my sister is having the same situation as you now. shes so young and she has a healthy lifestyle. dont know where she got it. 😢😢 my mum and I have been crying. Please for my family and her.
Sick children's hospital in Toronto canada missed my brain cancer after years of surgeries. It took o specialist not affiliated with Sick Kids to discover it. I was having blinding seizures. The dr called my dad and told him to get me in hospital immediately, and surgery would be done the following morning or I'd be dead in 2 weeks. Im 61 still here ❤
I’m a lot older than you but I have a similar story …I was just diagnosed Adenocarcinoma and waiting on PET for staging - Drs are like I “magically got this in the last year” but some of the symptoms I have had for 10 years and the most acute issues 3 or 4 years - I have had all kinds of tests by all kinds of specialists and it seems they all missed it!! I recently got my medical records and I can see the pattern but each doctor was only concentrating on their area of specialty…. One detail read through my records and I can see that I have had 9 of 10 symptoms for a long time! If it such a slow growing tumor and I just got this then why is it the size of a Silver Dollar? My team of Doctors even saw the tumor but said the same thing… infection scar or mucus plug? Never smoked…no family history! Thanks for your story!
How did you finally get diagnosed? Did you have to fight for it, or did your symptoms eventually get so bad that you went to the ER? (I have a set of symptoms for 10 years as well, and even had severe blood clotting a few years ago so now the doctors are attributing everything to an "unknown" autoimmune disease or remnants of my clotting. There's a spot in my lung as of my last CT but they think it's scar tissue from a PE, and I really want to believe that but it's just weird that certain symptoms, particularly my shoulder and upper back pain are getting progressively worse rather than better over time. It sometimes feels like it's my heart even, but all heart tests have come back normal so far. I tested neg for every autoimmune disease but my ANA titer is 1:640. Certain cancers can cause a positive ANA titer, especially if it's spread to the lymph nodes. I'm currently awaiting further instructions after an xray came back showing nothing, but I know many things aren't picked up except on a CT scan or MRI, depending on the type. What were some of the tests that you noticed in your history that could have been early signs? Thanks in advance for any info. I'm not scared or freaking out, I just have a quiet, nagging feeling which is why I haven't given up yet. I've learned in my years that panic is usually based in fear and "untruth," but a calm, quiet voice that never leaves is usually your gut telling you something is off. It could be something far less concerning than cancer of course, because last time I heard the voice it did turn out to be blood clots in my lungs that almost killed me, but that were very easily treatable in comparison to chemotherapies...
What an intelligent young woman. And such a great attitude. The type of cancer that she has has an excellent prognosis with a 5 year survival rate of 98% if there was no spread beyond the lung at diagnosis. Even with spread the prognosis is good so I think she'll do great.
Good for you Lauren. Don’t let anyone tell you that you CAN’T. You’ll never know till you try anyway and it’s so important to keep doing the things that bring you happiness if you possibly can. Best of luck to you for a long, healthy cancer free life!
I LOVE that you went back to your old school to talk to the kids about your experience, because you are so right, most of us think of cigarettes when we think of lung cancer.
Yes.... Most people hear cirrhosis of the liver and think alcoholic and my Mama was diagnosed with it because of a bile duct clog. She was so embarrassed to tell anyone why she was sick and in & out of the hospital because she didn't want people thinking she was drinking all those years.
People who get lung cancer 80% of them are smokers. Smoking can cause about 15 other cancers as well. NEVER! EVER! smoke you are asking for trouble. Don’t be an IDIOT!!!!! Smoking KILLS!!!!! 😡
I had a RUL lobectomy for a Neuroendocrine tumor. My doctor told me I won the lottery of lung cancers. My tumor had probably been there 10 years. I had no symptoms. Thanks for sharing your story! Wishing you the best!
Lauren, bless you for sharing your story! It means so much that you've enlightened us with the indepth sharing of your lung cancer story. We offer you our prayers and send blessings to you.
Hi Lauren from Canada. Hope your treatments are working for you. Your time spent sharing your situation is inspiring and helpful to so many people who feel alone and frightened while they battle their own illnesses. Keep the fight going. We are with you.
You could be a spokes person for the Lung Cancer Foundation. Thank God for your strong and courageous spirit. I’m sorry the doctors didn’t give you a script for a cat scan when you started having symptoms. Your strength is amazing. Thank you for sharing. I know you will become stronger everyday. I will continue to wear a mask in public areas too.
