4/2024.....I guess I am a survivor. I'm presently 70. I was diagnosed at 12 or 13, with Klinefelter's. I was lucky to have a mother who tried to mitigate some of my issues. My mother was a reading teacher, and she had me attend tutors, from age 11, until the year before high school. My voice became deep at the appropriate time,....(thank god). I have some facial hair,....but can't grow a beard. I also had breast surgery, around age 14, to reduce my (boy) boobs, and they have remained flat and my chest looks normal. I suffered greatly with low self esteem, and chronic depression for most of my life. When I was diagnosed in 1966, at age 13. We were told,.."not much is known about this disorder". Were my doctors lying? There was no Internet, and I recall, on my own going to a public library at that time and later in college, trying to research it, and found pretty much nothing. The only thing I recall,...and it wasn't scientific,.....it said I would end up being a "talkative imbecile". Even with tutoring, I struggled in public school until I went off to high school. My mother saw that I was a very creative boy, and I loved making art. So she sent me various art classes held after school and on weekends. I excelled in this, and even began winning art competitions, by age 15. My mother took me to Art museums, history museums, science ones, both in our home town, and to ones in other cities. We went to local art exhibits. I was a friendless loner, most of my life. Neither the guys or girls had any interest in me. I was painfully shy. I had no coordination and wasn't interested in sports. In high school I blossomed, I found my sense of humor, all of a sudden my peers were interested in what I had to say. I finally was making friends. I gained much confidence. I attended a liberal arts college, and earned a BFA in Fine Arts, I even graduated with honors, my talents were recognized and I was awarded a 3 year Arts Scholarship, that paid for my classes and most of my art supplies. Because of my confidence, I became a "studio" aid,....a part time, paid position. I built the stretcher frames for the painters, and helped in the wood shop, instructing and assisting my fellow sculptors. I took a wide variety of "hands-on" classes. I became a Fine Arts printmaker, I excelled in silk screen printing. I began exhibiting my prints, winning awards, and even selling my art. I went on to Graduate School. After submitting a portfolio of examples of all my art, at the time, which included my sculptures, and prints, I won or was awarded a 2 year scholarship, which underwrote most of my academic & art classes, plus I secured an "Assistant professor position". The first year, I assisted my Print Making professor, teach his classes. The second year I had my own classes of students to teach. I taught printmaking for 1/2 of the year, and for the other half of the year, I taught fine art making to "non-art majors". Those positions also required that I lecture before classes of 20 or more students. Supplemented by slide shows of art by the many famous people throughout history. I ran art criticism classes, too. I continued to exhibit my own art, which included prints and sculptures. After Graduate School, where I received my MFA, I immediately found employment working for a small, not-for-profit, Art gallery. There I helped run our gallery, learned about how to pack fine art for shipping, and I built displays. We did community out-reach programs, too, held special events, and art competitions for our community. That job had me meeting hundreds of local artists, which lead to me finding a rather large warehouse, where myself and 8 other artists, opened up our own art studio. It was primarily a co-operative workspace. We each had large spaces to create our art in. I was in that studio for 14 years. I focused on my sculpture making, and was in many exhibitions. Some were groups shows, others were one-person exhibits. I began winning large (financial) grants, where I was competing with all the artists of my entire state, Ohio. Exhibiting my art, winning grants and even selling my art. (Selling my art never amounted to "making a living", however. After my art gallery job, I worked for 20 years, as a professional art picture framer, where I did make a "living". Even with all my successes, I was often racked with anxiety and soul crushing depression. I was in talk therapy most of my life. My art money earnings, paid for my motorcycle, which I enjoyed and drove during the summer months, for 33 years. I also owned several cars, during those years. (not all at once). I've had the same girlfriend for most of my life, we lived together for 10 years. We now live in the same neighborhood, but not under the same roof. We see each other weekly. I exceeded all expectations I had about myself. I may be too talkative at times,....but I'm hardly an imbecile.
American Doctors are clueless about 47XXY. This blood test needs to be done to ALL newborns. I didn't find out until I was 50 Yrs. old. My life is a mess.
I believe mandatory testing for genetic conditions began mid 90's; unfortunate for those of us born earlier, but at least future generations will be more understanding and empathetic :)
Abdulkarim Naaman Not in the way you mention but sadly the extra chromosome adds extra health problems :( but your view on life is beautiful and a way to strive for.
In year 2000 I was detained at Sydney Australia airport because of my testosterone prescription. They told me it is illegal in Australia. Has that now changed. Are endocrinologist now able in Australia to treat xxy with testosterone?
I have the xxy. I was wondering a lot of things at the age of about 30. So I had went to the library, Google & TH-cam. It took a couple years for me to talk to my tribal doctor about it. He tested me & shir enough. It was positive. Xxy - I lived alcoholic life for about 15 years. It made conditions on me ten times worse. I'm now sober & pay attention to my body & take a 45 mg antidepressant called Remeron. Things are going much better. Miss used addiction caused many more problems then needed
Be careful there may be side effects, that others have had to endure later on, cause the kidneys one of it's job is to filter out toxins. Try natural alternatives like broccoli 🥦, and St. Johns Wort. Whatever works healthier for you.
I am 39 and was diagnosed last month with 47 XXY. I'm concerned because my Endocrinologist only did SOME of these tests. Nothing cardiac related has come up. This is concerning to me. I didn't know there were cardiac abnormalities.
cem Demir merhaba kardeşim. Ben de bu sorun olabilir mi diye araştırıyorum. Jinekomasti ve kadınsı yağ dağılımı var vücudum da. Ama testislerim normal ve vücudum çok kıllı. Arada kaldım.
