My older sister has been on hospice at home for about 2 months now. From what I’m seeing their visits are very brief. There’s an aide that comes twice a week and gives her a quick sponge bath and very little else so she’s not there any time at all. In fact her daughter just discovered a big tumor on her stomach that neither the aide or the nurse apparently saw as they never mentioned it to her daughter or her husband. I find that strange. They never get her up. When they first started coming to the house she could sit up and feed herself. Now she can’t do either. I go to see her once or twice a week and she keeps telling me she wants to get up. Hospice seemingly doesn’t want to do anything that might help her other then to not be in pain which for the most part she isn’t. But if she hints that she’s hurting out comes the morphine. I’ve never liked the thought of hospice but now I absolutely abhor the thought of it. I have come to feel like there’s good money involved here and that’s mainly what hospice is concerned about. There’s got to be a better solution.
You don't have to wait until close to "the end" to receive hospice services. We are pleased with Hospice of Montgomery and PG county in Maryland. The staff are giving exceptional care to my 100+ year old Dad. Very thankful we called them sooner than later.
My husband had hospice before he died of cancer. He was treated terrible and abused. He did not die in comfort and pain free like was promised. I can’t write everything that they did to him. They far from a family. They were there for the money and that was it.
They lie to you in a very nice way. This video is all BS. If I ever find myself hospice eligible, I will just take some pills and chase it with alcohol and call it a day. It’s legal euthanasia and nobody will ever convince me differently 💯
Yes I completely understand. After having 4 different companies I learned that it can be very different with each company. My grammar company made us give all the final meds , well me ....I had to do it. 😢 my uncle set it all up and I had no control of anything .
My mother went to hospice and it was the best decision we ever made. They helped her with comfort and they helped us with the transition as well. The hospice nurses are very special people! The doctors didn’t think my mother would last the trip to hospice but she lasted 13 days. 4 of which she was lucid and had her 8 kids there and we actually had an amazing time with her. ❤️🥰
How do they eat and drink if they are too sedated on morphine to drink and eat? Does hospice starve them to death or starve them of thirst and kill them?
@@truthseek3017 The patient shouldn't be on coma-inducing amounts of morphine until their pain is at a level that they no longer have the desire to eat or drink. When the body begins to shut down in the days and weeks prior to death, it no long has the desire or need to ingest food or fluids.
Very informative & I do feel better about looking into hospice for my 101 year old Mom & have more direction & comfort in my care taking for however long our Lord let's Mom stay with us.
Dont believe that dying people are not hungry or thirsty. Dont allow them to drug her into a coma, thus keeping her from eating or drinking and dying. Dont believe they have to administer narcotics. Get the license number of every nurse to cares for you mom. Most of those nurses are just out of college.
I felt this 100% i put my collage on hold currently a cna 2 credits from ma. I and my children moved in with my parents to care for my dad. He was brought home on hospice with a few weeks to live. Well here i am a year later he's off hospice but 100% bed bound. I do ALL his cares. He had an amazing hospie team who taught me so much!
College… wtf your in college and you can’t spell college. This is why the US is falling behind further in all subjects. Also “my children and I” not “I and my children”.
He is right about the mystery. 3 years after my mother died in a hospice facility, I am still overwhelmed by the feeling that I killed her by putting her there. Jesus help…
Wish I had known more about hospice before or when my 51 year old daughter needed it. We said no because to us that was giving up. Feel so very bad now that she didn’t have that counseling.
I am so sorry! I understand. I work every day to educate people, but it is hard for people to HEAR me. It is normal to hold on to people you love. I even created a TH-cam Channel to try to teach people about their options.
I worked as an end of life caregiver for people with dementia and Alzheimer’s. I did more positive work with the families, more so than my actual clients! The growth of families is amazing!
I've already commented about doing hospice for my dad. I'm now doing care for my mom while she is going through chemo for pancreatic cancer. This feels like deja vu. I had my mom to help with my dad, but it's just me now. I wouldn't turn down someone reaching out who has been in a similar situation
Nurses see the clients for 20 min once or twice a week. If you want to know who are the REAL HOSPICE workers, they are the CNA's. They report to Nurses everything that the client does in 24 hours, every day. RN's have their right words and get the praises but they are becoming detached and only concerned about consent forms and paperwork. The Main Reason people graduate from hospice is because they shouln't be placed on Hospice from the beginning. Second reason is that often they get better care in hospice program bc they move into a facility that has hospice from home or other facilities with less assistance where they stay longer than they should when family doesnt get reports of more care needed
In terms of having medications covered, you're better off being a frequent flyer at a hospital than using hospice care. Things often covered by Medicare are no longer covered-insulin, other antidiabetic meds, plavix, statins, most pain medications, most antihypertensives. Meanwhile, the company is gathering $100-$200 daily, per patient, from the Federal Budget. There's a reason it's a 3rd of the medical costs in the country while doing everything possible to end medical care.
