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Where can we go to get a diagnosis? Desperapate to find somewhere in the UK to give a diagnosis. Would be eternally grateful if you could help.

Please can you tell me where can I get a diagnosis in the UK ? . I would be eternally greatful for any help thank you.

It so interesting so far! The questions about sleep is similar how my son has one residual symptom at the moment and it's throat clearing and I was wondering if this is due to the fact that he had this symptom before I knew about PANDAS and there an element of muscle memory

Just about 6 months ago I didn't even know about the existence of PANS/PANDAS and now have a child who has been recognized as having PANDAS. I have only just came across this video. Just started watching it, hope that I will gain more understanding on how to support my child with it 🙏

Hi, my daughter fits these symptoms. I’m in desperate need of support, how can I get in touch with the charity? I am on the Facebook group

Well done and thank you for speaking up, Olivia. You are fabulous!!!

This sounds so much like my son. For the last week all i have done is reaseach after research on this. He is 8 and has been suffering since he was 2 and has been diagnosed with Autism. Severe at that, with no one to help us or listen to me. ive said for years its something about his ears and behind his nose.. We are hopfully anyway on the right track already over this weekend with meds prescribed for his ear infections and ibroprofen 3 timed a day, and already ive seen a difference. So shocking. Hes calm. Talking. Relaxed. So Bk to the drs on Tuesday to fight my case and in the hope he listens to me now and understands.

my grandaughter has this and it is so so dreadful ..please fight for recognition of this dreadful condition to be acknowledged

We didn't know for years

I have pans

GPs must be more aware and also some hospitals and not be dismissive. My daughter has had to fight and fight for her daughter who was a normal bright and funny little girl until she developed chicken pox at the age of 3. She has not been able to manage school for the last 3 years. She is now 11. The detrimental effect on the family has been enormous. It is out there and needs to be recognised

That’s a great film and all the comment resonate with us. Our pans journey started 2 years ago, our daughter was 4 at the time. In hindsight we think it was more than that but 2 years ago we really lost her. After trying many doctors, we tried a homeothapist who has been amazing. We’re a year into treatment, on our second remedy and the results have been incredible. It’s hard to understand why it works but it really does!

This is so me :( I'm 25 and I think I have pans

th-cam.com/video/YDE35-7hR5E/w-d-xo.html&feature=share A video I have created of Samuel's struggles