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Incredible Anyway
United States
เข้าร่วมเมื่อ 3 พ.ย. 2013
I'm determined to live an incredible life no matter what happens to me. In my videos, I share my life with chronic health issues, disability, and a service dog. I’m transparent about the wonderful and the challenges.
I had brain surgery recently. And I warrior through Meniere's disease, Psoriatic Arthritis, Chronic Migraine, PTSD, Chronic Fatigue, Fibromyalgia ,& Psoriasis.
Whatever you are going through, you are not alone.
Live Incredible Anyway
Kelly
Merch : incredibleanyway.creator-spring.com
I had brain surgery recently. And I warrior through Meniere's disease, Psoriatic Arthritis, Chronic Migraine, PTSD, Chronic Fatigue, Fibromyalgia ,& Psoriasis.
Whatever you are going through, you are not alone.
Live Incredible Anyway
Kelly
Merch : incredibleanyway.creator-spring.com
Can you relate?
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The date this video was recorded is listed below. I'm happy to answer any questions you have or talk more about my experience. Recovering from brain surgery was unlike anything I've every experienced. But I've come so far and I am SO glad I did it. Thanks for going on this journey with me!
My new Merch Store: incredibleanyway.creator-spring.com/
How to Have an Incredible Life with Very Real Challenges | Warriortude - th-cam.com/video/AzCrRRrKXWw/w-d-xo.html
🔔SUBSCRIBE: th-cam.com/users/IncredibleAnyway
📷INSTAGRAM: incredibleanyway
@IncredibleAnyway
🎥TIKTOK: www.tiktok.com/@incredibleanyway
@IncredibleAnyway
🎵MUSIC: Artlist.io
🎥FILMED: March 06, 2024
[Visual Description:
Text Found in all of Kelly's videos:
Text Beginning of the Video: Tiktok + Instagram: @IncredibleAnway
Text At The End of the Video: During the closing music, the end card has a photo of Kelly standing with a blue cane in her right hand and holding onto a handle on Golden Retriever Benevolence's green service dog cape. Kelly is wearing a blue T-shirt with Anna from Disney's "Frozen" on it that says"Live Your Truth." Service dog Benevolence is standing on Kelly's left side. Pet dog Dash is laying on the ground next to Kelly with his head on the ground next to Kelly's cane. The screen reads" Subscribe to Incredible Anyway with an arrow pointing to where the Subscribe Button is. Above Kelly's head is her Tik Tok and Instagram Handle.]
My new Merch Store: incredibleanyway.creator-spring.com/
How to Have an Incredible Life with Very Real Challenges | Warriortude - th-cam.com/video/AzCrRRrKXWw/w-d-xo.html
🔔SUBSCRIBE: th-cam.com/users/IncredibleAnyway
📷INSTAGRAM: incredibleanyway
@IncredibleAnyway
🎥TIKTOK: www.tiktok.com/@incredibleanyway
@IncredibleAnyway
🎵MUSIC: Artlist.io
🎥FILMED: March 06, 2024
[Visual Description:
Text Found in all of Kelly's videos:
Text Beginning of the Video: Tiktok + Instagram: @IncredibleAnway
Text At The End of the Video: During the closing music, the end card has a photo of Kelly standing with a blue cane in her right hand and holding onto a handle on Golden Retriever Benevolence's green service dog cape. Kelly is wearing a blue T-shirt with Anna from Disney's "Frozen" on it that says"Live Your Truth." Service dog Benevolence is standing on Kelly's left side. Pet dog Dash is laying on the ground next to Kelly with his head on the ground next to Kelly's cane. The screen reads" Subscribe to Incredible Anyway with an arrow pointing to where the Subscribe Button is. Above Kelly's head is her Tik Tok and Instagram Handle.]
มุมมอง: 118
วีดีโอ
I'm willing to try anything once... 😬😬😬
มุมมอง 17416 ชั่วโมงที่ผ่านมา
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Next STEPS in Vestibular Therapy
มุมมอง 113วันที่ผ่านมา
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Will Botox help my swallowing problem? (Hypertensive Lower Esophageal Sphincter)
มุมมอง 13714 วันที่ผ่านมา
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Brain Surgery Recovery Update?