Unless there’s a non-profit in your area, go with them, we provide everything that isn’t covered and across the nation we are advocating to provide even more. You have the freedom to choose the provider you want, don’t get forced into something that is going to create burden.
My step father was put on hospice with kaiser 2/2021. I thought that there would be nurses etc aides to help. It was all me. Only me other than 20 min check ins every other day. 24/7 9 savagely hard 0 rest days which i could handle. Just the aloneness.. I will never ever recover from it. Ever. Still don’t know what to do regarding for my own well being.
Oh hbgriss I’m sorry you are going through this. My dad started hospice care at home last week. He’s declining rapidly and I’m trying to do what I can. Getting overnight help soon. I have trouble staying focused and present while grieving. Such is life…and death.
So sorry, kaiser promises the moon and the stars but delivers nothing. Call medicare and complaint if you are a kaiser senior advantage, or used to be on medicare.
I did hospice for my dad and ended up performing CPR on my dad on new years Eve. I watched the lights fade while I was trying, but managed to keep the body going long enough for the paramedics to get there and get to the body to the hospital so everyone to come and say goodbye. I don't have any way to come to terms with what happened. Had to slap my middle brother to call 911, shook my mom enough to get her to prep the door for the gurney and called my youngest brother while doing chest compressions so he could come over and grab me to go to the hospital. . Not wanting any sympathy, but looking for someone who has dealt with similar circumstances.
I'm currently with my dad right now hoping for the best outcome idk how much longer it'll be but I hope somehow he gets out of this really don't know what to do
@@tiibybeeder7473 just take it one day at a time. Cherish every moment. If he comes out of it, y'all can laugh about it later. If he doesn't, just know that you did everything you are capable of doing to help.
@@tiibybeeder7473 if you ever need anything, just reach out to me. I'm no good at helping people, but I am good at listening. Just being there means more than you can know
@@therandommusingsofred2340 it does I hadn't seen my father in a while I'm 21 and moved out to Florida and when I came back he was like this he has MSA they gave him 2 weeks but he's still here so we're hoping for the better
My husband died at home with me as his caregiver. I must refer to our hospice folks as the "boppers"--bop in and bop out. For 3 weeks no one from hospice stayed for longer than 16 minutes except for the nurse who arrived over an hour after I called to say that he had died.
@@AliAnswers My grandfather 89 is having to care for my terminal grandma dementia stage 6 and lung cancer metastasis to abdomen hospice says noone will be with them for more than an hour..... So still no help in the end for either of them.
I have a family friend on hospice but she lives far and has been on it for a month she is only expected to have a couple more weeks and I feel like she already died cause I won’t be able to see her again 😭
I have watched tons of videos on this here on youtube and thought they were great. now going through with what is wrong with my sister I went and talked to Hospice and have now changed my mind. would not allow them to come in. if you want any kind of medical done they will not help. and I do not agree with that.
Hospice just wanted my daughter on narcotics, even when my daughter only wanted over the counter pain meds. So she was so sedated she could not eat or drink. They starved her to death. She was dehydrated to death. Five days without food or water. They kept saying she doesn't feel hunger, or thirst. They threatened me, if she doesn't take narcotics, medicaid will stop our services. They killed her.
What we need is the universal right to physician assisted euthanasia. It’s unethical to deny that. What is the point of rotting away in some hospice. The universal right to die should apply to everyone over the age of 18 who wants it (under if terminally il or physical disabled) as a consequence of our births being our parents decision.
The message of the hospice nurse and of hospice in general, isn't if physician assisted euthanasia should or shouldn't be. It's like you're commenting on peanuts when the video is talking about chicken. Im not saying ultimately they do or don't or should or should not go hand in hand, but commenting this on this video doesn't make sense.❤
Absolutely - it’s like life is a trap. We were first forced to exist - and then forced to stay alive. We gave no consent - and we will die for it - We should at least be allowed to choose how. This stupid hospice stuff tries to sound so nice - but some people telling me their opinions about death isn’t going to do anything but get on my nerves. I am not a slave last I checked - assisted suicide should be available to EVERYONE - regardless of if they are dying or not or mentally ill or not. It’s no body else’s business what we do with our SELF lol... It’s nuts I even have to say that in a supposedly “free” country. If anything should be illegal - it’s breeding - not suicide. Breeding is the act of imposing your own will on another human being - one who did not ask for it - need it - or desire it. Suicide is a personal choice
Maybe you should talk to your state politicians about end of life option? Blaming nurses and physicians is moot when they are only following rules and laws by the very people you elected to office.
