This video is dedicated to my fellow Migraine warriors. I see you. I see your struggle to find a medication that will help you. I have been there. I'm still there - still fighting. This is a new edit of some older videos from May to June 2018 when the first prevention medication specifically created to treat migraine was FDA approved. It was life-changing for our community and though there are some of us who were not completely helped or helped at all, our community is better for having the CGRP-inhibitors and Gepants. Aimovig, Ajovy, Emgality, Vyepti, Ubrelvy, Nurtec & Qulipta are all now options that are now FDA approved that weren't the day I filmed this video. So many more options. So much more hope. So many more people in our community who have found help. I'm so incredibly thankful to those who donated toward Migraine research to make these medications happen. It HAS made a difference. And I will never forget those who told me they donated to Migraine research on my behalf. I have so many friends in this community who are also debilitated by migraines and we are so grateful that our lives matter to you so much you would give your hard earned money toward research that could change our lives. If you are still fighting to find a medication that will help you migraine-wise, keep holding onto hope. It is a rollercoaster for sure. One that I am currently still on. Until we find the right combination of medication and alternative treatments that help us have less migraines, we can still live well and have a good live with the suffering that migraine brings. It is a challenge and fight, but we can do it. You are not alone. I see you. I am walking this path with you and extending my hand to you so we can walk together on it. Sending love to ALL my fellow warriors. Keep going.
Praying for y'all everyday. Asking for prayers for my hubby. His biopsy results came back positive for Cancer. Prayers are greatly appreciated. Thanks so much. Prayers, peace, & much luv to y'all. 🙏✝️❤️🕊️💜🌹
Oh no. That is terrible. I'm so sorry your husband's biopsy showed he has cancer. Definitely praying for you and for him as you navigate next steps. Sending a warm hug and love your way.
What a beautiful video and bought a tear. I am 63yrs old and live in Australia and suffer from Vestibular Migraines. I am an example of not everything working for everyone and one of a few people that Vyepti didn’t work for. Had Botox injections 4 days ago. Ajovy didn’t work and Emgality is not available until April due to world shortage. They are slow here to approve medications and there is a promising pill to be released here soon. Interestingly I think my migraines got worse since my first Covid vaccination a couple of years ago. I have been quietly watching you for a while and I thank you for sharing everything. Vyepti works for nearly everyone and I hope and pray that it goes well for you. Thoughts and prayers from Australia. 🙏🙏
Thank you for saying hello and sharing your experience! Vestibular Migraines are rough. I hate Vyepti and Ajovy didn't work for you. Is this the first time you had Botox? I hope that it is helpful for you. That is rough that you don't have access to Emgality til April. Do you have access to Qulipta? I've heard some great things about it. That is very interesting that the migraines got worse since the covid vaccine, but I'm not surprised. Our bodies can be so sensitive that it can just take one thing to worsen them. For me, it was being exposed to a lot of mold in a building I worked in. Thank you for your thoughts and prayers. That means a lot to me. Saying a prayer that something makes a significant difference for you soon. Don't be a stranger! :)
Thank you for your message which really lifted me. I had my first lot of Botox injections last Thursday our time and I am hoping for the best. The neurologist at first bypassed Botox and went to Vyepti as he mentioned it is the latest and greatest migraine treatment but it didn’t work for me. I continue to ask if not having a spleen affects things. Interestingly I have been stuck on Targin which is slow release morphine since a spinal operation in 2012. I have slowly lowered the dose of Targin and believe I can get off it sometime this year as it no longer does much. Targin contains Naloxone which I believe blocks more things than it should. I had my spleen removed in 1980 due to road trauma and there are not too many Australians without a spleen maybe less than 20,000. At this stage many of the migraine medications you mention are not available under government subsidies. I believe Nurtec is next to be approved for government subsidies. I don’t believe Qulipta is covered by government subsidies. What a government subsidy means is that the prescription price is low and not a full priced item which probably is the same over there. Here in Australia it is called the PBS and without it not many people could afford medication. Keep on keeping on and thank you for sharing everything and encouraging not just me but all of us. You are being prayed for all the way from Australia.🙏🙏🖐
Oh I really hope the Botox starts helping! Did you try Aimovig? Is it available to you? You are not alone in the Vyepti not working, unfortunately. I have good friends with chronic migraine who did not find it helpful at all. Its so disappointing/devastating. That is a good question about your spleen. Sometimes being on long acting medications such as morphine can perpetuate headache/migraine. I was on one several years ago when nothing else helped (before CGRPs) as sometimes the benefits outweigh the draw-backs. If you are ever able to stop the Targin, it might give you a chance to see if it is affecting the migraine/headaches. I'm sorry it isn't helping you anymore. That is so frustrating migriane meds aren't available under government subsidies. It is so maddening when access to medication is limited by how affordable they are made by insurance/the government. Continuing to pray for you as well. We will get through this together! One foot in front of the other!