มุมมอง 20314 วันที่ผ่านมา
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Finally getting Vyepti 300mg (migraine preventative)?!
มุมมอง 19721 วันที่ผ่านมา
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
My neurologist office was nasty to my hospital
มุมมอง 268หลายเดือนก่อน
Skip to 3:08 to avoid raw and emotional footage. Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would hel...
Well that was a surprise! | Day 257 Post op Vestibular Nerve Section
มุมมอง 294หลายเดือนก่อน
Day 257 Post op Vestibular Nerve Section Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others...
I *finally* got a haircut and color! | Day 207 Post op Vestibular Nerve Section
มุมมอง 215หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
So many firsts since brain surgery!!! | Days 187-203 Post op Vestibular Nerve Section
มุมมอง 266หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
I wish I wasn't me (Eric Nam) | a coping tool I use to process my emotions
มุมมอง 191หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Another step in my brain's healing | Day 181 Post op Vestibular Nerve Section
มุมมอง 2292 หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
When I fall down 11, I get up 12 | Day 176 Post op Vestibular Nerve Section
มุมมอง 1672 หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
Why this to me? Why? | Day 175 Pt 4 Post op Vestibular Nerve Section
มุมมอง 2722 หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
It's stupid I'm doing this? | Day 175 Pt 3 Post op Vestibular Nerve Section
มุมมอง 2252 หลายเดือนก่อน
Hello! I'm Kelly and I've had Meniere's disease since 2010. On May 25, 2023, I had a brain surgery for Meniere's disease called a Vestibular Nerve Section and Craniotomy after I exhausted all treatments for Meniere's disease. I kept a private video journal while I recovered from surgery and recently decided to make it public in hopes it would help others go through this surgery recovery. The da...
I can't separate the grief from the joy | Day 175 Pt 2 Post op Vestibular Nerve Section
มุมมอง 2122 หลายเดือนก่อน
I can't separate the grief from the joy | Day 175 Pt 2 Post op Vestibular Nerve Section
I've been in bed so long that... | Day 175 Pt 1 Post op Vestibular Nerve Section
มุมมอง 2662 หลายเดือนก่อน
I've been in bed so long that... | Day 175 Pt 1 Post op Vestibular Nerve Section
You really never know what's going on in someone's life | Day 174 Post op Vestibular Nerve Section
มุมมอง 2713 หลายเดือนก่อน
You really never know what's going on in someone's life | Day 174 Post op Vestibular Nerve Section
Should I push it? | Day 173 Post op Vestibular Nerve Section
มุมมอง 1713 หลายเดือนก่อน
Should I push it? | Day 173 Post op Vestibular Nerve Section
Am I being stubborn with chronic illness? | Day 172 Post op Vestibular Nerve Section
มุมมอง 2243 หลายเดือนก่อน
Am I being stubborn with chronic illness? | Day 172 Post op Vestibular Nerve Section
Service Dog Bene gets all the birthday gifts! | Day 166 Post Op Vestibular Nerve Section
มุมมอง 1343 หลายเดือนก่อน
Service Dog Bene gets all the birthday gifts! | Day 166 Post Op Vestibular Nerve Section
I'm tired of disappointing people | Birthday Vlog | Day 165 Post op Vestibular Nerve Section
มุมมอง 3053 หลายเดือนก่อน
I'm tired of disappointing people | Birthday Vlog | Day 165 Post op Vestibular Nerve Section
Don't give up? | Days 163-172 Post op Vestibular Nerve Section
มุมมอง 2643 หลายเดือนก่อน
Don't give up? | Days 163-172 Post op Vestibular Nerve Section
I saw stars & the drama got ridiculous | Days 153-160 Post op Vestibular Nerve Section
มุมมอง 3274 หลายเดือนก่อน
I saw stars & the drama got ridiculous | Days 153-160 Post op Vestibular Nerve Section
This video of my service dog makes me emotional | Day 139 Post-op Vestibular Nerve Section
มุมมอง 4034 หลายเดือนก่อน
This video of my service dog makes me emotional | Day 139 Post-op Vestibular Nerve Section
Shocking behavior by my neurologist's office | Days 132-152 Post op Vestibular Nerve Section
มุมมอง 4354 หลายเดือนก่อน
Shocking behavior by my neurologist's office | Days 132-152 Post op Vestibular Nerve Section
Its not the chicken, It's PTSD | Days 130-131 Post-op Vestibular Nerve Section & Craniotomy
มุมมอง 1745 หลายเดือนก่อน
Its not the chicken, It's PTSD | Days 130-131 Post-op Vestibular Nerve Section & Craniotomy
Chronic Daily Migraine affects brain surgery recovery | Days 104-128 Postop Vestibular Nerve Section
มุมมอง 2015 หลายเดือนก่อน
Chronic Daily Migraine affects brain surgery recovery | Days 104-128 Postop Vestibular Nerve Section
Proof I'm Improving | Days 80-102 Post-op Vestibular Nerve Section & Craniotomy
มุมมอง 2225 หลายเดือนก่อน
Proof I'm Improving | Days 80-102 Post-op Vestibular Nerve Section & Craniotomy
I really wish that you could resonate with the information I’ve given you because you’d be healed properly now instead of suffering for decades.