All these wonderful comments... Y'all should consider selling used cars. Just remember this, you'll be receiving that same cocktail 🍸 someday. What goes around, comes around.
Yes I agree it's not that the person giving up it's not at the family giving up but it is true that you shouldn't leave out the doctors and the nurses and the hospital are giving up and they are giving up on you and they expect you to die and they are ready to end treatment
Okay it's not a death sentence then why are people who pretty much sentenced to death goes to hospice then if I'm just sick and I need help I can't enroll in the hospice I can't go to hospice have to really make up your mind on what really hospices and it's like ya'll say this is what it is I know that's a misconception That's not Right But in a day people who is expected to live longer than 6 months cannot be in hospice so therefore yes it's for people who have a life expectancy of six months or less they may survive it but that is not the expectation and it professionals you should not put people in hospice and then you tell a family of Hope unfair to the people who trust in your facility to help them cope with the death of their loved one and if you can't do I give them that is wrong on your part
My older sister has been on hospice at home for about 2 months now. From what I’m seeing their visits are very brief. There’s an aide that comes twice a week and gives her a quick sponge bath and very little else so she’s not there any time at all. In fact her daughter just discovered a big tumor on her stomach that neither the aide or the nurse apparently saw as they never mentioned it to her daughter or her husband. I find that strange. They never get her up. When they first started coming to the house she could sit up and feed herself. Now she can’t do either. I go to see her once or twice a week and she keeps telling me she wants to get up. Hospice seemingly doesn’t want to do anything that might help her other then to not be in pain which for the most part she isn’t. But if she hints that she’s hurting out comes the morphine. I’ve never liked the thought of hospice but now I absolutely abhor the thought of it. I have come to feel like there’s good money involved here and that’s mainly what hospice is concerned about. There’s got to be a better solution.
Hospice is amazing. I have never been treated better by anyone. Thank you for all of your care. ❤️🙏
You don't have to wait until close to "the end" to receive hospice services. We are pleased with Hospice of Montgomery and PG county in Maryland. The staff are giving exceptional care to my 100+ year old Dad. Very thankful we called them sooner than later.
My husband had hospice before he died of cancer. He was treated terrible and abused. He did not die in comfort and pain free like was promised. I can’t write everything that they did to him. They far from a family. They were there for the money and that was it.
I am sorry to hear that your husbands experience was not positive. However you can't judge everyone by the bad actions of one or a few.
How was he treated terrible and of you knew it was happening to him did you report it or try to change agencies?
They lie to you in a very nice way. This video is all BS. If I ever find myself hospice eligible, I will just take some pills and chase it with alcohol and call it a day. It’s legal euthanasia and nobody will ever convince me differently 💯
Yes I completely understand. After having 4 different companies I learned that it can be very different with each company.
My grammar company made us give all the final meds , well me ....I had to do it. 😢 my uncle set it all up and I had no control of anything .
😂😂😂 Well not everyone can be perfect@@Mr__Geno
My mother went to hospice and it was the best decision we ever made. They helped her with comfort and they helped us with the transition as well. The hospice nurses are very special people! The doctors didn’t think my mother would last the trip to hospice but she lasted 13 days. 4 of which she was lucid and had her 8 kids there and we actually had an amazing time with her. ❤️🥰
I am a hospice chaplain and will turn 40 in September. It is the most fulfilling and life giving thing I’ve ever done.
Thank you so much for all you do ❤️ my grandma just entered hospice today and I’m scared
Great 😊
Thank you for what you do.
I am terminal but I hope I pass before entering hospice. I don’t expect much from hospice because of insurance and staff indifference.
@@Grandtrunk sad 😔
As a hospice nurse, I'm thankful for this show bringing awareness to the world.
Yes
How do they eat and drink if they are too sedated on morphine to drink and eat? Does hospice starve them to death or starve them of thirst and kill them?
@@truthseek3017 The patient shouldn't be on coma-inducing amounts of morphine until their pain is at a level that they no longer have the desire to eat or drink. When the body begins to shut down in the days and weeks prior to death, it no long has the desire or need to ingest food or fluids.
@Truth Seek You die of dehydration within 4 days. They love "last breath" patients. It improves their averages.
Very informative & I do feel better about looking into hospice for my 101 year old Mom & have more direction & comfort in my care taking for however long our Lord let's Mom stay with us.
