I have idiopathic hemolytic anemia and was told its probably an autoimmune response but that they actually dont know why I have it. This was while I also had a 22cm tumor stemming from my pancreas called a MCN, or Mucinous cystic neoplasm, which was starting to become malignant when they removed it. I also have a thymoma which I believe has caused myasthenia gravis, which is commonly linked to problems with the thymus because my eyes have become so weak I need special prism glasses to correct my sight since my eye cant keep from drifting, creating double vision. I didnt even know a thymus existed before they found the tumor growing in mine. So the watermelon sized tumor was removed along with my spleen, most of the pancreas, the duodenum and part of the small colon. My gallbladder probably would have been taken out if I still had one and my stomach was almost removed but another specialist surgeon at Keck USC brought in during surgery was able to save it. It was already very small from the gastric sleeve surgery I had in 2015 but with the tumor I could not eat anything and wasted away down to 96lbs. I was 220 at my heaviest (by some grace of God I dont have loose skin that needs to be removed. i guess i was young enough at the time i lost the weight to bounce back) All of this to say I don’t know whats wrong with me to have caused all of this and neither do any of the doctors Ive seen :/ so if anyone here has had similar issues and does have an idea why please let me know.
My son has heamolytic anemia he was diagnosed when he was 9years old he is 13 years old now but he haven't had a check up 3 years now but he seems fine to cause he doesn't have any pain
It almost killed me. Complete exhaustion. Difficulty breathing. My hemoglobin was 5. After two years, my body healed itself. I gave vial after vial of blood. Had a bone marrow biopsy, trans jugular liver biopsy, ct scans, ultrasounds, blood transfusions, iron infusions. I had jaundice, splenomegaly. I was checked for every blood cancer. Not as much fun as it sounds! My doctor has no idea why...
@@lizzielynch2332 doing better. Went to oncology yesterday all labs normal now. Going down on steroids every 2 weeks. Was warned since we don't know what caused it it can return. Going to study & keep notes. Surprised that doc has no suggestions for brand of folate etc. Research is on us. Luckily I had done a 23&me and noticed MTHFR. As 8 have 2 of those lovely meeded up genes Im unable to process folate properly. I need L-5 methylfolate that is ready to be asimulated. We must be our own researchers/doctors/advocates.
Thank you for posting ,very helpful in your classification you put PNH in immune cause but when you do your coombs test you will having negative coombs test , for non immune cause.
My one friend have the 20 years has the haemoltic anaemia when he was diagnosed .he is now 24 years old but he haven't had a check up from 4 years and does not use medications is there any problem will occur??
This was great, I been tryin to find out about "signs for hypothyroidism" for a while now, and I think this has helped. Have you ever come across - Yannabarn Vanish Thyroid - (should be on google have a look ) ? Ive heard some great things about it and my friend got amazing results with it.
OMG, sorry i havnt watched this lol, but the yellowing of eyes: I had this! buuuuut it seems lack of iron helped that!. I also had skin yellowing, and iron helped there too! I used to exercise a lot and i lost 30 pounds, i was vegan too, i think i was defficent in so many vitamins, & i was pretty strict.. Anyways.. i dont know if one of the symptoms are under eye circles but i got that bad🤔😳, lack of vit E can cause Hemolytic Anemia. My circles slowly developed during many many month of exercising consistanty & i didnt know why i was getting them, i tried every vitamin out there even B complex, nothing... , and what everything was saying on the internet was a lack of iron is strongly associated with eye circles & k , all those seem to just do so much and i had to take more than what was recommended to see an improvement. I was afraid of damaging myself.. so i stopped. Anyways my ex told me i looked like i was punched in both eyes one time when i asked him about them. Other symptoms i had was tiredness\ exhuastion, but i remember even when i was a teenager i was tired🤔 i slept as much as 19 hours & I was just looking back at my old pictures of when i was 14\15 or so and i noticed i had a hint of circles forming even then😐 and i thought maybe i always had these and just never noticed, maybe its my destiny to look like a druggie, i mean I'm fair skinned , they say you can just see under eye circles more on fair skinned people. Anyways.. I was 29 when i first noticed them, and im 37 now. Also ive been an ex vegan for 10 yrs C helps tho & Iron... but the most help is when i take vit E they pretty much vanish... Someone told me a few yrs ago that they take 800 ui for their circles, so im sticking to that. I read something about premature babies and Vit E deficency, that they can get it and its linked ( and i was a premmie born 1 pound) but... this is only a risk as far as i read when theyre first born, still it made me wonder especially since it seems ive had under eye circles already forming decades earlier. My doctor always gave me a clean bill of health so that makes me even more confused..