@@galaktiklord7024 selam, sen Türkiyede yaşıyorsan eğer üniversite hastanelerinde endokrin bölümünde genetik test yaptırtmak için randevu al, sonra tedaviye başlarlar saten ben şuan sustanon 250 mg. kullanıyorum iğne ayda bir, evliysen çocuk olma olasılığı düşük doğuştan kısırsın araştır ve bana yine yaz yardımcı olurum.
All these symptoms explain my life and how I've felt so weird and different the past 24 years. I'm 6ft 6, my mum is 4ft 9 and my dad is 5ft 6. I'm the tallest in the whole family, including extended.
@@WDBsirLocksight Strange that it would go back multiple generations as most people with Klinefelter syndrome are infertile, it's even been said to be all cases by some doctors.
@@WDBsirLocksight Still, passing on a genetic abnormality is difficult when one of the primary symptoms is infertility no matter how you want to state the relationship to the ancestor the abnormality traces to and indeed the brother of a great grandfather would certainly not pass any genes to you anyways so how can a genetic abnormality be traced back to such a relation at all. Your claim of an uncle being the brother of a great grandfather is not only inaccurate as an uncle is the brother of a father or mother and of course it would actually be impossible to trace a genetic abnormality to an uncle as you would not be descended from your uncle unless incest had occurred, and then there's most men with Klinefelter syndrome are infertile... My statement stands that the posters claim of tracing back five generations is surprising (note a brother of a great grandfather is only three generations not five).
@@johnwang9914 I guess you found me out. Youre some truther. You just crushed me with that argument. I have "de novo" so it randomly popped up in my just generation.
I'm 5'7 and taller than everyone in my family and when visiting the country we immigrated from, I was the tallest person in a subway train which really felt unusual for me. The video did say taller than expected rather than how tall. I also always thought alot of caucasians in North America especially girls had short legs and long torsos but I never thought of my legs being long though that may just be that I've always been a little overweight so definitely not lanky.
I dunno. I never knew I had small geneitalia until recently because men in art and statues always had small privates so I assumed all men looked like me. I never really spent time around men undressed before.
The video said small testicles were characteristic but small penises were only in 20% of the cases. However, the video also said most cases are never diagnosed and micropenises are often not treated as they are often still functional and of course society doesn't seem to like discussing sexual matters like penis size. Note that micropenises are treated with testosterone during childhood and puberty so low testosterone levels seems to be implied with small penises and this syndrome results in low testosterone levels...
Why bro please tell me It is also curse for me in my college life I have topped in 12 class PCM and have cleared jee advanced exam which is World's 2nd most toughest exam but I have problem in doing coding I can't do high level codes which my most of friends can do 😢😢 what I can do ? And have you married?
I am 48, I have XXY. Former soldier, I have 3 Masters degrees and current English Professor in Korea. AMAZING short-term memory and Empathy. Negatives were/are....poor teeth health, speech issues when young, anger issues...that continue on today. I had breasts removed upon diagnosis and do not consider sterility a negative. I am now dealing with varicose veins. As for psychiatric, I have found Ritalin solves a lot of my issues, except it probably worsens the varicose vein issues.
@@MinxInSinx I was 40 when I was diagnosed. I joined in 99....Canada does not did not DNA test soldiers and testing and discriminating based on genetic results is illegal in Canada even now.
@@Mechinwisdom Klinefelter doesn't show in DNA mapping, it takes a karotype test to assess chromosome abnormalities, DNA mapping scrambles up the chromosomes to access the DNA within them and really efficient DNA mapping has only been around since the 90's, remember when the human genome mapping project was believed to not be achievable in our lifetime. The US military has always been more likely to discriminate upon medical tests then the Canadian military as well as more willing to use more advanced testing. Older texts say that Klinefelter Syndromes may have mental retardation as a symptom but more modern texts say that intelligence does not seem to be affected but there may be learning issues. Your multiple degrees obviously implies intelligence so maybe it's just abnormal brain development that's involved with negative effects outnumbering possible beneficial effects. Improved short term memory is often a compensation mechanism for learning difficulties. It is development that the abnormal hormone levels would cause after all. For all we know, abnormally high intelligence might just be a rarer symptom.
I have many of these characteristics, but I've never been diagnosed. Sparse facial hair, vellus body hair, infertility, wider hip structure, higher voice, lankiness, and cognitive issues (officially diagnosed with Asperger's Syndrome, ADHD Inattentive Type, GAD). The biggest difference with me is that I'm also transgender. I've never identified as a boy. Being intersex, though, has no direct correlation to trans identity. So, I'm kind of a rare case. I find it all very fascinating.
It's rare, but a certain number of XXY people identify as female. There was an actress awhile ago who actually starred in a James Bond movie back in the 80s: Caroline Cossey Cossey was actually an XXXXY person, making her feminine features even more pronounced. So in a way, you could say she was more of a woman, than an actual non-trans woman.
River Laurie not being funny I believe this is CIA genetic engineering shit never put it pass you on why so many cases of this show up sense the 60s they have DNA sense the 60s no excuse , if you can get sick then you're genetically engineered no doubt think about it
I live with klinefelter syndrome and despite the report of life and success I thought that my future if not a miserable humiliating life will be of extreme bitterness in love life my life is a freak I don't know why I was born in this drug of vegetating life.No women want me, I don't have an exciting job. I was only harmed by living in this crap rural countryside . I don't know how these guys live and they managed to come back and get married.
We xxy's should connect. I personally feel the medical community isn't doing enough. It falls on each of us xxy's to share cumulative knowledge to better understand ourselves.