I am so sorry you are going thru this🙏❤️🙏 My Mom has always told me YOU know your body better than anyone👍 Good for you pushing thru to find out why you kept getting sick. Your MOM is a nurse and that’s a BLESSING❤ I am going to keep you in my prayers as I say the DIVINE MERCY CHAPLET everyday🙏 Keep the FAITH & PLEASE keep us posted. GOD BLESS YOU🙏❤️🙏
So happy and proud of you Lauren. I was going to ask you if you had been checked for Cystic Fibrosis at any time or other lung diseases. My daughter was dx age 4 via bronchoscopy Jan 1990 with a very rare lung disease, Immotile Cilia Syndrome or now called Primary Cilia Dyskensia. Constantly in hospital with pneumonia, sinusitis, ear infections several yrs. shes had 4 kids, none have it. But 2 of her kids, eldest and youngest have another rare disease KAT6B, Ohdo syndrome. The youngest was dx first because of not gaining weight in her first yr, hardly eating, lots of GERD. Milk allergies. Mom and I strongly suspected something was seriously wrong and so we were right. Eldest was then checked as she was tiny and not eating well. Autistic as well. Then with the genetic testing came the news both mom and youngest had the BRCA1 gene. My mother at age 88 died of lung cancer, never smoked a cig in her life. I suspect radon. She was a stay at home mom with 4 kids, dad away at sea. So one of the military houses may have given her radon exposure. Who knows? I pray that you continue to do well and stay healthy. hugs from Ontario Canada
Such a brave strong women. So young to have all this on your mind. Your such an inspiration. I lost my sis to lung cancer, she was 67. The stigma with lung cancer needs to go away. Good for you speaking up! Did you say you live in Ak? Us Alaskans our tough. ❤❤❤ wishing you a ling wonderful life full of wonder & experiences ✨️
Neuroendocrine cancer of the lungs is not the commoner garden variety of lung cancer. It is important to raise awareness, that neuroendocrine cancer is a league of its own, and can occur in all different body regions, so Steve Jobs and Aretha Franklin had neuroendocrine cancer of the Pancreas, as have I. My doctors made sure, I know that it is not the same as pancreatic cancer.
Thanks for asking. RONNY ALLEN has a very informative web presentation for neuroendocrine tumors, he says it all so well and also is a public speaker for NET. so here I just give you some skeleton info (non native speaker, so forgive my maybe strange at times wording choices) For one, it is slow growing and can be presenting everywhere in the body, so neuroendocrine tumor (NET in short) of the lungs is not lung cancer, and NET in the pancreas is not Pancreatic cancer or NET in the small bowel is not bowel cancer. It is its own thing with its own challenges. Because it is slow growing and when lucky well differenciated, a "normal chemo" regiment can not work properly to treat it, because the medications need a fast cell growth rate to attack the cancer cells properly. Treatment, where possible is tumor removal and a regular screening for reoccurrence. There are hormone active tumors, which cause heart damage and nasty symptoms, when one is in a flare up. Some NET phenomena have a genetic component, where depending on the subtype, a person develops tumors in certain areas. This is Pancreas, parathyroids and Hypophysis for MEN1 (multiple endocrine neoplasias) or kidneys, lungs, … you can read up on the NETWORK NET homepage about it, if you use a translator, since it is a german page. They have a more medically accurate description than I can provide with my laymans knowledge about my own cancer variant, where my Pancreas and Parathyroids are affected. It has been emphasized to me, that with NET, it is advisable to be treated by a NET center of eccellence instead of at a "normal"oncologists office, because treatment looks so different and needs to be taken into consideration on each step in the cancer journey. Many oncologists still think of carcinoids concerning NET and assume, it is "not real cancer". That way, the treatment is not optimized and the patient outcome is not as good as it could be. Not to be an alarmist, but as in this video as an example, the symptoms were not taken seriously as were mine, which I had more than ten years already, because nobody thought of looking closer what caused reoccuring pancreatitis, in a patient who does not drink any alcohol and was fairly young when first getting symptomatic. Doctors should be made aware, that NETS are not as rare as the literature makes them believe. They are a special kind of malignancy, that is manageable, when discovered early enough and not yet has spread. Hope that helped to get you the right hints where to learn more about NET.
Literally had two people very close to me, under 45, end up with lung cancer that never smoked. Don't ever take your doctor's word for it that it's not lung cancer if there is very clearly a problem.
Wow … winning the 5k! Incredible. I have an oncogene-driven non-smoking lung cancer (ALK) and am on a targeted therapy drug. My running times are better than the year before diagnosis, but no better than that. But I’m happy to be running, whatever the time.
I don’t think she won the 5K, she has her picture taken at the finish which is a benefit offered for participants, but it’s awesome she ran it nonetheless and that you are running is awesome, too!
Thank you for reminding me it's ok to push for help. Did anyone do a chest xray at the beginning of all your complaints!! Thank you for sharing your story. I wish you the best in life. You are amazing!
Bless your heart💗 prayers for healing 💗edit to say I lost my mama in 2006 to lung cancer. However she smoked many many years. She never believed she had it 😿
Beautiful warrior strength. Thank you for posting your story. It really helps to gather, listen & share. I'm now better and on to surveillance scans every 3mos for bladder cancer@59, diagnosed Dec2022. Walking helps both mentally & physically.
