Living with PANS and PANDAS

PANS PANDAS UK present this moving mini-documentary featuring the voices of parents with children affected by PANS or PANDAS. This is their story, their experience and we thank them for being so honest and candid.
We would also like to thank Ines Coimbra @ines.m.coimbra and Lily Kingston @lordhighkingston who created the video on behalf of PANS PANDAS UK

[@singandsigntogether]

This sounds so much like my son. For the last week all i have done is reaseach after research on this. He is 8 and has been suffering since he was 2 and has been diagnosed with Autism. Severe at that, with no one to help us or listen to me. ive said for years its something about his ears and behind his nose.. We are hopfully anyway on the right track already over this weekend with meds prescribed for his ear infections and ibroprofen 3 timed a day, and already ive seen a difference. So shocking. Hes calm. Talking. Relaxed. So Bk to the drs on Tuesday to fight my case and in the hope he listens to me now and understands.

[@jackiewoodward7840]

my grandaughter has this and it is so so dreadful ..please fight for recognition of this dreadful condition to be acknowledged

[@garethbidder1561]

That’s a great film and all the comment resonate with us. Our pans journey started 2 years ago, our daughter was 4 at the time. In hindsight we think it was more than that but 2 years ago we really lost her.
After trying many doctors, we tried a homeothapist who has been amazing. We’re a year into treatment, on our second remedy and the results have been incredible. It’s hard to understand why it works but it really does!

[@horselover7216]

Are you based in the uk?

[@garethbidder1561]

horselover7216 yep. We found a well respected US based homeothapist. It’s really prevalent over there. Join the ‘homeopathy for pans & pandas’ group on FB.

[@horselover7216]

@@garethbidder1561 don't have Facebook :(

[@staceysmith589]

We’ve been battling this with our son since he was 17. He is 20 now. Yes, older children and adults can get this. It’s horrific to know how much our medical system is lacking in knowledge about this condition and flat out denies it because it is too complex for them to deal with. This illness drains you in every aspect of your life. If anyone needs help with this, feel free to contact me. Joining pans/pandas Facebook groups have been a godsend. Moms on their know ten times more than any doctor will ever know about this condition.

[@horselover7216]

This is so me :( I'm 25 and I think I have pans

[@panspandasukcharity9754]

I'm sorry to hear that horselover7216. Come on over to facebook and search PANS PANDAS UK Support Group - we can help you from there, alternatively email us on [e-mail]

[@horselover7216]

@@panspandasukcharity9754 I might email as I had to delete Facebook

[@horselover7216]

@@panspandasukcharity9754 thanks. I will email

[@M.P.T.1.2.3]

Is it possible that in her early 60's a Lady can suffer from Pans or Pandas?

[@maxaffe3195]

@@M.P.T.1.2.3 yes they suspect that mechanisms like PANS/PANDAS also exist in adult people.