DrLoud RS hello my body has feminine like. but I I'm a hairy guy. I also have symptoms of being 47xxy but I'm not quite sure. I'm a big guy. but my thighs and hips are wider than my arm. my testes are a bit small. I'm not finished puberty.. but my body really looks like I'm 47xxy. I also have feminine fingers and legs too. I have mustache and growing a beard. I'm hoping not to be infertile. when it comes to school I'm not special or anything although I am slower than some kids in academically. I can be really lazy and low energy but at times very energetic. but the only thing I'm worried about is I'm I 47 xxy?
Gregory Heath Maybe but I'm pretty active..I go to the gym..lift cardio the only thing that kinda makes me kinda xxy is my body features I got wide hips narrow shoulders ( some guys do too) big thighs.. I got nice eye lashes (long) some guys do too its might be just genetics..and feminine skinny fingers small wrist..idk it could just be genetics.. I have hair(body and facial) I grow my hear fast.. I already started puberty still not finished...
Have no fear, for God can be with you (or is if you believe already). Take things in chunks and steps. Don't start to worry about the whole enchilada. Think of each ingredient in the situation - the quality (what's a part of ur life) and the texture (the expression and responses in life).
Men with an extra X chromosome should be called the X-Men. But seriously I suspect I have klinefelter and I've talked to my doctor about the possibility of getting tested.
Yes, there is greater percentage of non-heterosexual and gender diverse people, but this seems to be tied to the greater prevalence of ASD in XXY people.
In some countries only the lowest cost test is available. Usually they do a FISH to test there hypothesis but since about 2010 karyotype have come down in price and in 2012+ substantially. If you can make a case to insurance, a CGHarray is the best.
I am a 47 XXY KS intersex transgender woman, with a female biological characteristics as a result of the KS traits and female hormones. I am also in a firm belief that KS is a condition of an intersex nature, an not strictly male.
Stomach surgery has some unpleasant side effects such as your feces being extremely odorous. However the surgery where the stomach is banded to reduce it's volume is said to be reversible. I think there are obesity medications now such as Contrave which is now all over tv commercials, it's a combination of an anti-depressive (bupropion) that's known for the side effect of weight loss and Natraxone which is normally prescribed to treat opiate addiction by disrupting the addiction centres in the brain. However, make sure you have someone with you when you start on bupropion as your emotions might go crazy for awhile, when I was diagnosed with Congestive Heart Failure which back at the time I was diagnosed was considered to result in a 70% of death in five years, I asked for an anti-depressant as surely I would not make it through such a challenge if depressed, I started with Prozac but that just dulled everything and suppressed my libido so I asked for Wellbutrin (bupropion) but it had me collapsed on the floor with emotions when I started on it, it did settle down quickly though. I don't know what naltrexone might do, my father stole all my pain killers that were prescribed for operations when I was a child as they worked well against his headaches so I never got addicted to opiates though surprisingly, I seem to attract girlfriends who were addicted to opiates. Talk to your doctor as there seems to be more options in treating obesity now.
I have most of the typical symptoms except the decreased IQ. I even developed the venous ulcers and had pulmonary embolisms. I had to bring the possibility of Klinefelter Syndrome to my doctor who verified that I had the symptoms. He sent off for the Karyotype test and it came back normal. Could it have been wrong? If it was normal, what else can cause the same symptoms? I'm also trans, by the way.
It is likely these characteristics are caused from low testosterone rather than klinefelter. Many men with klinefelter have little to none of these characteristics and many normal men have some or all.
Hmmm, prolactin can be high. I wonder if male lactation might be a thing with this syndrome. When I was diagnosed with Congestive Heart Failure and was very very sick, pretty much bedridden, I actually had male lactation. Of course I just blamed it on everything being askewed due to the inability of my heart to provide the needed blood flow (EF was 15% at the time) and issues with the liver not removing enough hormones is a known cause for male lactation. My cardiologists thought nothing of the male lactation though occasionally one would ask if I was taking spironolactone at the time, I know that it was prior to being put on spironolactone. These symptoms for Klinefelter syndrome sound awfully familiar except the possible mental retardation as my IQ has been tested at the 99th percentile however I would say that I never really learned good learning and studying practices as I never had to, I even solved a question that required Bayes theorem even though I missed the class on it so I did it from first principles which is considered impossible to do, indeed I had a habit of showing up 20 minutes late for a test or only completing part of the test by not noticing the test was two sided and still doing well, I was mostly excused from class during high school as the teachers expected me to already know what they were discussing, typically I attended about two hours of classes per two days in high school, that may be unusual but would be hard to qualify as mental retardation. My devil may care attitude to school did affect me negatively in University but I still scraped through with my poor attendance even missing a few midterm tests as I did not know when they were scheduled, as of course I missed the class announcements and of course didn't speak very much with fellow students. I guess just being mentally abnormal might qualify as the whole point is that development wouldn't be as it should've been.
Same situation I have scored 94% in 12 PCM and have qualified jee advanced exam which is 2nd thoughest exam of world and I have not prepared for this exam I have only prepared for board exam but I had qualified jee advanced exam and I had topped in class 12 but in college I have taken Computer Science And Engineering but I have problem with coding I cannot solve midium level problems what I can do please help
@@neverstoplearning3451 what problems are you facing? Have you taken jee advanced through PWD reservation? I also think i have KS, BUT I didnt took the test. I am from India. Tell me what problems are you facing?
@@sohamjain8599 noo I have not taken PWD me genral catagory se hu and normal catagory se hi admission liya par me abhi IIT me nahi hu me Gujrat ki Nirma University me hu jaha pe state board ke Mark pe admission milta hai Mera state board and state ki competitive exam GUJCET me 319 rank tha isliye yaha liya IIT me to me Genral catagory and EWS me bhi nahi aata isliye nahi Mila and I think KS PWD me nahi aata normal me hi aata hai and Triggered insaan ko bhi ye problem hai me 19 year ka hu abhi dadhi muche nahi aai hai and muje lagta hai testosterone low hai baki to koi bahut dikkat nahi hai vaise maine bhi test nahi karaya hai ye to Google and TH-cam se muje pata chala and TOM CRUISE ko and George Washington ko bhi tha ye so itna dikkat ki baat nahi lagti muje kya insta use karte ho ? I'D Kya hai ?