I'm so sorry you're not feeling well Kelly. It's one day at a time with these disorders. Thank you for your channel!
I so relate. It feels like when you get 3 seconds to celebrate a victory, it’s like ok on to the next line item on the list
Yes Kelly I can relate. But you're doing amazing and you have an amazing channel. 💗
I can relate definitely. I began watching your story when I was diagnosed with vestibular migraines and it’s been a little rough. I had a spinal injury in 2010 and had to stop working. I have been through the school of hard knocks. I wanted to mention something and it has taken a little courage. I have commented before and live in Australia. I turn 64yrs old soon and 4 weeks ago I was diagnosed with Level 2 Autism. I always thought in Australia that only children were diagnosed with autism. I guess what I want to say is that somehow some of us have been given some type of gift to help others and the best way to do that is to let others see our life experiences. Listening to what you said about exercising is how I feel about showering and I battle to have a shower due to chronic pain but nothing beats the feeling of warm water on my back. I am discovering so many things and understand for me it is like I have a child inside that at times wants to help me to be childlike and just enjoy my gift and share it with others. I watch all your videos and it’s great to know that this is a safe place to share and encourage so many others. Cheers from Melbourne Australia.🇦🇺🙏
Hi Kelly, I've been given 3 x 140mg , which is obviously 3 months worth , after doing my first one it relieved the pain I was having, still getting them after a couple of days, not as bad as they use to is that normal
😢Es algo tan traumático que tiene uno que sufrir solo😢
Sí, fue traumático. Muchas gracias por su comprensión.
I pray you get better soon stay strong
I got a headache on June 5th 2021 after a covid infection which has never gone away. I don’t have the money to see a neurologist, so I just have to live with it. It’s been a hard three years…
Myheart goes out to you for having a headache for so long. That is rough you aren't able to see a neurologist. Sometimes primary care doctors can help with headaches if you aren't able to see a neuro.
Incredible dog a wonderful service dog love for all❤
thank you!!! <3
Thank you for sharing your video. I was just like you stressing about administering the medicine. I decided to watch your video and press down when you did so I wouldn’t wimp out. 😅
I LOVE that you pressed down and did the injection with me! Well done in doing the injection. It can take courage doing it. If you need an injection buddy next month, I've got you! :)
Kelly any shots or medication with side effects is so very scary . I pray your shots and medications work for you without the bad side effects. You are such an inspiration. Continued prayers for you.❤🤗 🙏
Thank you so much. It was a very scary journey. I appreciate you more than you know! hugs
❤
Three years ago I was diagnosed with endolymphatic hydrops, which is Meniere's without the vertigo. I had an MRI, radiologist saw nothing. Starting March 1, 2023 started having bad vertigo attacks and bad hearing loss. Diagnosed with Meniere's. Had another MRI, saw nothing. Then 7/2023 had CTScan, showed small meningioma overlaying the endolymphatic sac. Neuro-otologist said my diagnosis is now Meniere's Syndrome, as most likely my symptoms caused by the meningioma. He looked back at the 2 previous MRIs and could see the meningiomas. This is a life of hell 3+ years of hell so far. I plan to undergo brain surgery to have the meningioma removed, hoping my quality of life will improve. I have had terrible chronic whooshing tinnitus and some vertigo for months now.