Your one strong soul. Just not fair as you were very young. Not something that happens to often. I survived a football size ovarian tumor. It never spread. I had no chemo. The doctor said I was a miracle. Nothing in my lymph nodes. Had ca125 every six months. That was in 2011 June. Everyone thought I was going to die, but I never felt that. Knew I would be home in two weeks. There’s so much more to this. I was sick for along time and complained to my doctor, even saw a gyn. Bye
Keep up your positive attitude and keep on praying for God’s healing . God is the best doctor and healer . I will include with my prayers as I am a cancer patient too . But in my case it’s my colon.❤❤❤
I think it's also air pollution that takes a huge toll on our lungs and creates a breeding ground for lung cancer. A friend of a friend, also a non smoker, passed away at the age of 27 from it.
It's so complex. I am in asia right now the air pollution is INSANE I can barely breath in it. But , the locals all are healthy and strong even the old ones. I am starting to believe that cancer is mostly just genetics.
It definitely is sad what our healthcare system has become. Doctors don't even try to search for the root cause of an issue anymore. Everything is a guessing game and all they do is prescribe expensive medications and say, "Let's see what happens."
Why does the medical community have the policy of saying to a patient that if after some reasonable time say 2 weeks the prescribed treatment is failing or if your symptoms get worse you are to come in and we will investigate further?
Not medical community, but you are working with human beings, every treatment/Investigation has it's side effects, also you are not going to do 50 investigations on every patient you see,it's wasteful & damaging, a good doctor has an approach. Unless highly suspicious, considering symptom wise,age and risk factors, you wanna start of investigating and treating the most common things that could kill your patient & move up further if no response. Imagine a 20 y/o dying of untreated pneumonia because the doctor was targeting lung cancer.
This is what aggravates me about most of these cancer stories that I watch or listen to: The fact that the symptoms have either been ignored by doctors or dismissed by doctors for so long. Her tumor has been growing for over 12 years. All the symptoms were there. The doctors should’ve taken action years ago. That is just unacceptable. And it’s the same story every single time. “You’re too young to get cancer“. Cancer doesn’t care how old you are. Cancer does not care if your male or female. Cancer does not care what your skin color is or what your ethnicity is. Cancer will show up anytime. No one knows your body better than yourself. If you suspect something isn’t right, demand either bloodwork, x-rays, or a CT scan. If your doctor dismisses any of that, get yourself a new doctor until you find one that will listen.
Not sure if her school was like mine, but there was always construction going on at our schools so we were put in bungalows in elementary all the way through high school. Those bungalows have a sign outside of it that says they cause cancer. Perhaps too many toxins were taken in at a young age.
My Wife has the same collapsed lung because of infections such as TB and pneumonia but thank God still not cancer according to the X-rays and CT Scans. The inhalers and nebulizer are still working. But year after year infection always comes back. My wife has had two rounds of CT scans in 3 years gap. I think your doctor should do a CT Scan much earlier.
It’s true that non-smokers can get lung cancers, but smokers are still more susceptible to those cancers. Also, as someone else said here, neuroendocrine lung cancer is not the same as other lung cancers.
I just listened to your video, I would be so mad if i were going to see my Dr, and had infection after infection and the Dr's just kept brushing me off, I sure hope you did something about that, because that is NOT ok, sounds like you are doing well now and I hope you stay heathly and cancer free,
mindboggling how neglectful, superficial and indifferent and irresponsible (in my experience, a LOT of) doctors are! Not even taking a simple x-ray for many years it seems even though there were unexplained lung n breathing issues... I have asthma too and on my almost 10--year journey to a diagnosis soon realized you really have to stand on these physicians and hospital doctors' neck to get examinations and checks and not just some superficial treatment of "symptoms". It took several supposecly "specialized" doctors about 5 years more to diagnose my sleep apnea, despite me havoing ALL the symptoms for it, as I now know! And i live in Germany, a Western European country with a FORMERLY supposedly good healthcare system!
I hate that there is a stigma about lung cancer because of smoking. My mother died of lung cancer. Now, she did smoke back in the day, but she quit 30 years prior to her diagnosis, and her doctor said it wasn't the type you get from smoking, anyway. I heard it's something that southern white women get?
I don't think it always because of smoke. I have a sneaking feeling that lifestyle where a person is doing things that stresses the body could activate cancers.
What a huge disappointment that she had to WAIT a total of 9 months!!! No matter what….you have to be your own advocate and PUSH through the Medical world now!!!
Has your house, or your parents house been tested for radon? Ours was really high in our home and we had to get a system put in to filter it out. It raises the risk of lung cancer.
I cant wait for google to have a doctor so we wont have to wate to get treated. I think doctors just hope that they can push it away and then u die one of my best friends had cancer and the doctors pushed it away untill it was too late .
Bad doctors. Being sick a lot forced me to navigate the healthcare system. Never pick a HMO insurance. Find a good primary doctor who cares and don't brush off your concerns. I didn't need to force them to give me a ct scan. My doctor ordered it for me before telling me. That's the kind of doctor you want to keep.