Thank you very explanatory however as a primary partner with a KS man and basically his caregiver i observe at his age 62 a decline in mood, ADHD and anxiety. I pick up depression as well and he has often said he feels dead inside. I have been with him 23 years and seriously this holiday thought of ending the relationship. His understanding of a proper relationship and what he brings has seemed to dwindle and I could not handle his negative griping. That said I started really researching and know that he needs me and he would not be able to do without help. Are there meds for ADHD and depression or should we return to the endocrinologist when he has already been diagnosed?
I'm very wary of meds. I asked a geriatrician who are good at being general medical, unique physical issues and mental/cognitive. He reccomends dealing with KS or XXY non-KS low hormonal state with T first before psychiatric meds. Then eval the ADHD later. May only need a short-acting med and a non-stimulant although say atomexitine sometimes not covered. As to marriage I would try to stick it out. Usually when there's u understanding, clarity follows. Married people with challenges need heapings of patience. And as you know issues are never one or other. Examine what you may be doing that reflects negatively in the romantic response of your partner. If a reset us needed carve out some time for a non-formal or formal retreat. Re-connect, re-establish, repair and habilitate The only time couples should leave is if there physical abuse, long standing direct mental abuse etcetera. If you believe in God jump into the word to understand where God wants you to be.
My inattentive adhd and Aspergers diagnoses has currently led me to believe I have this considering my weight problems stem from always being easy to displease other people in classes I tried to act boystrous but never worked I got used by very dominating men to sell my stuff last year or let them stay in my parents house knowing that I might have a more female gene has helped since it feels like the vyavanse has activated the extra X chromosome I swear. I'll be happy when I'm in a woman's body I know I will and fight this personality disorder
Why is there so many people attacking Klinefelter syndrome. Is real and it affects a lot of men out there period when you actually have kids who are born with hypogonadism. What are you going to say it's not Klinefelter syndrome. I don't know how you could say that because people like this had existed for thousands of years just like the old freak shows from the past. Where you would have the bearded lady or men who can get shot by cannonballs and be perfectly Define genetic defects happen all the time these defects. Cause a lot of these people to be born with these particular problems. Unless you are a religious zealot I don't know how you could dislike this video for pointing out these facts
I have Kallmann syndrome which at first can look a lot like Klinefelter syndrome in terms of physical symptoms. Kallmann syndrome patients also have delayed puberty / hypogonadism. One major difference is that both males and females can have Kallmann syndrome and will be 46, XY or 46, XX respectively. It is also associated with a lack of sense of smell.
@@chastitywhiterose Well they do say that women are more sensitive to scent so changes in smell after HRT and bottom surgery does seem possible as does the loss of scent due to hormone problems.
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4/2024.....I guess I am a survivor. I'm presently 70. I was diagnosed at 12 or 13, with Klinefelter's. I was lucky to have a mother who tried to mitigate some of my issues. My mother was a reading teacher, and she had me attend tutors, from age 11, until the year before high school. My voice became deep at the appropriate time,....(thank god). I have some facial hair,....but can't grow a beard. I also had breast surgery, around age 14, to reduce my (boy) boobs, and they have remained flat and my chest looks normal. I suffered greatly with low self esteem, and chronic depression for most of my life. When I was diagnosed in 1966, at age 13. We were told,.."not much is known about this disorder". Were my doctors lying? There was no Internet, and I recall, on my own going to a public library at that time and later in college, trying to research it, and found pretty much nothing. The only thing I recall,...and it wasn't scientific,.....it said I would end up being a "talkative imbecile". Even with tutoring, I struggled in public school until I went off to high school. My mother saw that I was a very creative boy, and I loved making art. So she sent me various art classes held after school and on weekends. I excelled in this, and even began winning art competitions, by age 15. My mother took me to Art museums, history museums, science ones, both in our home town, and to ones in other cities. We went to local art exhibits. I was a friendless loner, most of my life. Neither the guys or girls had any interest in me. I was painfully shy. I had no coordination and wasn't interested in sports. In high school I blossomed, I found my sense of humor, all of a sudden my peers were interested in what I had to say. I finally was making friends. I gained much confidence. I attended a liberal arts college, and earned a BFA in Fine Arts, I even graduated with honors, my talents were recognized and I was awarded a 3 year Arts Scholarship, that paid for my classes and most of my art supplies. Because of my confidence, I became a "studio" aid,....a part time, paid position. I built the stretcher frames for the painters, and helped in the wood shop, instructing and assisting my fellow sculptors. I took a wide variety of "hands-on" classes. I became a Fine Arts printmaker, I excelled in silk screen printing. I began exhibiting my prints, winning awards, and even selling my art. I went on to Graduate School. After submitting a portfolio of examples of all my art, at the time, which included my sculptures, and prints, I won or was awarded a 2 year scholarship, which underwrote most of my academic & art classes, plus I secured an "Assistant professor position". The first year, I assisted my Print Making professor, teach his classes. The second year I had my own classes of students to teach. I taught printmaking for 1/2 of the year, and for the other half of the year, I taught fine art making to "non-art majors". Those positions also required that I lecture before classes of 20 or more students. Supplemented by slide shows of art by the many famous people throughout history. I ran art criticism classes, too. I continued to exhibit my own art, which included prints and sculptures. After Graduate School, where I received my MFA, I immediately found employment working for a small, not-for-profit, Art gallery. There I helped run our gallery, learned about how to pack fine art for shipping, and I built displays. We did community out-reach programs, too, held special events, and art competitions for our community. That job had me meeting hundreds of local artists, which lead to me finding a rather large warehouse, where myself and 8 other artists, opened up our own art studio. It was primarily a co-operative workspace. We each had large spaces to create our art in. I was in that studio for 14 years. I focused on my sculpture making, and was in many exhibitions. Some were groups shows, others were one-person exhibits. I began winning large (financial) grants, where I was competing with all the artists of my entire state, Ohio. Exhibiting my art, winning grants and even selling my art. (Selling my art never amounted to "making a living", however. After my art gallery job, I worked for 20 years, as a professional art picture framer, where I did make a "living". Even with all my successes, I was often racked with anxiety and soul crushing depression. I was in talk therapy most of my life. My art money earnings, paid for my motorcycle, which I enjoyed and drove during the summer months, for 33 years. I also owned several cars, during those years. (not all at once). I've had the same girlfriend for most of my life, we lived together for 10 years. We now live in the same neighborhood, but not under the same roof. We see each other weekly. I exceeded all expectations I had about myself. I may be too talkative at times,....but I'm hardly an imbecile.