Oh my gosh what a nightmare they didn't see the meningioma sooner. Thank you for sharing your story. I'm so glad you will be able to get the brain surgery to get removed. An improved quality of life is such a wonderful thing to have in front of you with the surgery. Please keep me updated - I had brain surgery last year for Meniere's. Rooting for you.
How are you feeling? I have been watching your journey and praying for you!
Thank you so much for being here! I so appreciate it and your prayers so much. I'm taking it one day at a time. I hope you are doing as well as possible. :)
Do the shots make your arm sore as the flu shot does ?? 4:24 ❤
When the dose of allergens is low and my body is cool with it, it really doesn't hurt much.When the dose is higher htan my body wants to tolerate, it hurts as bad and worse than a flu shot.
@@IncredibleAnyway oh wow . That’s pretty interesting
How does the PAT work now ?? Do you have to come back to CT ?? Or can you do it via zoom ??
I am able to do it via zoom. My dad holds the camera and my mom does all the test items that requires a helper. They started offering the zoom option during covid/after covid. I'm really thankful I dont' have to make teh trip, but sad I don't get to see anyone in person or see beautiful CT! And I defnitiely would've wanted to stop by and see you!
@@IncredibleAnyway hey that’s awesome!! Thank you lord for technology
Bene walking the treadmill is so cool 💯. Allergies are very annoying, I hope those side ffects don't last. Thank you for sharing, have a great weekend Kelly!
Thank you. Hope your week is going well!
I realy hope the immunisations work. 🤞🤞🤞 . Side effects of medical treatments are scary for shure. ❤❤❤ Big hugs Marloes
Thank you! Me too! Hugs!
Does your hearing and tinnitus continue to decline following gentamicin?
With Meniere's, yes, hearing continues to decline no matter what the treatment. I don't know that tinnitus would get worse. Hearing can be affected by Gentamicin but only those hwo are genetically predisposed to have hearing loss from Gentamicin (4% of the population).
Starting Ajovy in a few days. Hope it helps, I get Migraines everyday of my life at the moment and Zomig 5mg is the only thing helping me right now.
Oh I hope the Ajovy makes a difference for you! I have so much hope for you. Let me know how it goes!
Hey, I just got this prescribed and wanted to see how did you do with this? Are you still taking it? Any recommendations? I fell like i won't be able to do it myself 😢
Every person will respond differently to these medications. In the studies, about 50% of people found 50% reduction of their migraines from CGRP inhibitors. About 30% found 25% reduction in their migraines. And there are peopel who found 100% reduction. Out of all the classes of medications, these meds including Ajovy have been the only ones to affect my migraine disease. I am taking another medication in this class of medications called Vyepti. FOr me, Ajovy will help some for a good while and then stop working bc antibodies build up in my system adn I have to switch to something else adn tehn I can switch back. I believe in you. I know that doing an injection can seem daunting, but you can do it. Just take one step at a time and make sure to breathe through it. I will sometimes play music to help me get through an injection or give myself a reward after doing it. I'm rooting for you! Let me know how it goes!
Hi Kelley, you're doing great! I too had VNS surgery in March 2015. I was in the hospital for two days. It was a huge challenge walking and my doctor would not let me use a walker or a wheelchair. I had to do it myself. I lost my hearing in the right ear about 95%. Part of my therapy was to go to Walmart and walk around the store as long as I could. About five months after surgery I complained recovery was too slow. The doctor prescribed lorazepam only when needed. This drug was amazing I felt like myself again. However, I'm still taking it today and trying to wean off of it. After four months you're pretty much addicted to it And very difficult to get off of the medicine. Thank you for sharing your story. If I can help in anyway please reach out to me. I wish I had someone to talk to after my surgery. Still to this day you are the only one I know of that has had this surgery.
@@anthonypalmisano1533 Lorazepam is know to be addictive indeed. But when you need it you need it. ❤
Hi!! Thank you so much for reaching out! You made my day. That is shocking your doctor wouldn't let you use an assistive device until you were able to safely walk on your own. Did you lose the hearing because of hte surgery? Recovery is sooo slow in this surgery. I wish I had been prepared for that, but now I'm trying to accept it and embrace it. I understadn abotu lorazepam. I was taking it daily for years and did through most of my surgery recovery up until a few months ago. It took a long time for me to wean off of it because of hte physical dependence part. Slow changes so your body adjusts. You'll get there! I'm curious how you are doing now. Do you have balance or vestibular challenges still? Thank you again for sharing!