Can I ask what size the tumor was , I just found out I have 2 6 MM on my L lung ,,, I think at 7 mm or 8mm ? they consider it a mass. I dont know that mine is cancer though ,,
@@KatieZeldin I am asking because so many young women are being diagnosed with stage 4 cancer. It's increasing. The question is why. Also, many of them did not get care for months, maybe a year during all the shut down. That's another why.
@@ginnylinn8224 My husband was diagnosed with pancreatic cancer a year after he got the "safe and effective". His lifestyle was perfect: we eat healthy homemade food, he was slim, played sports 3 times a week for years, slept well and was a really chill, positive person. Genetic test showed no proclivity. Jabbed people have elevated igg4 imminoglobulin that basically tells the immune system to ignore abnormal cells.
To anyone who finds my comment please eliminate pork, sugar, redmeat, candy, sweets, processed food and fried foods from your diet and juice every hour on the hour, Blessed Be.
Why would you not have a CAT scan immediately upon the initial symptoms, to rule out cancer? Why would you not be assertive on your own behalf to insist on a CAT scan?
Fking this. I don't get some people who just rely, or beg, a doctor for a scan. In the UK you can get a private MRI - without a referral, for as little as £250 within a week. Soon as I have anything that lasts over 3 weeks, if the doctors are a no, I get private bloods and scans.. I'm not rich either l, but pay this off monthly.
Hi Kathaleen, I was maybe 10 when my symptoms began and of course everyone told my parents and I it was not lung cancer, do to my age, no history of smoking, low radon levels in my home etc. when I was 24 and my symptoms become unbearable- that’s when I was able to go and push for a ct scan. I stayed at the hospital for 9 hours until they agreed to schedule one for me
Did you cough up mucus with blood? I did this once with bronchitis symptoms and my doctor requested a cat scan. I should have results back in 1 to 2 days.
Unfortunately I lost my mum 2 years ago due to the same 'misdiagnosis' by doctors. They treated her for asthma for 2 years and she eventually started fitting. My dad rushed her to A&E and they found that her lung cancer had spread to her spine and brain and was too far gone for them to save her. I'm so bloody mad at our health service GPS (General Practitioner - doctors) that I would quite easily of throttled the man to death. I wish her all the very best in life.
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Praying for you and everyone who battles lung cancer!! No matter the cause smoker or non-smoker I pray for all the same❤!
Thank you for watching!
Since mRNA shots cancer casualties are skyhigh.
Praying for all those suffering from serious illness... praying for healing and courage and hope 🙏
my sister is having the same situation as you now. shes so young and she has a healthy lifestyle. dont know where she got it. 😢😢 my mum and I have been crying. Please for my family and her.
I will say a prayer for you.
I am lifting you and your sister in prayer
You are such a beautiful brave soul i will pray 🙏 for you.
Sick children's hospital in Toronto canada missed my brain cancer after years of surgeries. It took o specialist not affiliated with Sick Kids to discover it. I was having blinding seizures. The dr called my dad and told him to get me in hospital immediately, and surgery would be done the following morning or I'd be dead in 2 weeks. Im 61 still here ❤
No surprise there, sick kid’s Toronto is a horrible organization.
What was the type of the cancer if its ok to ask?
Praise God for your recovery!!🎉🎉🎉
I’m a lot older than you but I have a similar story …I was just diagnosed Adenocarcinoma and waiting on PET for staging - Drs are like I “magically got this in the last year” but some of the symptoms I have had for 10 years and the most acute issues 3 or 4 years - I have had all kinds of tests by all kinds of specialists and it seems they all missed it!!
I recently got my medical records and I can see the pattern but each doctor was only concentrating on their area of specialty….
One detail read through my records and I can see that I have had 9 of 10 symptoms for a long time! If it such a slow growing tumor and I just got this then why is it the size of a Silver Dollar?
My team of Doctors even saw the tumor but said the same thing… infection scar or mucus plug?
Never smoked…no family history!
Thanks for your story!
How did you finally get diagnosed? Did you have to fight for it, or did your symptoms eventually get so bad that you went to the ER? (I have a set of symptoms for 10 years as well, and even had severe blood clotting a few years ago so now the doctors are attributing everything to an "unknown" autoimmune disease or remnants of my clotting. There's a spot in my lung as of my last CT but they think it's scar tissue from a PE, and I really want to believe that but it's just weird that certain symptoms, particularly my shoulder and upper back pain are getting progressively worse rather than better over time. It sometimes feels like it's my heart even, but all heart tests have come back normal so far. I tested neg for every autoimmune disease but my ANA titer is 1:640. Certain cancers can cause a positive ANA titer, especially if it's spread to the lymph nodes. I'm currently awaiting further instructions after an xray came back showing nothing, but I know many things aren't picked up except on a CT scan or MRI, depending on the type.