My son was just diagnosed he is 10 and has language and dev delays. He has autism as well. This video helped me so much. God bless you.
he's fortunate it was found out as such an early age, I hope he is doing well!
This is literally the best video I have ever seen on KS.
American Doctors are clueless about 47XXY. This blood test needs to be done to ALL newborns. I didn't find out until I was 50 Yrs. old. My life is a mess.
I believe mandatory testing for genetic conditions began mid 90's; unfortunate for those of us born earlier, but at least future generations will be more understanding and empathetic :)
In the United States this is mandatory ? Newborns or children get this test ?
Newborns
Abdulkarim Naaman Not in the way you mention but sadly the extra chromosome adds extra health problems :( but your view on life is beautiful and a way to strive for.
Nelly Hoffman I'll consider your answer :)
Great new intro. Just wanted to let you know all your videos have helped me passed all my exams here in Australia! Thanks once again Paul!
In year 2000 I was detained at Sydney Australia airport because of my testosterone prescription. They told me it is illegal in Australia. Has that now changed. Are endocrinologist now able in Australia to treat xxy with testosterone?
My great grandson was diagnosed at birth he also has autism he's hard work at the moment he's 13 yrs old such a loving boy
You should distinguish the features between TREATED and UNtreated XXY.
Thank you for this extensive information.
Really helps me to understand the Kleinfelders syndrome 👍👍👍
I realized only at my 30..it was too late...I can't explain the pain agonies and miseries I am going through each..day..
I have the xxy. I was wondering a lot of things at the age of about 30. So I had went to the library, Google & TH-cam. It took a couple years for me to talk to my tribal doctor about it. He tested me & shir enough. It was positive. Xxy - I lived alcoholic life for about 15 years. It made conditions on me ten times worse. I'm now sober & pay attention to my body & take a 45 mg antidepressant called Remeron. Things are going much better. Miss used addiction caused many more problems then needed
Be careful there may be side effects, that others have had to endure later on, cause the kidneys one of it's job is to filter out toxins. Try natural alternatives like broccoli 🥦, and St. Johns Wort. Whatever works healthier for you.
I am 39 and was diagnosed last month with 47 XXY. I'm concerned because my Endocrinologist only did SOME of these tests. Nothing cardiac related has come up. This is concerning to me. I didn't know there were cardiac abnormalities.
Hi bro, I'm living turkey 47 xxy.... hello to all friends bearing this sendronom
cem Demir merhaba kardeşim. Ben de bu sorun olabilir mi diye araştırıyorum. Jinekomasti ve kadınsı yağ dağılımı var vücudum da. Ama testislerim normal ve vücudum çok kıllı. Arada kaldım.
@@galaktiklord7024 selam, sen Türkiyede yaşıyorsan eğer üniversite hastanelerinde endokrin bölümünde genetik test yaptırtmak için randevu al, sonra tedaviye başlarlar saten ben şuan sustanon 250 mg. kullanıyorum iğne ayda bir, evliysen çocuk olma olasılığı düşük doğuştan kısırsın araştır ve bana yine yaz yardımcı olurum.
All these symptoms explain my life and how I've felt so weird and different the past 24 years. I'm 6ft 6, my mum is 4ft 9 and my dad is 5ft 6. I'm the tallest in the whole family, including extended.
Same
Possibly traced back 5 gens to a "unique" uncle that was tall.
@@WDBsirLocksight Strange that it would go back multiple generations as most people with Klinefelter syndrome are infertile, it's even been said to be all cases by some doctors.
@@johnwang9914
An Uncle is the brother of a Greatgrandpa
@@WDBsirLocksight Still, passing on a genetic abnormality is difficult when one of the primary symptoms is infertility no matter how you want to state the relationship to the ancestor the abnormality traces to and indeed the brother of a great grandfather would certainly not pass any genes to you anyways so how can a genetic abnormality be traced back to such a relation at all. Your claim of an uncle being the brother of a great grandfather is not only inaccurate as an uncle is the brother of a father or mother and of course it would actually be impossible to trace a genetic abnormality to an uncle as you would not be descended from your uncle unless incest had occurred, and then there's most men with Klinefelter syndrome are infertile... My statement stands that the posters claim of tracing back five generations is surprising (note a brother of a great grandfather is only three generations not five).
@@johnwang9914
I guess you found me out.
Youre some truther.
You just crushed me with that argument.
I have "de novo" so it randomly popped up in my just generation.
