ❤️
fluffvoid thank you. That was a lovely reinforcement. I appreciate it, really xx
Meelow Avila ...you okay? Xx
Craig Adams yeah lads that’s what I’m saying xx
Meelow Avila that’s what my comment was sayin b xx
"just gonna have to go through radiation therapy"
man you make it sound so easy..
you got this dude! you gonna kick brians ass!
also, i love you for that dementia pun.
My wife had a brain tumor and after she got operated on the doctor came out to speak to myself and our son. He said I just spoke to your wife, she's just waking up now and she's a very special lady. He said she and I we're discussing baseball. She knows her stuff. I said I think she has a crush on you Doc , and when I said that, he started to cry. He walked away and I said to my son, Mommy's done and my son said why would you say that Dad and I answered why else would he cry.
She passed away 10 days later and my son followed her 15 months later from pancreatic cancer. I miss them more then words could ever express. I'm lost and heartbroken.
tackless Man, if there's something after life, u've already won the best for you and your family at heaven, promise. Don't worry about them, worry about you now.
I’m so sorry. God bless you
I’m so sorry. 😔😢
Lol
King Bradberry not something to joke about
You're an awesome human. The earth is lucky to have you.
Your sense of humor and upbeat attitude is so inspiring. I wish you nothing but the best in your battle.
I'm committed to the franchise buddy!
Love both yalls channels
I like taco bell 3 crunchy tacos with a XL burrito and nachos on the side.
Hey Simone! I know we don't know each other personally, but I genuinely wanted to let you know that we, your audience, will be here no matter what. If you need to take leaves of absence from TH-cam for long periods of time, please do so and do not worry about us going anywhere!! I will be your subscriber still even if you don't put out videos for an entire year. Live the life you need to live to be happy and healthy. We wish you the best of health :) I guess what I'm saying is... live long and prosper?
Every time i see this video recommended to me, my heart sinks again because i keep thinking it happened a third time recently.