My mum 71 just chose to go into hospice yesterday 😭🙏 you’re very lucky you had that time with your Mum but I’m sorry to hear .
Dont believe that dying people are not hungry or thirsty. Dont allow them to drug her into a coma, thus keeping her from eating or drinking and dying. Dont believe they have to administer narcotics. Get the license number of every nurse to cares for you mom. Most of those nurses are just out of college.
I felt this 100% i put my collage on hold currently a cna 2 credits from ma. I and my children moved in with my parents to care for my dad. He was brought home on hospice with a few weeks to live. Well here i am a year later he's off hospice but 100% bed bound. I do ALL his cares. He had an amazing hospie team who taught me so much!
College… wtf your in college and you can’t spell college. This is why the US is falling behind further in all subjects. Also “my children and I” not “I and my children”.
He is right about the mystery. 3 years after my mother died in a hospice facility, I am still overwhelmed by the feeling that I killed her by putting her there. Jesus help…
Wish I had known more about hospice before or when my 51 year old daughter needed it. We said no because to us that was giving up. Feel so very bad now that she didn’t have that counseling.
I am so sorry! I understand. I work every day to educate people, but it is hard for people to HEAR me. It is normal to hold on to people you love. I even created a TH-cam Channel to try to teach people about their options.
Positive healing prayers for you and your loved ones
I worked as an end of life caregiver for people with dementia and Alzheimer’s. I did more positive work with the families, more so than my actual clients! The growth of families is amazing!
Thank you for your service
I've already commented about doing hospice for my dad. I'm now doing care for my mom while she is going through chemo for pancreatic cancer. This feels like deja vu. I had my mom to help with my dad, but it's just me now. I wouldn't turn down someone reaching out who has been in a similar situation
This definitely left me scarred. PTSD before hand
there no peace unless there is Jesus Christ there!
My FIL told my MIL how much he hated her and all the things he wanted to say. He let go all the angers he was holding in.
Nurses see the clients for 20 min once or twice a week. If you want to know who are the REAL HOSPICE workers, they are the CNA's. They report to Nurses everything that the client does in 24 hours, every day. RN's have their right words and get the praises but they are becoming detached and only concerned about consent forms and paperwork. The Main Reason people graduate from hospice is because they shouln't be placed on Hospice from the beginning. Second reason is that often they get better care in hospice program bc they move into a facility that has hospice from home or other facilities with less assistance where they stay longer than they should when family doesnt get reports of more care needed
In terms of having medications covered, you're better off being a frequent flyer at a hospital than using hospice care. Things often covered by Medicare are no longer covered-insulin, other antidiabetic meds, plavix, statins, most pain medications, most antihypertensives. Meanwhile, the company is gathering $100-$200 daily, per patient, from the Federal Budget. There's a reason it's a 3rd of the medical costs in the country while doing everything possible to end medical care.
Unless there’s a non-profit in your area, go with them, we provide everything that isn’t covered and across the nation we are advocating to provide even more. You have the freedom to choose the provider you want, don’t get forced into something that is going to create burden.
My step father was put on hospice with kaiser 2/2021. I thought that there would be nurses etc aides to help. It was all me. Only me other than 20 min check ins every other day. 24/7 9 savagely hard 0 rest days which i could handle. Just the aloneness.. I will never ever recover from it. Ever. Still don’t know what to do regarding for my own well being.
Oh hbgriss I’m sorry you are going through this. My dad started hospice care at home last week. He’s declining rapidly and I’m trying to do what I can. Getting overnight help soon. I have trouble staying focused and present while grieving. Such is life…and death.
So sorry, kaiser promises the moon and the stars but delivers nothing. Call medicare and complaint if you are a kaiser senior advantage, or used to be on medicare.
I did hospice for my dad and ended up performing CPR on my dad on new years Eve. I watched the lights fade while I was trying, but managed to keep the body going long enough for the paramedics to get there and get to the body to the hospital so everyone to come and say goodbye. I don't have any way to come to terms with what happened. Had to slap my middle brother to call 911, shook my mom enough to get her to prep the door for the gurney and called my youngest brother while doing chest compressions so he could come over and grab me to go to the hospital. . Not wanting any sympathy, but looking for someone who has dealt with similar circumstances.
I'm currently with my dad right now hoping for the best outcome idk how much longer it'll be but I hope somehow he gets out of this really don't know what to do
@@tiibybeeder7473 just take it one day at a time. Cherish every moment. If he comes out of it, y'all can laugh about it later. If he doesn't, just know that you did everything you are capable of doing to help.