And don`t forget the ADHD/Asperger link.
great Paul u helped alot during my PG preparation.
I am only 5'8, but I'm taller than my 5'2 father and 5'6 mother.
Wow I am also 5'8 and taller than both my parents even though I am shorter than the general male population. Almost all my height is my long legs.
@@chastitywhiterose same lol
I'm 5'7 and taller than everyone in my family and when visiting the country we immigrated from, I was the tallest person in a subway train which really felt unusual for me. The video did say taller than expected rather than how tall.
I also always thought alot of caucasians in North America especially girls had short legs and long torsos but I never thought of my legs being long though that may just be that I've always been a little overweight so definitely not lanky.
Are small genitals very common with Klinefelter? Are there patients with relatively normal genital sizes?
I dunno. I never knew I had small geneitalia until recently because men in art and statues always had small privates so I assumed all men looked like me. I never really spent time around men undressed before.
@Sam could you tell the average volume of testis in klinfelter syndrome persons
The video said small testicles were characteristic but small penises were only in 20% of the cases. However, the video also said most cases are never diagnosed and micropenises are often not treated as they are often still functional and of course society doesn't seem to like discussing sexual matters like penis size. Note that micropenises are treated with testosterone during childhood and puberty so low testosterone levels seems to be implied with small penises and this syndrome results in low testosterone levels...
It's a curse. I am 26, I can tell you it's a curse.
Why bro please tell me
It is also curse for me in my college life I have topped in 12 class PCM and have cleared jee advanced exam which is World's 2nd most toughest exam but I have problem in doing coding I can't do high level codes which my most of friends can do 😢😢 what I can do ? And have you married?
Very nice. I am XXY, non-kleinfelter's. I am 5'7" and quite feminine looking. IQ average or above. Fight Depression, unmedicated.
Hi how you doing my friend am xxy can we be friends so we shire experience that's xxy is meek my life strange
Hussam: Feel free to message me when you like. I do not speak anything but English. Peace to you.
Feel free to add me into the mix, gents :)
فيصل حسام share ur number
Trans KS girl here too.
I am 48, I have XXY. Former soldier, I have 3 Masters degrees and current English Professor in Korea. AMAZING short-term memory and Empathy. Negatives were/are....poor teeth health, speech issues when young, anger issues...that continue on today. I had breasts removed upon diagnosis and do not consider sterility a negative. I am now dealing with varicose veins. As for psychiatric, I have found Ritalin solves a lot of my issues, except it probably worsens the varicose vein issues.
The military doesn't allow abnormal karyotypes *klinefelter syndrome*
Quit trolling *you don't have klinefelter syndrome
@@MinxInSinx I was 40 when I was diagnosed. I joined in 99....Canada does not did not DNA test soldiers and testing and discriminating based on genetic results is illegal in Canada even now.
@@Mechinwisdom Klinefelter doesn't show in DNA mapping, it takes a karotype test to assess chromosome abnormalities, DNA mapping scrambles up the chromosomes to access the DNA within them and really efficient DNA mapping has only been around since the 90's, remember when the human genome mapping project was believed to not be achievable in our lifetime. The US military has always been more likely to discriminate upon medical tests then the Canadian military as well as more willing to use more advanced testing. Older texts say that Klinefelter Syndromes may have mental retardation as a symptom but more modern texts say that intelligence does not seem to be affected but there may be learning issues. Your multiple degrees obviously implies intelligence so maybe it's just abnormal brain development that's involved with negative effects outnumbering possible beneficial effects. Improved short term memory is often a compensation mechanism for learning difficulties. It is development that the abnormal hormone levels would cause after all. For all we know, abnormally high intelligence might just be a rarer symptom.
I have many of these characteristics, but I've never been diagnosed. Sparse facial hair, vellus body hair, infertility, wider hip structure, higher voice, lankiness, and cognitive issues (officially diagnosed with Asperger's Syndrome, ADHD Inattentive Type, GAD). The biggest difference with me is that I'm also transgender. I've never identified as a boy. Being intersex, though, has no direct correlation to trans identity. So, I'm kind of a rare case. I find it all very fascinating.
It's rare, but a certain number of XXY people identify as female. There was an actress awhile ago who actually starred in a James Bond movie back in the 80s: Caroline Cossey Cossey was actually an XXXXY person, making her feminine features even more pronounced. So in a way, you could say she was more of a woman, than an actual non-trans woman.
River Laurie not being funny I believe this is CIA genetic engineering shit never put it pass you on why so many cases of this show up sense the 60s they have DNA sense the 60s no excuse , if you can get sick then you're genetically engineered no doubt think about it
So having femine hips wasn't a bad thing
@@greekmythology9538 so did we have this syndrome with cia yin genetic engineering?
Have you had a karotype test done? Maybe you should as it would affect your hormone levels.
I got klinefelters syndrome l had it 38 heas on testosterone for 30 years very good
I live with klinefelter syndrome and despite the report of life and success I thought that my future if not a miserable humiliating life will be of extreme bitterness in love life my life is a freak I don't know why I was born in this drug of vegetating life.No women want me, I don't have an exciting job. I was only harmed by living in this crap rural countryside .
I don't know how these guys live and they managed to come back and get married.
I think I have this I'm 33, with no insurance..so looks like I'm fucked...and will remain miserable.
We xxy's should connect. I personally feel the medical community isn't doing enough. It falls on each of us xxy's to share cumulative knowledge to better understand ourselves.
DrLoud RS hello my body has feminine like. but I I'm a hairy guy.
I also have symptoms of being 47xxy but I'm not quite sure.
I'm a big guy. but my thighs and hips are wider than my arm.
my testes are a bit small.
I'm not finished puberty..
but my body really looks like I'm 47xxy.