So thrilled for this awesome news. I got approved for Qulipta about 2.5 years ago and it was seriously like a miracle for about a year to 1.5… almost immediately. An intractable migraine I had was just gone and it never came back. I wasn’t sensitive to the barometric pressure like I’d always been. I had to up the dosage at 1 year and start taking in the am and pm (Qulipta is in pill format) but then at 1.5 years or so, the efficacy just really waned but I honestly think that’s because my undiagnosed Meniere’s was getting really severe. It wasn’t a year after that, I lost my hearing in my right ear and had severe vertigo attacks. So, I think the CGRPs are a miracle for us. I cried like you did when I read those first articles when they came out. To have the medical community FINALLY develop a drug tailored for our disease just means so much. And it works!! Praying you get the amazing relief I did and that it gives you long lasting improved quality of life. Sending love and support. ❤
I'm crying reading this. I don't remember a moment where my skull wasn't feeling like it was collapsing and having acid poured inside. I can't walk anymore it's horrible.
@kellismith7126 Thank you for sharing that Kelli!! I love that Qulipta was a miracle for you! I can imagine how thrilling that must've been to experience that change. I have heard a lot of people say that they experience the efficacy change over time with these meds. I have bounced back and forth between Aimovig and Ajovy ever since 2018. They will help some for a while and then just stop and I switch to the other one. I"m also really hopeful for Vyepti. I've heard people have such great experiences with it. Thank you for sharing and your prayers. Sending love back your way.
Im so terrified of side effects but this is unlivable for me. Barely hanging on. I hope its helped you. I just discovered your channel. Thank you so much for sharing your journey. Its taking a lot for me to stay in the world right now.
You've got this. I can understand being fearful of side effects. I usually get every side effect under the sun, but I get zero side effects from these meds. If you do get side effects, perhaps they will improve over time or won't be as bad as the hell you are living through now. Keep holding on. I can understand why it is hard to stay in the world. But there is hope and you are not alone. 💜
@@IncredibleAnyway I hope it helps. I just got denied Ajovy today and they want me to try Amovig. How long did it take to help you may I ask? It's so bad I can hardly make it to the bathroom with my walker. Invested in adult diapers 😞 the pain is too much.
I'm sorry you got denied Ajovy. If you are in the US, insurance companies are so odd with what they approve and what they won't. I had a company that wouldn't prescribe Aimovig but would prescribe Ajovy! I think how long it takes to help is variable. But usually people start seeing help within a month of taking Ajovy/Aimovig/Emgality. Have you considered getting a portable commode and putting it next to your bed? I forget, do you use a wheelchair/walker? Even though you are struggling, getting up and moving is so important so you don't lose muscle mass which would put you in a worse place. I had to do this post brain surgery and know how hard it is. Rooting for you! Hoping that aimovig approval comes through soon!
@@IncredibleAnyway Yes I use a wheelchair and walker to the bathroom which is thankfully a few steps away. My fiance works a lot it would be hard for him to empty it and I feel shame about it. But I have diapers if I need. Not even 40 yet and I live like this. I cry myself to sleep. Sorry my replies are so depressing you have already been through so much. I am trying to see things will get better. It makes me so sad. And finding out that aside migraines so little funds go torwards female care. Especially anything reproductive disease related. More money goes into avoiding smallpox (which is gone) than women medical care in the USA it's insane 🤦
Personally i dont suffer from migrains. But i can understand how debillitating that can be. So i sent hope and strength to all off you who have to endure it. 🏋️🍀🕯️❤
![CAMPปลิ้น | EP.83[2/2] ประสบการณ์ขนหัวลุกจากตำนานวงการผี!](http://i.ytimg.com/vi/T_kFecQw7Ds/mqdefault.jpg)
This video is dedicated to my fellow Migraine warriors. I see you. I see your struggle to find a medication that will help you. I have been there. I'm still there - still fighting. This is a new edit of some older videos from May to June 2018 when the first prevention medication specifically created to treat migraine was FDA approved. It was life-changing for our community and though there are some of us who were not completely helped or helped at all, our community is better for having the CGRP-inhibitors and Gepants.