I just want to clarify that there is a difference between addiction and physical dependence to medications. Addiction is a psychological dependence on medication. Physical dependence is when the body is so used to the medication that it stops producing certain chemicals and relies on the chemicals from the medication. So the body is then reliant on the medication for those chemicals. It is why it can take a long time to taper off of a medication physically. The body has to start making the chemicals again on its own. That is my understanding anyway.
Hi Kelley! Yes it was rough getting around the first couple of weeks after surgery without any assistance with walking. My last day in the hospital the physical therapist brought me a walker but the doctor indicated I should not use it. The quicker you get moving the quicker you will heal. Of course I use the walls in the house to get around. As for did I lose my hearing in my right ear the answer is? YES. However knew this before surgery. I knew that the vestibular nerve and hearing nerve are not completely separate. Before my surgery I told my doctor make sure you cut it all! I don't want to experience vertigo again. And here we are nine years later and haven't had another attack of vertigo since the surgery. I've always tried to do some form of exercise my entire life. In 2019 I found yoga which is really been great. It helped me with Balance. However I'm not like I was before the surgery. I still get a little off-balance if I move too quick. Loud noises, crowded rooms still make me Uneasy. I'm currently taking one and a half milligrams of lorazepam a day. 1 mg at night and a half a milligram in the morning. I was on 2 mg a day just a few weeks ago. I would love to hear more about how you tapered off of lorazepam. I'm also worried if I do eventually come completely off of lorazepam will my balance become worse or will I have to start back at square one. The only reason I'm taking lorazepam is because I complained I wasn't getting any better. My balance was really off. That's when my doctor prescribed 20 lorazepam pills at 1 mg each and only as needed. He wouldn't prescribe anymore after the 20 he originally gave me. So, I found a neurologist that understood how I felt and wrote me a lorazepam script. I am thankful for the lorazepam because the last nine years are really been good. However, I really want to get off this stuff and see who I really am. I've often wondered if lorazepam would have helped me before surgery. In your comments you indicated you were on lorazepam before surgery. But obviously I understand now it didn't help that much. Thanks again for sharing Kelley. I've rambled on too much now. Thanks AJ
don't be so dramatic just jam it into your leg i take this each month no reaction
There was nothing dramatic in this video. That is great it is easy for you to inject, but it isn’t for everyone and that is okay. Needles make some people anxious or wary as do new treatmetns. I wish you peace and hope the Aimovig is helping you.
Exposure is a good way to rewire the brain but it also takes its toll. Keep it up Kelly, I know you'll make it!
yes! It is exhausting! Thank you!
Good evening. I had my first gent injection 2 weeks ago and I’m having a heavy head and oscillopsia, where my eyes bounce with anything that jostles my head. If I slight shaken my head in a “no” direction the whole sight picture move and I can keep focused on an object. Is that something you experienced? Is this a normal reaction? I went for my 2nd injection today and he would not give it due to this issue. Please let me know if this is a normal reaction. I really appreciate it
My recovery from gentamicin was very challenging and the veritgo and imbalance were so much worse at first. I’ve never been told that I had oscillopsia, but I will say that the world was always in movement. I don’t know if it is a normal reaction or not - that would be a good question for your doctor. But I highly recommend askign about vestibular therapy that can be done by a physical therapist. It is SO helpful in recovring from something like this. I did a short video on some vestibular therapy treatments I did after Vestibular Nerve Section. While the exercises can be hard, they help in the long run. I can see why he would wait to give the 2nd getnamicin. Your body probably just needs time to recover. Here is a video I made on my recovery from gentamicin: th-cam.com/video/QC2tWdA3akQ/w-d-xo.htmlsi=3mmtzqJxaOX91v_f Here is a video I made on the vestibular therapy: th-cam.com/video/QC2tWdA3akQ/w-d-xo.htmlsi=3mmtzqJxaOX91v_f I’m rooting for you. Recovery is rough adn it takes time, but I beleive it will improve for you. It took me at least 6 weeks to be functional again after the first few gentamicin injections I had. I’d also not hesitate to ask your doctor all these questions especially if things dont improve
@@IncredibleAnyway thank you so very much for your response. If I shake my head in the “yes” or “no” movement, or driving in the car, going over bumps, everything is jumpy and out of whack. Even if I do the therapy where you focus on a spot with your eyes and move your head back and forth, the object I’m focused on shifts around. It’s very strange. Could be perfectly normal, but I don’t know anyone to ask these type questions. Thank you for all you do and for your encouragement. Means so much to me and I’m sure many others who suffer from this terrible disease.