I also have feminine fingers and legs too.
I have mustache and growing a beard. I'm hoping not to be infertile.
when it comes to school I'm not special or anything although I am slower than some kids in academically.
I can be really lazy and low energy but at times very energetic.
but the only thing I'm worried about is I'm I 47 xxy?
DrLoud RS or is it possible that I'm 47xxy but doesn't have KS?
Don't Be Scared Homie possibly. Klinefelter's is the advanced symptoms of47xxy
Gregory Heath Maybe but I'm pretty active..I go to the gym..lift cardio the only thing that kinda makes me kinda xxy is my body features I got wide hips narrow shoulders ( some guys do too) big thighs.. I got nice eye lashes (long) some guys do too its might be just genetics..and feminine skinny fingers small wrist..idk it could just be genetics.. I have hair(body and facial) I grow my hear fast..
I already started puberty still not finished...
I am scared due to Gynecomastia increased risk of male breast cancer
Have no fear, for God can be with you (or is if you believe already). Take things in chunks and steps.
Don't start to worry about the whole enchilada. Think of each ingredient in the situation - the quality (what's a part of ur life) and the texture (the expression and responses in life).
Men with an extra X chromosome should be called the X-Men.
But seriously I suspect I have klinefelter and I've talked to my doctor about the possibility of getting tested.
Well this explains my psychosis
I'm on the way
My father had blue legs though I am not sure it was venous ulcers. And very large hips bones.
what is the percentage of xxy patients that are homosexual? is it more prevalent then in the xy?
No it is not. Some are transgender but not necessary more as xy males.
ok thanks
excellent question!
Yes, there is greater percentage of non-heterosexual and gender diverse people, but this seems to be tied to the greater prevalence of ASD in XXY people.
does somebody help me
how can it be tested medically or name of laboratory test
i have some of the symptoms
Hey. To confirm you need to get the karyotype done.
In some countries only the lowest cost test is available.
Usually they do a FISH to test there hypothesis but since about 2010 karyotype have come down in price and in 2012+ substantially.
If you can make a case to insurance, a CGHarray is the best.
I am a 47 XXY KS intersex transgender woman, with a female biological characteristics as a result of the KS traits and female hormones. I am also in a firm belief that KS is a condition of an intersex nature, an not strictly male.
Nope. KS is a syndrome for males only. Turner Syndrome is for females only.
Since you're trans you were kinda lucky. You already had female hormones naturally.
@@Mia-de8xf fkc u
@@WebVManReturns And PCOS is for whom? Is there any room for intersex at all with this way of thinking?
I'm also trans and suspected that I have Klinefelter syndrome.
I can't lose my belly fat with too much exercise and walking, do you think I'm a suitable person for stomach surgery?
Stomach surgery has some unpleasant side effects such as your feces being extremely odorous. However the surgery where the stomach is banded to reduce it's volume is said to be reversible. I think there are obesity medications now such as Contrave which is now all over tv commercials, it's a combination of an anti-depressive (bupropion) that's known for the side effect of weight loss and Natraxone which is normally prescribed to treat opiate addiction by disrupting the addiction centres in the brain. However, make sure you have someone with you when you start on bupropion as your emotions might go crazy for awhile, when I was diagnosed with Congestive Heart Failure which back at the time I was diagnosed was considered to result in a 70% of death in five years, I asked for an anti-depressant as surely I would not make it through such a challenge if depressed, I started with Prozac but that just dulled everything and suppressed my libido so I asked for Wellbutrin (bupropion) but it had me collapsed on the floor with emotions when I started on it, it did settle down quickly though. I don't know what naltrexone might do, my father stole all my pain killers that were prescribed for operations when I was a child as they worked well against his headaches so I never got addicted to opiates though surprisingly, I seem to attract girlfriends who were addicted to opiates. Talk to your doctor as there seems to be more options in treating obesity now.
@@johnwang9914 Thank you for your answer
@@johnwang9914 Are you using sustanon, that is, a testosterone injection, I press it from my hip once a month, is there any harm?
I have most of the typical symptoms except the decreased IQ. I even developed the venous ulcers and had pulmonary embolisms. I had to bring the possibility of Klinefelter Syndrome to my doctor who verified that I had the symptoms. He sent off for the Karyotype test and it came back normal. Could it have been wrong? If it was normal, what else can cause the same symptoms? I'm also trans, by the way.
It is likely these characteristics are caused from low testosterone rather than klinefelter. Many men with klinefelter have little to none of these characteristics and many normal men have some or all.
Check out for Kallman Syndrome/ Idiopathic Hypogonadotropic hypogonadism
Look at mosaic type. Some cells come back normal and some don’t. They might need a larger sample size to find it.
I am 35 years old man is Klinefelter's syndrome lumen treatment??
I am xyx I have 47xxy klinefelters syndrome my name is Adam baker from Tamworth 🇬🇧
9:04, Marfan syndrome.
Can u start testosterone replacement therapy at 26 yrs of age upon diagnosis?
sure... but its better to change your diet to find
out if you are able to produce testosterone naturally
Yeah what Frank says .
The only time they hesitate is around age 10 right before age 12 as its a puberty, circadian rhythm & sync issue.