Aimovig, Ajovy, Emgality, Vyepti, Ubrelvy, Nurtec & Qulipta are all now options that are now FDA approved that weren't the day I filmed this video. So many more options. So much more hope. So many more people in our community who have found help. I'm so incredibly thankful to those who donated toward Migraine research to make these medications happen. It HAS made a difference. And I will never forget those who told me they donated to Migraine research on my behalf. I have so many friends in this community who are also debilitated by migraines and we are so grateful that our lives matter to you so much you would give your hard earned money toward research that could change our lives.
If you are still fighting to find a medication that will help you migraine-wise, keep holding onto hope. It is a rollercoaster for sure. One that I am currently still on. Until we find the right combination of medication and alternative treatments that help us have less migraines, we can still live well and have a good live with the suffering that migraine brings. It is a challenge and fight, but we can do it.
You are not alone. I see you. I am walking this path with you and extending my hand to you so we can walk together on it. Sending love to ALL my fellow warriors. Keep going.
Praying for y'all everyday. Asking for prayers for my hubby. His biopsy results came back positive for Cancer. Prayers are greatly appreciated. Thanks so much. Prayers, peace, & much luv to y'all. 🙏✝️❤️🕊️💜🌹
Praying ❤
I hope he can get better 🙌 I'm so sorry
Oh no. That is terrible. I'm so sorry your husband's biopsy showed he has cancer. Definitely praying for you and for him as you navigate next steps. Sending a warm hug and love your way.
Thanks y'all for the prayers and encouragement. Prayers, and much love to y'all. Thanks so much
Praying for you , im so sorry you are suffering..
God bless you
Sending you strength, love and light.
💙💙💙💙💙💙💙💙💙💙💙💙💙💙
What a beautiful video and bought a tear. I am 63yrs old and live in Australia and suffer from Vestibular Migraines. I am an example of not everything working for everyone and one of a few people that Vyepti didn’t work for. Had Botox injections 4 days ago. Ajovy didn’t work and Emgality is not available until April due to world shortage. They are slow here to approve medications and there is a promising pill to be released here soon. Interestingly I think my migraines got worse since my first Covid vaccination a couple of years ago.
I have been quietly watching you for a while and I thank you for sharing everything. Vyepti works for nearly everyone and I hope and pray that it goes well for you.
Thoughts and prayers from Australia. 🙏🙏
Thank you for saying hello and sharing your experience! Vestibular Migraines are rough. I hate Vyepti and Ajovy didn't work for you. Is this the first time you had Botox? I hope that it is helpful for you. That is rough that you don't have access to Emgality til April. Do you have access to Qulipta? I've heard some great things about it.
That is very interesting that the migraines got worse since the covid vaccine, but I'm not surprised. Our bodies can be so sensitive that it can just take one thing to worsen them. For me, it was being exposed to a lot of mold in a building I worked in.
Thank you for your thoughts and prayers. That means a lot to me. Saying a prayer that something makes a significant difference for you soon. Don't be a stranger! :)
Thank you for your message which really lifted me. I had my first lot of Botox injections last Thursday our time and I am hoping for the best. The neurologist at first bypassed Botox and went to Vyepti as he mentioned it is the latest and greatest migraine treatment but it didn’t work for me. I continue to ask if not having a spleen affects things. Interestingly I have been stuck on Targin which is slow release morphine since a spinal operation in 2012. I have slowly lowered the dose of Targin and believe I can get off it sometime this year as it no longer does much. Targin contains Naloxone which I believe blocks more things than it should.
I had my spleen removed in 1980 due to road trauma and there are not too many Australians without a spleen maybe less than 20,000.
At this stage many of the migraine medications you mention are not available under government subsidies. I believe Nurtec is next to be approved for government subsidies. I don’t believe Qulipta is covered by government subsidies.
What a government subsidy means is that the prescription price is low and not a full priced item which probably is the same over there. Here in Australia it is called the PBS and without it not many people could afford medication.