@@IncredibleAnyway I feel like I have been making slow improvements, but today I have felt like my bouncy vision when moving or walking, is back to square one. Did you have setback days or days you just didn’t feel like you were still moving forward? I’m only on week 3 after my gent injection, so maybe I’m rushing things. I’m able to walk, my vision just seems very off when walking or in a bouncy vehicle…shaking my head yes or no, I cannot focus on anything because the whole picture through my eyes moves. Is this normal from your experience? Thanks for everything.
I really appreciate this video because I just got prescribed this medication by my Neuro and the only other auto injector I’ve ever used is Imitrex which hurts like hell. You hyped me up to inject and it truly was a painless experience. 😊❤
I’m so glad that the injection went so well! That is fantastic! Well done! I’m thrilled the video helped you through it! You’ve got this. :)
My mobility support SD is a nice big Labradoodle. He is heavy enough I can pull up on him, anchoring me, no matter which way I feel like I am falling/being thrown. I really love him for all he does for me even when I am not having an attack and can go about without help... mostly.
I love that you have such a great SD! That is wonderful!
Your mom is not only your camera woman but your cheerleader so sweet 🥹
She really is. You’ll see her do this again in an upcoming video. It was really special to see it when I was editing it. I’m SO thankful for her.
❤ great job for trying sweety!
thank you!! woot! I did it!
I love seeing how Bene helps you! I'm waiting for my dog from ECAD now and couldn't be more excited. It's comforting seeing how well the two of you work together/have bonded since it's such a huge leap of faith going into team training and just the process in general. If you're up for it, at some point would you be willing to make a video about your "gear setup"? I'm also going to be getting the same harness and love your leash wrap on it etc.
Oh my gosh, Good luck! IT is so hard to wait for your dog, but so worth the wait! Are you scheduled for team training yet or still fundraising? I’m escited for you-it is a huge leap of faith, but you will get to the other side. I will make a gear video when I can. My harness is from Bold Lead Designs. I do NOT recommend to get a tall handle like ECAD recommends especially if you are using it for balance. The closer your hand is to the dog, the better you will be balance wise. The higher your hand, the more torque youre putting on the dog and your body. Its not good for you or the dog adn you won’t feel grounded like you are supposed to. I have a video about this that I highly recommend you watch that I made about my harness adn how it changed thigns for me: th-cam.com/video/YXV5_sf95q0/w-d-xo.htmlsi=eTYiHXlSxbrcx3yA I actually spoke on the phone with the people at Bold Lead Designs and they guided me how to order my harness based on my needs and said the tall handle would be wrong for me. I highly recommend doing the same if you are confused or concerned. They know their hanresses way better than ECAD. And I am SO glad I listened to them. I know of people who got the tall handle and regretted it and then got the balance handle and were so happy. Please keep me updated on how your wait is going! Rooting for you.
@@IncredibleAnyway thank you! I’m done fundraising so the wait has officially started. I’m not scheduled for team training yet but was told i’ll likely be waiting until 2026. I’ve been binge watching your videos so i’m definitely planning on following your advice regarding the harness. I’ll be using it mainly for balance and want to feel “grounded”. Did you speak to the harness maker prior to team training or when does that happen?
I've had Menieres for about 22 years, but had many many years of remission before it came back very consistently 12 years ago...then into remission again. Anyhow, I had it badly for a month in 2022 and then it came back more mildly this past week - but now with facial sensitivity. I have been thinking more and more about Gentamicin. From what you said though it sounds like it only helped you for 1 month? Do you mind clarifying this? And how was the phsyio when you had to learn to rebalance?