Hmmm, prolactin can be high. I wonder if male lactation might be a thing with this syndrome. When I was diagnosed with Congestive Heart Failure and was very very sick, pretty much bedridden, I actually had male lactation. Of course I just blamed it on everything being askewed due to the inability of my heart to provide the needed blood flow (EF was 15% at the time) and issues with the liver not removing enough hormones is a known cause for male lactation. My cardiologists thought nothing of the male lactation though occasionally one would ask if I was taking spironolactone at the time, I know that it was prior to being put on spironolactone. These symptoms for Klinefelter syndrome sound awfully familiar except the possible mental retardation as my IQ has been tested at the 99th percentile however I would say that I never really learned good learning and studying practices as I never had to, I even solved a question that required Bayes theorem even though I missed the class on it so I did it from first principles which is considered impossible to do, indeed I had a habit of showing up 20 minutes late for a test or only completing part of the test by not noticing the test was two sided and still doing well, I was mostly excused from class during high school as the teachers expected me to already know what they were discussing, typically I attended about two hours of classes per two days in high school, that may be unusual but would be hard to qualify as mental retardation. My devil may care attitude to school did affect me negatively in University but I still scraped through with my poor attendance even missing a few midterm tests as I did not know when they were scheduled, as of course I missed the class announcements and of course didn't speak very much with fellow students. I guess just being mentally abnormal might qualify as the whole point is that development wouldn't be as it should've been.
Same situation I have scored 94% in 12 PCM and have qualified jee advanced exam which is 2nd thoughest exam of world and I have not prepared for this exam I have only prepared for board exam but I had qualified jee advanced exam and I had topped in class 12 but in college I have taken Computer Science And Engineering but I have problem with coding I cannot solve midium level problems what I can do please help
@@neverstoplearning3451 what problems are you facing?
Have you taken jee advanced through PWD reservation? I also think i have KS, BUT I didnt took the test. I am from India. Tell me what problems are you facing?
@@sohamjain8599 noo I have not taken PWD me genral catagory se hu and normal catagory se hi admission liya par me abhi IIT me nahi hu me Gujrat ki Nirma University me hu jaha pe state board ke Mark pe admission milta hai Mera state board and state ki competitive exam GUJCET me 319 rank tha isliye yaha liya IIT me to me Genral catagory and EWS me bhi nahi aata isliye nahi Mila and I think KS PWD me nahi aata normal me hi aata hai and Triggered insaan ko bhi ye problem hai me 19 year ka hu abhi dadhi muche nahi aai hai and muje lagta hai testosterone low hai baki to koi bahut dikkat nahi hai vaise maine bhi test nahi karaya hai ye to Google and TH-cam se muje pata chala and TOM CRUISE ko and George Washington ko bhi tha ye so itna dikkat ki baat nahi lagti muje kya insta use karte ho ? I'D Kya hai ?
@@sohamjain8599 hii bro
@@neverstoplearning3451 hello, pls answer to the above question
Thank you very explanatory however as a primary partner with a KS man and basically his caregiver i observe at his age 62 a decline in mood, ADHD and anxiety. I pick up depression as well and he has often said he feels dead inside.
I have been with him 23 years and seriously this holiday thought of ending the relationship. His understanding of a proper relationship and what he brings has seemed to dwindle and I could not handle his negative griping.
That said I started really researching and know that he needs me and he would not be able to do without help.
Are there meds for ADHD and depression or should we return to the endocrinologist when he has already been diagnosed?
I'm very wary of meds.
I asked a geriatrician who are good at being general medical, unique physical issues and mental/cognitive.
He reccomends dealing with KS or XXY non-KS low hormonal state with T first before psychiatric meds.
Then eval the ADHD later.
May only need a short-acting med and a non-stimulant although say atomexitine sometimes not covered.
As to marriage I would try to stick it out. Usually when there's u understanding, clarity follows. Married people with challenges need heapings of patience.
And as you know issues are never one or other. Examine what you may be doing that reflects negatively in the romantic response of your partner.
If a reset us needed carve out some time for a non-formal or formal retreat.
Re-connect, re-establish, repair and habilitate
The only time couples should leave is if there physical abuse, long standing direct mental abuse etcetera.
If you believe in God jump into the word to understand where God wants you to be.
Klinefilter syndrome is intersex or not?
No it's male but with some infertility which is cureable
My inattentive adhd and Aspergers diagnoses has currently led me to believe I have this considering my weight problems stem from always being easy to displease other people in classes I tried to act boystrous but never worked I got used by very dominating men to sell my stuff last year or let them stay in my parents house knowing that I might have a more female gene has helped since it feels like the vyavanse has activated the extra X chromosome I swear. I'll be happy when I'm in a woman's body I know I will and fight this personality disorder
Why is there so many people attacking Klinefelter syndrome. Is real and it affects a lot of men out there period when you actually have kids who are born with hypogonadism. What are you going to say it's not Klinefelter syndrome. I don't know how you could say that because people like this had existed for thousands of years just like the old freak shows from the past. Where you would have the bearded lady or men who can get shot by cannonballs and be perfectly Define genetic defects happen all the time these defects. Cause a lot of these people to be born with these particular problems. Unless you are a religious zealot I don't know how you could dislike this video for pointing out these facts
I have Kallmann syndrome which at first can look a lot like Klinefelter syndrome in terms of physical symptoms.
Kallmann syndrome patients also have delayed puberty / hypogonadism. One major difference is that both males and females can have Kallmann syndrome and will be 46, XY or 46, XX respectively. It is also associated with a lack of sense of smell.
I have had no sense of smell most of my life. However I suddenly was able to smell things after having my testicles removed.
@@chastitywhiterose Well they do say that women are more sensitive to scent so changes in smell after HRT and bottom surgery does seem possible as does the loss of scent due to hormone problems.
does all men with ks syndrome will be infertile ???
Botter truth* yess
No dear
10% with the mosaic form produce sperm with sperm cells that can impregnate.
Sojuuu
I thought that my body habitus is feminin, imagine that did sperm died? at teenage.
Nahhh, zoil's got all these symptoms lol
Lucky race of males
How?
Bodies like babes.
Ok then!
I mean, trans girl KS babe here, can confirm.
This post proves texting and explaining whether your serious.