@@SusieSynth the problem was I was so stressed and not eating well. I didn’t need iron I needed more folic acid and more fruits and veggies. I was consistently juicing beets, oranges, carrots and lemon in the morning also eating completely plant based and not letting situations stress me out. Also, laying in the sun as much as possible really helped me. When I wrote that, I was in the hospital and I haven’t been back. In my case my red blood cells where shaped like spheres ( Spherocytosis) so when I’m stressed they can easily pop and lower my blood count raising my billirubin. It’s really important to have beet juice and rest! Also eat as much as you need cause your body will show you you’re not taking care of it! I hope you are well! ❤️
hi my husband also suffering with same problem recently got it know HA doctors are telling to do spleen surgery but we can't so we r trying TCM means traditional Chinese medicine
@@sonychintu5966 hey, i was good for a while and when I got COVID and my immune system was low causing hella red blood cells to break a couple months later it caused gallstones since there was so much break up of red blood cells. I really recommend going to an acupuncturist! It really helps. There’s not much to do but maintain it. I get really insecure about my eyes sometimes but drink a lot of water and keep that immune system on point! Hoping the best for you 💗
i have been watching your videos. you an an excellent speaker and presenter. you are truly gifted!!
Diagnosed today. I actually have something growing on my spleen they saw on ultrasound. Had to have my gallbladder removed last October.
hello. what happened to you now? my gallbladder removed last dec
I have idiopathic hemolytic anemia and was told its probably an autoimmune response but that they actually dont know why I have it. This was while I also had a 22cm tumor stemming from my pancreas called a MCN, or Mucinous cystic neoplasm, which was starting to become malignant when they removed it. I also have a thymoma which I believe has caused myasthenia gravis, which is commonly linked to problems with the thymus because my eyes have become so weak I need special prism glasses to correct my sight since my eye cant keep from drifting, creating double vision. I didnt even know a thymus existed before they found the tumor growing in mine.
So the watermelon sized tumor was removed along with my spleen, most of the pancreas, the duodenum and part of the small colon. My gallbladder probably would have been taken out if I still had one and my stomach was almost removed but another specialist surgeon at Keck USC brought in during surgery was able to save it. It was already very small from the gastric sleeve surgery I had in 2015 but with the tumor I could not eat anything and wasted away down to 96lbs. I was 220 at my heaviest (by some grace of God I dont have loose skin that needs to be removed. i guess i was young enough at the time i lost the weight to bounce back)
All of this to say I don’t know whats wrong with me to have caused all of this and neither do any of the doctors Ive seen :/ so if anyone here has had similar issues and does have an idea why please let me know.
Thank you sir ❤️
This lecture help me to understand HA I have HA since 8yrs..
Thank you, concise and up to the point, nice lecture!
what will be the treatment?
That's what I really was looking for ♥️♥️
Thank you ♥️♥️
I love your channel! really truly great content and explanation! I'm so happy thank you!!
Thank you so much...OMG made so much sense to me!!!!
My son has heamolytic anemia he was diagnosed when he was 9years old he is 13 years old now but he haven't had a check up 3 years now but he seems fine to cause he doesn't have any pain
God bless him
Make sure he doesn't have G6pd deficiency if he hasn't been checked via blood test, you may want to get that checked.
What were his symptoms?
Amazing iam kurdish really this is benefcial for me alot thanx for u❤❤
Thank you ❤❤❤
Thank you so much..... It was really helpful😊
Thank you so much 💗🙏🏻
very helpful video ..thanks xx
You're very welcome! I'm glad it helped :)
What does it mean if ferritin is low but iron saturation is high? I'm confused about whether to supplement or not.
This so helpful sir thanks..
Wow I’m literally going to a hematologist on Friday
awesome.thank you sir
It almost killed me. Complete exhaustion. Difficulty breathing. My hemoglobin was 5. After two years, my body healed itself. I gave vial after vial of blood. Had a bone marrow biopsy, trans jugular liver biopsy, ct scans, ultrasounds, blood transfusions, iron infusions. I had jaundice, splenomegaly. I was checked for every blood cancer. Not as much fun as it sounds! My doctor has no idea why...
I'm currently dealing with the same about 1.5 years. What did u do to help the healing?
Just left the hospital about 10 days ago. All labs neg so far but needed 6-7 bags of blood while in the hospital for 11 days.
How did you get better.
@@oceanteabear by the grace of God. No other explanation... My body just healed itself.
@@oceanteabear Hope you get better soon.
@@lizzielynch2332 doing better. Went to oncology yesterday all labs normal now. Going down on steroids every 2 weeks. Was warned since we don't know what caused it it can return. Going to study & keep notes. Surprised that doc has no suggestions for brand of folate etc.
Research is on us. Luckily I had done a 23&me and noticed MTHFR. As 8 have 2 of those lovely meeded up genes Im unable to process folate properly. I need L-5 methylfolate that is ready to be asimulated. We must be our own researchers/doctors/advocates.
Thank you for this I've had HA since I was 17.
