Thank you for your story. I too wake at a 6-7 each day and have for many years. It can last from 3 am to noon many days. Any stress or trauma can drive the pain to an 8-9 and can flare like that for weeks. It’s a full spectrum full time Intractable internal hurricane. Sadly not only are we in constant pain but we are looked at with suspicion even by our closest friends and family, yet we would never wish this on anyone. Prayers and blessings 🙏🏻
Thank you for your story. You make the Invisible Visible again. I really do understand when it comes to not see a persons Disability. Please keep up the fight.
I too have AS. Unfortunately I passed it to my son. He is currently asymptomatic and I pray he stays that way. Thank you for sharing your story. Sending very gently hugs.
Thank you so much for sharing. I have AS and I'm on the same meds... Remicade and Methotrexate. I also wake up between 4-6 pain. Your story touched my heart. I know it's not easy to put yourself out there so again, thank you so much for helping to raise awareness!!!!
Your self created job title of professional patient made me laugh. I too created my own occupation. I call myself health manager! I don't simply say I'm disabled. I have pain every single day like you from mild to severe. I too have been judged because pain is invisible even from a pharmacy tech who laughed when I sat in a chair and asked my mom to stand at the register to purchase my meds. The pain in my feet was SO severe that day from plantar fasciitis. I could not stand for even a few minutes!
Thank you for your story. I too wake at a 6-7 each day and have for many years. It can last from 3 am to noon many days. Any stress or trauma can drive the pain to an 8-9 and can flare like that for weeks. It’s a full spectrum full time Intractable internal hurricane. Sadly not only are we in constant pain but we are looked at with suspicion even by our closest friends and family, yet we would never wish this on anyone.
Prayers and blessings 🙏🏻
Thanks for sharing, my heartfelt prayers fo out to each person that had the courage to share.
Thank you for your story. You make the Invisible Visible again. I really do understand when it comes to not see a persons Disability. Please keep up the fight.
I too have AS. Unfortunately I passed it to my son. He is currently asymptomatic and I pray he stays that way. Thank you for sharing your story. Sending very gently hugs.
Thank you so much for sharing. I have AS and I'm on the same meds... Remicade and Methotrexate. I also wake up between 4-6 pain. Your story touched my heart. I know it's not easy to put yourself out there so again, thank you so much for helping to raise awareness!!!!
Great video my fellow AS warrior!
I hope you don't mind that I share this on my FB! Thank you for your story!
thanks for sharing- get motivated to begin helminthic worm therapy and watch it change your world!
Your self created job title of professional patient made me laugh. I too created my own occupation. I call myself health manager! I don't simply say I'm disabled. I have pain every single day like you from mild to severe. I too have been judged because pain is invisible even from a pharmacy tech who laughed when I sat in a chair and asked my mom to stand at the register to purchase my meds. The pain in my feet was SO severe that day from plantar fasciitis. I could not stand for even a few minutes!