What were some of the tests that you noticed in your history that could have been early signs? Thanks in advance for any info. I'm not scared or freaking out, I just have a quiet, nagging feeling which is why I haven't given up yet. I've learned in my years that panic is usually based in fear and "untruth," but a calm, quiet voice that never leaves is usually your gut telling you something is off. It could be something far less concerning than cancer of course, because last time I heard the voice it did turn out to be blood clots in my lungs that almost killed me, but that were very easily treatable in comparison to chemotherapies...
@@EastmanEditing praying for u, keep fighting, researching, print out what u find for doctors
What an intelligent young woman. And such a great attitude. The type of cancer that she has has an excellent prognosis with a 5 year survival rate of 98% if there was no spread beyond the lung at diagnosis. Even with spread the prognosis is good so I think she'll do great.
Thank you so much for giving voices to a wide arrange of cancer patients and thank you for letting me share my story 🤍
Good for you Lauren. Don’t let anyone tell you that you CAN’T. You’ll never know till you try anyway and it’s so important to keep doing the things that bring you happiness if you possibly can. Best of luck to you for a long, healthy cancer free life!
You keep on advocating for yourself and others. Your story is so important.
Glad youre feeling better. Youre never too young to have cancer. My son was a teenager. Good for you for being your own advocate.
🙏
I LOVE that you went back to your old school to talk to the kids about your experience, because you are so right, most of us think of cigarettes when we think of lung cancer.
Yes.... Most people hear cirrhosis of the liver and think alcoholic and my Mama was diagnosed with it because of a bile duct clog. She was so embarrassed to tell anyone why she was sick and in & out of the hospital because she didn't want people thinking she was drinking all those years.
People who get lung cancer 80% of them are smokers. Smoking can cause about 15 other cancers as well. NEVER! EVER! smoke you are asking for trouble. Don’t be an IDIOT!!!!! Smoking KILLS!!!!! 😡
I had a RUL lobectomy for a Neuroendocrine tumor. My doctor told me I won the lottery of lung cancers. My tumor had probably been there 10 years. I had no symptoms. Thanks for sharing your story! Wishing you the best!
Lauren, bless you for sharing your story! It means so much that you've enlightened us with the indepth sharing of your lung cancer story.
We offer you our prayers and send blessings to you.
Hi Lauren from Canada. Hope your treatments are working for you. Your time spent sharing your situation is inspiring and helpful to so many people who feel alone and frightened while they battle their own illnesses. Keep the fight going. We are with you.
I wish you well. You are such a beautiful young woman. In this day and age we have to be our own health advocate.
Your my hero girl. I have been fighting cancer. Iam so sorry hun your so young. Keep on going. So proud of you. Thankyou for sharing your story
🙏
You could be a spokes person for the Lung Cancer Foundation. Thank God for your strong and courageous spirit. I’m sorry the doctors didn’t give you a script for a cat scan when you started having symptoms. Your strength is amazing. Thank you for sharing. I know you will become stronger everyday. I will continue to wear a mask in public areas too.
Thank you for watching!
I am so sorry you are going thru this🙏❤️🙏 My Mom has always told me YOU know your body better than anyone👍
Good for you pushing thru to find out why you kept getting sick.
Your MOM is a nurse and that’s a BLESSING❤ I am going to keep you in my prayers as I say the DIVINE MERCY CHAPLET everyday🙏 Keep the FAITH & PLEASE keep us posted. GOD BLESS YOU🙏❤️🙏
So happy and proud of you Lauren. I was going to ask you if you had been checked for Cystic Fibrosis at any time or other lung diseases. My daughter was dx age 4 via bronchoscopy Jan 1990 with a very rare lung disease, Immotile Cilia Syndrome or now called Primary Cilia Dyskensia. Constantly in hospital with pneumonia, sinusitis, ear infections several yrs. shes had 4 kids, none have it. But 2 of her kids, eldest and youngest have another rare disease KAT6B, Ohdo syndrome. The youngest was dx first because of not gaining weight in her first yr, hardly eating, lots of GERD. Milk allergies. Mom and I strongly suspected something was seriously wrong and so we were right. Eldest was then checked as she was tiny and not eating well. Autistic as well. Then with the genetic testing came the news both mom and youngest had the BRCA1 gene. My mother at age 88 died of lung cancer, never smoked a cig in her life. I suspect radon. She was a stay at home mom with 4 kids, dad away at sea. So one of the military houses may have given her radon exposure. Who knows? I pray that you continue to do well and stay healthy. hugs from Ontario Canada
Was that part of Primary Immunedeciency variety?
What is radon?
@wellwellmymichelle Google it so u get a accurate response
Such a brave strong women. So young to have all this on your mind. Your such an inspiration. I lost my sis to lung cancer, she was 67. The stigma with lung cancer needs to go away. Good for you speaking up! Did you say you live in Ak? Us Alaskans our tough. ❤❤❤ wishing you a ling wonderful life full of wonder & experiences ✨️
Thanks for sharing your story! I’m so sorry this happened to you! I’m sure you are saving lives by sharing your story!
Great and informative video. She is so well spoken, and the video flowed so easily. Thank you for this.