Keep on keeping on and thank you for sharing everything and encouraging not just me but all of us. You are being prayed for all the way from Australia.🙏🙏🖐
Oh I really hope the Botox starts helping! Did you try Aimovig? Is it available to you? You are not alone in the Vyepti not working, unfortunately. I have good friends with chronic migraine who did not find it helpful at all. Its so disappointing/devastating. That is a good question about your spleen. Sometimes being on long acting medications such as morphine can perpetuate headache/migraine. I was on one several years ago when nothing else helped (before CGRPs) as sometimes the benefits outweigh the draw-backs. If you are ever able to stop the Targin, it might give you a chance to see if it is affecting the migraine/headaches. I'm sorry it isn't helping you anymore.
That is so frustrating migriane meds aren't available under government subsidies. It is so maddening when access to medication is limited by how affordable they are made by insurance/the government.
Continuing to pray for you as well. We will get through this together! One foot in front of the other!
So thrilled for this awesome news. I got approved for Qulipta about 2.5 years ago and it was seriously like a miracle for about a year to 1.5… almost immediately. An intractable migraine I had was just gone and it never came back. I wasn’t sensitive to the barometric pressure like I’d always been. I had to up the dosage at 1 year and start taking in the am and pm (Qulipta is in pill format) but then at 1.5 years or so, the efficacy just really waned but I honestly think that’s because my undiagnosed Meniere’s was getting really severe. It wasn’t a year after that, I lost my hearing in my right ear and had severe vertigo attacks. So, I think the CGRPs are a miracle for us. I cried like you did when I read those first articles when they came out. To have the medical community FINALLY develop a drug tailored for our disease just means so much. And it works!! Praying you get the amazing relief I did and that it gives you long lasting improved quality of life. Sending love and support. ❤
I'm crying reading this. I don't remember a moment where my skull wasn't feeling like it was collapsing and having acid poured inside. I can't walk anymore it's horrible.
@kellismith7126 Thank you for sharing that Kelli!! I love that Qulipta was a miracle for you! I can imagine how thrilling that must've been to experience that change. I have heard a lot of people say that they experience the efficacy change over time with these meds. I have bounced back and forth between Aimovig and Ajovy ever since 2018. They will help some for a while and then just stop and I switch to the other one. I"m also really hopeful for Vyepti. I've heard people have such great experiences with it. Thank you for sharing and your prayers. Sending love back your way.
@AshRaeplays (((hugs)))
Im so terrified of side effects but this is unlivable for me. Barely hanging on. I hope its helped you. I just discovered your channel. Thank you so much for sharing your journey. Its taking a lot for me to stay in the world right now.
You've got this. I can understand being fearful of side effects. I usually get every side effect under the sun, but I get zero side effects from these meds. If you do get side effects, perhaps they will improve over time or won't be as bad as the hell you are living through now. Keep holding on. I can understand why it is hard to stay in the world. But there is hope and you are not alone. 💜
@@IncredibleAnyway I hope it helps. I just got denied Ajovy today and they want me to try Amovig. How long did it take to help you may I ask? It's so bad I can hardly make it to the bathroom with my walker. Invested in adult diapers 😞 the pain is too much.
I'm sorry you got denied Ajovy. If you are in the US, insurance companies are so odd with what they approve and what they won't. I had a company that wouldn't prescribe Aimovig but would prescribe Ajovy! I think how long it takes to help is variable. But usually people start seeing help within a month of taking Ajovy/Aimovig/Emgality. Have you considered getting a portable commode and putting it next to your bed? I forget, do you use a wheelchair/walker? Even though you are struggling, getting up and moving is so important so you don't lose muscle mass which would put you in a worse place. I had to do this post brain surgery and know how hard it is. Rooting for you! Hoping that aimovig approval comes through soon!
@@IncredibleAnyway Yes I use a wheelchair and walker to the bathroom which is thankfully a few steps away. My fiance works a lot it would be hard for him to empty it and I feel shame about it. But I have diapers if I need. Not even 40 yet and I live like this. I cry myself to sleep. Sorry my replies are so depressing you have already been through so much. I am trying to see things will get better. It makes me so sad. And finding out that aside migraines so little funds go torwards female care. Especially anything reproductive disease related. More money goes into avoiding smallpox (which is gone) than women medical care in the USA it's insane 🤦
Personally i dont suffer from migrains. But i can understand how debillitating that can be. So i sent hope and strength to all off you who have to endure it. 🏋️🍀🕯️❤
Thank you Marloes! Your support means so much.