I'm sorry to hear that you're dealing with the Meniere's symptoms. I have a playlist on my experience with Gentamicin here: th-cam.com/play/PLTGnpduSk6I2LLWmIkjkWfdS4w-tKPvOJ.html This video was filmed in 2015, so a lot has happened since then. Most people have a great experience with Gentamicin and find complete or almost complete relief from symptoms in 1 to 3 in injections. I am a rare case -Gentamicin is supposed to kill the hair cells of the inner ear. We found that my hair cells would die, but then resurrect, which is why the treatment wasn't effective for me long term. But my experience is *very* rare. Most people have success with Gentamicin. Some people get relief from steroid injections - its not destructive like Gentamicin is. I had help from it for months and months at a time. I have a video answering your question about how things are post Gentamicin, but suffice it to say, it takes several weeks. Vestibular therapy is very helpful afterward and I would highly recommend it. Happy to answer any other questions you have. Video on post-gentamicin here: th-cam.com/video/pFm3AM_Wb24/w-d-xo.html
@@IncredibleAnyway Thank you so much for sharing your other videos - I look forward to hearing about your journey. And am so sorry that you were the rare case that had challenges with the injection. Sending lots of hugs.
Please go see an ENT! They will request vestibular testing that will explain the cause of the vertigo. Afterwards you can get vestibular therapy.
Hi that is so kind of you. I see a neurotologist (ENT that specializes in the ear).As the title says, I have Ménière’s disease which was the cause of the vertigo.
How can I talk to you
You can direct message me on instagram @incredibleanyway
Thank you so much 🙏🏽 been putting off doing this after an adverse reaction to prior meds. First jab of this size solo!😅🤞🏽
Well done!!! I hope it is helpful for you and no adverse reactions!
Hi Kelly! I hope this treatment works fine for you. You are such a warrior, these procedures can be very invasive. Have agreat day!
Thank you!
Just a hug today. I have seen you sweety. My brain is freyed after therapy conversation yesterday afternoon. ❤❤❤ Marloes
Thinking of you and your poor brain. I bet it was a lot.Hugs
Just listening to you describing the scope down in to the throat made me almost gag, that had to have been awful, you poor thing. So glad your mom went with you! That was funny about you talking about BTS. Before you said it I guessed it. Who else would you be thinking about! Glad it all went well! Continued Prayers for you and thankful prayers for your Mom and Bene. So glad you have them.❤🤗 & 🙏
Thank you for the empathy. it was rough. My mom is amazing! I am so thankful to have her by my side. (And Bene too!)
Hey girl how are you doing
Hey! Taking it one day at a time. How are you?
Twice I've wanted to die.,.just don't want to be here. I didn't realise others felt as ill as me. Thank god I'm watching this. 3:36
My heart hurts reading your comment because I have felt that way too. You truly aren't alone. This disease is hell. I am holding onto hope for you that you will have better days. You are a warrior for persevering - proud of you for getting through today.
I have had this. I get a feeling like i drop real fast then shoot up and then im on floor. I have also felt pushed and end up on floor until help comes to get me off floor. I keep bags around my house everywhere because i dont know when its going to happen and after i hit floor i have what i would describe as violent vertigo and vomiting starts quickly. It varies in how ling it lasts. Its a nightmare. Also hearing loss and tinnitus constantly. Life is no longer good.
I hate you are dealign with this. So smart to keep bags aroung the house. Its sounds like a nightmare. Vomiting and vertigo is hell. You're not alone.
Hi Kelly, I hopoe you are feeling good! You have all the right to keep things to you and share with others as long as you feel safe about it. I am thnkfull for your videos, they've helped me to get a better understanding of my condition and to be less hopeless than I was before.You inspire many of us, of that I'm sure, you are incredible indeed! Have a great week Kelly, keep it up!
Thank you, Alex for supporting me! I'm glad the videos have made you feel less hopeless. Chronic health issues - especially vertigo - can be so rough and disheartening. Your comments help me too and give me encouragement that I so need! Rooting for you as well!
@@IncredibleAnyway Thanks Kelly! Have a great day!
Kelly you have the right to tell or now tell us, you need to only do this in your own time. I so respect your thought and feelings. Continued Prayers 🙏🤗🩷
Thank you, Helen. I deeply appreciate that. Sending a hug your way.