Neuroendocrine cancer of the lungs is not the commoner garden variety of lung cancer. It is important to raise awareness, that neuroendocrine cancer is a league of its own, and can occur in all different body regions, so Steve Jobs and Aretha Franklin had neuroendocrine cancer of the Pancreas, as have I. My doctors made sure, I know that it is not the same as pancreatic cancer.
Bless you I hope you are ok
What is different about neuroendocrine cancer? I’m genuinely curious
السرطان ليس بحاجة الى علاج 💯💯
السرطان بحاجة إلى فهم 🔥🔥
Thanks for asking.
RONNY ALLEN has a very informative web presentation for neuroendocrine tumors, he says it all so well and also is a public speaker for NET.
so here I just give you some skeleton info (non native speaker, so forgive my maybe strange at times wording choices)
For one, it is slow growing and can be presenting everywhere in the body, so neuroendocrine tumor (NET in short) of the lungs is not lung cancer, and NET in the pancreas is not Pancreatic cancer or NET in the small bowel is not bowel cancer.
It is its own thing with its own challenges.
Because it is slow growing and when lucky well differenciated, a "normal chemo" regiment can not work properly to treat it, because the medications need a fast cell growth rate to attack the cancer cells properly.
Treatment, where possible is tumor removal and a regular screening for reoccurrence. There are hormone active tumors, which cause heart damage and nasty symptoms, when one is in a flare up.
Some NET phenomena have a genetic component, where depending on the subtype, a person develops tumors in certain areas. This is Pancreas, parathyroids and Hypophysis for MEN1 (multiple endocrine neoplasias) or kidneys, lungs, … you can read up on the NETWORK NET homepage about it, if you use a translator, since it is a german page. They have a more medically accurate description than I can provide with my laymans knowledge about my own cancer variant, where my Pancreas and Parathyroids are affected.
It has been emphasized to me, that with NET, it is advisable to be treated by a NET center of eccellence instead of at a "normal"oncologists office, because treatment looks so different and needs to be taken into consideration on each step in the cancer journey.
Many oncologists still think of carcinoids concerning NET and assume, it is "not real cancer". That way, the treatment is not optimized and the patient outcome is not as good as it could be.
Not to be an alarmist, but as in this video as an example, the symptoms were not taken seriously as were mine, which I had more than ten years already, because nobody thought of looking closer what caused reoccuring pancreatitis, in a patient who does not drink any alcohol and was fairly young when first getting symptomatic.
Doctors should be made aware, that NETS are not as rare as the literature makes them believe. They are a special kind of malignancy, that is manageable, when discovered early enough and not yet has spread. Hope that helped to get you the right hints where to learn more about NET.
@@NickUncommonThat was a great explanation and your english is great too! I know I didn't ask the question, but thank you for the info!
Thanks for sharing your story!
You are so strong. Thank you for sharing your story.
Thank you so much for watching!
Thank you sharing your story Lauren
Literally had two people very close to me, under 45, end up with lung cancer that never smoked. Don't ever take your doctor's word for it that it's not lung cancer if there is very clearly a problem.
My manager also medicated for TB untill I saw her weird nails curled. She did a CT scan and diagonised with 4th stage lung cancer😢
@@clutchcontrol3394sorry for your loss. could you explain that a little bit more? She was being treated for TB?
And then after that for cancer?
You're very inspirational, glad you didn't let this hold you back from living your life!
Wow … winning the 5k! Incredible. I have an oncogene-driven non-smoking lung cancer (ALK) and am on a targeted therapy drug. My running times are better than the year before diagnosis, but no better than that. But I’m happy to be running, whatever the time.
I don’t think she won the 5K, she has her picture taken at the finish which is a benefit offered for participants, but it’s awesome she ran it nonetheless and that you are running is awesome, too!
May God continues to bless you to stay strong and persevere.. 👩🔬
Thank you for reminding me it's ok to push for help. Did anyone do a chest xray at the beginning of all your complaints!! Thank you for sharing your story. I wish you the best in life. You are amazing!
Bless your heart💗 prayers for healing 💗edit to say I lost my mama in 2006 to lung cancer. However she smoked many many years. She never believed she had it 😿
Beautiful warrior strength. Thank you for posting your story. It really helps to gather, listen & share. I'm now better and on to surveillance scans every 3mos for bladder cancer@59, diagnosed Dec2022. Walking helps both mentally & physically.
Thanks for sharing! We're thinking about you here at The Patient Story!
Praying for you and every soul. 🙏
GOD IS AWESOME AND ALWAYS ON TIME STAY STRONG YOU'VE GOT THIS.