@@tiibybeeder7473 if you ever need anything, just reach out to me. I'm no good at helping people, but I am good at listening. Just being there means more than you can know
@@therandommusingsofred2340 I really hope so
@@therandommusingsofred2340 it does I hadn't seen my father in a while I'm 21 and moved out to Florida and when I came back he was like this he has MSA they gave him 2 weeks but he's still here so we're hoping for the better
The nurses are in and out fast as a lightning. The doctors over medicate the pts. That's hospice for you!
My husband died at home with me as his caregiver. I must refer to our hospice folks as the "boppers"--bop in and bop out. For 3 weeks no one from hospice stayed for longer than 16 minutes except for the nurse who arrived over an hour after I called to say that he had died.
@@ausept45 I am so sorry that happened to you. It should not have been that way.
@@ausept45 😞
So true I do believe they over to over medicate the patients to take them out faster
@@AliAnswers My grandfather 89 is having to care for my terminal grandma dementia stage 6 and lung cancer metastasis to abdomen hospice says noone will be with them for more than an hour..... So still no help in the end for either of them.
They starved and dehydrated my grandma to death
Hospice Nurse here. 6 years
What type, RN, LVN, CNA?
@@alirE2904 RN
@@authenticme7351 how many years in med surg or ICU or ER?
I have a family friend on hospice but she lives far and has been on it for a month she is only expected to have a couple more weeks and I feel like she already died cause I won’t be able to see her again 😭
I have watched tons of videos on this here on youtube and thought they were great. now going through with what is wrong with my sister I went and talked to Hospice and have now changed my mind. would not allow them to come in. if you want any kind of medical done they will not help. and I do not agree with that.
There's really a whole lot more to it though
Hospice just wanted my daughter on narcotics, even when my daughter only wanted over the counter pain meds. So she was so sedated she could not eat or drink. They starved her to death. She was dehydrated to death. Five days without food or water. They kept saying she doesn't feel hunger, or thirst. They threatened me, if she doesn't take narcotics, medicaid will stop our services. They killed her.
Thats how i feel too
When to Call hospice on my mom... 😭
Never they will just drug until she dies
❤
❤❤❤
❤️❤️
🤬
There is no hope in life
What we need is the universal right to physician assisted euthanasia. It’s unethical to deny that. What is the point of rotting away in some hospice. The universal right to die should apply to everyone over the age of 18 who wants it (under if terminally il or physical disabled) as a consequence of our births being our parents decision.
The message of the hospice nurse and of hospice in general, isn't if physician assisted euthanasia should or shouldn't be. It's like you're commenting on peanuts when the video is talking about chicken. Im not saying ultimately they do or don't or should or should not go hand in hand, but commenting this on this video doesn't make sense.❤
Absolutely - it’s like life is a trap. We were first forced to exist - and then forced to stay alive. We gave no consent - and we will die for it - We should at least be allowed to choose how.
This stupid hospice stuff tries to sound so nice - but some people telling me their opinions about death isn’t going to do anything but get on my nerves.
I am not a slave last I checked - assisted suicide should be available to EVERYONE - regardless of if they are dying or not or mentally ill or not. It’s no body else’s business what we do with our SELF lol... It’s nuts I even have to say that in a supposedly “free” country.
If anything should be illegal - it’s breeding - not suicide.
Breeding is the act of imposing your own will on another human being - one who did not ask for it - need it - or desire it.
Suicide is a personal choice
@@unnecessaryrisk1082 so ironic that here you are saying you didn't consent to life. But had u not been alive to say that....Only God knows...
@@rn5350, people who don't believe cannot fathom the Father's plan.
Maybe you should talk to your state politicians about end of life option? Blaming nurses and physicians is moot when they are only following rules and laws by the very people you elected to office.
All these wonderful comments... Y'all should consider selling used cars. Just remember this, you'll be receiving that same cocktail 🍸 someday. What goes around, comes around.
Yes I agree it's not that the person giving up it's not at the family giving up but it is true that you shouldn't leave out the doctors and the nurses and the hospital are giving up and they are giving up on you and they expect you to die and they are ready to end treatment
Okay it's not a death sentence then why are people who pretty much sentenced to death goes to hospice then if I'm just sick and I need help I can't enroll in the hospice I can't go to hospice have to really make up your mind on what really hospices and it's like ya'll say this is what it is I know that's a misconception That's not Right But in a day people who is expected to live longer than 6 months cannot be in hospice so therefore yes it's for people who have a life expectancy of six months or less they may survive it but that is not the expectation and it professionals you should not put people in hospice and then you tell a family of Hope unfair to the people who trust in your facility to help them cope with the death of their loved one and if you can't do I give them that is wrong on your part