How does it happen? And what are the symptoms?
I’ve had it since I was born :)
@@wikusiawika1983 Me too- since my birth everybody knew.
Thank you for posting ,very helpful
in your classification you put PNH in immune cause but when you do your coombs test you will having negative coombs test ,
for non immune cause.
Super lecture thanks Sir
Thank you do much 💗
why normal erytrocyte level is 5,5 *10*9 but not 5,5*10*12?
Amazing! Thank you ❤️
My one friend have the 20 years has the haemoltic anaemia when he was diagnosed .he is now 24 years old but he haven't had a check up from 4 years and does not use medications is there any problem will occur??
Medicine lecture needs management and treatment? Where is the treatment sir?
wheres the next lesson?
This was great, I been tryin to find out about "signs for hypothyroidism" for a while now, and I think this has helped. Have you ever come across - Yannabarn Vanish Thyroid - (should be on google have a look ) ? Ive heard some great things about it and my friend got amazing results with it.
Thrombosis mechanism plz explain in detail
OMG, sorry i havnt watched this lol, but the yellowing of eyes: I had this! buuuuut it seems lack of iron helped that!. I also had skin yellowing, and iron helped there too!
I used to exercise a lot and i lost 30 pounds, i was vegan too, i think i was defficent in so many vitamins, & i was pretty strict.. Anyways.. i dont know if one of the symptoms are under eye circles but i got that bad🤔😳, lack of vit E can cause Hemolytic Anemia. My circles slowly developed during many many month of exercising consistanty & i didnt know why i was getting them, i tried every vitamin out there even B complex, nothing... , and what everything was saying on the internet was a lack of iron is strongly associated with eye circles & k , all those seem to just do so much and i had to take more than what was recommended to see an improvement. I was afraid of damaging myself.. so i stopped. Anyways my ex told me i looked like i was punched in both eyes one time when i asked him about them. Other symptoms i had was tiredness\ exhuastion, but i remember even when i was a teenager i was tired🤔 i slept as much as 19 hours & I was just looking back at my old pictures of when i was 14\15 or so and i noticed i had a hint of circles forming even then😐 and i thought maybe i always had these and just never noticed, maybe its my destiny to look like a druggie, i mean I'm fair skinned , they say you can just see under eye circles more on fair skinned people.
Anyways.. I was 29 when i first noticed them, and im 37 now. Also ive been an ex vegan for 10 yrs
C helps tho & Iron... but the most help is when i take vit E they pretty much vanish... Someone told me a few yrs ago that they take 800 ui for their circles, so im sticking to that.
I read something about premature babies and Vit E deficency, that they can get it and its linked ( and i was a premmie born 1 pound) but... this is only a risk as far as i read when theyre first born, still it made me wonder especially since it seems ive had under eye circles already forming decades earlier. My doctor always gave me a clean bill of health so that makes me even more confused..
What king of vitamins do you take ?
Tq
What's this mean?
@@SusieSynth it means "thank you"
syeda rizvi T thank you but q what ?
I have a sever case of this and idk what to do. They want to remove my spleen but I don’t want to get one of my organs out 😢 help
How are you now?
@@SusieSynth the problem was I was so stressed and not eating well. I didn’t need iron I needed more folic acid and more fruits and veggies. I was consistently juicing beets, oranges, carrots and lemon in the morning also eating completely plant based and not letting situations stress me out. Also, laying in the sun as much as possible really helped me. When I wrote that, I was in the hospital and I haven’t been back. In my case my red blood cells where shaped like spheres ( Spherocytosis) so when I’m stressed they can easily pop and lower my blood count raising my billirubin. It’s really important to have beet juice and rest! Also eat as much as you need cause your body will show you you’re not taking care of it! I hope you are well! ❤️
hi my husband also suffering with same problem recently got it know HA doctors are telling to do spleen surgery but we can't so we r trying TCM means traditional Chinese medicine
@@stephanieblendss1375 Are you okay now ? my eyes are yellowish i have anemia problem 😑
@@sonychintu5966 hey, i was good for a while and when I got COVID and my immune system was low causing hella red blood cells to break a couple months later it caused gallstones since there was so much break up of red blood cells. I really recommend going to an acupuncturist! It really helps. There’s not much to do but maintain it. I get really insecure about my eyes sometimes but drink a lot of water and keep that immune system on point! Hoping the best for you 💗
How about 2 condition that my little girl have? she having thalasemia and doctor sayed now she have autoimun which this video related to that symptom.
Link for non immune hemolytic anaemia?
What about G6pd deficiency?
He covered it under the enzyme column
Nice
❤❤❤
Banglai translation
Lecture thakle help hobe
wah
Hah? This is very complicated and all these blood relations with huge words or explaining it- can’t you just explain this in a simpler way?
stop saying guys
no
@misuborotea6807 😭