Beautiful story. ❤
Love your determination…what a great story…
It was not rocket science to suspect lung cancer-- they make me sick- that was so cruel
Thank you for your positivity!!❤️
Your one strong soul. Just not fair as you were very young. Not something that happens to often. I survived a football size ovarian tumor. It never spread. I had no chemo. The doctor said I was a miracle. Nothing in my lymph nodes. Had ca125 every six months. That was in 2011 June. Everyone thought I was going to die, but I never felt that. Knew I would be home in two weeks. There’s so much more to this. I was sick for along time and complained to my doctor, even saw a gyn. Bye
Keep up your positive attitude and keep on praying for God’s healing . God is the best doctor and healer . I will include with my prayers as I am a cancer patient too . But in my case it’s my colon.❤❤❤
You need serious help!
I think it's also air pollution that takes a huge toll on our lungs and creates a breeding ground for lung cancer. A friend of a friend, also a non smoker, passed away at the age of 27 from it.
Chemtrails ir geoengineering srm. They made prognoses fprc20 years ago Hald a million ppl Will die from it each year
It's so complex. I am in asia right now the air pollution is INSANE I can barely breath in it. But , the locals all are healthy and strong even the old ones. I am starting to believe that cancer is mostly just genetics.
Thanks for sharing , you have gone through so much🙏🙏💪
It definitely is sad what our healthcare system has become. Doctors don't even try to search for the root cause of an issue anymore. Everything is a guessing game and all they do is prescribe expensive medications and say, "Let's see what happens."
Why does the medical community have the policy of saying to a patient that if after some reasonable time say 2 weeks the prescribed treatment is failing or if your symptoms get worse you are to come in and we will investigate further?
Not medical community, but you are working with human beings, every treatment/Investigation has it's side effects, also you are not going to do 50 investigations on every patient you see,it's wasteful & damaging, a good doctor has an approach. Unless highly suspicious, considering symptom wise,age and risk factors, you wanna start of investigating and treating the most common things that could kill your patient & move up further if no response. Imagine a 20 y/o dying of untreated pneumonia because the doctor was targeting lung cancer.
She is GORGEOUS WOW
strong girl God bless you!❤
This is what aggravates me about most of these cancer stories that I watch or listen to:
The fact that the symptoms have either been ignored by doctors or dismissed by doctors for so long. Her tumor has been growing for over 12 years. All the symptoms were there. The doctors should’ve taken action years ago. That is just unacceptable. And it’s the same story every single time. “You’re too young to get cancer“. Cancer doesn’t care how old you are. Cancer does not care if your male or female. Cancer does not care what your skin color is or what your ethnicity is. Cancer will show up anytime.
No one knows your body better than yourself. If you suspect something isn’t right, demand either bloodwork, x-rays, or a CT scan. If your doctor dismisses any of that, get yourself a new doctor until you find one that will listen.
i hate when drs put limits on people--activities and lifespan. they don't know
Absolutely horrendous treatment. I hope she sues them for malpractice 🤬
you go girl !!!
You are so lovely. I will say a prayer for you.
U r strong n thanks for sharing
Make a mess into a message. I love it and you're beautiful!
Not sure if her school was like mine, but there was always construction going on at our schools so we were put in bungalows in elementary all the way through high school. Those bungalows have a sign outside of it that says they cause cancer. Perhaps too many toxins were taken in at a young age.
My Wife has the same collapsed lung because of infections such as TB and pneumonia but thank God still not cancer according to the X-rays and CT Scans. The inhalers and nebulizer are still working. But year after year infection always comes back. My wife has had two rounds of CT scans in 3 years gap. I think your doctor should do a CT Scan much earlier.
Did she get full treatment for TB?
It’s true that non-smokers can get lung cancers, but smokers are still more susceptible to those cancers. Also, as someone else said here, neuroendocrine lung cancer is not the same as other lung cancers.
Right ❤❤
I just listened to your video, I would be so mad if i were going to see my Dr, and had infection after infection and the Dr's just kept brushing me off, I sure hope you did something about that, because that is NOT ok, sounds like you are doing well now and I hope you stay heathly and cancer free,
السرطان ليس بحاجة الى علاج 💯💯
السرطان بحاجة إلى فهم 🔥🔥
mindboggling how neglectful, superficial and indifferent and irresponsible (in my experience, a LOT of) doctors are! Not even taking a simple x-ray for many years it seems even though there were unexplained lung n breathing issues... I have asthma too and on my almost 10--year journey to a diagnosis soon realized you really have to stand on these physicians and hospital doctors' neck to get examinations and checks and not just some superficial treatment of "symptoms". It took several supposecly "specialized" doctors about 5 years more to diagnose my sleep apnea, despite me havoing ALL the symptoms for it, as I now know! And i live in Germany, a Western European country with a FORMERLY supposedly good healthcare system!
all the best !
God Bless you 🙏🙏🙏
I hate that there is a stigma about lung cancer because of smoking. My mother died of lung cancer. Now, she did smoke back in the day, but she quit 30 years prior to her diagnosis, and her doctor said it wasn't the type you get from smoking, anyway. I heard it's something that southern white women get?
Right ❤❤❤❤❤❤❤❤❤❤❤
People who smoked in my family are no longer alive. Uncle, aunt, grandpa........