Oh friend you never have to share anything ever that you are not comfortable with. as of today August 18, 2024 you’ve only had brain surgery 14 months and 24 days ago. Brain surgery like your head you only get one brain. So if anyone is pressuring you to share or stuff like that then they don’t have your best intentions. Just know that you are helping so many people whether it’s with your service dog videos you’re cooking videos your dace videos. Number one you always date your videos so they could see what it was so if they were looking for a different time they could find it but number two everybody’s always different so in reality you can’t take one person’s journey. People get really brave behind a screen and almost demand things but they would never say that to your face. I’m so sorry that you’re made to feel that you have to share things in real time just know from my piece of the Internet you don’t have too 3:10
Thank you for all that you said, Emily. I take it to heart - really. And I appreciate your support so very much. I always feel like you have my back. I have yours too. :)
Thank you for sharing such a powerful and vulnerable video. This helps more than you know. Service Dogs save lives. Wishing you all the best, be kind and gentle with yourself always, love from a fellow CPTSD survivor. xox
You are so welcome. Yes! Service dogs save lives! I'm so glad the video was helpful. I absolutely need that reminder to be kind and gentle to myself - I struggle with that. You sound like such a warrior! Sending love back your way. You're not alone. :)
This is sooo interesting. I had my intervieuw with Carlos from brainact group last week. And spoke quite a bit about being different. And your topic today allighns with that. You do you my friend. ❤
Well Done on your interview with Carlos! I'm SO proud of you!!! I need to learn Dutch! I love how we are aligning on what we are taking about. If everyone were the same, life would be boring. There's only one you - and I'm glad to call you my friend. 💜
Hi Kelly it's never crossed my mind that ur not talking about ur surgery - I live (on my own) in Italy & always watch out 4 ur vlog ~ u have a lovely natural way of broadcasting & I feel that I know you🙋🏻♀️
Thank you for watching my vlog and looking out for it. It means a lot to me that you connect with what I'm sharing. Thank you for sharing that with me! I love knowing someone in Italia! 💜
🗣️Preach!
Such a beautiful soul ❤
That is kind of you. Thank you
@@IncredibleAnyway thank you , yesterday I started therapy with Betaserc ( betahistin ) 👏, greetings from Croatia ❤️
Oh yay! I hope it is really helpful for you! I'm so glad you said hello
@@IncredibleAnyway Yes , I am much better today, and I'm not afraid 🌞🤗
Do you or anyone else deal with feelings of apathy as well? I’ve been having daily headaches for over 2 months now and also very apathetic.
I have not dealt with apathy. Do you think the apathy could be connected to depression? Depression is very common with chronic health issues like NDPH/daily headaches.
@@IncredibleAnyway It could be, but I don't necessarily feel depressed. Just apathetic and of course the headaches. I noticed that when the headaches intensify, the more apathetic I feel. It's super strange. Even just squeezing my eyes shut tightly gives me head pain as well as rubbing my nose.
Okay. I see. After reading your comment, I looked up apathy and read about how it can be different from depression. Have you seen a neurologist about the headaches? I read that apathy can be connected to some other neurological issues - doesn't mean that is what is going on with you, but it might be worth talking with your doctor about it and mention the apathy and how it correlates with your headaches.
@@IncredibleAnyway yes I already seen a neurologist. I just had an mri done for the brain. Just waiting for the neurologist to have a look at the images. Then I’m gonna get an mra for the neck because I told her I have a bad habit of chronically cracking my neck so it could maybe be that. The ultimately gonna get some blood work. But yes, the strangest part of it all for me personally is the apathy issue. It’s like I’m a whole new person who doesn’t care anymore. But thank you for taking the time to connect back. Much appreciated.
Oh that is good you got a brain MRI done. I can see why the apathy would be such a strange experience. I'd keep asking the neuro about it until you get a satisfactory answer. If you think of it, please come back and update me when you get the MRI results back. I wish I'd thought of this before, but I'm going to ask around my circle of ppl I know who have chronic headaches online if they have every had apathy or know someone who has and I'll get back with you if anyone has any insight.
so you can't take mecobalamin sublingual melts? mine come in 1.2mg and 6000mg
i don't know much about it and know there's different causes ..like if someone can't absorb it like you :(
I tried the sublingual melts before my doctor moved me to the injections. As you said, I just don't absorb it well enough.