But yes: pollution*chemicals* in food....water 😔
I don't think it always because of smoke. I have a sneaking feeling that lifestyle where a person is doing things that stresses the body could activate cancers.
I'm so impressed about what this girl went through. So unfair but she's such a fighter
What a huge disappointment that she had to WAIT a total of 9 months!!!
No matter what….you have to be your own advocate and PUSH through the Medical world now!!!
I also waited for 6 months
Hang in there you are young
Has your house, or your parents house been tested for radon? Ours was really high in our home and we had to get a system put in to filter it out. It raises the risk of lung cancer.
we must be responsible for our own health and not blindly trust doctors.
That is what I'm going through.
How big was the tumor? It looks very small like a nodule from the animation.
The squeaky-wheel gets the grease
lauren do you have a youtube of your journey or instagram? God bless you 🤍🩵🤍💙
Ma'am what are others symptom of lung cancer
Severe asthmatic here and hypochondriac lol
Im asking for a lung cancer test
Definitely do! A simple lung cancer screening can save lives! And it’s covered by most insurances- definitely worth it!
Best of luck
Join the club had this in my stomach
God love you sweet girl
most were made to wait during the cv outbreak. Previous time wasted.
Few times do I trust doctors. I always get second opinions. They never have the same opinions.
wow 😢🎉🎉
I cant wait for google to have a doctor so we wont have to wate to get treated. I think doctors just hope that they can push it away and then u die one of my best friends had cancer and the doctors pushed it away untill it was too late .
Wish you all the best...brave woman ❤
Bad doctors. Being sick a lot forced me to navigate the healthcare system. Never pick a HMO insurance. Find a good primary doctor who cares and don't brush off your concerns. I didn't need to force them to give me a ct scan. My doctor ordered it for me before telling me. That's the kind of doctor you want to keep.
Can I ask what size the tumor was , I just found out I have 2 6 MM on my L lung ,,, I think at 7 mm or 8mm ? they consider it a mass. I dont know that mine is cancer though ,,
Fenbendazole
Did u get the cv vaccine? Just curious since you were tested.
I wonder about this too.
Where are you going with this question? They told her it had most likely been growing for 12 years.
@@jmr9735 They said "most likely", without having any baseline info.
@@KatieZeldin I am asking because so many young women are being diagnosed with stage 4 cancer. It's increasing. The question is why. Also, many of them did not get care for months, maybe a year during all the shut down. That's another why.
@@ginnylinn8224 My husband was diagnosed with pancreatic cancer a year after he got the "safe and effective". His lifestyle was perfect: we eat healthy homemade food, he was slim, played sports 3 times a week for years, slept well and was a really chill, positive person. Genetic test showed no proclivity. Jabbed people have elevated igg4 imminoglobulin that basically tells the immune system to ignore abnormal cells.
🙏
Everything they always told us about lung cancer is BS.
Neuroendocrine tumor is really not lung cancer as well
Iv just diagnosed with net in both my lungs im still very confused as to what it is they are treating it with injections once a month...
To anyone who finds my comment please eliminate pork, sugar, redmeat, candy, sweets, processed food and fried foods from your diet and juice every hour on the hour, Blessed Be.
Hey
♥️♥️♥️♥️👍🏻
Young people DO get cancer. There are many more young people getting diagnosed with cancer these days - unfortunately.
It’s ashamed these days you have to order your own tests,hunt down doctors!!Shame😮
Did you lose your voice
mRNA Vaccinated in 2021?
Omg where does she live ? Worst physicians ever Seriously , since 6th grade?
Why would you not have a CAT scan immediately upon the initial symptoms, to rule out cancer? Why would you not be assertive on your own behalf to insist on a CAT scan?
Fking this. I don't get some people who just rely, or beg, a doctor for a scan. In the UK you can get a private MRI - without a referral, for as little as £250 within a week. Soon as I have anything that lasts over 3 weeks, if the doctors are a no, I get private bloods and scans.. I'm not rich either l, but pay this off monthly.
Hi Kathaleen,
I was maybe 10 when my symptoms began and of course everyone told my parents and I it was not lung cancer, do to my age, no history of smoking, low radon levels in my home etc.
when I was 24 and my symptoms become unbearable- that’s when I was able to go and push for a ct scan. I stayed at the hospital for 9 hours until they agreed to schedule one for me
Did you cough up mucus with blood? I did this once with bronchitis symptoms and my doctor requested a cat scan. I should have results back in 1 to 2 days.
Get the reason where it came from. Find the conflict. This means healing.
Unfortunately I lost my mum 2 years ago due to the same 'misdiagnosis' by doctors. They treated her for asthma for 2 years and she eventually started fitting. My dad rushed her to A&E and they found that her lung cancer had spread to her spine and brain and was too far gone for them to save her. I'm so bloody mad at our health service GPS (General Practitioner - doctors) that I would quite easily of throttled the man to death. I wish her all the very best in life.
there is a strange disconnect between your beauty and your accent. 😂 i bet your dad sounds like a mobster.